News, Views & Do’s -

♥ Meet our Representatives

♥ Newsletter

♥ Kids for CRY ♥♥♥♥♥♥♥ Julie’s Interview

♥ Jokes Corner

♥ Puzzles

♥ Jan`s Report

♥ Our Fundraisers

♥ Raising Awareness

♥ Bulletin Board

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Issue No. 23 January / February 2000

CCARDIAC

RRISK in the

YYOUNG

BI-MONTHLY UPDATE

MEET OUR REPRESENTATIVES

IN STAFFORDSHIRE - IT`S URSULA & JOHN BICKWe came to live in Tamworth in January 1960. At that time it was a small country town with

a large farming community. It had a population of 30,000 people, now the number has

quadrupled and it is mostly involved with light industry. At that time we had two children

and Tamworth seemed the ideal place to bring up a young family.

David our youngest son was born in September 1962. He was a beautiful child, robust and

healthy; when he started school he was always the tallest in his class. He was very keen

on sport and athletics. He loved rugby and captained the school rugby team. He also

played for Tamworth Colts and was selected to

play for Staffordshire Schoolboys. For years in

succession he would win the triple AAA's shield

and I would teasingly complain about having to

polish it.

David died on 23 January 1996. He was thirty-

three years of age. John and I were on an

'Around the World' tour, we were travelling in

South Island, New Zealand when our eldest son

telephoned to say that David had died. We

could not believe that our beautiful, super-fit ath-

letic son had died so suddenly. On the previous

day he had gone to work as usual, he returned

home at 2300 hours; made himself a drink and

went to bed. He died in his sleep at 0320 hours.

His girl friend Laura found him twelve hours

later. David died of Obstructive Hypertrophic

Cardiomyopathy (HCM) which is the most common cause of sudden cardiac death in the

young. It is hard to accept that this lovely, caring young man has gone from our lives for-

ever. His death devastated our family and his many friends.

Two years after his death a friend sent me a newspaper cutting out of the Birmingham Mail.

It showed a picture of Roy Ball and gave information regarding his involvement with CRY.

I was so impressed with what I read that I contacted Roy immediately. I felt that here was

an organisation that not only supported research into Sudden Death Syndrome, but offered

help and counselling to families who had suffered from a young sudden cardiac death.

John and I offered our support to CRY in any capacity whatsoever. We are not fundraisers

but felt that we might have other talents that could be utilised. Before retirement John

worked as a Maintenance Engineer, I was a Practice Nurse and did voluntary work as a

Bereavement Counsellor. We now work for CRY on the ECG Screening Programme and I

am taking the CRY Certificate in Counselling Skills Course.

We feel that our involvement with CRY has helped to ease the burden of our loss. We know

that we are not alone in our grief and it is our fervent hope that in the not too distant future

a solution will be found through early screening and research to prevent other tragedies

such as ours.

NEWSLETTERJanuary / February 2000

CRY took its first step into the Millennium with what felt like one foot with a running shoe

on, and the other with a perforated wellie boot!

Thanks to the tremendous spirit of the CRY office team led by our Removal Chief Tony and

our Office Administrator Sylvia, the move has been a fantastic success but the upheaval

was traumatic! We are only just now finding out what we have actually misplaced that is

definitely NOT responding to being searched for! We have also been sorting out a number

of time-consuming administrative issues including documentation to formalise the

loan/donation of ECG machines to doctors` surgeries and hospitals, doing a core funding

breakdown for all of you to see where your money goes, writing a manual (available in late

Spring) that will explain what CRY does and how you can all help us do it and resolving

the dispute over the retrieval of CRY goods from our Scottish Representative Lynne Lewis.

Just to clarify this issue - if a Volunteer is no longer associated with CRY it is a legal

requirement that all assets must be recovered as CRY must account for them. It is most

unfortunate that a misunderstanding seems to have arisen with Lynne with regard to

ownership of purchases/ work done during her time working as a Volunteer with CRY.

Tony's printer problems have now been sorted and with the output of this Update he is

optimistic that the March/April issue will be on time. There will have been three

consecutive months fielding Brochure Updates - no wonder we feel we are pumping iron

at the moment!

