utah alzheimers action plan, 2012-17

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Utahs State Planfor Alzheimers Disease

and Related Dementias

Action Plan for 2012-2017


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With this State Plan,Utah can fight the growing Alzheimers crisis

head-on. The plan is a blueprint for unified actionthrough coordinated public-private partnerships.

The Task Force has focused on three pillars:

1) To improve the dignity and quality of lifefor people with dementia and their families;

2) To mobilize government, health professionalsand families around the fight against

Alzheimers and related dementias; and

3) To support and advance research.The Plan is comprehensive and lists 5 goals,

18 broad recommendations and nearly 100 specific

strategies. These strategies for the

most part can be implemented

through existing budgets and

systems, if better coordinated,

and will improve outcomes and

cost-effectiveness of efforts on

behalf of Utahs families coping

with this crisis daily. For them,

nowis the time to act.

- Norman L. Foster, M.D.Director, The University of Utah

Center for Alzheimer's Care,Imaging and Research


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GUIDING PRINCIPLES

The State Plan Task Force met with citizens throughoutthe state, and from that experience emphasized the

following guiding principles in the development of a Utah

State Plan for Alzheimers disease and related dementias:

Combat stigma and increase awareness regarding

Alzheimers disease. In addition to Alzheimers,

related dementias caused by degenerative neurological

diseases are a serious concern. Alzheimers diseaseis the predominant cause of the constellation of

symptoms we refer to as dementia, but other dementia

diagnoses, include vascular dementia, frontotemporal

dementia, Lewy bodies dementia, and so on, are included

in the Plan.

Emphasize person-center care that responds to

individual needs and strengths. We can develop health

care practices and societal responses that emphasizethe strengths and abilities people with dementia have,

not just their losses. In particular, persons in early

stage would be better served when their health-care

wishes, desires for self-determination and continued

independence are respected equally to those with

other chronic illness or disabling conditions.

Anticipate and address the broadening cultural,ethnic, racial, socio-economic, and demographic

diversity of Utah. Rural access to diagnostic services

is increasingly problematic. The prevalence of

dementia among Hispanics and African-Americans

is disproportionately greater than among whites

past the age of 65, and these populations are growing

in our state. Broad disparity in access to services is

addressed in the plan.

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TABLE OF CONTENTS4 Utahs State Plan for Alzheimers Disease

and Related DementiasSummary of Goals and Recommendations

6 Why Is a State Plan Needed?

8 Action Plan 2012-2017

10 Utah State PlanGoals, Recommendations and Strategy

20 Utahs Vision:Becoming a Dementia-capable State

21 References

22 AppendicesDementia: Definition and Specific Types

23 Utah Alzheimers Statistics

24 New Diagnostic Criteria and Guidelinesfor Alzheimers Disease

25 Principles for a Dignified Diagnosis

26 Glossary of Terms

28 Resources for Families in Utah

29 Acknowledgments


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Utahs State Plan

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for Alzheimers Disease and Related Dementias


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Utah has the highest per capitaprevalence increase of Alzheimersamong all states. Prevalence is thenumber of existing cases of a diseasein a population at a given time. Utahwill grow by 127% in its cases ofAlzheimers disease - from 22,000cases in 2000 to 50,000 cases in2025. These figures do not includethe other 30% to 40% of degenerativeneurological dementias for which welack projection data. Thus, along with32,000 cases of Alzheimers diseasein Utah today, the number of diag-nosable cases of Alzheimers diseaseand related dementias is close to50,000. The combined number ofAlzheimers disease and relateddementia cases in Utah could approach100,000 by the year 2025.

Why will Utah experience a doublingor more of Alzheimers disease andrelated dementias? The number ofUtahns with Alzheimers disease andrelated dementias will grow each yearas the proportion of Utahs populationthat is over age 65 continues toincrease. The number will escalaterapidly in coming years as the babyboom generation ages. With popula-

tion growth, life expectancy, retireescoming to the state, Utah is about toexperience an aging tsunami in thenext decade. Age is the greatest riskfactor for Alzheimers disease andrelated dementias; thus, Utah will seeunprecedented prevalence growth.

This unprecedented growth will havea marked impact on Utahs healthcare

system, not to mention families andcaregivers. The impact is alreadynoted, for example, Utahs AreaAgencies on Aging report that upwardsof 70% of families and caregivers theyserve through the Caregiver SupportProgram are coping with Alzheimersdisease, a related dementia, orundiagnosed cognitive impairment.These Agencies provide informationand referrals and are impacted withincreasing case loads helping care-givers deal with complicated dementiasymptoms and the stress of caregiving.

The cost of caring for someonewith Alzheimers disease and relateddementias is staggering. Familiesprovide almost 80% of care for Utahnsliving with the disease estimated to be

worth $1.8 billion annually. An esti-mated 132,000 Utah family caregiversprovided over 150 million hours ofcare at home. These are 2010 figures.Yet, the State also incurs huge costs inmanaging the complexities of dementia.Most of these costs are driven byskilled nursing home expenditures.Arguably, these costs could be reducedby an investment in home andcommunity-based care on behalf of

family caregivers.

Families and government are notalone in shouldering the rising costof Alzheimers care. Utahs businesscommunity faces as much as $1.4million in lost productivity per year,as many employed caregivers mustmiss work, reduce their work hours,or change jobs. This, in turn, puts

Why Is a State Plan Needed?

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the caregiver at risk of losing healthinsurance and vital financial resourcesfor his or her own future.

The impact of Alzheimers diseaseand related dementias was noted bythe Utah State Plan Task Force in itsmeetings throughout the state, andthe coming increase of aging babyboomers means the worst is yet tocome. Nationally, the U.S. Congress,the National Institutes of Health, theCenters for Disease Control and theAdministration on Aging, among others,are working with the AlzheimersAssociation the leading voluntaryhealth organization in Alzheimerscare and support and the largest,private nonprofit funder of Alzheimersresearch to reduce the risk of

dementia through the promotion ofbrain health and to improve care andsupport for all who are affected. AARPUtah; the Center for Alzheimers Care,Imaging and Research; the UtahDivision of Aging and Adult Servicesand the Alzheimers Association UtahChapter have developed similarprograms in Utah.

The Utah Task Force also noted that

simultaneous with Utah legislation todevelop a Utah State Plan, the Congresspassed legislation to develop aNational Plan to Address AlzheimersDisease. The Task Force believes theDraft Framework for the National Planto Address Alzheimer's Diseasereleased in January, 2012, by theU.S. Department of Health and HumanServices offers a comprehensive

outline of goals and strategies thatmust be addressed in the nation'sfirst-ever strategic plan for Alzheimer's.

