the parkinson council touching a life every day feb_2015
TRANSCRIPT
TOUCHING A LIFE EVERY DAY…
PARKINSON’S DISEASE
www.theparkinsoncouncil.org
ABO
UT P
ARKINSO
N’S DISEASE
Parkinson's disease was first described in England in 1817 by Dr. James Parkinson. The disease most oSen develops aSer age 50. It is the second most common nervous system disorder of the elderly. SomeXmes Parkinson's disease occurs in younger adults, but is rarely seen in children. It affects both men and women. Parkinson’s disease affects 1.6 million people in the U.S. and, according to the NaXonal InsXtutes of Health, about 50,000 new cases are reported annually. This number will rise dramaXcally with the aging of the “Baby Boomer” generaXon. Symptoms of Parkinson’s disease range from tremors, slowness of movement, rigidity, difficulty walking and poor balance to difficulty in speech and swallowing, depression and memory loss. It is a chronic neurodegeneraXve illness with variable progression over Xme, usually leading to disability and death within 10-‐15 years of diagnosis. Each person diagnosed with Parkinson's will experience symptoms differently. We do not know what causes Parkinson’s disease and, as yet, there is no known cure.
IMPACT
Parkinson’s Disease affects more people than Leukemia, MS, and ALS combined
Disease # US Pa>ents
Leukemia & Lymphoma 900,000
MulXple Sclerosis 400,000
ALS (Lou Gehrig’s Disease) 30,000
Parkinson’s Disease 1.5 million
NATIO
NAL P
ARKINSO
N ORGAN
IZATIONS
Michael J. Fox
FoundaXon NaXonal Parkinson FoundaXon
American Parkinson Disease
AssociaXon Parkinson AcXon Network
NPF Chapters
Davis Phinney, etc.
With several naXonal organizaXons dedicated to research and quality of life issues for Parkinson’s paXents, this oSen leads to inefficiencies. It is also difficult to determine their impact on local communiXes.
Parkinson Disease
FoundaXon
Parkinson Disease
FoundaXon
Na>onal Organiza>ons that Focus on Parkinson’s Research, Services and Educa>on
The Parkinson Council
THE PARKINSON COUNCIL
www.theparkinsoncouncil.org
WHO W
E ARE About The Parkinson Council
The Parkinson Council is the premier local organizaXon dedicated to improving the quality of life for paXents, care-‐partners, and their families impacted by Parkinson’s disease. We invest in research, educaXon and programs provided by world-‐renowned insXtuXons, and innovaXve service organizaXons in the greater Philadelphia area. We strengthen our role in the Parkinson’s community by increasing the number of lives we touch every year.
Our Mission
The mission of The Parkinson Council is to raise funds to provide financial support and grants to locally based nonprofits dedicated to improving the quality of life for Parkinson’s disease paXents, care-‐partners and families.
The Parkinson Council raises funds to provide resources and services to people with Parkinson’s disease living within the Delaware Valley region.
Our Values and Vision
www.theparkinsoncouncil.org [email protected]
OUR P
EOPLE
Board of Directors
The Council recognizes that an important aspect of our work is culXvaXon of community advocates and leaders. Our volunteer Board consists of experts in law, healthcare, research, nonprofit management and business development. With our volunteers and staff, The Council is able to grant financial resources to local providers of high quality services and resources to people with Parkinson’s and their families in the region.
Execu>ve CommiMee
Jo-‐Ann Zoll, President Carol Leiper, Ph.D., Vice President
Vito A. Cosmo, Jr., Treasurer Ryan Haaz, Esq., Secretary Jeffrey Keefer, At-‐Large
Erika Aaron Geraldine Aaron
Jan Albert Stephanie Lim Capello
Dan Forman Donald Garfinkel Judi Guinan
David J. Gutowski, Esq.
