Marcia Hampton Rioux Professor, School of Health Policy and Management, Tenured

1

Career CV Marcia H. Rioux, C.M., PhD Distinguished Research Professor School of Health Policy and Management (Graduate Programs in CDS and Health Equity) 4th Floor, HNES BuildingYORK UNIVERSITY4700 Keele Street, Toronto, Ontario CanadaM3J 1P3 Ph 416-823-4561 http://gradssstudies.yorku.ca Http://drpi.research.yorku.ca Degrees and Academic Qualifications Attention: 1993 PhD, Jurisprudence & Social Policy, Boalt Hall School of Law, University of California,

Berkeley 1973 MA, Sociology, Carleton University 1970 BA (Honours), Sociology, Carleton University 1968 BA, Sociology, Carleton University Employment History Present Positions 2001- Distinguished Research Professor, School of Health Policy and Management, Faculty of

Health, York University 2004- Professor, Critical Disability Studies Graduate Program, Faculty of Graduate Studies,

York University 2007- Teaching Faculty, Master of Public Policy, Administration and Law, York University 2015-2020 Adjunct Member to the Graduate Program in Social Work 2017-18 Co-Chair, Enable York Previous Appointments: York University 2003-2015 Adjunct Graduate Faculty, M.A. Health Law, Osgoode Hall Law School, York University 2002-2014 Director, York Institute of Health Research, York University 2009-2010 Co-Graduate Program Director MA/PhD Health Policy and Equity 2003-2008 Graduate Programme Director, M.A./ PhD Critical Disability Studies, Faculty of Graduate

Studies 2001-2006 Chair, School of Health Policy and Management, Faculty of Health, York University

(appointment effective July 1, 2001) 1999- Adjunct Graduate Faculty, Graduate Program in Social Work, York University 1999- 2001 Research Associate, Robarts Centre on Canadian Studies, York University 1996-1997 Visiting Faculty Member, Faculty of Education, York University 1991-1996 Adjunct Professor, (part-time) Faculty of Environmental Studies, York University Previous Appointments: External 2013-2015 Consultant, TO2015 Accessibility Advisory Council, TO2015

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2013 Expert reviewer in a three-person panel to review Bachelor of Workplace Health Sciences (Disability Management) degree application, Pacific Coast University for Workplace Health Sciences (PCUWHS), Port Alberni, Canada.

2000-2001 Consultant, Government of Victoria, Australia, Ten Year State Plan for Disability 2000 Policy Advisor to the UN Special Rapporteur for International Expert Meeting on human

rights abuses, “Let the World Know”, Stockholm, Sweden 1999-2003 Policy Advisor, Inclusion International, Geneva (Ferney-Voltaire) 1999-2002 Principal Coordinator, Canada, National Resource Centre for Inclusion (India) Project,

Bombay, India (Roeher project funded by CIDA) 1999 Consultant, Interregional Seminar and Symposium on International Norms and Standards

relating to Disability, organized by the Centre for Comparative and Public Law, Faculty of Law, University of Hong Kong, Hong Kong Equal Opportunities Commission and the United Nations Division for Social Policy and Development, Hong Kong

1987-2000 President; Executive Director (1987-1997), The Roeher Institute 1986-1987 Visiting Scholar, The Roeher Institute 1982-1986 Ph.D. Candidate, University of California, Berkeley 1979-1986 Consultant, Canadian Human Rights Commission; B.C. Human Rights Branch; Royal

Commission on Equality in Employment; National Council of Welfare and others 1977-1979 Policy Analyst, Law Reform Commission of Canada 1974-1977 Director of Research, Canadian Advisory Council on the Status of Women 1971-1972 Special Instructor, Carleton University 1968-1970 Research Assistant, Royal Commission on the Status of Women Honours & Awards 2017 Plaque of Recognition, Philippine Working Group; Recipient of 2017 Apolinario Mabinia

Memorial lecture in recognition of work in promoting social just and advancing rights of persons with disabilities.

2016 Zero Project Innovative Practice Award for DRPI’s AWARE project, Zero Project 2015 Woman of Distinction, OCUFA 2014 Member, Order of Canada 2014 Ontario Lieutenant Governor’s Community Volunteer Award 2013 Distinguished Research Professor, York University, Toronto, Canada 2013 CDSA-ACEI Tanis Doe Award for Canadian Disability Studies and Culture, Canadian

Disability Studies Association. 2013 Queen Elizabeth II Diamond Jubilee Medal, Governor General of Canada. 2011 2011 Health Faculty Established Career Research Award 2008 Distinguished Fellow, Institute for Advanced Studies, LaTrobe University, Melbourne,

Australia (residency January – May 2008). 2007 Founders Award, Centre for Independent Living, Toronto 1998 Professional Recognition Award, Ontario Association on Developmental Disabilities 1997 Benjamin Meeker Visiting Professor, University of Bristol, England 1996 Fellow, International Association for the Scientific Study of Intellectual Disabilities (on-

going) (F.IASSID) 1985 Scottish Rite Charitable Foundation Research Award 1982 Social Sciences and Humanities Research Council Fellowship 1982 Canadian Institute of Citizenship Scholarship Scholarly and Professional Activities 2017 Facilitator, Training on Disability Mainstreaming and Implementation of the Continental

Plan of Action on the African Decade of persons with Disabilities (2010-2019) for Senior

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Government Officials of the African Union Member States Programme, Addis Ababa, Ethiopia

2017 Webinar Facilitator for the DRPI ‘The People’s Indicators” Launch 2016 Facilitator in Human Rights Online Training, South Africa 2016 Webinar Facilitator for the “DRPI Hub: Holistic Rights Monitoring Online” Launch 2016 Facilitator in Human Rights Online Training, Philippines 2016 Facilitator in Human Rights Online Training, Argentina 2015 Facilitator in Human Rights Online Training, Serbia 2014 Panel member, Commissioning Panel for the ESRC/DFID Poverty Alleviation Research

Programme Call on Poverty, Inequality and Disability, United Kingdom Department for International Development (DFID) and the Economic and Social Research Council (ESRC), London, UK.

2014 Facilitator in Human Rights Training, New Zealand 2014 Facilitator in Human Rights Training, Algeria 2013 Facilitator in Human Rights Training, El Salvador 2013 Amman, Jordon – release of report on Women and Disabilities, written by M. Rioux and

P. Pinto – of 5 countries in the Middle East 2011 Expert Consultant, Regional Meeting, Handicap International, Beirut Lebanon 2011 Designed and facilitated Interactive session on how to bring CBR into line with CBR, Staff

and board of CBR Forum, Bangalor 2011 Delivered 2 lectures to M. Ed students at National Institute for the Blind, Dehradun, State

of Uttarkhand, India 2011 Designed, Coordinated and Delivered Regional DRPI training Hyderabad (2011),

Rwanda 2011), Serbia (2011) 2010 Expert Consultant, Canadian Human Rights Commission on disability rights monitoring,

March 2010 Speaker, Release of Disability Rights Monitoring Report, Government of New Zealand

and Disability Organizations (December) 2009 Consultant, Policy Research Directorate of Human Resources and Skills Development

Canada (HRSDC), Disability Roundtable, Gatineau, Quebec. October. 2009 Consultant, Roundtable on the UN Convention on the Rights of Persons with Disabilities,

Government of Canada, the Department of Human Resources and Skills Development Canada (HRSDC), June.

2009 Consultant, United Nations Expert Group Meeting on Mainstreaming Disability in Millennium Development Goals, policies, processes and mechanisms, Geneva, Switzerland, April.

2005-2007 Consultant and Advisor, establishment of a PhD programme in Disability Studies, University of Zagreb, Croatia.

2005 Panel Chair, National Summit, Chaouilli and the Restructuring of Health Care in Canada, Osgoode Hall Law School.

2005 Participant, Social Development Canada Expert Roundtable on Persons with Disabilities 2005 Consultant, Russian Academy of Public Administration Study Tour. 2004-2009 Designed, coordinated and delivered training for qualitative interviewers to monitor the

individual experiences of people with disabilities – Kenya (February 2006), Cameroon (October 2006), Andra Pradesh, India (May 2007), Toronto (November 2007), Bolivia (July 2008), Philippines (October 2008), Kenya, Cameroon, Andra Pradesh India, Bolivia, Philippines, Toronto, Vancouver (May 2009), St John’s, Newfoundland (August 2009).

2004-2005 Consultant and Coordinating Author, Train-the-Trainers Manual on International and National Human Rights of People with Disabilities in India.

2004 Consultant, Report on disability organizations and funding for Office of Disability Issues, Social Development of Canada (Canadian Government).

2003- Advisor, Canadian Network for Inclusive Cultural Exchange. 2003-2005 Voting Member, Wellesley Central Health Corporation. 2003-2004 Consultant, Whole-of-government approach to disability, including economic issues,

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Government of Victoria, Melbourne, Australia. 2003 Consultant Technical report for WHO on medical rehabilitation and disability. 2001-2011 Advisory Board, Pat Armstrong CHSRF/CIHR Chair in Health Services and Nursing

Research. 1999-2000 Formative Reviewer, PhD Programme in the Faculty of Education, York University 1999 Consultant, Interregional Seminar and Symposium on International Norms and Standards

relating to Disability, Centre for Comparative and Public Law, Faculty of Law, University of Hong Kong, Hong Kong Equal Opportunities Commission and the United Nations Division for Social Policy and Development, Hong Kong.

1999 Consultant and Representative, Inclusion International, World Health Organization meeting on development of WHO Disability Policy, Geneva, Switzerland.

1998- Overseas Consultative Editor, Disability and Society, University of Sheffield, England. 1998 Consultant, Expert Meeting on Law and Disability Policies, Department of Economic and

Social Affairs, Division for Social Policy and Development, United Nations. Berkeley, California.

1996-2000 Vice-President, International Association for the Scientific Study of Intellectual Disability (Council Member 1991-1996).

1995-1998 Planning Committee Member, Board of Trustees, Bloorview MacMillan Centre. 1994- Member, Canadian Law and Society Association. 1994-1999 Member, International Advisory Committee for the National Institute of Disability

Management and Research, British Columbia. 1994-1995 Co-Chair, North American Collaborating Centre Committee on Cross-cutting Issues

related to Policy Applications for the WHO sponsored revision of the International Classification of Impairments, Disabilities and Handicaps (ICIDH).

1993-1998 Chair, Open Project Group on International Bioethics Committee, Inclusion International and Official Observer UNESCO, International Bioethics Committee.

