QUARTERLY

UPDATE

CRY Patrons: Rob Andrew MBE, Jeremy Bates,Ian Botham OBE,Mark Cox MBE,Nick Gillingham MBE, Professor WJ McKenna,Sir Steve Redgrave CBE.

CCARDIAC

RRISK in the

YYOUNG

Winter 2001 - Issue 31

No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means, electronic, mechanical, photocopy-ing, recording or otherwise without prior permission of the Editor. The Editor and Committee welcome letters but reserve the right to edit when necessaryand to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of the Editor,or its Officers. Articles pertaining to health related topics are FOR INFORMATION ONLY. Readers should obtain advice from their own practitioner beforeattempting to diagnose or administer any medication. Mention of any products or procedure should not be considered as an endorsement for said productor procedure.

CRY Representatives1 Meet Sally Reid our Divisional Representative for the South

Newsletters and Reports2 Newsletter - Alison Cox the Chief Executive4 Jan`s Report6 Steve`s Report7 Sudden Unidentified Death and the Pathologist

Kids for CRY8 My Daddy Paints Me Rainbows - Poem9 Kids for CRY Fundraising

CRY Fundraising10 My London Marathon by Suzanne Pringle11 Our Fundraisers

In memory of 17 Sarah Louise Williamson18 Philip Barlow20 Andy Gard21 Robert Poyser22 Julian Wort24 Christian Thomas25 Andrew Ball26 Leon Manners27 Damien Jewell28 Scott Jackson29 Ian Merchant30 Lewis Marsh

Screenings31 ECG Screening in memory of Lewis Marsh32 Mobile Screening in memory of Richard Allan

Raising Awareness33 Sport Legend Answers Charity Call34 Fundraising from the heart...35 Deadly threat that we need to know/ New scanner for centre...36 Charity debt to devoted parents37 Western Isles project to detect heart abnormalities 38 Lifesaving equipment39 Mum’s bid for teens to get heart screens/ Screening urged for youths40 Mother’s adult cot death fight41 Tribute to the sons they loved and lost42 Catch a Hidden Killer43 Dingles set to join charity Dash44 Five of my family died before the age of 2245 Full house for bingo club’s fundraisers

Bulletin Board

Back Cover ‘God’s Lent Child’

CONTENTS

CRY Unit 7 - Epsom Downs Metro Centre, Waterfield, Tadworth, Surrey KT20 5LRTel: 01737 363 222 Fax: 01737 363 444 Web site: www.c-r-y.org.uk e-mail cry@c-r-y.org.uk

As a mum who has not lost a child, how did Ibecome involved with CRY and Fund Manager tothe Lewis Marsh Memorial Fund?

Lewis Marsh was a local lad who died in May 1998three weeks before his 14th birthday. He had beena member of the football team that my husbandmanaged for a few years before concentrating ontennis. My son also played in the team and I hadmet his parents Gill and Barry on the side of thefootball pitch at various times.

When Lewis died it sent shock waves around thecommunity. Sandhurst has over the years expandedfrom a village to a town, but the village atmospherehas remained and Lewis had touched many peoplein his young life, as he was active in so manydiverse areas. My husband and I went to his funer-al representing the local Boys Football Club andread about CRY on the order of service.

I was horrified to read how common this was. I havethree sports mad lads and I also work in the healtharena. I felt so strongly that something should bedone that I spoke to the boys club chairman to seeif we could raise some money for CRY. We met withAlison and I realised that maybe we could actuallyset up a community-testing programme for our area. Gill and Barry gave us their blessing andthe Lewis Marsh Fund was set up. Gill has since become a very active member of the fundand we have become close friends sharing the laughter, tears and frustration involved withmaking people realise how important this all is. We thought it would take us years to reachour target - how wrong we were!

We kicked the fundraising off with a pre-season 11-a-side friendly tournament in Lewis'smemory. The response was fantastic with over 90 teams competing and we raised just under£5,000. The tournament has now become an annual event. The support we have receivedfrom everyone who knew Lewis in some way has been unbelievable and we have now pur-chased three ECG machines - placing two in local surgeries which we can use for the testingprogramme and donating one to the cardiac unit at our local hospital.

We have now carried out four screenings - the last one being a real challenge at the annualtournament.

I was delighted to become Southern Representative for CRY. Due to my work I never missan opportunity to raise awareness and will speak to anyone who is interested!! I can go on forhours about CRY! I have a great team of volunteers and two excellent nurses who carry outthe testing. We hope to be able to continue testings as often as possible. We have pickedup some positive results which St. George’s are following up.

Like many involved with CRY, I believe the way forward is school screening and feel if thegovernment would only recognise this problem with our young people, then we would nothave to spend time and money working for ethical approval in all education authorities.

I must just add that I also have a very supportive family - needless to say my lads have allbeen tested. They are also fervent supporters of CRY as is my husband and the families ofthe team.

MEET OUR REPRESENTATIVES

Divisional Representative for the South - Sally Reid

1

Winter 2001 NEWSLETTERby the Chief Executive

CRY stormed into the new year with its busiest weekto date and the fantastic news that Ian Botham OBEhas agreed to be the Honorary President of CRY'sCentre for Sports Cardiology.

On Monday January 7 CRY's Chairman Dr GregWhyte and myself were invited by Ian and KathyBotham to visit them at their home. In spite of theirvery tight schedule, including departure the followingday for Spain followed by Ian's tour to India and NewZealand, they found the time to take us out for asuperb lunch to learn about CRY.

Ian first heard of CRY through Jay Lewin an oldschoolfriend and now Assistant Manager of theGoldenstone Leisure Centre in Yeovil. The Centrestarted fundraising for an ECG machine in memoryof Sarah Louise Williamson who died suddenly aged7, in her father’s arms during a swimming session inthe children's pool at the centre. Jay broke her gold-en rule not to take advantage of her friendship withIan and asked him to accept Goldenstone’s chequefor £7000 for CRY - and Ian broke into his recentbook tour to fulfil this request.

On Wednesday January 9th, Lorraine Kelly had 6½minutes on GMTV hearing from Keith Bucknell,accompanied by wife Debbie and daughter Jodie,about CRY and the sudden cardiac death of theirson Jamie, 7 weeks earlier during an English class atschool. Jamie had passed out twice before he died.The first time was in the swimming pool when it was"officially" decided he had hit his head, the secondtime he was taken into hospital and dismissed aftertests.

The immense courage of the Bucknell family in beingable to discuss this so soon after Jamie's death in sopublic a forum, cannot be overstated. 6 million view-ers learnt about CRY and our 3 telephone lines and

website were jammed for the rest of the week. Aspecial thank you to Sheila Clarke who kept in con-tact with Lorraine Kelly updating her on CRY's devel-opment and our Patron Mark Cox who took theopportunity to mention CRY to presenter AndrewCastle when having an interview the previous week.As well as having our number displayed on thescreen for most of the interview, CRY had a 24 hourhyperlink on the GMTV website - the fourth largestwebsite for Television.

We are hugely grateful to the support of the Bucknellfamily in helping us raise awareness of Cardiac Riskin the Young in this way - giving the opportunity tohighlight the incidence of young sudden cardiacdeath, information on how to pursue screening, andhelp to inform and reduce the isolation of bereavedfamilies who have suffered from such a tragedy.

On Thursday January 10th CRY's Trustee Dr SanjaySharma was invited to be the "expert" explainingLong QT Syndrome on Channel 4's Richard andJudy show. This programme has a viewing audienceof 2 million and was a prelude to the widely adver-tised programme Bitter Inheritance on Channel 2later that evening. The story tracked the history ofthe Gorry "family curse" where 17 young membershad mysteriously and suddenly died over a numberof years, and in various parts of the world, with thediagnosis given as different causes - drowning, asth-ma, epilepsy, blood clots. It was not until NeilHalliday started compiling the family tree that he dis-covered the appalling catalogue of death and recog-nised that the family carried an undiagnosed geneticcardiac condition putting them horribly at risk.

Special thanks to Andy Tait who gave the pro-gramme presenter information about CRY ensuringwe were one of the nominated referral organisationsfor this programme which had a viewing audience of3 million. Also to Doreen Harley who contacted NeilHalliday (a neighbour in North Wales) who has beenlearning from her about CRY and our aims.

Ian and Kathy Botham

The Bucknell Family

2

As a result of all of this publicity between January 9thand 18th we had 2607 hits on our website, 700phone calls (500 in 3 days!) and still the requests forinformation are pouring in. The fortitude of our inde-fatigable CRY team who covered the response man-ning our 3 lines in carefully organised relays had tobe seen to be fully appreciated. Answering thephone non-stop for hours at a time takes a very spe-cial skill and our CRY staff had an abundance of it.

We are lucky indeed.

I would just like to take this opportunity to say howoften those who contact us have expressed theirgratitude for the solace given by those people on"Talking Point" who so freely give of their time to talkto and support other bereaved families. My experi-ence is that although there are times when a profes-sional counsellor is undoubtedly able to help, usuallyfamilies will want to just talk to someone else whohas gone through a similar experience to themselves- and survived. Our "Talking Point" families offer avery special service where, having learnt how tocope with their own grief, they have found a way togive comfort to others.

