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SUMMER 2014OHIO BUCKEYE CHAPTER

MS CONNECTION NEWSLETTER

INSIDE THIS ISSUE

4VOLUNTEER FOR A RESEARCH STUDY

10READ A PERSONAL STORY

13CONSIDER WORKPLACE DISCLOSURE

18ATTEND A SELF-HELP GROUP

WALK MS

2 MS CONNECTION: SUMMER 2014

GOVERNOR OF THE YEAROhio Governor John Kasich was named the National MS Society’s 2013 Governor of the Year. He earned the honor by working tirelessly to improve the lives of people living with multiple sclerosis and their families. Through political and procedural obstacles, he persevered to expand Medicaid in Ohio, ensuring that at least 275,000 residents, many of whom are living with disabilities, will receive comprehensive, affordable health coverage.

“Governor Kasich has done important things for people with disabilities and their families, including those affected by MS,” said Cyndi Zagieboylo, National MS Society President and CEO. “His commitment to helping people with disabilities live their best lives is appreciated and the Society is pleased to honor him.”

Additionally, Governor Kasich supports consumer choice and care and, as such, directed an extra $31 million to be spent on home and community-based care. Under his leadership, Ohio is also positioned to receive more than $169 million to implement the Balancing Incentive Program, which increases access to long-term services and assistance for aging and disabled residents.

Governor Kasich also supported the National MS Society and other disability advocates’ legislative solution to ensure that people can access needed multi-function wheelchairs.

Governor Kasich was sworn in as Ohio’s 69th governor on January 10, 2011 after a long career in the House of Representatives. Since then, he has dedicated himself to bringing Ohioans together to make the buckeye state stronger and more prosperous for all. n

GOVERNOR JOHN KASICH HAS WORKED TO IMPROVE THE LIVES OF PEOPLE LIVING WITH MS.

CONNECT WITH US ONLINE:Ohio Buckeye Chapter MSohiobuckeye.org [email protected]

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On the Cover: Photos from Walk MS (story on pg. 5)

GOVERNOR JOHN KASICH

3MSOHIOBUCKEYE.ORG | 1-800-344-4867

STOP DISEASE PROGRESSION RESTORE LOST FUNCTION END MS FOREVER



STOP

RESTORE

END

NATIONAL MULTIPLE SCLEROSIS SOCIETY

Board Chair: Roy Smoot President: Janet Kramer Executive Vice President Marketing & Outreach: Jennifer Hamilton Editor: Guyla Wehman

© 2014 National Multiple Sclerosis Society, Ohio Buckeye Chapter

Cleveland Office6155 Rockside Rd., Suite 202Independence, OH 44131Columbus Office651G Lakeview Plaza Blvd.Worthington, OH 43085Toledo Office401 Tomahawk DriveMaumee, OH 43537

Information provided by the National Multiple Sclerosis Society is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician.

The National Multiple Sclerosis Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The National Multiple Sclerosis Society assumes no liability for the use or contents of any product or service mentioned. n

Ohio Buckeye Chapter 1-800-344-4867

NOW: AN MS RESEARCH REVOLUTION

VITAMIN D PREDICTS MS PROGRESSIONAn international team led by Harvard researchers, funded by the National MS Society and the National Institutes of Health, has found that levels of vitamin D in serum early in the course of MS may be predictive of later disease activity and progression. Those with higher levels tended to have reduced disease activity and progression and those with lower levels tended to experience more disease activity and progression.

This study, which leveraged data from an industry-funded clinical trial, adds to growing evidence of links between vitamin D and MS. These findings add to the growing evidence that vitamin D may help to reduce the effects of MS.

Results from current controlled clinical trials now underway in people with MS should help determine and define the impact of taking vitamin D.

Identifying such lifestyle factors that can benefit everyone affected by MS is a priority area of focus for the National MS Society. n


SIGN UP FOR RESEARCH STUDY The Mellen Center for MS Treatment and Research at the Cleveland Clinic is currently seeking MS volunteers 18 years and older to participate in a study evaluating the effects of rhythmic auditory stimulation (music) and walking. You need to be able to walk 100 feet safely without physical assistance (use of assistive devices such as a cane, crutch or walker is allowed).

As a study participant, you will be asked to make four visits to the clinic for approximately three hours and undergo a functional MRI. You will also be asked to participate in a daily home practice program for 20 minutes over three weeks between the second and third visit.

