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Einstein SyndromeEinstein Syndrome

Anna Marie - Anna Marie - posted on 03/27/2010 posted on 03/27/2010 ( ( 18 moms have responded 18 moms have responded ))

Hi fellow moms of late talkers. Hi fellow moms of late talkers. Is anyone familar with the work of Thomas Sowell, specifically TheIs anyone familar with the work of Thomas Sowell, specifically TheEinstein Syndrome? Einstein Syndrome? I have a 3 yr old son that does not speak that I think has this and I would LOVE toI have a 3 yr old son that does not speak that I think has this and I would LOVE totalk to moms with kids like my son. talk to moms with kids like my son. After failing to meet the milestone of a few words at his one yearAfter failing to meet the milestone of a few words at his one yearcheck up his ped. ordered early intervention, speech therapy and for two years (until he aged out of thecheck up his ped. ordered early intervention, speech therapy and for two years (until he aged out of theprogram) he was seen twice a week for an hour each session. program) he was seen twice a week for an hour each session. He had a wonderful therapist, but heHe had a wonderful therapist, but hemade no progress and it was obvious he did not want to participate. made no progress and it was obvious he did not want to participate. He is like that if he is not interestedHe is like that if he is not interestedyou might as well give it up he will not participate, he is extremely strong willed. you might as well give it up he will not participate, he is extremely strong willed. We had the autism evalWe had the autism evaldone a few times and the evaluator seemed very experienced she said he scored high in the "risk"done a few times and the evaluator seemed very experienced she said he scored high in the "risk"category and it would be advised that we seek further testing, but in her personal opinion she just didcategory and it would be advised that we seek further testing, but in her personal opinion she just didnot see it, and that is how we feel. not see it, and that is how we feel. Julian has some (very few) characteristics of high functioning autismJulian has some (very few) characteristics of high functioning autismbut the major ones are not present. but the major ones are not present. He makes eye contact and is able to form bonds with others, like hisHe makes eye contact and is able to form bonds with others, like histeachers, friends from church and school, and is very visablely excited when we pull up at school or Iteachers, friends from church and school, and is very visablely excited when we pull up at school or Imention his teacher. mention his teacher. He aslo shows emtions in an appropriate manner, and is very loving just likeHe aslo shows emtions in an appropriate manner, and is very loving just likeanyother little kid. anyother little kid. So we have been baffled by him. So we have been baffled by him. After talking to a mom a church last Sunday sheAfter talking to a mom a church last Sunday shesuggested I look up Einstein Syndrome. suggested I look up Einstein Syndrome. I did and after I reading a short paragraph I was in tears,I did and after I reading a short paragraph I was in tears,wonderful happy tears, finally something that described my son and my family to a tee. wonderful happy tears, finally something that described my son and my family to a tee. I ordered theI ordered thebook and am now reading it and with each page I find another thing that sounds just like my son. book and am now reading it and with each page I find another thing that sounds just like my son. I haveI havebeen looking of a support group or discussion board on this and can't find anything. been looking of a support group or discussion board on this and can't find anything. So here I amSo here I amlooking for other moms who's kids fall into this category. looking for other moms who's kids fall into this category. Any input would be wonderful.Any input would be wonderful.

Thanks,Thanks,

MarieMarie

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Arianna - Arianna - posted on 12/15/2012posted on 12/15/2012