CRY's office was certainly a hot spot in January andin spite of the blast of arctic weather that hit us at thetime, the tin roof on our building was positivelysteaming with endeavour! February is going to bebusy too! Whickham School, a huge secondaryschool in Newcastle has chosen CRY for their SchoolCharity week from February 4 - 8 in memory of stu-dent Paul Hindmarsh who died in 1999 during aNewcastle United Football match.

This is the first time a school has dedicated an entireweek of fundraising to CRY and it is being followedon February 21, 22, 23 by The Boat Club fromUniversity College London doing a 48 hour Rowathonraising money and awareness of CRY at CoventGarden. We have sent 25 red CRY T shirts for theladies team and 25 black CRY T shirts (not so easyto spot in the middle of the night?) for the men so ifyou are in the London area any time in the 48 hours,"especially during those between midnight and break-fast", they would be delighted if you could pop by andsay hello.

Finally I would like to conclude by saying that, unbe-lievably, I have just had my first experience of CRYnostalgia! I was recently contacted by BBC TV whowere wanting to talk to Maureen and John Marshallabout a programme including a profile on the suddendeath of their son John. John was one of 16 elite"cream of the country" junior footballers elected toattend the FASchool ofExcellence inLilleshall. He diedsuddenly in 1995at the end of hissecond year, on"caps" day justbefore he wasdue to joinEverton, havingbeen strugglingwith his fitnessfor sometime.

It was John andMaureen wholaunched CRY'scampaign with thenational press in1995 and cam-paigned with CRY for screening in football.Professor Bill McKenna and myself visited FAChairman Keith Wiseman, Chief Executive GrahamKelly and Chief Executive of the Football PlayersAssociation Gordon Taylor, to talk to them about theimportance of a screening programme in football.Although sadly the FA did not progress this with CRYthey have incorporated it for all their YTS squadssince John's tragic death. After John died theMarshall family went to live in South Africa for a time- it was great to hear that they have now resettled inLancashire, talk about CRY's development, andshare with them the incredible progress we havemade - that their courage kick started just 6 yearsago.

Students at Whickham school3

John Marshall

A warm welcome to the News section from St George's. We have a busyfew months ahead with preparation work for some significant projects and Iknow that many of you are planning to run CRY community projects too.Your drive to raise awareness doesn't diminish and I hope we can helpmany of you achieve your goals this year. We rounded up last year with theAllan's Mobile Screening on 24th and 25th November. A big thank-you toMandy and Denis for finding such a terrific venue for the team. The screen-ing went well, and our thanks go to staff at the Newcastle Clinic for beingso helpful and to the Allan family for their commitment to this project. Welook forward to working with the Allan Family again, since we hear that asecond screening might be in order. We hope so! For full details of theAllan's November 2001 screening, please see Steve's report.

JAN SMITH CRY`S ADMINISTRATOR REPORTS

FROM CARDIOLOGICAL SCIENCES

ST GEORGE`S HOSPITAL MEDICAL SCHOOL

A fast track screening was organised by our Chairman Dr Greg Whyte, in conjunction with the BritishOlympic Boxing Team at Crystal Palace National Stadium on Saturday, 8th December. Dr Sanjay Sharma,Dr Sam Firoozi and Lorna Carby were in attendance and screened the bulk of the team in record time -some achievement with a 7.30am kick-off.

We attended an LTA Screening in Bath on 11th December, which went ahead in spite of some severedelays with trains. With Monica Harries on ECG and Lorna Carby on ECHO, the team caught up and evencompleted the day a little early. The LTA are now reviewing their practice for all medical procedures andCRY will be part of their future plans. Although we will continue to visit Tennis centres around the countryfor the foreseeable future, The Lawn Tennis Association are in the process of reviewing medical proceduresand CRY will be linking in to provide cardiac screenings at two major centres and players will effectivelycome to us. The new format for LTA screenings is scheduled to be in place for September 2002.

New Equipment for the CRY Centre of Sports Cardiology - Cypress Portable Echo

ECG Community Screenings

CRY has also been invited back to Millfield Schoolin Somerset and we will be there on 8th and 9th ofMay. We very much look forward to working withthe pupils and staff of Millfield School in the spring2002.

We are making steady progress with ourProgramme for ECG Testing in Western Isles ofScotland. We have the amazing good fortune to be

working with a local person in the Western Isles, whohappens to be the retiring Headmaster of the Schoolin which Joanne Fotheringham was based. We couldnot hope to link in with a more appropriate person,and we are extremely grateful to Mr George Moodyfor his support and interest in this very special proj-ect. We intend to begin ECG testing in mid May,working over a period of 4-6 weeks with local,approved ECG Technicians.

4

A forum was recently set up, primarily aimed at Echo Technicians who work with the Cypress Echo, whichis a relatively new piece of portable scanning equipment. The Cypress Echo has excellent image qualityand a multi-media capacity, which means that our Technicians will be able to e-mail Echo scans taken on-site to other doctors with similar systems. The equipment records the Echo scan onto video, hard drive anddisk. Since its launch last June, over 1,000 units have been sold world-wide. It is now acknowledged byspecialists to be the best portable Echo available and is comparable with larger Echo machines in terms ofits ability to report, review and quantify findings.

With financial support provided by the Lewis Marsh Memorial Fund CRY has been able to place an orderfor this new system. We hope that this equipment will be with us in March 2002. A sincere and heartfeltthank-you to all those who have given their time and support so generously to this project, particularly GillMarsh and Sally Reid for their agreement to use accrued funding in this way. The Echo will be housed atthe CRY Sports Cardiology Centre at the British Olympic Medical Centre. When not operating at our mobilescreenings, the machine will be in use at the British Olympic Medical Centre. Full details of our SportsCardiology Unit will be provided in the next issue.

Sports Screenings

Four surgeries in Norfolk are now up and running with their new CRY ECG machines. Machines havebeen placed with Dr PJ Strickland and Partners in Dereham, Dr Hughes and Partners at Mattishall, DrKelly and Partners at Reepham, and Dr Brisley and Partners at the Taverham Surgery. All PracticeManagers have confirmed that the machines were put to immediate use after the training session, and thatthey have proved invaluable when dealing with patients outside the surgery.

Donation of CRY ECG Machines

An additional Fundraising Project is now available through CRY. Some of you have expressed an interestin fundraising for a Defibrillator, and we have located a lightweight, yet very robust unit with a solid reputa-tion for performance. Housed in a small backpack, the equipment weighs about 4 kilos and is very easy totransport. It has both audible and visual instruction signals, so the operator will be able to use the machinein both noisy and poorly lit situations. The machines have a five-year warranty, and anyone undertakingresponsibility for this equipment will be trained. The machine will require a weekly test in order to keep it ingood working order. CRY's charge for these units is £3,600 - which includes your 25% contribution. Ouraim is to provide CRY families with a number of fundraising projects, which will suit everyone's financialrange. Defibrillators can be offered to gyms and leisure centres, sports clubs and weekend league sportinggroups, such as football and rugby teams. For further details please contact me on Tel No 020 8 725 5098and I will forward paperwork accordingly. We have also asked our Cardiac team for their final thoughts ontwo other pieces of very useful, but less expensive medical equipment. Once we have their input, I will noti-fy you of these further choices.

Any CRY Marathon Runners, who are seeking cardiac screening, should contact me no later than Friday,15th March in order to ensure your screening appointment is met.

We have been securing information space wherever appropriate in the Hospital, and are moving throughthe various cardiac units, now trying for information board space up in the Gym and Library. We aim to takean information pack further afield in early June to two further groups who would value knowing about CRY.

Dr Sanjay Sharma now Consultant Cardiologist at Lewisham University Hospital, has also just gained hisM.D …….with a Distinction (but of course!). Congratulations to Sanjay, who continues to work at a spectac-ular pace. Dr Sharma has been able to accommodate referrals coming through as a result of the GMTVprogramme. Anybody seeking information on referrals, please contact me here at St George's.

Finally, some personal news from our Dr Sam Firoozi. Sam and his wife Sahrin, became parents in theearly hours of 16th January 2002. Little Shahab made his entrance into the world a few weeks early,which was a bit of a surprise to his parents. Both are well, thriving and back at home. Shahab means"shooting star" and his Mum and Dad feel it's a truly fitting name for such a beautiful boy. We send our loveand good wishes to Sam and his family at this very happy time.

I will be away in mid February, for an annual break, and will report back in for our next issue. In the mean-time, please don't hesitate to contact me if you any queries regarding our clinical procedures, or CRY localcommunity projects. With all good wishes, Jan.

Maralyn and Kenny Bowen's Mobile Screening is now finally scheduled for 16th and 17th March 2002.The team will comprise Sam Firoozi, our Cardiologist and David Oxborough and Adele Doherty as ourECHO/ECG team. Steve Cox will be managing the event. Maralyn will reserve three places for emergen-cies. If you know of someone who is interested in attending, would you please forward his or her detailsonto me in the first instance. This way the family is protected from potentially awkward situations with per-sistent callers.

Our next family screening is with Irene Wickers and Granville Staff in Darwen, Lancashire. We're aiming tobe with them on 8th of June - for the first of our double ECHO screenings. More on this a few paragraphsdown.

The Lamb family in Newcastle has also expressed an interest in holding a Screening in September, so wewill be looking to finalise details with them shortly.

Kate and Robi Fox have also confirmed their interest in holding a screening in Suffolk - date to be agreed.They deferred their donation of an ECG machine to 16th January, and had a wonderful reception from theFramfield Surgery where the machine has been placed. Two photographers were present, and we hope tohave a picture for you for the next issue. A sincere thank you goes to Kate and Robi and all their support-ers - word of their hard work even reached the House of Commons!