Volunteers will receive financial compensation for their time and travel. For more information, please contact Dr. Bethoux at 216-444-9025 or Darlene Stough, RN, at 216-445-5877 or 1-800-223-2273. n

RESEARCH VOLUNTEERS NEEDEDResearchers at Kent State University in collaboration with the Oak Clinic for MS are studying psychological adjustment during MS. Individuals who participate will be asked to do a number of different things over the course of 12 months. These include completing

questionnaires and tasks on the computer involving reading, labeling, organizing and holding information. Participation may also include responding to

questions in two interviews. During these interviews cardiovascular responses (heart rate, skin conductance and respiration) may be recorded as well as video and audio taped.

To participate, you must have had MS for at least three months but not more than five years. Volunteers must be over 18 but under 45 years of age. Study procedures take place either at the Oak Clinic in Uniontown or at Kent State University in Kent.

Participants are compensated up to $220 for their efforts. For more information, please email [email protected] or call 330-672-2184.


MAKING CONNECTIONS AT WALK MSWalk MS is more than a fundraiser. It is an opportunity to inspire others to join the fight against MS and to show support to those living with the unpredictability of MS. It is also a time to make connections with family, friends, co-workers and others who want to provide help and hope to the MS cause.

Throughout March, April and May, more than 9,500 people came together to participate in the Walk MS event. A total of 18 walks were held over the span of six weekends.

In 2014, there were a couple of notable changes. The Cleveland Walk MS was held at a new venue at the Great Lakes Science Center. The Massillon and North Canton walks were combined and held for the first time at the Pro Football Hall of Fame. The move allowed for a bigger and better Walk MS experience.

Funds raised from Walk MS provide for quality

programs and services for more than 14,000 Ohioans living with MS and their families in a 64-county area. The funds also provide for research efforts to find better treatments as well as the cause and a cure for MS. The Ohio Buckeye Chapter is fortunate that many of the research dollars are being invested locally at Athersys, Inc., Case Western Reserve University, Cleveland Clinic Foundation, Kent State University and The Ohio State University.

The goal for the 2014 Walk MS is to raise $1.5 million and we need your help to reach that goal. It’s not too late to support the Walk MS effort. Even if you did not walk you can still support Walk MS by collecting contributions or making a donation to the event. Please visit MSohiowalk.org or call 216-503-4183 for more information.

A special thank you to all the Walk MS participants, volunteers, sponsors and supporters. Thank you for your contributions to make the Walk MS event a success. You truly embody what the MS Movement is all about. We hope to see you again next year. n


A DECISION OF MOBILITY BY RUSS PONSTINGLE, MS AMBASSADOR

There were no definitive tests for diagnosing MS when I was diagnosed with multiple sclerosis in 1990. Treatment options were very limited. CAT scans were relatively new and the spinal tap was used as the primary tool. The most difficult aspect of MS for me has centered on my ability to get around. For years I lived and operated in a state of denial, which was brought to my attention numerous times by many medical professionals, including my wife, Bobbi, who is a nursing professional. I should have realized MS would have an effect on my lifestyle. It was when my aircraft medical certificate was immediately marked as unapproved and pilot’s license was invalidated that I first started to understand the seriousness of MS in my life. The doctor had immediately informed the FAA of my diagnosis. That was one action I didn’t agree with but learned to accept. I eventually saw the need for this action as it was motivated by safety concerns and not personal. Reality hit me like a brick when an exacerbation left me unable to walk. Thankfully after two courses of steroids, leg braces and physical therapy, I recovered, but my mobility was affected. During the time of that exacerbation I could not drive a car. I didn’t think too much of that assuming that I would regain my ability to drive but that didn’t happen. That exacerbation permanently affected my peripheral vision and

balance. The reality of the MS was setting in and I didn’t like it.I was down. I felt like I was a burden. I soon discovered that was not the case, neither at home or at work. People in my life were very willing to help. They were not judgmental. They encouraged me to continue to do what I was capable to do. This was and still is a very workable compromise, however, I still felt trapped. My mobility was dependent on another person and their time.

I eventually settled into this change and learned to like it. With this came a new appreciation of flexible planning and people resources.I started researching mobility sources and that was when I found my mobility scooter. It added to my sense of freedom and mobility while

RUSS PONSTINGLE

CONTINUED ON PG.9


DUAL WADADM PROJECTS The Ohio Buckeye Chapter hosted two What a Difference a Day Makes (WADADM) projects during MS Awareness Month in March.

On March 16, eleven volunteers from Northeast Ohio Medical University, aka “HPAC’s Got Your Back,” which incorporates the Health Professional Affinity Community Program in their team name, donated their time to improve the quality of life for Jill Siegel. “HPAC’s Got Your Back” completed heavy duty cleaning and organizing of Jill’s kitchen, office, living rooms, bedrooms and bathrooms. They even hung up blinds and curtains.