Hi Anna, both my kids are speech delay, my son is 5 and my daughter is 3, I enrolled them in aHi Anna, both my kids are speech delay, my son is 5 and my daughter is 3, I enrolled them in aprivate kindergarden, but the school labeled them as autistic kids, I visited several therapists andprivate kindergarden, but the school labeled them as autistic kids, I visited several therapists andspecialists all of them agreed that they aren not autistic, but didn't give me an answer either, it isspecialists all of them agreed that they aren not autistic, but didn't give me an answer either, it isvery frustrated.very frustrated.Both of then are very good with puzzles, mazes,they both love music and science but they don'tBoth of then are very good with puzzles, mazes,they both love music and science but they don'tlearn at the same level as the other kids the same age. learn at the same level as the other kids the same age. I tried to find a school for kids with learningI tried to find a school for kids with learningdisabilities until I found the book "Einstein Syndrome" I hope an answer in this book and also to finddisabilities until I found the book "Einstein Syndrome" I hope an answer in this book and also to finda school for kids with this condition or ability. You are not alone... I just decided to allow my kids toa school for kids with this condition or ability. You are not alone... I just decided to allow my kids tobe themselves, not pushing them anymore.. but focus on the things they like the most, I broughtbe themselves, not pushing them anymore.. but focus on the things they like the most, I broughtthem to the science museum (they loved it) they play happily there, I will allow them to play all daythem to the science museum (they loved it) they play happily there, I will allow them to play all daywith puzzles and mazes and play outdoor (it is hard now that is winter) but no more pushing and stopwith puzzles and mazes and play outdoor (it is hard now that is winter) but no more pushing and stopcomparing them with the rest of the kids..comparing them with the rest of the kids..

Jiselle - Jiselle - posted on 03/19/2012posted on 03/19/2012

Hello fellow moms. Hello fellow moms. I am new to this forum and I am very glad I found a discussion specific to thisI am new to this forum and I am very glad I found a discussion specific to thistopic. I have a 4 year old son that's also a late talker. topic. I have a 4 year old son that's also a late talker. Even after 2 years of Speech Therapy he's stillEven after 2 years of Speech Therapy he's stillpresenting significant delays in his speech development. I have also read the book about thepresenting significant delays in his speech development. I have also read the book about theEinstein Syndrome and I found the similarities with my son very compelling. My child fits perfectlyEinstein Syndrome and I found the similarities with my son very compelling. My child fits perfectlywith all the characteristics mentioned in the book, even the family traits described (father is anwith all the characteristics mentioned in the book, even the family traits described (father is anengineer and my family is very music oriented, I even have professional musicians in my familyengineer and my family is very music oriented, I even have professional musicians in my familycircle). circle).

I am from Puerto Rico, but I recently moved to the US (California). I just find it intriguing how childrenI am from Puerto Rico, but I recently moved to the US (California). I just find it intriguing how childrenfrom different nationalities and ethnic backgrounds can have such similar characteristics. My son, isfrom different nationalities and ethnic backgrounds can have such similar characteristics. My son, is

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not able to use language to be descriptive, he is very selective in the things that he pays attention to.not able to use language to be descriptive, he is very selective in the things that he pays attention to.He tends to drift off to his own world, and even makes up words (consistently) as if he had inventedHe tends to drift off to his own world, and even makes up words (consistently) as if he had inventedhis own language. On the other hand, he's very social, friendly, understands emotions very well, he'shis own language. On the other hand, he's very social, friendly, understands emotions very well, he'svery creative, caring and affectionate. very creative, caring and affectionate. He makes visual contact and bonds very well with teachersHe makes visual contact and bonds very well with teachersand therapists.and therapists.

What I'd like to contribute to this topic is the fact that very recently ( a few months ago), during aWhat I'd like to contribute to this topic is the fact that very recently ( a few months ago), during asecond autism evaluation the Speech Pathologist recommended a Pediatric medical Geneticistsecond autism evaluation the Speech Pathologist recommended a Pediatric medical Geneticistevaluation. We followed her suggestion and after a few lab tests the doctor diagnosed my son with aevaluation. We followed her suggestion and after a few lab tests the doctor diagnosed my son with afatty acid metabolic disorder. fatty acid metabolic disorder. We started our own investigations on this matter and discovered thatWe started our own investigations on this matter and discovered thateven though it is not common, this kind of genetic disorder can affect speech development becauseeven though it is not common, this kind of genetic disorder can affect speech development becauseit affects his ability to concentrate. it affects his ability to concentrate. After the recommended treatment (special diet and multivitaminAfter the recommended treatment (special diet and multivitaminsupplements), we have noticed improvement, in his speech and awareness of surroundings (hesupplements), we have noticed improvement, in his speech and awareness of surroundings (hedoesn't seem to drift off as much as before).doesn't seem to drift off as much as before).

