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WELCOME TO CHANGING MINDS CHANGING LIVES The Canadian Paralympic Committee is partnering with SCI Action Canada for a quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine the reach and effectiveness of the CMCL program so that we can continue to offer high quality programming for healthcare professionals. Your participation would be greatly appreciated. To participate: please see read the Letter of Information in front of you. If you choose to participate, please sign the Consent form and begin the Pre-Presentation Questionnaire before we begin todays presentation.

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Page 1: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

WELCOME TO

CHANGING MINDS

CHANGING LIVES

The Canadian Paralympic Committee is partnering with SCI Action Canada for a

quality assessment study of the Changing Minds, Changing Lives (CMCL) program.

The study will help the Canadian Paralympic Committee determine the reach and

effectiveness of the CMCL program so that we can continue to offer high quality

programming for healthcare professionals. Your participation would be greatly

appreciated.

To participate: please see read the Letter of Information in front of you. If you

choose to participate, please sign the Consent form and begin the Pre-Presentation

Questionnaire before we begin today‟s presentation.

Page 2: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

CHANGING MINDS

CHANGING LIVES

HEALTHCARE PROFESSIONALS AS KEY INFLUENCERS

Rich Vanderwal Canadian Paralympic Committee

Page 3: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

SESSION OVERVIEW

1. Why we are here and how we can help you

2. Why you should care

3. What is parasport?

4. How you can participate

5. How you can do it

6. Question and answer session

Page 4: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

WHY ARE WE HERE? HOW CAN WE HELP YOU?

Changing Minds, Changing Lives (CMCL)

• Increase awareness

• Provide information, strategies, and

resources to key influencers – like you!

Our goal

• EXCITE, MOTIVATE, AND SUPPORT YOU!

• Physical activity and sport as vehicle for

physical and psychosocial growth

• Increase participation rate and duration

Page 5: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

MY INTERESTS

Page 6: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

WHY YOU SHOULD CARE

Physical activity is associated with a reduced risk of over 25 chronic

conditions:

• Heart disease, stroke, hypertension

• Type II diabetes

• Osteoporosis

Economic burden of physical inactivity in Canada is $5.3 billion/year

• $2.1 billion/year burden directly to Canadian health care system

(Warburton et al., 2007; Garshick et al., 2005; Katsmarzyk & Janssen, 2004)

Page 7: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

WHY YOU SHOULD CARE

Adults with

a disability

Able-bodied

adults

Poor health 25% <5%

Moderate physical

activity

3%* 48%

Organized sport 3%* 30%

(Advancing the Inclusion of Persons with Disabilities, 2004; Physical Activity Monitor, CFLRI 2008; Physical Activity and Limitation Survey, 2006)

14.3% of Canadians have a disability…

*Age range is 5-54 years

Page 8: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

BENEFITS OF PHYSICAL ACTIVITY

• Physical

- Minimizes de-conditioning and enhances rehabilitation

- Optimizes physical functioning independence

• Psychological

- depression, anxiety, body image, quality of life

- Improved memory and concentration

- Sense of accomplishment

- Outlet for stress – fun!

• Social

- Generates social support network

(www.publichealth.gc.ca; www.HealthyCanadians.gc.ca)

)

Page 9: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

IMPORTANCE OF PHYSICAL ACTIVITY

Benefits are MORE important to individuals with a disability

(both congenital and acquired)

Individuals with a disability:

• Have more sedentary time

• At greater risk for health

complications

• Are less likely to be involved

• Participate less intensely

(King et al., 2009; Canada Sport Centres, 2008)

Page 10: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

PARASPORT:

THE IDEAL MEANS OF PHYSICAL ACTIVITY

• Sense of accomplishment

• Act as role model

• Increase social awareness

• Promote community involvement

- All disability groups

- Inclusion

(Policy on Sport for Persons with a Disability, 2006)

Page 11: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

(www.paralympic.ca)

SOMETHING FOR EVERYBODY AND EVERY ABILITY

Page 12: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

(www.paralympic.ca)