Such efforts can support and bolsterthe states own careful planning asUtah joins dozens of other states indeveloping its own State Plan forAlzheimers Disease and RelatedDementias. Utahs Plan is an actionplan for the next half decade, 2012-2017, and should be kept evergreenas a framework for change and agauge for progress.


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It has been one year since the firstwave of Utahs baby boomers turnedage 65. The silver tsunami hasbegun. The number of Utahns withAlzheimers disease and relateddementias will grow each year as theproportion of Utahs population thatis over age 65 continues to increase.The number will escalate rapidly inthe coming years as Utahs babyboom generation ages.

Prevalence, as mentioned above, isthe number of existing cases of adisease in a population at a given time.Incidence is the number of new casesof a disease in a given time period.The estimated annual incidence(rate of developing disease in a one-year period) of Alzheimers disease

increases dramatically with age, fromapproximately 53 new cases per 1,000people aged 65 to 74, to 170 newcases per 1,000 people aged 75 to 84,to 231 new cases per 1,000 peopleover age 85 (the oldest-old).

An estimated 5.4 million Americansof all ages were coping withAlzheimers disease in 2010, amongthem 32,000 Utahns with Alzheimers.

Statistics reveal that:

One in eight people aged 65and older (13 percent) hasAlzheimers disease.

Nearly half of people aged 85and older (43 percent) haveAlzheimers disease.

Of those with Alzheimers disease,an estimated 4 percent are underage 65, 6 percent are 65 to 74,45 percent are 75 to 84, and45 percent are 85 or older.

As mentioned, Utahs aging tsunamiwill have its greatest impact in thenext ten to fifteen years, and thatcorrelates with the states highest percapita growth of Alzheimers diseaseand related dementias compared withall other states.

Utahs growth in Alzheimers andrelated dementias is also associatedwith its growing ethnic and racialdiversity. While most people in theUnited States living with Alzheimersand related dementias are non-

Hispanic whites, older African-Amer-icans and Hispanics are proportion-ately more likely than older whites tohave Alzheimers disease and otherdementias. Data indicate that in theUnited States, older African-Americansare probably about twice as likely tohave Alzheimers and other dementiasas older whites, and Hispanics areabout one and one-half times aslikely to have Alzheimers and other

dementias as older whites. Personsof Hispanic origin are projected todouble as a percent of populationfrom 1995 to 2025 in Utah. AfricanAmericans will also increase as apercent of population in Utah. AsUtahs diverse populations increaseand age and the correlated impactof Alzheimers and related dementiasincreases, more effective means of

Action Plan 2012-2017

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serving health care needs of diversepopulations will be needed.

As thousands of Utahns turn age 65,75, and 85, increasing mild cognitiveimpairment and the question, Is itAlzheimers? will become an issue.As a result, their children andgrandchildren will raise their aware-ness and support. Similarly, religious,social, private and public institutionswill provide a significant measureof care and advocacy. The UtahCommission on Aging found that akey to success in dealing with theage tsunami will be Utahs highpriority on community, family andindependence. It concluded therewill be a need to support the mostvulnerable of aging Utahns. It stated

that Utah, must continually strive toassure that every public dollar spenton aging individuals provides themaximum benefit to the recipient atthe most reasonable cost to the State.

In the coming years, thousands ofUtah families will be working throughthe challenges of cognitive impair-ment due to degenerative neurologicaldiseases. In the early stages, many

will be working through the challengeof the driving dilemma faced by agingUtahns, and conversations about safedriving can evoke strong emotionalreactions. As the disease progressesand these challenges continue, theywill impact on personal independence,managing day-to-day activities, legaland financial preparedness, the abilityto obtain an accurate and dignified

diagnosis of Alzheimers disease ora related diagnosable dementia,effective medical treatment, andlong-term care options.

Considering the number of Utahnsand their families dealing with thesechallenges on a daily basis, a publichealth crisis looms in our state thatcompels policy leaders and keystakeholders to act. Many peoplewith Alzheimers suffer from multiplechronic conditions, and the need forsupport is great. As Utah confrontsits silver tsunami and a doubling

of its cases of Alzheimers diseaseand related dementias, there is asignificant, urgent need for a compre-hensive strategic plan. In 2011, theUtah State Legislature acted to fillthat gap by creating a Task Force.Herewith are the resulting goals,recommendations and strategiesset forth by the Utah State PlanTask Force.


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GOAL 1A Dementia-aware UtahRECOMMENDATIONS:1A: Raise broad public awareness ofAlzheimers disease and relateddementias through culturallyappropriate education campaignsSTRATEGIES:1. Establish an ADRD Coordinating Council

toSeek public, private, corporate andphilanthropic funding for broad-based,

statewide education campaigns

2. Partner with the Bureau of HealthPromotion, Utah Department of Health,to establish a program with healthresource guides devoted to Alzheimersdisease and related dementias

3. Collaborate with the Center forMulticultural Health, Utah Departmentof Health, to develop and disseminate

culturally appropriate print, radio andtelevision media campaigns for aware-ness of Alzheimers disease and relateddementias

4. Target Utahs unique challengesassociated with reaching and educatingcaregivers in rural areas, Spanish-speaking, other non-English-speaking,and Native American tribal communities

with specific initiatives to overcomebarriers to services

5. Promote realistic and positive imagesof people with Alzheimers disease andrelated dementias and their caregiversto overcome existing public stigma andmisperceptions

6. Advocate adoption of the AlzheimersDisease Early Detection Alliance (AEDA)of the Alzheimers Association by busi-nesses, faith-based organizations, andcommunity service groups to spreadawareness among their constituencies

7. Partner with the State Office of Educa-tion to offer curriculum in schools toeducate young Utah citizens on thefacts of aging with sensitivity to thosewith cognitive impairment and familycaregiving

8. Educate and enlist the faith-basedcommunity as a key resource thatcan reach out to and support familycaregivers

9. Heighten public awareness resources,such as the 2-1-1 information line,24/7 Alzheimers helpline, Area Agencieson Aging, Aging and Disability ResourceCenters, veterans clinics, and the Centerfor Alzheimers Care, Imaging andResearch, and establish metrics ofawareness with the Division of Agingand Adult Services

Utah State Planfor Alzheimers Disease and Related Dementias:An Action Plan for 2012-2017GOALS, RECOMMENDATIONS and STRATEGIES