I am in a never ending search for information and new studies and treatments, and I guess you areI am in a never ending search for information and new studies and treatments, and I guess you arethe same. the same. I am very happy to have found this site, and I hope that my experience with my son canI am very happy to have found this site, and I hope that my experience with my son canshed light to any one of you.shed light to any one of you.

Anna Marie - Anna Marie - posted on 09/19/2013posted on 09/19/2013

I have not been to this page in a while and saw tonight that Carrie posted about her 2 year oldI have not been to this page in a while and saw tonight that Carrie posted about her 2 year olddaughter and her story sounds very familiar to what we experienced with my son. daughter and her story sounds very familiar to what we experienced with my son. My son was 3My son was 3when I first posted to this board and was not speaking at all. when I first posted to this board and was not speaking at all. But Thanksgiving holiday 2010 we wereBut Thanksgiving holiday 2010 we werewith family and my son met one of his cousins for the first time (a super spunky little 9 yr old girl) whowith family and my son met one of his cousins for the first time (a super spunky little 9 yr old girl) whowas unfamiliar with his lack of speech and when he grunted for a chip she looked at him and said,was unfamiliar with his lack of speech and when he grunted for a chip she looked at him and said,'What do you say??' (with all the attitude of a teenager) and my son looked down and said, "please".'What do you say??' (with all the attitude of a teenager) and my son looked down and said, "please".At that moment we were all left speechless and asked her to try to get him to say more words andAt that moment we were all left speechless and asked her to try to get him to say more words andthat was when he began to speak and he has not shut up since then. that was when he began to speak and he has not shut up since then. We have also had a completeWe have also had a completeeval done on him and he has been dx with receptive and expressive language disorder andeval done on him and he has been dx with receptive and expressive language disorder anddysgraphia, and the autism eval came back with him in the no - low risk category. dysgraphia, and the autism eval came back with him in the no - low risk category. He is at a specialHe is at a specialschool for children with learning disabilities (mostly in communication and language processing) andschool for children with learning disabilities (mostly in communication and language processing) andhe has done very good. he has done very good. He is bright and has lots of friends and everyday we see him grow a littleHe is bright and has lots of friends and everyday we see him grow a littlemore and we now have a great deal of hope that Julian will be able to achieve what ever he sets hismore and we now have a great deal of hope that Julian will be able to achieve what ever he sets his

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mind to and we no longer see a limited world for him. mind to and we no longer see a limited world for him.

I know it is frustrating when your child is the only one not speaking and how difficult these childrenI know it is frustrating when your child is the only one not speaking and how difficult these childrencan be but there is hope and our children will be ok and they will grow and learn. can be but there is hope and our children will be ok and they will grow and learn. You never knowYou never knowwhen that switch is going to click on for them and they are going to show us that they have beenwhen that switch is going to click on for them and they are going to show us that they have beenlistening and absorbing all along.listening and absorbing all along.

Sonjha - Sonjha - posted on 03/28/2010posted on 03/28/2010

Hi..My name is Sonjha...I live in Alabama and my son will be 3 in June...He has not said one wordHi..My name is Sonjha...I live in Alabama and my son will be 3 in June...He has not said one wordeither. I have the book by Sowell and am going to start reading it tonight. My son is extremely strongeither. I have the book by Sowell and am going to start reading it tonight. My son is extremely strongwilled too, it's hard to discipline him because he isn't speaking and it's hard sometimes to figure outwilled too, it's hard to discipline him because he isn't speaking and it's hard sometimes to figure outif his fits are because he doesn't speak and is frustrated or because he's being defiant. He also has aif his fits are because he doesn't speak and is frustrated or because he's being defiant. He also has avery high pain tolerance so spankings seem to have no affect. I recently tried having him go to hisvery high pain tolerance so spankings seem to have no affect. I recently tried having him go to hisroom when he has a fit so he can calm down in there. It seems to be working somewhat. However,room when he has a fit so he can calm down in there. It seems to be working somewhat. However,on the good side he can count to ten...He doesn't actually say the words but he makes a sound foron the good side he can count to ten...He doesn't actually say the words but he makes a sound foreach number that sounds close to the name of each number. For instance for 1 he says "uh" for 2each number that sounds close to the name of each number. For instance for 1 he says "uh" for 2"oo" for 3 "ee" for 4 "or" 5 "I" and so on...and he's already learning his A B C's and making the sounds"oo" for 3 "ee" for 4 "or" 5 "I" and so on...and he's already learning his A B C's and making the soundsfor all of them...he also stacks blocks 20+ blocks high and perfectly....it's odd, but in a good way....He,for all of them...he also stacks blocks 20+ blocks high and perfectly....it's odd, but in a good way....He,like your son, also makes eye contact and has emotional bonds and shows emotions at thelike your son, also makes eye contact and has emotional bonds and shows emotions at theappropriate times. I'm going to be reading the book as well and would love to have someone with aappropriate times. I'm going to be reading the book as well and would love to have someone with achild with the same characteristics to talk to about the book and any everyday things. TTYLchild with the same characteristics to talk to about the book and any everyday things. TTYL

