IMPROVING QUALITY OF CARE FOR PATIENTS

&

QUALITY OF LIFE FOR SURVIVORS

Nancy M. Paris Angie Patterson

President & CEO Vice President

Senate Women’s Adequate Healthcare Study Committee

October 6, 2015

Georgia CORE is a public-private partnership dedicated to generating collaborative resources for higher quality, better organized, and more cost-effective care.

Our Board of Directors is comprised of oncologists, scientists, educators and public health professionals from leading cancer centers, medical practices and all academic medical centers and NCI funded programs in Georgia.

Supported by:

• Georgia Department of Public Health

• Georgia Department of Community Health

• Georgia Society of Clinical Oncology (GASCO)

• Georgia Research Alliance

• Government and Foundation Grants

• Private Contributions and Sponsorships

• Industry Contracts

GeorgiaCORE.org

GeorgiaCancerInfo.org

Partnership with NCI

Certified by Health on the Net

• 700 Clinical Trials

• 1,000 Oncologists

• 294 Cancer Treatment Sites

• National Treatment Standards and Guidelines

• Community Resources throughout Georgia

• Cancer Survivorship Connection

• Statewide Initiatives

Searchable Online Cancer Information Center

Board, Staff, Consultants

& Volunteers

Hereditary Breast and Ovarian Cancer

• Cancer is the second leading cause of death in Georgia, accounting for almost a quarter of all deaths.

• Breast Cancer is the most common cancer diagnosis among women and the second leading cause of death; ovarian cancer is the fifth leading cause of death

• Family history remains the most significant and consistent predictor of cancer risk.

• Systematic collection of family history, referral of high risk women for genetic counseling and testing are recommended to identify BRCA 1 / 2 gene mutations associated with breast and ovarian cancer.

• Though not common in the general population, BRCA 1 / 2 gene mutation result in dramatically increased risk of breast and ovarian cancer – especially among young women.

• Identification of BRCA 1 / 2 gene mutations can lead to cancer prevention and management strategies that reduce the incidence of breast and ovarian cancer by 80 – 95%.

• The Georgia Department of Public Health estimates that 750 – 2500 potential BRCA related breast and ovarian cancers could be prevented.

Georgia Breast Cancer Genomics Project

• Goal: Identify pre-menopausal, minority and underserved women at high risk of Hereditary Breast and Ovarian Cancer prior to a diagnosis of cancer

• Established by Georgia Department of Public Health in partnership with Georgia CORE, Emory, Morehouse and Georgia State through a Cooperative Agreement with CDC (2011 – 2014) now integrated into DPH Breast and Cervical Cancer Program

• Incorporated B-RST, recommended by the US Preventive Services Task Force, in a new web-based format in English and Spanish via BreastCancerGeneScreen.org

• Successfully and cost effectively screened 5,434 women in 13 public health centers and Federally Qualified Health Centers; provided genetic services to 173 women and genetic testing to 40

• Results published in Annals of Surgical Oncology, under review by Public Health Reports; under consideration for National Cancer Institute supported study

•

“Take – Aways”

• Cancer – specifically breast and ovarian – are leading issues in women’s health

• Genetic screening and testing will become increasing common and will continued to guide cancer treatment

• Georgia’s Department of Public Health, Georgia CORE, academic institutions and oncologists created an innovative, cost effective program – the Breast Cancer Genomics Project -- to provide genetic screening and services to minority and underserved women that was initiated with CDC funding

• The Genomics Project demonstrated the ability to integrate scientific knowledge into clinical practice

• The Genomics Project identified profound gaps in knowledge of Hereditary Breast and Ovarian Cancer among physicians and medical residents requiring further education and collaboration to ensure appropriate genetic screening

Cancer Survivors In Georgia

*01/2015 ACS

Institute of Medicine, 2005“Health care providers should use systematically developed evidence-based clinical practice guidelines, assessment tools, and screening instruments to identify and manage late effects of cancer and its treatment.”

SurvivorshipWhat is a survivor? From the time of diagnosis, through the balance of his or her life; includes family members, friends, and caregivers (National Cancer Institute)

What is Survivorship? Experience of living with, through and beyond a diagnosis of cancer. (National Coalition of Cancer Survivorship)

National Guidelines: American College of Surgeons Commission on Cancer (CoC); American Society of Clinical Oncology (ASCO); National Comprehensive Cancer Network (NCCN)

Essential Elements of Survivorship Care, 2011

Georgia Cancer Plan 2014 -2019

1.Cancer Risk Reduction: Tobacco and Obesity

2.Vaccination for Human Papilloma Virus

3.Breast and Cervical Cancer Screening

4.Colorectal Cancer Screening

5.Lung Cancer Screening

6.Quality Cancer Diagnosis and Treatment

7.Access to Palliative Care and Survivorship

8.Patient Case Management and Care Coordination

www.GeorgiaCancerInfo.org/gc3

Statewide Survivorship Initiatives

• Statewide Cancer Survivors’ Needs Assessment

• Partnership with Rollins School of Public Health; Survivorship Working Group

• Assess physical, psychosocial, practical and spiritual needs & level of distress

• Draft Manuscript

• Cancer Survivorship Connection

• Comprehensive web portal for survivors, caregivers and healthcare professionals that provides survivorship resources, navigation, tools and support to improve the quality of life for cancer survivors in Georgia

• $100,000 gift

• Patient Centered Outcomes Research Institute (PCORI) Pipeline to Proposal Award: “Cancer Survivorship Care in Georgia”

• Co-Lead Lanell Bellury, PhD, RN, AOCNS, OCN, Associate Professor, Georgia Baptist College of Nursing, Mercer University

• Atlanta Business Leaders Initiative (ABLI) on Cancer

• National Business Group on Health Toolkit

GeorgiaCancerInfo.org/Survivorship

What is Needed to Improve Quality of Life

for Survivors

INFORMATION/EDUCATION

Support Groups

Enco

ura

geFinancial Support

FOLLOW-UP CARE

Survivo

r Pro

grams

Healthy Lifestyle

Res

ou

rces

Co

mm

un

icat

ion

Insurance Support

FAITH

Co

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selin

g

Attitude

SurvivorshipPlan

RES

EAR

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TEAM CAREC

OM

PASSIO

N

LISTEN

Employment Support

Men

torsh

ip

TIME

HonestyPatience

Transportation

Thank You