Arlene Halpern Herb Hopkins
Lorraine Iacovim, Ph.D. Jim Kay
George C. Pilallis William Quinlan
Suzanne Reichwein Kristen Young
Wendy R. Lewis, ExecuXve Director Rebecca J. Elias, Development Officer
www.theparkinsoncouncil.org [email protected]
WHERE O
UR DO
LLARS COME FRO
M
*Contribu>ons to The Parkinson Council: 2011 -‐2013
*Includes special events, memorials, honorariums
SPRING SWING: Our 5nd annual Spring Swing cocktail party will be held on April 22, 2015 at the Pyramid Club to raise awareness and funds in celebraXon of Parkinson’s Disease Awareness Month in April. GOLF: Since 1999, The Parkinson Council has presented the Golf Classic tournament at highly renowned golf courses throughout the Philadelphia region such as Saucon Valley, Philadelphia Cricket Club , and Philmont. In the event’s history, the golf ouXng has raised over $4 million to benefit local research and services associated with Parkinson’s disease. In 2015, we return to Philadelphia Cricket Club on June 15. PARKINSON’S NIGHT AT CITIZEN’S BANK PARK: 2015 will be our 10th year parXcipaXng in the Phillies Phunraising Program, where a percentage of Xckets sold supports the mission of The Council. We are proud of this partnership with our local ball club. WALK: For 13 years, walkers of all ages joined together during our annual Stamp Out Parkinson’s Walk, the biggest grassroots event in the Delaware Valley region devoted to raise awareness about Parkinson’s disease. To date, our walk has raised more than $1.9 million to support Parkinson’s paXents and their families. In 2015, the Walk will be held on October 10th. #GIVINGTUESDAY: #GivingTuesday is a call to acXon (globally and locally) that encourages personal philanthropy through bigger, beter and smarter charitable giving during the holiday season. As a returning #GivingTuesday partner, The Parkinson Council is expanding movement classes in our region for people with Parkinson’s and their care-‐partners. In 2015, our goal is to increase the visibility of our
work, strengthen our partnerships, and diversify our funding base.
Our Events in 2015
www.theparkinsoncouncil.org [email protected]
Year
2012 $877,202
2013 $793,905
2011 $622,867
OUR W
ORK AN
D PRIO
RITIES IN 2015 Funding Priori>es: 2015 Grants by Ins>tu>on: 2010-‐2015
From 2013 through 2015: Ø Grow its financial resources and expand our donor base; Ø Strengthen our board with specialized experXse that will enhance our reach in the region and our leadership depth; Ø Touch more lives within underserved populaXons; Ø Expand our programming to support the Parkinson’s community more directly; and Ø Build awareness of the disease and The Council’s brand as the principal resource to address the disease in the region.
Highlight of Our Work in 2015 Summary of Strategic Goals and Priori>es
Invested in: Ø Improved access to physical therapy, social supports and educaXon for Parkinson’s paXents, including tradiXonally underserved populaXons, and their families. Ø Mobility equipment to help Parkinson's paXents with financial hardships stay mobile and engaged. Ø InnovaXve research to advance treatment therapies for Parkinson’s paXents. Ø Integrated approach to services, including expansion of home visits to paXents with transportaXon and mobility challenges. Ø Dance, yoga and Pilates classes in Philadelphia, Montgomery and Chester counXes. www.theparkinsoncouncil.org
Penn, $1,092,388
CNDR, $128,000
GS/PP*, $60,077
Jefferson, $653,500
MAPS, $23,000
Moss Rehab, $56,564
Arcadia, $40,000
Bryn Mawr, $1,000
Philadelphia Museum of
Art, $15,000
UofD, $50,000
PaXent and Caregiver Services -‐
$135,000 41%
Clinical and ScienXfic Research – 95,000
29%
Outreach and EducaXon -‐ $96,000
30%
The Council is commited to increasing its support for People with Parkinson’s by invesXng in local insXtuXons and nonprofits.
JOIN U
S Our Priori>es: 2015
The Parkinson Council seeks to be the leader in invesXng funding resources for PD paXents, care-‐partners, researchers and educators in the Delaware Valley Region.
Your support ensures that local Parkinson’s paXents, their families and care-‐partners have the needed resources and tools to promote a high quality of life and excepXonal care. Your support makes it possible for local research insXtuXons to conXnue their efforts to find the cause of and a cure for Parkinson’s disease. Your support is criXcal in helping us fulfill our vision of “touching a life every day.”
Fundraising
Messaging & Outreach
Programs & Services
Grants & Support
Our Goal
What Your Support Will Do
www.theparkinsoncouncil.org [email protected]