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1B: Ensure that reliable, up-to-datedisease and care information isdisseminatedSTRATEGIES:1. Disseminate public education campaign

messages through accessible websites,mobile apps, libraries, senior centers,and physician offices with standardizedAlzheimers disease and relateddementia content

2. Assemble content for public awarenesscampaigns to address a wide range ofissues and audiences, including, butnot limited to:

Early warning signs and effectivestrategies for obtaining diagnosis,treatment and support

Cost of long-term care, limits ofMedicare, personal responsibility,importance of financial planning,and the limits and availability of

community resources

Information from the Centers forDisease Control and other reliablesources on behaviors that mightlower the risk of developingAlzheimers disease and relateddementias

3. Develop electronic links within state-supported websites to ensure that

reliable information from state agenciesis disseminated

4. Provide state-approved forms suchas Durable Power of Attorney forHealthcare, Physician Orders for LifeSustaining Treatment (POLST) andother documents with helpful instruc-tions and Frequently Asked Questionsat no cost to the consumer via public

libraries, resource centers and easilyaccessible websites

5. Ensure information and educationalmaterials are offered at appropriateliteracy, language, and legibility (font

size) for a diverse population

1C: Provide Utah citizens with the bestevidence on how to reduce theirown risk for Alzheimers diseaseand related dementiasSTRATEGIES:1. Encourage a wellness agenda for Utah

that includes a brain-healthy lifestyle,inclusive of exercise, nutrition, cognitiveactivity, and social engagement as keyprotective factors against Alzheimersdisease and related dementias

2. Promote the Center for Disease ControlsHealthy Brain Initiative: A NationalPublic Health Road Map to MaintainingCognitive Health developed through a

partnership including the AlzheimersAssociation, National Institutes ofHealth, Administration of Aging, AARP,and many others at the national, stateand local levels

3. Support the Cognasium (gymnasiumfor the brain) movement in Utah, whichencourages Utah citizens to takepersonal responsibility for brain healthand develop their own Individualized

Cognasium Plan

4. Emphasize heart, brain, and physicalbenefits of healthy recreation, seniorgames, fitness in the park programs,multigenerational activities, service tocommunity, healthy aging, and seniorcenter programs

5. Target the higher prevalence of


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Alzheimers disease and related dementiasamong older African-Americans andHispanics twice that of older whites through education on diabetes andhigh blood pressure, conditions morecommon in these populations, andknown risk factors for dementia

1D: Coordinate standardizedinformation throughout stateand local governmentsSTRATEGIES:1. Coordinate with the Division of Aging

and Adult Services on a continuing role

of the State Plan Task Force as anAdvisory Group to meet systematicallywith state and local agencies to identifyprograms and services relevant to olderindividuals with memory loss anddementia, even if not currently soidentified, and advise on how dementiaawareness would enhance performance

2. Enlist state and local governmentsto facilitate customer training about

memory loss, Alzheimers disease andrelated dementias for employees ofgovernment units interacting frequentlywith patients and families, such as theDivision of Motor Vehicles, AdultProtective Services, Area Agencies onAging, Community Mental Health Centersand County Health Departments

GOAL 2Health and Dignity for All withDementia and Those at RiskRECOMMENDATIONS:2A: Engage in a public health approachto confront Utahs significantprojected growth in Alzheimersdisease and related dementias

STRATEGIES:1. Empower public health officials and

health care providers to promote diseaseprevention by addressing risk factorssuch as caregiving, ethnicity, diabetes,and heart disease

2. Promote brain health initiatives toreduce risk factors, especially inethnically diverse communities

3. Collect and use data to drive publichealth service development and delivery

4. Recognize caregiving as a healthrisk factor that warrants public health

attention to incentivize health profes-sionals to acknowledge and addressthe issue

5. Increase surveillance of incidence ofAlzheimers disease and the impact of

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caregiving through the Behavioral RiskFactor Surveillance System (BRFSS) andother surveys

6. Use available data to assist in programimprovement, grant submissions, andimplementation of Utahs Alzheimers

Disease State Plan

2B: Improve access to a timelydiagnosis, differential treatment,and supportive servicesSTRATEGIES:1. Encourage accurate and dignified

diagnosis and proactive treatment,

differentiating Alzheimers diseaseand related dementias, and promotecontinuing medical education forphysicians and medical practitioners

2. Promote use of the Medicare preventiveservice benefit for the detection ofcognitive impairment, which commencedin 2011 under the Patient Protectionand Affordable Care Act

3. Expand the application of the UtahTelehealth Network and increase thenumber of physicians certified in theNetwork to treat patients with cognitiveimpairment in rural Utah

4. Provide a statewide comprehensiveresource database and directory thatincludes information about the rangeof medical and other providers,programs, and services related todiagnosis, treatment, and supportfor persons with dementia

5. Pursue federal funding for evidence-based replication projects, includingU.S. Administration on Aging grants tostates for development of a statewidedementia-capable, sustainableservice delivery system

2C: Provide access to behavioral healthservices and person-centeredin-home care that includesevidence-based, non-pharmaco-logical interventions rather thanmore costly inpatient treatment.STRATEGIES:1. Improve behavioral health services

through the recruitment and specializedtraining of physicians, nurses, andtherapists to provide such services forpersons with dementia that are coveredthrough Medicare, Medicaid, and/orprivate insurance

2. Ameliorate neuropsychiatric symptomsof persons with dementia cared forat home by enhanced training andsupport of family caregivers oneffective behavioral interventions thatare designed to modify such symptoms,reduce caregiver distress, and delaynursing home placement

3. Support the development of senior

behavioral services commensurate withgrowth in long-term care and assistedliving, including an outpatient geriatricpsychiatry consultation programthrough collaboration of the Office ofHigher Education and the Departmentof Human Services, Division ofSubstance Abuse and Mental Health,and expand board-certified geriatricpsychiatric care in both the privatesector and community mental healthsenior behavioral health services

4. Extend person-centered care in ruralUtah with evaluations and consultationsfor persons with dementia and theirfamily caregivers by dementia specialistsand an outpatient geriatric psychiatryconsultation program through the UtahTelehealth Network


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2D: Secure the safety, independence,and mobility of persons withAlzheimers disease and relateddementias with appropriateresponses and policies for eachstage of the disease

