the roden family - our survival story...alpe d’huez. london marathon april 2013 . pledge a pint...

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The Roden Family - Our Survival Story

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Page 1: The Roden Family - Our Survival Story...Alpe d’Huez. London Marathon April 2013 . Pledge a Pint and ECMO family support…. What we offer • Website • Support by e-mail / phone

The Roden Family - Our Survival Story

Page 2: The Roden Family - Our Survival Story...Alpe d’Huez. London Marathon April 2013 . Pledge a Pint and ECMO family support…. What we offer • Website • Support by e-mail / phone
Page 3: The Roden Family - Our Survival Story...Alpe d’Huez. London Marathon April 2013 . Pledge a Pint and ECMO family support…. What we offer • Website • Support by e-mail / phone
Page 4: The Roden Family - Our Survival Story...Alpe d’Huez. London Marathon April 2013 . Pledge a Pint and ECMO family support…. What we offer • Website • Support by e-mail / phone

Why a diary helped - Something positive to do - Helped keep a sense of time - I could tell the truth! - Gave Sam back those “lost” 3 weeks - A record of progress for Sam - Supported the healing process for me

Page 5: The Roden Family - Our Survival Story...Alpe d’Huez. London Marathon April 2013 . Pledge a Pint and ECMO family support…. What we offer • Website • Support by e-mail / phone

ECMO

Page 6: The Roden Family - Our Survival Story...Alpe d’Huez. London Marathon April 2013 . Pledge a Pint and ECMO family support…. What we offer • Website • Support by e-mail / phone

35 days off ECMO

Page 7: The Roden Family - Our Survival Story...Alpe d’Huez. London Marathon April 2013 . Pledge a Pint and ECMO family support…. What we offer • Website • Support by e-mail / phone

100 days off ECMO Alpe d’Huez

Page 8: The Roden Family - Our Survival Story...Alpe d’Huez. London Marathon April 2013 . Pledge a Pint and ECMO family support…. What we offer • Website • Support by e-mail / phone

London Marathon April 2013

Page 9: The Roden Family - Our Survival Story...Alpe d’Huez. London Marathon April 2013 . Pledge a Pint and ECMO family support…. What we offer • Website • Support by e-mail / phone

Pledge a Pint www.pledgeapint.co.uk

and ECMO family support….

Page 10: The Roden Family - Our Survival Story...Alpe d’Huez. London Marathon April 2013 . Pledge a Pint and ECMO family support…. What we offer • Website • Support by e-mail / phone
Page 11: The Roden Family - Our Survival Story...Alpe d’Huez. London Marathon April 2013 . Pledge a Pint and ECMO family support…. What we offer • Website • Support by e-mail / phone

What we offer

• Website

• Support by e-mail / phone

• Informal meetings if appropriate

Page 12: The Roden Family - Our Survival Story...Alpe d’Huez. London Marathon April 2013 . Pledge a Pint and ECMO family support…. What we offer • Website • Support by e-mail / phone

Did it help? “It's been good to share. Now I don't feel like I'm going

crazy!”

“Thank you for emailing it's amazing how much it

helps.”

“Thanks so much for the emails I really appreciate

them and great to know someone understands what I

am going through”

“Thank you so much for the help you gave me & hope

when I needed it, I am very grateful to you both.”

Page 13: The Roden Family - Our Survival Story...Alpe d’Huez. London Marathon April 2013 . Pledge a Pint and ECMO family support…. What we offer • Website • Support by e-mail / phone

Future plans

• More patient stories on the

website

• More online content

• Group of volunteers

• Children’s pack

Page 14: The Roden Family - Our Survival Story...Alpe d’Huez. London Marathon April 2013 . Pledge a Pint and ECMO family support…. What we offer • Website • Support by e-mail / phone