We have reorganised our Representatives structure and will be having 8 UK Divisional

Representatives with formal signed Guidelines in place to outline the support CRY will be

giving them. I would like to take this opportunity of welcoming Sinead Chapman and Marie

Greene who are to be our newly appointed Northern Ireland and Eire Divisional

Representatives. Divisional Representatives will also be selected for Wales, Scotland and

North, South, East and West of England.

We are now currently in overload on our ECG Testing Programme! There has been such a

strong response to this initiative that we have had to temporarily introduce a wait list until

all our "first" group of Programme Managers are up and running to their satisfaction.

The Cliff Richard Tennis Trail are for the fifth consecutive year supporting CRY by putting

our information into all of their school resource packs which will go out to 200 State Primary

Schools that they visit and we would like to say a very special thank you to the Director of

the Foundation Sue Mappin who has been so very supportive of our campaign.

We have now had the first of our 6 residential CRY Counselling Training weekends with 13

students participating in our specialised course for selected CRY Volunteers. This is being

held at the University of Wolverhampton where our Chairman Dr Greg Whyte has organ-

ised facilities for us. The course is under the experienced tutelage of Julia Cayne whose

patient good humour and skill has reassured most of her students, most of the time!

So with all this behind us, and many exciting things beckoning, I believe CRY is well primed

for the Millennium - and poised to take a deep breath, discard the wellie, and be prepared

with both running shoes laced and ready - to burn track again!

JULIE`SINTERVIEW

WITH

MARALYNBOWENTRAINEE

COUNSELLORFOR CRY

JULIE How did you first get involved with CRY?

MARALYN After loosing my 19 year old son Ian from Wolfe Parkinson White Syndrome, I read amagazine article and then telephoned CRY.

JULIE What did you have to do to be awarded a Certificate in Basic Counselling Skills?

MARALYN I went to a local college. I had to keep a journal, do a 2000-word research project and alsoan applied situation.

JULIE How will you help CRY after you have done their Counselling Course?

MARALYN I hope to be able to take some of the pressure off Alison and the office staff.

JULIE What is it like counselling?

MARALYN It is very interesting. A parent can feel comfortable and reassured speaking to you, knowing that you have been through what they are going through.

JULIE What is it like raising money for CRY?

MARALYN It can be hardwork fundraising, but the social evenings are very enjoyable and usually good fun.

JULIE Does your husband Kenny help you? if so, how?

MARALYN Yes, Kenny helps a lot and some of the things Kenny has arranged himself, e.g. a Coast to Coast Bike Ride.

JULIE How much money have you raised for CRY?

MARALYN About £16,000.00 up to now.

JULIE What sort of things have you done to raise money?

MARALYN Raffles, Tombolas, Coffee Mornings, Pie and Pea Suppers and Quizzes. Also a lot of sponsored events e.g. Coast to Coast Bike Ride, Head Shave, Boxing Day Dip into the North sea and Marathons.

JULIE What sort of person do you need to be to be a counsellor?

MARALYN Approachable, genuine, understanding, sincere and honest.

JULIE What do you hope for CRY in the future?

MARALYN I hope that CRY can convince the Government of the problem of Sudden Death Syndrome and then they will accept some responsibility and screen children in school as part of their medical.

I hope that CRY can convince theGovernment of the problem of Sudden

Death Syndrome and then they will acceptsome responsibility and screen children

in school as part of their medical.

Theme - Counselling

Photo-Call

WHAT ARE

THESE TWO

UP TO ?

. . . . . . .

. . . . . .!

Counselling is aboutListening & Hearing

can you find

these words?WORDSEARCH

Special thanks to Peter

McDowall who has

donated his beautiful

Apple Mac Computer to

CRY Core Funding.

Peter is pictured here on

top of one of the 11

Monroes he climbed for

Cry raising £379.65.

IN MEMORY OF

IAN BOWEN

Michael Cousins

age 12 took part

in The Junior

Great North Run

and raised a

fantastic £137.00

ELTHAM STINGRAYS SWIMMING CLUB RAISED £1502.30This fantastic amount was raised by some of the swimmers from the Club by

participating in a Sponsored Swim, which was held during one of their training

sessions. Sheila Clarke CRY`s London Representative went along to start things off

and stayed to talk to the children and the parents. Everyone had a great time and the

swimmers did brilliantly. The youngest were 7yrs and some of their older brothers

and sisters joined in as well. Special thanks to Pat Middleton for organising the

event, she wrote in to tell us “I didn`t dream we would raise this amount of money”.

