update on the uk renal data collaboration (ukrdc) uk renal registry 2015 annual audit meeting dr...

43
Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

Upload: brittney-mathews

Post on 15-Jan-2016

216 views

Category:

Documents


0 download

TRANSCRIPT

Page 1: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

Update on the UK Renal Data Collaboration (UKRDC)

UK Renal Registry2015 Annual Audit Meeting

Dr Keith SimpsonMedical Adviser, UK Renal Registry

Page 2: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Data Collaboration(UKRDC)

Update on the UK Renal Data collaboration Bristol

05 March 2015

Keith SimpsonMedical advisor to the UK Renal Registry

[email protected]

Page 3: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

RPV

.

Labs

RenalUnits

UKRR

SRR

RaDaR

NHSBT

OtherNational data

BAPN

UK Renal Data

Page 4: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

RPV

.

UK Renal Data Collaboration

Labs

RenalUnits

UKRR

SRR

RaDaR10-20 gps

NHSBT

OtherNational data

Warehouse

BAPN

Page 5: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

Demographic Data

Clinical Contacts

Results

Biometric Data

Transplantation

Haemodialysis

Peritoneal dialysis

Quality Improvement & Audit

Care Plan

Clinical notes and correspondence

Medication

Summaries

Decision support

Links to Registries, RPV, Labs, Patient Admin.

Commissioning

Page 6: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

Who Everybody who legitimately handles data:

PatientsUnit Administrators

SecretariesClerkessNursesDoctors

DieticiansOccupational Therapists

Physiotherapy …

Page 7: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

Real time comprehensive links with 1y care, other units, UKT, Labs, PAS Standardised comms xml, HL7, agreed coding (SNOMED-CT)

Link clinical problems, to do list, decision support, care plan

Built in safety systems – defaults, prompts, warningsImages, statistical analyses, process controlIncorporate emailCost trackingEquipment monitoring and serviceVoice recognitionSupport for research and teaching

Page 8: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

Rules of engagement

Page 9: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

Rules of engagement

FlexibleFast

FunctionalFinanced

Page 10: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

Rules of engagement

FlexibleFast

FunctionalFinanced

(Fun)

Page 11: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Registry UKRR

Scottish Renal Registry SRR

Patient View PV

UK Registry for Rare Kidney Diseases RaDaR

British Association for Paediatric Nephrology BAPN

NHS Blood & Transplant

Northern Ireland Nephrology Forum

Welsh Renal Clinical Network

UK Renal Data Collaboration (UKRDC) Board

Page 12: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

Health Informatics Unit Royal College of Physicians

Royal College of Pathologists

Health and Social care Information Centre

Dept of Health

NHS England

NHS National Services Scotland

ERA-EDTA

International Health Terminology Standards Development Organisation

HL7 UK

UK Renal IT suppliers

UK Renal CD Forum

Lots of help & Support

Page 13: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Data Collaboration

Page 14: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Data Collaboration

Diagnosis SNOMED CTProcedures

Lab data National Lab Med Catalogue NLMCTerminology Committee Dr Afzal Chaudhry Data set group Drs James Medcalf and Jamie Traynor

Data set will be published on webAny data

Page 15: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Data Collaboration

Diagnosis SNOMED CTProcedures

Lab data National Lab Med Catalogue NLMC

Page 16: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Data Collaboration

Diagnosis SNOMED CTProcedures

Lab data National Lab Med Catalogue NLMC

Board Thurs 26 Feb 2015Agreed all main relationships, roles, purpose

Page 17: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Data Collaboration

Diagnosis SNOMED CTProcedures

Lab data National Lab Med Catalogue NLMC

Board Thurs 26 Feb 2015Agreed all main relationships, roles, purposeUKRDC will enable but not force

Page 18: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Data Collaboration

Diagnosis SNOMED CTProcedures

Lab data National Lab Med Catalogue NLMC

Board Thurs 26 Feb 2015Agreed all main relationships, roles, purposeUKRDC will enable but not forceCapitalise on what we have in common

