the voice of plc 1109-10 final
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The Plymouth Laryngectomy Club (PLC) is an Affiliated Member of: The National Association of Laryngectomy Clubs (NALC)
In Association with Macmillan Cancer Support
Registered Charity Number: 273635
Our Funder: Macmillan Cancer Support
A Member ofThe Plymouth Third Sector Consortium (PTSC)
Patrons & Medical Advisors : Mr. W.M. BRIDGER, FRCS - Consultant ENT Surgeon,
Mr. Tass MALIK, BSc FRCS (Gen), FRCS (ORL H&N) - Consultant Otolaryngologist, Head & Neck / Thyroid Surgeon, Derriford Hospital, Plymouth.
The Plymouth Laryngectomy Club (PLC)A Charitable Support Group for Plymouth Cancer Laryngectomees
The Voice of PLCSeptemberOctober 2011
Address: c/o 80 Warleigh Avenue, PLYMOUTH, PL2 1DH, Devon, UK
Mobile: 07745819828 (text only) Email: [email protected] Website: http://plymouthlc.webs.com
FOREWORD BY THE CHAIRWritten by Edward (Ted) BURNETT
Welcome Members and Friends!
Well, our first year of PLC has passed! In fact, it's
been more than a year, and I think its been quite aninteresting time for us all.
Weve had a wide range of guest speakers and
managed a few outside trips and events.
I should like to thank everyone for their help and
support during our first year... to name just a few:
The Staff of the Mustard Tree Cancer Support Centre
who have been excellent hosts and have always
made us all very welcome!
Maggie, Emer and Julia for their part in giving us the
help, support and advice any time we needed it.
Geoff, who as I think you will all agree, has workedtirelessly as our Clubs Secretary.
Jean, for all her hard work as Treasurer in sorting out
the finances for our Club.
And finally I should like to thank all our Members and
Friends for showing their support.
Because without you we would not have a club!
Many thanks!
Ted
Chair, PLC
EDITORIAL COMMENTNTERNET Links. If youre reading this on-line and come
across words with blue lettering that are underlined, then
you can click on these links and be taken directly to another
site for more information on that particular topic.
If you read this on Microsoft Word, you can put your cursor
over the link, hold down the Control (Ctrl) Key and click! Ed.
GREETINGS!EST WISHES TO Susan STEPHENSON for her birthday
on Sunday, 25th
September 2011. Susan is staunch
and loyal member of PLC. Have a lovely day Susan!
APPY BIRTHDAY TO Alan Derek PEACEY for Wednesday,
28th
September 2011. Alan is a Friend of PLC althoughhe resides in Norway!
ONGRATULATIONS TO Ted & Liz BURNETT for Friday,
21st
October 2011 on the occasion of their anniversary.
Ted was the Chair of PLC for 2010 11. And we all know that
behind any good man is a good woman! Well done Liz!
EVOTED HUSBAND. This is for all women who think
men are heartless!
I
B
HC
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mailto:[email protected]:[email protected]://plymouthlc.webs.com/http://plymouthlc.webs.com/http://plymouthlc.webs.com/mailto:[email protected] -
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Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)
or email: [email protected], or go to PLC website at http://plymouthlc.webs.com2
THE PLC SEPTEMBER 2011 MEETINGUR SEPTEMBER 2011 Meeting took place at the
Mustard Tree Cancer Support Center at Derriford
Hospital on Monday, 5th
September 2011 at 11 a.m. There
were only seven of us in attendance including three Friends.
Another member joined us later. The business side of the
meeting was kept very brief with Ted simply giving an
overview on forthcoming events.
Mr. Charles HANDLEY ofCountrywide Supplies Ltd.gave us an informative talk regarding his products.He reminded us once again that before ordering
something new from his catalogue we should
always remember to first seek approval from
Maggie or Julia. As all Members attending were
alrerady customers of Countrywide it was difficult to
judge whether Charles was content or frustrated!
Ted presented Charrles with a Plymouth Tie Pin /
Lapel Badge and a Thank You Card on behalf of all
Members.
Mr. Michael W.M. BRIDGER, a Consultant Surgeonat ENT Derriford Hospital will be retiring fairly soonHe is widely respected amongst medical staff and
patients alike, and will be missed. We were so
grateful to him for giving up some of his valuable
time to give us an extremely informative talk about
his lifetimes work on head-and-neck cancers and
how treatments have changed over the years. He
was a pioneer in his field in his day! Mr. BRIDGER
also gave an update on which direction he thought
treatments might go in the future, touching upon
laser and transplants. All very interesting! Ted then
presented Mr. BRIDGER with a Certificate of
Appreciation on behalf of all Club Members.
In the picture: Ted BURNETT presenting a Certificate of
Appreciation to Mr. Michael W.M. BRIDGER.
Photograph courtesy of Liz BURNETT
More photographs at: Photobucket.com (fullscreen slideshow),and PLC Facebook page (smaller but faster).
AFFLE. Because of the few numbers attending the
September 2011 Meeting it was decided to dispense
with the monthly raffle this time.
UBSCRIPTIONS. Because of the few numbers attending
the September 2011 Meeting it was decided not to
collect any subs this month.
REASURERS REPORT. Because of the few numbers
attending the September 2011 Meeting it was decided
hold over the report until the October 2011 Meeting.
THE PLC CHARABANC TRIPEVEN INTREPID PLC MEMBERS met at the Roborough
Tescos Car Park at 2 p.m. on Saturday, 10th
September
2011 to go on a Coach Trip to Dartmeet to enjoy a real
Devon Cream Tea. Dartmeet is set in a particularly
beautiful part of Dartmoor with rolling tors (hills) and a
fast-flowing running river.
The sun even managed to
shine for us! The journey
to and from Dartmeet
meanders through somelovely scenery and it was
a rare treat for the drivers
amongst us to be able to
take in those views...
rather than concentrating on the road! We held a raffle
during our Cream Tea that realised 8 whichwe promptlyhanded over to Patrick, our driver, as his tip for the day!