Also to the Eltham, and the Welling McDonalds Franchises for making sure no-one

was left thirsty by donating some Orange Juice. Safeway Supermarket Blackfen also

helped out by donating Mars Bars at a reduced price so everyone could have one

after their Swim. (also see Raising Awareness)

MIKE SCOTT MEMORIAL FUND1/2 dozen students made a Static Line Jump in Bridlington, they included Claire &Rachel, who were at the time attending Lady Lumley`s 6th Form (Mike`s old School).After a days Ground School they were ready to go. One CRY Jumper had neverflown before! (Well done Gazzer). You can see below how exciting theexpierience must have been. A fantastic £754.00 was raised in Mike`s memory.

Are you sure this

thing will really fly?

...And Rachels brilliant landingAfter the jump....

WOW that was great!

Claire`s brave descent Rachel`s brave descent

Claire`s brilliant landing

Claire & Rachel are all

kitted up and ready to go

What a fantastic achievement - well done girls!

JAN SMITH CRY`S ADMINISTRATOR

REPORTS FROM

Alison has given me an opportunity to write a

"Reporters Review" on what's happening here at St

George's. This will be a regular slot in the Update

Brochure, so I hope it will provide a general

overview of progress and pitfalls with particular

regard to CRY's medical initiatives. It will also give

me a chance to let everyone know of developments

and issues all at the same time. Talking with some

of the CRY families on a more regular basis than

others means that information does get about, but

not necessarily in the right order!

Many people who move into a brand new post have

what's known as a "period of rest", prior to the work

taking off - not quite the case with CRY! A rather

solid looking box-file was handed over, and that

was it, I was up and running. A big thank-you goes

to Mike Foster for his help and patience (ongoing!)

over me taking on the files relating to the ECG

Programme.

So, we now have a fully functional office based within Cardiological Sciences. The telephone

number is 0181 725 5098, Fax No is 0181 725 5905 and the e-mail is jsmith@SGHMS.ac.uk

The correct address is at the bottom of the report. I currently share office space with Dr

Sharma which has proved very helpful. We don't see each other on a daily basis, but it means

that CRY has better access to the medical team who support our work.

Firstly, an update on medical initiatives:

SCOTLAND - We are pursuing CRY's ECG Community Testing Programme in the West

Lothian area and making steady progress with the local Council Board who are pleased to now

have the opportunity of working directly with CRY. Alison Cox will be visiting the Council with

Dr Sharma in early May to discuss plans for the ECG Testing Programme.

In the Highlands, Alex Fotheringham is storming ahead with Ethical Approval and has

approached two Councils, one is the Western Isles Health Board, the second being the

Highland Health Board . Western Isles has already responded to the initial submission and we

have responded to their question in time for the next meeting of the Ethics Committee at the

end of March. The application to the Ethical Committee of the Highland Health will be made in

time for the end of March too. Well done Alex!

WALES - Maureen Ward applied for Ethical Approval via Dyfed Powys Research Ethics

Committee. The project has received a good response with just a few points to settle. These

have been answered bar one, and we are pushing for information on the level of support that

West Wales General Hospital might be able to offer.

In case you aren't aware of this, each Ethical Application form is different, so we can't have set

answers to questions.

EASTERN ENGLAND

- Caroline Gard as Divisional Representative for East of England will shortly be pursuing

Ethical Approval via the East Essex Health Authority.

CRY will only be progressing a limited number of Ethically Approved Programmes at this stage

as they are very expensive and time consuming projects to manage and maintain.

Issues around Testing and Screening:

Jo and Charlie Cross have booked another CRY Mobile Screening weekend in

Northumberland. They have had terrific support for this event and Dr Sam Firoozi will be going

up to join them along with our Field Manager, Harry Hindle, the Man with the Van.

Irene Wickers will also be running a Mobile Screening session, but we need to confirm that

provisional dates will be OK for the rest of the team. Granville Staff is aiming to have a

session, based within the school that his son David attended later on in the year.

