Personal Data:
Asset or Right
or Both?
Antti 'Jogi' PoikolaeHealth Tallinn 2017 // October 17Citizen-controlled data governance and Data donors
Slides: http://bit.ly/mydata-ehealth
about.me/apoikola twitter.com/apoikola
Antti “Jogi” Poikola
● Researcher / Aalto HIITMyData & Mobility as a Service (MaaS)
● Founder / Open
Knowledge Finland
Slides: http://bit.ly/mydata-ehealth
MyData 2016 - “Advancing human-centric personal data”
700 people: Business, public sector, activists & NGOs +
researchers
Data: plenary presentations & audience interactions
Something is wrong in the
data economy.
The current situation is
unfair and unsustainable.
Individuals should be in
control of their own data.
Then something good will
follow.
DECLARATION OF
MYDATA PRINCIPLES
WHAT NEEDS TO
CHANGE
(v1.0)
https://mydata.org/declaration
THREE MYDATA
SHIFTS:
WHAT NEEDS TO
CHANGE?
https://mydata.org/declaration
2. FROM DATA PROTECTION TO DATA
EMPOWERMENT
People should have access
and control to their data,
but why?
“As people start taking ownership of
their data and determining who can
use it, the value of personal data is
likely to grow.”
UTILITY FOCUS
“Individuals have a fundamental
right to determine how their data is
used.”
RIGHTS FOCUS
UTILITY FOCUS
RIGHTS FOCUS
Data is today the most valuable asset in the context of the
Digital Economy. Industry Giants, such as GAFAM, are
collecting continuously the data from each individual.
Citizens are more and more claiming for the control and
the real ownership of these data as each of us produce
them. The Digital Health Society will be possible if people
are confident to share their data, either as a Donation,
either as an asset hosted in secured environment where
they are able to control and use them as they want.
Code is Law(Lawrence Lessig)
Architecture is Politics(Mitch Kapor)
Code is Law(Lawrence Lessig)
Architecture is Politics(Mitch Kapor)
What political goals do we strive in
the personal data field?
Let’s Stop Talking About
‘Data Ownership’
MY OPINION AT THE MOMENT:
“People’s right to decide
about and monitor their
personal information will be
enhanced.”
Strategic Programme of Prime Minister Juha Sipila’s
Government 29 May 2015 - p.27
MyData in the Government Agenda
Data Protection as a
Fundamental Right
Recital 1 from the GDPR
Right to Data Portability
Article 20 from the GDPR
No Data Ownership
●At present no EU legislation that regulates
the question of ownership in data
●The case-law at EU level does not recognise
explicitly an ownership right in data
●At national level there are also no legislations
relating to data ownership
"barriers to the free flow of data are
caused by the legal uncertainty
surrounding the emerging issues on
'data ownership' or control, (re)usability
and access to/transfer of data and
liability arising from the use of data"
Now...
Organization Centric...
MyData
MyData is human centered approach to
personal data management and processing.
Rights and practical means for people to access and use their personal data
and to authorize others to use the data.
“Using personal data securely —
not securing data of being used”