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Page 1: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center
Page 2: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Naming Racism

Camara Phyllis Jones, MD, MPH, PhDResearch Director on Social Determinants of Health

Division of Adult and Community HealthNational Center for Chronic Disease Prevention and Health

PromotionCenters for Disease Control and Prevention

Page 3: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Dual Reality:

A Restaurant Saga

Page 4: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Levels of racism

• Institutionalized• Personally-mediated• Internalized

Page 5: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Institutionalized racism

• Differential access to the goods, services, and opportunities of society, by “race”

• Codified in societal structures, processes, and values

Page 6: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Characteristics

• Historical• Legalized• Persistent• Normative• Includes both acts of commission

and acts of omission

Page 7: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Manifestations

• Material conditions• Access to power• White privilege

Page 8: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Material conditions

• Housing• Education• Employment• Income and wealth• Access to health care• Toxic dump locations• Neighborhood resources

Page 9: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Access to power

• Information– Health information, one’s own history

• Resources– Capital, organizational, political

• Voice– Voting rights, representation in

government, media coverage

Page 10: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

White privilege

• White as normal• White as superior• White as raceless• Sense of entitlement• Invisibility of others• Hypervisibility of others

Page 11: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Measurement

• Distribution of resources• Distribution of risks• Absence of representation

• Examine current status as well as historical trends

Page 12: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Remedies

• Separation• Integration• Self-determination

– Power to decide, power to act, control of resources

• Reparations• 100% inheritance tax

Page 13: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Debates

• “Race” and racism in relation to class

Page 14: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Personally-mediated racism

• Differential assumptions about the abilities, motives, and intents of others, by “race”

• Differential actions toward others, by “race”

• Prejudice and discrimination

Page 15: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Characteristics

• Interpersonal• Can be unintentional• Ranges from subtle to blatant• Often denied or attributed to other

causes• Constitutes “everyday racism”• Includes both acts of commission and

acts of omission

Page 16: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Manifestations

• Lack of respect– Poor or no service– Failure to communicate options

• Suspicion– Shopkeeper vigilance– Everyday avoidance (street crossing,

purse clutching, empty seats)

Page 17: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Manifestations (cont)

• Devaluation– Surprise at competence– Stifling of aspirations

• Scapegoating– Rosewood– Charles Stuart– Susan Smith

Page 18: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Manifestations (cont)

• Dehumanization– Police brutality– Sterilization abuses– Hate crimes

Page 19: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Measurement

• Patterns of behavior– Medical procedures– Hiring and promotion– Criminal sentencing

• Formal discrimination complaints• Double applicant test cases

Page 20: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Remedies

• Acknowledge that racism is real• Teach your children about racism• Develop a support group• Speak up on the spot

• Monitor outcomes by “race”

Page 21: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Debates

• Multiculturalism versus anti-racism

Page 22: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Internalized racism

• Acceptance by members of the stigmatized “races” of negative messages about our own abilities and intrinsic worth

Page 23: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Characteristics

• Not believing in others who look like us, and not believing in ourselves

• Accepting limitations to our own full humanity– Spectrum of dreams– Right to self-determination– Range of self-expression

Page 24: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Manifestations

• Embracing whiteness– Hair straighteners and bleaching creams– Skin tone stratification– “The white man’s ice is colder”

• Self-devaluation– Racial slurs as nicknames– Cultural rejection– Fratricide

Page 25: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Manifestations (cont)

• Resignation, helplessness, hopelessness– School drop-out– Voter non-participation– Risky health practices

Page 26: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Measurement

• Doll tests• Self-efficacy scales• Acculturation scales• Voting history• Hiring / purchasing history• Club memberships by skin color• Dating histories by skin color

Page 27: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Remedies

• Avoid the negative messages– Separate within the United States– Move from the United States

• Counteract the negative messages– Organize affinity groups– Provide a range of role models– Surround with positive images– Teach a more complete history

Page 28: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Remedies (cont)

• Dismantle the negative messages– Control the media– Control the schools– Control what is said in families

Page 29: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Debates

• Assimilation versus cultural nationalism

Page 30: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Levels of Racism:

A Gardener’s Tale

Page 31: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Institutionalized racism

• Initial historical insult

• Structural barriers• Inaction in face of

need• Societal norms• Biological

determinism• Unearned privilege

Page 32: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Personally-mediated racism

• Intentional• Unintentional• Acts of

commission• Acts of omission• Maintains

structural barriers• Condoned by

societal norms

Page 33: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Internalized racism

• Reflects systems of privilege

• Reflects societal values

• Erodes individual sense of value

• Undermines collective action

Page 34: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Who is the gardener?