1992- Member, Canadian Sociology and Anthropology Association. 1992- Member, International Interest Group on Decentralisation, User Empowerment and

Citizenship, University of Wales, U.K. 1992-2000 Organizer and Co-ordinator, Women’s Research Network: An International Interest

Group on Research in the Area of Women and Disability. 1991- Board of Directors, Abilities Foundation. 1990- Advisor, Caribbean Association for Mental Retardation and Other Developmental

Disabilities (CAMRODD). 1990-1994 Council Member, Ontario Advisory Council on Disability Issues. University Service and Administration 2017- Executive Committee, LaMarsh Centre, York University 2017-18 T&P Adjudicating Committee (Liane Ginsburg, Tamara Daly) 2015-18 Executive Committee, Graduate Programme, Critical Disability Studies, SHPM 2016-18 Executive Committee, Graduate Programme, Health Policy and Equity, SHPM 2016- 2017 Search/Hiring Committee, Canada Research Chair (Tier 1) in Global Governance and

Social Innovation 2016 Member of Hiring Committee for Chair, SHPM 2015-2017 Admissions Committee, Critical Disability Studies Program, York University 2014-2017 Member of Executive committee, CDS Graduate Program

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2013-2016 Faculty of Health Associate Dean Research, Advisory Council on Research 2012-2013 Aboriginal Research Ethics Review Advisory Group – Vice President Research and

Innovation 2012 Tenure & Promotion Committee, Nancy Halifax, SHPM (Service file) 2010-2012 Sabbatical Leave Fellowships Adjudicating Committee 2011-2014 Health Faculty Representative, Senate, York University 2006-2011 Health Faculty Representative, University Senate, York University 2006-2007 Senate, Academic Policy and Planning, York University 2005-2006 Atkinson Representative on University Senate, York University 2004-2006 Member, Ad Hoc Working Group, Health-Related Faculty, York University 2003-2004 Vice-Chair, Management Committee, Central East Health Information Partnership 2002-2006 Member, Policy and Planning Committee, Atkinson Faculty, York University 2002, 05, 06 Member, Faculty Hiring Committee, School of Health Policy and Management, Atkinson

Faculty, York University 2001- 2006 Member, Strategic Health Research Committee, VPRI, York University 2001-2003 Member, Management Committee, Central East Health Information Partnership 2001-2002 Member, Hiring Committee, Development Officer, Atkinson Faculty, York University 1999-2000 Formative Review Committee, PhD Programme in the Faculty of Education, York

University Membership on Editorial Boards 2016- ongoing Journal Reviewer, Laws, Online Journal 2013- ongoing Member, Editorial Board, South African Journal of Human Rights Reviews completed – 2017; 2010- ongoing Member, Editorial Board, Canadian Journal of Disability Studies 2010- ongoing Advisor and Editor, Health Today 2000- ongoing Member, Advisory Review Board, Canadian Social Work Review 1998- ongoing Overseas Consultative Editor, Disability and Society, University of Sheffield, England 1995- ongoing Member, Editorial Board, Tizard Learning Disability Review, University of Kent at

Canterbury, U.K. (from 2001, International Board Member) 2004-2010 Member, Editorial Board, Disability Studies Quarterly 1995-2005 Member, Editorial Board, European Journal on Mental Disability, Editions Dialogues,

Paris, France 1995-2004 Member, Editorial Board, Canadian Journal of Rehabilitation, University of Alberta,

Edmonton 1995- Member, Editorial Board, European Journal of Mental Disability, Editions Dialogues,

Paris, France.

Journal Articles Reviewed (in Other Referred Journals) 2010/ 11 Windsor Yearbook of Access to Justice 2010 Women's Health and Urban LIfe: An International and Interdisciplinary Journal 2016 MDPI AG (Switzerland) 2018 ADD Human Rights Journal South America 2018 Disability and Society Grants Reviewed 2010 German Academy 2010 SSHRC Graduate Student Supervision. (Need to Revise) Summary

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Note: Detailed listing of supervised students can be found at the end of this C.V. ADD TO ABOVE LIST (OTHER GRADUATE PROGRAMS 2018 Ph.D. Dissertation Committee, Bephyer Parey University of West Indies, Trinidad and Tobago Courses Taught Graduate Courses University of South Africa, Pretoria [NEED TO REVISE WITH COMPLETE INFORMATION] University of Zagreb, Croatia Spring 2017 Interdisciplinary Disability Studies 2 Spring 2016 Interdisciplinary Disability Studies 1 Spring 2013 Interdisciplinary Disability Studies 2 Spring 2012 Interdisciplinary Disability Studies 1 Summer 2009 Interdisciplinary Disability Studies 2 Fall 2008 Interdisciplinary Disability Studies 1 La Trobe Law School, Melbourne, Australia Fall 2015 Human Rights and Comparative Law Fall 2013 Human Rights and Comparative Law Fall 2011 Human Rights and Comparative Law

Graduate Program in Critical Disability Studies Completed In Progress MA Major Research Paper Supervisory Committee 21 Supervisor

14 Advisor 3 Reader

3

PhD Comprehensive Exam Committee 6 9 PhD Dissertation Supervisory Committee 2 Supervisor

2 Advisor 3 Supervisor

3 Advisor Post-Doctoral Supervisory Committee 2 Supervisor 1 Supervisor

Graduate Program in Health Completed In Progress MA Major Research Paper Supervisory Committee 2 Supervisor 2 PhD Comprehensive Exam Committee 3 1 PhD Dissertation Supervisory Committee 0 2 Advisor

Other Graduate Programs Completed In Progress MA Major Research Paper Supervisory Committee 3 Supervisor

2 Advisor 0

PhD Comprehensive Exam Committee 0 0 PhD Dissertation Supervisory Committee 1 Supervisor

1 Advisor 0

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Fall 2008 Human Rights and Comparative Law Osgoode Hall Law School, York University Winter 2014 Human Rights, Globalization and Health Law Winter 2011 Human Rights, Globalization and Health Law Winter 2007 Human Rights, Globalization and Health Law Winter 2005 Human Rights, Globalization and Health Law Graduate Courses: Critical Disability Studies, York University F-W 2017-18 Doctoral Seminar, Critical Disability Studies 6100.6 F-W 2016-17 Doctoral Seminar, Critical Disability Studies 6100.6 Fall 2017 Critical Disability Studies – An Overview, M.A. 5100.3 Fall 2016 Critical Disability Studies – An Overview, M.A. 5100.3 F-W 2015-16 Doctoral Seminar, Critical Disability Studies 6100.6 F-W 2012-13 Doctoral Seminar, Critical Disability Studies 6100.6 F-W 2011-12 Doctoral Seminar, Critical Disability Studies 6100.6 F-W 2010-11 Doctoral Seminar, Critical Disability Studies 6100.6 Winter 2009 International Development in Disability and Human Rights 6130.3 F/W 2003-07 Critical Disability Studies – An Overview, M.A. 5100.6 Summer 2004 Research Seminar Faculty of Education, York University 1996-1997 Full Inclusion Theory/Practice Faculty of Education, Community Rehabilitation Studies, University of Calgary Summer 1991 500-level Directed Study Faculty of Environmental Studies, York University 1989- 1994 Social Policy Undergraduate Courses School of Social Work, York University Fall 1999 Disability, Discrimination and Social Justice Faculty of Social Work, Distance Education, Laurentian University Winter 1998 Critical Perspectives on Disability Fall 1996 Critical Perspectives on Disability

Marcia Hampton Rioux Professor, School of Health Policy and Management, Tenured

8

On-Going Research Funding. [NEED TO REVISE] 2017-18 Family Service Toronto ID/DD Peer Support Study - Advisory Committee. (ADD) Duration Title Funding Source Principal

Investigator Award

2016-2020 Transforming knowledge and activism for inclusion through engaging girls and women with disabilities in Vietnam in participatory research

SSHRC, Insight Grant Nguyen, X. T. (P.I.), Rioux, M. H. (Collaborator)

$310, 268

2016-2018 The Legislation, Policy and Service Responses to Violence against Women with Disabilities and Deaf Women in Canada

Status of Women Canada DAWN Canada, Rioux, M. H. (Advisor)

2016-2017 Indigeneity and Disability: Intersections of Health and Human Rights

Dean of Health, York University

Rioux, M.H. $5000

2016-2017 Indigeneity and Disability: Intersections of Health and Human Rights

Office of the Vice-Provost, York University

Rioux, M.H. $2000

2013-2020 Income security and labour-market engagement: Envisioning the future of disability policy in Canada

SSHRC, Partnership Grant

Emile Tompa (P.I.), Rioux, M. H. (Co-applicant)

$2,760,000

2012-2017 Implementing a Multi-Sector Employment Strategy for Women and Men with Disabilities

Global Affairs Canada. Rioux, M.H. (P.I.) $3,015,806

Completed External Research Funding Duration Title Funding Source Principal

Investigator Award

2014-2016 Re-thinking Accessible Disability Rights Monitoring: Creating Sustainability for Disability Rights Monitoring Methodology through Online Training*

International Development Research Centre

Rioux, M.H. (P.I.) $69,360

2013-2016 Building a Global Disability Rights Monitoring System: Disability Rights Promotion International, Phase III*

Swedish International Development Agency

Rioux, M. H. (P.I.) $928,000

2012-2016 Expanding the Circle: Aboriginal People with Disabilities Focus on Rights*

SSHRC, Partnership Development Grants

Rioux, M.H. (P.I.) $457,025

2013-2015 Living In Climate Change: Mapping Experience and Adaptations in the Global South and North

SSHRC, Partnership Development Grant

Michaela Hynie (P.I.), Rioux, M. H. (Co-applicant)

$197,171

2013-2014 The social inclusion of people with disabilities in the Wilaya of Algiers: State of the issue

LEAD Maghreb program, US-Middle East Partnership Initiative (MEPI)

Paula Pinto (P.I.), M. H. Rioux (Co-applicant)

$66,100

2009-2014 Inclusive Design Institute Project Canadian Foundation for Innovation

Treviranus, J. (P.I.); Rioux, M. H. (Co-applicant)

$6,207,874

2011-2013 Health and Empowerment through Better Sanitation: Promoting Awareness at the

Shastri Indo-Canadian Institute

Rioux, M. H. (P.I.); Hynie, M. (P.I.)

$13,000

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Grassroots Level 2009-2013 Building a Global Disability

Rights Monitoring System: Disability Rights Promotion International, Phase III*

Swedish International Development Agency

Rioux, M. H. (P.I.) $2,301,915

2012-2013 Women and violence in 5 Middle Eastern Countries*

Stars of Hope Rioux, M.H. (P.I.) $25,000

2011-2013 Understanding our rights: First Nations Peoples with disabilities engage in human rights education Giinawind bigo ji wiijii'iweyang (Nothing about us without us)*

Heritage Canada Rioux, M. H. (P.I.) $50,000

2012 Monitoring Disability Rights: An exploration of recent models

SSHRC, Aid to Research Workshops and Conferences

Rioux, M.H. (P.I.) $25,000

2007-2012 Auditing the Victorian Charter: Australian and International Perspectives on Applied Human Rights

Australian Research Council

Sisely, D. (P.I.); Rioux, M. H. (Partner Investigator)

$200,000

2006-2012 Monitoring the Human Rights of Canadians with Disabilities*

SSHRC; CURA Rioux, M. H. (P.I.) $983,010

2002-2012 Ontario Training Centre in Health Services and Policy Research

Canadian Health Services Research Foundation

Armstrong, P.; Rioux, M. H. (York Site Director)

$3,750,000

2008-2010 Development of Training Materials for ICESCR Specifically Related to Disability

Heritage Canada Rioux, M. H. (P.I.) $40,000

2008-2010 Youth, Disability and Sexual Health

CUHI Flicker, S.; Nixon, S.; Rioux, M. H. (Co-P.I.)

$9,984

2008-2009

Social and Cultural Determinants of Health: Chronic Disease and Well-being in India and Canada

SSHRC International Opportunities Fund

Rioux, M. H. (Co-applicant)

$16,190

2008-2009 Youth, Disability, HIV Vulnerability and Prevention

CANFAR Flicker, S. (P.I.); Rioux, M. H. (Co-applicant)

$25,000

2008-2009 A Global Methodology for Monitoring Human Rights in People with Disabilities in the Media

SSHRC International Opportunities Fund

Rioux, M. H. (P.I.) $25,000

2004-2009 Building a Human Rights Monitoring System in the field of Disability: The Disability Rights Monitor Phase II*

Swedish International Development Agency

Rioux, M. H. (P.I.) $1,200,000

2006-2008 Attending to Social Vulnerabilities in Tuberculosis Transmission Dynamics: Toward a Synergistic Model of Qualitative and Quantitative Methods

SSHRC Gaetz, S. (P.I.); Rioux, M. H. (Co-applicant)

$40,000

2005-2007 The Landscape of Literacy and Disability

Literacy Secretariat, HRSDC & Canadian Abilities Foundation

Rioux, M. H. (P.I.); Zubrow, E. (P.I.)