One of the most impact fu l m o m e n t s of the day was during lunch when Jill shared her story of living with MS to the team and

the volunteers reciprocated and shared their work and studies at the university. Jill was very grateful for all of the help she received. She was happy to get to know all of the students and she loved watching everyone working as a team.

JILL SIEGEL WITH “HPAC’S GOT YOUR BACK.”

One week later on March 23, eighteen students from Walsh University’s Honors Class assisted with a WADADM project for Jan Massouh. The team decided on the name, “Honors Class Twenty One Four, Knocking On Your Door,” which combined their graduation date and

honor’s class theme. The students donated their time to complete heavy duty cleaning and to organize the kitchen, living room, bedrooms, closets, bathroom and garage.

One of highlights was when the team transformed Jan’s spare bedroom into an art and music room. Jan’s reaction when she saw the room was priceless. Jan was so appreciative of all the help she received from the students. Jan took time to talk to each volunteer individually and really connected with them when she shared her story.

If you are a person with MS who does not have resources to complete a project around your home and may benefit from this program or if you would like to volunteer, please contact Tosh Tripi at [email protected] or 216-503-4182. n

JAN MASSOUH WITH “HONORS CLASS TWENTY ONE FOUR, KNOCKING ON YOUR DOOR.”


MS ACTIVISTS MET WITH LEGISLATORSMS Activists joined the MS movement in March when they met with state and federal legislators in Columbus and Washington D.C. The National MS Society held the Public Policy Conference on March 10-12. Issues focused on research funding through the National Institutes of Health and the Congressionally Directed Medical Research Program. In addition, we also sought support of the Ensuring Access to Quality Complex Rehabilitation Technology Act (S. 948/H.R. 942). To read more about these issues, visit http://www.nationalmssociety.org/Get-Involved/Advocate-for-Change/Current-Advocacy-Issues.

On March 18, MS Activists came from around Ohio for the MS State Advocacy and Awareness Day. Buses brought volunteers and staff from Akron, Cleveland and Toledo. We asked Ohio

House and Senate members to support The Ohio Home Renovation Tax Credit (HB 84) which would provide an income tax credit of up to $5,000 for putting accessibility and visitability features into a new or existing home.

For more information about these issues or ways you can get involved, please contact Tony Bernard at [email protected] or 614-515-4608. n

MS ACTIVISTS VISITED STATE LEGISLATORS.

TRIBUTES AND MEMORIALS If you want to honor someone with MS or have lost a loved one, please consider naming the Ohio Buckeye Chapter of the National MS Society as the charity of your choice for donations. All contributions help to support local programs and services and fund MS-related research efforts. All tribute and memorial gifts are appreciated. n


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uplifting my overall mental status.My scooter gives me the ability to do things that I didn’t have access to after giving up my car. Those things include taking short trips around the area and going places like the store and coffee shop. I‘ve even gone to sporting events such as Browns games, Indians games, fairs, festivals and the Mid–Ohio Sports Car Course.Using a vehicle with a trailer hitch with a lightweight carrier can be attached giving you the ability to take your scooter with you. There are also electrical lifts which can be mounted on the back of vehicles or inside a van, for more independence. I personally recommend a safety helmet depending on where you go and the terrain. The only limitations are your physical abilities and your willingness to adapt. As always be realistic and know your limitations. Above all stay as active as you can and have fun. n

LOCAVOREThe National MS Society is embracing the concept of eating local for Locavore. The fifth annual tasting event will feature local Greater Cleveland vendors. You will be able to indulge your senses at Locavore on the evening of Thursday, August 21 at Windows on the River in Cleveland. The venue will be filled with e x c e p t i o n a l wine, paired with decadent chocolates and delicious hors d’oeuvres.

Attendees will be able to browse through fabulous raffle packages and participate in a blind wine pull which promises to be full of fun and surprises. Event tickets are $60 per person and include admission to Locavore where you’ll enjoy food and drinks provided. Patron tickets are $80 per person and include admission to Locavore with all food and drinks provided as well as an exclusive wine demonstration with a wine expert.

For more information about the event and sponsorship opportunities, please contact Heidi Weaston at [email protected] or 216-503-4161 or Kasia Counts at [email protected] or 216-503-4177. n

DRIVING WITH MS A new publication, Driving with Multiple Sclerosis, is available to help address questions and concerns about how MS might affect a person’s ability to drive now or in the future. The 18-page booklet reviews the skills necessary for safe driving, information about driving evaluations, different types of auto adaptive equipment, DMV policies and ways to maintain independence when safe driving is no longer an option. To get a copy of the publication, please call 1-800-344-4867.


