Tiffany M. Peterson

Lupus Warrior,

ePatient Activist!

@TiffanyandLupus@Lupus_Chat@SleYoungLeaders#LupusChat #LupusStyle

Step 1: Discover

~ No support from Rheum w/dx.~Searched #Lupus via Twitter/FB/ Web~Found phenomenal Mentor, @LAlupuslady~Realized lupus wasn’t the only. community lacking a respected chair w/their healthcare.~*tosses glitter* From Passive to ePatient! You can too!

Step 1: discover (cont…)

~Found @ePatientDave he recommended @ReginaHolliday as my Health Advocate Mentor.

~”Lurked” my 1st TwitterChat: #HCSM (Healthcare Social Media)

~Met Regina at Social Media Week NY 2012 & she painted my story.

Step 2: discover (cont…)

~Joined #TheWalkingGallery (Artistic Healthcare Activism)

~Madre always told me, “If there is a VOID in the world & you do nothing to fill it...YOU are part of the problem!

Step 3: connect

~Founded ‘Friends Against Lupus’ over 4+ years ago. Today we are over 11,ooo+ supportive members!

~ WegoHealth invited me to my very 1st Health Conference at #ePatCon2012!

Step 4: engage

*Patient Engagement Tip: TALK TO us not AT us! Invite us to the conversation, but also respect our experience with compensation! Our time is valuable just as all other healthcare stakeholders.

~At #ePatCon met thee amazing Dr. @KentBottles, intro’d to @Verilouge’s @JeffKozloff for their new #mHealth app @Care_Coach!

Step 4: engage (cont…)

~When #lupus began causing #depression I saw a therapist/psych who recommended Cymbalta by @Lilly_COI. The TV ads were horrendous! My side-effects were torturous. So I did what any ePatient would do. I TWEETED IT! & guess what SOMEONE responded! That someone was Mr. @Gmatczack! Doll<3

~Once I would mope in despair that yet another health conference hadn’t opened the door to me. Then Regina Holliday told me something that resonated, she said, “Follow the hashtag & you will ALWAYS be there.” Just follow the stream & ENGAGE! (Later that night on final day of #TedMed2012 I was still tweeting & she painted me in the midst of it all!

...Let the Patients Help!~So I implore you here today to make a commitment. I challenge YOU to raise your percentage level of Patient Inclusion in your own practice, medicine, pharma, offices, Ceo, etc. The time for talking the talk is over, it’s now time to walk the walk. Together we can.

~I want to thank the ONC for inviting me here to share my thoughts & have this prominent conversation. I hope that my sharing with you has resonated somewhat. Please do not hesitate to reach out and contact should you need assistance. I am here to discover, connect, share, and engage. That is what it means to be an #ePatient. Thank you.

~Tiffany Peterson (@Tiffanyandlupus)

All paintings property of Regina Holliday. TY