$298,000

2005-2006 Stretch Project Heritage Canada York University

J. Traverius (P.I.); Rioux, M. H. (Co-applicant)

$1,001,000

2005 Disability Research Cluster SSHRC Stienstra, D. (P.I.); Rioux, M. H. (Co-applicant)

$30,000

2005 Monitoring the Human Rights of SSHRC - Proposal Rioux, M. H. (P.I.) $20,000

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Canadians with Disabilities Development Funds 2004-2005 National Workshop on Health

and Accessibility to Health Services for Canadian Women with Disabilities Living in Urban Environments

Institute for Gender and Health

Rioux, M. H. (P.I.) $8,250

2004-2005 Transmission Dynamics and Spatial Spread of Infectious Diseases Modeling, Prediction and Control

Networks of Centres of Excellence, MITACS

Wu, J. (P.I.); Rioux, M. H. (Co-applicant)

$140,000

2003-2005 Synthesized Statistical Methods and Mathematical Models for the Analysis of Critical Roles and Optimal Management of the Public Health Care System in the Outbreak and Control of SARS

Public Health & Health Care System Preparedness & Response Program, CIHR

Wu, J. (P.I.); Rioux, M. H. (Co-applicant)

$250,000

2003-2004 Transmission Dynamics and Spatial Spread of Infectious Diseases: Modeling, Prediction and Control

Networks of Centres of Excellence, MITACS

Wu, J. (P.I.); Rioux, M. H. (Co-applicant)

$25,000

2003 Assessing and Responding to Health and Social Needs Among Urban and Rural Communities in Ontario

SSRHC Raphael, D. (P.I.); Rioux, M. H. (Co-applicant)

$20,000

2003 Developing a Centre for the Study of Income and Health at York University

Institution of Population and Public Health, CIHR

Raphael, D. (P.I.); Rioux, M. H. (Co-applicant)

$10,000

2002-2003 Building a Human Rights Monitoring System in the Field of Disability: The Disability Rights Monitor Phase I

Swedish International Development Agency

Rioux, M. H. (P.I.) $123,000

2002 United Nations consultative meeting on the Fourth Review and Appraisal of the implementation of the World Programme of Action concerned Disabled Persons

United Nations Social Development Office

Rioux, M. H. (P.I.) $US 23,065

2001-2003 Inclusive Education Practice in Early Childhood in Mumbai, India

UNICEF, India and CIDA, Canada

Alur, M. (P.I.); Rioux, M. H. (Co-PI..)

$599,000

2001-2003 Geography of Canadian Literacy and Disability

Literacy Secretariat, HRSDC and Canadian Abilities Foundation

Rioux, M. H. (P.I.) $299,000

2000-2002 Building a Human Rights Monitoring System in the Field of Disability

UN Special Rapporteur on Disability

Rioux, M. H. (P.I.) US $15,000

1999-2002 State of the art of research into inclusive education at the national and international levels

SSHRC Bunch, G. (P.I.); Rioux, M. H. (Co-applicant)

$55,000

1999-2001 National Resource Centre for Inclusion, India

Canadian International Development Agency

Rioux, M. H. (P.I.); Alur, M. (Co-P.I.)

$1,300,000

*A full list of projects that have been completed through the Disability Rights Promotion International project can be found in Appendix A (attached) Recent and Pending Proposals Submitted For External Research Funding

Date submitted

Title Funding Source Principal Investigator

Amount requested

2017 Learning for self-advocacy of EU Erasmus+ - Jean Institute of Special

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people with disabilities Monnet - Networks grant Education and Rehabilitation, Methodius University, Skopje; Rioux, M.H. (Academic Lead)

2017 NOW FUNDED

Investigating the impact of trauma-informed counselling and community-based peer support for women living with intellectual disabilities and who have been sexually assaulted

Women's College Hospital, $15K Challenge

Huijbregts, M (P.I.); Rioux, M.H. (Advisor)

$15, 000

2016 DID NOT GET

Mobilizing data: Towards Responsive and Inclusive Societies

Canadian Foundation for Innovation

McGrath, S. (P.I.); Rioux, M. H. (Co-Applicant)

$1,352,403

2016 DID NOT GET

Global Citizen Collaboratory Canadian Foundation for Innovation

Trevarius, J. (P.I.); Rioux, M.H. (Co-applicant)

$895,000

Life-time Summary Publications and Papers (RECOUNT AND ADD – The People’s Indicators ++) Books and Monographs 12 Chapters in Books 44 Selected Bibliographies 1 Articles in Refereed Journals 16 Scholarly and Professional Publications and Reports 13 Papers/Lectures Presented at Conferences 116 Other Publications 7 NEED TO DO CORRECT COUNT Books and Monographs 2019 Handbook of Disability Studies, (Executive Co-Editors, M.H. Rioux and R. Addlakha).

New York, Hong Kong: Springer. 2017 DRPI People’s Indicators: A Participatory, Holistic and Community Based Monitoring

System (M.H. Rioux, Principle Author and Editor, J. Viera, P,Pinto, Rados, Keravica, D. Wakene, R. Rathuri, P. Hearne). On-line publication

2015 Disability, Rights Monitoring and Social Change: Building Power out of Evidence (Eds. M.H. Rioux, P.Pinto, G. Parekh) Toronto, Canada: Canadian Scholars Press,

2011 Critical Perspectives on Human Rights and Disability Law, (Eds. M. H. Rioux, L. Basser, M. Jones). The Hague: Martinus Nijhoff.

2010 Staying Alive: Critical Perspectives on Health, Illness and Health Care, 2nd Edition. (Eds. T. Bryant, D. Raphael, M. H. Rioux). Toronto: Canadian Scholars’ Press Inc.

2009 Landscape of Literacy and Disability, (Eds. E. Zubrow, M. H. Rioux, M. Dinca-Panaitescu, C. Spielman, A. Marsolais). Toronto, Canadian Abilities Foundation.

2006 Staying Alive: Critical Perspectives on Health, Illness and Health Care, (Eds. D. Raphael, T. Bryant, M. H. Rioux). Toronto: Canadian Scholars’ Press Inc.

2003 Atlas of Literacy and Disability, (M. H. Rioux. E. Zubrow, M. Stutt Bunch, and W. Miller). Toronto: Canadian Abilities Foundation.

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2002 -2009 Book series. Inclusive Education: Cross Cultural Perspectives, (Eds. L. Barton, M. H. Rioux). The Netherlands: Kluwer Academic Publishers. (5 books published).

1996 Reflections on the Canada Health and Social Transfer, (An Occasional Paper) (Eds. M. H. Rioux, M. Bach). North York: The Roeher Institute.

1994 Disability is not Measles: New Research Paradigms in Disability, (Eds. M. H. Rioux, M. Bach). Toronto: The Roeher Institute.

1994 Canadian Disability Resource Program. (Eds. M. H. Rioux, C. Crawford) North York: The Roeher Institute.

Chapters in Books 2019 (Forthcoming), (Rioux, M, Pinto, P. Wakene, D in "Reinventing Activism: Evidence-

based participatory monitoring as a tool for social change" Berghs, M., Chataika, T., El-Lahib, Y. & Dub, A.K. (eds.) 2019. The Routledge Handbook of Disability Activism. London and New York: Routledge.

2017 “International Human Rights and Intellectual Disability” (Pinto, P., Rioux, M.H., Lindqvist, B. & Carbert, A.) In I. Brown And M. Percy A Comprehensive Guide to Intellectual and Developmental Disabilities (2nd Edition): Brookes Publishing Company

2016 “Disability Research in the context of the Global South: Building Southern Sustainability through an Emancipatory, Evidence-based and Locally Initiated Approach” (Rioux, M.H., Pinto, P., Viera, J.and Keravica, R). In S.Grech and K.Soldatic (Eds.), Disability in the Global South: The Critical Handbook. US:Springer

2015 “Employment, Poverty, Disability and Gender: A Rights Approach for Women with Disabilities in India, Nepal and Bangladesh” (Buettgen, A., Gorman, R., Rioux, M., Das, K., Vinayan,S.) In Khanlou N & Pilkington B. (Eds). Women’s Mental Health: Resistance and Resilience in Community and Society, Advances in Mental Health and Addiction (Series Editor: Masood Zangeneh). New York: Springer.

2014 “Employment Equity and Disability: Moving Forward to Achieve Employment Integration and Fulfill Promises of Inclusion and Participation” (Rioux, M.) In M. S. Lynk, J. Craig, C. Agocs (eds) Employment Equity in Canada. Toronto: University of Toronto Press.

2014 “Human Rights in Context: Making Rights Count” (Rioux, M. & Bonita Heath) in Swain, J., French, S., Barnes, C. And Thomas, C. (eds.) (2014) Disabling Barriers; Enabling Environments (3rd edition), London: Sage.

2014 “Disability Rights In Education” (Rioux, M.) In L. Florian (ed), Sage Handbook of Special Education (2nd Edition), England: Sage Books.

2014. Rioux, M. & Pinto, P. (2014). Are We Moving Forward? Regional Study on the Rights of Women with Disabilities in the Middle East. Disability Rights Promotion International. Available online: http://drpi.research.yorku.ca/middle-east-north-africa/middle-east-north-africa-publications-resources/2014-women-with-disabilities-in-the-middle-east-regional-study/

2013 "Negotiating Capacity: Legally Constructed Entitlement and Protection" (Rioux, M., Gilmour, J. and Angel-Cabo, N.) in B. McSherry, I. Freckelton, (eds) Coercive Care: Rights Law and Policy, Abingdon, Oxon: Routledge, 51-75.

2011 “The Rights of People with Intellectual Disabilities in Ontario” (Rioux, M.H., Frazee, C., Patton, L.M.) In I. Brown & M. Percy, Developmental Disabilities in Ontario (3rd Edition), Ontario Association on Development Disabilities, 65-74

2011 “Values in Disability Policy and Law: Equality.” In M. H. Rioux, L.A. Basser, M. Jones (eds), Critical Perspectives on Human Rights and Disability Law, The Hague: Martinus Nijhoff, 36-56.

2011 “Beyond Legal Smokescreens: Applying a Human Rights Analysis to Sterilization Jurisprudence.” In M. H. Rioux, L.A. Basser, M. Jones (eds), Critical Perspectives on Human Rights and Disability Law. (with L. Patton) The Hague: Martinus Nijhoff, 243-272.

2010 “Rights on the Ground: Disability Rights in the Time of the United Nations Convention on the Rights of Persons with Disabilities” (M. H. Rioux) In Le Tribunal des droits de la personne et le Barreau du Quebec. Race, Femme, Enfant, Handicap: les conventions

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internationales et le droit interne a la lumière des enjeux pratiques du droit a l’égalité. Quebec, Quebec Editions Yvon Blais, p. 107-138.

2010 “Constructing Disability and Illness” (M. H. Rioux, T. Daly). In Staying Alive: Critical Perspectives on Health, Illness and Health Care, 2nd edition. Toronto: Canadian Scholars’ Press Inc. 347-370.

2010 “Researching Health: Knowledge Paradigms, Methodologies, and Methods” (T. Bryant, D. Raphael, M. H. Rioux) In Staying Alive: Critical Perspectives on Health, Illness and Health Care.2nd edition Toronto: Canadian Scholars’ Press Inc. 121-143

2010 “The Right to Health: Human Rights Approaches to Health.” (M. H. Rioux) In Staying Alive: Critical Perspectives on Health, Illness and Health Care.2nd edition Toronto: Canadian Scholars’ Press Inc. 93-121

2009 “Inclusive education in Atlantic Canada: the research in context.” (M. H. Rioux, K. Underwood). In G. Bunch & A. Valeo, (Eds.). Inclusive Education: Emergent Solutions. Toronto, ON: Inclusion Press, 100 - 117.

2009 “Early Intervention and Inclusive Education”, (M. Alur, M. H. Rioux). In M. Alur & V. Timmons, Inclusive Education Across Cultures: Crossing Boundaries, Sharing Ideas, England: Sage Books. 137-160.

2006 “Disability Rights in Education” In L. Florian, Handbook of Special Education, England: Sage Books. 107-116.

2006 “International Human Rights and Intellectual Disability” (M. H. Rioux, B. Lindqvist & A. Carbert). In I. Brown & M. Percy, Intellectual and Developmental Disabilities: International Edition. Baltimore, USA. 59-68.

