fighting mr. parkinson with data: round two
DESCRIPTION
An update on my fight against Parkinson's Disease (PD), covering "Round Two" which I presented at a Quantified Self (QS) meetup in San Francisco on July 28th, 2014... The original presentation was prepared for a QS meetup held in January, 2014 to discuss my efforts to monitor and assess my progress fighting PD with tech, data, peer networks, nutrition, sleep, and positive visualization...TRANSCRIPT
Fighting Parkinson Disease with Data
2nd Round Winner: Kevin
Kevin Krejci
July 28, 2014
Quantified Self Show and Tell #34
In This Corner…In This Corner…In This Corner…In This Corner…
image: (cc) emdot @kevinkrejciKevin Krejci
In Opposite CornerIn Opposite CornerIn Opposite CornerIn Opposite Corner
image: (cc) emdot @kevinkrejciKevin Krejci
My Long Term Goals
•Win the Fight (within 12 rounds)
•Optimize productivity and quality of life
•Keep symptoms at bay
•Slow or reverse PD progression
•Help find the cause and cure…
2nd Round Goals*• Control of Symptoms
• Maximize productivity
• Reduce stress
• Quantified Self (QS) Routines
• Find efficient ways to measure/track my condition
• Establish solid baselines
• Try experiments and learn from them*(short term) stated at 1/2014 QS Show and Tell
2nd Round Outcomes
• Control of Symptoms
• Doubled typing speed
• Subjective ratings improved (feeling my best in a decade)
• Sleep is still a challenge
• QS Routines
• Got organized
• Collected lots of data from many tools
• Still can’t connect the dots well (analytics challenge)
How? (1How? (1stst Round) Round)How? (1How? (1stst Round) Round)
image: (cc) emdot @kevinkrejciKevin Krejci
How? (2How? (2ndnd Round) Round)How? (2How? (2ndnd Round) Round)
image: (cc) emdot @kevinkrejciKevin Krejci
Keys to Success…Keys to Success…Keys to Success…Keys to Success…
image: (cc) emdot @kevinkrejciKevin Krejci
Tracking Many SymptomsTracking Many SymptomsTracking Many SymptomsTracking Many Symptoms
image: (cc) emdot @kevinkrejciKevin Krejci
With Many Tools*With Many Tools*With Many Tools*With Many Tools*
image: (cc) emdot @kevinkrejciKevin Krejci
*partial list
Is not easy…Is not easy…Is not easy…Is not easy…
image: (cc) emdot @kevinkrejciKevin Krejci
Starting Simple and Starting Simple and SubjectiveSubjective
Starting Simple and Starting Simple and SubjectiveSubjective
image: (cc) emdot @kevinkrejciKevin Krejci
What Seems to be Helping
• Exercise
• Rock Steady Boxing, Crunch Gym, yoga, sports with my kids, etc.
• Therapies
• Physical therapy, acupuncture, meditation, massage, naps, LSVT (speech therapy)
• Nutrition
• Real food…
• Medication
• Carbidopa/Levadopa (Sinamet)
What Seems to be Hurting
• Exercise
• Not doing it…
• Therapies
• Not doing them…
• Nutrition
• Eating processed foods, excessive carbs, high fructose corn syrup, airplane food…
• Medication
• Ropinerole
1/2014 Video on Flickr
https://www.flickr.com/photos/kevinkrejci/sets/72157639824069093
7/2014 Video on Flickr
https://www.flickr.com/photos/kevinkrejci/sets/72157639824069093
Won the 2nd RoundWon the 2nd RoundWon the 2nd RoundWon the 2nd Round
image: (cc) emdot @kevinkrejciKevin Krejci
Rock Steady Boxing SF
Lessons LearnedLessons Learned(In 2(In 2ndnd Round) Round)
•Leverage organizational skills of spouse
•Get active and engaged
•Experiment with therapies and routines
3rd Round Goals•Keep trying new gadgets
•Beddit, Sensoria (smart socks), etc.
•Optimize routines
•QS management, exercise, therapies, nutrition
•Improve sleep results
•Find natural alternatives to meds
Other Updates•Appointed as an Ambassador to the
World Parkinson Congress 2016
•QS Parkinson’s Disease Meetup was founded by Sara Riggare
•Planning a big QS experiment and fundraiser
•Parkies (people w/ PD) sail for Hawaii
Behind every boxer…
There are a lot of people to thank…
Wife and kids (Esther, Kai and Alani)
Mom and Dad
Brother and Sister
Extended Family and Relatives
Friends and Followers
Colleagues and Management at Fujitsu, @Nifty, and RocketSpace
World Parkinson Coalition
Rock Steady Boxing SF
The Parkinsons Institute
Physical Therapy Select
SoulWorks
PatientsLikeMe
UCSF Neurology Department
The Working Stiffs Support Group
Ambulatory Parkinson’s Disease Monitoring (APDM)
Michael J. Fox Foundation
Davis Phinney Foundation
National Parkinson Foundation
Parkinson Disease Foundation
Parkinson’s Action Network
The App and Platform Developers
The Gadget Makers
And last but not least…
YOUand the rest of the
Quantified Self community!
THANK YOU!!!
Get Engaged!
QS PD Meetup
http://www.meetup.com/Quantified-Self-Parkinsons-Disease/
