Cardiac Risk in theYoung (CRY)Head Office: Unit 7, Epsom Downs Metro Centre, Waterfield, Tadworth, Surrey KT20 5LRTel: 01737 363222 Fax: 01737 363444 E-mail: cry@c-r-y.org.uk Visit our websites: www.c-r-y.org.uk • www.sads.org.uk • www.cry-csc.org.ukRegistered Charity No 1050845

Cardiac Risk in the YoungUpdate 49 January to March 2009

News and Events • raising awareness • our fundraisers

Newsletter from the Deputy Chief Executive

2 • CRY update • Issue 49 www.c-r-y.org.uk

Dr. Steven Cox CRY Deputy Chief Executive

Over the past twelve months CRY

has continued to make significant

advances in not only raising

awareness of cardiac conditions

but also developing a screening

programme throughout the UK,

which is enabling thousands of

young people to he tested for underlying cardiac conditions. This

includes not only athletes, many of whom will represent GB in the 2012

Olympics, but also the general public. The Philips Testmyheart tour 09

was a completely new initiative with unprecedented success. Not only

did CRY have a significant physical presence in communities but also on

the web. Almost every person in the UK who uses Facebook would have

had testmyheart adverts on their pages at some point over the 2 month

period. In the next Update issue we will be including a full spread on the

tour with the findings of those tested.

Many people have questions about our screening programme and so

we have collated all these questions together and filmed Dr Sharma

answering the 50 most common on the www.testmyheart.org website.

These include the questions; “what is sads?”, “does sport cause SCD?”,

“why does CRY not do screening after 35?”, and “why does CRY not

screening after 35?”. We will soon be launching more in-depth clips of

Sanjay talking and answering questions about the different conditions.

Many of you may now be aware that most of the bookings of CRY

screenings are available online at www.c-r-y.org.uk/ecg.htm. Our goal

is to create an infrastructure where screening programmes can develop

regionally. The new Liverpool clinic was a major step forward for the

North West and we look forward to announcing future clinics.

As we develop these screening services, there is an obvious demand to

expand our clinical team. This year there have been 4 research Fellows

Dr Michael Papadakis, Dr John Rawlins, Dr Carey Edwards and Dr Navin

Chandler. We have also worked with a number of cardiologists who

have attended screening events and worked with the research team.

The Research Fellows not only conduct the screenings and manage the

abnormal results, they also work with Dr Sharma at the CRY Inherited

Cardiovascular Disease clinics at Lewisham Hospital and Kings College

Hospital. At these fast-track clinics families can be seen within a few

weeks of referral after the sudden death of a family member.

Dr Carey Edwards and Dr John Rawlins have been successful in

achieving their upgrade in cardiology roles with placements at major

hospitals in Cardiff and Southampton. When doctors that have worked

with CRY under Dr Sharma achieve these placements at major NHS

hospitals it highlights the quality of training they have had in this

specialist area. One of our aims is to improve the quality of cardiology

care of those affected and this will be achieved by increasing the

number of specialists in the NHS with an understanding of how to best

support families after the horrendous impact of these tragedies on all

those affected.

CRY’s Research Fellows also play an instrumental role in publishing

our experiences. The more screening we do the more we understand

about the prevalence of these conditions and what is clinically a

“normal” young heart. For more information on the studies that are being

conducted you can go to the “research” section of the CRY website.

Dr Sharma tells me that CRY’s screening programme has surpassed

all expectations and has fed into crucial research benefiting all those

involved in this complicated field of medicine. CRY was first to identify

the upper limits of wall thickness and cavity size in British athletes. We

are the first organisation in the world to characterise cardiac dimensions

in adolescent athletes – knowing how to differentiate pathology from

physiology is vital for diagnosis – and the first organisation to characterise

ECG changes in athletes in a document that is now the blueprint for the

European Society of Sport Cardiology. We are also the first organisation

to look at cardiac adaptation for Caribbean athletes, as we know they

differ from Caucasian athletes in the way they adapt to exercise. The

Italian data is so important in directing policy decisions and guidelines

for screening competitive athletes. However, it is based on a sample of

Caucasian individuals. In the UK a significant proportion of people we

test will not be Caucasian.

CRY has also been pivotal in identifying the prevalence of conditions such

as Hypertrophic Cardiomyopathy (HCM) in sportsmen. This includes

recently identifying conditions such as Long QT as more common than

HCM. The CRY Centre for Cardiac Pathology has been responsible

for publishing the largest British data on the demographics and causes

of sudden death in athletes which was published recently in the Heart

Journal. Our findings are published in reputable, peer-reviewed journals

and our guidelines are now nationally and internationally recognised.

Some people have criticised CRY’s research as being mainly focused on

sport. However, it is important to understand that one of the key issues

in the debate around screening programmes is how those people with

“athletic” hearts are diagnosed. Investigating and understanding what

is “normal” for the UK and athletic populations, directly impacts on our

CRY update • Issue 49 • 3www.c-r-y.org.uk

No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means, electronic, mechanical, photocopying, recording or otherwise without prior

permission of the Editor. The Editor and Committee welcome letters but reserve the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article

or letter published does not necessarily represent the opinion of the Editor, or its Officers. Articles pertaining to health related topics are for information only. Readers should obtain advice from their

own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered as an endorsement for said product or procedure.

Newsletter from the Deputy Chief Executive Page 2

Meet our County Representative Page 4

Newsletter from the Chief Executive Page 5

Report from the CRY Centre for Cardiac Pathology (CRY CCP) Page 8

CRY Screening report Page 9

CRY Clinic launch in Liverpool Page 10

CRY Midlands Postcard Launch Page 11

Running and Skydiving for CRY Page 12

Our Fundraisers Page 14

Our Fundraisers in Northern Ireland Page 26

Raising awareness in the media Page 30

Fundraising highlights 2010 Page 43

CRY Mission statements Page 44

Inside Update 49

ability to minimise the costs of screening by reducing false positives.

False positives are those people for whom further tests are necessary

because of abnormal screening findings, but who are later found to be

clear.

Minimising false positives is an essential part of any screening

programme, not only from the cost perspective but also to reduce the

psychological impact on participants. An important change in the way

we now run ECG screenings is that we do Echocardiograms on the day

on any person showing an abnormal ECG . This further reduces the

percentage of people requiring hospital referrals for further tests. The

vast majority of those tested will be reassured after the ECG, requiring

the follow-up Echo in about 10% of cases. Another major improvement

is that every person now sees a doctor on the day, even if just to go

through the questionnaire, verify family history and establish that the

ECG is normal.

Recently CRY has taken the lead in the UK in identifying the prevalence

of cardiac conditions in young people in the general population. Our

findings are that screening young apparently healthy individuals will

identify minor cardiac abnormalities in 1% of people and potentially

serious disorders in 0.3%. i.e about 1 in 300 young people at risk. The

false positive rate for our screening programme is just over 3% - the

lowest in any screening literature.

One of the most important papers in recent years in determining

true young sudden cardiac death statistics is the recent article “The

magnitude of sudden cardiac death in the young: a death certificate-

based review in England and Wales”, Papadakis et al,. Europace, 2009.

For the first time we do not have to say “ Evidence suggests…. ” Now

when we talk about the incidence of young sudden deaths it is based

on peer reviewed evidence rather than “expert opinions” or “anecdotal

evidence”. We know these statistics are still conservative but an

important baseline of facts has now been established from which we can

work. This research was initiated by the Loveday family and developed

by our Research Fellows, Dr Sharma, Dr Sheppard and Dr Elijah Behr.

CRY will continue to progress research both in elite athletes as well as

the general population. Amongst CRY’s future aims is the identification

and precise prevalence of cardiac disorders capable of causing sudden

death in asymptomatic and apparently healthy individuals as well as

accurately assessing the cost implications of such a programme if it

were implemented at national level.

With best wishes for the New Year

Newsletter from the Deputy Chief Executive

Meet our County Representative

4 • CRY update • Issue 49 www.c-r-y.org.uk

Sue JarvisCounty Representative

for Lancashire

How do you begin to

describe the day your life

shatters? Having spent

seventeen years and

seven months loving this

beautiful girl who you

created, how do you come

to terms with the fact that

your only child will never

realise any of her dreams

and that you have to

spend the rest of your life

without the one person who gave it any meaning? Nothing I write can do

her justice or tell you what a kind, loyal, funny, happy, complex and much

loved human being she was, and how so many lives have changed since

she died.

Louise was born on 19 October 1986, a Sunday child, my only child. She

was the light of my life, the very best part of me. She was a happy, easy

baby with a sunny personality who grew into a lovely young woman with

a smile to light up a room. Louise had a great sense of fun, great style,

was tolerant of others and the jewel in our family. She once told me that

although she had many friends I was her best friend and we were more

like sisters than mother and daughter. She put her heart into everything

she did; from Brownies to ballet, from piano lessons to gymnastics.

When Louise transferred to high school she really began to flourish. On

the school committee, as Sports Captain and Deputy Head Girl, she

gave her all and was repaid with excellent GCSE grades. Her English

teacher was so impressed with her work that she asked Louise if she

would donate her books to the school so that she could show other

students how to write. She had a full and active life and I thank God

that she was able to experience all that she did because her life was so

tragically cut short. As the head teacher of her school said to me, ‘Louise

flew twice as high for half as long’.

Louise died on Tuesday 1 June 2004. She had a part-time job in the

evenings at a local hotel and had gone to bed for a rest before starting

work at 6pm. Before she went to lie down, Louise came into my bedroom

and we lay on the bed in each other’s arms and had one of our girlie

chats. I remember how we laughed and hugged each other. She got up

to go to her room and when she reached the door she turned round and

said “I love you, Mum.”

At 5.15pm I went in to wake her. I took one look at her and I just knew

that she was dead, her eyes were not quite closed and her lips were

blue. I remember thinking she must have been cold to have such blue

lips. I tried to wake her but she didn’t respond. I screamed for Ken,

my husband, and he came rushing into the room. As I rang for an

ambulance, Ken began compressions. Then she was rushed to hospital

where the doctors continued to work on her but she was pronounced

dead at 7.08pm. Spookily, this was the same time that she was born.

The funeral was held on a sunny

day in a tiny village church

nestling on the edge of the

Pennines and everyone wore

pink. Six of the boys in her

group wore matching pink shirts

and ties, with pink roses in their

buttonholes, as they carried her

into church. All the flowers were

pink except for mine, which were

yellow, because she was my

golden girl, the sunshine of my

life. At the hotel where she had

worked we drank champagne

and celebrated a life that, although

short, was rich and full and has given us so many wonderful memories.

We then had to wait five months for the inquest. This gave us a verdict

of ‘natural causes’ but we have since found out that Louise died of long

QT (LQT), variant 3. I was given the address of CRY from a friend. After

receiving their literature, I arranged to go to the Heart Hospital in London

as part of CRY’s research into inherited arrhythmia. I have found that I

am a carrier of LQT but I have it only slightly, whereas Louise was very

severe. Yet it is something I had never heard of and certainly never

suspected.

Time has gone by in a blur. There are so many times when I forget that

she’s dead and after something particularly good or bad has happened,

I think “I must tell Lou about that” or “I wonder what Lou will think of this.”

Even after almost three years, I can’t really accept that she’s gone. I talk

to her every day, have worn

her wishbone ring since the

day she died and carry a lock

of her hair to keep a part of her

always close to me. We have

tried to keep her name alive by

having an award presented at

her school. The Louise Worth

Memorial Shield for Citizenship

has been presented three

times now and we also

present the Louise Worth Cup

for Community Action at the

college she attended.

I feel privileged to be asked by

CRY to be a County Representative. I hope that I can help to make as

many people as possible aware of the ‘silent killer’ that has claimed so

many young lives. I want to do my best to prevent other families having

to live through the nightmare that follows the loss of a child or sibling.

I want to raise enough funds to provide equipment to test other young

people and allow them to live the lives they were meant to have.

Louise Worth

CRY update • Issue 49 • 5www.c-r-y.org.uk

Newsletter from the Chief Executive

Alison Cox MBE CRY Founder & Chief Executive

The first quarter of 2009 was a kaleidoscope of activity, with a number of outstanding raising awareness events taking place.

These included a GMTV interview, two

new MPs joining the Cardiac Risk in the Young All Party Parliamentary

Group (APPG), two new patrons joining our team and, under Andy

Scott’s management, Brentford FC confirming they will again be using

the CRY logo on their away shirts – an initiative that a number of

other football clubs are now considering. Support events taking place

included a Surgery Supporters Network (CRY SSN) meeting and the

first of our Regional Bereavement Support Days, while in March we

launched our Midlands postcard.

With regard to the legal rights of the bereaved, there was considerable

progress made with the Coroners and Justice Bill. The review into this

service was opened under the chairmanship of Tom Luce in 2003. He

declared that “the systems in England, Wales and Northern Ireland,

for the certification of most deaths by doctors and the investigation of

others by coroners, have been seriously neglected over many decades

and have been subjected to much public scrutiny due to a succession

of high profile scandals (Shipman, Allitt, Bristol and Alder Hey). The

Report posits that two principal changes are essential, namely, a

restoration of public confidence in the death certification process and

the greater responsiveness of coroner services to families.”

When the first draft of the Bill was published in 2006 it was unequivocally

rejected by every organisation consulted - most significantly by the

coroners themselves. Following the appointment of Bridget Prentice

as Parliamentary Under Secretary of State for the Ministry of Justice

Surgery Supporters Network meeting Epsom, 11 January

2009 opened with another SSN meeting for ‘fit and healthy’ young people

diagnosed with potentially fatal heart conditions. Although we were

January

in 2007 and Minister responsible for Coroners reform policy, steady

progress started to be made, with CRY becoming increasingly

involved in the development of the innovative Bereavement Charter

specifically addressing the needs of the bereaved. The revised draft

of the Bereavement Charter highlighted changes made as a result of

the consultation which took place in 2008.

The Coroners Bill was formally introduced in Parliament on January

14 (see items below) and, after completing its journey through the

House of Commons following Report Stage and Third Readings in

March, it was finally introduced to the House of Lords for further

debate this summer with the Lords Report stage scheduled to begin

in the autumn.

A review of the Coroners Service was well overdue and I am delighted

that the needs of bereaved families affected by young sudden

cardiac death (YSCD) will now be properly addressed by a well

regulated service that gives bereaved families the right to information

and proper investigation of the cause of death. A key provision is

the introduction of an effective appeals system. However, it is

imperative that those it is intended to serve are given the opportunity

to evaluate the process they have experienced. This will ensure that

all necessary further improvements will be implemented. Exactly how

this will be done still needs clarification.