For future information, CRY will be looking at operating mobile screenings in one day, wherever possible,with the use of Two Echocardiograms and Two Echo Technicians. As you know, the number of supportivetechnicians linking in with CRY is growing, but we are very much aware that those who support ourscreenings usually work full time, often in very demanding environments. It's essential that people workingin this field have time to recoup at the end of a week, hence our desire to operate screenings during aweekday rather than a weekend. We will still operate a full screening, but complete all procedures on theSaturday with our Technical team and Doctor leaving for home. CRY staff will remain on if the return jour-ney is too far to complete at the end of the day. We hope this method will allow us greater flexibility for fit-ting in family screenings, it won't be so difficult to find venues, and most importantly, we can undertakemore cardiac screenings during the year. When booking for a screening, we will confirm whether yourevent will be a one day or two-day event.

New Fundraising Projects for CRY Families - Defibrillators

Upcoming Family Mobile Cardiac Screenings

5

In St. George’s

REPORT FROM STEVE COX

If you have typed in any particular search phrasewhich you would expect us to rate highly on - andwe don’t - please contact the office and we will makethe necessary adjustments.

London Marathon 2002

Please inform us if you have any problems access-ing the web.

After our most successful year to date at theLondon Marathon, we are well on our way to havinga team of well over 100 runners again this year. Welook forward to seeing the heart costumes on theday with a number of runners including CarolineGard, Mark Orchard, Neil Ditch, Terry Brokenshire,and Mat Wilson from last year, growing rather

A major project that has been on the backburner has been the finalising of our new flier. We have waiteduntil we could officially announce Ian Botham before we did a big run. Hence some of the delays you mayhave experienced in their arrival. With the new demand created by GMTV and a number of upcomingevents, we needed to put something in place quite swiftly and hope you are all pleasedwith the new format. To help cut down on time spent in update the differentposters/fliers/leaflets we have incorporated our aims, and achievements, screening infor-mation, information on Sudden Cardiac Death, as well as our patrons onto the one flier.This will save hugely on the cost of printing 1 flier instead of sending out 4 differentleaflets, as well as administration etc.

It is very difficult to keep the balance between constantly updating the literature withlots of small print jobs in the CRY office (this keeps costs down by utilising our printerand minimising the wastage of outdated materials) and doing a large run which savessignificant amounts of time and money when there is no wastage.

On this occasion we have printed 10,000 fliers in colour. A large run like this significantly brings down thecosts, to less than we were previously charged for black and white.

We hope you like the new flier and please call us if you would like a batch sent out to you. CRY can alsosupply flier presenters if you know of a place/ reception desk etc, where this batch could be placed.

Over the past year there have been a considerable amount of changes to the Brochure with medical infor-mation being updated by our CRY cardiologists, new articles, updated CRY representatives information.Please give us a call if you would like to have an updated version sent through to you. This includes a newfront cover which can double for a CRY general poster as well. We hope you feel it portrays the messagethat CRY is seeking to promote, in the importance of screening, as well as the nature of the conditions.

Please give us a call if you would like to have an updated version of theCRY brochure sent through to you.

attached to their hearts, deciding to take them onceagain on the 26.2 mile excursion!!!!

All 16 heart costume places are booked, and all thegolden bond places filled, so we look forward to asuccessful a year as last year.

Accessing the Web

Search Engines Updating the Web

Dave Gregory has been busy submitting our site to anumber of health sites. If you find a website whichdoes not mention CRY, please send the details intothe office. Alternatively you could contact them your-selves asking them to visit our website and to list us.One area this is of particular importance to CRY is inthose hospitals which are aware and supportive ofCRY’s work.

If you can, please use gift aid. We will not ask any more than address, signature, date and home addressand this will donate an additional 28% to CRY. Help us make your donation go further. If you pay incometax or capital gains equal to the tax reclaimed by CRY on the donation you are eligible. This declarationmeans we can reclaim the tax on a donation you have already paid (income/capital gains) tax on.

New General Leaflet

6

CRY Website

CRY Brochure

Gift Aid

SUDDEN UNIDENTIFIED DEATH

AND THE PATHOLOGIST

7

I am a consultant Histopatholgist and although most of my work involves diagnosis of disease in theliving, I carry out some 200 post-mortem examinations every year. This week I have carried out sever-al on young people under thirty years old. Three died in road crashes, another of a drug overdose.These are tragic but explicable, although no less painful for grieving parents. I have also seen severalelderly men with massive heart attacks or perforated ulcers. These were unexpected but again thecauses are something most non-medical people have heard of and can relate to.

Once or twice a year I see previously fit young people who die suddenly with no apparent cause.These deaths are a difficult diagnostic challenge for us, and even more so since we know what atragedy these events are for relatives and friends of the deceased. These cases are totally unlike theroad crash victims or the heart attacks in which pathological findings are usually clear-cut. Sometimesthere are features of a previously undiscovered cardiomyopathy or valvular heart disease but often thefindings are minor or non-specific. This means that unnatural causes such as drugs and alcohol haveto be looked for, even though they can usually be later discounted. This alone may be distressing forgrieving relatives, especially when these investigations delay registration of death. But these have tobe done so that we may confirm to the coroner and relatives that we looked for all possible causes ofdeath, even though there was no other evidence to support such a possibility. Sometimes the parentswish to arrange even more complex investigations so that no stone is left unturned. There is a cravingto seek an explanation, however remote.

At the completion of the investigation there may be an inquest even though there is no evidence of anunnatural or suspicious cause of death. The inquest though seems to carry some kind of social stig-ma, linked to suspicion of foul play. Most inquests are nothing of the sort and designed only to estab-lish cause of death and not to attribute blame. The atmosphere, though, is not helped by the ratherformal, quasi-judicial nature of the proceedings and the presence of the press. Maybe a more informalatmosphere of someone's office would be more appropriate for this type of case rather than a court-room.

I find these deaths professionally unsatisfactory even though I know that I have done my best toestablish the cause. It is hard to attend an inquest and basically to admit to failure. Families long to betold that their loved one died of a specific illness and not an unspecified or ill-defined entity such asudden death syndrome, even though it amounts to a "natural" cause of death. There is often a feelingthat something was missed in the past, that trivial symptoms had been ignored or that somethingcould have prevented the death. I attempt to allay these fears, especially when I can find very littlethat could reasonably have been predicted during life. I try to translate difficult medical concepts intosimple layman's terms and give the relatives plenty of opportunity to interrupt and ask questions. Itcan be difficult to maintain a balance between over-simplification without being patronising, and med-ical accuracy although sometimes the relatives know more than I do especially those that use theInternet!

In many respects our job has been made more difficult by the restrictions placed upon us since theAlder Hey scandal. In the recent past it was considered good practice to retain whole organs so thatsecond opinions or further tests could be carried out. Few pathologists now do this for fear of retribu-tion. This means that much important information about these deaths is now lost forever, but who canblame us? Some pathologists have been verbally abused, had their children bullied and have had togive up the profession following disclosure that organs or tissue had been retained. This is frustratingfor us as a professional group but clearly public and political opinion is against us. This is despite theundoubted good that may come out of some of these post-mortems in terms of knowledge, publichealth, and future research and, not least, the benefit to the bereaved in coming to terms with a tragicloss.

I hope this article has gone some way in helping families understand a little better the difficulties thatwe face with this type of death and the work that we do. Pathology has had some unwelcome publicityin the recent few years so it is nice to be able to redress the balance a little.

My Daddy paints me rainbows

Jacob & Rhys (with just a little help from Mum Ruby) penned this wonderful poem in memory oftheir beloved Daddy, Ellis. They would like to share it will any little people who have lost a

Daddy like they have, and hope it helps to bring them comfort each time they read it.

IF YOU WOULD LIKE A COPY PLEASE SEND AN SAE WITH YOUR REQUESTPrinted with the kind permission of Ruby Adams

My Daddy paints me rainbows,The sunshine is His smile,

He sits upon huge fluffy cloudsTo watch me all the while,

The raindrops on my nose he sendsTo let me know he cares

And that he'll always Love me,And forever will be there.

He visits me most every night,To kiss me in my dreams,

And gently holds me in my sleepAnd then, how close he seems,

Thats how I know he's never gone,And there's no need to cry,

For while he lives on in my heartHe'll never, never die.

Jade Laws raised £55 in sponsorship at Weymouth’s ‘Waterfest’ in memory of Laura Moss. Jade used to swim with Laura

Shirley Wort’s local soft play centre called 'Junction 21' offered her the useof their hall and disco for the children's Christmas Disco party. A great timewas enjoyed by all the youngsters , some danced , some played others just

wanted to see FatherChristmas who was waitingin his Grotto. Another greatevening, £172 was thegrand total raised towardsJulian’s Memorial Fund.

West Kirby GrammarSchool made the gener-ous donation of £166 inmemory of Laura Duff

Students at the Stroud High Schoolin Gloucestershire donated £55.65from monies raised during theirAutumn Term.

The Emmbrook School in Wokingham held a CarolConcert and donated their proceeds to CRY in mem-ory of James Cann who was a pupil at the school andwhere Stephanie, his mother, worked.

Sally Kibble and the studentsat Croydon High School helda Christmas event and raised£58 for CRY.