Page 19: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Data Collaboration

Diagnosis SNOMED CTProcedures

Lab data National Lab Med Catalogue NLMC

Board Thurs 26 Feb 2015Agreed all main relationships, roles, purposeUKRDC will enable but not forceCapitalise on what we have in commonDevelop systems that meet the most exacting requirement of any member

Page 20: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Data Collaboration

Diagnosis SNOMED CTProcedures

Lab data National Lab Med Catalogue NLMC

Board Thurs 26 Feb 2015Agreed all main relationships, roles, purposeUKRDC will enable but not forceCapitalise on what we have in commonDevelop systems that meet the most exacting requirement of any memberUse national and international standards if possible

Page 21: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Data Collaboration

Diagnosis SNOMED CTProcedures

Lab data National Lab Med Catalogue NLMC

Board Thurs 26 Feb 2015Agreed all main relationships, roles, purposeUKRDC will enable but not forceCapitalise on what we have in commonDevelop systems that meet the most exacting requirement of any memberUse national and international standards if possibleRetain flexibility

Page 22: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Data Collaboration

Diagnosis SNOMED CTProcedures

Lab data National Lab Med Catalogue NLMC

Board Thurs 26 Feb 2015Agreed all main relationships, roles, purposeUKRDC will enable but not forceCapitalise on what we have in commonDevelop systems that meet the most exacting requirement of any memberUse national and international standards if possibleRetain flexibilityRespond quickly to new requirements

Page 23: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Data Collaboration

Diagnosis SNOMED CTProcedures

Lab data National Lab Med Catalogue NLMC

Board Thurs 26 Feb 2015Agreed all main relationships, roles, purposeUKRDC will enable but not forceCapitalise on what we have in commonDevelop systems that meet the most exacting requirement of any memberUse national and international standards if possibleRetain flexibilityRespond quickly to new requirementsEnable Innovative medical practice (not data comms)

Page 24: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Data Collaboration

Diagnosis SNOMED CTProcedures

Lab data National Lab Med Catalogue NLMC

Board Thurs 26 Feb 2015Agreed all main relationships, roles, purposeUKRDC will enable but not forceCapitalise on what we have in commonDevelop systems that meet the most exacting requirement of any memberUse national and international standards if possibleRetain flexibilityRespond quickly to new requirementsEnable Innovative medical practice (not data comms)Manage the data not the projects

Page 25: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Data Collaboration

Why is it so hard?What could go wrong?

Page 26: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry
Page 27: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

Interoperability

Page 28: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Data Collaboration

Page 29: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry
Page 30: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry
Page 31: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry
Page 32: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry
Page 33: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry
Page 34: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry
Page 35: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

http://www.theguardian.com/world/2013/sep/05/nsa-gchq-encryption-codes-security

Page 36: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Data Collaboration (UKRDC)

A wee success story

Page 37: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

UK Renal Data Collaboration (UKRDC)

A wee success story

D4D GrantEnable patients to lead in medicines reconciliation

Page 38: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry
Page 39: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry
Page 40: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry
Page 41: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

RPV

.

UK Renal Data Collaboration

Labs

RenalUnits

UKRR

SRR

RaDaR10-20 gps

NHSBT

OtherNational data

Warehouse

BAPN

Page 42: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

Group discussions:What will the UKRDC mean for my renal unit?

UK Renal Registry2015 Annual Audit Meeting

Chair:Ron CullenDirector, UK Renal Registry

Page 43: Update on the UK Renal Data Collaboration (UKRDC) UK Renal Registry 2015 Annual Audit Meeting Dr Keith Simpson Medical Adviser, UK Renal Registry

To think about / discuss

1. What will the UKRDC mean for my renal unit?

What do we do about OR how to prevent:2. Change in political climate 3. Standards change4. Doctor No5. Manager’s who don’t get it6. IT who don’t get it7. We can’t afford it8. Patients lose faith