The declared aim of the Coroners and Justice Bill is to deliver more

effective, transparent and responsive justice and coroner services

for victims, witnesses, bereaved families and the wider public. After

six years of investigation, deliberation and reconstruction by an

enormous range of contributors, the coroners service will hopefully

soon prove to be one in which all those affected can have full

confidence.

expecting eight people to attend the meeting, on the day four young

people received group counselling in the morning and answers to the

many medical questions they asked of Dr Sanjay Sharma in the afternoon.

All four were new members and were surprised at how cathartic it was to

be able to share their experiences.

Volunteers Information Day Epsom, 17 January

This was a new event organised by my PA, Maria Carter, to bring together

our CRY representatives so that the year ahead could be discussed.

Presentations from Director of Screening Dr Steve Cox, our Fundraising

Manager Rebecca Zouvani and myself were given to provide an overview

of our aims for the forthcoming year.

Meeting with the Parliamentary Under Secretary of State Ministry of Justice, 20 January

On the day that the Coroners and Justice

Bill was introduced into Parliament (January

14) CRY was invited to a meeting with

6 • CRY update • Issue 49 www.c-r-y.org.uk

Newsletter from the Chief Executive

February

Bridget Prentice, the minister responsible for Coroner reform policy, to

discuss with her the main coroner provisions in the Bill. Unfortunately,

I was unable to attend the meeting and was very lucky that our County

Representative for Kent, James Brown, was able to attend at very short

notice. He was able to highlight my particular concerns about the appeals

service, and suggested that this should be extended from 60 working

days (three months) to a minimum of two years. James, who lost his

wife Katrina in 2005, was able to cite his own experience of how it took

him at least 12 months to even begin to consider anything beyond the

immediate emotional issues. This point was immediately supported by

others attending and noted by the Coroners’ team.

Surrey Heart & Stroke Masterclass Reigate, 20 January

Rosemary Attridge spoke to this group about the impact of losing her

son Stuart and CRY’s role in providing information and support. I also

attended the event which focused on arrhythmias and sudden cardiac

death, to explain CRY’s aims and what we have so far achieved to the 67

doctors and nurses who were present, while expert cardiologist Dr Elijah

Behr updated delegates on clinical information and recent research.

Crispin Blunt MP joins the Cardiac Risk in the Young All Party Parliamentary Group (APPG) 27 January

Crispin Blunt MP (Conservative,

Reigate) became the 112th

member of the Cardiac Risk in the

Young APPG.

Cardiac Risk in the Young APPG Annual General Meeting

4 February

Kevan Jones is the MP who established

the CRY APPG following the sudden death

of Levon Morland, the son of his friend Jeff

Morland. Our postcard campaign too, has been

Kevan’s idea, and also the silhouette display

that has accompanied all launch events for

the new postcards. After being promoted to

Parliamentary Under Secretary of State and

Minister for Veterans on 5 October 2008,

Kevan unfortunately had to relinquish his

position as chair. The MPs who attended the

recent AGM for the Cardiac Risk in the Young

APPG voted for the new chair. This is Roger

Gale, the Conservative member for North

Thanet, who has been a CRY supporter since

2000. For more information about the APPG’s activities go to www.c-r-y.

org.uk/parliament.htm/appg

CRY ‘Life years lost’ campaign on GMTV

13 February

Jack Mason was a junior Karate

International when his dad saw an

article in the Daily Telegraph about

CRY’s screening programme. Jack

was screened and found to have

asymptomatic Wolfe-Parkinson-

White syndrome (WPW). He was

given ablation and is now a member

of CRY’s Surgery Supporters Network. Jack and I were at GMTV studios

for a 6.45am appearance to talk about CRY and our Valentine’s Day ‘Life

Years Lost’ campaign to highlight the tragic legacy of YSCD for those left

behind – the thousands of young bereaved men and women robbed of the

chance to grow old together with their partners, and those parents who will

never see their child grow up. Spearheaded by our consultant cardiologist,

Dr Sanjay Sharma, the campaign was unveiled in the week leading up to

Valentine’s Day. We asked our Patrons and celebrity supporters to post a

‘love letter’ on our website telling us why CRY has a special place in their

heart and how they value our work in raising awareness and supporting

families across the UK. To read what they said, go to www.c-r-y.org.uk/

valentine.htm

Ben Brown becomes CRY Patron 16 February

The BBC’s Ben Brown, a friend of

journalist Paul Clabburn whose son

Tom died suddenly in 2007, is one of

the Corporation’s most experienced war

correspondents and, with CRY Patron

Emily Maitlis, hosts BBC News 24. Ben

is pleased to join our growing list of high

profile Patrons and says “CRY has a

place in my heart because too many people are being taken from us in

the prime of their lives and we must do everything in our power to reduce

the number of these tragedies.”

Coroners and Justice Bill Committee Oral evidence session Portcullis House, Westminster, 3 February

As all roads were impassable and all trains cancelled after the notorious

snowstorm that brought London and most of the Southeast to a grinding

halt, it was with more than a smattering of relief that I found a kind cabbie

who was happy to try to deliver me to Portcullis House for this very

important meeting.

Among many amendments to the Coroners and Justice Bill 2008/09 were

changes that will affect bereaved people who are required to undergo

complex and distressing inquests or inquiries. I am particularly interested

in the progress of the Bereavement Charter in which the Justice Minister,

Bridget Prentice, has taken such interest – indeed, her closing comment

at this high profile, televised session was to enquire as to whether CRY

was happy with the charter. For more information about the bill go to

www.c-r-y.org.uk/coroner_bill_reform_2009.htm

Nick Easter becomes CRY Patron 27 February

Harlequins and current

England Rugby Union

player Nick Easter became

a CRY Patron. Nick says

it is a privilege to support

CRY as a Patron. “As a

Harlequins and England

rugby player, I am well

aware of the importance of

cardiac screening in sport

and will help in whatever way I can to raise awareness and support CRY’s

campaign to reduce the terrible number of young sudden cardiac deaths

that we hear about every year.”

Sally Keeble MP joins the Cardiac Risk in the Young APPG 27 February

Sally Keeble MP (Labour, Northampton

North) became the 113th member of

the Cardiac Risk in the Young APPG.

Postcard Campaign moves on to Midlands

13 March

CRY’s ‘12 a week’ postcard campaign continued with the launch of the

new Midlands postcard and the highlighting of young sudden death

tragedies with our 12 silhouettes which accompany all these events.

As with previous launches in the Southeast

and Northern Ireland, this one also attracted

significant coverage from the BBC, ITV and

numerous local newspapers and radio, with

several CRY families in the region giving

interviews. Dr Tony Hillier is a local GP who

has experienced two sudden deaths in his

village – one being that of his daughter,

Laura, aged only 21, in 2003. He spoke

at the launch about the impact of YSCD

on him as a dad and as a GP, and on the

community. After the event Tony and his wife Joan (one of our team

of Bereavement Supporters) gave an extensive and moving interview

to Anglia TV News at their home from which they received a great deal

of feedback. This was carried out on Mother’s Day which was also Tony

and Joan’s 34th wedding anniversary. The interview had a significant

impact, becoming the main headline news for the day with a 20 minute

slot on the 6pm news. As with many others attending, Joan and Tony

also gave interviews to local papers and radio stations. There are

more details about the launch at www.c-r-y.org.uk/midlands_postcard_

launch_2009.htm

Scotland Regional Bereavement Support Day 29 March

CRY Bereavement Supporters Amanda Barker and

Maralyn Bowen and a small group of three families

attended CRY’s first Regional Bereavement Support

day in Scotland. The event, held at the beautiful

Norton House Hotel at Ingliston in Edinburgh, was

emphatically endorsed as hugely helpful by those

that came. With those gathered split into two small

groups, all of us there to help felt, perhaps because

of the luxury of so much time to spend with them,

that it was one of the most successful events we

had ever had – unquestionably and absolutely

worth every moment of the long trip from London

to Edinburgh to be able to support our families in

Scotland.

Inherited Cardiovascular Conditions Conference Leeds, 12 March

Dr Campbell Cowan, National Clinical Lead for Chapter 8, organised this

extremely well-attended event for medical personnel interested in the

development of services in this complex field. I was asked to speak about

the crucial role of bereavement support and the service CRY provides to

help meet the needs of the bereaved.

March

Brentford Football Club pledge continued support for CRY 20 February

Brentford FC, the Coca Cola League

Two champions managed by CRY

Patron Andy Scott, have chosen

to donate their secondary shirt

sponsorship for 2009/10 to CRY.

This means that our logo will appear

on the Brentford ‘away shirt’ for the

second consecutive season and

this time in League One. Congratulations to the club on their success

and especially to the manager who was also awarded London Football

Manager of the Year in 2008 – our Andy!

CRY update • Issue 49 • 7www.c-r-y.org.uk

Newsletter from the Chief Executive

The average turnaround time for referrals at the CRY Centre for Cardiac Pathology during January, February and March 2009 have been well inside our target of 14 days.

Each month we received ten referrals, an increase on numbers from this

period last year, and each case was examined and completed in a short

period of time.

As well as clinical work Dr Sheppard organised a full day teaching

session in cardiovascular pathology for first year trainees based at the

Royal Brompton Hospital. In February she was invited to Mumbai, India,

as a guest speaker for the Pathological Association of India meeting. In

March Dr Sheppard was invited to be a guest speaker at the Northern

Cardiac Network Meeting in Leeds.

Research

In January, research generated by the CRY CCP was presented at the

Annual Meeting of the Pathological Society of Great Britain and Ireland

in London. Abstracts were accepted for poster presentation (‘Setting

up of a Pathology Laboratory to Investigate Sudden Cardiac Death.

Results from the first year of CRY Centre for Cardiac Pathology’. Sofia

V de Noronha, Kathrin Hault, Jemma Wells and Mary N Sheppard,

Pathological Society of Great Britain and Ireland, London, January

2009) and for an oral presentation (Non-Atherosclerotic Coronary

Artery Pathology Responsible for Sudden Cardiac Death. What every

pathologist should know’. Sharleen Hill, Pathological Society of Great

Britain and Ireland, London, January 2009).

In March, at the prestigious Annual General Meeting of the United States

and Canadian Academy of Pathology (USCAP) held in Boston, USA, the

department had four abstracts accepted for poster presentations.

Top Left and Right: Dr Mary Sheppard and research Fellow Sofia de Noronha, Middle Right: Dr Sheppard speaking at the Pathology Centre’s launch. Bottom Right: The CRY Centre for Cardiac Pathology

Report from the CRY Centre for Cadiac Pathology (CRY CCP)

8 • CRY update • Issue 49 www.c-r-y.org.uk

On 17 January we travelled to Pontypridd for the Cardiff clinic at the University of Glamorgan. We screened 102 people on the day, funded by the Memorial Funds of Gareth McDonald and Mark Young. The first schools screening of the year took place at Clacton School on 13 and 14 January, funded by the Andrew Gard Memorial Fund. On 21 January we screened the England Senior netball team. Eight days later we screened the England Under 20 rugby team, and the Under 18s the day after that. At the end of the month (31 January) we held our regular Colchester clinic.

The first week of February saw us back at the Rugby Football Union

(RFU) to screen the England rugby squad. The Isle of Man clinic took

place immediately after (7 and 8 February) at the Hilton Hotel where we

screened 333 people over the weekend. During the second week of the

month we travelled to Newcastle to screen 110 children at Dame Allan’s

School. Our Northern Ireland clinic took place over 13-15 February at

the University of Ulster. During the last week of the month it was another

school screening, this time at Stowe School in Buckinghamshire.

At the beginning of March we were at Eton College where we screened

almost 200 boys. Next, we travelled to Preston for the Lowe family

screening held at Myerscough Agricultural College on 6 and 7 March.

We had an excellent turnout of staff and students as well as the general

public and screened a total of 317 people over the weekend. The West

Midlands family screening, held in memory of Paul Davies, took place

on 15 March at the Stourbridge Medical Centre in Birmingham, where

we screened 137 people. Next was another schools screening, this time

at King’s Bruton in Somerset (11 March) and Millfield School, also in

Somerset, the day after that. On 20 March we returned to Stowe. The

next day we screened the England Under 21 netball squad. Finally, at

the end of the month our Northern Ireland clinic took place at Strabane

(28 March) and Castlederg (29 March).

Left: Cardiff Clinic, Above Right: Isle of Man Clinic

CRY Screening report

CRY update • Issue 49 • 9www.c-r-y.org.uk

CRY’s Liverpool clinic was officially opened at Liverpool John Moores University (LMJU) on Monday 6 April by The Rt Hon Andy Burnham MP, then Secretary of State for Culture Media and Sport. The event in the University’s CETL Building was well attended, with guests including CRY cardiologists and many other health professionals, CRY families, politicians and media representatives.

The event marked the latest chapter in the charity’s pioneering screening programme. In addition to the address from the Secretary of State, the guests heard from those involved with LJMU – Professor Greg Whyte (Consultant to the CRY Board and Professor of Applied Sport and Exercise Science), Sir Malcolm Thornton (Chairman of the Board of Governors) and Professor Tim Cable (Director of the School of Sport and Exercise Sciences). Dionne Young and Maureen Marshall, the mothers of two promising young footballers both tragically lost to sudden cardiac death, spoke movingly of their experiences.

Professor Greg Whyte gave an electrocardiogram (ECG) demonstration to those assembled. He discussed the role of the ECG, how it works in recording the electrical rhythm of the heart and why this is so important as a screening tool. Professor Keith George, Professor of Exercise and Cardiovascular Physiology at LJMU, demonstrated how the echocardiogram (ECHO) works. While carried out routinely in elite sport, ECHO testing also plays an instrumental role in ECG-only screening, as one in ten people tested by CRY will show ECG abnormalities that require follow-up with an ECHO to confirm that there is not a problem.

Dr Lisa Hodgson, previously Head of Sports Medicine, Performance and Coaching Department at the Rugby League (RFL) spoke about the importance of elite athletes being screened and will be supporting the development of our initiative to screen GB athletes leading up to 2012.

The closing address was given by CRY Chief Executive Alison Cox.