SonjhaSonjha

Staci - Staci - posted on 12/30/2011posted on 12/30/2011

I am just beginning to learn about Einstein syndrome. My grandson is 4 and a late talker. He hasI am just beginning to learn about Einstein syndrome. My grandson is 4 and a late talker. He hasbeen labeled as mildly autistic by a psychologist. His pediatrician will only label him languagebeen labeled as mildly autistic by a psychologist. His pediatrician will only label him languagedelayed and the same from the pediatric neurologist. We needed the autism diagnosis in order todelayed and the same from the pediatric neurologist. We needed the autism diagnosis in order toget his therapies covered by insurance so we basically squeezed the autism diagnosis out of theget his therapies covered by insurance so we basically squeezed the autism diagnosis out of the

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psychologist for insurance purposes. Well to this day my son, the child's father, does not believe hepsychologist for insurance purposes. Well to this day my son, the child's father, does not believe heis autistic. At first I thought he was jus in denial and I understood that. He introduced me to theis autistic. At first I thought he was jus in denial and I understood that. He introduced me to theconcept of Einstein syndrome a year ago but never really educated myself on the subject bc I haveconcept of Einstein syndrome a year ago but never really educated myself on the subject bc I havebeen caught up with the autism diagnosis and early intervention. He is in specialized speech therapybeen caught up with the autism diagnosis and early intervention. He is in specialized speech therapyboth group and individual and aba therapy 21 hours a week and in a normal preschool 2days a weekboth group and individual and aba therapy 21 hours a week and in a normal preschool 2days a weekw a shadow. Now that I have been reading about the Einstein syndrome it seems to fit him perfectly.w a shadow. Now that I have been reading about the Einstein syndrome it seems to fit him perfectly.He is very smart, affectionate, socially appropriate, great motor skill, great at puzzles and hitting aHe is very smart, affectionate, socially appropriate, great motor skill, great at puzzles and hitting agolf ball. golf ball. He is very interested in music and numbers. He is such a happy child so the autismHe is very interested in music and numbers. He is such a happy child so the autismdiagnosis does not exactly fit. Is there any suggestion of therapies or things we parents anddiagnosis does not exactly fit. Is there any suggestion of therapies or things we parents andgrandparents can do to treat a child w Einstein syndrome? grandparents can do to treat a child w Einstein syndrome? I would love to know what other parentsI would love to know what other parentsare doing with these incredible kids. Thanks for this opportunity to voice my concerns!are doing with these incredible kids. Thanks for this opportunity to voice my concerns!

Yadi - Yadi - posted on 01/28/2016posted on 01/28/2016

Hello Anna Is this board still active ? I see most posts are from 2010. Please message me atHello Anna Is this board still active ? I see most posts are from 2010. Please message me atgonzalezyadi@yahoogonzalezyadi@yahoo

Yadi - Yadi - posted on 01/28/2016posted on 01/28/2016

Hello Anna Marie ! Hello Anna Marie ! Are you still active on this board ? I'd like to ask a few questions to you in regards to your son .Are you still active on this board ? I'd like to ask a few questions to you in regards to your son .

