Sue duTreil, PhD, LCSWLouisiana Center for Bleeding

And Clotting DisordersTulane University School of Medicine

A Study of theEfficacy of the

Parents EmpoweringParents Program

Introduction

The PEP program was designed to giveparents tools to improve the lives of their

children with bleeding disorders.

Topics Covered in PEP

Introduction to the basics of bleeding disordersChild developmentCompassionate disciplineFine-tuning behavior managementUnderstanding your unique world viewHow thoughts and feelings affect parentingBuilding self esteemUnderstanding the process of communicationRefining communication skillsConflict managementParenting styles

Parenting Techniques Discussed in PEPProviding structure

Offering material rewards

Distracting

Teaching

Suggesting alternatives

Supervising

Making prior agreements

Keeping my word

Removing temptation

Preparing in advance

Setting limits

Spending time together

Giving choices

Spanking

Giving attention

Praising

Time out

Natural consequences

Removing privileges

Yelling

Being consistent

Discussion

Punishment

Ignoring

Grounding

Giving-in

Objective

To assess the content and outcomes of the PEP Program.

Study Design

The design of this study is a descriptive, cross sectional study in that it is an exercise in gathering information at a single point in time.

Demographics

Demographics

Demographics Relationship to Child with Bleeding

DisorderAre you a parent?

YES 291 97%

NO 9 3%

Missing 1 0%

Total 301 100%

If you are not a parent, what is your relationship to the child with the bleeding disorder?

•Grandmother………….. 2•Aunt……………………...2•Self……………………….1•Mother/Grandmother….1•Stepfather……………….1•Stepmother……………..2

Are you a mother or a father?

Father 31 11%

Mother 258 89%

Missing 2 0%

Totals 291 100%

Demographics

Have you attended the Parents Empowering Parents (PEP) Program?

Yes 62 21%

No 235 78%

Missing 4 1%

Total 301 100%

Demographics

Yes54%

No45%

Missing1%

Have You Ever Heard About The PEP Program?

Yes No Missing

Methods

IRB approval was obtained by all participating HTC’s.

A survey was used to assess use of parenting techniques by parents of children with bleeding disorders whether they attended PEP or not.

Analysis

Grouping of Participants (n=301)

Group Response n

Attended Attended PEP 62

Not Offered PEP has not been offered by my HTC. 50

Bad TimeThe date and time PEP was offered were not good for my family. 57

Don't NeedI'm doing fine with my parenting and did not feel I needed ot attend PEP. 40

DeletedI have not attended PEP for other reasons or no reason was given 92

AnalysisFrequency distributions were used to determine the parent’s perception of the helpfulness and value of PEP, and changes in relationships that have occurred after attending PEP.Chi-square tests were used to identify the parenting technique usage on which the groups differ. Logistic regression analyses were used to compare the Don’t Need group to the other groups and to compare the Attended group to the other groups for all parenting technique usage differences that were significant (P ≤ 0.05) or borderline significant (P ≤ 0.06).

Yelling

Spanking

Slapping

Giving -In

Additional Results for Parents Who Attended PEP

Yes92%

No3%

Missing5%

In Your Opinion, Do You Believe The PEP Program Was Helpful To You And

Your Spouse/Partner? (n=62)

Yes No Missing

Changes in Spouse/Partner RelationshipYes

Responses% of Total (n=62)

Since attending PEP my spouse/partner and I are able to communicate better when there is a problem with my/our child(ren).

38 61%

Since attending PEP my spouse/partner and I now listen to my/our child(ren).

34 55%

Since attending PEP my spouse/partner and I have a way to problem solve.

33 53%

Since attending PEP my spouse/partner and I now work together at parenting.

27 44%

Since attending PEP my spouse/partner and I have family meetings.

17 27%

Value of the PEP Program (n=62)

YesResponses

% of Total (n=62)

Attending the PEP program was a valuable experience because it helped me to see how my parenting related to how I was brought up.

52 84%

Attending the PEP program was a valuable experience because I learned more about how to parent my child(ren).

47 76%

Attending the PEP program was a valuable experience because I developed lasting relationships with other parents.

35 56%

Attending the PEP program was a valuable experience because I retained more information about my child's diagnoses.

26 42%

Attending the PEP program was a valuable experience because of other reasons.

6 10%

Attending the PEP program did not help me. 3 5%

Effects of PEP Concepts on Important Relationships

YesResponses

% of Total (n=62)

Concepts learned in the PEP program have improved my relationship with my CHILD(REN). 53 85%

Concepts learned in the PEP program have improved my relationship with my SPOUSE/PARTNER. 34 55%

Concepts learned in the PEP program have improved my relationship with THE HEMOPHILIA TREATMENT CENTER (HTC) STAFF.

31 50%

Concepts learned in the PEP program have improved my relationship with my EXTENDED FAMILY . 23 37%

Concepts learned in the PEP program have improved my relationship with the EMERGENCY DEPARTMENT STAFF.

13 21%

Concepts learned in the PEP program have improved my relationship with the INPATIENT HOSPITAL STAFF. 12 19%

Concepts learned in the PEP program have had NO EFFECT on relationships in my life. 3 5%

If you want your children to improve, let them overhear the nice things you say about them to others.

~Haim Ginott

When my kids become wild and unruly, I use a nice, safe playpen. When they're finished, I climb out.

~Erma Bombeck

Always kiss your children goodnight - even if they're already asleep.

~H. Jackson Brown, Jr.

My Great Nieces and Nephew: Megan, Hannah-Rose, and Ryan