Government• Power to decide• Power to act• Control of resources

Dangerous when• Allied with one group• Not concerned with

equity

Page 35: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Measures of Racism Working Group

• Develop a conceptual framework for understanding the impacts of racism on health

• Review currently available measures of racism

• Propose currently available and new measures of racism for use on the BRFSS, NHIS, and NHANES

Page 36: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Reactions to Race Pilot Module

Earlier you told me your race.

Now I will you ask you some questions about reactions to your race.

Page 37: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Question 1

How do other people usually

classify you in this country?

Would you say White, Black or African

American, Hispanic or Latino, Asian, Native

Hawaiian or Other Pacific Islander, American

Indian or Alaska Native, or some other group?

Page 38: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Question 2

How often do you think about your

race?

Would you say never, once a year, once a

month, once a week, once a day, once an

hour, or constantly?

Page 39: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

02

04

0

12.35

10.817.5

29.5

2.8

22.1

pe

rce

nt o

f re

spo

nd

en

ts

never 1/year 1/month 1/week 1/day 1/hour constantly

Black women (Black Women's Health Study, n = 49,709)

02

04

0

11.65.5

13.820.4

26.2

1.5

21

pe

rce

nt o

f re

spo

nd

en

ts

never 1/year 1/month 1/week 1/day 1/hour constantly

Black women (Nurses' Health Study II, n = 1,292)

02

04

0

50.2

17.4 19.39.6

3.1 0 0.3

pe

rce

nt o

f re

spo

nd

en

ts

never 1/year 1/month 1/week 1/day 1/hour constantly

White women (Nurses' Health Study II, n = 88,188)

How often do you think about your race?

Page 40: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

02

04

0

24.9 20.5 23.715

7.80.2

8

pe

rce

nt o

f re

spo

nd

en

ts

never 1/year 1/month 1/week 1/day 1/hour constantly

Asian women (Nurses' Health Study II, n = 1,509)

02

04

0

25.818.1

24.917.5

9.70.2 3.7

pe

rce

nt o

f re

spo

nd

en

ts

never 1/year 1/month 1/week 1/day 1/hour constantly

Hispanic women (Nurses' Health Study II, n = 1,243)

How often do you think about your race?

Page 41: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

020

60

12.5 5.419.6

31 24.4

1.2 6

perc

ent o

f re

spon

dent

s

never 1/year 1/month 1/week 1/day 1/hour constantly

Pakeha (n = 168)

020

60

1.9 1.9 0.9 4.7 9.3 4.7

76.6

perc

ent o

f re

spon

dent

s

never 1/year 1/month 1/week 1/day 1/hour constantly

Maori (n = 107)

020

60

3.7 0 3.7 9.322.2

7.4

53.7

perc

ent o

f re

spon

dent

s

never 1/year 1/month 1/week 1/day 1/hour constantly

Mixed Maori identity (n = 54)

New Zealand: How often do you think about your race?

Page 42: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Question 3

[For those who are employed for wages, self-

employed, or out of work for less than one year]

Within the past 12 months at work,

do you feel you were treated worse

than, the same as, or better than

people of other races?

Page 43: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Question 4

Within the past 12 months when

seeking health care, do you feel

your experiences were worse than,

the same as, or better than the

experiences of people of other

races?

Page 44: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Question 5

Within the past 30 days, have you

felt emotionally upset, for example

angry, sad, or frustrated, as a

result of how you were treated

based on your race?

Page 45: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Question 6

Within the past 30 days, have you

experienced any physical symptoms,

for example a headache, an upset

stomach, tensing of your muscles, or a

pounding heart, as a result of how you

were treated based on your race?