The Smith Family and Crossley Heath School in Halifaxraised £395 on behalf of the Dominic O’Loughlin Memorialfund. A further cheque of £1000 we donated by CliftonRangers Y.F.C. as part of the proceeds of the annual 6-a-side football competition held in Dominic’s memory.Hipperholm G.S. sent in a cheque in Dominic’s memory.

Christmas Disco in memory of Julian Wort

Although we do not have an interview from Julie this time we will look forward to hearingfrom her in the next update.

In memory of Dominic O’Loughlin

9

My London MarathonBy Suzanne Pringle

Hi my name is Suzanne and I am a Mother of two and this year I ran theLondon Marathon for the first time. Jill Marsh has asked me to write about myexperience.

I started my training on January 2nd. In the mornings, I would either go for arun or to the gym, which afterwards, put me in a good mood for the rest of theday. I don’t like the winter or the cold, coming from New Zealand, I still can’t getused to it, but I found the training helped me.

Gradually my runs became longer and I found I had bags of energy. My friendskept following my progress and I must say I even surprised myself with mydetermination. March arrived, not a good month as I turned 40 and they can-celled the Reading half marathon, which I was going to use as a part of mytraining. My training eased off though I did manage to run at least twice a week.

By the beginning of April I started to be really positive about the marathon. Idecided to run for CRY. I have known Jill since my eldest son Daniel startedPlus Three nursery four years ago. Both my sons will be encouraged to partici-pate in sports so I heartily endorse the screening of children, as my own twowill be screened at the age of 14.

The day before the marathon, my husband and children went up to LondonArena in Docklands to register my number and microchip. The microchip wasattached to your shoe and timed your progress throughout specific stages of

the marathon, it was really exciting and even my husband was excited.

I didn’t sleep too well the night before, as I was so nervous. The day the marathon arrived, I was up at 05:OOam. By the time Ihad walked the dog, made lunches for everybody and consumed so many litres of water, I was ready.

As we left for London we had planned on driving to Richmond to catch a train. But Jeff decided we should drive to Waterloostation, in order to catch a train direct to Maze Hill which was the starting point of the race. By this time I was still drinking lotsof water. When we arrived at Maze Hill station there was so many people, runners of all ages and sizes. The walk or hike fromthe station to the starting area meant walking up a very steep hill which even then tired me out. I had been suffering from blis-ters, so at the exhibition at London Arena the day before, I picked up some spray. When we got to the top of Maze Hill, I gavemy feet a good spray.

There were thousands of runners including people who were dressed up in all sorts of different costumes. The atmospherethen was fantastic, everybody both was gearing themselves up, laughing and joking. After stripping down to my runningclothes, I had to hand in my race bag to one of the many trucks that were by the starting point. Then it was big hugs and kiss-es to my husband and boys before proceeding to my start point, which was identified depending on my number. I started chatting to some of the girls around me. who were asking about my preparation and the longest I had run in training. Imumbled 12 miles two weeks ago, and then wondered what I had let myself in for. Suddenly we started walking and it wasover 5 minutes before we crossed the start line. It was the best feeling ever. All along the route there were hundreds/thou-sands of people encouraging us all, it was very emotional. The pubs and bars had music playing. it was very much a partyatmosphere.

By mile 15 1 knew then that I could do it. I felt good and carried on. I didn’t know where Iwas heading for, so just followed the crowds. As I passed the 19-mile mark, I also passedStephen Redgrave. He is very tall in real life. Nice body though! Bv mile 23, I had teamedup with another girl and decided to run the last few miles together.

As the end drew near the miles seemed longer. Mile 25, we both made a dash for it. Icrossed the finish line punching the air I had done it. I received my medal and had myphotograph taken and also received numerous other things. All I wanted to do at thatstage was to see my family. I borrowed someone’s mobile to contact Jeff, who was withme soon after. It was so emotional. Jeff and the boys were so proud of me. They didn’t get the chance to see me running, butstill enjoyed themselves. My brother and family met up us soon after, it was great.

The day after the run I couldn’t walk down the stairs, but by Tuesday I was feeling okay and Wednesday I went for a run. Myrunning has since eased off since the marathon, although I am doing the BUPA great south run in October. My boys are alsodoing the junior run which is half a mile, so will have to get them out training with Jeff

I know it is easy for me to say having run the marathon, but I believe anyone has a marathon in them. You don’t have to traineveryday. It is a wonderful feeling to achieve by yourself, for yourself and no one can take it from you. So as you are readingthis, you could be writing this next year. Go on! Go for it! What have you got to lose? You only gain.

10

Our Fundraisers

Ray Downton Charity LegWaxing, 12 July 2000

Mrs C Power organised aLeg Waxing and raised atotal of £567 for CRY.

In June 2000 a sponsored swimwas held by the Barclaycall Sportsand Social Club for Screening inthe North East. The successfulevent raised an incredible £1,250recently sent in by Jo Cross. Thischeque was accompanied by theproceeds of the Bowlam Lakecard which once again sold wellover Christmas.

‘On 8th September my dance group put on a show at the TheatreRoyal, Margate to raise money for CRY. We did this in memory ofmy sister Therese who died suddenly on 9th April 1997.

The theatre was packed and we had an audience of around350.

We had a cast of around 60, aged between 2 and 40.

The numbers included tap, ballet, modern, and jazz routinesto songs like Top Hat, Thriller, Let’s Face the Music andDance, Cabaret, and pop songs. We had 2 vocalists as well.

We also had a raffle, which was greatly supported.

I aim to put on another charity event next year to markTherese’s 21st Birthday and the 5th Anniversary of her death.’

Tara Field. Therese

11

At the request of the ‘Worshipful Master’W Bro. Dennis Beer, the Pilgrims’ WayLodge donated £250

Christine Evans, Teresa and Patfundraised at their hairdressing salon inOckley, Surrey, for various charities byselling second hand clothing brought inby their clients. They retain 80% of thesale for their chosen charity and give

20% back to their client.Last year they chose CRYand donated £100.

The friends and family and work col-leagues at Black and DeckerMaltby, Bingham & Brown (Sheffield CastleMarket) and Midland Mainline (Sheffield) ofJason Howell, who himself hasHypertophic Cardiomyopathy,helped to raise £250 when Jason

had hishairshaved off.

For a number ofyears, Walton-on-Naze Rowing Clubhave donated £100to CRY

When Chad Loveday died lastyear, Debbie Loveday asked fordonations to be made inplace offlowers, which raised near-ly £100 for CRY.

A group of friendsentertaining and singing to elderly residentswere invited to give a donation to a chosencharity CRY was selected as the husband anddaughter of Claire Fivash both have had ICD devices fitted within the last 12 months.£150 was donated on behalf of the ‘Robins’ singing group.

Our Fundraisers

CRY’s very own Manjula finished the Flora Light Fun Run for CRY - 2nd September 2001

‘When Steve came back to the office after the Marathon and brought some leaflets aboutFlora Marathon Fun Run for Women, I was just toying with the idea of 'doing the marathon'.But what clinched the matter was when someone looked at me in a mocking sort of way andsaid 'Yes, I'm sure you can do it'. I decided that I was going to do it and prove it to them andmyself that I could. So I filled the application form and sent off the £12. Then it was a matterof training. The first time I walked more than my usual evening walk 'round the block' Ithought 'What have I landed myself in for!' But as time progressed, and I walked more andmore, slowly my confidence built up, especially with encouragement from my husband. Bythe time September 2 was drawing nearer, I was nearly sure about the walk but then, otherfears started creeping up - like being, jostled, pushed aside, even trampled on! How wrong Iwas. Though there were 20,000 of us there everyone behaved perfectly. And I must say itwas an enjoyable experience in every way. Even with a bit of jostling and rough overtaking, I finished quite comfort-ably and the sense of achievement was great! Not only did I walk for my own health, I walked for 'CRY' and managedto collect a grand(!) sum of £115 on the way. So who knows, I might even do it again next year!’ Manjula Radia

CRY was one of the chosencharities at the InghamInfirmarys’ staff re-union and

received a cheque for£150

Mark Cox donated £250 hav-ing received this from theBromley Lawn Tennis andSquash Rackets Club foropening their centre.

The Charities Committee of NMRothschild & Sons Ltd agreed tosupport CRY and donated £750.

The KirkbymoorsideTown Brass Band atthe Charity Millennium

Concert at Pickering Castle on 1st July2000 donated £200 to CRY. There wereseven bands in total which took anequal share of the £1,400 profit made todonate to their chosen charity.

The Hull University AlthleticUnion kindly donated£189.39.

The Hampshire CountyCouncil nominated CRYas their charity anddonated £276.78

Sarah Broadley, The RAGchair of the University ofSurrey Students’ Union send ina cheque for £370 after theychose to fundraise for CRY.

12

Our Fundraisers

Helen Stanbra ran the Robin HoodMarathon and raised with her run-ning partner £500 for CRY

Ben Cooperfrom Sheffield ran the Nottingham halfmarathon and raised £144.50

St. Mary the Virgin, Farleighin Surrey made a generousdonation of £100 as part oftheir congregation’s charitablegiving at Christmas

Mr Myers of the The Elizabeth MasonicLodge No7262 donat-ed £155.78to CRY

Ms Cathy Bakewell MBE, for-warded a generous donation of£132 from the Liberal DemocratGroup on the County Councilinstead of sending each otherChristmas Cards this year.