2006 “Trends in Disability” (M. H. Rioux, R. Samson). In M. A. McColl & L. Jongbloed, Disability and Social Policy in Canada (2nd edition), Captus Press. pp. 112-142.

2005 “Towards a Concept of Equality of Well-Being: Overcoming the Social and Legal Construction of Inequality.” (M.H. Rioux) In P. Blanck, Disability Rights. Great Britain: Ashgate Press. 467-487 [reprint]

2005 “Does Theory Matter? Exploring the Nexus between Disability, Human Rights and Public Policy” (M. H. Rioux, F. Valentine). In D. Pothier & R. Devlin, Critical Disability Theory: Legal and Policy Dimensions, Vancouver: UBC Press, 47-69.

2003 "On Second Thought: Constructing Knowledge, Law, Disability and Inequality" (M.H. Rioux) In S. Herr, L. Gostin and H. Koh, The Human Rights of Persons with Intellectual Disabilities: Different But Equal. Oxford University Press. 287-317.

2003 “Rights and Freedoms for People with Intellectual Disabilities in Ontario.” In I. Brown and M. Percy, Developmental Disabilities in Ontario (2nd ed), Toronto: Ontario Association on Developmental Disabilities, 57-65.

2002 “The Canadian Political Landscape of Disability: Policy Perspectives, Social Status, Interest Groups and the Rights Movement,” (M. H. Rioux, M. J. Prince). In A. Pettee, Federalism, Democracy and Disability Policy in Canada, Montreal, Kingston: McGill-Queen’s University & School of Policy Studies, Queen’s University. 11-29.

2002 “Disability, Citizenship and Rights in a Changing World.” In M. Oliver, L. Barton and C. Barnes, Disability Studies Today, Cambridge: Polity Press. 210-227.

2001 “Social Disability and the Public Good” (M. H. Rioux, E, Zubrow). In D. Drache, The Market and the Public Domain: Global Governance and the Asymmetry of Power, London: Routledge 148-171.

2001 “Bending Towards Justice.” In L. Barton, Disability, Politics and the Struggle for Change. London: David Fulton, 34-48.

2001 “The Many Interests in Genetic Knowledge: An International Perspective on Pre-natal Screening and the Use of Genetic Information in Relation to People with Learning Difficulties”. In L. Ward and T. Philpot, To Be or Not To Be? Prenatal Screening and the Use of Genetic Information in Relation to People with Learning Difficulties”. Kidderminster: British Institute of Learning Disabilities, 91-107.

1999 “Inclusive Education in Canada: A Piece in the Equality Puzzle”. In L. Barton and F. Armstrong, Disability, Human Rights and Education: Cross Cultural Perspectives. England: Open University Press, 87-99.

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1999 “Appropriate Uses of law in Health Policy: Three Views: An appeal to the Charter of Rights and Freedoms”. In M. Somerville, ‘Do We Care? Renewing Canada’s Commitment to Health’, Montreal: McGill-Queen’s University Press, 144-148.

1999 “The Canadian Framework for Disability Equality Rights” (M. H. Rioux, C. Frazee). In L.A. Marks and M. Jones, Disability, Diversability & Legal Change, Australia: Kluwer International Law Publishers, 171-189.

1999 “Rights and Freedoms for People with Intellectual Disabilities in Ontario” (M. H. Rioux, C. Frazee). In I. Brown and M. Percy, Developmental Disabilities in Ontario, Toronto: Front Porch Publishing, 59-66.

1997 “When Myths Masquerade as Science: Disability research from an equality-rights perspective.” In L. Barton and M. Oliver, Disability Studies: Past Present and Future. Leeds: The Disability Press, 99-113.

1997 “Uncovering the Shape of Violence: A Research Methodology Rooted in the Experience of People with Disabilities” (M. H. Rioux, C. Crawford, M. Ticoll and M. Bach). In C. Barnes and G. Mercer, Doing Disability Research, Leeds, The Disability Press, 190-207.

1997 "Citizenship and People with Disabilities in Canada: Towards the Elusive Ideal" (M. H. Rioux, M. Bach and C. Crawford). In P. Ramcharan, G. Roberts, G. Grant and J. Borland, Empowerment in Everyday Life: Learning Disability, London: Jessica Kingsley Publishers.

1996 “Avant Propos” (M. H. Rioux, Leela Viswanathan). In R. Doré, S. Wagner et J-P. Brunet, Réussir l’Intégration Scolaire: La déficience Intellectuelle, Montréal (Québec): Les Éditions Logiques.

1996 "Social Policy, Devolution and Disability: Back to Notions of the Worthy Poor?" (M. H. Rioux, M. Bach) In J. Pulkingham and G. Ternowetsky, Remaking Canadian Social Policy: Social Security in the late 1990s, Halifax: Fernwood Press.

1996 "Social Well-Being: A Framework for Quality of Life Research" (M. H. Rioux, M. Bach),. In R. Renwick, I. Brown and M. Nagler, Quality of Life in Health Promotion and Rehabilitation: Conceptual Approaches, Issues, and Applications, Thousand Oaks (California): Sage Publications, 63-75.

1996 "Overcoming the Social Construction of Inequality as a Prerequisite to Quality of Life". In R. Renwick, I. Brown and M. Nagler, Quality of Life in Health Promotion and Rehabilitation: Conceptual Approaches, Issues, and Applications, Thousand Oaks (California): Sage Publications, 119-132.

1995 "Social Policy by Amnesia". In Critical Commentaries on the Social Security Review. Ottawa: Caledon Institute of Social Policy.

1995 "Social Well-Being: A Framework for Social and Economic Policy" (M. H. Rioux, M. Bach). In D. Drache and A. Ramachan, Warm Heart, Cold Country: Fiscal and Social Policy Reform in Canada, Ottawa: The Caledon Institute of Social Policy and the Robarts Centre for Canadian Studies, 81-109.

1995 "Count us in: Lessons from Canada on strategies for social change" (M. H. Rioux, D. Richler). In T. Philpot & L. Ward, Values and Visions: Changing Ideas in Services for People with Learning Disabilities, Oxford (England) Butterworth Heinemann, 377-389.

1994 "New Research Directions and Paradigms: Disability is not Measles." In M. Rioux and M. Bach, Disability is Not Measles: New Research Paradigms in Disability. North York: Roeher Institute.

On-Line Bibliographies 2011 “Disabilities: Overview.” (L. C. Rankin, M. H. Rioux, J. C. & I. Brown). In Oxford

Bibliographies Online. Retrieved from http://www.oup.com/online/us/obo/?view=usa Articles in Refereed Journals

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2018 “Shifting sands? Assessing the social inclusion of persons with disabilities in Algiers” (Paula C Pinto, Teresa J Pinto, Albino Cunha, and M.H. Rioux). International Journal on Disability and Human Development Volume 17, Issue 2 pp 211-220

2012 “Enabling virtual knowledge networks for human rights monitoring for people with disabilities” (C. El Morr, M. Dinca-Panaitescu, M. H. Rioux, J. Subercaze, P. Maret, N. Bogdan) International Journal of Virtual Communities and Social Networking(IJVCSN)Vol. 4, No. 2: pp. 1-17.

2011 “Disability Rights and Change in a Global Perspective.” (M.H. Rioux) Sport in Society. Special Edition. Disability in the Global Sport Arena: A Sporting Chance. (ed.) Jill M. Le Clair. Vol. 14 no. 9: pp 1094-1098. November, 2011.

2010 “Enabling virtual knowledge communities for human rights monitoring for people with disabilities” (C. El Morr, M. H. Rioux, M. Dinca-Panaitescu, J. Subercaze, N. Bogdan, P. Maret), Journal of Informatics for Health and Social Care. 2010 “A time for the right to education: Back to Basics” (M. H. Rioux, P. Pinto, British Journal

of the Sociology of Education, Vol 31:5 Special Issue: The sociology of disability and education (invited article), pp 621-642.

2004 “Disability Rights Promotion International: Monitoring the Human Rights of Persons with Disabilities” (M. H. Rioux & A. Carbert, Interights' Bulletin, 14(3): 123-124.

2004 “Human Rights and Disability: The International Context” (M. H. Rioux, A. Carbert), Journal of Developmental Disabilities, 10(2): 1-13.

2002 “Social Disability and the Public Good,” Man and Development, 24(4): 179-198. 2001 “Undue Hardship and Reasonable Accommodation: the View from the Court”, Policy

Studies Journal, 29(4) 641-648. 2001 “International monitoring of human rights violations of people with disabilities”,

Humanscape: Journal on Human Rights. 2000 “Research into inclusive education in Canada, England and India: Three blended

discussions”, (M. H. Rioux, G. Bunch & J. Whittaker), Journal of Intellectual Disability Research, 44: 223-224.

1998 “International Classification of Impairments, Disabilities and Handicaps (ICIDH). A critical review”, Inclusion, 20.

1997 “Disability: The Place of Judgement in a World of Fact”, Journal of Intellectual Disability Research, 41(2).

1996 "Ethical and socio-political considerations on the development and use of classification," Canadian Journal of Rehabilitation Guest Editorial, 9(2).

1996 "Hacia un Cambio en Política Social", Prometeo: Fuego para el Propio Conocimiento, Número 10, Primavera.

1996 "Services and Supports in a Human Rights Framework", Disability Studies Quarterly, 16(1).

1994 "Towards a Concept of Equality of Well-Being: Overcoming the Social and Legal Construction of Inequality", Canadian Journal of Law and Jurisprudence, 7(1): 127-147.

Scholarly and Professional Publications and Research Reports [ADD INDICATORS REPORT] 2016 “Expanding the Circle: Systemic Report”. Report of SSHRC Research Findings (co-

authored) 2016 “Expanding the Circle: Site Report”. Report of SSHRC Research Findings (co-authored) 2014 “Expanding the Circle: Aboriginal People with Disabilities Know Their Rights - Snap shot”

Report of SSHRC Research Findings (co-authored) 2014 “Women with disabilities rights in the Middle East: Are We Moving Forward?” (M.H.

Rioux, P. Pinto) Regional Study on Rights of women with disabilities in the Middle East for Stars of Hope.

2014 “Institutionalized People” (M.H. Rioux, J. Vorstermans, G. Parekh) In: Michalos AC (Ed.) Encyclopedia of Quality of Life and Well-Being Research. Springer, Dordrecht, Netherlands: Springer

2004 “Report on Disability Organizations and Funding”. Prepared for the Office of Disability

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Issues, Social Development Canada, Government of Canada. 2003 Technical Report for World Health Organization on Medical Rehabilitation. Geneva,

Switzerland. 2003 “Included: The Exploration of Six inclusive Pre-schools in Mumbai, India” (M. H. Rioux,

M. Alur). Study carried out with ADAPT, Mumbai, India and UNICEF, India. Funded by CIDA, Canada.

2003 “Geography of Literacy and Disability“ (E. Zubrow, M. H. Rioux, M. Stutt Bunch, W. Miller), Toronto: Canadian Abilities Foundation. Funded by Literacy Canada.

2000 “Let the World Know”. Report of a Seminar on Human Rights and Disability, Almåsa Conference Centre, Stockholm, Sweden.

1999 Expert Opinion for the Court Challenge to the Provincial Government’s Long Term Care Strategy. Prepared for Fundy Regional Council Association for Community Living, Saint John, N.B.

1997 “Americans with Disabilities Act”. Prepared for Ontario Ministry of Citizenship, Culture and Recreation.

1995 "Vulnerability of Children with Disabilities" in Beyond Badgley: Responses to the Report Sexual Offences Against Children. Prepared for National Clearinghouse on Family Violence; Family Violence Prevention Division; Health Programs & Services Branch; Health Canada.