Much work has been carried out on improving our working relationship with Marquette Hellige,

our ECG supplier. Thanks also go to John Bick for putting in long hours discussing our needs

with Marquette to ensure that CRY receives the best possible service. We are planning to meet

with the MD in early April to resolve a few long-standing issues.

GENERAL

I realise that many of you will have been wondering why your own particular project has not

progressed as fast as you would have wished. Quite a lot of time has been spent on resolving

one key issue, essentially concerning academic rights to CRY's material and property. We

have moved forward on this, and hope to have this particular issue fully resolved in the near

future.

Alison, Mike and I are in the process of devising a manual for CRY contacts. This will give a

full explanation of finances within CRY, options for involvement with the Charity, how to deal

with the media, clarification of roles within CRY and a full explanation of how the 25% core

funding is used. This will help both newcomers to the Charity and those wishing to clarify cer-

tain aspects of involvement. Once the first draft is complete, a number of CRY contacts will be

approached for comments/amendments. With this in place, the intention is to approach the

business community for financial support for CRY.

A lot of the work I handle on a day-to-day basis is both absorbing and rewarding, but it's not

the stuff of headlines. I receive a lot of one-off requests for assistance or information and they

usually require a speedy response, so prioritising can become a bit of juggling act. CRY is both

proactive and reactive to its workload at the current time, and I am enjoying being part of an

organisation which offers families such a specialised service. Please feel free to contact me at

any time if you have an issue regarding the testing or screening programmes, or indeed

anything that falls outside the remit of Head Office - I'd be happy to help.

I'm away for two weeks from 21st March - but look forward to keeping you up to speed with

further developments.

Best wishes,

Jan

CRY Administrator, c/o Cardiological Sciences, 2nd Floor, Jenner Wing, St George's Hospital

Medical School, Cranmer Terrace, Tooting, London SW17 0RE.

CARDIOLOGICAL SCIENCESST GEORGES HOSPITAL

MEDICAL SCHOOL

On May 11th 1998, which incidentally is my birthday, I went for my first ever run - half

a mile up the road and I was walking!! I ended up covering two miles that day, part

running and part walking and then decided that I would like to run the London

Marathon. I had always had a sort of secret ambition to do something like that but

had never done anything about it until then. I put these mad ideas down to my age,

but I think other people have different explanations?!

On a serious note, my real inspiration was that in March 1998 a little girl, Sarah Louise

Williamson who was in my class at Martock School, died suddenly and I felt I would

like to do something worthwhile in her memory. So I decided to run the Marathon in

aid of CRY, in memory of Sarah.

Anyway the decision was made and I

told as many people as possible what I

had decided - now I couldn't back out!

Sarah's Mum and Dad, Sharon and

Lewis, were very supportive right from

the start, although it was obviously a

very difficult time for them.

I started running on a more regular basis

and gradually built up the miles until I

could run 6 miles fairly comfortably. I

tried to push to the back of my mind that

I would need to run four times that

distance and a bit more to complete the

Marathon!

I then joined a local running club and

with their support and encouragement

began extending the distances I could

run. I'd like to be able to say increasing my speed as well, but! - anyway I trained

hard and apart from an injury which set me back slightly, everything went very well.

My training included leading all three hundred pupils of Martock School in a

Mini-Marathon around and around and around the school playing fields. This event

raised £800 in aid of CRY, which was our chosen school charity for the year.

All too quickly it was April 17th - pre-race day. I travelled to London by coach accom-

panied by Sharon, Lewis, my two sons and Rob Butler and his family. Rob was also

running the Marathon in aid of CRY.

The day of the Marathon dawned and I felt sort of detached - could this really be me?

Probably not! But then there I was, lining up with thousands of other people of all

ages, shapes and sizes ready to run the 26.2 miles. It took 12.7 minutes to get to

LIZ FOY RAISED £2,000 IN MEMORY OF

SARAH LOUISE WILLIAMSON

BY RUNNING IN THE FLORALONDON MARATHON

the start line and we were on our way. The atmosphere was brilliant - so many

people all shouting encouragement and so many runners. The first mile seemed

quite long but then I settled down and got into a sensible pace and began to enjoy

myself. I ran with Jasmin who I met at the start and we stuck together all the way

round.

