icpcn conference 2014 mumbai india · basic principles of education ghandian principles of...
TRANSCRIPT
FROM IDEAS TO ACTION THROUGH EDUCATION: TRANSFORMING EDUCATION IN CHILDREN’S
PALLIATIVE CARE
ICPCN Conference 2014Mumbai India
John J. Collins AMHead of Department
Pain Medicine & Palliative CareThe Children’s Hospital at Westmead
THE TRANSFORMATIVE NATURE OF EDUCATION
MAYA ANGELOU
“When you know better, you do better”
BASIC PRINCIPLES OF EDUCATIONGhandian Principles of Education
1. Nai Talim ('Basic Education for all')
2. Knowledge & work are not separate
3. Focus on:i) lifelong character of education
ii) social character
iii) holistic process
FROM IDEAS TO ACTION THROUGH EDUCATION: TRANSFORMING EDUCATION IN CHILDEN’S
PALLIATIVE CARE
Questions:What needs to be transformed?
How do we transform what needs to be transformed?
TRANSFORMING EDUCATION IN CHILDEN’S PALLIATIVE CARE
To answer these questions need to understand:1. What are the target groups for PPC
education?2. What has been achieved for each of these
groups? 3. What are areas for improvement?4. What are strategies for transformation?
TARGET GROUPS NEED DIFFERENT LEVELS OF EDUCATION (EAPC)
1. Family education2. Professional education
a. Palliative Care Approach: a way to integrate PC in settings not specialised in PCb. General Palliative Care: provided by primary care professionals & specialists treating children with LLI who have good basic PC knowledgec. Specialist Palliative Care: Services whose main activity is the provision of PC supported by clinicians with specialist qualifications
What has been achieved in PPC education for families?
1. Family educationInformation booklets/brochures: most services
Children’s Hospices web-sites
Clinician initiated education at the time of referral, during palliative care, bereavement
What has been achieved in PPC education for families?
What are some issues for clinician initiated family education for community care?Small numbers of children + dispersed geographically + clinicians with little expertise―> Creating new models to transform clinician initiated education for families & professionals“Pop-up Model of Care” with “Just-in-time training”Paediatric Palliative Care Planning Framework 2011-2014http://www0.health.nsw.gov.au/policies/gl/2011/pdf/GL2011_014.pdf
What has been achieved in PPC education for families?
Internet: Google® 739,000 references ―>
You Tube: Pediatric palliative care = 2180 resultsPaediatric palliative care = 429 results
Families need education about assessing health information on the internet
Transforming internet information
Empowering families on assessing internet informationhttps://www.chf.org.au
Who is providing the information?When was this information published? How up to date?Do you understand the information?Does this resource provide links to other reputable resources?Does this person or company have a commercial reason to promote a particular product?Does the resource discuss the risks as well as the benefits of a particular approach?
TARGET GROUPS NEED DIFFERENT LEVELS OF EDUCATION (EAPC)
1. Family education2. Professional education
a. Palliative Care Approach: a way to integrate PC in settings not specialised in PCb. General Palliative Care: provided by primary care professionals & specialists treating children with LLI who have good basic PC knowledgec. Specialist Palliative Care: Services whose main activity is the provision of PC supported by clinicians with specialist qualifications
What has been achieved in PPC education for professionals?1. Standards incorporate PPC education as an essential component:
- Eur J Pall Care, 2007; 14 (3), 109-111- American Academy of Pediatrics 106 (2): 351-357, 2000- www.palliativecare.org.au
Recommendations for:- Comprehensive training & support- Core part of curriculum- Centres of excellence for training
What has been achieved in PPC education for professionals?2. Textbooks
What has been achieved in PPC education for professionals?
3. Distance learning courses for health professionals:
http://www.icpcn.org/post-graduate-training-in-cpc
What has been achieved in PPC education for professionals? E-learning http://www.icpcn.org/icpcns-new-elearning-programme/•Introduction to Children’s Palliative Care•WHO Guidelines on persisting pain in children •Communicating with Children•Childhood Development and Play •Symptoms other than pain•Non-pharmacological pain management•End of life care•Grief and Bereavement
What has been achieved in PPC education for professionals?
Web resourceshttp://www.ippcweb.org/http://www.togetherforshortlives.org.uk/http://www.chionline.org/http://www.nalag.org.au/http://www.chpca.net/http://www.caresearch.com.au
What has been achieved in PPC education for professionals?
Novel communication technologyWebinars: interactive conferences or online workshopswww.aspho.org/education/content/webinar.html
http://www.nhpco.org/education-nhpco-webinars/2014-webinar
http://cnpcc.ca/pages/IWKWebinars.htm
Great achievements but……..What are the challenges for professional education in PPC?1. Volume of material
2. How do we determine the quality of the material?
3. What are the outcomes?
4. How do we become educated about the internet?
Professional education: assessing health information on the internet
https://www.chf.org.auWho is providing the information?When was this information published? How up to date?Do you understand the information?Does this resource provide links to other reputable resources?Does this person or company have a commercial reason to promote a particular product?Does the resource discuss the risks as well as the benefits of a particular approach?
Quo Vadis?
Another component to transformation: allying PPC education with international changes to health education“Health professionals for a new century: transforming education to strengthen health systems in an interdependent world”
Frenk, J et al. The Lancet Commissions. www.thelancet.com
Allying PPC education with international changes to health educationReform agenda in health care education• Early 1900s, science based curriculum• 1950s, problem-based instructional innovations• 2000s -Recognising the need to improve capacity & performance within health care systems by:
- adapting core professional competencies to specific contexts- drawing on global knowledge as our world becomes more inter-dependent
Allying PPC education with international changes to health education
Challenges:1. PPC is a small area of clinical practice, yet PPC has
an obligation to improve capacity within health care systems & become more inter-dependent
2. The volume of PPC education material is huge & the quality unknown
3. PPC Core professional competencies need development
KEY POINTS for TRANSFORMATION
1. Target groups need different levels of education
2. Be judicious about available resources3. Collaborate & share4. Consult the research, make the messages
evidence-based to ensure quality5. Create competencies
“Education is the most powerful weapon which you can use to change the world.”
THANK YOU
Dept. Pain Medicine & Palliative Care, Children’s Hospital at Westmead, Sydney Australia