tektic workshop program final
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TEKTIC WORKSHOP 2009
A T E K
T I C I n v i t a
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FOREWORD
This workshop was brought to you by the partnership o the ollowing institutions:
ICT 4 HPE Illustration by Nelson Shen
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Dear Participant:
On behal o the Technology Enabled K nowledgeTranslationInvestigativeCentre( EK IC) research team, we would like to welcome you to our invitational orum
Using In ormation and Communication Technologies or Healthy Patient Engagement.
We would like to also recognize our appreciation or the Michael Smith Foundation who has supported EK IC through their In rastructure Program since 2006. Tisongoing support has given our research team the opportunity to conduct innovativeeHealth research in the areas o eLearning and evidence based policy translation.More importantly, EK IC has enabled our group carry out various knowledgeexchange activities and share ideas, all o which supports the continuous co-creation
o many exciting research initiatives. Te theme o todays workshop is an important and timely one to explore,and we appreciate your interest in joining us in this dialogue. We look orward to interacting with you not only today at the orum, but also in the uture in an e ort to continue optimizing health care and outcomes throughactive patient engagement, excellence in health service delivery, and acceleration o translated research evidenceinto routine care all enabled by the ongoing advances in in ormation and communication technologies.
Sincerely,
Kendall Ho,MD FRCPCExecutive Director, EK IC
Associate Pro essor, Emergency MedicineFaculty o MedicineUniversity o British Columbia
el:+1.604.875.4111 ext 69153Fax: +1.604.875.5083e-mail: [email protected]
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Preamble:Ms. Mary Martin, Councillor, Surrey City Council
Since her election to Surrey City Council in 2005, Councillor Mary Martin has worked
hard to bring Surreys diverse community together. Councillor Martin is dedicatedto ensuring the adequate and proper care o City residents, and has used her 20 yearso experience in the medical eld to lead highly success ul undraising campaigns orhospital oundations.
Councillor Martins involvement in community work began while raising her three children. She has served asCo-Chair o the rst PAC at Brookside Elementary in Newton, as Chair o the Parish Education CommitteeBoard at Cloverdale Catholic School, and as Secretary and reasurer o Kids Help Phone, which she helpedlaunch in South Surrey/White Rock.
Councillor Martin is currently an appointed member o the ollowing City o Surrey committees: Finance,Public Sa ety, Parks and Community Services Committee (Chair), Multicultural Advisory Committee(Deputy Chair), Mayors Committee on Health Care (Chair), Mayor's Committee on Arts and Culture, andMayor's Committee Crime Reduction Working Group.
In addition, Councillor Martin has been appointed to the ollowing community organizations: SemiahmooHouse Society (Board Member), City Liaison o Surrey Memorial Hospital Foundation, Representative o the Fraser Health/Municipal Government Advisory Council, Peace Arch Hospital Foundation - City Liaison,and Honorary Board Member o the Surrey Hospice Society
Councillor Martin serves as an Alternate on the Metro Vancouver Board o Directors.
As a Surrey resident or the past 18 years, Councillor Martin, her husband ony and amily eel blessed to livein such a beauti ul, dynamic city and believe that community service is the key to building any great city.
Councillor Martin is a member o the Surrey First Coalition.
GUEST SPEAKERS
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Speaker #1Dr. Antoine Geissbuhler,
Professor and Chairman, Deparment of Radiology and Medical Informatics,Geneva University Hospitals
Antoine Geissbuhler is a Pro essor o Medical In ormatics, Chairman o the Department
o Radiology and Medical In ormatics at Geneva University, Director o the Division o Medical In ormatics at Geneva University Hospitals, and President o the Health-On-the-NetFoundation. He is also President-elect o the International Medical In ormatics Associationand member o the HIMSS Europe Governing Council.
A Philips European Young Scientist rst award laureate, he graduated rom Geneva University School o Medicine in 1991 and received his doctorate or work on tri-dimensional reconstruction o positronemission tomography images. He then specialized in internal medicine under the direction o Pro . Francis Waldvogel.