Fiona won the prize so shell be supplying the prize for our
October 2011 Meeting.
Photographs courtesy of Liz BURNETT View Slideshow
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http://www.countrywidesupplies.co.uk/http://www.countrywidesupplies.co.uk/http://www.countrywidesupplies.co.uk/http://s251.photobucket.com/albums/gg297/kandaphati2/PLC/2011Sep5/?albumview=slideshowhttp://s251.photobucket.com/albums/gg297/kandaphati2/PLC/2011Sep5/?albumview=slideshowhttps://www.facebook.com/media/albums/?id=111621182271959https://www.facebook.com/media/albums/?id=111621182271959http://en.wikipedia.org/wiki/Dartmeethttp://en.wikipedia.org/wiki/Dartmeethttp://en.wikipedia.org/wiki/Dartmeethttp://s251.photobucket.com/albums/gg297/kandaphati2/PLC/PLCcharabancTrip/?albumview=slideshowhttp://s251.photobucket.com/albums/gg297/kandaphati2/PLC/PLCcharabancTrip/?albumview=slideshowhttp://s251.photobucket.com/albums/gg297/kandaphati2/PLC/PLCcharabancTrip/?albumview=slideshowhttp://en.wikipedia.org/wiki/Dartmeethttps://www.facebook.com/media/albums/?id=111621182271959http://s251.photobucket.com/albums/gg297/kandaphati2/PLC/2011Sep5/?albumview=slideshowhttp://www.countrywidesupplies.co.uk/ -
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Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)
or email: [email protected], or go to PLC website at http://plymouthlc.webs.com3
Charabanc
From Wikipedia, the free encyclopedia
This 1920 Punch cartoon shows UK government
ministers in a charabanc.
A charabanc or "char--
banc" is a type ofhorse-
drawn vehicle or early
motor coach, usually
open-topped, common
in Britain during the
early part of the 20th
century. It was especially popular for sight-seeing or
works outingsto the country or the seaside, organised
by businesses once a year. The name derives from the
French char bancs (carriage with wooden benches),
the vehicle having originated in France in the early 19th
century.
Although the vehicle has not been common on the
roads since the 1920s, a few signs survive from the era;
a notable example atWookey Holein Somerset warns
that the road to the neighbouring village of Easton is
unsuitable for charabancs.
THE PLC FORECAST OF EVENTSALENDAR of EVENTS. A copy of the Clubs Calendar of
Events, including Future Entertainments for the next 12
months or so, is available on our Clubs website. Please keep
yourselves up-to-date by taking an occasional peek!
EPTEMBER 2011. Wednesday, 14th
September 2011:
The Speak Easy Club in Cornwall has invited Members of
PLC for a trip toDevoran, near Truro, for a Soup & Sandwich
lunch. Members of the Recovery Club from Cornwall have
also been invited. Those who have given their names to
Geoff so far have a car seat reserved. Anyone else wishing to
attend should notify Geoff as soon as possible so as to avoid
disappointment. We aim to meet up at Devoran Church at
12 noon.
CTOBER 2011. Friday, 7th
October 2011:
A Laryngectomee Study Day is being organised by
Julia and Maggie. It will be held at the Mustard Tree
Cancer Support Centre. Please make a note of this date in
your diaries as we have cancelled our normal Club Meeting
for Monday, 3rd
October 2011! Our Club Meeting will takeplace in the Double Room of the Mustard Tree between 11
and 12 noon on the 7th
... just prior to lunch. Members
should note that we have been invited to attend both
morning and afternoon sessions, as well as lunch, which
has kindly been provided by our Medical Equipment
Suppliers. So do please come prepared for a longer stay
than normal! ClickTHISto view the full programme. A hard
copy of the programme is attached for those not on-line.
OVEMBER 2011. Monday, 7th
November 2011:
John MCKENNA ofColeBROOK Housing Carershas kindly
accepted our invitation to be our Guest Speaker.
ECEMBER 2011. Monday, 5th
December 2011:
Members agreed at the August
2011 Meeting that Ted should book a
Christmas Dinner to be held at the
Acropolis Restaurant in Plymouth City
Centre at 7 p.m. Members also agreed
that the cost of this event should be
offset by Club Funds.
DERRIFORD HOSPITAL CANCER SERVICESGEOFF ATTENDED AN Internal Head & Neck Validation Panel
Meeting at Derriford Hospital on Monday, 15th
August 2011.
Geoff was in attendance as an observer in an attempt to gain
a continuing insight into the Peer Review Process. Should
anyone wish to have further information, please dont
hesitate to contact Geoff.
THE NATIONAL ASSOCIATION OFLARYNGTECTOMY CLUBS
(NALC)LC RECEIVED A COPY of the minutes of the meeting of
the NALC General Committee held on Monday, 4th
July
2011. NALC only ever send the one copy so if anyone wishes
to see a copy then do please let Geoff know. PLC was not
represented. Just for interest, these are the main points
covered:
Attendance. 18 representatives from across the UKwere in attendance.
Finance. Current Account: 65,235.54Business Account : 34,818.63
AGM. The AGM was held in London but the turnoutwas poor. Geoff and Jean represented PLC.
Annual Luncheon. The Annual Lunch was held onSunday, 4
thSeptember 2011 at Penrith. Although
invited, none of our Members attended.
Larynx Transplants. An article will be published soonin the CLAN Magazine.
Next Transplants. An article will be published soonin the CLAN Magazine.
PLC ON FACEBOOKANDA, OUR WEBMASTER, has now put our Club on
Facebook. Please do go online and take a look. Go to
Facebook and then put Plymouth
Laryngectomy Club into the Search Box!
Alternatively, justclick on this link. When you
get there, please show us your support by
clicking on the LIKE button. And do please
leave a comment... this is YOUR Facebook Page!