Aliya - Aliya - posted on 12/04/2014posted on 12/04/2014

high pain tolerancehigh pain tolerance

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I have a student who at the age of 3 started I have a student who at the age of 3 started grade 3 reading books and now grade 3 reading books and now at the age of 6 he canat the age of 6 he canread high school books.He doesn't interacts with any one .Only uses few words with me .I haveread high school books.He doesn't interacts with any one .Only uses few words with me .I havegiven him some responsibilities to take care of things .Now he is better than before in followinggiven him some responsibilities to take care of things .Now he is better than before in followinginstruction and replying me.instruction and replying me.

Susan - Susan - posted on 05/26/2014posted on 05/26/2014

My son fits almost all of the conditions. My son fits almost all of the conditions. Was diagnosed by psychologist as "some kind of odd ADHD"Was diagnosed by psychologist as "some kind of odd ADHD"(minus the hyperactivity). (minus the hyperactivity). He was also quite short-a `15 percentile for growth. He was also quite short-a `15 percentile for growth. He was picked onHe was picked onunmercifully by teachers and kids for his quirkiness and was quite stressed because of this. unmercifully by teachers and kids for his quirkiness and was quite stressed because of this. He wasHe wasenrolled in special education in school in fifth grade and throughout school-this greatly tapered off inenrolled in special education in school in fifth grade and throughout school-this greatly tapered off inhis high school years. his high school years. My son said (in fourth grade) he had "something wrong with his brain" as heMy son said (in fourth grade) he had "something wrong with his brain" as hefelt "could not learn". felt "could not learn". This is what I felt that helped- I paid for tutoring, son had weekly (professional)This is what I felt that helped- I paid for tutoring, son had weekly (professional)massages for stress reduction, violin lessons, dance lessons, and travel (to educate him i.e.massages for stress reduction, violin lessons, dance lessons, and travel (to educate him i.e.Smithsonian, etc to develop other areas of the brain). Smithsonian, etc to develop other areas of the brain). We tried medication on son for one week andWe tried medication on son for one week andstopped as son said he felt his heart racing on the meds. At 14 years of age my son was very upset-stopped as son said he felt his heart racing on the meds. At 14 years of age my son was very upset-that he was picked on by classmates for being shorter, had no hair on his legs and a high voice.that he was picked on by classmates for being shorter, had no hair on his legs and a high voice.Then 15 years came and boom- not only did he physically mature (grew about 5" in one year) but hisThen 15 years came and boom- not only did he physically mature (grew about 5" in one year) but hisbrain developed intellectually- tremendously. At 20, my son is 6' tall, in his second year of college-brain developed intellectually- tremendously. At 20, my son is 6' tall, in his second year of college-electrical engineering technology/building management (physics was his easiest course). electrical engineering technology/building management (physics was his easiest course). My son stillMy son stillhas issues with social skills i.e meeting new people, but once the "ice is broken" connects well withhas issues with social skills i.e meeting new people, but once the "ice is broken" connects well withothers (especially the elderly) and is probably one of the most kindest, decent and intelligent personothers (especially the elderly) and is probably one of the most kindest, decent and intelligent personone would meet. one would meet. Don't give up hope. Don't give up hope. Prayer also helps. Prayer also helps. It took money and thinking "out of the box"It took money and thinking "out of the box"to help my son. I had to go back to work full time to pay for the tutoring, massage and travel. to help my son. I had to go back to work full time to pay for the tutoring, massage and travel. I feltI felteducational vacations were necessary as it stimulated curiosity and history/ science "became real".educational vacations were necessary as it stimulated curiosity and history/ science "became real".In a moment of despair (note my son's comment above about not able to learn), I thought if my sonIn a moment of despair (note my son's comment above about not able to learn), I thought if my sontruly could not learn, I would teach him by traveling and show him the world. truly could not learn, I would teach him by traveling and show him the world. SusanSusaningwalljoe@verizon.netingwalljoe@verizon.net

Gene - Gene - posted on 12/13/2013posted on 12/13/2013

My Child is the same way. I could tell his bright, but he has so many problems in regards to hisMy Child is the same way. I could tell his bright, but he has so many problems in regards to hisdevelopment milestone and is lagging behind his peers when it comes to learning. He notices thingsdevelopment milestone and is lagging behind his peers when it comes to learning. He notices things

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that other people selectively tune out and I think this is why he is so distracted all the time, andthat other people selectively tune out and I think this is why he is so distracted all the time, andsometimes I feel he arrives at answers without sortingsometimes I feel he arrives at answers without sortingthrough the question.through the question.

