REALIZE IT 2013 Healthex 2013Bangalore

Shoubhik Bose Software Architect and volunteer,ArogyaUDHC

MissionArogya.org

Health 2.0 - What

Health 2.0 - Why

Staying informed. Medical education. Collaboration and practice. Managing a particular disease. Sharing data for research.

Email v/s Collaboration

User-driven healthcare- How

1. Collect health information.

2. Team of health experts discuss 'privately'.

3. Produce a solution.

User-driven healthcare - What

Anatomy of a social network

Tabula Rasa

User-driven healthcare : Our implementation

Mathabhanga district in West Bengal

Findings from a healthcare questionnaire

Absolute survey respondents V/S Commonly known problems

Dissecting the system

User-driven healthcare - features

Hassle-free login using Google/Yahoo account. Multi-interface input. Anonymised patient names. Similar case reports prediction engine. Graphical representation.

The proposed flow

Patient sends a voice/text message.

Message is sent to the server and made available on the web page.

Medics get notified by email/phone.

ArogyaUDHC

InputTIER 1

PATIENT CARE-GIVER

Some of the Patient inputs we have recieved over email/web so far.

The input - How do we anonymise? Scientific names used instead of real patient names.

Mashed up with pincode for geolocation

Blurring of names in reports manually using image editors before uploading.

ABELMOSCHUS480***ESCULENTUS

The input - Anonymisation

1. Image editors native to the web-based application to allow image manipulation after upload.

2. "Identifier detection" algorithms to automatically remove patient identifiers.

3. Image tagging. ( Something similar to Facebook? )

Patient consent form ( English ) Patient Consent form I give my consent for this information about MYSELF/MY WARD/MY RELATIVE [indicate correct description] relating to my/his/her health to appear in the User Driven Health Care UDHC clinical problem solving forum and web based electronic health record.I understand the following:

1. UDHC forum is an initiative to promote transparency and ethical practices in health care while qualitatively studying its processes to assess the role of various (hitherto unidentified) factors that influence healthcare outcomes.

1. UDHC network aims to qualitatively study and in a controlled online-forum, support the phenomenon of sharing an individual's disease related information with other multiple stake holders in healthcare such as similar patients, related health and other professionals to determine if this shared learning activity is beneficial in the individual's healthcare outcome.

1. My information will be published without my real name attached and UDHC clinical problem solving forum will make every attempt to ensure my anonymity addressing me solely by my anonymized user-name.

1. I understand, however, that complete anonymity cannot be guaranteed. It is possible that somebody somewhere - perhaps, for example, somebody who looked after me if I was in hospital or a relative - may identify me.

1. UDHC clinical problem solving forum will not allow the Information to be used out of context. The text of the information may be edited for style, grammar, consistency, and length.

1. The Information may be published in the UDHC clinical problem solving forum and associated journals on paper as well as in the internet, which would be distributed worldwide.

1. Information displayed in the UDHC clinical problem solving forum is not supposed to replace advice from the primary care physician of the patient.

Signed Accept (Patient) Witness

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Add health issue

Agreement

Addition of reports

Inputs

PHR query

Inputs - reports

Input - Narrative

Partnership withBritish Medical Journal

Hidden layerTIER 2

MODERATORS

MEDICAL STUDENTSCARE-GIVERS

The hidden layer - discussion

OutputTIER 3

CARE-GIVERS CARE-SEEKERSMODERATORS

Output

References

Solution - multiple languages

Evidence-based learning

Dashboard

Moderators

Recommendation engine

Patient posts health issue.

System "predicts" similarity with a previously solved health case.

Health experts take assistance of previously solved case to provide solution.

The new solution gets added to the "repository" of previously solved cases.

Data from BMJ

"Google Prediction" for health narratives ?

Given a new health narrative , predict a previously solved case from the archive, based on similar valued examples in its training data.

Given a new health narrative ,choose a health record that describes it best, given a set of similar health records items in its training data.

Crowdsourcing the UDHC platform

Mr. Kar

Who can contribute ?

Medical students. Engineers. Designers. Doctors. Moderators. Translators. Content editors. Care-seekers

... and the list goes one.

Anyone can help make build this encyclopedia of health issues.

Student electives

References

Swan Health 2.0 model , Emerging Patient-Driven Health Care Models: An Examination of Health Social Networks, Consumer Personalized Medicine and Quantified Self-Tracking, Int. J. Environ. Res. Public Health 2009, 6, 492-525

BMJ ( 2012 ), BMJ Case Reports - Article archive by date, Retrieved fromhttp://casereports.bmj.com/content/by/year

Biosense Technologies (2012) , Myshkin Ingawale, Retrieved from http://unreasonableinstitute.org/profile/mingawale/

UDHC ( 2012 ) Retrieved from http://care.udhc.co.in/STATICS/what.jsp Evidence based learning , 5 steps to evidence-based learning , http://www.

ebbp.org/steps.html Anatomy of a social network, Dave Gray, https://plus.google.

com/117373186752666867801/posts/CQRVeKEsUvF

Thank you Questions and comments

www.udhc.co.inwww.missionarogya.org

sbose78@gmail.com , sbose@udhc.co.in @sbose78 shoubhik.bose

ArogyaUDHC : www.udhc.co.in