Page 46: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Uses of the data

• Understand variability of racial climate and experiences of unfair treatment in the USA

• Raise questions about local processes that may be creating inequity

• Use “best practices” areas as models in terms of promoting equity

• Monitor progress toward equity

Page 47: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Racism measures needed

Institutionalized

Personally mediated

Internalized

Individual

Aggregate

Page 48: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

American Public Health Association

Research and Intervention on Racism

as a Fundamental Causeof Ethnic Disparities in Health

Interim Policy 00-LB-1

http://www.apha.org

Page 49: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

APHA (1)

Reaffirms previous American Public Health Association policies that have condemned racism and its impacts on health and health care;

Page 50: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

APHA (2)

Commends the National League of Cities on their Undoing Racism agenda and their efforts to launch a National Campaign Against Racism;

Page 51: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

APHA (3)

Calls on the President and the Congress of the United States to endorse a National Campaign Against Racism;

Page 52: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

APHA (4)

Calls on the Congress of the United States to convene the Institute of Medicine to prepare a report that summarizes our current knowledge on the impacts of racism on health and identifies points of intervention;

Page 53: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

APHA (5)

Calls on the Department of Health and Human Services to explicitly address racism as a part of its national Initiative to Eliminate Racial and Ethnic Disparities in Health by the Year 2010;

Page 54: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

APHA (6)

Calls on the Centers for Disease Control and Prevention and the National Institutes of Health to place a high priority on research on the impacts of racism on the health and well-being of the nation;

Page 55: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

APHA (7)

Calls on the President and the Congress of the United States to appropriate funds for investigating the impacts of racism on the health and well being of the nation;

Page 56: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

APHA (8)

Calls on the President and the Congress of the United States to appropriate additional funds for developing evidence-based programs to eliminate ethnic health disparities; and

Page 57: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

APHA (9)

Calls on the President, the Congress, and the Judicial Branch of the United States to recognize and promote legal redress for discrimination in health and health care.

Page 58: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

United Nations

World Conference Against Racism,Racial Discrimination,

Xenophobia, and Related Intolerance

Durban, South AfricaAugust 31 - September 7, 2001

http://www.un.org/rights/racism/index.html

http://ngoworldconference.org

Page 59: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

The Impacts of Racism on Health

Implications for practice

Page 60: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Vigorously investigate the basis of observed “race”-associated differences in health outcomes

Interpret all “race”-related findings

Propose follow-up studies

View “race”-associated differences as important clues to be mined

Page 61: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Acknowledge that “race” is a social construct, not a biologic determinant

Explicitly measure genes if there is a genetic hypothesis

Model “race” as a contextual variable in multilevel analysis

Page 62: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Acknowledge the diversity within “racial” groups

Explicitly measure culture if there is a cultural hypothesis

Collect information on ancestry, migration history, and language

Page 63: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Acknowledge the association between “race” and social class, an association perpetuated by institutionalized racism

Explicitly measure social class if there is a social class hypothesis

Include measures of wealth, neighborhood characteristics, changes over lifespan

Measure class on all federal and state data

Page 64: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Acknowledge the present-day existence and impacts of racism

Develop explicit measures of institutionalized, personally-mediated, and internalized racism

Examine the role of racism in “race”-associated differences and in diminished health for all

Page 65: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Continue to collect data by “race” as long as there are “race”-associated differences in health outcomes

Specify why information is collected

Describe how “race” is measured

Collect other data, including measures of racism, social class, culture, and genes

Page 66: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Train persons from stigmatized backgrounds as epidemiologists

These scientists will bring new perspectives to the questions we have already asked

They will also raise new questions

Page 67: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Partner with communities to raise questions, generate hypotheses, and share findings

Recognize and respect the capacity within communities

Return information to communities so they can advocate for change

Page 68: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center

Initiate a national conversation on racism

Poor health of the stigmatized

Diminished health for all

Waste of human resources

Page 69: Naming Racism Camara Phyllis Jones, MD, MPH, PhD Research Director on Social Determinants of Health Division of Adult and Community Health National Center