Kate - Kate - posted on 10/19/2013posted on 10/19/2013

Very glad to have found this forum and mirror all you have said. Very glad to have found this forum and mirror all you have said. My sons speech, while developing,My sons speech, while developing,is at a much slower rate than his peers, but as with all your children doesn't fit with ASD. is at a much slower rate than his peers, but as with all your children doesn't fit with ASD. He puzzlesHe puzzlesall the health care professionals we see. He's bright, funny has a good sense of humour and is aall the health care professionals we see. He's bright, funny has a good sense of humour and is agood reading and maths skills. good reading and maths skills. All the kids in school love him. All the kids in school love him. I don't feel he's autistic, so finding outI don't feel he's autistic, so finding outabout other late speakers and Einstein syndrome have Ben interesting. about other late speakers and Einstein syndrome have Ben interesting. Thanks! Thanks! Kate from the UKKate from the UK

Carrie - Carrie - posted on 09/19/2013posted on 09/19/2013

Hello. I recently discovered Einstein Syndrome while researching online. It describes my 2 year oldHello. I recently discovered Einstein Syndrome while researching online. It describes my 2 year oldexactly. Her father is an engineer and he and his entire family were all late talkers. Despite thisexactly. Her father is an engineer and he and his entire family were all late talkers. Despite thisstrong family history, I feel everyone tries to label her as autistic when she just doesn't quite fit. Istrong family history, I feel everyone tries to label her as autistic when she just doesn't quite fit. Ihave her in speech therapy and it does not seem to be helping and only upsets her. She is veryhave her in speech therapy and it does not seem to be helping and only upsets her. She is verystrong willed. strong willed. I feel no one can relate and am so frustrated.I feel no one can relate and am so frustrated.

Joan - Joan - posted on 05/14/2013posted on 05/14/2013

SonjhaSonjha

I think your child can have a fonological disorder or apraxia.I think your child can have a fonological disorder or apraxia.

Joan.Joan.

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Lisa - Lisa - posted on 05/24/2012posted on 05/24/2012

Thank you all for sharing your stories, it was interesting to read them all. Thank you all for sharing your stories, it was interesting to read them all. My son is a little younger,My son is a little younger,just three weeks shy of his 2nd birthday and I suspect there is something going on. just three weeks shy of his 2nd birthday and I suspect there is something going on. He has a speechHe has a speechdelay and has been in Early Intervention for five months (teacher comes twice a month to work withdelay and has been in Early Intervention for five months (teacher comes twice a month to work withhim). him). Early Intervention is helping, he went from saying three words at 18 months to about 20 wordsEarly Intervention is helping, he went from saying three words at 18 months to about 20 wordsnow, which is below average when looking at milestone charts. now, which is below average when looking at milestone charts. He is not combining two words yet,He is not combining two words yet,either. either. Most days he only have a few select words he actually uses (more, ball, mama, dada).Most days he only have a few select words he actually uses (more, ball, mama, dada).Otherwise, he uses A LOT of sign language to communicate. Otherwise, he uses A LOT of sign language to communicate. Besides using sign language, he hasBesides using sign language, he hasgreat eye contact, is great with other kids and adults, and seems very bright, just can't get the wordsgreat eye contact, is great with other kids and adults, and seems very bright, just can't get the wordsout. out. He knows a lot of his letters and will spontaeously blurt out the letters that he sees. He knows a lot of his letters and will spontaeously blurt out the letters that he sees. He alsoHe alsospontaneously says "eight" and "nine" when he sees the numbers. spontaneously says "eight" and "nine" when he sees the numbers. He knows all of his shapes; heHe knows all of his shapes; hecan point the shapes out when I ask, but cannot say the words. can point the shapes out when I ask, but cannot say the words.