• Athletics

• Archery

• Boccia

• Canoe-kayak

• Cycling

• Equestrian

• Goalball

• Judo

• Powerlifting

• Rowing

• Sailing

• Alpine Skiing

• Biathlon

• Nordic Skiing

• Sitting Volleyball

• Soccer

• Swimming

• Table Tennis

• Triathalon

• Wheelchair

Basketball

• Wheelchair

Fencing

• Wheelchair Rugby

• Wheelchair Tennis

• Sledge Hockey

• Wheelchair

Curling

• Badminton

• Bobsleigh

• Dancesport

• Field Hockey

• Football

• Gymnastics

• Karate

• Skeleton

• Snowboard

• Synchronized Swimming

• Taekwondo

• Waterski

• Wakeboard

A SPORT FOR EVERYONE!

Page 13: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

Stage 1 – First Reactions

Stage 2 – Making assumptions

Stage 3 – Accommodating the situation

Stage 4 – Getting into the technical

aspects

Coaching an Athlete with a Disability

Page 14: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

TIPS FOR COACHES WORKING WITH

PARTICIPANTS WITH A DISABILITY

Rely on basic coaching principles

Assess interests, needs and ability and

plan a training program accordingly

Understand how the impairment affects

the participant‟s performance

Communicate effectively

Set realistic and challenging goals

Page 15: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

ACTIVE FOR LIFE!

(Canadian Sport for Life, 2007)

Life

sp

an

Page 16: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

PARASPORT

PROGRESSION

(LTAD)

Competitive

Recreational

YOU

Page 17: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

WHAT YOU CAN DO

… and you can‟t have a playground

full of kids if someone doesn‟t tell

them that there is a playground for

them!

You can‟t have a podium full of medalists…

…without a playground full of kids.

Page 18: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

WHAT YOU CAN DO

32.3% of Canadians with a disability visit their physician at least once

a month

• Patients are 54% more likely to be active if physician prescribes

physical activity!

• But only 11% of physicians refer patients for physical activity

programs

ALL health care providers can play a role!

• People with a disability want information from credible sources

(Federal Disability Report, 2010; Weidinger et al., 2008; Petrella et al., 2007; Faulkner et al., 2010)

Page 19: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

What You Can Do – Athlete’s Story

“I was told by my physio when I was in rehab: „If you're not falling out of your

chair once a day, you're not trying hard enough‟. She let me know that I

wasn‟t fragile or going to get more broken… I could still get bumped and

bruised and take a fall like I used to.”

- Chris, Alpine-ski, Waterski, Triathlon

Page 20: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

What You Can Do – Athlete’s Story

“My family practitioner holds me accountable. It is

always very friendly, the first question when I

come in is „So how's the rowing? Are you still

working out?‟ I always knew I was living in an

athlete's body but had no way to access this until

rowing came into my life. I always feel incredibly

fortunate, not only because I found this sport, but

that I am able to participate in it. It has been very

liberating in many ways.”

-Bernadette, Recreational Rower

Page 21: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

What You Can Do – Athlete’s Story

“I was really glad when my Recreation

Specialist suggested I try sit skiing. At first, I

could not even think about what it was all

about, but I have learned that it is something I

can do for fun! Through being involved in

cross-country skiing I have had the opportunity

to meet lots of new people, to travel and I have

had to do some public speaking and quite a

few interviews with the media. I would love to

see more people with a disability like me out

skiing. My Recreation Specialist got me into

this and I plan to enjoy it to the fullest!”

- Pamela, Cross-country skiing

Page 22: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

HOW YOU CAN DO IT

Step 1: YOU ARE HERE!

• Focus on what your patient/client CAN do!

• Understand the benefits of physical activity and sport for persons with a

disability

• Advocate that a disability is not a barrier to participation

(Murphy, Carbone, et al., 2008)

Page 23: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

HOW YOU CAN DO IT

Step 2: During your patient/client‟s regular visits, talk to him/her about

being active.