I DECIDED TO WINBY ASIA ARMSTRONG, MS AMBASSADOR

March 19, 2006 is when my life changed forever. I went to sleep the night before filled with excitement because on Sunday, there was a guest speaker coming to my church, that I had wanted to see for a long time. The children were bathed and in bed and my husband, Darius, knew the plan I had for a morning routine that would get us to church on time.

All was well until I awoke at 3:00 a.m. to discover that my entire left side was numb - my leg, my arm and my face. I couldn’t feel any of them. I woke Darius and told him what was happening and

we just knew that I was having a stroke.

We immediately went to the emergency room and I was fortunate enough to be seen right away. They asked me lots of questions and ran numerous blood tests and scans. It was determined that I had not had a stroke and I was sent home with a series of steroids to take because they thought that I had simply pulled a muscle.

I made it home around 11:00 a.m., and at the time, I was more disappointed about missing

church than about how I felt. It wasn’t until a week later when things got worse that I began to panic. I went from my left side being numb, to my right side being numb, to my legs functioning fine, to my hands being unable to work, to having blurry vision, to not being able to walk without falling. I was a mess!

The steroids did not seem to be working and I knew this was clearly more than a pulled muscle. I went to see my family doctor and he suggested that I see a neurologist. I had no problem taking his suggestion because things that used to be simple tasks were very difficult for me. It was hard to open a bag of chips or a bottle of water. I could not grasp a round knob to open a door.

I could barely walk without stumbling and I fell often. I was eager to see the neurologist and was a willing participant in every test that he wanted to run because all I wanted was to be well. I wanted someone to fix me. I wanted to be back to normal. But he was not able to fix me.

Instead, on May 24, 2006, he had the difficult task of giving me the diagnosis of multiple sclerosis. After hearing the diagnosis I thought it was a death sentence. I told Darius to divorce me. We only had two children at the time and we wanted more, but how would we ever be able to have another child with the cards that I had been dealt?

I was sad, depressed and unsure of what my life would be like because of the unpredictable nature of this disease. I focused on everything that I could not and would not be able to do. The life that I once knew was gone.

ASIA & DARIUS ARMSTRONG

CONTINUED ON PG.11


Over time, I began to change my attitude and rely on faith. I realized that if my husband, my friends and my family weren’t going to give up on me, then I should not give up on myself. I began to think positive thoughts and surrounded myself with people who would give me hope.

I continued to work and contribute to my community. I began working out with a trainer and discovered that even though I had not been athletic, I was a pretty good runner. When I first started working out in November of 2008, I could not run one lap around the track. By October of 2009, I was running my first half marathon and have done two more since. It’s amazing that I can run the entire 13.1 miles without stopping. For some strange reason, even though it’s easy for me to lose my balance and stumble while walking, I have never once fallen while running. In fact, I feel the most normal, the most like myself pre-diagnosis, when I am running.

I truly believe that a healthy lifestyle, steady

exercise, a positive attitude and staying current with my medical treatments are the reasons why I am doing so well today. I have gone back to school and am very close to completing my doctoral program. If that wasn’t enough, Darius and I had our third child. I get very emotional when I think about all that I have accomplished post-diagnosis. I will never say that I am glad that I have MS, but I will say that I am thankful for the woman that I have

become since being diagnosed.

Now, I set big, audacious goals and I enjoy the process of trying to reach those goals. I understand that you have to take the cards that you have been dealt no matter what they look like and win with them. n

ASIA & DARIUS WITH MADISON, DAVIS & DARIUS

ASIA’S VICTORY ALLIANCE WALK MS TEAM

CONTINUED FROM PG.10


RECOGNITION OF REMARKABLE VOLUNTEERS The Ohio Buckeye Chapter is pleased to announce the recognition of several remarkable volunteers. Chris and Karen Hill were selected as finalists for the Volunteer of the Year for Columbus CEO’s Health Care Achievement Award. They were selected for their longtime commitment to the National MS Society.

After Chris was diagnosed with MS about 15 years ago, he and his wife, Karen, decided to become proactive in the fight against MS. Initially, they got involved in the Columbus Walk MS event and formed the Chill’s Champions Team. Their top fundraising team is comprised of 35-45 team members, including their two young daughters.

Chris also serves as an MS Activist and MS Ambassador and Karen serves on the Board of Trustees. In addition, Karen participated in the inaugural Bike MS Central Ohio Challenge event. The couple has been dedicated to the MS cause and doing their best to provide help and hope for others living with MS.