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http://en.wikipedia.org/wiki/Charabanchttp://en.wikipedia.org/wiki/Charabanchttp://en.wikipedia.org/wiki/Punch_(magazine)http://en.wikipedia.org/wiki/Punch_(magazine)http://en.wikipedia.org/wiki/Horse-drawn_vehiclehttp://en.wikipedia.org/wiki/Horse-drawn_vehiclehttp://en.wikipedia.org/wiki/Horse-drawn_vehiclehttp://en.wikipedia.org/wiki/Horse-drawn_vehiclehttp://en.wikipedia.org/wiki/Coach_(vehicle)http://en.wikipedia.org/wiki/Coach_(vehicle)http://en.wikipedia.org/wiki/Day-tripperhttp://en.wikipedia.org/wiki/Day-tripperhttp://en.wikipedia.org/wiki/Wookey_Holehttp://en.wikipedia.org/wiki/Wookey_Holehttp://en.wikipedia.org/wiki/Wookey_Holehttp://en.wikipedia.org/wiki/Easton,_Somersethttp://en.wikipedia.org/wiki/Easton,_Somersethttp://plymouthlc.webs.com/Calendar.htm#ThisMonthhttp://plymouthlc.webs.com/Calendar.htm#ThisMonthhttp://plymouthlc.webs.com/Calendar.htm#ThisMonthhttp://plymouthlc.webs.com/Calendar.htm#ThisMonthhttp://plymouthlc.webs.com/Future.htmhttp://plymouthlc.webs.com/Future.htmhttp://plymouthlc.webs.com/Future.htmhttp://www.cornwall-calling.co.uk/gazetter-cornwall/devoran.htmhttp://www.cornwall-calling.co.uk/gazetter-cornwall/devoran.htmhttp://www.cornwall-calling.co.uk/gazetter-cornwall/devoran.htmhttp://www.slideshare.net/kandaphati2/plc-laryngectomy-study-day-inhttp://www.slideshare.net/kandaphati2/plc-laryngectomy-study-day-inhttp://www.slideshare.net/kandaphati2/plc-laryngectomy-study-day-inhttp://www.colebrookhousing.co.uk/carers/http://www.colebrookhousing.co.uk/carers/http://www.colebrookhousing.co.uk/carers/http://www.greekfoodanddrink.com/restaurants/england/devon.htmhttp://www.greekfoodanddrink.com/restaurants/england/devon.htmhttp://www.ncat.nhs.uk/ncprhttp://www.ncat.nhs.uk/ncprhttp://www.laryngectomy.org.uk/http://www.laryngectomy.org.uk/http://www.laryngectomy.org.uk/http://www.facebook.com/search.php?q=plc&init=quick&tas=0.3260368499881515#!/pages/Plymouth-Laryngectomy-Club/111621182271959http://www.facebook.com/search.php?q=plc&init=quick&tas=0.3260368499881515#!/pages/Plymouth-Laryngectomy-Club/111621182271959http://www.facebook.com/search.php?q=plc&init=quick&tas=0.3260368499881515#!/pages/Plymouth-Laryngectomy-Club/111621182271959http://plymouthlc.webs.com/Calendar.htm#ThisMonthhttp://www.facebook.com/search.php?q=plc&init=quick&tas=0.3260368499881515#!/pages/Plymouth-Laryngectomy-Club/111621182271959http://www.laryngectomy.org.uk/http://www.ncat.nhs.uk/ncprhttp://www.greekfoodanddrink.com/restaurants/england/devon.htmhttp://www.colebrookhousing.co.uk/carers/http://www.slideshare.net/kandaphati2/plc-laryngectomy-study-day-inhttp://www.cornwall-calling.co.uk/gazetter-cornwall/devoran.htmhttp://plymouthlc.webs.com/Future.htmhttp://plymouthlc.webs.com/Calendar.htm#ThisMonthhttp://plymouthlc.webs.com/Calendar.htm#ThisMonthhttp://en.wikipedia.org/wiki/Easton,_Somersethttp://en.wikipedia.org/wiki/Wookey_Holehttp://en.wikipedia.org/wiki/Day-tripperhttp://en.wikipedia.org/wiki/Coach_(vehicle)http://en.wikipedia.org/wiki/Horse-drawn_vehiclehttp://en.wikipedia.org/wiki/Horse-drawn_vehiclehttp://en.wikipedia.org/wiki/Punch_(magazine)http://en.wikipedia.org/wiki/Charabanc -
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Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)
or email: [email protected], or go to PLC website at http://plymouthlc.webs.com4
THE RECOVERY CLUB, CORNWALL
EOFF EMAILED A copy of the August 2011 Newsletter to
those of our members on-line. Those not on-line should
contact Geoff for a hard copy. Some of us will have the
opportunity of meeting up with members of The Recovery
Club on our trip to Devoran in September 2011. The Recovery
Club and the Speak Easy Club will both be in attendance!
That's good news!
LETTERS TO THE EDITOR
From: THOMAS Nicola (TORBAY CARE TRUST)
To: Geoffrey [email protected]
Sent: Thu, 11 August, 2011 9:27:01
Subject: RE: PLC NEWSLETTER
Geoff,
Thanks for your newsletter. Ive added your website
address on our website, on the support page. The link is:
http://www.peninsulacancernetwork.org.uk/public/others
upport/Pages/HeadNeck.aspx
Hope this is OK!
Nikki
Nikki THOMASNetwork Nurse Director
Peninsula Cancer Network
www.peninsulacancernetwork.org.uk
www.facebook.com/peninsulacancernetwork
Editorial Comment: Thanks Nicola! I hope other organisations
will follow your lead! Ed.