At 11 miles, I was feeling good - I wasn't worrying about my time, all I wanted to do

was to finish, to enjoy myself and to run all the way. My son Luke and some other

friends were waiting at around the 11-mile point and their 'personal' encouragement

was brilliant.

Somewhere amongst the crowds at the Cutty Sark, I heard my name and briefly

caught sight of Sharon and Lewis. When I reached Tower Bridge, about halfway, the

atmosphere was electric - so many people just willing you to run. I kept hearing

shouts of "come on CRY lady!" (I must say I'm not often called a lady) and it made me

feel really special.

As I headed for the Docklands area, coming back up the other side of the road were

those runners at the 20-mile mark, lucky devils! Never mind, only a little loop and I

would be there too.

The little loop was actually quite a long loop but I enjoyed it all - the bands, the music,

the cheers, the chant, how could you fail to be inspired! Anyway, eventually there was

the 20-mile mark - and another 6 miles to go, now I really knew I could do it.

At 23 miles there were some friends and colleagues from school who were there to

cheer me on. I heard later that they had also seen me at Tower Bridge, probably at

the time I was too busy posing for my photograph so I didn't notice them!

24-miles and there was Jody my other son, and Claire his girlfriend, waiting patiently

and watching all the runners go past.

By the way the cobbles were over and done with - I hardly noticed them, well - not

much anyway.

All too quickly there was Big Ben and I knew the end was in sight. Here the crowds

were really thick and they shouted and cheered and almost seemed to carry the

runners along. By this time I was still running - a bit slowly maybe, but I didn't walk a

step - in fact I was worried about whether I would be able to walk when I needed to.

Buckingham Palace to the left and I swung round in to The Mall and what did it say

in big letters across the road? It began with F -, yes it really was the FINISH. I had

done it! As I ran over the line my thoughts did a flashback - was this really me? Had

I really done it? And Sarah's lovely little face came into my mind. "Yes, I had done it

- thank you Sarah".

FAMILY, FRIENDS, WORK COLLEAGUES AND BUSINESSES

HAVE ALL HELPED TO RAISE

Andy Traynor & Ian Hornby Great North Run John & David Allison

Great North Run (David

competed in the Junior event)

Caroline Lucas was a bright, happy &

beautiful 3rd year student studying

Biomedical Sciences at Durham

University. She had been considering her

career options which could have involved

working in Cancer Research, going

abroad to do Post Graduate Research, or

seeking a Research Grant to do a PHD. On

January 19th 1999 she said goodnight to

her parents after revising for an exam,

went to bed and died. Caroline was just 21

years old. The Pathologist said at the

inquest that it was entirely possible that it

was a case of Sudden Death Syndrome

Following her Death several fundraisings have taken place. Caroline`s Uncle Ian

Henderson`s work colleagues from GN Netcom started off the fund with a donation

of £65.40 and it has been gathering steam ever since. The Sunderland Careers

Service where Iris (Caroline`s Mum) works held a 60`s Revival Dinner Dance which

was attended by Tony and Iris who enjoyed an excellent evenings entertainment with

a live band and a raffle & raised a super £511.00. The Great North Walk (see

opposite photo page) raised a brilliant £1,007.91. A Charity Concert was held and

raised a fantastic £2,429.42. And 4 runners (seen below) raised a great £307.50 by

competing in The Great North Run. Barclaycall (who are the telephone answering

service of Barclays Bank) Sports and Social Club held a one off fundraising at their

Doxford Park, Sunderland Call Centre and raised a fantastic £622.00. Two National

Banks on a matched £ for £ Charity Donation Scheme also helped the fund with a

great £500.00 from Lloyds / TSB Foundation, and Barclaycall donated a whopping

£2,778.04. All of this has happened in just over a year! Tony (Caroline`s Dad) writes

“We hope that the contributions we have forwarded to you will assist in saving at least

one young life and prevent another tragedy occurring to another family like ours”

A FANTASTIC £8,227.35 IN MEMORY OF

CAROLINE LUCAS

The CRY Walkers were Iris Lucas

(Caroline`s Mum), Evelyn Brace, Suzanne

Hoole, Elspeth Hornby, & Ian Hornby

(Caroline`s former Boyfriend).The Great

North Walk was 10 miles in and around

Durham City - they`re on their way!