There was extensive media coverage for this event including BBC, ITV, a number of radio stations and press articles. For more information on the clinic go to the CRY website www.c-r-y.org.uk/liverpool.htm

Launching at LJMU

CRYClinic at Liverpool John Moores University

Dr Lisa Hodgson

Dionne Young

Maureen Marshall

Alison Cox

Rt Hon Andy Burnham

10 • CRY update • Issue 49 www.c-r-y.org.uk

CRYMidlands Postcard Launch

Bereaved families, who have been affected by young sudden cardiac death, from the West Midlands, Derbyshire, Northants, Warwickshire, Leicestershire and Nottinghamshire, attended the launch of our Midlands postcard, the third in a campaign highlighting new statistics (ONS 2006). Twelve silhouette cut-outs, representing these weekly tragedies, were used to visually demonstrate this. Those attending were hugely successful in getting major news coverage for the event which was filmed by ITV Midlands.

CRY update • Issue 49 • 11www.c-r-y.org.uk

Running and Skydiving for CRY

In Memory of Michael AndrewsGemma Marchant took part in the 2008 Great South Run

and raised £317 in memory of Michael.

In Memory of Stuart Attridge Thérèse Rose took part in the Adidas Women’s Challenge

2008 and raised £391.50 in memory of Stuart.

In Memory of Katrina Brown Dr James Mair took part in the Great Eastern Run 2008 and

raised £530 in memory of Katrina.

In Memory of Tom Clabburn David Hayward took part in the real Berlin Marathon and

raised £681.50 in memory of Tom.

In Memory of Gemma CollyerJames Taylor took part in the Silverstone Half Marathon and raised £1,046

in memory of Gemma.

In Memory of Neil DarbyRyan Grimshaw took part in the 2008 Great North Run and raised £180

in memory of Neil.

In Memory of Adam Drawbridge Paul Moss has now raised a total of £940.65 after taking

part in the 2008 Great North Run.

In Memory of Sebastian English Phil Simmons has now raised a total of £2,370 after taking

part in the 2008 Great South Run.

In Memory of Mark FutcherChristopher Burnett took part in the 2008 Great South Run and raised

£565.

In Memory of Mark GallacherFiona MacDonald took part in the 2008 Great Scottish Run and raised

£365.

In Memory of Liz GentRosalind Emslie has now raised a total of £841.20 after taking part in the

2008 Edinburgh Marathon.

In Memory of Craig GolightlyAmy Colpitts took part in the 2008 Great North Run and raised £580 in

memory of Craig.

In Memory of Reece GoodmanMichael Harrison took part in the Lady Godiva Half Mara-

thon and raised £128.

In Memory of Oliver GriffinGareth Ilbery took part in the Windsor Half Marathon and raised £3,204

in memory of Oliver.

In Memory of Nick GuildElizabeth Guild took part in the Silverstone Half Marathon and raised £185

in memory of Nick.

In Memory of Leanne Haddrell Becky Dovey took part in the Cardiff Half Marathon and

raised £1,392 in memory of Leanne.

In Memory of David HarropJonas Jaanimagi took part in the 2008 British 10k London Run and raised

£880 in memory of David.

In Memory of Kieran HyattIsobelle Robinson took part in the 2008 British 10k London Run and

raised £540 in memory of Kieran.

In Memory of Paul LeachEmma McGough raised a further £105 after taking part in

the Middlesbrough 10k Run.

In Memory of Jack Maddams Wayne Cripps took part in the 2008 Great South Run and

raised £259.

• Simon Hancock raised a further £850.20 after taking

part in the Leicester Half Marathon.

In Memory of David MaidmentPeter Maidment raised a further £145 after taking part in the 2008 Great

South Run.

In Memory of Laura Moss Verity Hancock took part in the 2008 Great North Run and

raised £415 in memory of Laura.

In Memory of Duncan MulhollandJames Littlewood took part in the Royal Parks Foundation Half Marathon

and raised £755.

12 • CRY update • Issue 49 www.c-r-y.org.uk

Running and Skydiving for CRY

In Memory of Dominic O’Loughlin Kim Nurse took part in the 2008 Great North Run and

raised £443 in memory of Dominic.

In Memory of Pete Reynolds Steve Hacker took part in the Bristol Half Marathon and

raised £100.

• Natalie Perumal has now raised a total of £587.50

after taking part in the Bristol Half Marathon.

In Memory of Martyn Simpson Cheryl Smith took part in the Adidas Auckland Marathon

and raised £155 in memory of Martyn.

In Memory of Sarah SimpsonWill Simpson took part in the 2008 Great North Run and

has raised a total of £1,603 in memory of Sarah.

In Memory of Gareth Llywelyn Thomas Ion Davies has now raised a total of £623.50 after taking

part in the Cardiff Half Marathon.

• Stephen Nutt raised a total of £250 after taking part in

the Cardiff Half Marathon.

In Memory of Matthew ThomsettTony Gillman took part in the 2008 Great South Run and raised £660.50

in memory of his friend Matthew.

In Memory of Kevin Wilson Clare Shearing took part in the Adidas Women’s Challenge

2008 and raised £144.25 in memory of Kevin.

• Charles Arrowsmith took part in the Royal Parks Foundation Half

Marathon and raised £636.61.

• Vicki Balderston took part in the 2008 Great South Run and raised

£540.

• Rajarshi Banerjee took part in the Royal Parks Foundation Half

Marathon and raised £542.29.

• Lorraine Cox took part in the Royal Parks Foundation Half Marathon

and raised £145.

• Richard Hallt from Chiltley Place Lodge forwarded a matched giving

donation of £250 from his employer in respect of the Royal Parks

Foundation Half Marathon.

• Mr Steele Harken took part in the 2008 Great North Run and raised

£310.

• Phillip Iverson took part in the 2008 Great North Run and raised

£407.50.

• Anna Lagan took part in the 2008 Great North Run and raised £963.

• Anna McIlreavy took part in the British 10k run and raised £210.

• Ross Mandeville took part in the Royal Parks Foundation Half

Marathon and raised £220.

• Andrew Markham took part in the 2008 Great North Run and raised

£170.

• Davin Miller took part in the real Berlin Marathon and raised £190.

• Lucy Moses took part in the 2008 ‘Run to the Beat’ Half Marathon

and raised £265.

• Jack Oakshatt has now raised a total of £365 after taking part in the

2008 Great North Run.

• Samantha Potts took part in the 2008 Great North Run and raised

£140.

• David Prince took part in the Royal Parks Foundation Half Marathon

and raised £220.

• Imogen Pudduck took part in the Royal Parks Foundation Half

Marathon and raised £1,665.

• Lucy Sefton took part in the 2008 Great North Run and raised

£375.20.

• Martin Upton took part in the 2008 Great South Run and raised

£100.

• Hazel Westwood took part in the Birmingham Half Marathon and

raised a further £297 for the West Midlands ECG Fund.

• Nicholas Witley took part in the Royal Parks Foundation Half

Marathon and raised £230.

• Nilser Yetkil took part in the Royal Parks Foundation Half Marathon

and raised £275.

In Memory of Jessica AllanIain Allan sent in a donation of £100 in respect of the skydive held on 11

August in memory of his daughter, Jessica .

In Memory of Stewart GardnerKaren Gardner has raised a total of £1.087.01 after taking part in a sky-

dive in memory of Stewart.

In Memory of Jade JohnstoneToni Newton took part in a tandem skydive and raised £145

in memory of Jade.

• Claire Thomason took part in a tandem skydive and

raised £145 in memory of Jade.

In Memory of Charlie MorettesAllison Spalding sent in a further £425 for Samantha Sy-

mons’ skydive.

In Memory of Craig (Daniel) Powell Rebekah Barnard took part in a tandem skydive and raised

£1,568.30 in memory of Craig.

Saira Naeem took part in a tandem skydive and raised £125.

CRY update • Issue 49 • 13www.c-r-y.org.uk

Our Fundraisers

In Memory of Marcus Armstrong Tony Armstrong sent in a further donation of £520 which

was raised at the quiz night held in Marcus’s memory by

the Cliff Hotel in Harwich.

In Memory of Stuart Attridge CRY County Representative

Rosemary Attridge gave a talk about

CRY to the Horley Lions on 22

January. After the talk, Peter Moxley,

Lions’ President, presented her with a donation of £250.

In Memory of Andrew BallAlan Weavin raised £781.40 from his annual Father

Christmas Grotto and lights display.

In Memory of Johnny Barker“Please find enclosed a cheque for £1,600 donated in memory of our son

Johnny who died 2001, aged 20. We were motivated to collect donations

from our shooting clients after attending James Lancaster’s charity shoot

at Bisley last summer, which we thought was amazing.” Stephen and Julie

Barker and eldest son Sam

In Memory of Cecilia Barriga [Photo: ‘Sophie Bates abseil’] Sophie Bates sent in a

further donation of £140 for her sponsored abseil. She has

now raised a total of £270 in memory of Cecilia.

In Memory of Kasia Ber Jayne Lavery arranged Christmas fundraising at the

Tunstall College of Science. As an alternative to staff

sending Christmas cards, students made a display and

staff paid to write a Christmas message. They raised

£138.25 in memory of Kasia.

• A rugby match in memory of Kasia took place on 28 December at

Horden Rugby Club and raised £508.62.

• Diane Ber sent in donations totalling £124. Of this, £94 came from

a collection tin at Dr Chandy’s surgery and £30 from her local dental

surgery.

In Memory of Steven BickerGary Bicker raised £8,196

for ‘Dave and Gary go

to Peru’, the fundraising

Peruvian trek they

undertook in memory of

Gary’s younger brother Steven.

In Memory of Mathew Blease Karen, Steve and Mark Blease sent in a donation of £500

from the Catuvellauni Masonic Lodge and £80 from the

Hertfordshire Referees’ Association.

In Memory of Graeme Blenkinsop “I am very pleased to enclose a cheque for £100 for

Graeme’s Memorial Fund. This includes donations from our

work colleagues and money in lieu of sending Christmas

cards to our close family, friends and work colleagues.” Mrs

Jan Blenkinsop

• Jan and Paul Blenkinsop sent in a further donation of £403.25 in

memory of their son Graeme.”Kevin Ebbs again kindly organised

a quiz at ‘The Ship and Castle’ Public House on New Year’s Day

2009 to raise funds for CRY and SCOPE. The total raised was a

fantastic £806.50. There was a full house, in fact standing room only,

and all were lively, which was surprising as it was the day following

celebrations for the New Year! There was much banter between

teams and it became very noisy at times. Much fun was had trying

to answer the very weird and wonderful questions asked by Kevin.

A raffle was held at the end of the quiz with lots of donated prizes,

including a very exclusive hamper, a family ticket to visit the Isle of

Wight Zoo, a giant teddy bear and much more. We cannot thank

Kevin and the patrons of The Ship and Castle enough. Hopefully this

donation will go a little way in saving a young life.”

• Miss L Bryant sent in a donation of £100 in memory of Graeme.

In Memory of Ian Bowen Maralyn Bowen has sent donations totalling £1,034 raised

by Kenny’s ‘Boxing Day Dip’.

In Memory of Wesley BrayJo Fix forwarded a donation of £100 in lieu of floral tributes in memory of

Wesley, a financial advisor who worked with Openwork staff.

• We have received a donation of £100 from A Woodley in memory of Wesley.

In Memory of Katrina BrownACE INA Services UK sent in a matched giving donation

(£1,000) in respect of Paul Slater and the Lands End to

John O’Groats Cycle Ride.

• James Brown (CRY County Representative

for Kent) and his friends Tony, Nigel and

Graham have raised a total of £24,456.60

since taking part in the Lands End to John

O’Groats Cycle Ride in memory of Katrina.

In Memory of Robert BurnsThe Co-operative food store, Harworth, collected £700 in

memory of Robert.

In Memory of Graham Button “Please find enclosed a cheque for £102, being the amount

we collected for carol singing on 18 December 2008.

Graham Button’s daughter Lauren, aged 8, went carol

singing with my daughter Phoebe, aged 9, and myself.

Everyone we sang to was very kind and felt a lot of sympathy

for Lauren, having lost her father at such a young age.” Lisa Bennet

14 • CRY update • Issue 49 www.c-r-y.org.uk

Our Fundraisers

• “I have great pleasure in enclosing cheques totalling £1,200 in

memory of my husband Graham Button. The money was kindly given

by my dear friend Liz Hughes and her work colleagues, who annually

give the interest they raise from their Christmas shopping savings

to a charity of their choice. This year they have kindly chosen CRY.”

Alison Button

In Memory of Michael Cadman“This donation is being made in recognition of the efforts of the Rockwater

1 Team in raising money for CRY by taking part in the cycle ride in Italy.”

Robin Davies, Subsea 7 UK Charities Committee sent in a donation of

£500.

In Memory of Tom ClabburnThe Maybury Hillside Women’s Club raised £200 in memory

of Tom. The cheque was collected by CRY supporter Eddie

Farrow.

• Ms Paula Wells sent in a donation of £400 on behalf of the

directors and staff at Explore Worldwide Limited.

In Memory of Harry Clarke“We tragically lost our beautiful son, Harry, in May 2006

when he was 11 years old. Harry collapsed and died

running cross country at school. His cause of death was

diagnosed by Dr Mary Sheppard as anomalous coronary

heart circulation. Please find enclosed a cheque for £200. My

lovely friends at work (Adlington Primary School) collected money in

Harry’s memory rather than send Christmas cards. This also includes a

donation from Harry’s Memorial Fund to help you to continue the wonderful

work you all do at CRY. With very best wishes and continued success in

2009.” Lewis, Lisa and Jack Clarke

In Memory of David CochraneThe Rotary Club of Whitburn raised £2,535.90 in memory of David.

In Memory of Adam CorshamGillian Connal forwarded a matched

giving donation from Deloitte LLP for

£500 in respect of

her participation in

the Boston Rowing

Marathon 2008.

• Ivan Wong took part in the Boston Rowing Marathon 2008 and raised

£1,448.

In Memory of Nicholas CottamWe have received a donation of £277.92 in lieu of floral tributes for the late

Mr Nicholas Cottam.

In Memory of Andrew Croxson“Please find attached a cheque for £300 from our suppliers, Carry

Cargo International Limited. Carry Cargo, instead of giving customers a

Christmas gift, enter all customers into a raffle and ask that the winners

of the raffle donate the prize to a registered charity. Croxsons were the

lucky winner of the first prize of £300 and obviously we chose to donate

this to CRY in memory of Andrew James Croxson, who died at the age of

24 from cardiac arrest.” Faye Blayney, for James Croxson

In Memory of Neil DarbyHeather Darby forwarded a donation of £350 from Jim and Angela

McNeilly in respect of their participation in the Manchester to Blackpool

Bike Ride.

• Heather sent in further donations totalling £1,325 in memory of Neil.

• Julie Smith sold packs of ‘Reindeer Dust’ and raised £104 in memory

of Neil.