A ter a post-doctoral ellowship in medical in ormatics at the University o Pittsburgh and Vanderbilt University, hebecame associate pro essor o biomedical in ormatics and vice-chairman o the Division o Biomedical In ormaticsat Vanderbilt University Medical Center, under the mentorship o Pro . Randolph Miller and Pro . William Stead,
working primarily on the development o clinical in ormation systems and knowledge-management tools. In 1999,he returned to Geneva to head the Medical In ormatics Service in Geneva University Hospitals and School o Medicine, ollowing in the steps o Pro . Jean-Raoul Scherrer who ounded this world-renowned group. In 2005,his e orts in developing telemedicine and tele-education were recognized by the creation o the UNESCO chairor telemedicine and multidisciplinary teaching.
Author o more than 100 original scienti c publications in peer-reviewed scienti c journals, his current researchocuses on the development o innovative, knowledge-enabled in ormation systems and computer-based tools orimproving the quality, sa ety and e ciency o care processes, at the local level o the hospital, the regional levelo a community healthcare in ormatics network, and at the global level with the Health-On-the-Net Foundation(http://www.hon.ch) and with the development o a south-south telemedicine network in A rica (http://ra t.hcuge.ch). He is the President-elect o the International Medical In ormatics Association and is one o the editors o theInternational Journal o Medical In ormatics and o the IMIA Yearbook o Medical In ormatics.
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Speaker #2Dr. Cameron NormanAssistant Professor,Department of Public Health Science, University of TorontoDirector of Evaluation, Peter A. Silverman Global eHealth Program
Cameron Norman is an Assistant Pro essor in the Department o Public Health Sciences atthe University o oronto, Director o Evaluation with the Peter A. Silverman Global eHealthProgram, and the principal investigator o Youth Voices Research, the youth engagementunit o the Centre or Health Promotion.
Te ocus o his research is on understanding how people work together across boundaries to solve health problemsand how in ormation technologies can aid learning and collaboration across time, physical space, social status, and
culture to improve health and wellbeing. His research places emphasis on engaging youth and young adults in healthpromotion; exploration o the necessary skills and organizational supports required or the public and pro essionalsalike to ully participate in health decisions using in ormation technology (eHealth); and how electronic socialnetworks connect people -pro essionals and patients alike - and ideas together to translate knowledge into improved
wellbeing or all.
Dr Norman holds undergraduate and Masters degrees in psychology, a PhD in public health sciences rom theUniversity o oronto and completed a post-doctoral ellowship in Systems Tinking and Knowledge ranslation jointly at the University o British Columbia in Vancouver and the Centre or Global eHealth Innovation inoronto.
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Speaker #3Dr. Gerri Sinclair
CEO and Executive Director of Digital Media Program,Centre for Digital Media
Gerri Sinclair is currently the Executive Director o the Masters o Digital Media Program,
as well as the CEO o the Centre or Digital Media, a collaborative partnership betweenthe University o B.C., Simon Fraser University, Emily Carr Institute o Art + Design, andthe B.C. Institute o echnology. Most recently she was the Chair o the Canadian FederalGovernments elecom Policy Review Panel, advising the Federal Government on the uturepolicy and regulatory environment required to support an advanced telecommunicationsramework. She was also the General Manager o MSN Canada and a senior member o the Microso t executiveteam, as well as the ounder and CEO o NCompass Labs, an Internet content management company acquiredby Microso t in 2001. A ormer visiting scientist at IBM Research, Dr. Sinclair was also the president o theBritish Columbia Government Premiers echnology Council, and the ounding director o the ExCI E lab atSimon Fraser University, the rst multimedia educational technology centre in Canada. She has served on severalgovernment and corporate boards including elus Corporation and BC elecom, and is currently a director o theoronto Stock Exchange, Ballard Power, and the Canadian Social Sciences and Humanities Research Council.
