university of loss and grief: cio ing1 th~o'2 gap for...

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Beverley Raphael AM, MBBS, MD, FRANZCP, FRCPsych, HonMD (Newc) Pro fessor Populati on Ment al Hea lth & Disasters Leader Disaster Response & Resili ence Research Group Sc hool of Medic ine Uni versit y of Western Sydney Paramatta NSW 2 150 Email: b.raphael@uws .edu.au Pat Delaney AM, AN Senior Poli cy Offi ce r, Aboriginal Medi cal Service Western Sydn ey, Mt Drui tt Vi ll age NS W 2770 . UN IVERSITY OF NEWCAS TLE loss and Grief: "Cio Gap" for Aboriginal A RY The Ways fonvard report of 1994 (Swan & Raphael) recog ni sed the multiple sources of g ri ef for Aus tra li a's Aboriginal peo ples, Torres Strait Islanders and First Nation peoples across the world. Such g ri ef in terms of loss of culture, land, kinship ties, way of lif e have been prof o und , and continue to have their impact on social and emotional wellbeing. Nowhere is this more prof ound than with the loss of loved ones. The taking away of children is on e such form of tragic loss with its effects across generations, as indi cated in the Bringing them home report of 1997, and in the Westem Australian Aboriginal child health survey (2005) where the effec ts for children in such families are a signifi cant co ntribution to problems. There is also the loss of life: the high l eve l of pre mature d eaths in Indi genous co mmunities, across the lif e span. And the nature of th ese d eath s; the way the loved one died, for instance, frequently in motor vehicle accidents, suici de and violence, or lack of access to hea lth care re sources . In the period since Volume I of Gri ef Mailers in 1998, there have been many policy initiatives, a nd prog rams attempt ing to miti gate negat ive trajectories of distress; mental health, s ocial and emotional we ll being problems; a nd hea lth inequalities, inc luding, mo st rece ntl y, Closing the gap. What is clear is that tho se programs deve loped by Aborig inal peop le for Abor iginal peop le, wh ether as Indi ge nous-driven response to need, or in partners hip with governments or others where Abor iginal voices are predominant, are likely to be most effective. With these themes in view it is useful to looks at some of the excell ent resources that contribute by "spea king" in the Indigenous voice, to Indigenous peoples. So me, of course dealing with loss and g ri ef, also dea l with the trauma that so frequently accompanies this. Some of the resour ces developed by Aboriginal people include Grieving Aboriginal way (Westerman, 200 1) through the Indigenous Psychological Servi ces in Perth. This booklet and resource is linked to the Australian Indigenous HealthlnfoNet 1 It includes common feelings, "what to do s traight away", "s uicide of a loved one" , "d uring sorry and funeral time", and after this is over. Atkinson (2002) in her work Trauma tr ails, identifies how frequently g rief is linked to trauma, for the losses of self with abuse, the experie nce of violence and the diminishment that may result, and the rage and grief that are frequent co nsequences. Here, as in many other areas , telling one's story or giving witness validates people' s dis tress and is a major part of healing journeys. Aboriginal Family and Community Cou nse lling Services also address loss a nd g rief , such as the Let the River Run program to help with "Sorry Business". Other online resources have been developed in different jurisdictions, so me in partnership or funded by governments, others stand-alone or as a section of other programs for the general population d ea ling with g ri ef and bereavement. Many hea ling programs dea l with loss, often in terms of the hea ling journey, and deal with transgenerational, past and current losses. Hea ling groups, clays and other gatherings, including c amps for young people, have bee n utilised to support gri ev ing and going forward, with "yarning" and the narrative gathering support (NALAG [NSW). 20 II ). The multiple resources developed b y, and with, Aboriginal people, attest to the importance in this field, and the profound and multiple sources of grief. Understanding cultural practi ce for dealing with loss and grief is important across all groups of all cultures and peoples. The capac ity to enact the cultural requ irements may make a significan t difference. A study ad dressing those issues in the Northern Territory is reported by McGrath et al. (2008). These h ealth workers found that it was important to recogni se the emotional pain of g ri ef; the traditional ways of dea ling with loss; the importance of sharing grief; and the longer-term kin and community networks; viewing the body; and opportuniti es for overt expression of emotion through crying, singing and storytelling. A recent thes is by Hamps hire (2011 ) explores a "shared understanding of grief and loss" in Dunghutti land . She found that g ri ef had a much broader meaning than for non-Abori ginal people, that this was influenced by their unique history; that they held s trong beli efs and practiced rituals in reaction to death, dying and loss and g ri ef. Thi s is one of a number of research approaches attempting to give a better understanding of cultural differences and their implications, for instance for health care workers. Some of this work has focused on palliative care (McGrath et al., 2004), others on suicide deaths (LIFE: Living Is For Everyone 2 ), on children 3 and on problems such as prolonged grief and/or complicated g ri ef. Many of these resources are provided by and for Aboriginal people, while others have been a partnership process. This awareness and producti vity has resulted in many resour ces, but the majority have not been evaluated for their access ibility and value for Indigenous people. Important other initiatives include reports such as those address ing social and emotional wellbeing from an Aboriginal point of view, reflected in resources such as the recent publi cati on Working togethe r: Aboriginal and To rres Strait Island er mental health and wellbeing principles and practice (Purdie et a l. , 20 I0). Thi s valuab le volume includes chapters dealing with a Cultural and Structural Model of Wellbeing and the importance of the need for sensitivity in these issues , inc lu ding tll!)se relating to men's and women's ways of doing business and roles , the different expe ri ences Grief Ma tters Summer 2011 67