I have read Sowell's earlier book, Late Talking Children, but want to also read the EinsteinI have read Sowell's earlier book, Late Talking Children, but want to also read the EinsteinSyndrome, too. Syndrome, too. My son goes in for his 2 year check up in a couple weeks and I am sure that theMy son goes in for his 2 year check up in a couple weeks and I am sure that thedoctor will be asking questions about his speech, since it was a concern at his 18 month check-up. doctor will be asking questions about his speech, since it was a concern at his 18 month check-up. AtAt18 months, the doctor was not concerned with Autism, but I know things can change. 18 months, the doctor was not concerned with Autism, but I know things can change. My son doesMy son doeshave a few characteristics of autism - OCD about light switches and doors, walks on tip-toes, shakeshave a few characteristics of autism - OCD about light switches and doors, walks on tip-toes, shakeswhen he gets excited, loves fans. when he gets excited, loves fans. But with his great eye contact, how affectionate he is, and with hisBut with his great eye contact, how affectionate he is, and with hisspontaneous communication, I did not think that Autism would be the diagnosis. spontaneous communication, I did not think that Autism would be the diagnosis. What do theWhat do thedoctors say about these children? doctors say about these children? Do they come right out and say "Your child has EinsteinDo they come right out and say "Your child has EinsteinSyndrome"? Syndrome"? It's not really an official dianosis, just a term that was coined by the author. It's not really an official dianosis, just a term that was coined by the author. I have foundI have foundthat Hyperlexia is similar to Einstein Syndrome, but there is much debate over whether or notthat Hyperlexia is similar to Einstein Syndrome, but there is much debate over whether or notHypelexia lies on the Autism spectrum. Hypelexia lies on the Autism spectrum. Has any Einstein children been diagnosed as Hyperlexic? IfHas any Einstein children been diagnosed as Hyperlexic? Ifnot, how are the doctors labeling these children if they are not autistic?not, how are the doctors labeling these children if they are not autistic?

Pamela - Pamela - posted on 03/04/2012posted on 03/04/2012

I'm glad i found you on this board. I'm glad i found you on this board.

Late talking runs in my family. I have a nephew who didn't talk until 3, and my daughter speak a wordLate talking runs in my family. I have a nephew who didn't talk until 3, and my daughter speak a worduntil about 2.5. She is very intelligent. Her spatial skills are incredible and was doing double digituntil about 2.5. She is very intelligent. Her spatial skills are incredible and was doing double digit

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math at 3.5. To this day, she enters her "own little world" where she will "run around" back in forth,math at 3.5. To this day, she enters her "own little world" where she will "run around" back in forth,talking to herself, or she will tell people "I need to be alone right now." When you ask her what shetalking to herself, or she will tell people "I need to be alone right now." When you ask her what shedoes when she "runs" or is alone, she says she thinks about things. Very often, you need to call herdoes when she "runs" or is alone, she says she thinks about things. Very often, you need to call hermultiple times for her to respond as she is "deep in thought" or concentrating. She had an extrememultiple times for her to respond as she is "deep in thought" or concentrating. She had an extremefear of people not in her immediate circle when she was a toddler, but grew out of that. I have nofear of people not in her immediate circle when she was a toddler, but grew out of that. I have nodoubt that if she was "evaluated" they would have found "autistic markers."doubt that if she was "evaluated" they would have found "autistic markers."

My husband is very much the same way...and he's highly intelligent. He needs "alone time" to thinkMy husband is very much the same way...and he's highly intelligent. He needs "alone time" to thinkand process whatever deep thoughts are in his head. and process whatever deep thoughts are in his head.

Now onto my 26 month old son, who, to complicate matters, had ear glue up until he got tubes 3Now onto my 26 month old son, who, to complicate matters, had ear glue up until he got tubes 3weeks ago, and could not hear (varying levels) for at least 12 months. He is very much like myweeks ago, and could not hear (varying levels) for at least 12 months. He is very much like mydaughter, although he has not hit a couple of minor "markers" like building blocks (he instead prefersdaughter, although he has not hit a couple of minor "markers" like building blocks (he instead prefersto examine the numbers and letters printed on the blocks) to examine the numbers and letters printed on the blocks) or pretend to feed a doll (although I haveor pretend to feed a doll (although I haveno idea why a 2 year old boy would want to feed a doll). He has his own agenda when he plays. Ino idea why a 2 year old boy would want to feed a doll). He has his own agenda when he plays. Itook him for a Speech Eval at the urging of medical professionals, and the pathologist hadtook him for a Speech Eval at the urging of medical professionals, and the pathologist had"concerns" that he was on the spectrum due to his lack of speech, "own agenda" and his "running"concerns" that he was on the spectrum due to his lack of speech, "own agenda" and his "runningaround" like my daughter does. around" like my daughter does.