Invited Papers and Keynote/Plenary Addresses Papers/Lectures Presented at Conferences, Meetings, Symposia 2017 Invited Speaker, Zero Project Conference 2017 (Vienna, February) 2017 Webinar, presentation “DRPI Indicators for CRPD and other international instruments”

(Toronto, January) 2016 Webinar, presentation “DRPI On-line monitoring methodology” (Toronto, December) 2016 Invited Panel Member, World Bank “Disability Inclusion in the World of Work”,

(Washington, December) 2016 Invited Participant and Rapporteur, “Harkin International Disability Employment Summit”,

(Washington, December) 2016 Invited Facilitator, Speaker, International Labour Organization, Seminar on Employment

(Geneva, April) 2015 Invited Participant, DEEP Conference, Plenary Session: “Evidence Based Policy for

Diverse Populations (October) 2015 Invited Participant, UN Expert Group Meeting, Division of Social Policy and Development

UNDESA Social Development and Agenda 2030 (New York City, October) 2015 UGC, Human Resource Development Centre, University of Hyderabad Central University, Inclusive Higher Education (August 12) 2015 UN Human Rights Committee, Chair, Side Event for Committee Participatory Monitoring

of Disability Rights (Geneva, August) 2015 United Nations Expert Group Meeting, on "Disability and Development: Operationalising

the post-2015 development agenda for persons with disabilities", (Beirut, May). 2015 Guest Lecture to Executive MBA Class, Ace Institute of Management Inclusive Tourism

in Nepal (Kathmandu Nepal) (August 9) 2015 Invited Panel Member, CASHRA Conference, Saskatoon, Panel: Disability Rights

Initiatives (Saskatchewan) 2015 Invited Panel Member, Shifting Paradigms, Enduring Legacies: Reflections on The Royal

Commission on the Status of Women at 50, Panel The Work and Influence of the Royal Commission (April)

2015 Public Lecture, Tata Institute of Social Science (Hyderabad, India campus), The Goal of Diversity is social justice: where is disability? (March)

2014 Invited Panel member, at Using International Instruments to Advance Domestic Agendas Panel at the Accommodation Works!/CASHRA conference, Ottawa, Canada (June)

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2012 Invited Workshop Participant and Presenter, at Rethinking Mental Health Laws: Exploring Legal Frameworks for Individuals with Multiple and Complex Needs, Prato, Italy, (May)

2011 Keynote Address, Conference: Social Participation: Knowledge, Policy and Practice. “Social Participation: An international perspective”, LaTrobe University, Melbourne, Australia (November)

2011 Invited Presentation, Lisbon Portugal, “Rights on the Ground: Monitoring Disability Rights in the Time of the UN CRPD”, Sessão Pública de Divulgação do porjectov DRPI- Portugal [Public Session to Launch DRPI- Portugal] (May) 2010 Keynote Address, Toronto, Peel Region, “Putting Diversity in Place”, International Day of

Disability in Peel, Customer Service as a Right, Do we get it Right? December (with Sandra Carpenter)

2010 Keynote Address, Independent Living Canada, Celebration of International Day of Disability, “Monitoring Disability Rights Internationally”, November (with Sandra Carpenter

2010 Keynote Address, Minnesota Symposium on Disability Studies an Inclusive Education, University of Minnesota, July 23-25 2010 Invited Presentation : “Rights on the Ground: monitoring disability rights in the time of the

UN Convention on the Rights of Persons with Disabilities” Race, femme, enfant, handicap: Les Convention Internationales et le droit interne a la lumiere des enjeux pratique de droit a equalite, Colloque de la Tribunal des droits de la personne et le Barreau due Quebec, Montreal, March 25-262010

2010 Invited Presentation: “Precarious participation: Legitimizing limitations on public engagements in governance”. Invited Presentation at ‘We the people(s): Engagement and participation in government’ conference at Victoria University of Wellington Law School’s New Zealand Centre for Public Law, February.

2009 Keynote Address, “The Privatization of Diversity: A Paper in Honour of Professor Eithne McLaughlin.” Disability Rights and Contemporary Challenges, Queens University, Belfast, Ireland, September.

2009 Invited Presentation: “Early Childhood Education: A rights approach to making it happen.” Educational Equity: Global and National Strategies, McGill University, May.

2008 Invited Lecture, “Coordinating the UN Convention, Victoria State Plan and the Victorian Charter.” Latrobe School of Law and School of Social Work and the Disability Professionals Victoria, Australia, December.

2008 Keynote address, “International Trends in Disability Rights: Devising New Pathways, Expanding Horizons.” Congresso Funcionalidade Humana, Lisbon, Portugal, November.

2008 Keynote address, “Promises and Panaceas: the idealism of rights to the exercise of rights.” World Congress of Rehabilitation International, Québec City, August.

2007 Invited Presentation: “Disability Studies and Disability Rights”, Scholarship and disability rights, Hyderabad, India.

2007 Invited Presentation: “Peace and Culture: The globalization of disadvantage.” Economics of Non-violence: Culture & Business Ethics, Udaipur, India, November.

2007 Keynote Address, “Human Rights, Mental Health and the Community.” European Congress, Zagreb, Croatia (October)

2007 Keynote Address “Disability Health and Wellness: A human rights perspective” Disability Health and Wellness Conference, Winnipeg, Manitoba, September.

2007 Keynote Address “Institutional Ableism in the Schools: A Holistic Approach to Changing Schools” Research in Education and Rehabilitation Science, University of Zagreb, Croatia. June.

2006 Invited Presentation: “Disability Rights Monitoring and the DRPI Project” Central Institute of English and Foreign Languages, Hyderabad, India, September.

2006 Invited Panel Session, Law and Disability Rights, Critical Legal Conference: The Law of the Law in an Age of Empire, NALSAR University of Law, Hyderabad, India, September.

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2006 Keynote Address: “The Myths that Make for Exclusion: A critical disability perspective on education.” Inclusion Imperative, Syracuse University School of Education and Centre on Human Policy, Syracuse, NY, April.

2006 Keynote Address: “Research in Education and Rehabilitation Sciences.'' Faculty of Education and Rehabilitation Sciences, Zagreb, Croatia, June.

2004 Invited Presentation: “Convening a Convention: The Groundwork for Entrenching Access to Rights Internationally”. National Educational Association of Students with Disabilities (NEADS) bi-annual conference, Ottawa, Canada, November.

2004 Invited Presentation: “Disability Rights, Social Rights and Cultural Rights in United Nations International Instruments.” Training of Trainers Workshop on Human Rights and Disability, National Human Rights Commission of India, National Law School, Bangalore, India.

2004 Invited Participant: “An Evolving Understanding of Disability”. CCD Community Consultation on the new UN Convention on the Human Rights of Disabled People, Ottawa, February-March.

2004 Invited Presentation: “Atlas of Disability and Literacy” (with E. Zubrow). Senior Social Services Managers Forum “Challenges and Issues Confronting the Social Services Sector”. Halifax, Nova Scotia, March.

2004 Keynote address, “Thinking about Human Rights: The Evolution and Application of Disability Rights”. Government of Victoria Human Rights Alliance Conference From Rhetoric to Reality: Making Human Rights Work, Melbourne, Australia, February.

2004 Invited Presentation: “The Development of the United Nations Convention on the Rights and Dignity of Persons with Disabilities”. The Equal Opportunity Commission Victoria, Melbourne, Australia, February.

2003 Invited Facilitator, “As Nature Intended? Attitudes to the New Genetic Science and People with Learning Difficulties.” One-day Seminar to debate the issues raised by the Science of Human Genetics and Attitudes to People with Learning Difficulties. Values Into Action, London, UK, July.

2003 Keynote address, “Developments of Disability as a Human Rights Issue: Implications for Research and Policy”. Australian Society for the Study of Intellectual Disability Conference: Imagination and Innovation, Brisbane, Australia, November.

2001 Invited Presentation: “Capacity, Consent and Supported Decision-Making”. Values into Action, London and Edinborough, January.

2000 Invited Presentation “Research into Inclusive Education in Canada, England and India” and “Disability: A Public or Private Domain in an Era of Globalization?” World Congress of the International Association for the Scientific Study of Intellectual Disability, Seattle, Washington, August.

2000 “Invited Presentation: Capacity, Consent and the Law” and “The Impact Language has on Personal Empowerment and System Change.” International Self-Determination/Individualized Funding Conference, Seattle, Washington, July

2000 Invited Presentation: “State of the Art in Inclusive Education, Canada, England, France.” Seminar on Research Findings, International Special Education Congress 2000, Manchester, England, July.

2000 Keynote address, “Bending Towards Justice.” Council of Intellectual Disability Conference, Melbourne, Australia, May.

2000 Keynote address, “The Human Genome Project and its Implications for People with Disabilities.” Symposium on the Human Genome Project, Deakin University, Melbourne, Australia, May.

2000 Invited Presentation: “Human Rights and Disability.” Seminar at the School of Law and Legal Studies, LaTrobe University, Melbourne, Australia, May.

2000 Keynote address, “Human Genome Project and Disability: Promises and Threats”, Symposium sponsored by Centre for Developmental Disability Studies, University of Sydney, Sydney, Australia, May.

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2000 Invited Presentation: Speaking Notes for Presentation to Parliamentary Committee on Human Rights and the Status of Disabled Persons, Session on the Eldridge Judgement of the Supreme Court of Canada, Ottawa, May.

1999 Keynote Address, “Self-Determination, Empowerment and Choice.” Donald Beasley Institute Conference, Dunedin, New Zealand, November.

1999 Keynote Address, “Policing the Powerful: Human Rights and Full Citizenship.” IHC Conference, Wellington, New Zealand, November.

1999 Invited Presentation: “A New Fundament: Social Well-Being as a Public Good in Unstable Market Settings: Some Critical Dimensions.” International Conference Organized by the Robarts Centre for Canadian Studies, York University and The Institute for Globalization and Regionalization, University of Warwick, Toronto, November.

1999 Keynote Address, “Rights and Respite Care.” Second International Conference on Short term (Respite) Care: Better Breaks for the 21st Century, Shared Care Network, Canterbury, England, September.

1999 Invited Presentation: “The Future of Social Policy: Shifts in the Public/Private Domain.” Revisiting the Fundamental of Economic Liberalism and Structural Adjustment - The Return of the Public Domain in an Era of Globalization: A Comparative Examination of Canada and Chile. An International Conference organized by the Institute of Political Science, University of Chile and The Robarts Centre for Canadian Studies, York University, Held in Santiago, Chile, April.

1998 Keynote Address, “Social Justice and Inclusion.” XII World Congress of Inclusion International To Be or Not To Be, The Hague, August.

1998 Invited Presentation: “Bioethics, Genetics and Biotechnology: Promise or Threat”. Western Family Conference, Edmonton, April.

1998 Keynote Address, “Unknown Resources: the contribution of persons with a (mental) disability to society.” 13th Biennial CAMRODD Conference, Suriname, April.

1998 Invited Presentation: “Enabling the Well-Being of Persons with Disabilities”. The World Bank, Washington, D.C., March.

1997 Invited Presentation: “Inclusive Education: A Piece in the Equality Puzzle”. TASH Conference We the People; All the People, Boston, December.

1997 Invited Presentation: “Summary of Findings of Regional Technical Cooperation: Integration of Persons with Disabilities into the Productive Workforce (TC-95-08-08-9-RG)”. Interamerican Development Bank, Washington, D.C., October.

1997 Invited Presentation: “Past Successes, Future Directions: The Scottish Rite Charitable Foundation”. Scottish Rite Charitable Foundation, Barrie, Ontario, September.

1997 Invited Presentation: “Uncovering the Shape of Violence: A Research Methodology Rooted in the Experience of People with Disabilities”. Conference Doing Disability Research, Leeds, England, September.

1997 Benjamin Meeker Public Lecture “The New Genetics or the New Eugenics: Implications of the New Human Genetics for Disabled People”., University of Bristol, England, June.

1996 “Strengthening Families: The Role of the State”. National Conference Canada’s Children...Canada’s Future, Ottawa, November.

1996 Invited Presentation: “Rethinking ‘Prevention’ and ‘Rehabilitation’ in a Human Rights Framework: From concept to action.” XII World Congress of Inclusion International, Santiago, Chile, November.

1996 Invited Presentation: “When Myths Masquerade as Science: Disability research from an equality-rights perspective”. Disability and Society: Ten Years On Conference, Kent, U.K., September.

