Enhancing research through public involvement:A workshop for researchers

Welcome from

Bec, Derek and Sarah

www.becandderek.co.uk

Bec and Derek a collaboration

Bec and Derek

Bec HanleyResearch adviser

Derek StewartPatient advocate

“There is no either / or between being

competitive and collaborative.

You have to be both and decide which in each

situation.”

Cathie Black, Former Chairman and President, Hearst Magazines

Housekeeping

• What to do if the fire alarm goes off• Toilets• Mobile phones – please turn them

off • Any questions?

Bec and Derek

Aim for today

Our aim:• To think with you about how involvement can

improve research ideas, design, delivery and dissemination/application.

• What do you want from this session?

Bec and Derek

Terms we will usePARTICIPATION

Access to and taking part in a

research study

UK Clinical Trials Gatewaywww.ukctg.nihr.ac.uk

INVOLVEMENTActively assisting with the

research process

Involvewww.invo.org.uk

Meeting and talking about research

National Centre for Public Engagementwww.publicengagement.ac.uk

ENGAGEMENT

Bec and Derek

Involvement• People who use services are active partners in

research rather than the ‘subjects’ of research.

• It is about doing research with or by patients and the public, not doing research to patients and the public.

This is NOT the same as participation (e.g. taking part in a clinical trial)

Bec and Derek

Some labels…

Bec and Derek

Many different words are used to describe people who get involved…

• Patients• Public• Service users•Carers• Lay people• Consumers• Research partners

What do you want to improve about your current or planned research?

How can involvement improve research?

• Ideas stage• Design stage• Delivery stage• Dissemination stage

Think about…

• How might involving patients/the public help?• Who specifically could help you?• How might you go about finding them?

Sources of Further Information

www.becandderek.co.uk

Thank you for attending

• Contact…us@becandderek.co.uk

Who were they? What were their names, again?

@ppisqueek @bechanley1

www.becandderek.co.uk