In Memory of Joel Davies “On 20 December 2008 John and I celebrated our Golden

Wedding Anniversary (50 years) and requested ‘no

presents but donations to CRY’. As a result we enclose

cheques totalling £450 in memory of our dearest grandson,

Joel Davies, who died on 9 June 2005. These cheques were

donated by our friends, family and neighbours who knew and

loved him.” John and Margy Stubbs

In Memory of Neil Desai

“Please find enclosed a cheque for £285 raised by friends of mine and

clients of my small hairdressing salon. It was raised by a small raffle,

collecting 5p coins and filling Smartie tubes with 20p coins.” Anne Rawden

In Memory of Luke DickinsonPat Dickinson sent in donations totalling £450. Of this, Rochdale Job

Centre donated £150 from a Christmas raffle.

• Pat sent in a further donation of £180 from friends and colleagues

at Rochdale Job Centre. “My dear friend and constant support, Vera

Jess, has just retired and asked for donations in memory of Luke

rather than presents.”

In Memory of Christopher DixonPenelope Peat raised

a further £220 after

completing a walk

from Swanage to

Corfe in Dorset. This

makes a total of £240. The

photograph from the day was sent

in by Aimee Norman.

• Karen Dixon raised £145 in memory of Christopher.

In Memory of Martyn Dobson“Please find enclosed cheques to the value of £520 as a donation to your

cause. This is in memory of our son, Martyn (30), who died suddenly

just before Christmas from sudden adult death syndrome whilst cycling in

Richmond Park. Next to his work in graphics software, cycling had been

his passion from an early age. He won many trophies for road and track

racing with his club, the Cleveland Wheelers.” Mr and Mrs A M Dobson

CRY update • Issue 49 • 15www.c-r-y.org.uk

In Memory of Adam DonnellyJulie Donnelly sent in cheques totalling £315: “A £100

donation from my mother raised from a charity stall at a

boot fair, £100 from my aunt from the sale of second hand

books at various functions and a £115 donation from my

dear friends Howard and Teresa Teague, who held a party

on New Year’s Eve 2008. A game of Wacky Races was played in which

everyone had to pay to play and the fee was donated to CRY”.

In Memory of Phillip ElliottHelen Elliott sent in a donation of £100. “This money was raised by my

daughter at her 21st birthday party, in memory of her dad, Phillip Elliott,

who died suddenly last year.”

In Memory of Sebastian EnglishSamara Hammond raised £9,100 after completing the

Three Peaks Challenge 2008.

• Mr and Mrs Owens sent in a Christmas donation of

£100 in memory of their great nephew Sebastian.

• Richard Kimber sent in a donation of £863.39. “I and two other

members of our staff, plus six of our pupils, completed a charity cycle

ride last summer from Land’s End back to our school. The terrain

took in many major hills and was a total of 412 miles.”

• Alastair Paterson attended Haslemere Rugby Club’s children’s

Christmas party and collected three cheques on behalf of CRY.

These amounted to £2,250 in memory of Sebastian.

• AXA Framlington sent in a donation

of £1,000.

• Nigel Munn has raised a further

£100 after completing the London to Paris Cycle Ride.

• “On the anniversary of Sebastian’s death, a group of his friends from

Amesbury and Lord Wandsworth met at Pizza Express in Haslemere

and raised £150.” Tony Prigge

In Memory of Andy ForbesWe have received a donation of £402.50 for Andy’s Memorial Fund in lieu

of floral tributes in memory of the late Louise Bate.

In Memory of Joanne FotheringhamWe have received a donation of £181.60 for Joanne’s

Memorial Fund in memory of the late Mr Nikilai (Nick)

Ivanovich Kotschujew.

In Memory of Terence Frost “Please find enclosed a cheque for £356.74 which we would like to donate

to your charity. The money was raised in memory of Mr T G Frost, my

late husband, who passed away suddenly from a heart attack on 11

December.” Mrs S A Frost

In Memory of Rhian Nadine FryCatherine Penny, Treasurer of Young Surrey Lawyers, sent

in a donation of £226 in memory of Rhian. “We are a group

of young lawyers in the Surrey area and a branch of the

Junior Lawyers Division of the Law Society. We held a very

successful quiz night on 12 February 2009 in Bar Ha Ha in Guildford.

We decided to donate the proceeds of our quiz night to CRY as one of

our committee lost her friend to sudden cardiac death syndrome and was

aware that your charity provided a lot of support to her family.”

In Memory of Vicki Furlong“Please find enclosed a donation of £100 collected from the Sleep

& Respiratory Laboratories and the Research Nurses team here at

University Hospital Aintree Hospitals NHS Trust. We have collected this in

memory of our colleague, Vicki Furlong, who sadly passed away suddenly

on 5 October 2008.” Marie Pearce

• “Please find enclosed a cheque for £250 which has been donated

in memory of our daughter, Mrs Victoria Furlong, who died suddenly

on 5 October 2008 from what is thought to be sudden adult death

syndrome. This money has been raised locally from a charity event.”

Andrew White

In Memory of Matt Gadsby The Queen’s Head held a Stars in your Eyes evening and

raised £410 in memory of Matt. Arrow Imaging sent in

a donation of £250 and £38.64 was raised from a CRY

collection box.

In Memory of Andrew Gard “Members of our administration staff nominated CRY as

our charity for this Christmas following the free screening

service you offered to our staff and students recently.

We raised money in two ways: firstly, by selling red heart

card cut-outs that students and the community could write a

message on for a loved one and then hang on our 30ft Christmas

tree. Our second idea was to create a Christmas snowman message

board for staff to send festive messages instead of sending Christmas

cards. The donations that we received have totalled £121.72” Lia Smith,

The Colne Community School and College

In Memory of Gary Giles“Please find enclosed a cheque for £120 in memory of Gary Giles who

died several years ago. It was raised during this year’s six-a-side cricket

match between the members of the Lamb Inn football team (Marlborough),

Marlborough Town Football Club and Minal Cricket Club, all of whom Gary

used to play for, together with the annual Minal Duck Race.” Jackie Cook,

Minal Sports & Social Club

In Memory of Ashley GoodwinGeoffrey Goodwin raised £265 in memory of Ashley.

• We have also received donations totalling £220.44 in lieu of floral

tributes in memory of the late Mr Edward (Ted) Goodwin.

In Memory of Oliver GriffinKate Piddington raised a further £6,003 after taking part in the London to

Paris Cycle Ride. This makes the total amount raised

£6,158, excluding the donation from Reckitt Benckiser.

• The Lower VI pupils of Truro School held a charity

event selling ‘lucky bags of sweets’ at 20p each

and raised £159.70 in memory of Oliver.

In Memory of Joe GroveAcer Nethercott raised £2,375.80 after completing the Lands End to John

O’Groat’s cycle ride.

16 • CRY update • Issue 49 www.c-r-y.org.uk

Our Fundraisers

In Memory of Leanne Haddrell “Please find enclosed cheques to the value of £2,274.54

to be paid into the Leanne Haddrell Memorial Fund. The

cheques are broken down as follows: a donation of £1,800

from Tewkesbury School. This is the school that Leanne

attended for her secondary education. They hold an annual

charity fund-raising week in which they agreed to include CRY as one

of the charities they would support in honour of Leanne. The remaining

£474.54 is made up from donations at work instead of sending Christmas

cards, money given to us from family and friends and, finally, the emptying

of a collection box at Cascades Leisure Centre where Leanne worked as

a lifeguard.” Mrs Mary E Haddrell

• Mary also forwarded a donation of £157. “The cheques are from

Mr D Minchew, a close friend whose children grew up with our son

and daughter (Leanne). He recently requested money for several

nominated charities instead of presents for his 50th birthday.

Fortunately, he kindly included CRY as one of those charities.”

• “I am pleased to enclose a cheque for £500. This is a Christmas grant

from Zurich Carers. We asked our staff for nominations of charities

they’d like to see us give a little extra to over the festive season.

You were nominated by David Haddrell and the Zurich Service

Proposition team, both of whom have been affected by this issue this

year.” Julie Williams, Zurich Carers Grants Committee

In Memory of Paul HardingLisa Cooper took part in an abseil of Coventry Hill and raised £115.

In Memory of Graham HarrisonEluned Harewood sent in a donation of £1,000. “I am

pleased to inform you that after a lot of organised chaos,

I have finally managed to collect all the money that was

raised through the football tournament held by Spiders

Football Club and the annual pantomime by Frodingham

Amateur Dramatics. The event was an eleven-a-side football tournament

and was organised by Idris Nassar, the manager of the Spiders football

team. Graham, who died in March, was a player and also my youngest

son’s best friend.”

• Pam Woodcock sent in a donation of £1,866, raised at a general

knowledge quiz evening and a Valentine Dance at the Driffield Town

Cricket & Recreation Club. “19 March 2008 was the day which

changed the lives of my family forever. Graham was just 19 years of

age when he died of myocarditis – suddenly and without warning. He

was a fit, healthy, fun-loving young man who had just started university

life in Huddersfield. He loved his football, sports and music, and loved

life itself like any 19 year-old does/should. Graham was the middle son

of my sister’s three children. We are a close family and we continue to

help each other through this painful loss which will always be there. I

realise through CRY that so many people’s lives are affected in similar

ways and that is why I decided to raise money in Graham’s memory.

I know he would be pleased and proud of us all in this respect. The

‘Valentine Dance’ was a huge success – it would have been Graham’s

20th birthday on 16 February, so all his friends and family descended

on Driffield Cricket Club to celebrate it in style by raising money to

promote CRY’s wonderful work. The amount raised represents a

reminder to his family of the warmth and affection with which Graham

was held. I thank everyone who supported these events and hope to

continue fundraising in the future. I am proud to support CRY’s two

main aims: to save young people’s lives, and to support and help those

who are affected.”

In Memory of David Harrop Jennifer Harrop raised £4,118.19 in memory of David.

• The Inner Wheel Club of Poynton raised £200 in memory of David.

In Memory of Andrew Hartlebury Stephen Higgins, Nicki Plumb and a few of her work colleagues took

part in the annual Keswick to Barrow Walk, a 40 mile walk through the

Cumbrian Lake District, in memory of Andrew Hartlebury. They nominated

CRY to the Keswick to Barrow Walk Treasurer, Mr Bill Bright, who donated

£500.

• Lee Clark sent in a donation of £142. “This was raised in memory of

Andrew Hartlebury by means of a football match between his friends,

family and work colleagues. The local leisure centre donated the

pitch for free which was much appreciated. Andrew liked a friendly

game of football so we felt it fitting to hold a game in his memory and

raise money for CRY. Also, it was whilst playing football two years

ago that Andrew passed away, so it made it more poignant.”

In Memory of Katie Hayes “I lost my sister, Katie

Hayes, in February 2007

and have since felt the

desperate need to raise

awareness of CRY in the hope

of preventing other families suffering as

we had. On the second anniversary of her

passing, I finally plucked up the courage to

make a start by posting a few paragraphs

on my work’s electronic noticeboard

explaining my story and how CRY helped

us through our bereavement, and, most of

all, your promotion of early screening. On

reading my notice, a colleague offered to

help fundraise with me and suggested the

idea of biscuit selling. It just so happened

that it was Valentine’s Day on the Saturday

of that week, and so the idea came

about to make heart-shaped biscuits to

promote CRY but both equally themed for

Valentines! With each biscuit or cake sold

we gave out laminate hearts with CRY’s

web address on them to encourage people

to view the website and then pass the heart

on to someone else. It is with thanks to so

many colleagues who pulled together and

helped make the biscuit sale possible and

contributions from family that we were able

to raise a phenomenal £312.00! Equally,

it is thanks to the good nature of the

Operations Director and Chief Executive

at my workplace, the RNLI, who allowed

this to even take place!

In contrast to the £5,111 raised by family

and friends in 2007 through Justgiving it’s

a small contribution, but my main aim had

been to bring about an initial awareness of CRY among colleagues and I

believe this achievement was a good place to start!” Tara Hayes.

CRY update • Issue 49 • 17www.c-r-y.org.uk

Our Fundraisers

In Memory of Kallista Lily-Ann Heavey Mr Thomas Heavey raised £1,373.45 in memory of Kallista.

In Memory of Dean Henderson“I am extremely pleased to enclose a cheque for £337.50

which was kindly raised by Romag Limited, Leadgate

Industrial Estate, where they held their yearly Christmas

raffle. Every year they donate proceeds from the raffle to

CRY in memory of Dean Henderson, my son, who passed

away tragically at the young age of 15 due to hypertrophic obstructive

cardiomyopathy (HCOM) in August 2003.” Deborah Anderson (Dean’s

mum)

In Memory of Laura Hillier Tony Hillier sent in donations totalling £391 in memory of

Laura.

In Memory of Lauren HollyTim Stevens raised a further £771 after taking part in the Kilimanjaro Trek.

This makes a total of £1,521.

• We have received a donation of £250 via the Alliance & Leicester

Bank in memory of Lauren.

• Lindsay Butler raised a further £1,252 from her Kilimanjaro Trek. This

makes a total figure of £3,627.

• Matthew Stevens raised a further £3,047.93 from the Kilimanjaro

Trek. This brings the total he has raised to £4,717.86.

In Memory of Jonathan HooperDiane Hooper sent in a Christmas donation of £100 in memory of Jonathan.

In Memory of Nina Horndorf DearsleyAndrew Dearsley sent in a donation of £112 in memory of

his wife Nina.

In Memory of Flora Winifred HowardWe have received a donation of £153.11 in lieu of floral tributes for the late

Flora Winifred Howard.

In Memory of Polly Hughes Elizabeth Deacon raised £255 after taking part in the

‘Ramshackle Rally’.

In Memory of Simon JohnsonEmma Hemingway held a charity cricket match and raised £100 in

memory of her brother Simon.

In Memory of Caroline Johnstone Hannah Burnel raised a further £3,419.78 after taking part

in the Fairy Fun Run.

In Memory of Claire Keen and Paul Byrne Ellen Mould, Project Coordinator, SE Controls, sent

in a donation of £141. “This money was raised during a

corporate fun day where our employees were able to

attend work in pyjamas.”

In Memory of Anthony Lancaster Steve and Pauline Jolly sent in a donation of £550 in

memory of Anthony’s grandmother, Mrs Frances Jolly, of

St Helens, Merseyside.

In Memory of Robert Lancaster James Lancaster sent in a donation of £10,000 in memory

of Robert.