1996 Invited Presentation: "Disability: The Place of Judgment in a World of Fact". Presented to 10th World Congress of the International Association for the Scientific Study of Intellectual Disabilities, Helsinki, July.

1996 Invited Presentation: "Policy, Legal and Regulatory Frameworks to Promote and Protect the Human Rights Affected by New Technologies." Parliamentary Committee on Human Rights and Disability Roundtable, Ottawa, June.

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1996 Invited Presentation: "Misanthropic Measures: Whose Quality? Whose Life?” Quality of Life International Conference on Developmental and Related Disabilities, Toronto, June.

1995 Invited Presentation: "The CHST: From Pathology to Social Investment". Canadian Council on Social Development Roundtable on the Canada Health & Social Transfer, Toronto, December.

1995 Invited Presentation: "Services and Supports in a Human Rights Framework." Regional Seminar of the Andean Region, Inclusion: A Human Rights Issue in Employment and Life-Long Learning, Ecuador, November.

1995 Invited Presentation: "Ethical and Socio-Political Considerations on the Use and Revision of the ICIDH." International Classification of Impairments, Disability and Handicaps, Quebec City, September.

1995 Invited Presentation: "Towards a Change in Social Policy." Regional Seminar, Partnerships Project: Inclusion: A Human Rights Issue in the Adolescent Years, Mexico, July.

1995 Invited Presentation: "Concepts of Equality and Intellectual Disability." International Symposium on the Rights of People with Mental Handicaps, Yale Law School, March.

1995 Invited Presentation: "El Derecho al Trabajo: Ya es Tiempo de Tomar Una Postura en Relación a las Dificiencias del Systema" (Human Rights and Disability: It's Time To Take A Stand On The Deficiencies Of The System). First International Congress "La Discapacid en el Año 2000," Mexico, May/June.

1995 Invited Presentation: "Towards a New Model of Social Policies for Children and Youth with Disabilities." Regional Seminar of the Southern Area of South America: Inclusion: A Human Rights issue in the School Years, Montevideo, Uruguay, April.

1995 Invited Presentation: "Social and Scientific Formulations and Treatment of Disability.” Regional Seminar of the Southern Area of South America: Inclusion: A Human Rights issue in the School Years, Montevideo, Uruguay, April.

1994 Invited Presentation: "Paradigms of Research and their Relevance to Persons with Intellectual Disabilities and their Families." IX Congress of the International League of Societies for Mental Handicap, New Delhi, India, November.

1994 Invited Presentation: "Towards a Concept of Equality of Well-Being: Overcoming the Social and Legal Construction of Inequality." National Judicial Institute, Court of Appeal and Supreme Court of British Columbia, Fall Conference, Vancouver, October.

1994 Keynote Address, "Renewing the Vision: A Glimpse of the Future." CACL International Conference on Excellence and Equity in Education, Toronto.

Other Conference Papers and Public Appearances 2013 Presentation to the UN Committee on the Convention on the Rights of Persons with

Disabilities, Geneva 2012 “Disability, Decisional Capacity and Supported Decision-making” with Joan Gilmour,

Natalia Angel Annual Meeting, CLSA 2012, Wilfred Laurier University, May 2010 “Holistic approach to disability rights monitoring – Canadian Perspective” Chair, Panel, Canadian Disability Studies Association, Social Sciences and Humanities Research Congress, June 4 2009 Panel Session, “Virtual Knowledge Network for Human Rights Monitoring.” Workshop on

Web Intelligence and Virtual Enterprises, 10th IFIP Working Conference on Virtual Enterprises, Thessaloniki, Greece, October.

2008 Panel Session, “Building a human rights monitoring system in the field of disability.” RI Conference DRPI, Quebec City, August.

2008 Panel Session, “Virtual Knowledge Network for Human Rights Monitoring.” Workshop on Web Intelligence and Virtual Enterprises, 10th IFIP Working Conference on Virtual Enterprises, Amsterdam, The Netherlands, July.

2007 Panel session, What’s up with Disability Studies in Toronto? University of Toronto, Toronto, March.

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2006 “How can we make sure that the rights of individuals with disabilities are not violated?” (with B. Lindqvist). SHIA Seminar, Stokholm, Sweden, November.

2006 “Introduction to the DRPI Project.” Interface with Organizations of People with Disabilities with a Cross-Disability Perspective, Ananthapur, India, September.

2006 ''Human Rights, Mental Health and Community'.' European Association of Mental Health in Intellectual Disability, Zagreb, Croatia, October.

2005 “The Legal Construction of the Disabled Person: Locating the Nexus of Constructions of Disability and Theories of Equality.” 29th International Congress on Law and Mental Health, Paris, France, July.

2005 “Economic and Scientific Determinism as Means of Privatizing Disability: The Impact of the Globalization of Disability Rights Laws.” 29th International Congress on Law and Mental Health, Paris, France, July.

2005 “Disability Rights Monitoring and the Disability Rights Promotion International Project” (with R. Samson). Disability and Human Rights Conference, Nairobi, Kenya, June.

2005 “DRPI’s monitoring projects” )with R. Samson). Council of Canadians with Disabilities, Consultation regarding the Draft Disability Convention, Ottawa, Canada, March.

2005 “Writing the Rights: The United Nations Recognizes Disability.” Fetal Alcohol Spectrum Disorder – Equality of Access: Rights and the Right Thing to Do, University of British Columbia, BC, February.

2004 “Literacy and Disability: Using New Research Technique to Understand More about Disability”. CAILC Literacy and Disability Symposium, Winnipeg, Manitoba. October.

2004 “Disability Rights Promotion International” (with B. Lindqvist). Canadian International Development Agency (CIDA), Ottawa, Ontario, September.

2004 “Essential Elements of Strong Monitoring”. DPI World Summit Monitoring – Realizing our Human Rights. Winnipeg, Manitoba, September.

2004 “Learning From a Rights Lens: Multi-Disciplinarity in Practice”. Conference on Best Practices in Disability Inclusion within Schools of Social Work, The Canadian Association of Schools of Social Work (CASSW) and The CASSW People with Disabilities Caucus. Winnipeg, Manitoba, May.

2004 “The Voice of People with Disabilities in International Rights”. Confluence and Coalition in Community: Creating Dialogue within Disability Studies. Sponsored by Canadian Disability Studies Association (CDSA), University of Manitoba, May.

2003 “Does Theory Matter? Exploring the Nexus Between Disability, Human Rights and Public Policy,” (with F. Valentine). Critical Disability Studies Conference, Halifax, Nova Scotia, June.

2003 “The Ghettoization of Literacy and Disability: Spatial Implications of Social Policy.” Association of American Geographers, New Orleans, March.

1998 “Disability, Marginalization, Empowerment, and GIS” (with E. Zubrow). NCGIA/Project Varenius Specialist Meeting Empowerment, Marginalization and Public Participation GIS, Santa Barbara, California, October.

1998 Panel session, “How do we create a sound legal basis for health policy?” Health Policy Forum Directions for Canadian Health Care: A framework for sound decisions, Toronto, October.

1997 “Vested Interests and Perspectives on Prenatal Screening and Genetics”. Considered Choices: Prenatal Screening and the Use of Genetic Information in Relation to People with Learning Difficulties - An Information Exchange, Bristol, England, June

1995 "Devolution in Social Policy: Back To Notions Of The Worthy Poor?" (with M. Bach). Seventh Conference on Canadian Social Welfare Policy, University of British Columbia, June.

1995 "Ensuring Diversity: Implications of Genetic Research for People with Disabilities" (with D. MacGregor and M. Rock). 1995 Learned Society Meetings, Montreal, June.

1995 "Progress in Community, Family Support and Social Services". International Symposium on Intellectual Disability, The National Institute of Child Health and Human Development,

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National Institutes of Health, The Joseph P. Kennedy Jr. Foundation, and The United Nations, New York, June.

1994 Paper Presentation, "Deconstructing Legal and Social Inequality: the Case of Disability." Canadian Learned Societies, Calgary, June.

1994 Paper Presentation, "Feminism and Disability" (Session discussant) Mental Deficiency,” Canadian Learned Societies, Calgary, June.

Other Publications – Non-refereed Journal Articles 2006 “The Data Trail: Steps to Discovery Research” (with A. Carbert) in Abilities Magazine,

Winter 2006, 5051. 2004 “Disability Rights Promotion International: Monitoring the Human Rights of Persons with

Disabilities.” Interrights Bulletin, August. 2003 “Human Rights Around the World: Disability Rights Promotion International” (With A.

Carbert). Abilities Magazine, Autumn. 2000 “Inclusion – An Answer to Many Prayers?” An interview in Ability: India’s Cross-disability

Magazine, Jan-Mar 2000, 26-27. 1998 “Research Supplement: Human Rights and Full Citizenship: Judging the Judges”, DS

Bulletin, Down Syndrome Association Pretoria, South Africa, 4(2): i-iv. 1998 “International Classification of Impairments, Disabilities and Handicaps (ICIDH) - A

Critical Review”. Inclusion News, 20: May. 1998 “UNESCO adopts the Universal Declaration on the Human Genome and Human Rights.

What Next?” Inclusion News, 20: May. Press Interviews (partial) 2011 Cam Wells, radio interview on DRPI 2009 Interview, “United Nations International Day of Persons With Disabilities. Interview with

Marcia Rioux of the Disability Rights Promotion International. The UN Convention on The rights of Persons with disabilities.” VoicePrint, December.

Selected Earlier Career Research Projects *During my period with the Roeher Institute, we obtained numerous grants such as those listed below. Details of the amounts for each grant unfortunately cannot be recovered from the records, but the average annual amount was in the area of one and a half million dollars. 1999

• National Resource Centre for Inclusion, India, Co-Applicant (CIDA), $1,300,000 • State of the Art of Research in Inclusive Education at the National and International Levels and to

Develop a Schema for Future Research Directors, Co-Principal Investigator (SSHRC, 1999-2002) • Doctoral Program Formative Review, Faculty of Education, York University, Principal Researcher

(1999-2000)

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• Again Persons with Intellectual Disabilities: Policy Analysis and Guide for Training Development, Project Director (Trillium Foundation, 1997-1999)

1998 • Evaluation of CACL Community Living 2000 Projects, Project Director (Canadian Association for

Community Living) • A Series of Learners’ Writings on Disability and Social Justice, Project Director (National Literacy

Secretariat, HRDC) • Health Care Planning Innovations: Implementation, Project Co-Director (Hospital for Sick Children

Foundation) • Monitoring of the ILSMH – Open Project Groups, Project Director (Inclusion International, 1995-

1998) • Gendered Body Project, Co-Principle Investigator (National Network on Environment and

Women’s Health, York University) • OECD Multisectoral Research Project, Project Director (Organization for Economic and Cultural

Development) 1997

• Evaluation of Individualized Funding Initiatives in Massachusetts, Project Director (Department of Mental Retardation and the Massachusetts Families Organizing for Change)

• Relationships between Literacy and Disability: A National Research Project, Project Director (National Literacy Secretariat, HRDC)

• Evaluation of the Canadian and Newfoundland Deinstitutionalization Initiative (NSIPD), Project Director (Governments of Canada and Newfoundland, 1995-1997)

• Regional Technical Cooperation: Integration of Persons with Disabilities into Productive Workforce, Project Director (Interamerican Development Bank and Canadian Association for Community Living)

1996 • Evaluation of Laidlaw Foundation’s “Children at Risk” Program, Co-Principal Investigator (Laidlaw

Foundation) • P.E.I. Strategic Initiative, Project Coordinator (Operations Committee, Government of Prince

Edward Island) • Literacy Project, Project Director (National Literacy Secretariat, HRDC)

1995 • The Impact of the Human Genome Project on Canadian Social Policy for People with Disabilities,

Principal Investigator (SSHRC) • Evaluation of Ontario’s Direct Funding and Self-Managed Attendant Services, Co-Principal

Investigator (CILT) 1994

• Partnerships in Community Living, Nicaragua, Senior Consultant/Technical Advisor (Health Canada)

• Review of the Nova Scotia Children’s Training Centres (CTCs), Principal Investigator (N.S. Children’s Training Centres)

• Research and Analysis for Evaluation of “Coming Home – Staying Home” Federal/Provincial Deinstitutionalization Initiative in Saskatchewan, Project Consultant (Saskatchewan Ministry of Community Services)

• Health care Planning Innovations, Co-Principal Investigator (Max Bell Foundation/Canadian Association for Community Living)

• Just Technology? From Principles to Practice on Bio-Ethical Issues, Principal Investigator (ILSMH)

Course Design and Training 2013- 2016 On line training and pre-testing for DRPI monitoring – 4 continental seminars held in

South Africa, Africa; Serbia, Europe; Argentina, Latin America; Thailand, Asia Pacific.