She is the recipient o the YWCA Woman o Distinction award, the Canadian Women in Communications Woman o the Year award, the Canadian Women in New Media Pioneer award, the Infuential Woman in Business
award, the Sarah Kirke award or the most outstanding Canadian woman in High ech, the 2005 CanadianConsumer Choice Award or Business Woman o the Year, and most recently the 2008 Canadian Public Policy Forum estimonial Award. She holds a Ph.D. in Renaissance drama as well as an honorary Doctor o Science inComputer Science rom the University o British Columbia.
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Speaker #4TELUSRepresentative from Telus Health Solutions, Telus
ELUS Health Solutions backed by Emergis, have a simple promise: to help lead thechange in Canadian healthcare through innovative and proven in ormation communicationtechnology (IC ). We have years o expertise in success ully implementing healthcareapplications and IC processes through our industry leading consulting services orcustomers across Canada and around the world. Our solutions are backed by over 1,000team members, including clinicians.
We power hospital-to-home technology solutions that are shi ting healthcares ocus rom remediation toprevention. Our robust wireless and wireline networks and data centres span the country. We acilitate
collaboration between caregivers through secure, timely and reliable data transmission, including electronichealth records or ve million Canadians.
We can connect health pro essionals with patient records at the point o care, so that practitioners o every description can instantly access everything they need to know about the patient theyre treating or betterdecision making and improved outcomes.
By optimizing the e ciency o caregivers with our pharmacy solutions, were helping pharmacists across Canadabetter manage every aspect o their operations, including, most critically, access to essential drug and medicalin ormation. In doing so, we add capacity and capability to the Canadian healthcare system.
We provide leading claims management solutions or private group insurers and public government payers. With strategic initiatives like our multi-bene t claims management solution, we continue to invest in areasthat increase the value o our o erings to existing insurance company customers and help them to attract new ones.
In January 2008, ELUS demonstrated its strategic commitment to healthcare with the acquisition o Emergis.By coming together and taking a uni ed brand approach, as ELUS Health Solutions, we are able to marry the highly e ective complementary expertise o both teams. At ELUS Health Solutions, we help you usein ormation or li e.
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COMMENTS FROM DR. SCOTT
EK IC is amiliar with the need or involvement o individuals and communities indecision-making processes, and several EK IC members already research or actively practice various aspects o public engagement. Mid-morning we will have an opportunity to learn rom several EK IC researchers and their colleagues. Michal Fedeles willexplain how actually involving patients early in the process o IC implementation,
helping them understand how IC s are or could be used, can be empowering andlead to the public becoming advocates or appropriate technology use. Sandra Jarvis-Selinger will describe research that is helping to understand the respect ul processes andactive participation needed to introduce Community Learning Centres into Aboriginaland First Nations communities to promote community health, and to then assesstheir impact. Tis session will close with Kendall Ho Helen Novak Lauscher showcasing how EK IC wasable to contribute to an extension o an existing study (iCON Chinese On-Line Health Network) throughactively engaging the local Chinese community in the design o a personal health record portal, while learningimportant lessons about the value and generalisability o this approach.
We will conclude the workshop with a acilitated discussion. Te workshop used the term healthy engage-ment as a deliberate double entendre we wish to engage the public around healthy related issues, and tohave a positive outcome we need the engagement itsel to be healthy. While we can and are learningrom other settings, we need a collective understanding of answers to who, why, what, where, when .and how . o do this, the tables will be turned. Questions will be asked o the audience to tease out the an-swers. Your participation in the workshop begins to answer who, and the experts will have explained why.But what do we wish to achieve, where are we headed, when do we need to get there, and most impor-tantly how are we going to do this? So many questions come to mind. Do we need or want to engage every-one, or do we need to ocus on aging baby-boomers or perhaps Generation Y? (Generation Y, the largestgeneration since the boomers, are growing rapidly; by 2014 - just 5 years rom now - there will be nearly 63MGeneration Y employees in the work orce, while the number o baby boomers will drop to less than 48M).
And when we embark on healthy engagement with the public - just how much do we tell? ( oo little and we are considered patronising or to be hiding something; but too much and we are likely to con use; stagedengagement may sound tempting, but that becomes complex and costly.) empting though such questionsare, we will ocus instead on creating a roadmap to guide our journey to healthy public engagement, seekingto identi y key signs to guide, roadblocks to avoid, and perhaps opportunities to travel paths less trod!