STRATEGIES:1. Develop a Utah endangered person

advisory system through the voluntarypartnership of law enforcement,broadcasters, media and communityorganizations in which cases areinitiated by law enforcement and aninvestigation is made on the missing

persons whereabouts immediately

2. Support widespread and early enroll-ment of those with memory loss whotend to wander in the MedicAlert+SafeReturn program of the AlzheimersAssociation and encourage the use ofcost-effective cellular and GPS trackingtechnologies to enable families toprevent wandering

3. Address the unique transportationneeds of persons in the early stageof Alzheimers disease and relateddementias, improve driving cessationpolicies, and promote availableresources such as the AlzheimersAssociation Driving Resource Center(www.alz.org/safetycenter) and theNational Center on Senior Transportation

4. Partner with Adult Protection Services,law enforcement, the banking industry,and the court system to recognizeongoing or potential financial abuseof elders with dementia, protect thoseat risk, and curb ongoing exploitation

5. Expand CIT training of law enforcementthroughout the state on aging issues

and identification of those with dementiaparticularly, in early stage and withbehavior disturbance

2E: Enhance the self-determinationof persons with memory lossand mild dementia, and preventfinancial exploitation and abuse

STRATEGIES:1. Enhance self-determination by

encouraging persons with dementia andtheir families to assess managementof assets early with the help of elderlaw specialists or Utah Legal Services,

effective draw-down of assets, andavoidance of costly court proceedings

2. Facilitate the independence ofearly-stage persons with dementiaby improving public and privatetransportation options, workingwith mobility managers, and trainingtransportation providers and drivers

3. Explore from multidisciplinaryperspectives a justice center systemfor elder and vulnerable adults toensure timely and appropriateprosecution of those who exploitpersons with cognitive impairment

4. Support guardianship and conservatorpolicies that align with national stan-dards, that respect the rights andneeds of persons with dementia, and

that minimize the burden on familiesand the legal system

5. Employ health care provider andcommunity agency education toencourage widespread and early useof advanced health care directives

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2F: Implement a statewide strategy tocoordinate, integrate, deliver andmonitor long-term care and servicesSTRATEGIES:1. Establish mechanisms to coordinate

among state and local agencies,government departments, voluntary

health organizations, and private long-term care providers to better servethe aging and disabled population.For example, promote cross-trainingand joint visits by state regulators, andidentify more efficient and effective

regulatory oversight

2. Create an integrated state long-termcare financing approach that providesincentives for people to receive care inhome- and community-based settingsand enables Utah to retain and reinvestcost savings back into the states long-term care infrastructure

3. Provide regular training to regulatorson best practices in dementia care toimprove consistency and continuitybetween settings

4. Prioritize funding for medical care

and long-term services and supportthrough alternative financing mecha-nisms such as expansion of the use ofMedicaid waivers or provider fees

GOAL 3Supported and EmpoweredFamily CaregiversRECOMMENDATIONS:3A: Acknowledge and invest inthe vital role of family caregiverswith guidance on quality careand the best utilization of familyfinancial resources throughoutthe disease courseSTRATEGIES:1. Support, fund and expand the

availability of professional guidanceto help family caregivers navigate andmanage myriad safety and behavioralissues through an array of servicessuch as caregiver assessment, careconsultation, counseling, care manage-ment, respite care, support groups,assistive technologies and othereffective interventions

2. Increase participation in educationalprograms among diverse caregiversthrough culturally and linguisticallyappropriate offerings

3. Secure foundation, corporate andnonprofit funding for effective statewidefamily caregiver training programs

4. Provide health education early in the


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disease through medical providers,voluntary agencies, and the CaregiverSupport Program of the Area Agencieson Aging that includes informationabout disease course, services neededat different disease stages, and howthey are paid for

5. Encourage the financial communityto provide information about financialplanning for chronic illness, the use oflong-term care insurance, and otherfinancial instruments

6. Partner with health insurance providersto ensure that medically appropriatedementia services are clearly identifiedand addressed in coverage statements

and covered in policies, including thosefor younger-onset dementias

3B: Empower caregivers through asupportive network that is bettercoordinated, and by expandingaffordable respite careSTRATEGIES:1. Recognize and address the financial

burden of caregiving and work toprotect spouses from impoverishmentat all levels of care

2. Encourage businesses and otherworkplace sites to offer family care-giver support services, e.g. flexiblework hours, referrals and counselingthrough Employee Assistance Programsand other employee initiatives

3. Advocate for state and federal taxcredits, similar to the child care taxcredit, for frail spousal and workingadult offspring caregivers paying fordirect care services to encouragethe use of early intervention andsupport services, such as adult dayand respite care

4. Research, disseminate, and expandprivate insurance and cafeteria plansthat coverage supportive services forcaregivers such as adult day

5. Evaluate the reimbursement rate foradult day care service and providerecommendations to bring the current

rate in line with the actual cost of pro-viding the service, based on analysis of:

The efficacy of early-stage dementiaday care to support independentfunctioning for as long as possible

The possible value of setting ratesfor different levels of day care,acknowledging unique needs of

persons with advancing dementia

The effectiveness of adult day serviceas a less costly alternative to stateand federally funded permanentresidency in long-term care

6. Consider the potential reallocationof Medicaid dollars between homeand community-based programs andnursing home care, and the expansion

of 1915c waiver programs to provideadditional home- and community-based support to caregivers of home-dwelling persons with dementia as wellas save state and federal dollars

3C: Ensure that all families have accessto clinical post-mortem diagnosticservices and tissue banking to investin the future health of their familiesSTRATEGIES:1. Partner with hospitals as part of their

public service mission to provideaccess to high-quality postmortemdiagnostic services for individuals withAlzheimers disease and relateddementias

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2. Encourage family-centered biobankingand linkage with the Utah PopulationDatabase so families can develop theirown family health history based upongenealogical medical and geneticrecords

3. Mandate the death certificate data

include information obtained throughpostmortem diagnostic examinations

GOAL 4A Dementia-competent WorkforceRECOMMENDATIONS:4A: Develop a dementia-capable andculturally competent workforcethat cares for older adults andpersons with dementia throughoutthe continuum of careSTRATEGIES:1. Support certification, licensure, and

degree programs that encourage workingwith older adults and persons withAlzheimers disease and their caregivers.Require a standard level of dementiasensitivity and disease education forall trainees in health-related fields atthe student and residency levels

2. Partner with licensing boards tomandate continuing education onAlzheimers and related dementiasas a condition of license renewal fordoctors, nurses, and other healthprofessionals

