the parkinson council: touching a life every day
DESCRIPTION
The Parkinson Council is the premier local organization dedicated to improving the quality of life for patients, caregivers, and their families impacted by Parkinson’s disease. We invest in research, education and programs provided by world renowned institutions and innovative service organizations in the Delaware Valley. We strengthen our role in the Parkinson’s community by increasing the number of lives we touch every year.TRANSCRIPT
TOUCHING A LIFE EVERY DAY…
PARKINSON’S DISEASE
www.theparkinsoncouncil.org
ABO
UT P
ARKINSO
N’S DISEASE
Parkinson's disease was first described in England in 1817 by Dr. James Parkinson. The disease most often develops after age 50. It is the second most common nervous system disorder of the elderly. Sometimes Parkinson's disease occurs in younger adults, but is rarely seen in children. It affects both men and women. Parkinson’s disease affects 1.6 million people in the U.S. and, according to the National Institutes of Health, about 50,000 new cases are reported annually. This number will rise dramatically with the aging of the “Baby Boomer” generation. Symptoms of Parkinson’s disease range from tremors, slowness of movement, rigidity, difficulty walking and poor balance to difficulty in speech and swallowing, depression and memory loss. It is a chronic neurodegenerative illness with variable progression over time, usually leading to disability and death within 10-15 years of diagnosis. Each person diagnosed with Parkinson's will experience symptoms differently. We do not know what causes Parkinson’s disease and, as yet, there is no known cure.
IMPACT
Parkinson’s Disease affects more people than Leukemia, MS, and ALS combined
Disease # US Patients
Leukemia & Lymphoma 900,000
Multiple Sclerosis 400,000
ALS (Lou Gehrig’s Disease) 30,000
Parkinson’s Disease 1.5 million
NATIO
NAL P
ARKINSO
N ORGAN
IZATION
S
Michael J. Fox
Foundation National Parkinson
Foundation American Parkinson Disease
Association Parkinson
Action Network
NPF Chapters
Davis Phinney, etc.
With several national organizations dedicated to research and quality of life issues for Parkinson’s patients, this often leads to inefficiencies. It is also difficult to determine their impact on local communities.
Parkinson Disease
Foundation
Parkinson Disease
Foundation
National Organizations that Focus on Parkinson’s Research, Services and Education
The Parkinson Council
THE PARKINSON COUNCIL
www.theparkinsoncouncil.org
WHO W
E ARE About The Parkinson Council
The Parkinson Council is the premier local organization dedicated to improving the quality of life for patients, caregivers, and their families impacted by Parkinson’s disease. We invest in research, education and services provided by world renowned institutions, and innovative service organizations in the greater Philadelphia area. We strengthen our role in the Parkinson’s community by increasing the number of lives we touch every year.
Our Mission
The mission of The Parkinson Council is to raise funds to provide financial support and grants to locally based nonprofits dedicated to improving the quality of life for Parkinson’s disease patients, caregivers and families.
The Parkinson Council, an affiliated chapter of the National Parkinson Foundation (NPF), raises funds to provide resources and services to people with Parkinson’s disease living within the Delaware Valley region.
Our Values and Vision
www.theparkinsoncouncil.org [email protected]
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PLE
Board of Directors
The Council recognizes that an important aspect of our work is cultivation of community advocates and leaders. Our volunteer Board consists of experts in law, healthcare, research, nonprofit management and business development. With our volunteers and staff, The Council is able to grant financial resources to local providers of high quality services and resources to people with Parkinson’s and their families in the region.
Executive Committee
Jeffrey Keefer, President Jo-Ann Zoll, Vice President
Karen Jacobson, Vice President Mark Wilkin, Treasurer Ryan Haaz, Secretary
Erika Aaron
Geraldine Aaron Jan Albert
Stephanie Lim Capello Vito Cosmo, Jr.