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2000-2010 Disability Rights Monitoring Training - Bolivia, Canada (Newfoundland, Ontario. Quebec, British Columbia, India, Philippines, Cameroon, Kenya, New Zealand. Regional training: Africa, Balkans, South America, North America, Asia-Pacific

1998 Community Inclusion Training Seminars, Project Coordinator (HRDC) 1998 “Unknown Resources”. 13th Biennial CAMRODD Conference, Suriname 1997 “Best Practices for Inclusion”. University of Prince Edward Island, Charlottetown, PEI,

August 1997 “Research in Disability and Public Policy”. International Summer Institute, Toronto,

Ontario, August 1995 "Seminario de Integracion y Derechos Humanos" Santiago, Chile, November 1993 "Social Well-Being and Community Inclusion": Training courses delivered to employees

(management, social workers, and service providers) of The Department of Social Services, Newfoundland.

1993 "Towards a New Model for the Development of Social Policies for Children & Youth with Disabilities and Their Families in the Americas", Managua, Nicaragua, November

1993 "Social Well-Being", training event on the history of social welfare in Canada, the concept of social well-being and its application as a paradigm for reform, Toronto (September), Mississauga (November)

1993 "Jamaica Leadership Development Course with 3D Projects", March, May & July 1993 CAMRODD Priorities Design Initiatives and Leadership Development Course." Caribbean 1990 “Habilitation in the Community", Jamaica Graduate Supervision Postdoctoral Fellows 2016-2017 Cameron Crawford, PhD Critical Disability Studies, York University 2015-2016 Dustin Galen, PhD History, University of Toronto 2013-2015 Thuy Nguyen, PhD Education McGill University PhD Dissertation Supervisory Committees, York University and others. In Progress Bephyer Parey, Univesity of West Indies, Trinidad and Tobago (Committee) In Progress Douglas Waxman, Employment (Supervisor) In Progress Buettgen, Alexis, “The alleviation of poverty and disability in Canada and South Asia”

(Supervisor) In Progress Heath, Bonita, “On the boarders of disability theory and political economy: insights from

workers' compensation in Western Capitalism” (Advisor) In Progress Bishop, Danielle, “Health Equity as Conceptual Apparatus: Origins, Debates and

Challenges” (Supervisor) In Progress Kabir, Syeda, “Discourses on Health Equity” (Advisor) In Progress Andrea Stafford, thesis name not yet provided (Advisor) 2015 Burghardt, Madeline, “Missing Lives: Institutionalization and Families in Ontario”

(Supervisor) 2014 Rankin, Joanna, “Disability and Discourse: The Role of Disability in the Popular Culture

Book Club” (Advisor) 2008 Pinto, Paula, “The equality-diversity riddle: Interrogating disability, motherhood,

citizenship and rights.” Department of Sociology (Supervisor) 1993 Epp, Tim, School of Social Work (Advisor). PhD Comprehensive Exam Committee, York University

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In Progress McGregor, Marion, Critical Disability Studies In Progress Corfield, Dana, Critical Disability Studies In Progress Bernasky, Tammy, Critical Disability Studies In Progress Kabir, Syeda, Faculty of Health In Progress Barak, Susan, Critical Disability Studies In Progress Waxman, Douglas, Critical Disability Studies In Progress Bishop, Danielle, Faculty of Health In Progress Heath, Bonita, Critical Disability Studies In Progress Stafford, Andrea, Critical Disability Studies Completed Buettgen, Alexis, Critical Disability Studies Completed Vorstermans, Jessica, Critical Disability Studies Completed Parekh, Gillian, Critical Disability Studies Completed Burghardt, Madeline, Critical Disability Studies Completed Rankin, Joanna, Critical Disability Studies Completed Rinaldi, Jennifer, Critical Disability Studies MA Supervisory Committees, Graduate Program in Critical Disability Studies, York University 2017 Emily McIntyre (Supervisor) 2016 Courtney Weaver, “Autism and Its Associated Symbols” (Advisor) 2016 Grace Marie Leach, “Understanding the Capacity of (M)others with Disabilities: Legal

Reform, Stigma, and Master Narratives” (Supervisor) 2016 Samadhi Mora Severino – “An intersectional analysis: Parents and ‘Medically Complex’

Children accessing home care services in Ontario” (Advisor) 2016 Hilary Sherman, A Place to Fit: Examining the Intersection between Fat Studies and

Disability Studies (Advisor) 2014 Mohammed, Sadira – “Experience of Housing Support Services by Ontarians with

Developmental Disabilities” (Advisor) 2013 Tracy Mack, Restorative Justice, Social Justice and Mad Communities (Supervisor) 2013 Meir, Ortal – “"Where Shall I Go?" Deaf Women in Divorce Proceedings in the Israeli Courts” (Advisor) 2012 Kobelka, Jeannette – “Citizenship and Leisure” (Supervisor) 2012 Hearn, Paula – “Disability Inclusion in Current International Development Policies”

(Supervisor) 2012 Nouri, Joann- “Challenges to Internalizing the Convention on the Rights of Persons with

Disabilities in Egypt” (Supervisor) 2011 Maclean, Katherine – “From Policy to Practice: Exploring the Social Inclusion Act for Ontarians with Intellectual Disabilities from Rights-based Perspective” (Advisor) 2010-2011 Guadagnoli-Closs, Maria - "Painfully Aware": Analyzing Medical and Legal Perceptions of Pain.” (Supervisor) 2011 Levinson, Andrew – “Critical Analysis of Physical Disability and Access to Attendant Care Dependent for Newcomers in Ontario and New York State” (Supervisor) 2011 Karapetyan, Izabella - Comparative Analysis of Employment Policy and Legislation on People with Disabilities in Canada and the United Kingdom” (Supervisor) 2011 Swanton, Jill – “Why is Sterilization the Answer?” (Supervisor) 2010 Jennings, Sheila – “Pediatric Home Care of the Child with Complex Care Needs in the Context of Human Rights and Provincial Experiences” (Advisor) 2009-2010 Stone, Melanie, “Canadian History of the Diagnosis, Treatment and Institutionalization of

Women with Post Partum Depression in Canada 1850-1915” (Advisor) 2009-2010 Sikand, Meenu – “A Critical Review of Ontario Accessibility Standards in Facilitating Employment Accessibility” (Supervisor) 2010 La Monica, Nancy – “Conversations About Disabling Education, (Hidden) Practices and Policies in Academia: A Case Study” (Advisor)

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2009-2010 Chan, Benjamin - “Public Policy and How It Affects People with Disabilities through Examining Neo-Liberalism and Its Role It has Played” (Advisor)

2009-2010 Dowsley, Laura – “Quality of Social Life of Residents in Group Homes” (Advisor) 2009-2010 Andrion, Jeffrey - “Landmines in the Philippines: What the World Should Know”

(Supervisor) 2009 Walters, Dylan, “War, Media and Disability: Disability and the War in Afghanistan

Through the YouTube Lens” (Advisor) 2009 Mudrick, Talia – “Teacher Preparation and Inclusive/Special Education in Ontario Pre-

Service Programs” (Advisor) 2009 Hirji-Khalfan, Raihanna - “The Inclusion of Disability in Existing International

Development Programmes” (Supervisor). 2009 Parekh, Gillian -“How Neoliberalism Impacts the Realization of Inclusive Education Both

Internationally and Locally: A Study of Inclusive and Equitable Education Opportunities Within the Toronto District School Board” (Supervisor).

2008-2009 Hordo, Diana - “Transportation accessibility litigation: A barrier to inclusion” (Advisor) 2008 Ackermann, Monica - “Redefining Job Accommodation: Systemic Inclusion in the Virtual

Landscape of the Information Economy” (Reader) 2007 Walker, Jennifer – “Don’t Just Think About It, Do It!” Public Health and the Privatization

of Disability in Canada” (Supervisor) 2006-2007 Rossiter-Thornton, Lisa - “Defining Deafness and Deaf Narratives” (Supervisor) 2006 Wu, Libo - “Disability Policy in Modern Welfare States” (Advisor). 2006 Tanaka, Scott -“Sticks and Stones Disavowal of the Body in Disability Life Writing”

(Advisor) 2005-2006 Proszowski, Tom - “Employees with Disabilities in Canadian Workforce: a Critical

Discourse” (Supervisor) 2006 Mizel, Ilana - “Definitions of Disability in Canadian Constitutional and Human Rights

Legislation: Implications for Persons with Chronic Illnesses” (Supervisor) 2005-2006 Rimon-Greenspan, Hila - “Disability Politics in Israel. The Role of Civil Society Actors in

Advancing Policy Change” (Supervisor) 2006 Riddle, Christopher - “On Disability & Equality: Rethinking the Relationship Between

Disability, Equality & Social Justice” (Supervisor) 2006 Gorman, Martha - “Human Rights Policies & Ending the OSSLT” (Advisor) 2006 Lytle, Christopher - “Interrogating Disability as a Racial Project: A Critical Analysis of

Disability as a Socio-Historical Process” (Reader) 2005-2006 Silbiger, Helen - “Disability and HIV/AIDS in Sub-Saharan Africa: Barriers to Prevention,”

(Supervisor) 2005 Marsolais, Allyson - “Revisionist Historians" The Role of Narrative in the Identity

Formation Process in Queer Women, Women Psychiatric Survivors and Queer Women Psychiatric Survivors” (Reader)

MA Supervisory Committees, York University 2011 Al-Khudairy, Sama, “The Disconnect Between South Africa's Maternal Health Policies

and Practices”, Faculty of Health (Supervisor) 1998 Schill, Connie, “Tender, Elegant Balances": People with Intellectual Disabilities, Self

Advocacy and Allies.” Faculty of Environmental Studies (Advisor) 1994 Viswanathan, Leela, “Long-Term Care Reform in Ontario: Planning for Human

Services/Social Change.” Faculty of Environmental Studies, (Supervisor) 1993 Scott, Jay, School of Social Work (Advisor) 1991 Mulligan, Mary Ellen, “Ways of Seeing: 3 Models for Understanding Issues of Dev'l

Handicaps.” Faculty of Environmental Studies (Supervisor)

Appendix A - DRPI initiatives and university partnerships

27

LIST OF MONITORING PROJECTS (country, date of training, funder) Please note:

*Dates refer to year training was held *Have listed Canada Country Monitoring Projects as 4 projects – multiple sites, have listed AWARE as 3 projects – India, Bangladesh & Nepal, have listed Stars of Hope as 6 projects – monitoring in 6 countries

TOTAL: 52

Asia Pacific

1. India (CMP) – 2007 – funded by SIDA 2. Phillipines – 2008 - funded by SIDA 3. New Zealand (1 of 3 projects) – 2010 – funded by New Zealand Government (Ministry of Social

Development) 4. New Zealand (2 of 3 projects) – 2010 – funded by New Zealand Government (Ministry of Social

Development) 5. New Zealand (3 of 3 projects) – 2010 – funded by New Zealand Government (Ministry of Social

