Marie Lynch Programme Development Manager

Irish Hospice Foundation 26 March 2014

2013 - 2016

Three Outcomes

Palliative care for people with

dementia will be prioritised in all

care settings; and more

people will be supported to die

well at home

Better end of life care in

residential care settings for

older people with a focus on

people with dementia

Increased public awareness on

death and dying, with more

people including those with dementia,

engaging in early advance

planning

Practice tools, service models,

primary palliative care

Adaptation of HFH resources,

development and education for

residential settings

Roll out and adaptation of Think Ahead

STRATEGIC LEADERSHIP

Governance

Planning & monitoring

Strategic engagement

Communication

Evaluation

STRATEGIC LEADERSHIP

Key Partners Governance Group

4 Project Advisory Groups

Participation

Dissemination

NHI, HSE, Genio, ASI, Gerontology, SPC, medical, nursing, AHP, DCU and UCC

Public meetings, consultations, grant funding, seminars,

briefings, workshops

Information leaflets, communiques, website,

contact database

STRATEGIC ENGAGEMENT

1. TOOLS AND RESOURCES

2. WEB BASED LEARNING HUB

Palliative care for people with

dementia will be prioritised in all

care settings; and more

people will be supported to die

well at home

4. EVIDENCE BASED SERVICE MODELS VIA DEVELOPMENT GRANTS

3. SEMINARS & CONFERENCES

Palliative care for people with

dementia will be prioritised in all

care settings; and more people will be supported to die well at home

5. GP→OOH PALLIATIVE CARE HANDOVER FORM

6. IDENTIFY AND ASSESS PEOPLE WITH PALLIATIVE CARE NEEDS

Palliative care for people with

dementia will be prioritised in all

care settings; and more people will be supported to die well at home

7. INFORMATION LEAFLETS

8. REVIEW OF IHF NIGHT NURSING SERVICE

Palliative care for people with

dementia will be prioritised in all

care settings; and more people will be supported to die well at home

• Work with HIQA on the Focused Themed Inspections

• Support sites working toward HIQA Focused Themed Inspections

• Provide a system of audit and review for end of life care

• Develop toolkit to support

Better end of life care in residential

care settings for older

people with a focus on

people with dementia

END OF LIFE CARE IN RESIDENTIAL CARE SETTINGS

Better end of life care in residential

care settings for older

people with a focus on

people with dementia

EDUCATION AND STAFF DEVELOPMENT

Ensuring good end of life care in residential care settings and acute hospitals by giving staff the confidence and the competence to change their thinking and practice through

• Staff Development Workshops – What Matters to Me (a one-day workshop on

person-centred end of life care and communication for all staff of residential care settings)

– Final Journeys (a one-day workshop for acute hospital staff on communication and end of life care) and Dealing with Bad News (a half-day workshop for multidisciplinary teams and acute hospital staff)

These workshops are delivered by IHF staff (1.8 WTEs) and local facilitators trained and supported by IHF

Better end of life care in residential

care settings for older

people with a focus on

people with dementia

Educational ‘bundles’

– Flexible collections of different educational inputs including slide presentations, film clips and animated videos, downloadable resources, etc.

– These ‘bundles’ will be accompanied by facilitator guidance material to enable local facilitators to offer staff development and practice development inputs

Conferences and large-group presentations – e.g. HIQA conference presentations, NHI Education Days

We are confident that we will reach our target of providing training/ education to 3,000 healthcare staff over the course of Changing Minds

Better end of life care in residential

care settings for older

people with a focus on

people with dementia

Promoting a national dialogue

• Supporting media projects including a documentary

to raise awareness of end of life issues

• Producing information material in a range of formats to help inform people

• Engaging in cultural events to highlight dying, death and bereavement in a non-threatening manner

• Raising awareness among the media, public and politicians about the value of advance planning

• Advocating for a legislative framework for Advance Healthcare Directives

Increased public awareness on

death and dying, with more

people including those with dementia,

engaging in early advance

planning

Roll out and Adapting Think Ahead

• Working with supportive organisations to disseminate

the Think Ahead form

• Organising Train the Trainer sessions for Think Ahead

advocates

• Conducting research on the use of Think Ahead in a

range of care settings

• Developing a process to adapt Think Ahead for patients living with dementia

• Working with organisations to adapting Think Ahead for vulnerable adults

Increased public awareness on

death and dying, with more

people including those with dementia,

engaging in early advance

planning

EVALUATION

LEAP MODEL

IN CONCLUSION