focusing on the person with...

Focusing on the person with dementiaNiamh Hennelly

PhD Candidate

Centre for Economic and Social Research on Dementia

NUI Galway

“the conceptual view we have of the person will affect the care we are prone to give to people”

(Hughes, 2001, p.86)

Personhood

PhysicalismPersonalism

(Fleischer, 1999)

“It is a standing or status that is bestowed upon one human being, by others, in the context of relationship and social being”

(Kitwood, 1997, p.8)

Personhood moving from focus on the individual

the relational/social

Personhood

Relationships

Role

Connection

Self-identity

Autonomy

Respect

Dignity

Person-centred

care

Personhood

Psychological needs

Social needs

The person’s perspective

See Brooker (2007) and McCormack & McCance (2006) for examples of person-centred care models.

ComfortOutpacing or relaxed paceIdentityInfantilisation or respectAttachmentInvalidation or validationOccupationDisempowerment or empowermentInclusionStigmatisation or recognition

(Kitwood, 1997)

Current Research: What are the key elements of

personhood within formal care in dementia?

• People with dementia• Family members• Formal caregivers• Policy Makers

Interviews with

www.cesrd.ien.hennelly2@nuigalway.ie@NiamhHennelly

References• Brooker, D. (2007). Person-centred dementia care: making services better. London, UK, Jessica Kingsley

Publishers.

• Fleischer, T. E. (1999). The Personhood Wars. Theoretical Medicine and Bioethics, 20, 309-318.

• Hughes, J. C. (2001). Views of the person with dementia. Journal of Medical Ethics, 27(2), 86-91.

• Kitwood, T. (1997). Dementia Reconsidered: The person comes first, Buckingham, U.K., Open University Press.

• McCormack, B. and T. V. McCance (2006). Development of a framework for person-centred nursing. Journal of Advanced Nursing 56(5): 472-479.

Other useful references and websites

• Brooker, D. (2009). Enriched Care Planning for PEOPLE with dementia. London, UK, Jessica Kingsley Publishers.

• Dewing, J. 2008. Personhood and dementia: revisiting Tom Kitwood's ideas. International Journal of Older People Nursing, 3, 3-13.

• Kitwood, T., & Bredin, K. (1992). Towards a theory of dementia care: personhood and well-being. Ageing and Society; 12 , pp. 269-287.

• http://www.scie.org.uk/person-centred-care

• https://www.genio.ie/multimedia/publications/person-centred-care-in-the-community

• http://www.alzheimer-europe.org/Ethics/Definitions-and-approaches/Other-ethical-principles/Personhood

• http://dementiaelevator.ie/training-programmes/

• http://butterflyscheme.org.uk/

• http://www.dementiacarematters.com/index.html

• http://www.bradford.ac.uk/health/dementia/dementia-care-mapping/

• https://hellomynameis.org.uk/Images in this presentation taken from https://stocksnap.io. Some authors’ own.