The Medical Mutual Central Ohio Outstanding Senior Volunteer Award selected Joe Igel to receive an Honorable Mention Award. Joe was chosen for this award because of his continued leadership on the chapter’s Board of Trustees, Volunteer Engagement Committee and the Columbus Walk MS Committee.

Joe also assists with the Candy’s Compassionate Companions Program. Each year, Joe volunteers to deliver holiday bags and to make

visits to people with MS living in long-term care facilities. He has built a special rapport with one person he visits each year and they enjoy spending time together.

The Ohio Buckeye Chapter would like to thank Joe Igel, Chris Hill and Karen Hill for their support and continued leadership to the National MS Society. n

KAREN AND CHRIS HILL

JOE IGEL (CENTER) WITH MEDICAL MUTUAL AWARD.


DISCLOSURE IN THE WORKPLACE BY STEVEN NISSEN, SENIOR DIRECTOR, EMPLOYMENT & COMMUNITY PROGRAMS, NATIONAL CAPITAL CHAPTER

Disclosing one’s MS diagnosis to your employer is one of the most difficult decisions people with MS face. You need to consider carefully before making the decision to do so, as it has legal and job-related implications that can be ongoing.

When disclosing to an employer, there are many issues to consider. There may be good reasons to disclose and benefits from doing so. Once information is given it can never be taken back so it’s important to make certain that telling does benefit you. If you require an accommodation or need to take medical leave, these are reasons that require some level of disclosure. However, some people choose to disclose just for the sake of disclosing. This may reduce their stress level or make them feel more comfortable asking for accommodations in the future when or if their symptoms change. The decision will differ from one person to another depending on symptoms, accommodations needed and personal preferences.

There are several key issues to consider: who at work needs to know; when does your employer need to know; why would your employer need to know; and what do they need to know. Disclosing your MS to your employer is something that might need to be revisited throughout your time working with MS, whether with the same employer or a new one. Planning ahead is key as

knowledge is power and this should help protect you should you decide to disclose.

Under the Americans with Disabilities Act (ADA), if you work for a private employer with 15 or more employees, an employee is required to disclose if he or she needs an accommodation. The accommodation can be requested during the interview process or over the course of your employment. You need to be able to perform the essential functions of your job, with or without accommodations, but in order to get the accommodations needed, you must first disclose. Some of the practical or emotional reasons for disclosure include reducing stress, being able to more freely examine insurance and benefits, and it simply may make you feel more comfortable in case there is a change in your symptoms in the future. It is also important to be proactive and not delay until you have a poor performance evaluation. Once it has gotten to that point, it may be too late.

Be sure to consider both the legal and practical sides of disclosure, the advantages and disadvantages of disclosure and explore the components of a disclosure script. Some general suggestions on how to disclose include:

• Your disclosure should be brief, concise, nearly devoid of technical medical terms and end with how you manage your symptoms so you are able to get a job done.

• Show how the disability is just one aspect of your life.

• Assume that the employer either knows

CONTINUED ON PG.15

MS CONNECTION: SUMMER 201414

DATES TO REMEMBERDEALING WITH THE EMOTIONS OF LIVING WITH PROGRESSIVE MSThose with progressive MS suffer from mood and anxiety disorders at three to four times the rate of the general population. Patients and family members might find the disease difficult to fathom, as they may feel that hopes, dreams and goals for the future will drastically change. Individuals and family members may react in a number of ways including grief, anxiety, anger, depression, fear, numbness, denial, hopelessness and in the worst case suicidal ideation or intent. This program will cover the important psychological factors associated with progressive MS as well as methods for treatment. The speaker is Amy Burleson Sullivan, PsyD, who is a health psychologist and director of behavioral medicine, fellowship training and research at Cleveland Clinic’s Mellen Center for MS Treatment and Research. Registration deadline is June 17.Date: Tuesday, June 24, 2014Time: 7:00 p.m. - 8:00 p.m.Location: Telephone from Home

MUD HENS FAMILY SOCIAL “STRIKEOUT MS”Enjoy family time at the Toledo Mud Hens! A pre-game meal will be provided before watching the Mud Hens take on the Columbus Clippers. Fireworks will follow the game. Registration is $10 per person and a person with MS can register up to three additional guests. Only 100 tickets are available for this event. Registration deadline is August 14.Date: Saturday, August 16, 2014Time: 6:00 p.m. - 10:00 p.m.

