NKF AGM

28th March 2015

AN INTRODUCTION TO THE WEST LONDON KIDNEY PATIENTS ASSOCIATION

Formed through the amalgamation of Charing Cross, Hammersmith Hospital and St. Marys KPAs

All renal patients within the Imperial Hospital Trust units are eligible for membership – currently over 3000 members

Hospitals, dialysis units and clinics covered :

8 Strong committee – meeting 6-7 times annually

WHO ARE WE

2

St Mary’s HospitalNorthwick Park HospitalSt Charles HospitalCentral Middlesex HospitalWest Middlesex Hospital

Hammersmith Dialysis unitHammersmith Nephrology clinicEaling HospitalHayes Hospital

Hillingdon HospitalMount Vernon HospitalAuchi Dialysis Unit at Hammersmith HospitalCharring Cross HospitalAshford Hospital

KEY POSITIONS ON THE COMMITTEE

3Presentation Title

Patron – Vasilios Papalois

President – Elaine Clutterbuck

Chair– John Hiney

Vice Chair – Oliver Pearcey

Secretary– Sarah ilic

Treasurer – Sue Orchard

VISION AND OBJECTIVES

OUR VISION AND AIMS

5Presentation Title

actively involve West London in renal health issues and care

provide relief and support to persons suffering from Kidney Disease who are served by WLRTS

We …

To …

By … • Fund raising • Supporting staff and WLRTS activity

• Lobbying • Education and Research

• Awareness and Communication

• Pastoral Care

HOW DO WE SUPPORT AND WHAT DO WE NEED TO FUNDRAISE FOR?

6Presentation Title

Fundraising to support

full range of patient support

Group support

Individual support

Direct patient assistance Indirect patient assistance

Hardship fund

SeminarsRepresentation to

unit/hospital

Buddy system

Group trip funding

Lobbying and regulatory

representation

Purchase of medical

equipment

Provision of information and

updates

Improvements to patient facilities

Holiday support Funding

Representation/appeals to hospital authoritiesEg: transport services

New letters and support publications

Building awareness of developments in kidney care

Annual conferences

Support for Emsworth

House

Support for transplant sport

activitiesDialysis unit facilities

Awareness and fundraising

• Support for key events – WKD, Transplant Week

• Visits to interest groups

• Sales and tombola's

Newsletters 3-4 times per year

• Key news, diet tips etc

Manage/fulfil requests

• Patient “comfort” – TVs/Cushions

• Medical equipment/research

Direct patient support

• Seminars, buddy programme

WHAT DOES THAT MEAN IN REALITY?

7Presentation Title

WLKPA - 2015 Activity calendarSat Sun Mon Tues Weds Thurs Fri Sat Sun Mon Tues Weds Thurs Fri Sat Sun Mon Tues Weds Thurs Fri Sat Sun Mon Tues Weds Thurs Fri Sat Sun Mon Tues Weds Thurs Fri Sat Sun

1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th 31st

January1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th 31st

February1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th 31st

March WKD KPA day & NKF AGM

1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th

April1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th 31st

May1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th

June1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th

Julytxp

sport

1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th 31st

August1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th

September1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th 31st

October AGM

1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th 31st

November1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th 31st

December

Committee Meetings Seminars/conferences NewslettersWorld Kidney Day NKF Events TXP SportTransplant Week Fundraising Events

Please join in - Help us, help you!

NKFConferenc

NHS BT Transplant week

TXP Sport

WHAT DOES IT LOOK LIKE?

8Presentation Title

Lobbying and support on key hospital issues both through newsletters and other comms

Patient viewpoint input to support materials

Input to, and delivery of, research programmes

…AND OTHER “STUFF”

9Presentation Title

• Digital contact details

• Active participation

– Engagement with KPA

– Engagement outside of unit visits

– Volunteers for events

– Transplant sport

• Fund raising – ongoing pressure

• Increased demands on funds raised

• Increase in support/assistance requirements from trust/other groups

OUR CHALLENGES

10Presentation Title

THANK YOU