uk renal registry update 2010

UK Renal Registry Update

2010and future plans

Chris MaggsDeputy Director

Overview

• Registry structure & development• Registry Report• Work in progress

• Registry strategy and plans• Quality improvement• Registry collaborations

Registry Staff• Chairman• Director• Deputy Director• Business Manager• Project manager• Clinical Informatics manager• Statisticians• IT database support• Data management• Secretarial support

Registry

OfficeContact info

Core fundingCapitation

Registry IT

Re-written the UKRR databaseNew hardware (Linux box)New databaseNew language for file loading routines

= New error reportsAdditional validationsUpdated for NRD

IT support for new web based databases

New data items

Pre RRTCKD 5 (at 6 sites only)Report soon

Monthly extracts of lab data in quarterly data extract (+dates)

Access – vascular & PDHD individual session logging

Registry Reports

ANNUAL REPORT

Commissioner specific Report

Transplant specific Report to BTS

Renal Patient View

Keith Simpson & Neil Turner continue to direct strategy and development

Management moved to BristolRegistry Informatics manager

handling email queries

Funded £2.50 (inc VAT) per RRT patient

Web based Rare Disease Registries

(RaDaR)

Renal Data Map Atlas

Grant from Dept Health

East Midlands PHO

Afzal Chaudhry

http://www.renalreg.com/interactive-maps/

Centre specific reporting

Centre specific reporting

Centre specific reporting

Registry Meetings

2010 Renal PatientView ConferenceDate to be confirmed Q2

2010 Registry Annual Audit MeetingThursday 10th June

REGISTRY 5 YEAR STRATEGY

• The UKRR will be the dominant organisation producing high quality information on all aspects of the treatment of adults and children with kidney disease in the UK.

• The UKRR will report on variations in outcomes to drive improvement in the care of patients with kidney disease.

5 YEAR STRATEGY

• FINANCIALLY VIABLE

• RECEIVE DATA ON 100% OF PATIENTS ON RRT

• INCREASE IN NUMBERS OF RARE KIDNEY DISEASES

5 YEAR STRATEGY

• CONTINUE TO PRODUCE ANNUAL REPORT

• WEB BASED QUARTERLY CENTRE-SPECIFIC STATISTICAL PROCESS CONTROL CHARTS USING QUATERLY DATA: BY 2015, QUARTERLY REPORTS TO INCLUDE MONTHLY DATA

5 YEAR STRATEGY

• PATIENT-FACING SUMMARY REPORT FOR PATIENTS BY 2012

• ANNUAL REPORT TO INCLUDE CASE MIXED ADJUSTED OUTCOME ANALYSES BY 2013

5 YEAR STRATEGY

• BY 2015, REPORT ON:

• Cost of care• Bacteraemia• Vascular access• Dialysis dose• Cause of death• Patient experience/outcome measures

UK Renal Registry Update

2010