Location: Fifth Third Field, 406 Washington St., Toledo, OH 43604

AUGUST BASEBALL WITH YOUR CLEVELAND INDIANSWatch the Cleveland Indians take on the Baltimore Orioles. Everyone attending will get a “Slider Meal” which is a hot dog, snack and soda. Seats are on mezzanine level and accessible seating is available. Registration is $10 per person and a person with MS can register up to three additional guests. Only 150 tickets are available. Registration deadline is July 16. Date: Sunday, August 17, 2014Time: Game time is 1:05 p.m.Location: Progressive Field, 2401 Ontario St., Cleveland, OH 44115

MOVING FORWARD: A PROGRAM FOR THE NEWLY DIAGNOSED This program is for people diagnosed with MS in the past three years and adult guests. Participants will learn about MS, symptoms and treatment options. The speaker is Dr. Mary Rensel, neurologist at the Cleveland Clinic’s Mellen Center for MS. Dinner will be provided. Registration deadline is July 23.Date: Thursday, July 31, 2014Time: 6:00 p.m. - 9:00 p.m.Location: Hilton Garden Inn, Mayfield Village and 700 Beta Banquet and Conference Center, 700 Beta Drive, Mayfield Village, Ohio 44143

PROGRAM REGISTRATION IS EASY1. Register online at MSohiobuckeye.org 2. Register by calling 1-800-344-4867Unless noted, all programs are offered free of charge but donations are accepted to defray the cost.


nothing about your disability or perhaps has misconceptions. A big part of disclosing is educating your employer.

• Write out your disclosure script and practice it on friends and family. Ask if it is too technical, medical or scary.

There are many resources available to help you navigate this important decision. The Job Accommodation Network (JAN) is a free service of the U.S. Department of Labor Office of Disability Employment Policy and can be reached at http://askJAN.org or by phone at 1-800-526-7234. The National MS Society offers a disclosure tool online at nationalMSsociety.org/DiscloseWork. The National MS Society also offers several publications that cover disclosure and other employment issues: The Win-Win Approach to Reasonable Accommodations, Disclosure (Basic Facts Series) addresses disclosure issues in both personal and professional relationships, A Place in the Workforce includes an article entitled “Disclosure or Not,” and ADA and People with MS. These publications can be obtained online at http://www.nationalmssociety.org/multimedia-library/brochures/employment-issues/index.aspx. The National MS Society can provide assistance and support regarding your employment questions. Call 1-800-344-4867 for more information about disclosure issues, accommodation strategies and referrals to other employment resources.

Whatever you decide, don’t do it alone. Remember that no two situations are the same and you want to be the one in control. n

CONTINUED FROM PG.13 EDUCATIONAL RESOURCES

CAN DO MS WEBINAR Can Do MS is an informative and accessible program for you to see beyond your MS by gaining knowledge and tools to adopt healthy lifestyle behaviors and to actively manage your MS. Join one of the monthly webinars to gain insight from MS experts representing different medical disciplines. The presenters are part of Can Do MS’s family of program consultants. They include exercise physiologists, nutritionists, neurologists, physical and occupational therapists, physicians, psychologists, speech/language pathologists and registered nurses. You can interact with the consultants and ask questions from the comfort of your home, free of charge. To register, please visit mscando.org/webinar. n


FINISH MSFinish MS offers runners, cyclists, swimmers and distance athletes of all types the chance to create a world free of MS while pushing their own personal limits. Finish MS is a unique program that unites individuals with the common goal of raising funds for the National MS Society while completing athletic endurance events. Run MS participants will now compete in the new Finish MS program.

If you’re registered for any race event you can race on behalf of the Society. You will have

access to powerful online fundraising tools to turn your participation in any race into a race for a good cause. Experience, location and race distance are flexible. You can participate at your own pace, at any race, anywhere. For more information about Finish MS, please contact Jennifer Hamilton at [email protected] or 216-503-4170. n

DON’T JUST RIDE, BIKE MSThe Ohio Buckeye Chapter is proud to host three extraordinary Bike MS rides. All three rides offer a combination of beautiful scenery, outstanding people and of course, a great cause. Route options are available for new and experienced riders alike. Whichever ride you choose, it will be the most rewarding journey you’ll ever make.

Bike MS Reeves Northrup Memorial Bike to the Bay is a fully supported ride on June 21-22, 2014 that takes you through the Northwest Ohio countryside. You’ll start at Perrysburg High School and ride along the scenic back roads to Port Clinton. On Sunday, the ride returns to Perrysburg. Several one and two day route options are available.

Bike MS Central Ohio Challenge is a fully

supported ride on July 12, 2014. The ride travels through the beautiful white picket fences of New Albany to the picturesque town of Utica. Route options of 30, 50 and 95 miles are available.