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Page 1: UNIVERSITY OF loss and Grief: Cio ing1 th~o'2 Gap for ...earlytraumagrief.anu.edu.au/files/919785.pdf · 68 Grief Matters Summer 201 1 of communities, including the degree to which

Beverley Raphael AM, MBBS, MD, FRANZCP, FRCPsych, HonMD (Newc)

Professor Population Mental Health & Disasters Leader Disaster Response & Resilience Research Group School of Medicine University of Western Sydney Paramatta NSW 2150 Email: [email protected]

Pat Delaney AM, AN

Senior Policy Officer, Aboriginal Medical Service Western Sydney, Mt Druitt Village NSW 2770

. UNIVERSITY OF NEWCASTLE

loss and Grief: "Cio ing1th~o'2 Gap" for Aboriginal ARY

The Ways fonvard report of 1994 (Swan & Raphael) recognised the multiple sources of g rief for Australia's Aboriginal peoples, Torres Strait Is landers and First Nation peoples across the world. Such grief in terms of loss of culture, land, kinship ties, way of life have been profound, and continue to have thei r impact on social and emotional wellbeing. Nowhere is this more profound than with the loss of loved ones. The taking away of children is one such form of tragic loss with its effects across generations, as indicated in the Bringing them home report of 1997, and in the Westem Australian Aboriginal child health survey (2005) where the effects for children in such families are a significant contribution to problems.

There is also the loss of life: the high level of premature deaths in Indigenous communities, across the life span. And the nature of these deaths; the way the loved one died , for instance, frequentl y in motor vehicle accide nts, suicide and violence, o r lack of access to health care resources.

In the period s ince Volume I of Grief Mailers in 1998, there have been many policy initiatives, and programs attempting to mitigate negative trajectories o f distress; me ntal health, social and emotional well being problems; and health inequalities, including, most recently, Closing the gap. What is clear is that those programs developed by Aboriginal people for Aborig inal people, whether as Indigenous-driven response to need, or in partnership with governments or others where Aborig inal voices are predominant, are like ly to be most effective.

With these themes in view it is useful to looks at some of the excellent resources that contribute by "speaking" in the Indigenous voice, to Indigenous peoples. Some, of course dealing with loss and grief, also deal with the trauma that so frequently accompanies this.

Some of the resources developed by Aboriginal people include Grieving Aboriginal way (Westerman, 200 1) through the Indigenous Psychological Services in Perth. This booklet and resource is linked to the Australian Indigenous HealthlnfoNet1• It includes common feelings, "what to do straight away", "suicide of a loved one", "during sorry and funeral time", and after this is over.

Atkinson (2002) in her work Trauma trails, identifies how frequently grief is linked to trauma, for the losses of self with abuse, the experie nce of violence and the dimini shment that may result, and the rage and grief that are frequent conseque nces. Here, as in many other areas, telling one's sto ry or giving witness validates people's distress and is a maj or part of healing journeys.

Aboriginal Family and Community Counselling Services also address loss and g rief, such as the Let the River Run program to help with "Sorry Business" .

Other online resources have been developed in different jurisdictions, some in partnership or funded by governments, others stand-alone or as a section of o ther programs for the general population dealing with g rief and bereavement. Many healing programs deal with loss, often in terms of the healing journey, and deal with transgenerational , past and current losses. Healing groups, clays and other gatherings, including camps for young people, have been utilised to support griev ing and going forward, with "yarning" and the narrative gathering support (NALAG [NSW). 20 II ). The multiple resources developed by, and with , Aboriginal people, attest to the importance in this field, and the profound and multiple sources of grief.