On the 20th October a dance was held in memory of Andy Tait at the Methil ComEd Centre’s Sequence Dance Club and raised £300 for Andy Tait’s memorial

fund.

Andy died at the the age of 26. At post mortem the cause of his death wasHypertrophic Cadiomyopathy.

He was a serving Police Officer with Fife Constabulary and was extremelyfit. He played football from his early years at primary school which was car-

ried on at secondary school. He was a very good golfer and he combinedthis activity with playing juvenile football with various clubs in the Glenrothes

(Fife) area. He was also a keen runner and upon joining the Police in 1974 hecontinued with soccer and took up weight training.

Dance at the Methil Com Ed Centre in memory of Andy Tait

Carol Wood (in aCRY T shirt inthe centre) andtwo friends par-ticipated in theGreat NorthWalk. It was a

lovely fine day withfantastic company andshe raised £200 for theDavid Cross MemorialFund.

Walker Roast advertising donat-ed £100 in memory of DavidJames Bruce of Layer BretonColchester who was a very pop-ular member of their staff and issadly missed.

13

Mr Raymond Langford made a generous donation of £100 to Neiland David’s memorial fund after reading an article about in the local

paper. He lives in Canada now but lived in Darwen before hand andstill receives the local

paper weekly.

Our Fundraisers

Each year the Throckley Carpet Bowls Club choose a charity or group which benefit children andyoung people, to donate money to at their Charity Carpet Bowls Competition.

This year they raised £300 from entry fees and a Grand Raffle which is held on the day of theCompetition in October.

A number of members of the Northumberland Carpet Bowls Association knew about CRY’s workin screening young people and from this they chose to support the Stephen Lamb MemorialFund.

The club is made up of 30+ members aged between 9-82 years. They play carpet bowls eachMonday evening and some also on Thursday evening. At present the club is top of the localleague, (which they are rather proud of). They hold three competitions a year, which attractsentries from the Newcastle and Northumberland areas.

On the 5th of November CRY received a number of cheques totalling £5,300 for Stephen’s fund.This included £250 from Dudley Masonic Lodge and £5050 from all Stephen’s family, friends,neighbours and the generous people of Northumberland

Darwen Catholic Club at Wellington Fold, Darwen, held an event andraised £113 Mr Clifford Davis donated £100 instead of

Christmas presents this year.

£80 was raised Mr Kevin Smithat the Ineos Sports and Social Club

The heart costumesmade their first appear-ance at this year’sGreat North Run withGranville Staff, GillianHaddow (David’scousin) and KenSibbering (David’sUncle) raising aware-ness of a good healthydiet of apples, cherriesand tomatoes.Together they raisedover £200.

Weare not ?!$!?~# apples, cher-

ries or tomatoes, we’re hearts

In memory of Neil Wickers and David Staff

In memory of Stephen Lamb

14

Oops upside your headTwo clubber

Committee membersorganised afancydressdiscoandraisedanicredi-ble£626 forStewartHoward’s MemorialFund.

Our Fundraisers

Derek the DJ

Waiting for the balloons

Caroline giving a CRY speechIan’s Dad presenting the prizes

The Broadways MemorialCharity Football Match was held

once again this yearand a wonderfulday was enjoyedby all. CarolineGard (CRY’sDivisional Repfor the East)

kindly attendedand gave a wonder-

ful, rousing talk listing the aimsof CRY. £351 was raised forIan’s memorial fund.

Broadways Charity football match in memory of Ian Strange

Where’s Harry Potter

Alright for drinks

Group photo

Fancy Dress Disco in memory of Stewart Howard

15

Our Fundraisers

Soul survivor

A charity night in the Pigand Whistle organisedby the Manager PaulWood. The groupwas called SoulSurvivior.

It was a greatnight eventhough a fewpeople hadheadaches thenext morning. Iwonder why?

£500 was raised intotal on the night.

Charity Night in memory of Ian Bowen at the Pig and Whistle

On Saturday 15th September 2001 Dawn andScott Hubbocks completed the Junior

Great North Run. They are seen here atthe Gateshead International Stadiumwith their medals. Fiona and Mike areseen making their way towards the bag-gage buses at South Shields after com-pleting the Great North Run from

Newcastle to South Shields the day after.In all on completing their respective races,

the Hubbocks household raised an incredible£557 towards Amanda Edgar’s Counselling Course fees.

Amanda is looking to complete the course after her hus-band Nigel died suddenly in his sleep on the 18th August1998. Many apologies for our mistake in the last brochurefor mixing up Ken Byrne and Nigel Edgar.

Great North Runners in memory of Nigel Edgar

16

In memory of Sarah LouiseWilliamson

Ian

Both

am

receiv

ed

a c

heque f

or

£7,0

00 f

rom

sta

ff a

t th

e G

old

ensto

nes P

ools

and L

eis

ure

Centr

e o

n b

ehalf o

f C

RY.

Fundra

isin

ge

ve

nts

inclu

ded a

n a

uction o

f pro

mis

es,

sponsore

d s

wim

, fa

ce p

ain

ting a

t lo

cal fe

tes a

nd r

unners

at

the L

ondon M

ara

thon.

Sa

rah

Louis

e W

illia

mson d

ied s

uddenly

fro

m “

natu

ral causes”

during a

sw

imm

ing lesson a

t th

e c

entr

e n

early t

hre

e y

ears

ago,

afte

rw

hic

h t

he p

ool’s

lifeg

uard

s d

ecid

ed t

o t

urn

the t

ragedy into

positiv

e a

ction b

y r

ais

ing e

nough m

oney t

o b

uy a

n E

CG

machin

e in h

er

me

mo

ry.

Ja

y L

ew

in,

havin

g b

een a

school fr

iend o

f Ia

n’s

during t

heir t

ime a

t B

uckle

r’s M

ead,

asked if

he c

ould

accept

the c

heque.

17

IN MEMORY OF PHILIP BARLOW

Philip Barlow was an exceptional person. Everyone that met him wanted and became his friend because he seemed tohave that inner 'sparkle/magic' that only a few people seem to have.

He was kind, thoughtful, loving and a 'gentle-man'. Phil listened to everyone's troubles and nigglyproblems and if he could help in any way, he would be the first there to lend a hand - and hewas also a good cook! No wonder I snapped him up quick and married him!

In the few years we were together I never heard him criticise anyone or put anyone down, hejust seemed to love everyone for what they were and accept people without judgement. Buthe was not a pushover or weak man. When things got tough, he spoke his mind and wasstrong in his beliefs and opinions, although very open minded and approachable.

Phil's funeral was attended by over 250 people, family, friends, work colleagues, gatheredfrom all over the world, who came to say their last farewells. We had 7 funeral cars which aclose friend had organised because he said, we want everyone who sees this funeral proces-sion to know that today we are burying a very special person - not monied, powerful or titled -but a very much loved, dear friend - our Phil.

Just before the funeral I spoke to our vicar, the Reverend Rob Bebb (who had married us so shortlybefore and had become a friend - he was a 'Star-Trekie' fan and we had brought him a 'Star-Trek' tee-shirt back fromour honeymoon, which he loved and always seemed to be wearing every time we saw him!).

I said "you know, I feel like I shouldn't say this to you of all people, but I think thatsomeone up there has made a mistake in taking Phil from this world when we needsuch a loving man down here". The Reverend Bebb replied "you know, and I, of allpeople shouldn't say this - but I think you're right".

Being a very modest man, Phil would be very embarrassed to have all this fuss madeabout him. He will be very sadly missed, but will always be in our thoughts and veryhappy memories.

Phil and Dave Long (past London Marathon winner) organsied and set up theCoventry City London Supporters Club CCLSC when Phil lived in London. SInce his

death Dave has set up a player of the year trophy called the Phil Barlow Player of the Year Season Trophy’

For the past few years all our friends and family had attended a Black Tie' do every Christmas and my late husband,Phil, was its Founder Member. His idea beingthat everyone has a party at Christmas or NewYear, so lets have one big party with family andfriends at one venue, i.e. our local ConservativeClub and there's no stress and no washing up!!!

So, without hesitation, after his sudden death inJuly 1998, the following December 'Black tie' dowas dedicated to his memory and CRY thecharity chosen, to which £1,060 was raised byraffles and donations on the night.

The following year £1,500 was raised and wehave organised fundraising walks, dinnerdances etc. ever since and over £6,000 hasnow been raised for CRY.

Phil loved children, although he had none himself, and they adored him. He was an avid sportsfan, so CRY was the ideal charity for us to choose, for family and friends to be a part of anddonate to. CRY is tireless in their pursuit of early screening for all children to detect any heartproblems, especially Cardiomyopathy.

Phil died of hypertrophic obstructive cardiomyopathy; it took the Pathologistalmost ten days to find out what had caused his sudden death.

It goes without saying that this was a huge shock to me and his family andfriends because Phil was always very active and fit. He regularly swam up to60 lengths a day, played badminton and we would ride our bikes nearly every

weekend together with friends. Phil loved sport of any kind but especially football. He had trials forCoventry City when he was a teenager and could have had the opportunity to play for them, but hewas persuaded to go to University instead by his father. He became a teacher for a while, and laterbackpacked around the world, finally settled in London. Then he moved to Merseyside, started tosupport Tranmere Rovers FC and we met on a blind date arranged by mutual friends.