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TEKTIC Project #1:Engaging Patientsand the Community:(e)Literacy for
Better HealthPresenters:Dr. Michal Fedeles &Katherine Wisener
In ormation and communicationtechnologies (IC ) play a crucialrole in acilitating quality health
care, education, and research.Te rst two phases o thisproject are comprised o : (1) aneeds assessment with the publicto understand their technicalliteracy around health; (2) threeinteractive sessions providing
participants with resources andtraining on how to search orhealth in ormation online. Phasethree builds upon the modeldeveloped rom the rst twophases and extends its reach to
Aboriginal communities. It will
ocus on applying the interactivesessions to community-basedhealth pro essionals, non-healthpro essionals and research leads,
who can then build capacity intheir communities by making
in ormation available tocommunity members. We hopethat these sessions will enhancethe publics digital literacy inboth urban and rural settings,ultimately contributing to healthand well-being.
TEKTIC Project #2:Community Learning
Centres (CLC)Presenter:Dr. Sandra Jarvis-Selinger
Te Ktunaxa Community Learning Centres (KCLC)project is a three year CIHR unded initiative that evaluatesthe design and implementationo our Community LearningCentres (CLC) in BritishColumbias Ktunaxa Nation.Each CLC was created toprovide community membersand community healthpro essionals with culturally relevant health in ormation andresources. Community-basedresearch and technical personnelcurrently support day-to-day operations, create and connect
with health resources, andcollect/analyze outcome andprocess data at each learningcentre. Funding rom EK IChas enabled CLC to expand tonew Aboriginal communitiesand has also allowed researchersto host other community engagement events such as theKCLC Music Workshop.
TEKTIC Project #3:Public Engagement
with MulticulturalCommunities viaMultimedia ChannelsPresenters:Dr. Kendall Ho &Dr. Helen Novak Lauscher
Intercultural Online HealthNetwork (iCON) is acommunity-engaged project,ocused on health educationin multicultural communitiesin Greater Vancouver. Teaim o the iCON project isto improve the knowledge,attitude and skills within BCsChinese- and Punjabi-speaking
PATIENT ENGAGEMENT PROJECTS
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population to optimize sel -care in the management andprevention o chronic diseasesthrough an innovative andinteractive patient healthin ormatics solution. Tisinitiative is conducted througha multi-stage and multi-channelengagement strategy via publicorums and interactive websites.Trough these channels,culturally relevant, linguistically appropriate patient-centrededucational materials are co-developed with community andare disseminated to patients.Trough support rom EK IC,additional investigation intointegrating technologies intohealthcare rom a patient
perspective have beenconducted. Tese technologiesinclude personal health recordsand Web 2.0 applications.
About our Presenters:Dr. Michal Fedeles is theDirector o Continuing HealthEducation and Adjunct Pro essor
o Health Sciences at SimonFraser University. He also servesas acilitator and trainer with theUBC Centre or eaching and
Academic Growth and aseducational consultant (SixInteractions).
Katherine Wisener is aResearcher with the eHealthStrategy O ce within theFaculty o Medicine at UBC.Her research interests includeprogram evaluation, community-based research, childhooddevelopment, and technology.
Dr. Sandra Jarvis-Selinger isthe Associate Director o Education at the eHealth
Strategy O ce and an AssistantPro essor in the Department o Surgery with the Faculty o Medicine at UBC. In 2008,Sandra was the recipient o theMichael Smith Foundation o Health Research Career
Investigator Award. She is alsothe nominated principalinvestigator o a CanadianInstitutes o Health Researchthree-year grant to explore thedevelopment and
implementation o a researchproject entitled Community Learning Centres: A Model o Community Engagement inHealth, Education andraining.
Dr. Kendall Ho is the ExecutiveDirector o the EK IC. He isalso the ounding Director o theeHealth Strategy O ce withinthe Faculty o Medicine at UBCand a practicing emergency medicine specialist at VancouverGeneral Hospital.