3. Mandate competency-based training

based on the Foundations of DementiaCare, developed nationally by theAlzheimers Association and morethan two dozen national organizations,for employees in various settings (e.g.,hospitals, nursing homes, assistedliving, home care workers, caremanagers, agency caregiver supportstaff, and social workers), recognizingthere are different strategies for

different disciplines, settings, levelsof skill and licensure

4. Provide guidance to care managers,advocates, and providers on theMedicare benefit that reimbursesfor an annual cognitive exam

5. Encourage care providers to partnerwith multicultural coalitions as theydevelop dementia friendly services

ethnically diverse clients and residentsacross the continuum of care, includingadult day care, in-home respite,assisted living, long-term care, andspecialized dementia care

6. Create financial incentives (throughtuition assistance, loan forgiveness,housing subsidies, and stipends) toincrease the number of health careprofessionals who pursue education andtraining in gerontology and geriatrics,and particularly, those who make acommitment to work in low-income,uninsured, rural, and ethnic communitieswith higher disease prevalence

7. Educate providers on the use ofMedicare coding to reimburse physiciansand allied health professionals for familyconferences and care consultation that


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educate and support family caregivers,guide future decisions, and enhancethe quality of medical care and supportservices

4B: Improve dementia care capacity andcompetency of primary care providersSTRATEGIES:1. Explore, endorse, and disseminate

dementia-specific curriculum andtraining programs tailored to primarycare physicians, geriatricians, internists,general practitioners, physicianassistants, and nurse practitioners

2. Create and disseminate an evidence-based set of guidelines for Alzheimersand related dementias disease manage-ment to improve evaluation, treatment,care coordination, and follow-up supportof the patient

3. Improve primary care practices bylinking them to dementia care managers

to coordinate care, manage individualcases, and supplement clinical care withresources on supportive services andcommunity-based agencies that offerspecialized expertise, social supports,and mental health services

4. Train nurses, counselors, healthprofessionals and direct care workers todevelop person-centered one-on-onecare to dementia patients of color and

their families

5. Protect and promote Utahs Center onAlzheimers Care, Imaging and Researchas a tertiary referral resource for thestates physicians to support diagnosisand management of complex cases

6. Incorporate Alzheimers educationalmaterials for patients and family care-

givers into digital libraries to enablephysicians to store and disseminatesuch information in connection withelectronic medical records

7. Educate clinicians on the criteria

needed to refer and qualify dementiapatients for hospice care to ensurethat patients receive full benefit of themedical, health services, and socialsupports offered at end of life

4C: Train professionals in other,non-health care fields that interfaceincreasingly with persons who havedementiaSTRATEGIES:1. Educate law enforcement on the

MedicAlert+Safe Return program ofthe Alzheimers Association to quicklyidentify and return to safety personswith Alzheimers or related dementias

2. Support efforts of adult protective

officials on detecting, addressing, andpreventing fraud, abuse, neglect andself-neglect of persons with dementiain the community or in institutionsof care

3. Partner with state regulators, courtadministrators, and the Utah BarAssociation for training on legal issuesfacing persons with Alzheimer's andrelated dementia and their families

such as guardianship, conservatorship,powers of attorney, and the medicalstandards related to each

4. Provide comprehensive Alzheimersand related dementia training to firstresponders, law enforcement, EMT,fire fighters, emergency preparedness,and search and rescue officials

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GOAL 5Expanded Research in UtahRECOMMENDATIONS:5A: Recruit and retain world-class

researchers, and attract researchinvestments that generateeconomic multipliers to createjobs and drive innovationSTRATEGIES:1. Collaborate with industry and the

life and biosciences sector to increaseresearch infrastructure

2. Ensure that the most promisingevidence-based research projectsare advanced and made sustainable,including research on prevention,treatment, and finding a cure forAlzheimer's disease

3. Promote research focused on thedevelopment of assistive technology,including both high and low tech assis-

tive devices that adapt everyday environ-ments for people with Alzheimers

4. Engage community physicians inresearch toward early recognition ofmemory problems as well as otherdementia symptoms, and rapidreferrals to clinical trials

5B: Hasten development of promisingnew treatments with increasedpatient research participation andmore federal, state and privateresearch dollars

STRATEGIES:1. Promote taxpayer contributions through

a tax check-off to support Alzheimersdisease and related dementia research

at Utah universities as administeredthrough existing mechanisms at theUtah Center on Aging

2. Educate the public on the availability,purpose, and value of research, andencourage participation in clinical trialsand other studies. Promote theAlzheimers Associations TrialMatchas a resource for increasing participa-tion in clinical trials

3. Collaborate with private, state, and fed-eral partners to increase participation ofdiverse populations in research studies

4. Encourage the Utah Science Technologyand Research (USTAR) Initiative tosupport a new investigative team inneurodegenerative disease at theUniversity of Utah

5. Generate rapid commercializationand spin-off companies based uponpromising and innovative dementiaresearch at Utah universities throughtheir Offices of Technology Develop-ment and industry partnerships

6. Collaborate with private, state and federalpartners to increase participation ofdiverse populations in research studies


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Through implementation of the State PlanStrategies, the Task Force envisions thatpersons with dementia and their familycaregivers will have clear and ready accessto an integrated system that offers acomprehensive set of high quality healthcare services and social supports that areevidence-based and support the self-

determination, dignity and protection ofpersons with Alzheimers disease andrelated dementias.

Creating this system involves enlisting,informing, building upon and integratingexisting programs (1) between state agencies,providers and communities; (2) across thestates Health and Human Services systems;and (3) among non-health related services,i.e., law enforcement, first responders,

transportation, legal, and so on.

State Plan Strategies encourage effectivedialogue on and development of thefollowing objectives:

Objective 1: Coordinate the integrationof a statewide set of programs, already inexistence, that could incorporate a SingleEntry Point/No Wrong Door access forindividuals with Alzheimers disease andrelated dementias and their caregiversSuch a statewide system would mean

persons with dementia and their familycaregivers anywhere in the state will havestreamlined access to the full array ofpublic and private sector programs andservices that enhance home- and commu-nity-based care, medical care, long-termcare, legal, financial and social supports.

Objective 2: Ensure access to a compre-hensive, sustainable set of high qualityservices critically needed by persons withAlzheimers disease and related dementiasthroughout the state.This objective would ensure that personswith dementia and their caregivers willhave access to a comprehensive set of highquality services that are (1) evidence-based(2) informed and certified as dementia-capable, not only in primary care, long-term care and human services; but also,in non-health related services, i.e., trans-portation, law enforcement, safety, legaland financial services.