Lisa Fiorito Dan Forman
Donald Garfinkel Judi Guinan
Arlene Halpern Herb Hopkins
Lorraine Iacovitti Carol Leiper
Barry Milberg Marie Molchen William Quinlan
Suzanne Reichwein Ronald S. Robbins
Wendy R. Lewis, Executive Director Geoffrey S. Harden, Development and Communications Director
www.theparkinsoncouncil.org [email protected]
WHERE O
UR DO
LLARS COM
E FROM
*Contributions to The Parkinson Council: 2010 - 2012
2012 $877,202*
2011 $622,867
2010 $565,000
*Includes special events, memorials, honorariums
SUMMER SOLSTICE/SPRING SWING: Our 3nd annual event in 2013, raised awareness and celebrated Parkinson’s Disease Awareness Month in April. GOLF: Since 1999, The Parkinson Council has presented the Golf Classic tournament at highly renowned golf courses throughout the Philadelphia region such as Saucon Valley, Philadelphia Cricket Club , and Philmont. In the event’s history, the golf outing has raised over $3.6 million to benefit local research and services associated with Parkinson’s disease. PARKINSON’S NIGHT AT CITIZEN’S BANK PARK: 2013 was our 8th year participating in the Phillies Phunraising Program, where a percentage of tickets sold supports the mission of The Council. WALK: For 12 years, walkers of all ages joined together during our annual Stamp Out Parkinson’s Walk, the biggest grassroots event in the Delaware Valley region devoted to raise awareness about Parkinson’s disease. In 2013, The Parkinson Council moved the walk from April to October . To date, our walk has raised more than $1.6 million to support Parkinson’s patients and their families. #GIVINGTUESDAY: #GivingTuesday is a call to action (globally and locally) that encourages personal philanthropy through bigger, better and smarter charitable giving during the holiday season. As a returning #GivingTuesday partner, The Parkinson Council is seeking financial support to expand movement classes (Dance, Yoga, Pilates) in our region for people with Parkinson’s and their care partners. In 2014, our goal is to increase the visibility of our
work, strengthen our partnerships, and diversify our funding base.
Our Events in 2013
www.theparkinsoncouncil.org [email protected]
OU
R WO
RK AND P
RIORITIES IN 2014
Funding Priorities: 2014 Grants by Institution: 2010-2013
From 2013 through 2015: Grow its financial resources and expand our donor base; Strengthen our board with specialized expertise that will enhance our reach in the region and our leadership depth; Touch more lives within underserved populations; Expand our programming to support the Parkinson’s community more directly; and Build awareness of the disease and The Council’s brand as the principal resource to address the disease in the region.
Highlight of Our Work in 2013 Summary of Strategic Goals and Priorities
Invested in: Improved access to physical therapy, social supports and education for Parkinson’s patients, including traditionally underserved populations, and their families. Mobility equipment to help Parkinson's patients with financial hardships stay mobile and engaged. Innovative research to advance treatment therapies for Parkinson’s patients. Integrated approach to services, including expansion of home visits to patients with transportation and mobility challenges. Dance, yoga and Pilates classes in Philadelphia, Montgomery and Chester counties.
Penn, $755,888
CNDR, $108,000
GS/PP, $53,077
Jefferson, $408,500
MAPS, $23,000
MossRehab, $28,282
Arcadia, $15,000
Bryn Mawr, $1,000
Clinical and Scientific Research,
(29%)
Outreach and
Education, (27%)
Patient and Caregiver Services,
(44%)
www.theparkinsoncouncil.org [email protected]
The Council is committed to increasing its support for People with Parkinson’s by investing in local institutions and nonprofits.
JOIN U
S Our Priorities: 2014
The Parkinson Council seeks to be the leader in investing funding resources for PD patients, caregivers, researchers and educators in the Delaware Valley Region.
Your support ensures that local Parkinson’s patients, their families and caregivers have the needed resources and tools to promote a high quality of life and exceptional care. Your support makes it possible for local research institutions to continue their efforts to find the cause of and a cure for Parkinson’s disease. Your support is critical in helping us fulfill our vision of “touching a life every day.”
Fundraising
Messaging & Outreach
Programs & Services
Grants & Support
Our Goal
What Your Support Will Do
www.theparkinsoncouncil.org [email protected]