Joyce Lee, MD, MPHhttp://www.doctorasdesigner.com/

Twitter: @joyclee

Patient Experts, Digital Technology and the Maker Movement

Disclosures

JAMA PediatricsUnitioVerilySamuelsson Associates

ProfessionalDesign

ParticipatoryDesign

Human-CenteredDesign

Meta-Design(Maker

Movement)Blamingthe User

Design in Healthcare

ProfessionalDesign

ParticipatoryDesign

Human-CenteredDesign

Meta-Design(Maker

Movement)Blamingthe User

Design in Healthcare

Meta-design“Design for designers”

Users become co-designers and co-developers

Maker MovementDo It Yourself (DIY)Learning by Doing

Peer-to-Peerhttp://bit.ly/2g2w6b3

http://bit.ly/2ggadbu

Open Source Code

21,000 + 12,187 = 33,187US 31 countries

19%

51%

15%

15%

0-5 yrs

6-12 yrs

13-17 yrs

18 + yrs

n=724

Nightscout Users

78%

29%

78%

51%

24%

79%

5%

28%

55%

67%

79%

79%

Work

Other (specify)

Travel

Sporting Events

School

Nighttime

Children Adults

Purpose of NS Use for Adults and Kids

9%

1%

2%

1%

2%

19%

6%

13%

2%3%

3%6%8%8%

14%15%

24%25%

55%79%

93%

Spouse/Significant OtherStepmom

StepdadFriend

Teacher/Daycare ProviderOther

SiblingGrandpa

CoachGrandma

NurseIndividual

DadMom

Children Adults

Who is Viewing NS Data for <18 yrs

Meta-Design in Healthcare

Learn from patient/caregiver innovations that have been created

Create modular tools to allow users to remix and recreate

Let Patients and Caregivers Design!

CGM in the Cloud Community

Ben West, Dana Lewis, John Costik, James Wedding, Weston Nordgren

Emily Hirschfeld, Ashley Garrity, Preciosa Choi, Sarah Clark, Peter Honeyman, Nancy BenovichGilby, Liz Kaziunas, Mark Newman

Twitter: @joycleehttp://www.doctorasdesigner.com

Thank you