First Black Tie do

Richard Shaw left (player of the year), BrianRichardson (with trophy) (Chairman of CCFC), to his right

Rod Dean (Chairman CCLSC) and many friends

Phil with Dave Long

Phil withhis granddaugh-ter (also called

Molly18

IN MEMORY OF PHILIP BARLOW

It was love at first sight and we were married exactly a year to the day we met.Second marriage for me, first for Phil, we were both 42 and finally we'd found oursoul mates. We were inseparable and our combined social lives were a littlehectic to say the least! We enjoyed and loved life and each other to the full.

It was as if fate was telling us to do everything we could together now becausetime was short. We only had 4 years together.

I felt like the world had stopped and the light had been turned off. I ate, breathedand slept Phil. He was more than my life. He was my strength and spirit.

We had so many future plans and now they were all gone, suddenly there wasno purpose to anything anymore. Just going through the motions of day to day

existence. Family and friends were exceptional and I was never left alone for almost two years and I can never thankthem enough for all they have done for me. I feel like I am only now, 3 years later, coming out of a very deep blackhole.

Phil had shown no signs or symptoms of being ill and if only, as CRY so strongly suggest, he had been screened earli-er, may be all the heartache we have suffered at his loss could have been avoided.

No other family and friends need go through what we have been through.

Phil would have been proud to have supported CRY. Natalie ‘Molly’ Barlow

Bet honoured at 'Top Table' in memory of Phil Barlow

CRY was the benefactor when an old bet was honoured in Coventry at my wedding to AllanLawson. In his wedding speech Allan explained about a bet that had been made between hisbest man, Gary Hogg, and himself, a long time before. Being single 'squaddies' out inGermany they were, shall we say, cynical about love! The bet was that IF one of them wasstupid enough to get married, that they would hand over 1,000 German Marks (£320.00in sterling) to the other, at the top table.

Allan, a proud Scotsman, found it very painful to hand over the 1,000 DM's especiallyafter seeing the satisfied look on Gary's face. It became easier to bear when Gary stat-ed that he wasn't going to 'drink it' but that he'd donate it to charity. No hesitation wasrequired by anyone on the top table - it had to go to 'CRY'. Thank you to Gary and Allanfor the donation.

We did have a lovely wedding day. There was one person missing though, my UnclePhil. Hopefully with more donations like this it could stopother premature and tragic deaths like his. Joanne Lawson (nee Barlow)

'CRY's COVENTRY DINNER DANCE

My sister Joanne and myself, Natalie, knew that we want-ed to do some sort of fund raising event after the death ofmy Uncle Phil. We quickly talked my Mum & Dad (Richard& Mavis) to get involved and soon we were organising a'Dinner Dance' for 120 people!

It wasn't easy, there was a lot of sleepless nights (mainly by Mum!) worrying that we wouldn't sell the tickets and a lotof phoning and begging for prizes for the raffle.

But the night came off and it was a roaring success. Everyone had a great time and the dancing went on till late in thenight. The best news was, with money from the tickets, raffle and some extra money from Barclays Bank & AXA SunLife, we had raised over £3,000 for CRY - a massive achievement!

A lot of people asked us when the next one was so you never know….. One word of warning though (and this is no crit-icism of CRY), if you do take on a fund raising initiative for a particular appeal, make sure you ring fence your effortsBEFORE the event (we learnt the hard way!). Natalie Barlow

Once upon a bet.....

Long, long ago in the far away land of Germany, two young soldiers sat put-ting the world to right's over a few drinks.

The subject of women came up. This was no ordinary conversation and itevolved into a discussion that neither of the two soldiers would ever getmarried and if they ever gave up their carefree 'singley' life, that would be it!

As both felt so strong a bet was agreed. Conditions were simple:

1.A sum of 1,000 DM's was the stake2.If either of the two got married, the other would be the Best Man 3.On the Wedding Day a 1,000 DM note would be presented to the winner

at the Top Table

This was many years ago, now it's time, the bet is due!

I, Allan Lawson hereby pay Gary Hogg, 1,000 DM's Dated: 18/8/00

27.5.95 Wedding DayMollie’s mum Charlotte on left,

Phils mum Kath on right

19

In memory of Andy Gard

The eventraised £900

Cheers Allan!

Colin handing out thepapers - very serious!

Jenny and Colin,with one of their girls at

the raffle table

Jo, Peter, Tom & Nick on theirway to their 1st booby prize!

Clacton Police v Forest Gate

Frinton Quiz night

Essex Chamber ofCommerce donated £250

Andy Gard died suddenly 2 days before his 18thBirthday on 27th July 1997.

Over the past five years there has been incrediblesupport from the Frinton Community, holding manylocal events including their repeatedly successfulquiz nights.

The nightraised

£1400 forAndy’s

memorialfund.

20

In memory of Robert Poyser

I was thrilled when my brother-in-Law a firefighter onWhite Watch at Oldbury Fire Station rang and saidthat Neil Pentor a colleague on his watch who organ-ised a Charity Golf Tournament each year had chosenCRY as this years recipient in memory of Robert.

Oldbury’s White Watch held a Car Wash to raise moneyfor the tournament prizes.

It was held on the 7th September hosted by Dudley Golf Club. The day wasthankfully dry and full of hilarity and of course good golf! I was invited to theevening presentation of prizes which was a real delight as I have never beenkissed by so many different men! It was a wonderful evening full of Black Countryhumour and overwhelming generosity and I felt privileged to receive on CRY’sbehalf and in memory of my son Robert Poyser such a magnificent cheque just afew days before what would have been his 21st Birthday.

The donation has grown to the amazing cheque I now forward of £2930-00.

Diane Tolley

Neil Pentro just having presented the cheque to Diane

Robert Poyser collapsed while cycling in Bewdley withhis friends. The Post Mortem showed he was bornwith a heart condition which could have killed him atany time.

21

In memory of Julian Wort

THE SPONSORED HEAD SHAVE

August 19th 2001

The day started with 8 brave men(with hair) on a bright Sunday morn-ing. My son-in-law Steve Rusbridge(owner of Badcox Barbers), was firstin the chair, having had his hair dyedbright red the day before he waseager to be shorn!! Then the otherseven took their turn in the chair,watched by family , friends and who-ever was passing by the shop, plusplenty of coffee. FROME had eightbald men, all for the good of CRY.The event raised £2,185 , Steve him-self raised £1,250.

22

On November 29th 2001, two local ladieshelped Shirley organise a prize Bingo for CRY, a great evening wasenjoyed by all.

Her daughter Debbie was the caller for the evening, Tea, Coffee,and Hot Mince Pies, were served in the interval, and also raffle awas held during the evening. £307 was raised on that evening.

A sponsored walk wasarranged for April but due tothe Foot and Mouth restric-tions it did not take place untilOctober, but then Mrs Alice Lockand Mrs Ruth Brooks completed TEN miles! andraised £358.

Weston Vinyl is a local factory where Julian workedfor six years. His former colleagues from the Sportsand Social club organised a Cabaret evening onDec 1st, and donated all the Raffle money, totalling

£292, from the evening, to CRY.

The Frome and WarminsterRound Table attended ourlocal agriculture show andthe profit of £100 for theCoconut Shy Stall was don-tated to CRY.

A Prize Bingo raised £307and an Adult Disco another

In memory of Julian Wort

One luckyguy with Scooby

Doo with Shirley’sGrand son (age 8)

who won some eggsin the raffle

The Raffle Table

Debbiethe Bingo Caller

(Shirley’sG/daughter)

The booksellers at the Bingo

Shirley (left),with her mum andnieces waiting for

‘Eyes Down’.

23

Christian died at the age of 15 from Hypertrophic Cardiomyopathy on 23rd October 2000. He

collapsed while on his way back home to Creigiau, Cardiff and then

died two hours later, despite efforts by a local nurse, ambulance

crews and doctors to resuscitate him.

Christian was a mountain bike enthusiast and the top scorer in

his school’s rugby team. He died on the first day of the half

term holiday.

The Creigiau Girl Guides organised a sponsored skip in

memory of Christian Thomas and raised £218 for Christian’s

Memorial Fund.

Ysgol Plasmawr in Fairwater, Cardiff have already raised

£2,500 in his memory, this was presented to Maureen Ward,

CRY’s Divisional Representative for South Wales, by Graham

Henry, the Welsh Rugby Coach, a number of months ago. A con-

cert was held at the Llanday Cathedral, including the

Aber Valley Male Voice Choir, seen here under the famous

Epstein Statue, and the school choir

This money has been ringfenced to go towards funding a screening programme in

Wales in the near future.

Carole, his mother said, ‘If there was anything we could

have done we would have done it because there is noth-

ing worse than losing a child, so now we want to make

other parents aware that this can happen.

We also want to get

involved in raising

money for research. This

way his death will not

have been in vain.’

In memory of Christian Thomas

Katie (Christian’ssister) who sang at theconcert and her fatherGraham Henry with Christian’s friends

The school choir in the Llanday Cathedral

Maureen with Graham Henry

Aber Valley Male Voice Choir

24

In memory of Andrew Ball

On 12th August 2001 the 5th Annual Kiddiminster FlatGreen Bowling Competition raised an incredible £700for the memorial fund of Roy and Gill Ball’s son Andrew.The day was the best weather wise and was the largest

amount raised to date at the competition. Phil Sturmanwas the winner of the Singles and runner up John Head.