Understanding cultural practice for dealing with loss and grief is important across all groups of all cultures and peoples. The capacity to enact the cu ltural requirements may make a significant difference. A study addressing those issues in the Northern Territory is reported by McGrath et al. (2008). These health workers found that it was important to recognise the emotional pain of grief; the traditional ways of dealing with loss; the importance of sharing grief; and the longer-term kin and community networks; viewing the body; and opportunities for overt expression of emotion through crying, sing ing and storytelling. A recent thesis by Hampshire (2011 ) explores a "shared understanding of grief and loss" in Dunghutti land. She found that grief had a much broader meaning than for non-Aborig inal people, that this was influenced by thei r unique history; that they held strong beliefs and practiced rituals in reaction to death, dying and loss and grief. This is one of a number of research approaches atte mpting to give a better understanding of cultural differences and their implications, for instance for health care workers. Some of this work has focused on palliative care (McGrath et al., 2004), others on suicide deaths (LIFE: Living Is For Everyone2) , on children3 and on problems such as prolonged grief and/or complicated grief. Many of these resources are provided by and for Aborig inal people, while others have been a partnership process. This awareness and productivity has resulted in many resources, but the majority have not been evaluated for their accessibility and value for Indigenous people.

Important o ther initiatives include reports such as those addressing social and emotional wellbeing from an Aborig inal point of view, reflected in resources such as the recent publication Working together: Aboriginal and Torres Strait Islander mental health and wellbeing principles and practice (Purdie et al. , 20 I 0). This valuable volume includes chapters dealing with a Cultural and Structural Model of Wellbeing and the importance of the need for sensitivity in these issues, including tll!)se relating to men 's and women's ways of doing business and ro les, the different experiences

Grief Matters Summer 2011 67

Page 2: UNIVERSITY OF loss and Grief: Cio ing1 th~o'2 Gap for ...earlytraumagrief.anu.edu.au/files/919785.pdf · 68 Grief Matters Summer 201 1 of communities, including the degree to which

68 Grief Matters Summer 201 1

of communities, including the degree to which there is cultural safety (Roe, 2010), and the importance of community-owned response and engagement to promote community wellbeing (Morgan & Drew, 2010). Such themes are re levant to building community resilience that can be protective for individuals and communit ies in the face of adversity.

There is valuable discussion and a model for dealing with loss, grief and trauma by Wanganeen (20 I 0) which deals with both the historical aspects related to colonial impacts and the multiple contemporary sources related to violence and traumatic premature deaths. She describes a seven-stage heali ng model for loss and grief. This deals with: The Contemporary, present grief reaction; Identifying chi ldhood and adolescent multiple losses and unresolved grief; Ancestral losses; Ancient grieving ceremonies for physical and spiritual expression; Contemporary loss and grieving centres for physical and spiritual expression. These themes provide a valuable model to address the complex and multifaceted loss and grief experienced by indigenous peoples, with a strong cultural sensitivity.

Another program of demonstrated value has been in place for more than a decade, the Marumalli Program, an Aboriginal model of healing. The Circles of Healing program sees "reconnecting with Aboriginal spirituality is a core healing tool to overcome the grief and loss experienced by Aboriginal people" (p. 286). It has a fi ~e-day workshop built on cultural and psychological understandings and addressed healing and recovery for the stolen generations. The aims were to provide and facilitate " reconnections", building the skills of Aboriginal counsellors and others, for healing. This program has been evaluated positively and is a valued example of the extensive development of programs for loss and grief driven by Aboriginal people themselves.

The story of loss and grief is universal. But for Aboriginal people, and for First Nation peoples, everywhere there are a great many additional sources of loss, of grief: loss of personhood, identity, history, country, home, loved ones, love of life. We see the courage with which Aboriginal people have responded to such loss and grief, such trauma and pain, the "fighting spirit", and the spirit of culture and connectedness with which these adversities are addressed. We also see resilience as defined from an Aboriginal perspective (Merritt, 2007). The healing programs they have bu ilt, the research "mapped", the Aboriginal agency for the future, have all contributed to the programs and initiatives developed over the past 13 years and all those involved, as above and many others, are to be congratulated.

However, there is still much more to be achieved. The culture of ritual, the evolving challenges to people, place, children, families, future; the many unresolved problems of violence, chronic disease, premature death, mental illness and the like, continue. The health impacts of grief and loss have been broadly recognised, but the physical and psychological dimensions as they effect physical health and mental wellbeing need much further examination, and stronger research support, if we are to "close the gap" for the future.

As Wanganeen's model identifies, and studies in Western contexts also discuss, grief is looking after the past, and looking to the future. "We know we cannot live in the past but the past lives with us" (Charles Perkins).

Notes 1 Australian Indigenous Health lnfoNet, http://www.healthinfonet.ecu.edu.au

2 LIFE: Living Is For Everyone, http://www.l i vi ngis foreveryone.com.au

3Austral ian Child & Adolescenl Trauma, Loss & Grief Network , The Australian Nationa l University, hIt p :/ /www.ea rl yt raumagrie f. an u.eclu .au

References Aboriginal Counsell ing Services. (2011 ). Let the River Run program. Retrieved from hllp://www. aborigi nalcou nsell ingservices.com.au/ ACS_l rai ni ng.hlln l

Atkinson, J. (2002). Trau111a !mils, recreating song lines: Tire transgenemtional ejfects of trautna in indigenous Australia . Melbourne: Spinifex Press.