However, he is very affectionate, seeking hugs and kisses from people, loves to snuggle, maintainsHowever, he is very affectionate, seeking hugs and kisses from people, loves to snuggle, maintainseye contact, has great motor skills, loves music, bonds with others (even bonded with the evaluator),eye contact, has great motor skills, loves music, bonds with others (even bonded with the evaluator),appears to always be "thinking" and reacts appropriately to emotions and situations. He's just "gotappears to always be "thinking" and reacts appropriately to emotions and situations. He's just "gothis own agenda" and insists on doing things his way....and has a speech delay, either from his earhis own agenda" and insists on doing things his way....and has a speech delay, either from his earglue, or from the family history.glue, or from the family history.

I will not allow them to label him. He has the same "quirks" as the rest of my family, and once heI will not allow them to label him. He has the same "quirks" as the rest of my family, and once hetalks, I think the "experts" will drop their need to label him. I'm glad to see I'm not alone.talks, I think the "experts" will drop their need to label him. I'm glad to see I'm not alone.

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Jill - Jill - posted on 01/13/2011posted on 01/13/2011

Anna and Sonja ... my son is 2 1/2 and he doesn't speak either and is in early intervention and i seeAnna and Sonja ... my son is 2 1/2 and he doesn't speak either and is in early intervention and i seeno improvement. Most people i talk to about it say Early intervention is so miraculous my son talkedno improvement. Most people i talk to about it say Early intervention is so miraculous my son talkedin 3 months fluently ... my son has been in the program 3 months and i see little to no improvement ...in 3 months fluently ... my son has been in the program 3 months and i see little to no improvement ...i also thought my son had Einstein syndrome.. he is so intelligent , does everything you ask him toi also thought my son had Einstein syndrome.. he is so intelligent , does everything you ask him todo... is most times very cooperative.. and strong willed at other times....he only made it into earlydo... is most times very cooperative.. and strong willed at other times....he only made it into earlyintervention by clinical opinion... he passed all the tests with flying colors except for speech... hisintervention by clinical opinion... he passed all the tests with flying colors except for speech... hisspeech therapist says he has speech apraxyia.... i am gonna check out the book you suggested....speech therapist says he has speech apraxyia.... i am gonna check out the book you suggested....

Emma - Emma - posted on 10/12/2010posted on 10/12/2010

Thank you, i just did a goggle search now on this and am going to get the book ASAP.Thank you, i just did a goggle search now on this and am going to get the book ASAP.from the small amount of info i got from my search this is my Son !! from the small amount of info i got from my search this is my Son !! Thank you againThank you again

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Missy - Missy - posted on 04/20/2010posted on 04/20/2010

Hey Marie! Hey Marie! I read Thomas Sowell's books back when my son was about 2.5. I read Thomas Sowell's books back when my son was about 2.5. I cried my way through them,I cried my way through them,too. too. Finally someone understood!! Finally someone understood!! You are not alone, hon. You are not alone, hon. There is a LARGE group of us that have allThere is a LARGE group of us that have allfound our way to a Yahoo Group called Natural Late Talkers. found our way to a Yahoo Group called Natural Late Talkers. However, we've just moved over to aHowever, we've just moved over to aprivately hosted message board! privately hosted message board! Feel free to check it out (I'm a moderator over there). Feel free to check it out (I'm a moderator over there). You'll find you're inYou'll find you're inGOOD company!!!GOOD company!!!www.naturallatetalkers.com/forumwww.naturallatetalkers.com/forum

I hope it's okay for me to post that here....I hope it's okay for me to post that here....

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