THE SOUTH WESTERN
AMBULANCE SERVICEEOFF RECENTLY VISITED the South Western Ambulance
ServicesTraining College recently where he met up with
Lizzie RYAN, the Education
Business Manager. It was agreed
that the Ambulance Service
Emergency Control Room for our
region could flag-up the names
and details of our Club Members
so, in the event of a medical emergency, the Service could
ensure that their paramedics could be properly briefed that the
patient was a Laryngectomee so they would know what to do,
and more importantly, what not to do! The Service could alsoensure their ambulances would be kitted out with any special
neck-breathing equipment that may be necessary.
TheData Protection Actforbids me passing anyones personal
details to anyone else without that individuals authority. So if
you wish to take part in this scheme, would you please
complete the attached form and email it, or pass it back to me?
I will then ensure that your details are passed on to our local
Ambulance Service.
This authorisation will need to be renewed every six months
but dont worry... the Club will send out reminders. One last
point: Laryngectomees do not have to be Club Members to
participate in this Scheme and we have passed blank forms toJulia and Maggie to dish out to their patients as required.
NEWS & CURRENT EVENTS
DISCLAIMER
Please note that the views and opinions expressed in this section are
not necessarily those held by the PLC Committee nor its Members.
GIFT OF a Voice. I wanted to share with you the storyA
Gift of a Voice which is about my efforts to speak again.
It was posted in the Georgetown University Homepage as a
feature story and can be seen on-line at:
http://gumc.georgetown.edu/news/stories/230883.htmlFor those not on-line, its repeated below... I do hope that
you will find it inspirational!
Thanks!
Itzhak BROOK, MD, MSc
Professor of Medicine
Georgetown University
Washington DC, USA
Blog site: driBROOK.blogspot.com
Email: [email protected]
THE GIFT OF A VOICE
STARING AT THE AUDIENCE, Dr. Itzhak BROOK was nervous.In front of him were doctors and cancer survivors. He thought
about surviving Israeli wars and the time he lost a patient, but
nothing would prepare him for his first speech after losing his
vocal cords to cancer.
Outfitted with aprosthesisto help him speak, BROOK faced a
challenging audience: would they stay or would they go?
What BROOK learned after his speech would help him realise
the power and gift of his voice.
As a professor at Georgetown University Medical Center,
BROOK is revered for his professionalism and ability to teach
medical students the art and science of medicine. A natural at
the sciences, BROOK discovered his affinity for medicine as ayoung child.
Growing up my parents believed in a solid education, says
BROOK. I felt an obligation to make something of my life and
my passion for medicine evolved throughout high school.
BROOK finished medical school in Jerusalem, Israel and
completed fellowships at Ivy League universities in the United
States, publishing research on anaerobic microbes and head
and neck infections. He says it was in paediatric infectious
diseases where he felt most at home.
When I was a doctor of internal medicine, I lost a couple of
patients and that was hard for me, says BROOK. But when I
went [in]to paediatrics and infectious diseases, I felt I could
fight and win on behalf of my patients... it was so rewarding
for me.
Along the way BROOK lectured medical students and
physicians and treated patients using his voice as an
instrument to share his love and passion for medicine.
That all changed in 2006 when BROOK was diagnosed with
cancer.
After learning he had throat cancer, BROOK explains he was
shaken to the core and did not share it with his friends or
colleagues.
It felt like a death sentence, says BROOK. I asked my
children and wife to keep the news private because I did not
want to feel stigmatized as a cancer patient for fear of looking
weak and vulnerable.
G
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mailto:[email protected]:[email protected]:[email protected]://www.peninsulacancernetwork.org.uk/public/othersupport/Pages/HeadNeck.aspxhttp://www.peninsulacancernetwork.org.uk/public/othersupport/Pages/HeadNeck.aspxhttp://www.peninsulacancernetwork.org.uk/public/othersupport/Pages/HeadNeck.aspxhttp://www.peninsulacancernetwork.org.uk/http://www.peninsulacancernetwork.org.uk/http://www.facebook.com/peninsulacancernetworkhttp://www.facebook.com/peninsulacancernetworkhttp://www.swast.nhs.uk/http://www.swast.nhs.uk/http://www.swast.nhs.uk/http://www.ico.gov.uk/for_organisations/data_protection.aspxhttp://www.ico.gov.uk/for_organisations/data_protection.aspxhttp://www.ico.gov.uk/for_organisations/data_protection.aspxhttp://gumc.georgetown.edu/news/stories/230883.htmlhttp://gumc.georgetown.edu/news/stories/230883.htmlhttp://www.dribrook.blogspot.com/http://www.dribrook.blogspot.com/mailto:[email protected]:[email protected]://en.wikipedia.org/wiki/Prosthesishttp://en.wikipedia.org/wiki/Prosthesishttp://en.wikipedia.org/wiki/Prosthesishttp://gumc.georgetown.edu/http://gumc.georgetown.edu/http://www.swast.nhs.uk/http://gumc.georgetown.edu/http://en.wikipedia.org/wiki/Prosthesismailto:[email protected]://www.dribrook.blogspot.com/http://gumc.georgetown.edu/news/stories/230883.htmlhttp://www.ico.gov.uk/for_organisations/data_protection.aspxhttp://www.swast.nhs.uk/http://www.swast.nhs.uk/http://www.facebook.com/peninsulacancernetworkhttp://www.peninsulacancernetwork.org.uk/http://www.peninsulacancernetwork.org.uk/public/othersupport/Pages/HeadNeck.aspxhttp://www.peninsulacancernetwork.org.uk/public/othersupport/Pages/HeadNeck.aspxmailto:[email protected] -
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Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)
or email: [email protected], or go to PLC website at http://plymouthlc.webs.com5
BROOK felt as if his lucky star was gone.
But, with the love and support of his family guiding him,
BROOK made it through the gruelling radiation appointments
that required a leave of absence from work and teaching.
While recovering from the first round of treatment, BROOK
received some unexpected news from his doctor.
His cancer was back with a vengeance. This time, BROOK did
not have a choice except to tell his friends and family his
diagnosis was bleak.
