uk renal registry update 2010
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UK Renal Registry Update
2010and future plans
Chris MaggsDeputy Director
Overview
• Registry structure & development• Registry Report• Work in progress
• Registry strategy and plans• Quality improvement• Registry collaborations
Registry Staff• Chairman• Director• Deputy Director• Business Manager• Project manager• Clinical Informatics manager• Statisticians• IT database support• Data management• Secretarial support
Registry
OfficeContact info
Core fundingCapitation
Registry IT
Re-written the UKRR databaseNew hardware (Linux box)New databaseNew language for file loading routines
= New error reportsAdditional validationsUpdated for NRD
IT support for new web based databases
New data items
Pre RRTCKD 5 (at 6 sites only)Report soon
Monthly extracts of lab data in quarterly data extract (+dates)
Access – vascular & PDHD individual session logging
Registry Reports
ANNUAL REPORT
Commissioner specific Report
Transplant specific Report to BTS
Renal Patient View
Keith Simpson & Neil Turner continue to direct strategy and development
Management moved to BristolRegistry Informatics manager
handling email queries
Funded £2.50 (inc VAT) per RRT patient
Web based Rare Disease Registries
(RaDaR)
Renal Data Map Atlas
Grant from Dept Health
East Midlands PHO
Afzal Chaudhry
http://www.renalreg.com/interactive-maps/
Centre specific reporting
Centre specific reporting
Centre specific reporting
Registry Meetings
2010 Renal PatientView ConferenceDate to be confirmed Q2
2010 Registry Annual Audit MeetingThursday 10th June
REGISTRY 5 YEAR STRATEGY
• The UKRR will be the dominant organisation producing high quality information on all aspects of the treatment of adults and children with kidney disease in the UK.
• The UKRR will report on variations in outcomes to drive improvement in the care of patients with kidney disease.
5 YEAR STRATEGY
• FINANCIALLY VIABLE
• RECEIVE DATA ON 100% OF PATIENTS ON RRT
• INCREASE IN NUMBERS OF RARE KIDNEY DISEASES
5 YEAR STRATEGY
• CONTINUE TO PRODUCE ANNUAL REPORT
• WEB BASED QUARTERLY CENTRE-SPECIFIC STATISTICAL PROCESS CONTROL CHARTS USING QUATERLY DATA: BY 2015, QUARTERLY REPORTS TO INCLUDE MONTHLY DATA
5 YEAR STRATEGY
• PATIENT-FACING SUMMARY REPORT FOR PATIENTS BY 2012
• ANNUAL REPORT TO INCLUDE CASE MIXED ADJUSTED OUTCOME ANALYSES BY 2013
5 YEAR STRATEGY
• BY 2015, REPORT ON:
• Cost of care• Bacteraemia• Vascular access• Dialysis dose• Cause of death• Patient experience/outcome measures
UK Renal Registry Update
2010