Utah state agencies operate based onstrategic plans. The Task Force encouragesUtah state agencies to use these plans toinform their role in the states operationof a comprehensive, integrated systemfor persons with Alzheimers disease andrelated dementias.

Utahs Vision:Becoming a Dementia-capable StateCreating a Dementia-capable Service Systemfor Persons with Dementia and Their Family Caregivers

20


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The Utah State Plan Task Force frequentlyreferenced data, charts and figures fromAlzheimers Association AlzheimersDisease 2011 Facts and Figures Report.This report is provided annually eachspring and delivered to members ofCongress. The full report is available at:www.alz.org/alzheimers_disease_facts_and_figures.asp.

1. Alzheimers Disease Early DetectionAlliance, a positive force to improve thehealth of Utah companies, organizationand communities and part of a nation-wide network of organizations that areaddressing the Alzheimer's crisis,accessed online at:http://www.alz.org/aeda/aeda.asp.

2. Fact Sheet, March, 2011, Find the full

report and information on Utah atwww.alz.org/facts. The 2011Alzheimer's Disease Facts and Figuresreport also contains data on the impactof the disease in every state across thenation.

3. Foundations of Dementia Care, class-room training program field-tested tohelp professional care organizationsachieve longer-lasting, more consistentresults in dementia patient care,accessed online at:http://www.alz.org/professionals_and_researchers_foundations_of_dementia_care.asp#practical

4. Physicians Orders for Life SustainingTreatment (POLST) approved by theUtah Department of Health for patientwishes and medical indications for

life-sustaining treatment, accessedonline at:http://health.utah.gov/hflcra/forms/POLST/POLSTForm2010.pdf

5. Principles for a Dignified Diagnosis,published by the Alzheimers Associationin 2009, but may be distributed byunaffiliated organizations and individuals,accessed online at:http://www.alz.org/national/documents/brochure_dignified_diagnosis.pdf.

6. Senate Resolution, No. 48, the resolu-tion set forth a Utah State Plan Task

Force for Alzheimers Disease andRelated Dementias, passed in the2011 legislative session and signedby Governor Gary Herbert.

7. Senate Joint Resolution, No. 1, spon-sored by Senator Karen Morgan forintroduction in the 2012 legislativesession, expresses support for a UtahState Plan for Alzheimers disease andrelated dementias.

8. TrialMatch, Alzheimers AssociationClinical Studies Matching Service,accessed online at www.alz.org/Trial-Match

9. Utah Facts and Figures, for moreinformation, view the 2011 AlzheimersDisease Facts and Figures report,accessed online at: alz.org/facts.

References


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AppendicesDementia: Definition and Specific Types*

22

Source: Plassman, BL; Langa, KM; Fisher, GG; Heeringa, SG; Weir, DR;Ofstedal, MB, et al. Prevalence of Dementia in the United States: The AgingDemographics, and Memory Study. Neuroepidemiology2007; 29:125-132.3

Dementia is caused by various diseases andconditions that result in damaged brain cellsor connections between brain cells. Whenmaking a diagnosis of dementia, physicianscommonly refer to the criteria given in theDiagnostic and Statistical Manual of MentalDisorders, Fourth Edition (DSM-IV). To meetDSM-IV criteria for dementia, the followingare required:

Symptoms must include decline in

memory and in at least one of thefollowing cognitive abilities:

1) Ability to generate coherent speech orunderstand spoken or written language;

2) Ability to recognize or identify objects,assuming intact sensory function;

3) Ability to execute motor activities,assuming intact motor abilities,sensory function and comprehension

of the required task; and4) Ability to think abstractly, make

sound judgments and plan and carryout complex tasks.

The decline in cognitive abilities must besevere enough to interfere with daily life.

It is important for a physician to determinethe cause of memory loss or other dementia-like symptoms. Some symptoms can be

reversed if they are caused by treatableconditions, such as depression, delirium,drug interaction, thyroid problems, excessuse of alcohol or certain vitamin deficiencies.

When dementia is not caused by treatableconditions, a physician must conduct furtherassessments to identify the form of dementiathat is causing symptoms. Different types ofdementia are associated with distinct symptompatterns and distinguishing microscopic

brain abnormalities. The most common typesare: Alzheimers disease, vascular dementia,mixed dementia, frontotemporal dementia,dementia with Lewy bodies, Parkinsons dis-ease, Creutzfeldt-Jakob disease, and Normalpressure hydrocephalus.

In 2011, the Alzheimer's Association's jour-nal, Alzheimers and Dementia: The Journalof the Alzheimers Association, published

new criteria and guidelines for the diagnosisof Alzheimer's disease. These were devel-oped by the Association and the National In-stitute on Aging (NIA) of the NationalInstitutes of Health (NIH). For more informa-tion, see page 24, New Diagnostic Criteriaand Guidelines for Alzheimers Disease.

*Portions of this definition are based on theAlzheimers Association, 2011 AlzheimersDisease Facts and Figures, page 5.


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In the United States, an estimated 5.4 millionpeopleare living with Alzheimers disease, and

someone develops the disease every69 seconds. Unless something is done, as many as

16 millionAmericans will have Alzheimers in 2050 and someone will develop the disease

every 33seconds. In 2010, 14.9 millionfamily members and friends provided 17 billionhours

of unpaid care to those with Alzheimers and other dementias care valued at$202.6 billion.

Number of Deaths Due to Alzheimers Disease in 2007

Level of

Cognitive Impairment

severe/moderatemild/very mildnone

Cognitive Impairment in

Nursing Home Residents, 2008

Percentage Change in Number with Alzheimers

Disease Compared to 2000

2010 2020 2025

Percent

For more information, view the 2011 Alzheimers Disease Facts and Figuresreport at alz.org/facts.

140

120

100

80

60

40

20

0

28%

38%

34%

393

Total Nursing Home Residents 17,743

Number of Alzheimers and Dementia Caregivers,

Hours of Unpaid Care, and Economic Value of Care

Number of Total Hours Total Value ofYear Caregivers of Unpaid Care Unpaid Care

2008 90,283 77,932,159 $865,046,968

2009 101,151 115,191,322 $1,324,700,201

2010 132,991 151,450,408 $1,806,803,372

Year 6574 7584 85+ Total % change from 2000

2000 1,400 12,000 8,800 22,000

2010 1,600 15,000 16,000 32,000 45%

2020 2,400 19,000 20,000 41,000 86%

2025 3,000 24,000 23,000 50,000 127%

Number of People Aged 65 and Older with Alzheimers by Age

UtahAL ZHEIMERS STATISTICS

45%

86%

127%


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The Utah State Plan Task Force stronglyurges support of Utah-based researchinitiatives (see Goal 5). New diagnosticcriteria include biomarkers for use inresearch settings and are a work inprogress to evolve as knowledgeadvances. Therefore, now is the timefor Utah to develop strategies for Utah-based research.