Dr. Helen Novak Lauscher isthe Assistant Director o Research in the eHealth Strategy O ce within the Faculty o
Medicine at University o BritishColumbia. Her work at theeHealth Strategy O ce involvesleading an interdisciplinary research team working onprojects in the areas o technology-enabled knowledge
translation in health pro essionalpractice and education,participatory community-basedhealth research, and programevaluation.
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ABOUT US
Te echnology EnabledKnowledge ranslationInvestigative Centre ( EK IC)is a collaborative groupsupported by the ResearchUnit In rastructure Awardgranted by the Michael SmithFoundation or Health Research(MSFHR) in 2006. Membersinclude researchers, clinicians,academics, decision makers,in ormation technology specialists and trainees romvarious institutions andorganizations. EK IC began
with 16 original members rom5 di erent institutions. Teteam has now grown to include
over 25 members representing8 di erent organizations
EK IC seeks to understand,explore and innovate on how IC s used within a healthcare
setting known as eHealth can be used most e ectively,and accelerate the translationo health research evidence intoroutine health care practiceand implementation into thehealth system. Trough ongoing exploration in ve key research theme areas (humantechnology inter ace; technology demonstration, researchsynchronization, evidence basedpolicy translation; and capacity building), EK IC will beable to assist in providing bestpractices or sustainability o the integration o technologiesin health care contexts andbuilding caring relationships.
MEMBERSEK ICs members representa diversity o perspectives andpro essional training. Eachindividual brings expertise andexperience that a ords the unita strong human in rastructure
to be success ul in its activities.
MISSION AND VISIONTe mission o EK IC isto understand, explore, andinnovate on how in ormation
and communicationtechnologies (IC ) can beused e ectively to acceleratethe translation o healthresearch evidence intoroutine practice and healthsystem implementation.
OBJECTIVES ANDRESEARCH FOCUSTrough ongoing researchgrounded in ve key objectives,EK IC explores the potentialo technology-enabledsolutions or health systems,education, and knowledgetranslation. Te oundingobjectives o EK IC are:
Objective 1: Human-technology inter ace - usability and datavisualization -to examine theinter ace between humansand technological tools tooptimize IC integrationin healthcare contexts.
Objective 2: Technology demonstration- to design,develop, and evaluatein ormation technologiesintended to enhanceclinical practice.
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Objective 3: Researchsynchronization or efective knowledge disseminationand change management - tounderstand and coordinatee orts towards e ective systems-
based knowledge translation.
Objective 4: eHealth evidence based policy translation - toassist health policy makers inincorporating eHealth evidenceinto policy innovation.
Objective 5: Capacity building - to nurture existing and emergingresearchers interested in theexploration o IC in promotingknowledge translation.
Currently there are 34 projects within EK ICs researchport olio. Each individualresearcher project cuts across veresearch objectives di erently.Sub-themes that have emerged inEK ICs work include: publicengagement, Aboriginal health,health literacy, interpro essionaleducation and practice,electronic communities o practice, innovations in medicalschool curriculum, pro essionaldevelopment, and global health.
KNOWLEDGETRANSLATION ANDDISSEMINATION
ACTIVITIESEK IC has a responsibility topromote knowledge exchangebetween ellow academicresearchers, health pro essionals,policy- and decision makers, andthe public. Knowledge sharingand dissemination o researchactivities within EK IC occurat both a project and unit level.
Research project disseminationactivities include public orums,eCommunities o Practice and
websites. Unit disseminationactivities include the EK ICElluminate Sessions* and TeICr* - our monthly online
knowledge sharing series andour monthly eMagazine.
FUTURE DIRECTIONSEK IC has achieved early success in the emerging andrapidly evolving eld o technology-enabled knowledgetranslation. We have taken
advantage o opportunities orinterdisciplinary collaboration
which has solidi ed the processand enriched the outcomes. Weare determined to build on thissuccess and continue to generatesigni cant contributions to BCs
health research by designing,evaluating, and advocatingground breaking technology-enabled solutions or achievingexcellence in our health system.