All The CRY Walkers resting outside

the beautiful Durham Cathedral

Crossing The River Wear

Suzanne Hoole - on route

Evelyn, Elspeth & Iris enjoying the walk

Elspeth, Evelyn, Iris, Ian & Suzanne showing off their Certificates after completion

CRY COUNSELLINGCOURSE 2000

The CRY counselling course is

being held throughout 2000.

Participating students are finding it

challenging,exhausting, nerve

wracking and very worthwile.

Course Tutor Julia Cayne has said

how delighted she is with the

commitment and responsiveness

of her group of Trainees

Ready to go

Have Maralyn & Roy colluded on this one?

What a great answer!

A time for some serious reflection

Julia fielding another

provocative question

CRY COUNSELLINGCOURSE 2000

Thank God that`s over!

Sinead & Marie getting

down to business....

....fortified by some English tea

Winding down after a long day

A welcome break for Mike and Caroline

I wonder if that is what Freud really meant?

Keeley`s “Role Play” gives Julia plenty to think about

RAISING AWARENESS

With Permission 19 Magazine 00

RAISING AWARENESS

With Permission 19 Magazine 00

RAISING AWARENESS

With Permission The Big Issue in the North 31.01.00

RAISING AWARENESS

With Permission The Big Issue in the North 31.01.00

RAISING AWARENESS

With Permission The Herald 25.02.00

RAISING AWARENESS

With Permission

RAISING AWARENESS

With Permission Football Echo 29.01.00

RAISING AWARENESS

With

Permission

The Times

03.03.00

With Permission The Colchester Express 17.02.00

With P

erm

issio

n T

he T

enby O

bserv

er

11.0

2.0

0

OFFICE FURNITURE

APPEAL

We have now moved into

local offices and

desperately need Office

Furniture. We would very

much appreciate items

donated or at very

special prices.

especially sound proofedpanels!

Please contact the CRY

Office if you can help us

in any way

CHRISTMAS CARDS 2000

WE ARE NOW PLANNING OUR

CHRISTMAS CARD SELECTION FOR

THIS YEAR. IF YOU HAVE A CARD

DESIGN YOU COULD DONATE TO CRY

WE WOULD BE MOST GRATEFUL TO

HEAR FROM YOU.

PLEASE CONTACT CAROLINE GARD ON

01255 - 673598

OR VIA E MAIL

carolinegard@hotmail.com

IF ANYONE HAS ANY

QUERIES ON ECG

PROGRAMMES OR MOBILE

SCREENING ENQUIRIES

PLEASE CONTACT JAN SMITH

CRY`S ADMINISTRATOR AT ST

GEORGES HOSPITAL MEDICAL

SCHOOL ON 0181 725 5098

OR jsmith@sghms.ac.uk

E MAIL CONTACTSKeeley Ashley - Keeley.Ashley@Supplies-Team.co.uk

Roy Ball - royandgillball@selcroftavenue.freeserve.co.uk

Nigel & Jenny Cole - nigel1949@hotmail.com

Jo & Charlie Cross - chascross@compuserve.com

Mike Foster - foster1m@aol.com

Caroline Gard - carolinegard@hotmail.com

Harry Hindle - Capt.Harry@ntlworld.com

Anne Jolly - jollyjon@netcomuk.co.uk

Alan & Gloria Moss - mosses@cherrystonescottage.freeserve.co.uk

Jan Smith - jsmith@sghms.ac.uk

Adrian Woodhead - adrian@woodhead88.freeserve.co.uk

More and morepeople are

using email asa fast

and convenientway of

communication.If you would like to be put on ourCRY list, please

email us withyour details.

NEW CRY GUIDELINES

BECAUSE OF THE GROWTH OF CRY,

GUIDELINES FOR REPRESENTATIVES

ARE BEING INTRODUCED WHICH WILL

BE AVAILABLE ON REQUEST. CRY

WILL BE INTRODUCING 8 U.K

DIVISIONAL REPRESENTATIVES WHO

WILL BE SUPPORTED BY COUNTY REP-

RESENTATIVES. OUR CRY

ADMINISTRATOR JAN SMITH IS ALSO

PRODUCING A MANUAL ON “GETTING

INVOLVED WITH CRY” WHICH WE HOPE

TO HAVE READY BY LATE SPRING2000

BULLETIN BOARD

Would you like to run in

The London Marathon for CRY?