The doubles was won by Phil Sturman and Steph Lokje, withthe runners up Pete Hopkins and Andy Lancet.

Thank you to the licensee’s Kath and Eddie Robinson and Julia and Alan the licenceesdaughter and son in law and everyone that attended their very special day at the WearyTraveller, Sutton Road, Kidderminster. A further special thanks to Lorraine Lokje (raffle)and Helen on the Bar-B-Q. Rob Smith gave a special donation of one hundred pounds.Roy and Gill’s son in law Tony Barker and daughter Julie Barker have also given hugesupport to Andrew’s Memorial Fund and the new licensees are continuing to supportCRY.

Other funds raised in Andy’s memory include £120 sent in by Roy and Gill fromCollection Tins over the last 12 months and £100 from Kings Norton Masonic Lodge

Andrew Ball dropped dead at a football match at the age of 16. Hewas six foot tall, 12 stone and a great sportsman, enjoyed

playing cricket, rugby and was a member of a BirminghamBoys League Football team. The Post Mortem showed heplayed soccer for five years with a severely abnormalheart.

25

Leon Ashley Manners died at the age of 4 of a heart defectin July 1999. He used to get coughs and colds and geta bit chesty. He had been for a chest X-ray but nothingwas picked up.

On the 22nd of September Julie Hatton held a sale atthe Beacon Public House in Middlesborough with a

Tombolaand Raffleand raised £275.

In the bar 8 pool teammembers, Ian, Keith, Mick,Tony, Geoff, Dave, Steve,

and Neil held a 24hour poolmarathon from 12noon Saturdayuntil 12 noon onthe Sunday. Theyraised £1343.50 insponsorshipmoney.

Whilst that wasgoing on in the

lounge Rockin Robin theKarioke host did a strip teaseand raised £70 plus a few wolfwhistles and screams.

The cooks Diane and Marie dida fantastic job at making surethe pool team didn’t go hungry.

The sale

At last they made it 12 noonfinish and all still looking bright eyed

Caught fallingasleep Geoff has

been playing for 15hours by this time

I’mjust pretend-ing to sleep,honest

In memory of Leon Manners

26

In memory of Damien Jewell

More than 40 Bradford and Bingley staff joined the Colchester team in a spon-sored walk in memory of their late and much loved former managerDamien Jewell.

Damien died earlier this year as a result of a cardiac abnormalitywhen he was just 28 years old. His team were moved to supportCRY.

The walkers who followed the 12.5 mile route around a Kent reser-voir, raised around £2,500 with Bradford and Bingley matching theamount raised.

l to r: Ryan Holden, MartinHayter, Richard Parry, Steve Brook,Alec Watt, Wesley Plumb, Julie and Sophie Cant, RachelRowe, David Cant, Lindsey Heward, Jade Walker,Jessica newman, Rachel Raison and Nicole Smith. Notshown are Neil Heward who took the photo, David Wiseand Jane Ninnim who also took part - running the route injust under three hours.

27

In memory of Scott Jackson

I ran the Great North Run in memory of my partner ScottJackson who died suddenly on the 15th November2000.

Scott was a fit, healthy 32 year old who lived life tothe full. He was a wonderful, loving, genuine personwho had the gift of making people laugh. Peopleremember Scott with a smile - he is greatly missedby everyone who had the privilege of knowing him.

Preparing to run the Great North gave me some-thing to focus on during an extremely difficult time -running became my therapy. Scott’s family and I wereoverwhelmed by the support and encouragementreceived by everyone wanting to sponsor me and helpraise money for CRY.

It is a great comfort to know that the money raised will help support andhopefully prevent other families and friends having to suffer the pain of los-ing someone they love.

Rachel Allan

Rachel raised £2,582.80 in memory of Scott

28

Ian was 22 when he died suddenly on the 25th September 1995,from what is believed to have been Wolf Parkinson White.

Ian was a very bright, fun loving person, who achievedexcellent results both at school and University finishing atExeter with a first in Accountancy.

He had finished his first year with Price Waterhousewhile continuing his studies to become a CharteredAccountant.

Ian had just become engaged and was due to be mar-ried the following March.

Since 1997 the incredible amount of almost five thousandpounds has been raised in memory of Ian. This includes ahuge amount of donations from Collection Boxes held inDennis’ shop, with personal donations from his parents, Barbaraand Dennis, generously rounding up the numbers, usually to the nearest 100.

Some of their other huge donations include one from the Freemasons’ Grand Charitywho donated £1500 to Ian’s fund, and the incredible efforts of Chris Mintern who raisedover £1500 a number of years ago at the London Marathon.

In memory of Ian Merchant

Sally Mitchell ofHertfordshire and a teamof CRY fundraisers did aparachute jump Shejumped in memory of Ianand raised a wonderfulamount of £270. I

think some-thing is

wrong!

Whatare we doing

here?

OK.It’s not thatdifficult

Whatare we looking

for again?

I’mnot sure Ican do it

Itwas youridea!

Iwonder if it’s

too late to gohome?

29

It was a great privilege to be invited to attend the show "ASong from the Heart" put on by The Guildford Schoolof Acting in aid of The Lewis Marsh Memorial Fund.This raised a fantastic total of £3,400. Lewis'sbeautiful sisters Sorrelle and Chevaun were starperformers in the show which was a superb andvery moving tribute to Lewis.

I found it quite astonishing that these young people,many with so little experience, had such great pres-ence and confidence on the stage putting on the mostdazzling performances.

The show was given atremendous reception bythe very supportive audi-ence, many of whomwere friends of theMarsh family.

The CRY music badge, inmemory of Lewis,seemed to be on thelapel of every person whoattended. It was a won-derful evening, thorough-ly enjoyed by all thoselucky enough to attend.

Alison Cox Founder & Chief Executrive

The South BerkshireScout Group havedonated the profitsfrom the 2000 badge of

£900. They have beenincredibly supportive of CRY

A Song from the HeartIn memory of Lewis Marsh

30

ECG SCREENING #4In memory of Lewis Marsh

1st & 2nd September

Each year the local boys football club has organised what is known as The Lewis Marsh 11-a-side Pre-Season Friendly Tournament. It covers teams from the ages of under 8 to under 17 (well actually this yearthe under 17's didn't come). It raises a fantastic amount for the fund and is a great weekend of fun andsport. I say this with double pride being a member of the club and also Fund Manager for the Lewis MarshFund.

This year I took a deep breath and announced to the teamof volunteers that we would hold an ECG testing session atthe same time for the lads who were coming to the tourna-ment!

By the weekend of the tournament we had about 60 formsback and a few extra non-participants to test. I felt prettydisappointed but warned everyone that over the weekendwe could get more.

So there we were, about to have a bit of lunch before starting and suddenly outside the building we couldsee hordes of young footballers heading our way! The tournament was running early and they had hadtheir rest period. We had been expecting two teams at that particular time - we got five - all with paperworkto be checked and lads to be tested. Well we really did spring into action. More teams followed and inthree hours we tested about seventy youngsters. The efficiency of the team and the two nurses was prettyastounding! Kim was on 'stripping' duty - that is asking the boys to remove their shoes, tops and jewellery.She was so organised - folding their shirts and keeping little piles of belongings neat and tidy. After an hourof this the smell from the sweaty feet (they had been playing football remember!) and trainers began to taketheir toll and she turned a rather peculiar colour but she gallantly continued!

The next day was slightly slower until about threeo'clock when we let half of the team go as we felt wecould cope with the few left to come. (when will welearn). The few increased to an extra twenty-five.

Everyone agreed that it was a most rewarding week-end - we had chatted and reassured the lads andtheir parents and coaches. The lads all wanted toknow two prominent things - was it a needle andwould it hurt! Obviously they take in very little fromthe information sent out or listen to their parents! Sowhat's new!! We also spent time speaking to so

many people who wanted to know more about CRY and took the leaflets home with them.

We had tested 120 young people. So far on our previous testing days we had not had any come back witha positive result. We felt in our hearts that this time we would not be so lucky - the youngsters came fromsuch a wide area. We were right and sadly we did pick up some that needed a follow-up. But although Ifeel sadness for those youngsters and their families, I also feel relief that they have been picked up andperhaps another tragedy has been avoided.

To the team - well done girls!! We learnt a lot and willprobably change a few things for next time - yes there willalways be a next time I hope!

The tournament itself yet again a great success raising£5,000 - £3,000 of which will pay for the testings. TheSandhurst Boys Football Club raised £5,600 at their tour-nament in September 2000. We have purchased an ECGmachine to donate to Frimley Park Hospital with thismoney. It is our local hospital and the cardiac consultantthere is fully supportive of our work.

Sally with the Major of Sandhurst PeterNorth, and the Chairman of the Club Phil Sigley 31

The Allans held their first screening on the 24th and 25th ofNovember in memory of their son Richard Allan. Many of those

being screened were friends of Richard and have been incredi-bly supportive of thier fundraising since his death. We werepleased to meet Arlene Golightly, Richard’s Middle SchoolHead Mistress, who has been an active group memberfrom the start. On the Saturday morning an interview wentout on the local radio highlighting the issues surroundingthe screening. After an initial lost signal the piece went out

on the 10 oclock morning news.