Commonwealth of Australia. (2008). Closing tire gap 011 indigenous disadl'{lntage: the c!tal/enge for Australia [electronic re~ource]. Retrieved from hup://www.fa ..:~ .

gov. a u/sa/i nd igenous/pu bs/ genera 1/Documen l s/c losing_ the_gap/defau lt . htm.

Australian Child and Adolescent Trauma, Loss and Grief Network. (20 II ). Almrigitw l & Torres Strait ls/mrder f alllilies & cOIIIIIrunities . Retrieved from http://www.earlytraumagrie f.anu.edu .au/Resources/ resou ree_h u bs/aborigi nal_ts i_i ncl igenous_h u blloss__grief/

Australian Indigenous 1-IealthlnfoNet. Retrieved from h 11 p :1 /www. he a It hi n fonet.ecu.ed u. au/

De Maio.J. A. , Zubriek, S. R .. Silburn, S. R .. Lawrence. D. M. , Mit rou, F. G., Dalby, R. 13. et al. (2005). The Western Australian Aboriginal child !tea/tit SUITer: Measuring the social and emotional wellbeing of Aboriginal clrildren and inte1generational e.fiects of f orced separation . Perth : Curtin University of Technology and Telethon Institute fo r Child Health Research.

Hampshire. W. J. (20 11). DHANCUD£ DUNCHU1TI !3URRAI: Welcomed to Dunghulli land: Tmi'Ords a shared understwrding ofgriefand loss [PhD thesis]. Southern Cross University, Lismore, NSW.

!Iuman Rights and Equal Opportunity Commission. ( 1997). Bringing tlremlrome: National inquirv i111o tire separation ofA borigina/ and Torres S trait /slander children j imn tlreirf amilies . Sydney: Sterling Press.

LI FE: Living Is For Everyone. (20 II ). Indigenous projectsjimded under tire Nationa l Suicide Prevention Strategy. Retrieved from http://www.l i vi ngisforeveryone.com.au/Project Detai Is. aspx ?pfi lte r=eat&cat I D= 135

McGrath , P., Watson, J., Derschow, 13 ., Murphy, S .. & Rayner, R. (2004). Indigenous pa /liatil•e care sen •ice de /il'ely - A /il•ing model. Darwin: UniPrint. Charles Darwin University.

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McGrath, P., Fox-Young. S., & Phillips, E. (2008) . Insights on Aboriginal grief practi ces from the Northern Terri tory, Australia. Australian lou mal of Primary Health , 14. 48- 57 .

McGrath, C. L. (2000). Issues i nnuencing the provision or palliat ive care services to remote aboriginal communi ties in the Northern Territory. Australian lou mal of Rural Health, 8, 47- 5 1.

Merrit t, S. (2007) . An Aboriginal perspective on resilience: Resilience needs to be defined from an Indigenous context. Aboriginal and Islander Health \Vorkerloumal , 3 1, 10- 12.

Morgan. M., & Drew, N. (20 10) . Principled engagement: Gclganyem Youth and Comm uni ty Wellbeing Program. In N. Purdie, P. Dudgeon, & R. Walker (Eels.) . Working together: Aboriginal and Torres Strait Islander memal health and \rei/being principles and practice . Canberra: O ffice of Aboriginnl nnd Torres Strait Islander Health, Department or Ageing.

National A ssociation for Loss & Grief (NSW). (20 I I ). Education and training. Retrieved from ht tp://www.nalng.org.au/education_train.html

Peeters. L. (20 10). The Marumali program: An Aboriginal model of healing. In N. Purdie, P. Dudgeon, & R. Walker (Eels.), \Vorking together: Aboriginal and Torres Strait Islander mental health and wellbeing principles and practice. Canberra: Office of Aboriginal and Torres Strait Islander Health, Department of Ageing.

Purdie. N .. Dudgeon. P .. & Walker. R. (Eels.). (2010). \Vorking together: Aboriginal and Torres Strait /slander mental health and 1rellbeing principles and practice. Canberra: Offi ce of Aboriginal and Torres Strait Islander Health. Department of Ageing.

Roc. J. (2000). Cultural empowerment: Ngarlu - A cultural and spiritual strengtheni ng model. In P. Dudgeon, H. Pickett. & D. Garvey (Eels.), \Vorking u·ith Indigenous Australians: A hwulbook for psychologists (pp. 395 40:2). P~rth , WA: C IRC, Centre for Aboriginal Studies, Curtin University of Technology.

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Grief Matters Summer 2011 69