The criteria and guidelines for diagnos-ing Alzheimers disease have been up-dated to incorporate new brain imagingand biochemical tests that could signalthe disease before symptoms appear.This historic update, which is the first in27 years, stems from mounting evi-dence that the degeneration of nervesdeep within the brain starts years oreven decades before memory loss and

other cognitive changes are noticeable.

The significance of this development isthat it brings us closer to earlier detec-tion and treatment, and ultimately leadsto effective disease-modifying thera-pies. There have been no new drugtreatments for Alzheimers disease innearly a decade.

The new criteria open the door for

research into the earliest stages of thedisease and the development of drugsthat may slow or stop the degenerativeprocess before the damage is done.Their release follows a report that brainareas affected by Alzheimer's diseasestart shrinking up to a decade beforesymptoms appear.

The new diagnostic criteria and guide-lines are now available, and include thefollowing key elements: Updates to widely-used existing

guidelines for Alzheimer's diseaseoriginally established in 1984.

Refinements to existing guidelines fordiagnosing mild cognitive impairment(MCI). People with MCI experience adecline in memory, reasoning orvisual perception that's measurableand noticeable to themselves or toothers, but not severe enough to bediagnosed as Alzheimer's or anotherdementia.

Expansion of the conceptual frame-work for thinking about Alzheimer's

disease to include a "preclinical"stage characterized by signaturebiological changes (biomarkers) thatoccur years before any disruptions inmemory, thinking or behavior can bedetected. Promising investigationalbiomarkers include brain imagingstrategies and certain proteins inspinal fluid.

Establishment of a framework for

eventually adding biomarker bench-marks to the diagnosis of Alzheimer'sdisease in all of its stages.

New Diagnostic Criteria andGuidelines for Alzheimer s Disease

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Principles for a Dignified DiagnosisThis is the first statement of its kind written by people with dem entia onthe subject of the Alzheimer and related dem entia diagnosis experience.

From a 2008 report, Voices of AlzheimersDisease: A Summary Report on theNationwide Town Hall Meetings for Peoplewith Early Stage Dementia, these principlesare their insights on how to make thatexperience better.

Talk to me directly, the person withdementia.I am the person with the disease, andthough my loved ones will also be af-fected, I am the person who needs toknow first.

Tell the truth.Even if you dont have all the answers,be honest about what you do know andwhy you believe it to be so.

Test early.Helping me get an accurate diagnosisas soon as possible gives me moretime to cope and live to my fullestpotential and to get informationabout appropriate clinical trials.

Take my concerns seriously, regardlessof my age. Deliver the news in plain but sensitivelanguage.

This may be one of the most importantthings I ever hear. Please use languagethat I can understand and is sensitiveto how this may make me feel.

Coordinate with other care providers. Explain the purpose of different testsand what you hope to learn.

Give me tools for living with this disease.Please dont give me my diagnosisand then leave me alone to confront it.I need to know what will happen to me,and I need to know not only aboutmedical treatment options but alsowhat support is available through theAlzheimers Association and otherresources in my community.

Work with me on a plan for healthy living. Recognize that I am an individual andthe way I experience this disease isunique. Alzheimers is a journey,not a destination.*This is an excerpt of a document

published by the Alzheimers Association.Contact the Utah Chapter for the fulldocument at 800-272-3900.


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Alzheimers Disease Supportive Services

Programs

A series of programs funded by U.S. Adminis-

tration on Aging grants to the State of Utah

and the Alzheimers Association Utah Chapter

to create community-based health-related and

social support services for underserved popu-

lations in targeted locations. The model partners

the Division of Aging and Adult Services, theAlzheimers Association Utah Chapter, Area

Agencies on Aging and community providers

to develop evidence-based and culturally

competent services to persons with Alzheimers

disease and related dementias.

Assisted Living

Assisted living is a licensed residential setting

that provides 24-hour care and supervision to

seniors who need assistance, but do not requirearound the clock nursing care. Assisted living

communities provide assistance with Activities

of Daily Living (ADLs), medication manage-

ment, social activities, housekeeping, meals,

transportation, and may offer dementia care

programs or health-related services. For more

information, contact the Utah Assisted Living

Association.

Caregiver

The term caregiver refers to anyone who

provides assistance to someone else who

is, in some degree, incapacitated and needs

help: a husband who has suffered a stroke; a

wife with Parkinsons disease; a mother-in-law

with cancer; a father with Alzheimers disease;

a son with traumatic brain injury; a partner

with AIDS. Informal caregiverand familycaregiverare terms that refer to unpaid

individuals such as family members, friends,

neighbors and congregational members who

provide care. This becomes the circle of care.

These individuals can be primary or secondary

caregivers, full time or part time, and can live

with the person being cared for or live sepa-

rately. For more information, contact the Utah

Coalition for Caregiver support.

Cognasium

Cognasium is to the brain what the gymnasium

is to the body, and focuses on brain health.

Dementia is universally viewed as a diminish-

ment of the person affected. This translates

to a stress-burden model of caregiving. The

Cognasium approach focuses on the remaining

strengths and abilities of the person with

dementia which often outweigh the losses.

Not only physical activity; but also, activities in

visual arts, music and socialization are hugelysuccessful. A recent documentary film demon-

strated such discoveries worldwide with

dementia patients, captured in its title,

I Remember Better When I Paint. The care-

giver develops an Individualized Cognasium

Plan (ICP) with the loved one with dementia.

The ICP focuses on appropriate exercise,

proper nutrition, cognitive activity and social

engagement. The caregiver is trained to

administer this program in the home. Thecare recipient regularly attends a Cognasium

Support Group with other early stage persons

while the caregiver attends a Caregiver

Support Group that focuses on disease

awareness, problem-solving, mutual support

and respite.

The March, 2009, Journal of Nursing Geron-

tologydescribed, in numerous studies, how

(1) the early stage brain when challenged

Glossary of Terms

26


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reorganizes after damage and experiences

functional improvements, (2) person-centered

activities afford better symptom management

tools to caregivers, and (3) such programssupport the need for an expanding evidence

base through research. For more information,

contact the Alzheimers Association Utah

Chapter.

Hospice Care

Designed to give supportive care to people in

the final phase of a terminal illness and focus

on comfort and quality of life, rather than cure.