“Are you doing any physical activity?”

Patient/client must be ready and motivated

to participate

“No” “Yes”

Page 24: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

HOW YOU CAN DO IT

Step 2: If “No”… ask “What is holding you back?”

Common barrier How to talk about it

Health concerns Discuss (1) benefits of physical activity for physical and

psychological health, and (2) risks of inactivity

Skill/challenge gap Reinforce “Something for Every Body!” or schedule/attend a First

Contact session

Fear of

injury/stigmatization

Discuss that injuries are not any more common, and that

activities promote inclusive environments

Lack of social support Encourage important others who can also get involved

Lack of resources Direct to “Get Involved Portal” and Physical Activity Guidelines

Page 25: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

HOW YOU CAN DO IT

Step 2: If “Yes”…

“What activities are you doing? Are you enjoying them? Have you

tried more than one?”

Direct to “Get Involved Portal”

for more ideas

www.paralympic.ca/getin

volved

“Great! How much

activity are you doing?”

No Yes

Physical activity guidelines

Page 26: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

HOW YOU CAN DO IT

Step 2: Physical Activity Guidelines for SCI

SCI is the only disability to group to have evidence-based physical activity

guidelines

Note: “fitness benefits” vs. “health benefits”

(www.sciactioncanada.ca/guidelines)

Page 27: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

HOW YOU CAN DO IT

Step 2: Able-Bodied Physical Activity Guidelines

(www.csep.ca)

Page 28: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

HOW YOU CAN DO IT

Step 2: Physical Activity Guidelines

SCI

CP, amputees,

“les autres”

Visually

impaired

(SCI Action Canada, 2011; CSEP, 2011)

Page 29: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

HOW YOU CAN DO IT

Step 3: “Let me give you more information.”

• Be gateway to resources

• “Get Involved Portal”

www.paralympic.ca

Page 30: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

‘GET INVOLVED’ ONLINE PORTAL

Page 31: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

HOW YOU CAN DO IT

Step 3: “Let me give you more information.”

• Be gateway to resources

• “Get Involved Portal”

www.paralympic.ca

• CMCL Coordinator & Advisory Council

• cmcl[province]@paralympic.ca

• CPC Social Media – Facebook/Twitter

• Local resources

o [Provincial sport organization]

o What local resources can you share?

Page 32: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

TAKE-HOME POINTS

• Focus on what your patient/client CAN do!

• YOU are a key influencer in the life of someone with a disability! 3 steps!

• Involvement in physical activity and parasport important – encourage

“Active for Life”

Page 33: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

Q&A SESSION

Page 34: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

THANK YOU FOR ATTENDING CHANGING MINDS,

CHANGING LIVES

Please complete the last two pages of the Evaluation Package in front

of you.

If you are taking part in the study for SCI Action Canada, please ALSO

complete the Post-Presentation Questionnaire at this time.

Please return your Evaluation Packages to the CMCL presenter before

you leave today. Your feedback is appreciated!

THANK YOU!

Page 35: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

REFERENCES #1

• Canadian Paralympic Committee Website. (2011). Canadian Paralympic Committee. www.paralympic.ca

• Canadian Society for Exercise Physiology. (2011). Physical activity guidelines 2011. www.csep.ca

• Canadian Sport Centres (2008). No Accidental Champions: Long-Term Athlete Development for Athletes

with a Disability (A supplement to “Canadian Sport for Life”). ISBN 0-9738274-2-4

• Canada Sport Centres, LTAD Expert Group and Groves, J. (2007). Canadian Sport for Life: A Sport

Parent’s Guide.

• CFRLI 2008 (http://www.cflri.ca/eng/provincial_data/pam_2008/canada.php)

• Faulkner, G., Gorczynski, P., Arbour, K., Letts, L., Wolfe, D., & Martin Ginis, K. A. (2010). Messengers

and methods of dissemination health information among individuals with spinal cord injury: A scoping

review. In T.C. Berkovsky (Ed.), Handbook of spinal cord injuries (pp. 349-374). Nova Science

Publishers, Inc.