In Memory of Joe Langdon “This money has been raised by parents and staff at our school from

a Christmas raffle. Joe’s mother, Jenny

Langdon, is a teacher here and has told

us of the wonderful support that she

and her family have received from CRY

after Joe’s sudden death in November

2007 during a game of five-a-side

football.” Barbara Reeves, Sherwin

Knight Community Infant School

In Memory of Charles (Charlie) Robert Headland The Centenary Methodist Church, Boston, held a Christmas

Fayre and raised £109 in memory of Charlie Headland,

who passed away ‘peacefully’ in his sleep on 6 September

2007 from dilated cardiomyopathy.

18 • CRY update • Issue 49 www.c-r-y.org.uk

Our Fundraisers

• “On 30 November we held a yard sale. Members took part by selling

unwanted items on their driveway. The cheque for £100 is the money

raised towards your worthwhile charity which has been such a support

over the last year to one of our members, Tamsin Langdon, following

the sudden death of her husband Joe. The additional cheque for £5

is from a member of the association who felt that she couldn’t take

part in the yard sale but still wanted to support the charity.” Melanie

Cox, for and on behalf of Fairview Road Residents Association

In Memory of Chloe Leach“Our beautiful daughter, Chloe Lauren Leach, collapsed

and died whilst out with friends in a local nightclub on 30

September 2008, aged 21 years. This day has changed our

lives forever. Chloe was in the third year of her Social Work

Degree and was predicted to earn First Class Honours. She

had blossomed into a lovely, caring, fun-loving and confident young woman.

She lit the room up when she walked in.” Tina, John and Alexander (Chloe’s

brother) Leach sent in a donation of £5,107 in memory of Chloe.

In Memory of Paul LeachEmma McGough sent in a donation of £113 raised by the

Finance and IT team at Fabrick Housing. “Instead of sending

out Christmas cards the team donated money and CRY was

the charity nominated to receive the collection.”

In Memory of Jonathan Leigh David Leigh sent in a donation of £635.”This was raised by my

wife last September through a flower arranging demonstration

by Rosalyn Walker held at our local parish church. Over

150 people attended, raising £1,270 which was split equally

between CRY and the St Giles Restoration Fund.”

• David also sent in a donation of £200 which was raised by members

of the family at a tombola and in lieu of sending Christmas cards, and

a further donation of £100 from staff members at Carlton Park Infant

and Junior School in lieu of sending Christmas cards.

• “The cheque is for a total of £2,000 and it’s

such a great achievement to be able to give

you this, as, three weeks before the event,

ticket sales were low and I didn’t expect to

raise anything. On the night 81 people sat

down for a full night’s entertainment. It was

an honour to sit next to Alan Kennedy all

night as I’m a huge LFC fan. The greatest

thing about the evening was the little signs of how the night would end

for us – I was born in 1981, Alan won the European cup that year with a

goal in the 81st minute, 81 people turned up for the night and 81 people

all left with smiles on their faces. I don’t think just one person was looking

down at us that night. Let me say, here’s to family and friends who are

no longer with us. They are forever in our hearts and thoughts. It’s fitting

to end this letter with the words I hold dear to me, as do many others...

You’ll never walk alone.” Gareth Brazendale

In Memory of Huw Lewis“Following a recent dinner held at the Cambridgeshire Sporting

Club in December, the members and guests donated the sum

of £1,770 via a raffle in support of CRY.” Mrs S Lewis

In Memory of Stuart Lynch“On 27 December 2007 Stuart Daniel Lynch passed away, aged 25 years.

Stuart was another unfortunate victim of cardiomyopathy. He was a very

active and sociable lad and enjoyed life to the full with a very close family and

many close friends. Since Stuart’s passing many fundraising activities have

taken place, such as a village football match, disco and raffles. It is hoped

that in the near future a bench will be placed outside our club dedicated

to Stuart’s memory. The family did, however, wish any remaining money

collected to be donated to CRY, therefore please find attached a cheque for

£950 for and on behalf of Stuart’s family, friends and club members.” Martin

Houghton, Treasurer, Euxton Parish Institute & War Memorial Club

In Memory of Niall MacLennan Fraser Stenhouse took part in the ‘Austria Ironman’ event

and raised £2,813.87 in memory of Niall.

In Memory of Amanda McCarthyPeter McCarthy sent in a donation of £1,027.80 from the

Wattisham Station Clay Target Memorial Shoot held in

memory of his daughter Amanda.

In Memory of Paul McGlynnKerrie McGlynn sent in a donation of £400. “This was

collected from my husband’s family and myself in lieu of

Christmas presents. My husband Paul died in January

2006 from ARVC.”

In Memory of Jack Maddams “Every year for Christmas my family and I, as part of giving

Christmas presents to each other, organise a donation of £25

per person to a chosen charity. This year we have chosen

CRY because close family friends of ours tragically lost their

17 year-old grandson, Jack Maddams, last year. Please accept

£275 as a donation to help with your work.” Helen Bromfield

• Roger and Janet Maddams sent in a donation of £707.36 from a

football match on 21 February in memory of Jack.

In Memory of John Marshall Maureen Marshall sent in a donation of £300 from Edge

Hill University.

In Memory of Richard Mason“I enclose a cheque for £120 in memory of my son, Richard

Mason. The money has been donated by my friends at the Angle

Ring Co. Ltd. instead of us sending Christmas cards.” Val Mason

In Memory of Nigel MastermanMichael Irwin raised £270 after completing the London to Paris

Cycle Ride.

In Memory of Godfrey LookerWe have received donations, in lieu of floral tributes, of £450 and $25 in

memory of the late Godfrey (Geoff) Looker. Geoff was the husband of

CRY bereavement supporter, Vera Looker.

CRY update • Issue 49 • 19www.c-r-y.org.uk

Our Fundraisers

In Memory of Matthew MoodyMr L Moody sent in a donation of £122.50 from the sale of

books and a Christmas raffle at Kingham station in Oxon.

In Memory of Charlie MorettesAllison Spalding forwarded cheques totalling £1,630 in

memory of her son Charlie.

Allison also forwarded the following donations in memory

of Charlie:

• A donation of £10,350 in respect of the Tiger Ball. Of this, £50 was

from Miss C Follett.

• Cheques for £120. Of this, £20 came from Mrs Laban and £100 from

the Halifax.

• Tony Spalding has raised £568 from various fundraising activities

and a further £1,380 for the Tiger Ride.

• Daniel Thomas organised a charity ‘Ice Gala’ in memory of Charlie

and raised £2,213.50.

In Memory of Luke MorrisThe fundraisers within the Danwood Group raised

£5,708.25 in memory of Luke Morris. The donation was

presented to Alison Cox at the CRY Midlands postcard

launch.

In Memory of Ben Newton“I write to you in my capacity as Treasurer for the

Sportsman Golf Society, a Chatteris-based golf society

whose members include Ben’s father and parents of Ben’s

friends. Each year the Society’s nominated Captain picks a

charity for which he wishes to raise funds during his year in

captaincy. This year’s chosen charity was CRY and following the Club’s

AGM last night I now enclose a cheque in the sum of £1,227.32, being the

total raised in the last 12 months. These funds have been raised from the

Captain’s Golf Day, a race night and various other donations through the

year.” Jean Heading, Treasurer, Sportsman Golf Society

• Jean also sent in a further donation. “On Sunday 1 February 2009

we held our sixth Birthday Memorial Football Match in memory of

Ben Newton. I enclose a cheque for £2,172, being the amount raised

on this day during the game, through the sale of raffle tickets and an

auction after the game. We are only able to achieve these significant

amounts for your charity through the tremendous support we get

for this special day. As explained previously, our Memorial Match

consists of Ben’s old Under 16 team-mates playing against a select

side made up by Ben’s brother Nick and is always played the week

of Ben’s birthday. Ben’s team won again this year but we are hoping

that Nick can help rectify the deficit next year!”

• Wendy Anderson raised a further £374 after climbing Mount

Snowdon. This brings the total amount now raised to £850.01.

In Memory of Don NieldMaureen Nield sent in a donation of £305 in memory of Don.

In Memory of John OwensClaire McGarvey, NEETS

Coordinator, Middlesbrough

Football Club, sent in a donation

of £220 in memory of John who

died at the age of 17 from sudden

adult death syndrome. This was

raised at the Junior Football

Tournament organised in his

honour.

In Memory of Simon Pangborn Alan Pangborn sent in a donation of £550 raised from the

Treasure Hunt held in memory of Simon.

In Memory of Andrew Parr Leanne Westwell held a charity ball on 13 September 2008

and raised £1,360 in memory of Andrew.

• “Please find enclosed a cheque for £730 raised by

an auction held at the Boot & Shoe Inn at Elswick, near

Preston. Every year the landlord holds an ‘after-Christmas’

auction to raise funds for charities. As we are holding our family

screening event in March at the Myerscough Agricultural College, it

was suggested by the nurse from the college, Angie Emmington (a

friend of the landlord), that this year’s proceeds should go towards

screening in the area. The landlord was very generous in providing

sausage and chips as a free supper! The night was a great success

and enjoyed by all. Andy and Carol (the landlords) and Angie worked

very hard leading up to the evening and in hosting it. We also had

the opportunity to raise awareness about CRY and to promote the

forthcoming screening. Lots of interest was shown.” Ruth Lowe

• “Attached is a picture of Angie

Emmington (the college nurse) and

I presenting a cheque to Ruth Lowe.

As the student president I first met

Ruth in October 2008. As part of the

college’s Wellbeing Week promotions

Ruth had come in to tell us about CRY

and SADS. Many staff and students at

the college were really shocked to hear about the effects of SADS and a

number of people had been affected either directly or indirectly. Ruth was

brilliant at communicating the important issues surrounding CRY, having

been directly affected by the tragedy of her son Andrew Parr. The college

took it upon themselves to do some fundraising and raising awareness

here at college. On Friday 6 and Saturday 7 March 2009, Myerscough

College held a screening which was extremely well attended again by

staff and students alike. The college has a number of successful sports

academies and saw this as an opportunity to instill awareness of CRY at

a suitably early stage of potentially successful sporting careers.

As well as this, the Myerscough College Students Association had a

charity disco for Valentines Day in support of CRY. Money was collected

throughout the night and we raised a total of £140.50 which was dedicated

to the memory of Andrew, and in support of the great work and research

carried out by CRY. Thank you.” Mark Rear, Myerscough College

20 • CRY update • Issue 49 www.c-r-y.org.uk

Our Fundraisers

Ruth also forwarded the following donations in memory of Andrew:

• A donation of £100 from the Lancashire Constabulary Sports and

Social Club.

• Cheques totalling £345, donated by the Moon family. “Unfortunately,

my father’s cousin Bernard passed away a couple of weeks ago and

instead of flowers the family requested that donations were to be

made to CRY to help fund screening in memory of Andrew. I was very

touched by this request and have given them a personal thank-you.

A grandchild of Bernard’s attended one of our family screenings and

they think it is a worthwhile cause.” Ruth Lowe

In Memory of James Patrick Patterson “Please accept the enclosed cheque

as a donation from our school in

memory of James Patrick Patterson, a

former pupil. James was a keen rugby

player and it is the wish of the Rugby

To u r Committee 2007 that we honour James’s

memory by helping your charity. Good luck in all your endeavours!”

Maureen Leech, Assistant Bursar at The Campion School, sent in a

donation of £500.

In Memory of Jennifer Paul“I have pleasure in enclosing a cheque for £1,725 as a donation to CRY. This is

in memory of Jennifer Paul, Senior 5 student of George Watson’s College, who

died suddenly in September 2008. Jennifer is remembered fondly by us all as a

very able student who had a beaming smile and caring nature for everyone. The

donation comes from a retiring collection at the George Watson’s College ‘Nine

Lessons and Carol Service’ at St Giles Cathedral in Edinburgh on Tuesday 16

December. I trust that this will play a part, albeit small, in the valuable work CRY

undertakes to raise awareness of conditions that can lead to sudden cardiac

death.” Gareth Edwards, Principal, George Watson’s College

In Memory of Rowan PrestonSarah Odell took part in the Big Ben to Brighton Bike Bonanza and raised £680.

• Alistair Preston sent in donations totalling £232 in memory of his

brother Rowan.

In Memory of Jack RaeMegan Rae and Helen Brisco raised £2,803.45 in

memory of Jack. CRY representative, Ruth Lowe,

attended Hutton Grammar school to collect the cheque.

“Helen and myself climbed Kilimanjaro, Tanzania, in

September 2008 to raise money for CRY in memory

of my younger brother Jack Rae who died suddenly of

hypertrophic cardiomyopathy in February 2006 at age

11. Jack and I had plans to climb the mountain together

when he left high school but sadly he didn’t make it that

far, so I climbed it for him taking him with me in spirit

every step of the way!” Megan Rae

In Memory of Tim ReadDavid H Laurence, Treasurer, Canute Lodge No. 4876,

sent in a donation of £172. “The Brethren and Masonic

guests at our Christmas gathering contributed this amount

via a draw for a hamper. The hamper was donated by Ken

Read and his wife June who lost their son Tim 11 years ago to

this problem.”

• We have received a donation of £515 in lieu of floral tributes for the

late June Lilian Read.

In Memory of Anton ReidSonia Bailey raised £3,765 in memory of Anton. “We raised this money

by having a charity black tie event in memory of my son, Anton Reid, who

died while playing football for Walsall Football Club. I must admit it was

hard work but worth every penny. We had a wonderful turn out, including

Benita Davis, who attended to give a lovely talk. As a parent I cannot

stress how proud Anton has made me. The support and love has been

brilliant and it is nice to hear all the things which have been said about

Anton. To this day people still talk about him not knowing that I am his

mum. This has surpassed all my expectations. Everyone is saying they

cannot wait until next year’s ball. Hopefully, I will raise twice as much

in 2009.”

In Memory of Pete Reynolds Anne and Alf Reynolds sent in a donation of £100 for Pete’s

Memorial Fund, in memory of Mary Welch who passed

away in October 2007.

In Memory of Barry Robinson and Brian RobinsonWe have received donations totalling £1,301.37 in lieu of floral tributes for

the late Barry Robinson and the late Brian Robinson.

In Memory of Tyler ‘Bing’ RoseWe have received a donation of £860 in respect of Leah Rowland’s

participation in the Peru Open Trek 2009.