The goal is to enable patients to be comfort-able and free of pain, so that they live each

day as fully as possible. Aggressive methods

of pain control may be used. Hospice programs

generally are home-based, but they sometimes

provide services away from home in free-

standing facilities, in nursing homes, or within

hospitals. The philosophy of hospice is to

provide support for the patients emotional,

social, and spiritual needs as well as medical

symptoms as part of treating the whole person.

Supportive services also extend to family

members. For more information, contact the

Utah Hospice and Palliative Care Organization.

Long-Term Care

This term refers to a variety of services that

includes medical and non-medical care to

people who have a chronic illness or disability.

Long-term care helps meet health or personal

needs. Most long-term care is to assist people

with support services such as activities of

daily living like dressing, bathing, and using

the bathroom. Long-term care can be provided

at home, in the community, in assisted living or

in nursing homes. It is important to remember

that you may need long-term care at any age.

A study by the U.S. Department of Health and

Human Services says that people who reach

age 65 will likely have a 40 percent chance ofentering a nursing home. About 10 percent of

the people who enter a nursing home will stay

there five years or more. For more information,

contact the Utah Health Care Association.

Respite Care

Respite care is a constellation of services

provided on behalf of a dependent family

member so that he or she can remain safely

in the home. In Utah, eligible persons over 65years of age, or disabled (including disabled

children), or blind may receive respite care

counseling, support, and funding as available,

through Area Agencies on Aging, the Veterans

Administration, Jewish Family Services, the

Alzheimers Association and the Utah Coalition

for Caregiver Supports Lifespan Respite Care

Program. Each of these organizations serves

specific populations in need within the lifespan,

not the entire lifespan. Respite care is generallyconsidered an alternative to out-of-home care,

such as nursing homes or board and care

facilities. The types of services which can be

authorized as respite are housecleaning, meal

preparation, laundry, grocery shopping,

personal care services (such as bowel and

bladder care, bathing, grooming and para-

medical services), accompaniment to medical

appointments, and protective supervision for

the cognitively impaired.


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28

The Alzheimers Association is theleading voluntary health organizationin Alzheimer care, support and research.Its mission is to eliminate Alzheimersdisease through the advancement ofresearch; to provide and enhance careand support for all affected; and toreduce the risk of dementia throughthe promotion of brain health.

The core services of the AlzheimersAssociation are:

Information & Referral

Family Care Consultation

Medic Alert+Safe Returnwanderers registry & I.D.

Caregiver Education

Support Groups

Professional Training

Early Stage Programs

Service Center Locationsand the Areas They ServeNorthern Rural UtahLogan Service CenterBRAG Area Agency on Aging170 North Main StreetLogan, UT 84321(435) 752-7242

Northern Wasatch FrontClearfield Service CenterLocated in Clearfield Senior Center42 South State StreetClearfield, UT 84015(801) 525-5057

Central Wasatch FrontMurray Service Center855 East 4800 South, Suite 100Murray, UT 84107(801) 265-1944

Southern Wasatch FrontOrem Service CenterLocated in MountainlandArea Agency on Aging586 East 800 NorthOrem, UT 84097(801) 347-0074

Southern UtahCare Consultation and Respite CareLocated in St. George Senior Center245 North 200 WestSt. George, UT 84770(800) 272-3900

For questions and supportthroughout Utah:Contact the 24/7 Helpline at(800) 272-3900

Resources for Families in UtahAlzheimers Association Dementia Care Service Centers


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AcknowledgmentsUtahs Alzheimers Disease and Related Dementias State Plan was a collaborative effort in

which many individuals and both public and private organizations contributed precious time,

financial resources and valued expertise. The leaders who made this Plan possible are:

SENATE BILL 48 SPONSOR

Senator Karen Morgan

HOUSE SPONSOR

Representative Carol Spackman Moss

TASK FORCE CO-CHAIR

Lt. Governor Greg Bell

TASK FORCE CO-CHAIR

Nels Holmgren, Director,

Utah Aging and Adult Services

TASK FORCE MEMBERS

James Alder, Attorney,Alder & Robb, P.C.

Kim Cannon, Ombudsman,

Davis County

Palmer DePaulis, Director,

Utah Human Services

Paul Fairholm, Owner,

Legacy House Retirement

Norman Foster, MD, Director,

Center for Alzheimers Care

Imaging and Research

Jack Jenks, Executive Director,Alzheimers Association

Utah Chapter

Hooper Knowlton, Owner,

The Knowlton Group

Karen Morgan,

Utah State Senator

Carol Spackman Moss,

Utah State Representative

John Neville, Attorney,

Equitable Life & Casualty

David Patton, PhD, Director,

Utah Health Department

Manuel Romero, Community

Relations Manager,

Utah Human Services

Kathryn Romney,Alzheimers Disease Recipient

Leonard Romney,

Alzheimers Care Partner

Terri Ruesch, Administrative

Assistant,


Carrie Sconlaw, Director,

Five County Area Agency

Bonnie Shepherd,

Frontotemporal Dementia

Caregiver

Gary Staples, Owner,

Aspen Senior Day Center

Kendall Surfass, VP,

General Counsel,

Equitable Life & Casualty

Steven Tracy, CEO,

Sunshine Terrace Foundation

Kevin Whatcott, Owner,

Homewatch Caregivers

Sonnie Yudell, Program Manager,


Nick Zullo, Program Director,Alzheimers Association

Utah Chapter

FOR FURTHER INFORMATION

Alzheimers Association Utah Chapter

855 East 4800 South Salt Lake City, Utah 84117

(801) 265-1944 www.Alz.org/utah

800-272-3900 24/7 Helpline

2011 ALZHEIMERSFACTS & FIGURES

Annual Report to Congress

by the Alzheimers Association,

March, 2011

Utah has the highest per capita

growth rate in Alzheimers

disease prevalence, projected

at 127% from 2000 to 2025.

32,000 Utah citizens haveAlzheimers disease and another

14,000 have a related dementia

(vascular, Frontotemporal,

Dementia with Lewy Bodies, etc.).

132,000 family members

(spouses or adult children)

care for their dementia

loved-ones at home.

In gratitude to the 2011 Legislature

that created the Utah State Plan

Task Force on March 13, 2011


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Equitable Life & Casualty Insurance Company

3 Triad Center Salt Lake City Utah 84180-1200 800-352-5150 www.EquiLife.com

Equitable & You. . . Committed To Caring

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utah alzheimers action plan, 2012-17

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