Development) 6. India - 2011 – funded by DRF, Lights for the World, Liliane Fonds 7. Nepal (CMP) – 2012 - funded by SIDA; Pilot testing of the DRPI Hub - 2016 8. India (AWARE) – 2014 - funded by DFATD 9. Nepal (AWARE) – 2014 - funded by DFATD 10. Bangladesh (AWARE) – 2014 - funded by DFATD 11. Vietnam – 2014 – funded by SSHRC; Pilot testing of the DRPI Hub - 2016 12. Australia – funded by Australia Research Council

Europe

13. Sweden – 2007 – funded by Sida 14. Portugal – 2011 – funded by Fundacao Calouste Gulbenkian 15. Bosnia – Herzegovina – 2012 – Austrian Development Agency, Light for the World 16. Montenegro – 2012 - funded by SIDA 17. Moldova – 2012 – funded by EIDHR Country based support scheme Moldova 18. Macedonia – 2013 – funded by EIDHR CBSS Macedonia 19. Macedonia – 2015 – funded by Open the windows 20. Serbia (CMP) - 2013 – funded by SIDA 21. Serbia (CMP focused on political participation of persons with disabilities) – funded by British

Council Serbia – 2014 22. Serbia (CMP focused on monitoring the rights of PLHIV) – funded by EU Delegation - Civil

Society Facility Serbia – 2014 23. Portugal – 2013— funded by Fundação para a Ciência e Tecnologia

Latin America

24. Bolivia – 2011 - funded by SIDA 25. Honduras – 2012 - funded by SIDA 26. El Salvador – 2013 – funded by SIDA & CONAIPD 27. Colombia – 2013 - funded by SIDA

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28. Costa Rica (Pilot testing of the DRPI Hub) – 2016 29. Argentina – 2016 – fund by Government of Argentina, (Pilot testing of the DRPI Hub) – 2016 30. Peru (Pilot testing of the DRPI Hub) – 2016 31. Uruguay (Pilot testing of the DRPI Hub) – 2016 32. Brazil (Pilot testing of the DRPI Hub) – 2016

Africa (excluding North Africa – see MENA below)

33. Cameroon -2006 – funded by SIDA 34. Kenya – 2006 - funded by SIDA; Pilot testing of the DRPi Hub - 2016 35. South Africa (CMP) – 2012 – SIDA; Pilot testing of the DRPI Hub - 2016 36. Rwanda (Pilot testing of the DRPI Hub) – 2016 37. Tanzania (Pilot testing of the DRPI Hub) – 2016 38. Malawi (Pilot testing of the DRPI Hub) – 2016 39. Nigeria (Pilot testing of the DRPI Hub) – 2016

Middle East & North Africa (MENA)

40. Tunisia – 2015—funded by Handicap International 41. Morocco – 2015—funded by Handicap International 42. Algeria – 2014, 2015 – funded by Handicap International 43. Jordan – 2012 – funded by Stars of Hope 44. Palestine – 2012 – funded by Stars of Hope 45. Yemen – 2012 – funded by Stars of Hope 46. Egypt – 2012 – funded by Stars of Hope 47. Lebanon – 2012 – funded by Stars of Hope

North America

48. Canada (CMP) (1 of 4 projects) – 2007 - funded by SSHRC 49. Canada (CMP) (2 of 4 projects) – 2007 - funded by SSHRC 50. Canada (CMP) (3 of 4 projects) – 2007 - funded by SSHRC 51. Canada (CMP) (4 of 4 projects) – 2007 - funded by SSHRC 52. Canada (Expanding the Circle) – 2014 - funded by SSHRC

LIST OF COUNTRIES THAT HAVE PARTICIPATED IN A DRPI TRAINING TOTAL: 49

Asia Pacific 1. Thailand 2. Bangladesh 3. Laos 4. Nepal 5. Philippines 6. India 7. Philippines 8. New Zealand 9. Bangladesh 10. Vietnam

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11. Australia

Europe 12. Serbia 13. Montenegro 14. Macedonia 15. Croatia 16. Sweden 17. Portugal 18. Bosnia – Herzegovina 19. Moldova

LATIN AMERICA 20. Argentina 21. Brazil 22. Ecuador 23. Bolivia 24. Honduras 25. El Salvador 26. Colombia 27. Panama 28. Costa Rica 29. Chile 30. Peru 31. Uruguay

Africa 32. Cameroon 33. Kenya 34. Rwanda 35. Tanzania 36. Zimbabwe 37. South Africa 38. Malawi 39. Nigeria

Middle East & North Africa (MENA) 40. Morocco 41. Mauritania 42. Algeria 43. Tunisia 44. Jordan 45. Palestine 46. Yemen 47. Egypt 48. Lebanon

North America 49. Canada

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LIST OF UNIVERSITIES DRPI HAS COLLABORATED WITH 1. Lisbon University, Portugal 2. Protestant University of Applied Studies, Germany 3. University of Hyderabad, India 4. OCAD University 5. University of Cape Town 6. University of the Western Cape 7. La Trobe Law School 8. Laval University 9. Andes University 10. University of Regina 11. Ryerson University 12. Victoria University of Wellington 13. Mount Saint Vincent University 14. McGill University 15. University of Lund 16. University of Nairobi 17. RMIT University 18. Syracuse University 19. NALSAR University of Law 20. University of Essex 21. University of Greenwich 22. State University of New York at Buffalo 23. Umeå University 24. Towson University

LIST OF STUDENTS WHO HAVE PARTICIPATED IN DPRI UNDER THE SUPERVISION OF MARCIA RIOUX

1. Tom Pokinko, OCAD University 2. Catalina De La Rocha, OCAD University 3. Rezwana Islam, Master in Disaster and Emergency, York University 4. Valentina Sisti, Master in Communication and Culture, York University 5. Doug Waxman, PhD Candidate, (Critical Disability Studies), York University 6. Anne Jackson, OCAD University 7. Dana Corfield, PhD Candidate, (Critical Disability Studies), York University 8. Nadia Chowdhury, MA Candidate (Critical Disability Studies), York University 9. Samadhi Mora Severino, MA, (Critical Disability Studies), York University 10. Jennifer Sylvester, MA candidate, (Education), York University 11. Maureen Riche, PhD Candidate, (Humanities),York University 12. Anne Jackson, OCAD University 13. Dana Corfield, PhD Candidate, (Critical Disability Studies), York University 14. Nadia Chowdhury, MA Candidate (Critical Disability Studies), York University 15. Elizabeth Archampong, PhD Candidate, Osgoode Hall Law School, York University, Toronto 16. Cassandra Ashton, PhD Candidate (Communication Studies), York University 17. Heather Bergink, MA Candidate (Critical Disability Studies), York University 18. Tammy Bernasky, MA Candidate (Critical Disability Studies), York University 19. Natalia Bogdan, MSc Candidate (Computer Science), York University 20. Alexis Buettgen, PhD Candidate (Critical Disability Studies), York University

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21. Francis Charrier, MA Candidate (Political Science), Centre interdiscipinaire de recherche en adaptation et intégration sociale (CIRRIS), Laval University, Québec City, Canada

22. Rebecca Chase, MA Candidate (Critical Disability Studies), York University 23. Christine Chiou, MA Candidate (Design), York University 24. Cameron Crawford, PhD Candidate (Critical Disability Studies), York University 25. David Fiset, MA Candidate (Sociology), Centre Interdiscipinaire de Recherche en Réadaptation

et Intégration Sociale(CIRRIS), Laval University, Québec City, Canada 26. Chelsea Flook, MA Candidate (Critical Disability Studies), York University 27. Hyacinth Francis, MA Candidate (Critical Disability Studies), York University 28. Michael Greenspan, BSc Candidate (Computer Science), York University 29. Paula Hearn - MA Candidate (Critical Disability Studies), York University 30. Raihanna Hirji-Khalfan, MA Candidate (Critical Disability Studies), York University 31. Jerry Huang, BSc Candidate (Computer Science), York University 32. Morgan Huseby, MA Candidate (History), York University 33. Jason Jia, BSc Candidate (Computer Science), York University 34. Jon Johnson, PhD Candidate (Communication and Culture), York University 35. Arjun Jolly, BSc Candidate (Computer Science), York University 36. Chelsea Jones, MA Candidate (Critical Disability Studies), York University 37. Bhaskar Joshi, BSc Candidate (Computer Science), York University 38. Nadia Kanani, MA Candidate (Critical Disability Studies), York University 39. Izabella Karapetyan, MA Candidate (Critical Disability Studies), York University 40. Amila Kottege, BSc Candidate (Computer Science), York University 41. Carol Krause, LLB Student, Osgoode Hall Law School, York University, Toronto, Canada 42. Shambavi Kumaresan, LLB Candidate, York University 43. Nelson Lai, MA Candidate (Political Science), York University 44. Michelle Landy, LLB Candidate, Osgoode Hall, York University 45. Julie Lanz, LLB Candidate, Osgoode Hall, York University 46. Natalia Levina, MBA Candidate, Schulich School of Business, York University, Toronto, Canada 47. Charlene Lindsay, MES Candidate (First Nations Treaty Negotiations and Mediation Progress),

York University 48. Christopher Lytle, MA Candidate (Critical Disability Studies), York University 49. Shahina Manji, MA Candidate (Critical Disability Studies), York University 50. Anthony Mapp, PhD Candidate (Critical Disability Studies), York University 51. Macey Markowitz, MA Candidate (Critical Disability Studies), York University 52. Iphigenia Mikroyiannakis, MA Candidate (Critical Disability Studies), York University 53. Ilana Mizel, MA Candidate (Critical Disability Studies), York University 54. Vishaya Naidoo, MA Candidate (Critical Disability Studies), York University 55. Chavon Niles, MA Candidate (Critical Disability Studies), York University 56. Gillian Parekh, PhD Candidate, Critical Disability Studies, York University, Toronto, Canada 57. Paula Pinto, PhD Candidate (Sociology), York University 58. Christina Pojrazova, MA Candidate (Critical Disability Studies), York University 59. Hila Ramon-Greenspan, MA Candidate (Critical Disability Studies), York University 60. Joanna Rankin, PhD Candidate (Critical Disability Studies), York University 61. Priyanga Rangan, MA Candidate (Critical Disability Studies), York University 62. Stephanie Renner, MA Candidate, (Critical Disability Studies), York University 63. Jennifer Rinaldi, PhD Candidate (Critical Disability Studies), York University 64. Blair Roblin, MA Candidate (Critical Disability Studies), York University 65. Simmy Sahdra, MA Candidate (Critical Disability Studies), York University

CV January 2017 32

66. Fiona Sampson, PhD (Law) Candidate, Osgoode Hall Law School, York University (Toronto, Canada)

67. Megan Sandhu, PhD Candidate (Communication Studies), York University 68. Seema Shah, LLB Candidate, Osgoode Hall, York University 69. Gemma Sheppard, MA Candidate (Critical Disability Studies), York University 70. Donn Short, PhD Candidate (Law), York University 71. Ken Singh, LLB Candidate, York University 72. Hengameh Sorouri, MA Candidate (Critical Disability Studies), York University 73. Natalie Spagnuol, PhD Candidate (Critical Disability Studies), York University 74. Julien Subercaze, PhD Candidate (Computer Science), INSA-Lyon, France 75. Scott Tanaka, MA Candidate (Critical Disability Studies), York University 76. Agnes Thomas, MA Candidate (Critical Disability Studies), York University 77. Kristin Tokarsky, MA Candidate (Critical Disability Studies), York University 78. Onar Usar, MA Candidate (Critical Disability Studies), York University 79. Jolyane Vigneau, BA Candidate, Laval University, Québec City, Canada 80. Jessica Vorstermans, PhD Candidate, Critical Disability Studies, York University, Toronto,

Canada 81. Laura Vukson, BA Candidate (International Development), York University 82. Jennifer Walker, MA Candidate (Critical Disability Studies), York University 83. Samantha Walsh, MA Candidate (Critical Disability Studies), York University 84. Aurita Julie-Dale Withers, MA Candidate (Critical Disability Studies), York University 85. Laura Zycla, MA Candidate (Critical Disability Studies), York University