Many thanks to all those who helped out over the weekendincluding Yvonne Hetherington (who helped John as a scribe) ,

Pam Bell, Janet Allan, Mandy’s sister who were a fantastic help, help-ing out John in the ECHO room - putting up with the tropical heat produced by the ECHO, and ofcourse Denis and Mandy. Thank you also to the Newcastle Clinic and Guy Stephenson, an Osteopath &Dr who lost 2 close young relatives to Sudden Death, for volunteering their incredible facilities for theweekend.

The CRY team for the weekend was John Pither on ECHO, Julia De Courcey on ECG, Dr Sam Firoozi(consultant), Tony and Steve. Once again the journey up took many hours longer than anticiapted butthanks to the receptionist for waiting after hours, the van arrived and the rooms were set up.

‘We all enjoyed the weekend..hard work getting all those young ones there on time...lovely to see therelief on their faces afterwards (they all knew Richard and had concerns about their ownhealth).Everything went well to plan! Thanks to the CRY mobile team...dedicated people. Enjoyed theradio interview in the rain...some of our friends did hear it. We look forward to the next one and maybegetting some of the GP's and Specialists off their bums to come and observe!’ Denis and Mandy

Mobile Screening in memory of Richard Allan

32

RAISING AWARENESS

Printed with Permission of the Yeovil Express

33

RAISING AWARENESS

Printed with Permission

BATH LODGE PRACTICE NEWSLETTER No. 15 AUTUMN 2001

34

RAISING AWARENESS

Printed with Permission of the Daily Echo

Throughout November Mary Abraham was very busyraising awareness and fundraising for CRY. With thetremendous support of Mrs Jo Spicer and JSainsburys Superstore at Hedge End, Southampton .£602.98 was raised with Collection Tins, donations,selling badges etc.. and the food and wine tastingevening on Monday 26th November.

At this years Flora Light Challenge on the 2ndSeptember, Mary Abraham and her teamraised over £500 for Philip’s Memorial Fund.

35

RAISING AWARENESS

Printed with Permission of the Evening Gazette

36

RAISING AWARENESS

An exciting new project which could save the lives of young people is scheduled tobegin on the Isle of Lewis, and is anticipated happening in the Wester Ross com-munity.Alison Cox, Founder and Chief executive of CRY. (Cardiac Risk in the Young) metup with Ullapool residents Alex and Fraser Fotheringham, CRY‘s Divisional repre-sentatives, in October this year to visit both areas and to liaise with Western IslesHealth Board, Education Committees, local GPs and District Nurses. They wereable to discuss the initial plans for a pilot study, which should take place on Lewisbetween the end of March and June 2002. The study will involve screeningapproximately 820 young people between the ages of 15 and 18 years, in order todetect any abnormalities of the heart. The screening procedure is a non-invasivetest using an EGG machine the size of a briefcase, which has the latest interpreta-tive data and is capable of giving an instant readout. it is hoped to use the NicolsonInstitute as a venue for the project, depending on school timetables. It is estimated that 3 or 4 young people per hundred might need to be referred toan Inverness or Edinburgh hospital for a further ultrasound check. On her recent visit to Lewis and Ullapool, Alison Cox expressed her pleasure at thewelcome and encouragement she received, describing them as “uplifting”. She wasalso delighted to accept the services of Mr George Moody, Head teacher of BaybleSchool, Lewis, as voluntary administrator for the pilot study. It is also proposed thattwo nurses from Lewis will be trained in the use of this particular screeningprocess. “ This way, we can leave expertise in this particular field with the islandcommunity”, said Alison Cox. Joanne Fotheringham was appointed to BaybleSchool as a teacher of Primaries 3 and 4 in October 1995, and was held in highesteem by colleagues, pupils and by the community in which she had made herhome until her untimely death in April 1997. A commemorative garden to her mem-ory was made at Bayble School by children staff and members of the community,with funds donated from far and wide. Alison Cox spoke about Alex and Fraser Fotheringham’s commitment to CRY’swork and especially this new project, saying, “They have been tremendously coura-geous and far sighted in looking to the future and developing this project.” Thecost of the project will be in the region of £20,000. Half of the money already raisedfor The Joanne Fotheringham Memorial Fund for C.R. Y. will go towards the Lewisscreenings; the other half is to be used for the proposed screenings in the Ullapoolarea. The administrative side of the Ullapool project is waiting for approval from theEthics Committee of Highland Health Board, before it can be taken further. AlexFotheringham said, flit is very important to me and Fraser that this project takesplace on both sides of the Minch, because of the strong connections with Joanne.”(An exhibition about The Joanne Fotheringham Memorial Fund for CRY, with photo-graphs from local fundraising events, can be seen at Ullapool Library. Eds.)

Western Isles project to detect heart abnormalitiesUpdate on the Joanne Fotheringham Memorial Fund for CRY

Ullapool News 7th December 2001

Printed with Permission

37

RAISING AWARENESS

Printed with Permission of the Western Gazette

38

RAISING AWARENESS

Printed with Permission of the South Wales Evening Post/ South Wales News

39

RAISING AWARENESS

Printed with Permission of The Chronicle - Wirral

40

RAISING AWARENESS

Printed with Permission of the Lancashire Evening Telegraph

41

RAISING AWARENESS

Printed with Permission of the Evening Gazette

42

RAISING AWARENESS

Printed with Permission of the Lancashire Evening Telegraph

43

RAISING AWARENESS

Printed with Permission

44

RAISING AWARENESS

Printed with Permission

45

BULLETIN BOARD

Before you embark on any commitment

to project funding please call JAN SMITH

for details of forms required to regulate

this. This should be a great timesaver, as

you need to check your information is

correct before proceeding. The definitive

guide to CRY projects for ring fenced

funding is now available from Jan.

Zip Wires, High Ropes Courses and Raft Building - you can be

taking part in all these exhilarating activities and more as part of a unique

two-day residential adventure Challenge being promoted by CRY.

CRY is currently looking for teams of eight people to take part in this nation

wide Team Challenge which is taking place at

purpose-built Outward Bound centres set in idyllic locations across the UK.

Teams take on a variety of mental and physical challenges over a two-day

period which is designed to promote teamwork within an enjoyable outdoors

environment in the Lake district, North Wales or the Scottish Highlands.

No previous experience is needed as all training is provided and if your team

raises the minimum sponsorship level of £2,800 for CRY then all your team

members get to take part for free!

If you would like more information please contact the office.

MOBILE PHONES- Recycle and donate to CRY

We now raise money by recy-cling old mobile phones. If youare in contact with a companywho is replacing their mobile

phones, or simply have access toa large number (more than 10),please contact the office and we

will help you dispose of themwhile benefitting CRY. (Phones

should include batteries andchargers)

E MAIL CONTACTSCRY head office - cry@c-r-y.org.ukKeeley Ashley - keeley@silentwhistle.co.ukRoy & Gill Ball - royandgillball@selcroftavenue.freeserve.co.ukNigel & Jenny Cole - nigel1949@hotmail.comJo & Charlie Cross - chascross@compuserve.comCaroline Gard - carolinegard@hotmail.comAlan & Gloria Moss - mosses@exite.co.ukTim & Sylvia Salisbury - thesalisburys@cwctv.netGranville Staff (work) - granville.staff@darwen.deconorth.comJan Smith - jsmith@sghms.ac.ukAdrian Woodhead - adrian@woodhead88.freeserve.co.ukDoreen Harley - doreenharley@btinternet.comSally Reid - sally.reid@virgin.net

More and more people

are using email

as a fast

and convenient way of

communication.

If you would like

to be put on our CRY

list, please email us with

your details.

Give as You Earn

If you make regular donations toCRY you may be interested indonating through your payroll. Thisenables you to make a pre tax dona-tion with a 10% bonus added by thegovernment if made through ‘Giveas you Earn’

BLAZEBlaze is an organisation best known for their FirewalkingExperience. If you are interested in something completely different-like learning how to walk barefoot across broken glass, experiencebeing a fall guy or bodyguard or ‘simply’? surviving the call of thewild for 5 days and nights - you may finally have found the place tobe. For more information on these events either contact the officeor go to their website www.blazefirewalking.com. There are a num-ber of different events on offer to those who are wishing tofundraise for CRY.

46

If you would like laminated colour copies ofany of the pages in the brochure pleasecontact the office, stating quantity and

which page.

If you would like CRY to consider any item for Bulletin Board

please fax details (including your item)through to Steve on 01737 363444

Please bear in mind when organising fundraisings that itwould be brilliant if you could take photos of your great

day. It would also be extremely useful if, when you writein to the office, that you clearly state how much was

raised, and by whom.

BULLETIN BOARD

RING FENCED FUNDRAISING

Please remember that unless you notify us and get the necessary documentation and confirmation from the office for “ring fenced”fundraising before you start a fundraising venture, all funds raised will beused for CRY Core Funding. Retrospective “ring fencing” is unfortunately

just not possible. CRY cannot be responsible for any “ring fenced” fundrais-ing unless it has been authorised.

“Ring fenced” fundraising is for specific projects only. After the successfulconclusion of the authorised project, fundraising will bedirected again to

CRY Core Funding.

Because of the appeal of certain projects, some will have a waiting list

Please give me a callor email me if youhave any suggestionson how you wouldlike the content ofyour futurefundraising pages tobe laid out in thefuture.

RegardsSteve Cox

CRY will be inviting all MP’s toa reception in the House of

Commons on April 15th.Please lobby your MP, with

information on CRY, to attend.

47