* External partners are welcome to jointhe Elluminate sessions and subscribe to
the TICr. For more in ormation please visit www.TEKTIC.caor email Jenni er Cordeiro at jenni [email protected] .
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TEKTIC MEMBERSFounding MembersKendall Ho,TEKTIC Executive DirectorDirector, eHealth Strategy O ce, UBC
Assistant Pro essor, Division o Emergency Medicine, Vancouver General Hospital
Lesley Bainbridge,Director, Interpro essional Education,Faculty o Medicine, UBC
Michal Fedeles,
Director, Continuing Health Education,Simon Fraser University
Sandra Jarvis-Selinger, Assistant Pro essor, Department o Surgery, UBC Associate Director o Education, eHealth Strategy O ce, UBC
Harry Karlinsky,Clinical Pro essor and Medical Director,BC Physician Integration Programs,Continuing Pro essional Development, UBCCoordinator o Medical Education and Pro essionalDevelopment, Richmond Mental Health Services
Andre Kushniruk, Associate Pro essor and Director,School o Health In ormation Science at theUniversity o Victoria
Francis Lau, Associate Pro essor and Graduate Advisor,School o Health In ormation Science,University o Victoria
Malcolm Maclure,
Adjunct Pro essor,School o Health In ormation Science,University o VictoriaManager o Research,Pharmaceutical Services Division,B.C. Ministry o Health
Raymond Ng, Pro essor, Department o Computer Science, UBC
Anne Nguyen,Director, Evaluation Drug Use Optimization,Pharmaceutical Services Division,BC Ministry o Health
Helen NovakLauscher,
Assistant Director o Research,eHealth Strategy O ce, UBC
Richard Scott, Associate Pro essor,Global eHealth Research and raining Program,Centre or Innovation in Health echnology,University o Calgary
Robert Woollard,Pro essor, Department o Family Practice, UBC
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TEKTIC Workshop AgendaUsing Information and Communication Technologies for Healthy Public Engagement Thursday September 10th, 2009
Time* Activity 7:45-8:15 Registration and Break ast
8:15-8:20 Opening Remarks:Dr. Kendall Ho and Dr. Alison Buchan, UBC Faculty of Medicine
8:20-8:30 Achieving Optimal Public Engagement in Health - The Health Consumer Perspective:Ms. Mary Martin, City of Surrey Counsil
8:30-10:00 Panel Session #1: Engaging Health Consumers and Patients: Whats happening today(Facilitated by Dr. Kendall Ho)
8:30-8:45 Speaker #1 Dr. Antoine Geissbuhler Health on the Net (via WebEx)
8:45-9:00 Speaker #2 Dr. Cameron Norman Using the Internet for Health Promotion in Youth(via WebEx)
9:00-9:15 Speaker #3 Dr. Gerri Sinclair Digital Media and Public Engagement: Opportunities in Health Applications(via WebEx)
9:15-9:30 Speaker #4 Telus New Health Applications on the Horizon
9:30-10:00 Question and Answer Period 10:00 - 10:15 Break
10:15 - 11:00 Panel Session #2: TEKTIC Patient Engagement Projects(Facilitated by Dr. Richard Scott)
10:15-10:30 TEKTIC Project #1 Dr. Michal Fedeles & Ms. Katherine Wisener Engaging Patients and the Community: (e)Literacy for Better Health
10:30-10:45 TEKTIC Project #2 Dr. Sandra Jarvis Selinger Community Learning Centres
10:45-11:00 TEKTIC Project #3 Dr. Kendall Ho & Dr. Helen Novak Lauscher Public Engagement with Multicultural Communities via Multimedia Centres
11:00 - 11:45 Facilitated Discussion:Patient Engagement and Collaboration(Facilitated by Dr. Richard Scott)
11:45 - 12:15 Summary and Closing Remarks:Dr. Kendall Ho
12:15 - 1:15 Lunch and Networking
Illustrations and Layout by Nelson Shen