In Memory of Sian Rowland We have received a donation of £810 in lieu of floral tributes

for the late Sian Rowland. “I do hope this money will help

others, either through screening other young people or

as additional research or equipment to help prevent this

shocking way to die.” Mrs C M Rowland

In Memory of Kim Russell Steve Stimpson held an evening of rock ‘n’ roll dancing on

4 October and raised £820 in memory of his stepdaughter

Kim. “It went down very well, I got my rock ‘n’ roll band,

‘The Rockin 60’s’, together after 43 years of playing with

other bands. We weren’t let down by all the people who

bought tickets at £5 each. My wife and I had help from others, especially

our friends Sue Lock who worked her heart out and Christine Hewitt and

Margaret Johnson who did likewise and organised the selling of raffle

tickets on behalf of the companies who donated gifts. I would like to thank

Tesco, ASDA, Yeovilton Air Museum, Octagon Theatre, Marion Baker the

Clothes Specialist, Loders Butchers and finally Yeovil Flower Shop. The

evening was focused on the auction and our memory of our daughter Kim,

who died over five years ago and our niece, Tracy, who died just over 12

months ago – a lovely girl just like Kim, who we also still miss very much.”Top: Helen and Megan Kilimanjaro Bottom Left: Hutton School Bottom Right: Ruth Lowe collecting cheque

CRY update • Issue 49 • 21www.c-r-y.org.uk

Our Fundraisers

In Memory of Mike ScottLady Lumley’s School held a

non-uniform day and raised £350

in memory of Mike.

• “Once again the staff held

a ‘Naff Raff’ for CRY. The general office

organise this raffle and put a lot of hard work into it. We are so grateful

for their support, especially at this time of year (the anniversary of

Mike’s death – 28 December and, of course, Christmas.) This raffle

raised £260 and Mrs C Gamble, Mike’s aunty, made a donation of

£20.” Marje Scott

In Memory of Niraj Shah Mrs Sarla Shah made a donation of £300 in memory of her

son Niraj.

In Memory of Martha SimpsonWe have received a donation of £401.54 in lieu of floral tributes for the late

Mrs Martha Simpson.

In Memory of Matthew Smith “On 15 November 2008 a go-karting event in memory of

Matthew (Mattie) Smith was held. A group of 16 people

attended, ranging from Mattie’s grandad, dad, uncle,

cousin, work and rugby colleagues and close family friends.

The events were sponsored by DS Smith Packaging,

Featherstone, West Yorkshire; Limbert Brothers Limited and

Raceway Karting in Pontefract, West Yorkshire, who provided a trophy.

Everyone was eager to win the first Matthew Smith Memorial Trophy; in

groups of six, everyone had four races each aiming for pole position in the

final race. Simon Whitney, a close family friend, gained pole position after

winning most of his races. Simon held an extended lead throughout the

final until a collision during the last two laps reduced his lead. Tom Shaw,

another close family friend, closely pursued Simon’s lead, challenging on

corners and bends only to be beaten by the chequered flag waved in

Simon’s victory. Everyone had a fantastic time and this event will be held

on a yearly basis with the winner’s name being added to the trophy. A total

of £350 was raised on the day and with late donations of £150, a total of

£500 was raised altogether for CRY.” S C Whitney

In Memory of Lee StablesSharen Stables sent in two donations totalling £295.41. The

£200 was donated by Molly and Friends. They are a group

of pensioners who held coffee mornings until they reached

£200, then donated it to CRY in memory of Lee.

In Memory of Jane Starr Mike Aylott raised a further £465 after taking part in the

Lands End to John O’Groat’s Cycle Ride.

• “Please find enclosed a cheque from my company,

GlaxoSmithKline, from our ‘Making a Difference’ initiative,

after the Lands End to John O’Groats Cycle Ride I completed in

June.” Mike Aylott sent in a donation of £500.

In Memory of Cameron StrathieMartin Craig raised £300 in memory of Cameron.

In Memory of Paul SykesHaving taken part in several fundraising events organised by

CRY I wanted to try and do something personally that would

combine having fun, increasing the awareness of this amazing

charity and also, hopefully, raise some money. I realised that

other supporters had previously hosted a ball and felt this was

something that matched up really well with what I wanted to achieve. At the

same time one of my very dear friends had been diagnosed with cancer for

the second time and wanted to raise some funds for Cancer Research, so

we decided that we could combine our efforts and also donate some of the

proceeds to them also and that between us we could put on quite an evening.

The ball was to be held on Saturday 18 October 2008, during CRY’s Raising

Awareness Week, so we set about trying to drum up interest and also raffle

prizes etc. We came up with the theme of ‘Black, White and Diamonds’ and

were lucky to have so many wonderful and resourceful friends and family

who all helped. We managed to sell 200 tickets for the event at the Bluebirds

Banqueting Centre in Dover and the evening was a wonderful success –

we raised £4,108 for CRY with donations continually coming in. This was

much more than we had expected and we also made a similar donation to

Cancer Research. Everyone made a superb effort to dress to the theme and

enjoyed the excuse to dress up. They were treated to a lovely four course

meal, thanks to the venue staff and great entertainment by way of a disco and

a local band, Malarki. I made a short speech to outline the wonderful work

being done by CRY and highlighted how everyone could get involved to help.

We all raised a toast to Paul who I know would have been so proud.

So many kind and wonderful people attended the ball, gave raffle prizes or

organised items to be used on the evening. It has made me appreciate once

again that I am truly blessed to have such fantastic friends and family, and

that I couldn’t do it without them. I had such good feedback that I will be

looking to organise another ball in 2009. Now all I need to do is think of a new

theme! Carly Sykes

In Memory of Suzanne Taylor Beryl Ewing raised £250 in memory of her daughter,

Suzanne Taylor, by making and selling hand-made

Christmas cards to friends and family.

• Mrs Wendy Littlefair sent in a donation of £100 in memory of her

niece, Suzanne. “This money was raised by selling my handmade

Christmas cards to colleagues at Construction Skills in Norfolk.”

22 • CRY update • Issue 49 www.c-r-y.org.uk

Our Fundraisers

In Memory of Vicki TaylorIain Taylor took part in a 24 hour table tennis tournament in memory of his

wife Vicki and raised £1,000.

In Memory of Gareth Llywelyn Thomas Alma Thomas raised £225 from the sale of knitted Father

Christmases. A further £20 was raised from the collection

box at Cynthia Evans’s shop.

• Antony Jones sent in donations totalling £200 in memory

of Gareth.

In Memory of Nicholas Thorne “Our Year 10 students have

been taking part in an Enterprise

Challenge over the last two

terms and one of the tasks was

to run a table top sale for charity.

This involved them using £10 to buy/make

items to sell at lunchtime to the other students.

This was a very popular event and the pupils

decorated their stalls and sold their items with

enthusiasm. As a result they have nominated CRY (Nicholas Thorne

Memorial Fund) as one of the charities they would like to support and we

therefore enclose our cheque for £146.80.” Mrs C Gambrell, St Bede’s

School, Redhill

• Marion Mitchell sent in another donation from the Year 10 students

at St Bede’s, who held a cake sale at school and raised £104.50 in

memory of Nicholas.

• Nicholas’s father, CRY Representative Rob Thorne, forwarded

donations totalling £470.48. This included £119.88 from St Joseph’s

School and £250 from Perrywood Sports & Social Club.

• The Minister, Elders and members of the Redhill United Reformed

Church raised £200.

In Memory of Christian Thunhurst John Thunhurst forwarded a donation of £107.52 from

Fidelity & Goodwill

Masonic Lodge 5404.

• John also forwarded £221.91, donated by a friend in

memory of Christian.

In Memory of Richard (Rich) Tomkins “Please accept a donation of £100 towards Rich’s fund. This

money was given to us as part of a memorial bench that we

are having made for Rich. Pete and I felt that it only right

and fitting that we used our amount for CRY. If anything helps

others to stop the pain and suffering that we are going through,

then somehow it’s worth it.” Wendy Dunkley (Rich’s mum)

In Memory of Hannah Turberville Katy Turberville sent in donations (including further money

raised from the Snowball event) totalling £10,197.76, made

in memory of her daughter Hannah. “We held an auction

and a raffle. The auction generated over £5,000 from

donated promises and prizes. The raffle was also composed

of donated prizes and managed to raise £1,900. Richard Turberville and

Andy Barringer organised all the prizes and did a fantastic job. Another

friend of ours happens to be a professional auctioneer and ran the auction

for us on the night! The guests were well fed with a three course meal,

masterminded by Jeremy Finch and truly delicious. Chapter Eight are

a local 10 piece band well-known to us, as Richard Turberville plays

trombone for them. They gave their services for free on the night and

had everyone up on their feet dancing. Brian Turberville played no minor

part in heading up the event team to get everyone organised beforehand,

selling tickets and coordinating the wine orders”.

Katy also forwarded the following donations in memory of Hannah:

• ”The School Council at Grove Junior School,

Harpenden, raised £99.31 by having

sideshows and stalls on 17 December. All

the Junior School took part and each class

worked hard preparing their stall.”

• “Year 5 classes ‘Rowan’ and ‘Acacia’ at

Grove Junior School, Harpenden, raised the

money by making biscuits, decorating and selling them at 20p each

to parents on Friday 12 December. As Lucy and I worked out, they

made a lot of biscuits – at least 310 – in order to make £50 as they all

ate one each before they sold any!”

Also, a further cheque for £92.32 raised at the

school’s Christmas assembly. “Coffee and

mince pies were served and a donation to

CRY was made. The assembly was great,

lots of singing and the children worked

hard on their poems and dance.”

• A cheque for £155 in memory of Hannah

from Christmas Treeasy who donated £5 for every tree sold.

• A cheque for £4,585.50 from the Harpenden Ladies Circle, raised at

their Gift Fair held in November 2008.

In Memory of Ermis VetsosWe have received a donation of £274.74 in memory of Ermis from the

members of the London Scottish Rugby Club’s ‘Ex B’ XV.

CRY update • Issue 49 • 23www.c-r-y.org.uk

Our Fundraisers

In Memory of Glenn Walford“On 16 February 2009 I swam a mile (42 lengths of a 33m pool) to

raise money in memory of my mum’s partner, Glenn Walford, who died

suddenly in November 2008. Glenn’s brother Danny had died at an early

age and his mum has supported CRY since. I wanted to raise money as a

thank-you to Glenn for all the happiness he brought into our lives. Glenn’s

family came along to support me at the swimming pool and I’m grateful

to everyone who sponsored me. I hope my sponsorship money (£795)

will raise awareness and support medical research into a very worthwhile

campaign.” Sam White, age 14.

In Memory of Chris WalkerCat Walker took part in the Iceland Trek 2008 and raised

£1,650.

In Memory of Matthew Wallbank Miss R Wallbank sent in a donation of £335. “My

brother Matthew died on 24 May 2008 from SADS. Our

grandparents, Bill and Alice Fisher, had a party for their

60th wedding anniversary on 13 December 2008 and

asked their guests to donate to CRY in Matthew’s memory,

rather than be given presents.”

In Memory of Stephen Westley Gillian Shield has raised £4,247.32 from the ‘Heart of

Stephen’ event.

• Diana Hennis raised £740 through doing a bungee jump.

In Memory of Neil Wickers and David Staff

The Trustees of the Hilda Clarke Memorial Fund made a donation of £500,

forwarded to CRY by Neil’s mother, Irene Wickers.

In Memory of Paul Wilkins “The event was held on 10 January, the day prior to Paul’s first anniversary

and his 23rd birthday (midnight was a hard time for us all). It was held in

a local workingmen’s club who kindly let us have the venue for free when

we explained why we wanted it. The event started at 7.30pm with a lot of

eager friends and family wanting to share our special night. We reflected

and remembered Paul and all he meant to each and everyone. His brother

Mitchell is carrying on the legacy of ‘Oh What a Night’ DJing and has,

since Paul’s death, followed in his footsteps to become an active member

of the Police Cadets.

We held a raffle and an auction which even attracted bids from Dubai via

telephone for the high school musical signed picture! Charlton FC, Millwall

FC, Pizza Hut (where Paul collapsed), The Body Shop, the Eastenders

cast and the Welling Round Table organisation all donated prizes or

funds. The auction got quite carried away and helped raise a big laugh on

a very poignant night!

We were lucky enough to raise approximately £2,500 for the evening

(including JustGiving donations) after we deducted costs. We would like

to thank you for the loan of the buckets and posters to raise awareness

for CRY. We had a good response to the advertising and hopefully a few

more people are now more aware of how this tragedy can affect anybody.

We also had a guest appearance from ‘Wilko’, a police sniffer dog named

after Paul (Special Constable Paul Wilkins) who is currently being trained

as a bomb and drug sniffer dog for the 2012 Olympics. He had a great

response and helped people part with their cash! The cadets with whom

Paul was a staff member when he died kindly helped with the organisation

of the night – a great attendance from them all, setting up the hall and

the balloons to complement the white balloons kindly donated by CRY.

Without the help of the Police and the Cadets from Bexleyheath this night

would not have been so prosperous. We would like to continue raising

money for both yourselves and the Cadets as we are sure Paul would

have wanted. Many thanks for all your help.” Pam Oates (Paul’s Mum)

• We have received £944.68 from Ashley Palmer, raised in memory of

Paul at the charity disco night on 10 January.

In Memory of David Williams “As with last year I was lucky enough to be invited to the

Amalgamation of

Racing Pigeon

Organisations Dinner

held at the Houses of

Parliament, where,

throughout the year, money is

raised for charitable organisations.

On this occasion I was brave

enough to stand up and talk about

the tragic loss of my son David and

the launch of the postcard campaign

highlighting the devastating

number of deaths and the pain and

24 • CRY update • Issue 49 www.c-r-y.org.uk

Our Fundraisers

heartbreak it causes so many families. This was followed by the Lynn

Faulds Wood Bowel Cancer Campaign auction, presented by John

Stapleton. To my amazement, after the auction John Stapleton and Lynn

announced that they would like half of the auction takings to go to CRY as

they had been so touched by my words and the staggering statistics. This

escalated with people coming up to me and leaving cash and cheques

on my table with words of compassion, sympathy and support for me and

my daughter Lisa. As you can imagine, we were completely overwhelmed

by all the kind words and generosity of total strangers.” Sue and Lisa

Williams sent in £2,525 raised in memory of David.

• Sue Williams held an online auction of mainly sports memorabilia

and raised £303.36 in memory of David.

(Valentine’s Day), a day full of hearts. Together with Jeannette Atherton, I

was able to talk to many parents and young people about CRY and to give

them details of the screening day at Myerscough College, Preston, on 6

and 7 March, organised by CRY Representative Ruth Lowe. In addition,

we raised £200 for the Louise Worth Memorial Fund. The picture shows

Jeannette and me (left) in the ASDA foyer.” Sue Jarvis

Sue also forwarded the following donations in memory of Louise:

• A cheque for £330 raised by Jeannette Atherton. “Jeanette ran a

tuck shop at work and raised the money over the past 12 months

through selling crisps, chocolate, fruit and drinks to her colleagues.