BROOK and his wife felt it best to tell their children in person,not over the phone. He met with them face-to-face so that he
could answer their questions.
Each one of my five children is special and we took a lot of
time deciding how to tell them my cancer had returned, says
BROOK.
His daughter, Sara BROOK, was devastated. My dad had
always been a symbol of strength in my life and his sickness
forced me to accept that he was vulnerable, she says.
Although he has approached his sickness with the same
persistence he's exhibited during previous challenges, cancer
is such an unknown and powerful force. It's a scary fight.
After revealing the news to his family and friends he was
surprised at the outpouring of emotional support. People did
not stigmatise him or turn their backs, instead they embraced
him.
BROOK found an otolaryngologist who would see him
through his darkest days. The doctor informed BROOK that
his only hope for a cure was to remove his larynx... a
procedure that would leave him voiceless.
All of my life I have used my voice to teach and to
communicate with patients, says BROOK. The thought of
losing my voice was terrifying but I didnt have a choice... it
was lose my life to cancer or lose my voice ... I chose losing my
voice.
BROOK did receive some good news prior to surgery. His
doctors told him a voice prosthesis might allow him to speak
again one day in the future, but it would be a slow and
tedious process. This hopeful possibility that would help get
BROOK through surgery.
After the surgery, BROOK fought frustration and depression
and faced additional health issues as a result of surgery.
Then there were the uncertainties of the voice prosthesis...
how would his voice sound? What if the prosthesis failed to
work?
The surgery to insert the voice prosthesis was successful, but
speaking again did not come easily. Learning to speak
included additional speech pathology visits and, as BROOKfeared, he was not immediately comfortable with the sound
of his new voice.
Imagine not sounding like yourself, says BROOK. I spoke
with a soft whisper... I had no idea how people might react.
Following physical therapy and learning to use his prosthesis,
BROOK rebounded. He returned to teaching and the medical
profession. But, this time, he was going to do it differently.
He no longer remains distant from his patients.
Now he hugs them, he comforts them. He encourages them
to use their voices and to speak up when something is wrong.
He knows what its like to be in their shoes.
Our voice is our most powerful tool. Its our biggestadvocate for our health and wellness, he says.
So when he was asked to give a lecture to a large group
following his treatment, BROOK hesitated, but after much
thought he accepted the invitation.
Although he feared people would walk out of the room,
unable to understand or cringe at his airy, soft whisper, he
began to speak. I am Dr. Itzhak BROOK, he said. I am a
cancer survivor.
To his surprise, no one left the room. Instead, all remained
silent as he recounted the story of his amazing fight with an
eventual victory.This first public speech after cancer awakened a new passion
in him... to share his story with patients and doctors,
encouraging patient-doctor communication and active
patient participation.
He now tours the country giving lectures and presentations,
no longer the hesitant individual afraid to share his voice, but
a man who has learned that his soft whisper has the impact
of a shout.
By Tressa KIRBY, GUMC CommunicationsPublished July 20, 2011
ANCER LARYNGECTOMEE TRUST. Geoff has received ahard copy of the September 2011 edition of their
Newsletter. Please contact Geoff if you wish to see a copy.
Alternatively, you can contact the Trust at:
Cancer Laryngectomee Trust,
National Association of Neck Breathers,
P.O. Box 618,
Halifax HX3 8WX
Telephone: (01422) 205 522
Website: www.cancerlt.org
Email: [email protected]
ARE QUALITY COMMISSION (CQC): The CQC has nowpublished its Annual Report & Accounts for 2010/11. This
shows that they have now completed the task of registering
all adult social care and independent
healthcare services, as well as private
ambulances and dentists... almost
30,000 services in total... to the timescales set in legislation.
They say that this meant diverting resources away from core
inspection functions for a time, leading to a temporary drop
in the numbers of inspections. Inspections will now become
the top priority. An electronic copy of the report is available
at:http://www.cqc.org.uk/publications.cfm?fde_id=18566.
The report is 100 pages in length so Geoff cannot help outthose not on-line!
LAN NEWSLETTER. CLAN is the official magazine of the
National Association of Laryngectomee Clubs (NALC). The
Plymouth Laryngectomy Club is affiliated to NALC.
The September 2011 edition of CLAN is online now!
Click to view it fullscreen
Download the pdf(825.82 KB)
I have received some hard copies
which I will be redistributing to
members who are not on-line.
I do hope you all get the time to
read this edition as there are
some insteresting snippets inside it.
C
C
C
http://www.cancerlt.org/http://www.cancerlt.org/mailto:[email protected]:[email protected]://www.cqc.org.uk/http://www.cqc.org.uk/http://www.cqc.org.uk/publications.cfm?fde_id=18566http://www.cqc.org.uk/publications.cfm?fde_id=18566http://www.cqc.org.uk/publications.cfm?fde_id=18566http://www.slideshare.net/slideshow/embed_code/9227150http://www.slideshare.net/slideshow/embed_code/9227150http://www.mediafire.com/?jcht9hc7cwm189whttp://www.mediafire.com/?jcht9hc7cwm189whttp://www.mediafire.com/?jcht9hc7cwm189whttp://www.slideshare.net/slideshow/embed_code/9227150http://www.cqc.org.uk/publications.cfm?fde_id=18566http://www.cqc.org.uk/mailto:[email protected]://www.cancerlt.org/ -
8/4/2019 The Voice of PLC 1109-10 Final
6/8
Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)
or email: [email protected], or go to PLC website at http://plymouthlc.webs.com6
XERCISE, NOT REST, is Important After Ops. This article
was published inThe Heraldon Thursday, 11th
August 2011.
MACMILLAN Cancer Support has launched a campaign to
encourage people in Plymouth affected by cancer to exercise
more.