Bike MS Pedal to the Point is a fully supported ride on August 2-3, 2014. The ride begins in Brunswick and travels through the northern pastoral countryside and small towns to Sandusky. On the second day, the ride returns to Brunswick. Route options of 30, 75, 100 and 150 miles are available.

Come be a part of Bike MS whether you’re new to Bike MS or ride every year. Together we will raise money, have fun and make a difference in the lives of people living with MS. Register for the Bike MS rides at MSohiobike.org or 216-503-4183. n

MELISSA FEMIA RUNS TO RAISE FUNDS THROUGH

FINISH MS.


DINNER OF CHAMPIONS Stephen E. Markovich, MD, President of OhioHealth Riverside Methodist Hospital, will receive the Norman Cohn Hope Award, the most prestigious National MS Society award. Dr. Markovich is being recognized for his outstanding commitment to philanthropy and exceptional level of volunteer leadership.

The 9th Annual Columbus Dinner of Champions will be held on Wednesday, September 10, 2014 at 6:00 p.m. at the Ivory Room at Miranova in Columbus. Individual reservations are $150 and table sponsorships begin at $2,500.

13th Annual Toledo Dinner of ChampionsHonoree: James A. Hoffman President, West Ohio/Michigan Region, Key Bank

More information will be coming soon. Individual reservations are $125 and table sponsorships begin at $1,500.

STEPHEN E. MARKOVICH, MD

JAMES A. HOFFMAN

WANT TO WIN?The National MS Society is partnering with the Ford Motor Company for a once in a lifetime opportunity to win an exclusive vehicle in celebration of 50 years of Mustang. This one-of-a-kind vehicle, a 2015 Mustang GT 50 Years convertible, was customized by Ford for the raffle being coordinated by the Michigan Chapter. It is the only 2015 convertible to be built with a performance pack and content from the 50 Year Limited Edition fastback. Tickets are $20 each and funds will benefit the Society and the No Opportunity Wasted (NOW) research initiative with a goal of raising $2 million. The drawing will be held August 16. For more information and to purchase raffle tickets, please visit ford4ms.com. n

2015 MUSTANG GT CONVERTIBLE

19th Annual Cleveland Dinner of ChampionsHonoree: Michael HiltonPresident and CEO, Nordson Corporation

More information will be coming soon. Individual reservations are $150 and table sponsorships begin at $2,500.

For more details on Dinner of Champions, please contact Michelle Wohlfeiler at [email protected] or 216-503-4184. n

MICHAEL HILTON

MS CONNECTION: SUMMER 201418

SELF-HELP GROUPSFor exact times, locations, programs and other details, please call the National MS Society at 1-800-344-4867 or contact the person listed. You are encouraged to attend the group of your choice regardless of its location.

MS OHIO ONLINE GROUPEvery Tuesday 11:00 a.m. and every Wednesday 7:00 p.m.Ohio chat room can be accessed through MSWorld. You will need to become a member of MSWorld in order to chat. Membership is free. Visit msworld.org.For Ohio Loop/Support Group E-mail Information: [email protected] COUNTYBluffton Friends Helping Friends Group2nd Wednesday 6:30 p.m. Bluffton Town Hall Tracy 419-899-3448

Lima MS Support Group3rd Tuesday 5:30 p.m. Medical Professional BuildingNancy 419-738-6587AUGLAIZE COUNTYWapakoneta Group3rd Thursday 6:30 p.m. VFW 25A South DixieBetty 419-738-8440

CARROLL COUNTYCarroll Group2nd Wednesday 6:30 p.m.Call for more information

Lois 330-484-5382

CUYAHOGA COUNTYBrunch Bunch2nd Monday 10:30 a.m.Denny’sEric 440-826-3742

Eastside But You Look So Good Group1st Monday 6:30 p.m.Shaker Heights Library Teresa 216-408-7855

Eastside Newly DX/Minimally Affected3rd Wednesday 7:00 p.m.Good Shepherd ChurchCharlene 440-349-3936

Northwest Satellites2nd Wednesday 7:30 p.m.North Olmsted Senior CenterMarge 440-777-4156

Parma Posse of PossibilitiesLast Friday 12:00 p.m.Ridgewood YMCAPam 440-888-1469

Strongsville Group3rd Thursday 7:00 p.m.Strongsville Senior CenterDebbie [email protected]

DELAWARE COUNTYDelaware Mighty SoulsCall for more information1-800-344-4867

ERIE COUNTYSandusky Group2nd Tuesday 6:30 p.m. State Hwy Patrol Post Kathy 419-625-6333

