Personal Data:

Asset or Right

or Both?

Antti 'Jogi' PoikolaeHealth Tallinn 2017 // October 17Citizen-controlled data governance and Data donors

Slides: http://bit.ly/mydata-ehealth

about.me/apoikola twitter.com/apoikola

Antti “Jogi” Poikola

● Researcher / Aalto HIITMyData & Mobility as a Service (MaaS)

● Founder / Open

Knowledge Finland

Slides: http://bit.ly/mydata-ehealth

MyData 2016 - “Advancing human-centric personal data”

700 people: Business, public sector, activists & NGOs +

researchers

Data: plenary presentations & audience interactions

Something is wrong in the

data economy.

The current situation is

unfair and unsustainable.

Individuals should be in

control of their own data.

Then something good will

follow.

DECLARATION OF

MYDATA PRINCIPLES

WHAT NEEDS TO

CHANGE

(v1.0)

https://mydata.org/declaration

THREE MYDATA

SHIFTS:

WHAT NEEDS TO

CHANGE?

https://mydata.org/declaration

1. FROM FORMAL TO ACTIONABLE RIGHTS

https://mydata.org/declaration

1. FROM FORMAL TO ACTIONABLE RIGHTS

https://mydata.org/declaration

2. FROM DATA PROTECTION TO DATA

EMPOWERMENT

https://mydata.org/declaration

3. FROM CLOSED TO OPEN ECOSYSTEMS

CHECK AND SIGN

WHAT NEEDS TO

CHANGEhttps://mydata.org/declaration

People should have access

and control to their data,

but why?

“As people start taking ownership of

their data and determining who can

use it, the value of personal data is

likely to grow.”

UTILITY FOCUS

“Individuals have a fundamental

right to determine how their data is

used.”

RIGHTS FOCUS

UTILITY FOCUS

RIGHTS FOCUS

Data is today the most valuable asset in the context of the

Digital Economy. Industry Giants, such as GAFAM, are

collecting continuously the data from each individual.

Citizens are more and more claiming for the control and

the real ownership of these data as each of us produce

them. The Digital Health Society will be possible if people

are confident to share their data, either as a Donation,

either as an asset hosted in secured environment where

they are able to control and use them as they want.

Code is Law(Lawrence Lessig)

Architecture is Politics(Mitch Kapor)

Code is Law(Lawrence Lessig)

Architecture is Politics(Mitch Kapor)

What political goals do we strive in

the personal data field?

Let’s Stop Talking About

‘Data Ownership’

MY OPINION AT THE MOMENT:

twitter.com/apoikola

Thanks

Let’s enjoy the

conference!

“People’s right to decide

about and monitor their

personal information will be

enhanced.”

Strategic Programme of Prime Minister Juha Sipila’s

Government 29 May 2015 - p.27

MyData in the Government Agenda

Data Protection as a

Fundamental Right

Recital 1 from the GDPR

Right to Data Portability

Article 20 from the GDPR

No Data Ownership

●At present no EU legislation that regulates

the question of ownership in data

●The case-law at EU level does not recognise

explicitly an ownership right in data

●At national level there are also no legislations

relating to data ownership

"barriers to the free flow of data are

caused by the legal uncertainty

surrounding the emerging issues on

'data ownership' or control, (re)usability

and access to/transfer of data and

liability arising from the use of data"

Now...

Organization Centric...

MyData

MyData is human centered approach to

personal data management and processing.

Rights and practical means for people to access and use their personal data

and to authorize others to use the data.

“Using personal data securely —

not securing data of being used”