The Move More campaignfollows a report that showed the
importance of physical activity in the recovery and long-term
health of cancer patients. Patients have long been
encouraged to rest after treatment, something which Move
More shows puts cancer patients at risk.Macmillan Cancer Support has estimated that at least 1.6
million cancer survivors are at risk of long-term health
problems and the recurrence of some cancers because they
are not exercising enough. The report found that 150
minutes of exercise a week can cut the risk of breast cancer
recurring by 40%, compared to those doing less than an hour.
Similarly, the risk of bowel cancer returning can be reduced
by roughly half by doing six hours of moderate physical
activity per week and the risk of dying from prostate cancer
can be reduced by up to 30% with 150 minutes of moderate
exercise a week.
The survey found that many health professionals are notaware of emerging evidence that exercise could improve
recovery and long-term health. The survey showed that 72
per cent of GPs and 60% of oncologists do not discuss the
possible benefits of exercise with their patients.
David CROSBY, from Macmillan Cancer Support, said: "There
really needs to be a cultural change, so that health
professionals see physical activity as an integral part of cancer
after care, not just an optional add on."
He added: "It doesn't need to be anything too strenuous...
doing the gardening, going for a brisk walk or swim all count.
Health professionals can refer patients to a variety of services."
'VE BEATEN CANCER, says Ex-England Star Bryan ROBSON
after being given the All Clear. This article was published
inthe Daily Mailon Friday, 26th
August 2011.
All clear: Bryan ROBSON has
beaten throat cancer after he
received a letter from a doctor
that treated him.
Former England football captain
Bryan ROBSON has declared
that he has beaten throat
cancer.
The 54-year-old said he was
given the news in a letter from
the specialist who treated him.
ROBSON will now have another
check-up to make sure the rest of his body is clear but says
medics are confident that will be the case.
It was revealed in March that the former Manchester United
star, nicknamed Captain Marvel, had been diagnosed with thedisease.
ROBSON, who was the Thailand national coach at the time,
went to doctors after having difficulty swallowing and feeling a
lump on his throat. He underwent surgery and radiotherapy.
ROBSON said yesterday: It was great news that I had in the
letter. Things seem to be going well for me.
He said he was overwhelmed by the level of support from the
public.
'Ive been getting messages all the time and I have had great
support from fans throughout the world and at West Brom,
Middlesbrough, Thailand and obviously United.'Id like to thank everyone for that.'
ROBSON joined the Reds in 1981 for a then British record of
1.8m.
In what was a barren decade by their standards his all-action
performances helped them lift the FA Cup in 1983. ROBSON
also lifted the Cup Winners Cup in 1991, the Premier League in
1993 and 1994 - the same year the Red Devils also won the FA
Cup.
He won 90 England caps and scored 26 goals.
To read more please click on this link.
HE MONKEE WHO Sings Better Than Ever Because HeHad Throat Cancer. This article was published inthe Daily
Mailon Tuesday, 16th
August 2011.
Having long ago turned his back on his wild rock past, Peter
TORK had every reason to
think he was in
reasonably good health.
But two years ago, The
Monkees star received
terrifying news... the dry
throat and husky voice
hed developed were
signs of cancer of the
neck. The diagnosis was
a real jolt, says the 69-
year-old.
His symptoms first appeared in the autumn of late 2008.
If you wish to read more, then please click on this link.
EW PATIENT TRANSPORT Policy for Plymouth. NHS
Plymouth is carrying out a piece of work about the
production and implementation of a Patient Transport Policy,
the purpose of which is to make sure that they are in line with
national practice and that they have clear guidance on the
management of patient transport. Additionally, the policyhopes to ensure that resources are targeted to the right
people at the right time, with the appropriate level of
support. This policy has been developed in conjunction with
both NHS Devon & Cornwall & Isles of Scilly NHS Trust, to
ensure a standardised approach for all patients across the
South West Peninsula.
They would welcome any feedback that people might be able
to give. If any groups feel it would be useful for NHS Plymouth
to come out and discuss it with them they would be happy to
do this.
The national policies which have been used to inform the
production of local policy are as follows:
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8/4/2019 The Voice of PLC 1109-10 Final
7/8
Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)
or email: [email protected], or go to PLC website at http://plymouthlc.webs.com7
Health Care Travel Costs Scheme
Patient Transport Service
Further supporting information is available on the NHS
Plymouth Website.
Let us know what you think about patient transport and
how it could be improved... we need to hear from you by
12th
September 2011. Please contact the Plymouth LINk
Support Team:
Freepost RRZE-AGZT-EXRS
LINk Support Team
Unit 15, HQ Building,
237 Union Street,
PLYMOUTH, PL1 3HQ , Devon.
Telephone: (01752) 202407
Mobile: 07533 432200
Website: www.plymouth-link.co.uk
Email: [email protected]
LYMOUTH HEALTHWATCHInformation Event. This event
will take placeon Thursday, 22nd
September 2011 from 9
a.m. until 1 p.m. in the Charter Room ofPlymouth Guildhall.
Discuss how H ealthWatch can represent local views Find out about the Governments plans for HealthWatch Share your ideas about how it could workPlease contactPlymouth LINkto let them know if you would
like to attend and give your preferred date at:
Plymouth LINk Support Team
Freepost RRZE-AGZT-EXRS,
Unit 15, HQ Building,
237 Union Street,
Plymouth, PL2 3HQ, Devon.
Telephone: (01752) 202407
Email: [email protected]
OCIAL CARE DIRECTORY Launched. This article was
published in The Plymouth Herald on Wednesday, 17thAugust 2011.
PLYMOUTH City Council has launched a new
online directory of Social Care & Health
Services.
ThePlymouth Online Directory(POD) has been
designed to make information more accessible
and give people greater choice and control
over the services they want to use.
The website draws together information about health and
wellbeing, highlighting services and organisations to help
people maintain their independence in their own homes.
It contains information on local and national charities,
community groups and organisations offering advocacy
services, money advice and training, employment and
volunteering opportunities
Councillor Grant MONAHAN, Cabinet member for Adult
Health & Social Care, said: "People are increasingly choosing
to organise their own services and POD will help by bringing
the information together into one place and making it easier
to understand and navigate."