FAIRFIELD COUNTYLancaster Movers & Shakers2nd Tuesday 7:00 p.m.Fairfield Center for disAbilities and Cerebral PalsyEd 740-653-5501Maria 740-243-4368

FRANKLIN COUNTYClintonville Group3rd Friday 6:30 p.m.Whetstone Community Center Tasia 614-268-9124Aaron 614-352-3463

Columbus Eastside Group2nd Tuesday 12:00 p.m.MCL Cafeteria Rachel 614-860-1968Regina 614-863-1911

HANCOCK COUNTYFindlay Group2nd Monday 6:30 p.m. First United Church of ChristDana 419-318-4102

LAKE COUNTYMentor’s Best2nd Thursday 11:30 a.m.Java Express

MSOHIOBUCKEYE.ORG | 1-800-344-4867

3rd Wednesday 7:00 p.m.Denny’sKathy 440-479-8179

LORAIN COUNTYMS Support Group of Hope1st Monday 6:00 p.m.Elyria Memorial Hospital Teresa [email protected] Monday 6:00 p.m.Lorain Gathering Hope House Adrian 440-233-4332Last Wednesday 6:30 p.m.Wellington Elms/Sprenger Assisted Living Wanda 440-935-7048

LUCAS COUNTYGreater Toledo Group2nd Tuesday 6:30 p.m. Maumee Senior Center Davonna 419-705-0819

Toledo Lunch Bunch2nd Thursday 11:30 a.m. Bob EvansSherrie 419-382-8821

SW Toledo GroupLast Tuesday 6:30 p.m. Heatherdowns Rehab Peggy 419-382-5050

MAHONING COUNTYMS Musketeers2nd Thursday 12:30 p.m.Jewish Community CenterDawn 330-782-1845Mike [email protected]

19MARION COUNTYMarion Group1st Thursday 6:30 p.m. Emmanuel Lutheran ChurchAnita 740-751-9704

MERCER COUNTYCelina Group1st Monday 7:00 p.m. Richardson Bretz Memorial CenterSue 419-586-9417

OTTAWA COUNTYPort Clinton MS in Motion Group1st Tuesday 6:30 p.m.Magruder Hospital Conference Center Karen 419-607-6021 Lori 419-707-9307

RICHLAND COUNTYMotivated Supporters and Awareness Group4th Thursday 6:30 p.m.Care Companions of OhioTerri 419-908-5857Dana 419-747-6195

STARK COUNTYBut You Look So GoodCall for more information1-800-344-4867

Massillon Group2nd Monday 10:00 a.m.Jackson Township Buehler’sKim [email protected]

SUMMIT COUNTYMighty Oaks Group1st Saturday 11:00 a.m.Green YMCA & Oak ClinicMicheala 330-861-5252

WAYNE/HOLMES COUNTIES Wooster Group2nd Monday 7:00 p.m.Wooster Comm HospitalPixie 330-345-7374

WOOD COUNTYToledo/Oregon My Strength Group1st Wednesday 7:00 p.m. Northwood Community Center Mary 419-467-7000

ANNUAL REPORT AVAILABLE The newest annual report is available. If you would like a copy to learn about programs, fundraising events and financial highlights of 2013 please call 1-800-344-4867. The annual report is also available online at MSohiobuckeye.org in the “About This Chapter” section under the “Financial” heading. n

NON-PROFITORGANIZATION

U.S. POSTAGEPAID

Cleveland, OhioPermit #3860

Ohio Buckeye Chapter6155 Rockside Rd., Suite 202Independence, OH 44131-2217

Address Service Requested

VOLUNTEERSSALUTE TO CHARLENE PRESS Home Instead Senior Care presented the Salute to Senior Service Award to Charlene Press for her longtime volunteer service to the National MS Society. The award recognizes everyday seniors for the impact that they make in their communities.

After a period of voting for nominees, Charlene was chosen from among 50 applicants to receive the award for the state. That distinction included a $500 donation to the charity of her choice and she chose the Ohio Buckeye Chapter.

Charlene has made such a difference in the lives of people with multiple sclerosis by serving on the Chapter Program Committee and lending insight into efficient, effective program delivery.

NationalMultiple SclerosisSocietyOhio BuckeyeChapter

She also facilitates a self-help group for those who are newly diagnosed or minimally affected with MS. In addition, Charlene serves on the Locavore Planning C o m m i t t e e and Volunteer Engagement Committee. And she comes into the office on a regular basis since she is the volunteer librarian.

Congratulations to Charlene for being such an extraordinary volunteer and earning the Salute to Senior Service Award. n

CHARLENE PRESS

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