She organised the shop herself, using her own money and time As

the company only employs a handful of people, the amount raised is

a fantastic sum in such a short period of time. The scheme was only

going to run for one year but has been so successful it is carrying on

for as long as it is wanted.”

• “In November 2008 Leyland

Lions held a presentation

evening to award the money

raised over the previous 12

months to various national

and local charities. CRY

was selected as a recipient

following the sudden death of

a member’s son earlier in the

year. The picture shows Sue

being presented with a cheque

for £200 by the president of the Leyland branch of the Lions Club.”

• “The Louise Worth

Cup for Community

Service was presented

at Runshaw College,

Leyland, in January

2009. Louise was

an A level student

at the college when

she died of long QT

syndrome. The Cup

was established in her

name and presented

each year to the student

who has made the most

valuable contribution

to the community. This

year’s award went

to Emma Edge who

organised many events, including a ‘Battle of the Bands’, to raise

hundreds of pounds for charities in the North West. She continues

to use her organisational skills to hold fundraising events at St

Andrew’s University where she is studying maths. The picture shows

me presenting Emma with the cup.”

In Memory of Daniel YoungDionne Young held a charity evening in memory of her son

Daniel and raised £2,000.

In Memory of Kevin Wilson Andrew Pilling, Pilkington PLC, made

a donation of £100 in memory of

Kevin. This was forwarded by CRY

Representative Ian Scanlan.

In Memory of Louise Worth “As CRY’s County Representative for Lancashire, I wanted to do something

special during CRY’s Awareness Week in October 2008. Unfortunately, all

the venues I looked at were fully booked at that time. However, my local

ASDA store at Clayton Green, Chorley, said that they would be holding

a number of events throughout February linked to the British Heart

Foundation. So it seemed significant that I was able to book 14 February

CRY update • Issue 49 • 25www.c-r-y.org.uk

Our Fundraisers

Our Fundraisers in Northern Ireland

In Memory of Lauren GallagherBlanche Gallagher sent in

donations totalling £560, made

up as follows: £20 from P

Doherty, £385 from Christie’s

Wine Bar and £155 from Centra

Grocery Shop.

• CRAIC (Cultural Revival Among Interested

Communities) held a charity concert on

14 November 2008 and raised £2,000 in

memory of Lauren Gallagher, a former

member.

In Memory of Jaimie GaultMargaret Gault sent in donations totalling £305. The ladies

Keep Fit group of the Glengormley Methodist Church

donated £200, Mr and Mrs Freddie Johnston £50, Mr and

Mrs Brian Robinson £50 plus £5 from Mrs Barbara Gault.

• Margaret sent in further donations totalling £770. This includes

£700 from the Donegore Orange Lodge, £20 from William Houston,

£25 from Ivy Hanley and £25 from George Brown.

In Memory of John McCallJanette and Malcolm Pollard sent in a donation of £100 in

memory of their nephew, John McCall.

• Matthew Nicholson took part in the Great North Run

2008 and raised £661.

In Memory of Aine McCann“I was the dance choreographer on High School Musical,

a production at St Eugene’s College, Rosslea, this year

and am very pleased to be sending you a cheque for

£250 which they kindly raised from a raffle during the

performance.” Aravon McCann

In Memory of Richard Martin Mary Martin sent in cheques totalling £770. Of this, £100

came from Lower Lough Erne Shooting Club, being

proceeds left over from a Christmas raffle, and £670 from

Mary and her husband. They held a joint 50th birthday

party and asked guests to donate money in lieu of presents.

• The First Ballymena Presbyterian Church sent in a donation of £450.

• Quarry Products Association sent in a donation of £2,250 from P

Clarke & Sons Limited and RYU Limited.

• Neil Price, Treasurer of the Coleraine Lion’s Club, sent in a donation

of £500.

General fundraising

• “Rather than sending our Christmas cards each year, the company

policy at Acal plc is to donate a sum of money to various charities.

We have decided this year that one of our chosen charities should be

CRY. Therefore, please find attached a cheque for £250.” Malcolm

Cooper, Group Finance Directo.

• “I am delighted to report that we are back from India all safe and

sound! It was a brilliant event and everyone completed the challenge.

It was an amazing challenge and all the participants were fantastic.

There was no problem with the cancer and heart charities mixing

together (something which was not planned, but occurred for

logistical reasons), in fact it really added something. I talked about

each of the charities on different nights and one participant – Gary

Short, who had a heart attack in February – really amazed everyone

by getting fit enough and raising the money in such a short space of

time. He was an inspiration to everyone on the event.” Ann Frampton

Action for Charity, event organisers (CRY’s share of the proceeds

from this event is around £6,200)

• John Adams took part in the Great North Swim 2008 and raised

£295.06.

• Laura Worboyes nominated CRY for a donation from the Charity &

Community Panel of her company, Amlin PLC, who donated £500.

• Clare Astin raised a further £1,508.66 after completing the Vietnam

Cycle Ride in November 2008. This makes a total of £3,463.66.

We have also received a donation of £200 from Boston Scientific in

respect of Clare’s cycle ride.

• “It is with great pleasure that Bookpoint Limited is enclosing a

donation of £129 towards

your fundraising. We are a

book distribution company

based in Oxfordshire

and have decided to hold a book sale at the end of each month

for members of our staff, giving them a chance to buy books at a

discounted price.” Miss Sandy Wilkins

• Richard Bell, British School of Paris, sent in a donation of £845.65

from the Race Across America 2008 (RAAM).

• “Please find enclosed a cheque for £105.32 that I have raised on

behalf of Bernhard Schulte Ship Management (UK) Ltd through

monthly cake sales over the last four months.” Victoria Soman

26 • CRY update • Issue 49 www.c-r-y.org.uk

Our Fundraisers

• “Please find enclosed a cheque for £100. My son was fitted with an

ICD unit earlier this year and so we are one of the lucky families who

still have their three children. In grateful recognition for this, I have

cut down my Christmas present list and giving what I am saving to

causes that can use the money better than friends and relations who

already have everything they want.” Jeannie Chamberlain (a grateful

mother)

• Stewart Clark sent in a donation of £250.

and that CRY supported many young people with the same condition

that caused the death of this well-respected student. This led me to

support the charity as it was something that the other students at the

school could relate to. After passing my black belt grading I helped

with a workshop that my school and karate club, Karate Leadership

UK, had organised. This meant giving other students at the school

a taster for some of the exercises carried out in Karate. It was a

huge success.” Maggie Middleton, Charity Co-coordinator, sent in

donations totalling £170.57 raised by Jo.

• We have received a donation of £116.65 from Colbayns High School,

Essex.

• Guy Davies sent in a donation of £587.50.

• John Dexter raised £1,100 after taking part in the London to Paris

Cycle Ride.

• Sarah Doherty sent in a donation of £100 from collection boxes.

• James Doherty

of Monk’s Walk

School took part

in a sponsored run

and raised £500.

• “Please find attached a cheque for

£4,773.26. The students raised this

money during Rag Week in October

and more recently at a party for

the whole sixth form” Tim Byford,

Downfield Sixth Form

• We have received £2,670.20 from Rowland

Edwards who took part in the Lands End to John

O’ Groats Cycle Ride.

• “I have pleasure in sending you a cheque for

£358. I heard about CRY from the Chairman of

Epsom Mayday Flower Club who has adopted CRY for their charity

this year.” Barbara Meineck, Ruxley Church Social Committee

• The Fitton Trust made a donation of £200.

• “The Gwyneth Forrester Trust is a grant making trust, and our

distribution policy is to support a specific charitable sector each

year. The chosen sector this year is ‘Strokes and Heart Disease.’

At a recent meeting of the trustees, we approved a grant to you of

£50,000, in support of the wonderful work that you do.” Christopher

Perkins, Trustee & Hon Secretary

• Judith Harris raised £3,095 after taking part in the London to Paris

Cycle Ride.

• “We are not sending Christmas cards this year and have decided to

make a donation to CRY instead.” M Guillem, Helmores UK LLP, sent

in a donation of £400.

• Jason Henderson held the ‘CRY Out Loud’ charity variety show on 15

January and raised £225.

• “My name is Jo Clayphan and

I am a student at Sir Joseph

Williamson’s Mathematical

School where I attend the sixth

form. I have recently raised

money by completing my black

belt grading for my 2nd Dan

in Karate. In order to achieve

my 2nd Dan black belt I had to

complete a series of tasks on

the day of my grading, including 2,000 front

kicks, 2,000 punches and perform a ‘kata’

(the word given to a pattern of moves) that I

composed myself. I also had to raise money

for a charity of my choice through being

sponsored to complete my tasks. I decided

the first place I would turn to for sponsors

would be the teachers and students at my

school. I chose to donate the money to CRY,

as the school had recently lost one of their pupils. Although I did not

know him myself, I was told he was a very committed sportsman

CRY update • Issue 49 • 27www.c-r-y.org.uk

Our Fundraisers

• “On Friday 26 September 2008, Stuart Homer and his wife Debbie

hosted a Grand Charity Ball at the Marriott Hotel, Broughton, Preston

to celebrate Stuart’s 20 years of health since undergoing open

heart surgery and his 40th birthday. For some time Stuart had been

thinking about a fitting way to recognise these events, mainly the

heart surgery, whilst raising as much valuable funding as possible

for a relevant charity. The event was a fantastic success. Stuart

decided to split all proceeds from the ball between two very worthy

and relevant charities: the British Heart Foundation and CRY. We

have pleasure in enclosing a cheque on Stuart’s behalf for £750.”

Ruth Lowe

• The Inglewood Congregational Church raised £930 at their Christmas

Day Offering.

• Michelle Jackiewicz took part in the Mazda London Triathlon and

raised £865.

• We have received a cheque for £150 raised at a charity evening held

by the Ladies Darts League.

• Leeann Longstaff held a ‘Pampered Chef’ fundraising event on 23

November and raised £129.69.

• The staff at the Learning and Skills Council held a charity quiz night

and raised £244 for CRY. Trudi Synman nominated CRY as she lost

her daughter to ARVD in 1998.

• “We raised some money

for CRY over the Christmas

period. We split our advisory

group (a mixed age tutor

group) into groups to see

if they could come up with some ideas on how

to raise money. We made Christmas cakes for

students and teachers to buy for their families; we

also made felt and salt decorations for Christmas

trees. We chose CRY because we lost a member

of our sixth form who died whilst playing football

due to heart complications. Also our adviser lost

a healthy, good friend aged 29 from sudden heart malfunction. We

had fun raising the money and people liked the products that we

made, so we hope the money will help support the good work you

do.” Nicola Gobat, Mascalls School

• Alex Mayle took part in a 24-hour squash marathon and raised £485.

• Jack Nunn took part in a charity walk and raised £773.

• We recently had a launch party for our new website, which included

an auction of film memorabilia, in aid of CRY. The party was held at

Oxygen in London’s Leicester Square on 8 January. Although we had

the entire venue to ourselves, the majority of the action took place in

the upstairs bar. That is where the film memorabilia was on display

and also where members got their free drinks and the free food which

was available. Unfortunately or fortunately, depending on which way

you look at it, the upstairs bar did get a bit crowded, which meant it

was difficult to see the film memorabilia and place a silent bid, so we

opted for a last minute normal auction. Thanks to Steven Goodwin,

Sharan Sandhu and Kellie Lawrence for stepping in to become

impromptu auctioneers. The film memorabilia was supplied by a

third party at a reserve price. The items that sold were signed photos

of Sean Connery in James Bond,

Jack Nicholson in The Shining, Will

Smith and Tommy Lee Jones in Men

in Black, Orlando Bloom in Pirates

of The Caribbean, Keanu Reeves

in The Matrix and Kevin Bacon in

Death Sentence, as well as a boxing

glove signed by Sylvester Stallone. We also had a business card

raffle at £1 per entry, all fees going to CRY.

The auction made a total of £827.50, which left £216.02, after paying the

third party. We made £67.65 from the raffle and donations, bringing

our final total up to £283.67.” Tracey Spencer, Ownafilmcompany.

com

• Shona Oxley raised a further £1,782.86 for the London to Paris Cycle

Ride. This makes a total amount raised of £2,002.86.

28 • CRY update • Issue 49 www.c-r-y.org.uk

Our Fundraisers

• Mike Willenbruch, Parnell Design Partnership LLP, sent in a donation

of £100 in lieu of sending Christmas cards to clients.

• Anthony Parsons raised £675.66 for his 40th birthday.

• Michael Perkins sent in a donation of £125.

• John and Jean Plumb sent in a donation of £100 in lieu of a birthday

celebration for Mrs Louise Bates’s 100th birthday.

• “Please accept this cheque for £750, presented by Prince Philip on

behalf of the Princes Trust, to the helpers at one of the drinks water

stations during the Windsor Half Marathon.” Tom Graham

• Graham Pulford took part in the London to Paris Bike Ride 2008 and

raised £1,640.

• Denise Stevens, Pfizer Limited, sent in a donation of £202.50.

• Martyn Scott forwarded a donation from the Rotary Club of Newbury.

“It is customary on reaching a birthday date with a ‘zero’ to have a

special collection for that member. I recently attained the age of 60

and the club members, together with our Benevolent Fund, combined

to raise £100 to be designated to a charity of my choice. My reasons

for choosing CRY on this occasion are motivated by losing my wife

three years ago at the age of 47, totally unexpectedly, from ischemic

heart disease.”

• “I am pleased to inform you that it has been agreed by our PCC

that CRY will be one of the recipients of a donation from St John’s

mission budget for 2008.” Lorraine Clark, Chair of St John’s Outreach

Committee, sent in a cheque for £200.

• Miss Rayners’ Year 7 Tutor

Group, Sandhurst School,

raised £266.71.

• “I am delighted to tell you that

following the recent endeavours of Mrs Lynda

Sheffield, your charity has been awarded £500. Lynda raised

this money by organising a fundraising ‘Keep Fit’ event held on 5

December 2008.” Tina Claeys, Grants Administration Manager,

Lloyds TSB Foundation

• “Please find

enclosed a cheque

for £825.95. This

is the final cheque

from our fundraising efforts at the Stoke by Nayland Golf Club. We

hope we have helped to make a difference. We have enjoyed our

events whilst supporting a very worthy charity.” Joan Landen, Ladies

Captain, Stoke by Nayland Golf Club

• “Please find enclosed a donation for £207.86

which was raised by the members of Thanet

Scout District during their St George’s Day

collection earlier this year.” Denise Burring

(District Commissioner)

• April Tod sent in a donation of £380, from half of the raffle money

collected at the Lawn Tennis Writers’ Annual Awards in December

2008.