• Fullerton, H. D., Borchardt, J. J., & Alfano, A. P. (2003). Shoulder pain: A comparison of wheelchair

athletes and nonathletic wheelchair users. Medicine & Science in Sports & Exercise, 35, 1958-1961.

doi:10.1249/01.MSS.0000099082.54522.55

Page 36: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

REFERENCES #2

• Garshick, E., Kelley, A., Cohen, S. A., Garrison, A., Tun, C. G., Gagnon, D, and Brown, R. (2005). A

prospective assessment of mortality in chronic spinal cord injury. Spinal Cord, 43, 408-416.

• Health Canada, Statistics Canada. Canadian Community Health Survey 2008

• Healthy Canadians Website (2011). Government of Canada. www.HealthyCanadians.gc.ca

• Human Resources and Skills Development Canada. (2010). Federal Disability Report, The Government

of Canada’s Annual Report on Disability Issues. http://www.rhdcc-

hrsdc.gc.ca/eng/disability_issues/reports/fdr/2010/page08.shtml

• Katzmarzyk, P. T., & Janssen, I. (2004). The economic costs associated with physical inactivity and

obesity in Canada: An update. Applied Physiology, Nutrition, and Metabolism, 29(1), 90-115.

• King, G., Petrenchikc, T., Law, M., & Hurley, P. (2009). The enjoyment of formal and informal recreation

and leisure activities: A comparison of school-aged children with and without physical disabilities.

International Journal of Disability, Development and Education, 56(2), 109-130.

doi:10.1080/10349120902868558

• Murphy, N., Carborne, P., & the Council on Children with Disabilities. (2008). Promoting the participation

of children with disabilities in sports, recreation, and physical activities. Pediatrics, 121, 1057-1061.

Page 37: WELCOME TO CHANGING MINDS CHANGING LIVES · quality assessment study of the Changing Minds, Changing Lives (CMCL) program. The study will help the Canadian Paralympic Committee determine

REFERENCES #3

• Office for Disability Issues of Social Development Canada - Advancing the Inclusion of Persons with

Disabilities 2004: A Government of Canada Report, 2004. Policy on Sport for Persons with a Disability

(2006) http://www.pch.gc.ca/pgm/sc/pol/spt/tdm-eng.cfm

• Petrella RJ, Lattanzio CN, Overend TJ. (2007) Physical activity counseling and prescription among

Canadian primary care physicians. Archives of Internal Medicine, 167(16), 1774–1781.

• Policy on Sport for Persons with a Disability (2006). Canadian Heritage Website.

http://www.pch.gc.ca/pgm/sc/pol/spt/tdm-eng.cfm Catalogue No.: CH24-14/2006E-PDF ISBN: 0-662-

43017-4

• Public Health Agency of Canada Website. (2011). Public Health Agency of Canada.

www.publichealth.gc.ca

• SCI Action Canada Website (2011). Physical Activity Guidelines for Adults with Spinal Cord Injury.

www.sciactioncanada.ca/guidelines

• Statistics Canada. Participation and Activity Limitation Survey 2006: Tables. Ottawa: Statistics Canada,

2007 (Cat. No. 89-628-XIE - No. 003). http://www4.hrsdc.gc.ca/[email protected]?iid=40

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REFERENCES #4

• Warburton, D. E. R., Katzmarzyk, P. T., Rhodes, R. E., and Shephard, R. J. (2007). Evidence-informed

physical activity guidelines for Canadian adults. Applied Physiology, Nutrition, & Metabolism, 32, S16–

S68 doi:10.1139/H07-123

• Weidinger, K. A., Lovegreen, S. L., Elliott, M. B., Hagood, L., Haire-Joshu, D., McGill, J. B., & Brownson,

R. C. (2008). How to make exercise counseling more effective: Lessons from rural America. The Journal

of Family Practice, 57(6), 394-402.