a-xlrm summary for byte case studies: crisis, culture and health

BYTE: A-XLRM summary for BYTE case studiesRachel FinnTrilateral Research, Ltd.BYTE project coordinator

Big data roadmap and cross-disciplinary community for addressing societal externalities

Crisis, culture and health10 February 2016

Crisis informatics case study

Background information◦ Undertaken with the Research Institute for Crisis

Computing ◦ Machine computing and human computing to make

crisis maps from social media

◦ RICC provides the open source tool to humanitarian organisations and manages interaction between inputs and outputs

◦ Data characteristics◦ 100,000s messages and images/day

@BYTE_EU www.byte-project.eu

Actors & StakeholdersActors

• RICC• Humanitarian

organisations• Government• Firms: big data

capabilities• Firms: big data providers

Stakeholders

• Social media users• Local communities• Those affected by crises


External forces & policy levers

• For governments• Making additional data

sources open• For RICC and data centres

• Reducing the digital divide• Harmonising laws

Policy levers

• Climate change• Natural disasters• Political conflicts

External forces


RelationshipsCitizens/local

authorities

National authorities

Humanitarian

organisations


Measures of meritPositive

• Faster relief• Better resource predictions• New business models

through open data• Infrastructure and

technology improvements

Negative

• Privacy issues, incl. data misuse

• IPR issues• Distraction from core

humanitarian tasks• Difficulty assessing data

reliability

Cultural data case study

Background information◦ Undertaken with A Pan-European Cultural Heritage

Organisation (PECHO) ◦ EU-funded aggregator of more than 25 million

digitised objects from cultural heritage institutions in Europe ◦ Incl., books, sculptures, paintings, films, maps, audio recordings, etc.

◦ Data is primarily comprised of metadata outlining other organisations’ collections



• National European cultural heritage organisations

• PECHO• Policy makers• Legal professionals• Public and private funding

bodies

Stakeholders

• General public• Libraries, archives, galleries,

museums• Open data advocates



• National and European governments as major sources of funding and policy framework

• Managing intellectual property issues/ copyright reform

Policy levers

• Clearer information on data sources

• Copyright issues• Qualified workforce• Diverse European language• American dominance over

infrastructure

External forces


RelationshipsEuropean cultural

heritage organisations

Cultural heritage organisations in

3rd countries

National cultural heritage

organisations



• Exploiting the metadata• Innovations of cultural

services• New applications & business

models within cultural heritage

Negative

• IPR and copyright challenges• Ethics of opportunistic search

engines

Health case study

Background information◦ Undertaken with a university-based Genetic Research

Initiative◦ Discovery of new genetic links in relation to rare

childhood diseases to aid treatment

◦ Data is primarily comprised of genetic profiles, which are growing in size as new sequencing techniques become more affordable



• Health policy-makers• National Health Service• Genetic Research Initiative• Scientists and labs conducting

genetic sequencing• Medical professionals

Stakeholders

• Patients and family members• Computational geneticists• Academics



• Health policy• Regulations• Funding restrictions• Treatment service restrictions

• GRI• New business models based

on genetic data

Policy levers

• National healthcare policies• Disease outbreaks• Personal data protection

laws

External forces


RelationshipsGRI

Public healthcare providersPatients



• Better treatments in near-term and long-term

• Reduction of costs• Better research• Better access to information

through open data

Negative

• Access to equipment• Budget restrictions• Discrimination because of

income or disease category• Discrimination as a result of

re-identification


Thank you for your attention!

Key contacts: ◦ Rachel Finn, [email protected] ◦ Kush Wadhwa, [email protected]

Website: www.byte-project.euBYTE on Twitter: @BYTE_EU

mailto:[email protected]

mailto:[email protected]

http://www.byte-project.eu/

a-xlrm summary for byte case studies: crisis, culture and health

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