• Paul Todd forwarded a donation of £305.

• Chris Wakefield held a quiz and sent in a donation of £150.

• Miss E Winters made a ‘Give as You Earn’ donation of £350.

• Peter Woodrow sent in a donation of £400 in lieu of birthday presents

for his 70th birthday.

• Michael Wreford raised £1,370 from his Christmas Lights 2008 display.

Joan Hillier, CRY Bereavement Supporter, collected the cheque.

Thank you to all our fundraisersfrom all at CRY

CRY update • Issue 49 • 29www.c-r-y.org.uk

Our Fundraisers

Headline page indexPage 30 Our Graeme went to sleep Southern Daily Echo 20/01/09

Page 31 Mum’s plea on heart checks Dudley Chronicle 12/03/09

Page 31 Fitting tribute Rugby World 01/04/09

Page 31 Son’s death saved my daughter’s life Birmingham Mail 11/03/09

Page 32 Family of tragic Ed tee off Portsmouth News 18/03/09

Page 32 Footballers’ tribute to Jack Medway Messenger 20/02/09

Page 32 Lifesaving donation for Lisneal Londonderry Sentinel 11/02/09

Page 33 Boxing bonanza rings in cash Portsmouth News 07/03/09

Page 33 On the run for my son Daily Echo (Bournemouth) 18/03/09

Page 33 Force stars to shine at awards In Force Magazine 03/09

Page 33 Mother’s plea after teenage son dies Belfast Telegraph 15/01/09

Page 34 Teen’s death prompts fresh calls News Letter (Belfast) 17/03/09

Page 34 Parents pay tribute to a generous, caring son Woking News & Mail 12/03/09

Page 34 Dad welcomes latest plans to ease suffering Northern Echo 26/01/09

Page 35 £1.8k raised in Leanne’s memory Gloucestershire Echo 13/03/09

Page 35 Footballer’s family back cardiac appeal Derby Evening Telegraph 13/03/09

Page 35 Memories of Jade, year from tragedy Northampton Chronicle & Echo 28/01/09

Page 35 Sponsor appeal for marathon pair Enfield Advertiser 11/02/09

Page 36 Mother promotes heart screening Londonderry Sentinel 21/01/09

Page 36 Charity game for cardiac fund Herald Express (Devon) 18/03/09

Page 37 A silent killer in our midst Western Mail (Cardiff) 24/01/09

Page 37 From the sidelines Chiswick Times 27/02/09

Page 37 Tragic teenager may have died from heart defect Portsmouth News 22/12/08

Page 38 Screening saves lives Isle of Man Examiner 13/01/09

Page 38 Crying all the way to the bank York Evening Press 11/03/09

Page 38 Beautiful tribute for dear Leanne Gloucestershire Echo 28/02/09

Page 38 Your heart through the ages Cycling Weekly 22/01/09

Page 39 Friends join race in Jack’s memory Kent Messenger 27/02/09

Page 39 Family supporting CRY’s call for screening Strabane Chronicle 05/02/09

Page 39 We’re on the ball Sale and Altrincham Messenger 29/01/09

Page 39 Postcards aiming to spare parents’ grief The Sentinel 01/03/09

Page 40 Dad’s plea Coleraine Times 18/03/09

Page 40 Santa’s early start in 2009 Birmingham Mail 22/01/09

Page 40 Life-saving scans Western Mail (Cardiff) 24/01/09

Page 41 I’ll walk marathon a day for dead pal Lancashire Evening Post 13/02/09

Page 41 Score of 700 at match for Jack Kent Messenger 23/02/09

Page 41 Valentine tribute to sportsman Driffield Times 18/02/09

Page 42 Don’t pretend this is not happening Strabane Chronicle 05/02/09

Page 42 Support for a cause close to Scott’s heart Chiswick Times 27/02/09

All articles reproduced with permission

30 • CRY update • Issue 49 www.c-r-y.org.uk

Raising Awareness in the Media

National

All articles reproduced with permission

CRY update • Issue 49 • 31www.c-r-y.org.uk

Raising Awareness in the Media

All articles reproduced with permission

32 • CRY update • Issue 49 www.c-r-y.org.uk

Raising Awareness in the Media

All articles reproduced with permission

CRY update • Issue 49 • 33www.c-r-y.org.uk

Raising Awareness in the Media

All articles reproduced with permission

34 • CRY update • Issue 49 www.c-r-y.org.uk

Raising Awareness in the Media

All articles reproduced with permission

CRY update • Issue 49 • 35www.c-r-y.org.uk

Raising Awareness in the Media

36 • CRY update • Issue 49 www.c-r-y.org.uk

Raising Awareness in the Media

CRY update • Issue 49 • 37www.c-r-y.org.uk

Raising Awareness in the Media

All articles reproduced with permission

38 • CRY update • Issue 49 www.c-r-y.org.uk

Raising Awareness in the Media

All articles reproduced with permission

CRY update • Issue 49 • 39www.c-r-y.org.uk

Raising Awareness in the Media

Raising Awareness in the Media

All articles reproduced with permission

40 • CRY update • Issue 49 www.c-r-y.org.uk

Raising Awareness in the Media

All articles reproduced with permission

CRY update • Issue 49 • 41www.c-r-y.org.uk

All articles reproduced with permission

42 • CRY update • Issue 49 www.c-r-y.org.uk

Raising Awareness in the Media

Fundraising Events 2010

CRY update • Issue 49 • 43www.c-r-y.org.uk

A few ideas...Peru Trek 17 to 26 April Immerse yourself in ancient Peruvian culture and experience diverse scenery, including tropical Andean rainforests, snow-capped mountain ranges and Machu Picchu, one of the world’s most important archaeological finds. If you would like to receive an information pack, please go to www.c-r-y.org.uk/peru_trek.htm

Virgin London Marathon 25 AprilOur golden bond charity places have now been allocated, however we are still looking for runners with their own place to join the CRY team. We are particularly interested in people willing to run in a CRY costume. We offer a welcome pack, running vest, support from the CRY fundraising team, after race massage and refreshments at a central London Hotel. Please email Laura at laura@c-r-y.org.uk

China Trek 8 to 17 May Immerse yourself in tradition, history and ancient mythology and experience something others will only dream of as you walk part of the Great Wall. This is an ideal event for those with a passion for culture, a sense of adventure and the desire to do something challenging for a good cause.

‘Just Walk’ - sponsored UK charity walk 15 May ‘Just Walk’ is an exciting sponsored walking event over the South Downs in West Sussex where you and your friends can choose to participate in walks of 10km, 20km, 40km or 60km in length. You can find out more details and register for the 2010 event by visiting: www.just-walk.co.uk/. CRY is also looking for volunteers to man a CRY stand at the start of this event - contact cry@c-r-y.org.uk if you would like to help with this.

London to Paris Bike Ride 12 to 16 May, 26 to 30 May, 2 to 6 June, 14 to 18 July, 18 to 22 August, 8 to 12 SeptemberStarting in London, the four days of cycling will take you through beautiful and historical villages, allowing you to see some of the most famous landmarks in England and France. If you would like to receive an information pack, please go to www.c-r-y.org.uk/london_paris_bike_ride.htm

BUPA London 10,000 31 May CRY has charity places for this event, and we also welcome any ‘own place’ runners who would like to run for CRY. You can apply for your ‘own place’ via the event website http://www.london10000.co.uk/site/. Please e-mail laura@c-r-y.org.uk if you are interested in a CRY charity place; are an ‘own place’ runner wishing to run for CRY; or if you would like to run in a CRY Heart costume.

Doitforcharity.com 5km Race Regents Park. 6 June (TBC)The Doitforcharity.com run series is a collection of 5km races taking place in selected locations in the UK. Over 4,000 people are expected to take part to raise funds for hundreds of different charities – and you could be among them! All you need to do is pledge to raise at least £100 for CRY and register online for a place at Doitforcharity.com. CRY has places available for this event.

CRY Heart of London Bridges Walk 18 July This annual event will once again start at Victoria Embankment Gardens and finish at Hays Galleria, near London Bridge. The 2010 Bridges Walk will follow the same route as the 2009 event - crossing Golden Jubilee, Westminster, Waterloo, Blackfriars, Millennium, London and Tower Bridges and passing at least 12 famous London Landmarks, each representing

one of the 12 young sudden cardiac deaths that occur each week in the UK. Registration will open in the New Year, but in the meantime you can register your interest by sending an e-mail to laura@c-r-y.org.uk

Adidas Women’s 5k Challenge 5 September CRY does not have any charity places for this event, but if you get your own place then we can provide you with a CRY T-shirt/running vest to wear, plus sponsor forms and other fundraising items. If you nominate CRY, we will receive £5 of the entry fee.

‘Just Bike’ sponsored UK charity bike ride 18 September Just Bike is an exciting sponsored bike riding event around Coate Water Country Park (near Swindon) where you and your friends can participate in rides of 50km or 100km in length. To find out more and register for the 2010 event please email cry@c-r-y.org.uk

BUPA Great North Run 19 September The Great North Run has grown over its long history to become the world’s biggest half marathon and Britain’s biggest running event with 50,000 entries. If you would like to run for CRY with a charity place or your own ballot place, please e-mail cry@c-r-y.org.uk. Junior fundraisers (ages 3 to 16) can enter the BUPA Great Run Junior/Mini Event the day before (18 September). CRY does not have any charity places for this event, but if you get your own place then we can provide you with a CRY T-shirt/running vest, plus sponsor forms and other fundraising items. All entrants receive a race pack and will be presented with a finisher’s pack and medal once they cross the finish line. For details go to the Junior/Mini section at www.greatrun.org

Doitforcharity.com 5km Race Manchester, 26 September (TBC)The Doitforcharity.com run series is a collection of 5km races taking place in selected locations in the UK. Over 4,000 people are expected to take part to raise funds for hundreds of different charities – and you could be among them! All you need to do is pledge to raise at least £100 for CRY and register online for a place at Doitforcharity.com. CRY has places for this event.

Royal Parks Foundation Half Marathon 201010 OctoberCRY will have a limited number of places for this event. If you would like to apply for a charity place or have your own place for this, please e-mail cry@c-r-y.org.uk

CRY Raising Awareness Week 9 to 17 October Details about our annual Raising Awareness Week will appear on the CRY website as they are confirmed. Please contact cry@c-r-y.org.uk if you would like to get involved.

Parachute Jumps Assorted dates For further details, please visit http://www.c-r-y.org.uk/parachute_Jump.htm

For more information visit www.c-r-y.org.uk/fundraising.htm

FSC logo

Cardiac Risk in the YoungHead Office: Unit 7, Epsom Downs Metro Centre, Waterfield, Tadworth, Surrey KT20 5LR Tel: 01737 363222 Fax: 01737 363444 E-mail: cry@c-r-y.org.uk www.c-r-y.org.uk

Our Mission

When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD).

These include arrhythmogenic right ventricular cardiomyopathy (ARVC) and other abnormalities leading to sudden arrhythmic death syndrome (SADS).

Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions.

CRY aims to reduce the frequency of YSCD by working with cardiologists and family doctors to establish good practice and appropriate screening facilities to promote and protect the cardiac health of our young.

CRY believes cardiac screening should be accessible to all young people aged between 14 and 35.

CRY also works to guide and support families and close friends affected by YSCD. The Charity aims to put them in touch with people who have the appropriate knowledge and experience to answer their questions. We provide information to explain what the coroner does, practical guidelines to help with NHS referrals and advice on the procedures that usually follow a YSCD.

In addition, CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge.

Detailed information about cardiac abnormalities and the range of literature available from CRY can be found on our website at www.c-r-y.org.uk/medical_conditions.htm

Our PatronsThe urgency of CRY’s mission and the quality of our work has compelled many high profile personalities to give their time to become Patrons of our Charity.

Current Patrons of CRY: Rob Andrew MBE, Jeremy Bates, Ben Brown, Mark Carruthers, Clive Clarke, Mark Cox MBE, James Cracknell OBE, Nick Easter, Simon Halliday, Kathryn Harries, John Inverdale, Pat Jennings OBE KSG, Robert Jones MBE, Gary Longwell, Professor W J McKenna, Emily Maitlis, Phil Packer, Sir Steve Redgrave CBE, Andy Scott, Roger Taylor OBE, Professor Gaetano Thiene, Gregor Townsend MBE, David Walliams, Matt

Wells, Ray Wilkins MBE and Sir Clive Woodward OBE.

Sir Ian Botham OBE Honorary President of CRY“It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s

the only way we can prevent these sudden deaths occurring.”To read the supportive quotes from CRY’s Patrons in full please go to www.c-r-y.org.uk/patrons.htm

Our FundraisersThe involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD.

By fundraising for CRY our supporters have, in addition to highlighting our cause, helped to finance and develop our Bereavement Support service, the CRY Centre for Cardiac Pathology (CRY CCP) at Royal Brompton Hospital, the CRY Centre for Sports Cardiology (CRY CSC) and the CRY Surgery Supporters Network (CRY SSN) to support young people living with potentially lethal cardiac conditions. CRY has also required funding to support medical research into YSCD, to subsidise and expand our national screening programme, our education programme and our campaign for ECG testing of the nation’s youth.

Whether you are carrying out your own activity or taking part in an established event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, literature, sponsor forms and other resources.

If you would like to join our fundraisers, CRY also offers a range of free fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events. For more information visit www.c-r-y.org.uk/free_fundraising_events.htm or contact the CRY office to request a fundraising ideas pack.

There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we can also accept credit card donations over the phone. For further information telephone 01737 363222 or go to the Giftaid page on our website: www.c-r-y.org.uk/giftaid.htm

All your help is greatly appreciated.

CRY is always extremely grateful for grants or donations from Trusts and Foundations. We would like to thank the following Trusts and Foundations for the very generous support they have given us:

Albert Hunt Trust • Artie White Foundation • Aspen Insurance UK Charity Committee • Charlotte Marshall Charitable Trust • Sir Cliff Richard Charitable Trust • Edward Joseph Colclough Trust • Fitton Trust • Gordon Fraser Charitable Trust • Gwyneth Forrester

Trust • Hasluck Charitable Trust • Holbeck Charitable Trust • Hospital Saturday Fund Charitable Trust • James Tudor Foundation • Malcolm Chick Charity • Miss W E Lawrence 1973 Settlement • Munro Charitable Trust • Muriel Edith Rickman Trust •

Shuttlewood Clarke Foundation • Sir James Roll Charitable Trust • Sir Jules Thorn Charitable Trust • Tudor Foundation, Inc.