If so please contact Mike Foster onphone 01329 231734 fax 01329 280379

Liz Foy for Sarah Louise Williamson 1999

BULLETIN BOARD

Special thanks to Julian Cox

for organising the donation of

7 terrific Office Desks & 8

Swivel Chairs from Ellis &

Partners to our new CRY office

THANK YOU- to Lorraine

Cooper for offering to do

voluntary typing for the office

If you would like Tony to consider any

item for Bulletin Board please fax

details (including your item) through to

him on 01372 279335

Anyone requiringCRY Posters or

SponsorshipForms pleasecontact Mike

Foster ProjectsManager on

01329 231734 or via

e-mail - addresson opposite page

It was with great concern we learnt

about SineadChapman (our new

Northern IrelandRepresentative)

requiring urgent surgery. Get well soonSinead and we look forward to having you

back on our Counselling Course ASAP!

RING FENCED FUNDRAISING

Please remember that unless you

notify us and get the necessary

documentation and confirmation

from the office for “ring fenced”

fund raising before you start a fund

raising venture all funds raised will

be used for CRY Core Funding.

Retrospective “ring fencing” is

unfortunately just not possible.

CRY can not be responsible for

any “ring fenced” fundraising

unless it has been authorised.

There were 8,000 nominations

and only 365 were selected. If

anyone knows who nominated

Alison to be a Children`s

Champion please call the office

LLuuccii’’ss LLoocckkeett ffoorr CCRRYYLuci has designed, especially for CRY, a

superb sterling silver (or 9 carat gold)

locket which opens to hold two photos.

The silver chain can be any length up to a

maximum of 20 inches, and the locket can

be personalised with the addition of any

initial. The cost, including post, packing & insurance is £75,00 and order forms are

available from the office. Gold initial and clasp are available for the additional charge

of £15.00. All lockets are made individually, hallmarked and engraved on the back

with CRY and our ECG line.

SECTION 64 GRANTS

CRY was again unsuccessfull in it`s application for a

Section 64 Grant for 1999. Ifanyone would like the list of

successfull applicants pleaseapply to the office

CRY`S Powerpoint Presentation is now

available in either CD ROM or FLOPPY

DISC formats. Ideal for fundraisings

where a computer can be used to dis-

play information about CRY. Also fea-

tured is CRY`S Website so if any of you

haven`t got access to the Internet and

you would like to see the site now`s your

chance! The cost is £10.00 inc P&P and

can be obtained from the office

Maureen Ward CRY`s

ECG “Consultant”!

Maureen has offered to

talk to anyone needing

help with organising

Mobile Screenings,

ECG Testing , or Ethical Approval. You name

it. She`s done it!

Try her on 01834 843742

June Boulton is dedicating

all her fundraising money

for office furniture and

equipment, in memory of

her 17 year old son John,

who died suddenly last

year in his sleep of Sudden

Adult Death Syndrome.

She is doing a “Pubs &

Clubs” circuit & would be

grateful for Raffle prizes. If

you have any ideas or

prizes please contact her on

0151 287 2519

LATEST STATISTICS

NOW REVEAL THAT

NEARLY 1 IN 100

CHILDREN ARE

BORN WITH A

HEART DEFECT

ESPECIAL THANKS TO NIGEL COLE FOR THE FANTASTIC

AMOUNT OF TIME HE SPENT IN ORGANISING THE ORDERING &

DELIVERY OF OUR WONDERFUL NEW VAN

CRY pubicity to watch out for

The BBC Series The Practice

Programme Name Second Chance

week begining

PLease bear in mind when organising fundraisings that you

take photos if at all possible of your great day it will also be

extremely usefull to Tony if when you write in to the office

that you clearly state how much was raised, and by who

Thank you

Christmas Cards 1999

Thank you to Jo & Charlie Cross

who donated £1,000 to cover

printing costs of their Christmas

Cards which enabled CRYto

make a profit for the 1st time

Have you run in The Flora London

Marathon for CRY?

did you raise at least £1,000?

would you like to be featured in our

Update Brochure?

can you write an account of your run in

400-700 words?

can you supply a photo of yourself at the

event?

If you have answered yes to all of the

above

please fax Tony on 01372 279335