Paula KealeySenior Macmillan Development Manager8th May 2014

Partnership Working and Developments in Cancer Care

The cancer landscape is changing

In the past most people died some were cured

•Earlier detection•Advances in technology•New targeted therapies•Cancer research

Today people with cancer are living longer

Data from the Scottish School of Primary Care’s Multimorbidity Research Programme.

Some of our achievement in 2008

What is the Northern Ireland picture?

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67,000 today

The focus of cancer services is on the actual disease

FINANCIAL

Cancer can impact on all aspects of a person’s life

To help people make the transition after treatment we need to focus on recovery

Finding out “what matters to you” as opposed to ”what’s the matter with you”?

The Five Survivorship Stages

Improving Survivorship Intelligence

The NCSI defined four priorities

1. Redesigning follow-up

2. Recovery package

3. Physical activity

4. PROMs and consequences of treatment

http://www.youtube.com/watch?v=5Lw7pu9l6I8&feature=youtu.be

To bring about this change we have formed a partnership

Macmillan Cancer Support

Health & Social Care Board

Public Health Agency

NI Cancer Network

Involving people

affected by cancer in

the process

Transforming Cancer Follow-up

AIMSImprove patient experience after treatment and health and wellbeing Reduce inefficiencies in hospital follow up

Enhance service coordination and integration

Redesigning Follow Up

Promoting Recovery

Assessment and Care Planning

Treatment Summary

Cancer Care Review

Cancer health and wellbeing events

Macmillan Information & Support Services

Financial Advice Services

Getting help to get back to work

Physical activity is important for ongoing health

Patient Packs

Exercise to music DVD

Jam packed website

Macmillan local projects

Evidence Reviews

Self Management Programmes

Diagnosis & Treatment Rehabilitation Early

monitoringEnd of life care[Year 1 deaths]

Progressive illness*

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Rehab across the patient journey

Later monitoring

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Cancer Rehabilitation Scoping:Activities so far

• Over 60 stakeholder meetings• Literature review and full review of key

activity in cancer rehabilitation (Mac and non Mac)

• Survey of Macmillan rehabilitation professionals (n=120)

• Close liaison with ‘trusted others’• Identification of key themes and next steps

Cancer Lifeline

Partnership Working

To find out about services to support you go to the following web site...

www.survivorship.cancerni.net

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