Dr. Peter RUDGE, Chairman of the Plymouth Health service's
Commissioning Group, added: "The council's development of
the POD is a wonderful step forward in our efforts to help
patients, clients and professionals navigate their way to
everyday solutions to meet their needs."
Editorial Comment: Geoff applied to have PLC included in
the POD and we have since been added.
RIO APPOINTED TO Help Run New Health Company.
This article was published in The Plymouth Herald on
Wednesday, 31
st
August 2011:TWO former police chiefs and a banker will help run a new
company set to take over Plymouth's Community Health
Services.
Morris WATTS, Jim WEBSTER and Marie KERR have been
appointed as non-executive directors of Plymouth
Community Healthcare.
The social enterprise will take control of community health
services, 2,200 staff and a 90million budget from NHS
Plymouth, the city'sPrimary Care Trust(PCT).
The shift is part of nationwide changes, started under Labour
and being taken on by the coalition. It is taking shape
alongside other NHS reforms including giving GPs widerfunding powers when PCTs are abolished.Duncan CURRALL,
Plymouth Community Healthcare chair designate, said he was
delighted to announce the three appointments.
The new organisation, which will provide community and
mental health services for the people of Plymouth, is due to
be launched on Saturday, 1st
October 2011.
Pleaseclick on this linkto read more.
RIPS & DAYS Out on Offer to Care for Carers. This article
was published inThe Heraldon Friday, 12th
August 2011:
CARERS are invited to take part in free summer activities.Carers Championsare working with other organisations to put
on a range of events in coming months... for
carers and the people they support.
Options include massage treatments, meal
out, trips to Paignton Zoo, a backstage tour
of the Theatre Royal with lunch, and a trip to Buckfast Abbey.
There will also be a course on Assertiveness & Confidence
Building. Some activities require a 2 deposit.
For more details and to secure a place call Carers Champions
team on (01752) 211348.
HAT IS THE Equality Delivery System (EDS)? The
EDS has been designed to support NHS organisations
to deliver better services for patients and communities which
are personal, fair and diverse. It will help organisations meet
the requirements of the Equality Duty which include having
due regard for the need to:
Eliminate unlawful discrimination, harassment & victimisation. Advance equality of opportunity between different groups. Foster good relations between different groups.The primary purpose of the EDS is to create conversations
between NHS organisations and their patients, the public and
stakeholders. These conversations will help us to assess our
performance, and with your help enable us to agree whatequality objectives should be prioritised and the actions
required.
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protected]:[email protected]://www.plymouthonlinedirectory.com/kb5/plymouth/pod/home.pagehttp://www.plymouthonlinedirectory.com/kb5/plymouth/pod/home.pagehttp://www.plymouthonlinedirectory.com/kb5/plymouth/pod/home.pagehttp://www.plymouth.gov.uk/modgov?modgovlink=http%3A%2F%2Fwww.plymouth.gov.uk%2FmgInternet%2FmgUserInfo.aspx%3FUID%3D1022http://www.plymouth.gov.uk/modgov?modgovlink=http%3A%2F%2Fwww.plymouth.gov.uk%2FmgInternet%2FmgUserInfo.aspx%3FUID%3D1022http://www.thisisplymouth.co.uk/Trio-appointed-help-run-new-health-company/story-13236152-detail/story.htmlhttp://www.thisisplymouth.co.uk/Trio-appointed-help-run-new-health-company/story-13236152-detail/story.htmlhttp://www.linkedin.com/pub/morris-watts/21/79a/9aahttp://www.linkedin.com/pub/morris-watts/21/79a/9aahttp://www.thisisplymouth.co.uk/Jim-Webster-answer-questions/story-12674408-detail/story.htmlhttp://www.thisisplymouth.co.uk/Jim-Webster-answer-questions/story-12674408-detail/story.htmlhttp://www.iow.nhs.uk/asp/news/index.asp?record=612&articleID=96http://www.iow.nhs.uk/asp/news/index.asp?record=612&articleID=96http://www.mitel.com/DocController?documentId=30369http://www.mitel.com/DocController?documentId=30369http://www.mitel.com/DocController?documentId=30369http://www.plymouthpct.nhs.uk/Pages/default.aspxhttp://www.plymouthpct.nhs.uk/Pages/default.aspxhttp://www.plymouthpct.nhs.uk/Pages/default.aspxhttp://www.plymouthpct.nhs.uk/AboutUs/Pages/newsarticle206.aspxhttp://www.plymouthpct.nhs.uk/AboutUs/Pages/newsarticle206.aspxhttp://www.plymouthpct.nhs.uk/AboutUs/Pages/newsarticle206.aspxhttp://www.thisisplymouth.co.uk/Trio-appointed-help-run-new-health-company/story-13236152-detail/story.htmlhttp://www.thisisplymouth.co.uk/Trio-appointed-help-run-new-health-company/story-13236152-detail/story.htmlhttp://www.thisisplymouth.co.uk/Trio-appointed-help-run-new-health-company/story-13236152-detail/story.htmlhttp://www.thisisplymouth.co.uk/Trips-days-offer-care-carers/story-13117909-detail/story.htmlhttp://www.thisisplymouth.co.uk/Trips-days-offer-care-carers/story-13117909-detail/story.htmlhttp://www.thisisplymouth.co.uk/Trips-days-offer-care-carers/story-13117909-detail/story.htmlhttp://www.colebrookhousing.co.uk/carers/http://www.colebrookhousing.co.uk/carers/http://www.nhsemployers.org/EmploymentPolicyAndPractice/EqualityAndDiversity/atest-e-and-d-news/Pages/EqualityDeliverySystem.aspxhttp://www.nhsemployers.org/EmploymentPolicyAndPractice/EqualityAndDiversity/atest-e-and-d-news/Pages/EqualityDeliverySystem.aspxhttp://www.nhsemployers.org/EmploymentPolicyAndPractice/EqualityAndDiversity/atest-e-and-d-news/Pages/EqualityDeliverySystem.aspxhttp://www