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Yes you can ! publish sensitive dataVeerle Van den EyndenUK Data ServiceUniversity of EssexPublishing Better Science through Better Data Nature Publishing Group, 14 November 2014

Sensitive dataData to be protected against unwanted disclosurePeople: sensitive personal information (Data Protection Act)e.g. health, race, criminal offences,Biodiversity: if released to the public would result in an adverse effect to the species or conservation activity1

1Chapman AD, Grafton O (2008). Guide to Best Practices for Generalising Sensitive Species Occurrence Data. Copenhagen: Global Biodiversity Information Facility. [www.gbif.org/resources/2760]

The UK Data Archive

Based at the University of Essex, since 1967

47 years of selecting, ingesting, curating and providing access to social science data

Data and data support services for higher and further education for research, teaching and learning

Attained the highest information security standard, ISO 27001

Concordat with our National Statistical Institute (ONS)UK Data Serviceput together a collection of the most valuable data and enhance these over timepreserve data in the long term for future research purposesmake the data and documentation available for reuseprovide data management advice for data creatorsprovide support for users of the serviceinformation about how data are usedeasy access through website 4Options for sharing data that may contain sensitive information Obtain informed consent, also for data sharing and preservation / curation

Protect identities e.g. anonymisation, not collecting personal data

Regulate access where needed (all or part of data) e.g. by group, use, time period

Transition slide from legal to ethics and informed consent. But a reminder of the need to consider multiple strategies never any one in isolation.

Consent needed across the data life cycleEngagement in the research processdecide who approves final versions of transcripts

Dissemination in presentations, publications, the webdecide who approves research outputs

Data sharing and archivingconsider future uses of data

Always dependent on the research context special cases for covert research, verbal consent, etc.

Anonymising dataDirect identifiers often not essential research infoIndirect identifiers

Remove direct identifiers (or replace with pseudonyms)e.g. names, address, institution, photoReduce precision/detail through aggregatione.g. birth year vs. date of birth, occupational categories, area rather than villageGeneralise meaning of detailed texte.g. occupational expertiseRestrict upper lower ranges to hide outlierse.g. income, age

7Managing data accessUK Data Service: web access to data and metadataData freely available for use; commercial use chargesMetadata / documentation always openData available under 3 access levels: OPEN SAFEGUARDED End User Licence (e.g. not identify any potentially identifiable individuals)Special agreements: depositor permission; approved researcherEmbargo for fixed time periodCONTROLLED only for accredited users Access via on-site or virtual secure environment (secure lab8Open about data with restricted accessPublish:Which data existWhere data are kept, e.g. which repositoryWho can access themFor which purposeUnder which conditionsExample: managed access ReShare

Example: managed access ReShare

Example: managed access ReShare

Example: managed access ICRAF dataverse

Where publish your data?ReShare repository UK Data Service

self-deposit data repository for research datascope: data resources of value to research and teaching communities across and beyond the social science discipline (Collections Development Policy)ESRC award holders: contractual requirement to archive and share their research datacustomised version of EPrints, open-source digital repository softwarereshare.ukdataservice.ac.uk

ReShare featuresUK Federation Access authentication of data depositors and data usersPull related project information from RCUK Gateway to Research (auto-fill 11 metadata elements: project-level, people, dates)Publish metadata records to UK Data Service Discover portalDOI mintedUKDS staff review data collections before publishing:confidentialitycopyrightdocumentation sufficientlong-term file formats

ReShare access and licence optionsAccess options for individual files or zip bundles:open access CC licencesafeguarded access - UK Data Service End User licencepermission accessembargo (up to 12 months)

Our data management guidanceOnline best practice guidance: ukdataservice.ac.uk/manage-data.aspxManaging and Sharing Research Data a Guide to Good Practice: (Sage Publications Ltd)Helpdesk for queries: ukdataservice.ac.uk/help/get-in-touch.aspxTraining: www.data-archive.ac.uk/create-manage/advice-training/events

Veerle Van den Eyndenveerle@essex.ac.ukQuestions