.colebrookhousing.co.uk/carers/http://www.thisisplymouth.co.uk/Trips-days-offer-care-carers/story-13117909-detail/story.htmlhttp://www.thisisplymouth.co.uk/Trio-appointed-help-run-new-health-company/story-13236152-detail/story.htmlhttp://www.plymouthpct.nhs.uk/AboutUs/Pages/newsarticle206.aspxhttp://www.plymouthpct.nhs.uk/Pages/default.aspxhttp://www.mitel.com/DocController?documentId=30369http://www.mitel.com/DocController?documentId=30369http://www.iow.nhs.uk/asp/news/index.asp?record=612&articleID=96http://www.thisisplymouth.co.uk/Jim-Webster-answer-questions/story-12674408-detail/story.htmlhttp://www.linkedin.com/pub/morris-watts/21/79a/9aahttp://www.thisisplymouth.co.uk/Trio-appointed-help-run-new-health-company/story-13236152-detail/story.htmlhttp://www.plymouth.gov.uk/modgov?modgovlink=http%3A%2F%2Fwww.plymouth.gov.uk%2FmgInternet%2FmgUserInfo.aspx%3FUID%3D1022http://www.plymouthonlinedirectory.com/kb5/plymouth/pod/home.pagemailto:[email protected]://www.plymouth-link.co.uk/http://www.plymouth.gov.uk/plymouthguildhallhttp://plymouth-link.co.uk/news.htmlmailto:[email protected]://www.plymouth-link.co.uk/http://www.plymouthpct.nhs.uk/AboutUs/sites/Pages/transportlinks.aspxhttp://www.plymouthpct.nhs.uk/AboutUs/sites/Pages/transportlinks.aspxhttp://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_078373http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_116383 -
8/4/2019 The Voice of PLC 1109-10 Final
8/8
Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)
or email: [email protected], or go to PLC website at http://plymouthlc.webs.com8
Getting involved
The first step for Plymouth Hospitals NHS Trust and NHS
Plymouth (provider and commissioner) is to migrate from our
existing Equality Schemes (strategy and action plan) to the
new EDS. This will need to be in place by April 2012 and to
help us do this we are running various engagement activities
which aim to:
Ensure you know what is happening, when it will happen andhow it will affect you.
Increase the opportunity for feedback and input into the EDS anddevelop partnerships to help assist with the delivery of the EDS.
Work with you, in particular diverse communities to understandwhat the priorities are.
Achieve a shared understanding of the EDS. Explain why we are taking a particular action.We are holding an event on Wednesday, 26
thOctober, from
9.15 a.m. to 12.30 p.m., at the Welcome Hall, 4 Fore Street,
Devonport to start this conversation (lunch provided). The
aim of the session is to:
Inform you of the EDS and how your input can help shape anddeliver the best solutions to meet the needs of the people of
Plymouth.
Involve you in the development of the EDS objectives and anopportunity to comment on the EDS.
Help us assess where we are as an organisation (analysing andgrading performance).
At the end of the session you will receive an Equality
Champion pack which can be shared with others to help start
the assessment process. We are also committed to ensuring
the conversation continues after the grading process so that
together we can identify objectives that will benefit
communities and deliver better outcomes.
We hope that you are able to attend and please let know byThursday, 15
thSeptember 2011 via the contact details below.
Further details will be forwarded nearer the time. If you are
unable to make this date we would still like to hear from you.
Email: [email protected]
Post: Equality & Diversity Organisational Development
Building 4
Derriford Business Park
Derriford,
Plymouth PL6 5XN
Telephone: (01752) 437251 or (01752) 437610.
ENINSULA HEAD & NECK CANCER SUPPORT GROUP(PHANCS)
Are you interested in a support group for head and neck
cancer patients and carers?
This could take the form of:
Group meetings, One to One meetings,
Information / advice by post or E mail
An on line web site, Telephone help line,
Or a combination of the above.
We have established that there is a need for such a group
and are in the early planning stage.
If you would be interested in
helping with setting up the
group please contact Mac Merrett.
[email protected] Tel. 01392 8412490
LTERNATE MEANINGS FOR Common Words. A
newspaper has published the winning submissions to its
yearly contest, in which readers are asked to supply alternate
meanings for common words. And the winners are:
1. Coffee, n.
The person upon whom one coughs.
2. Flabbergasted, adj.
Appalled by discovering how much weight one
has gained.
3. Abdicate, v.
To give up all hope of ever having a flat stomach.
4. Esplanade, v.
To attempt an explanation while drunk.
5. Willy-nilly, adj.
Impotent.
6. Negligent, adj.
Absentmindedly answering the door when
wearing only a nightgown.
7. Lymph, v.
To walk with a lisp.
8. Gargoyle, n.
Olive-flavoured mouthwash.
9. Flatulence, n.
Emergency vehicle that picks up someone who
has been run over by a steamroller.
10. Balderdash, n.
A rapidly receding hairline.
11. Testicle, n.
A humorous question on an exam.
12. Rectitude, n.The formal, dignified bearing adopted by
proctologists.
13. Frisbeetarianism, n.
The belief that, after death, the soul flies up onto
the roof and gets stuck there.
14. Circumvent, n.
An opening in the front of boxer shorts worn by
Jewish men.
ACKNOWLEDGMENT
Our grateful thanks to :
THE PLYMOUTH DIOCESEhttp://www.plymouth-diocese.org.uk/
for their assistance in reproducing copies ofthis newsletter
P
A
mailto:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]://www.plymouth-diocese.org.uk/http://www.plymouth-diocese.org.uk/http://www.plymouth-diocese.org.uk/mailto:[email protected]:[email protected]