technology for people with cognitive disabilities: the promise, pitfalls… · 2014-03-26 · the...
TRANSCRIPT
Technology for People with Cognitive Disabilities:
the Promise, Pitfalls, & Push for
Rodney Bell, Principal ASSET Consulting
Innovative Technologies Summit Mar 2014
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Your Take-Aways
Lots of tech for people with I/DD
Big wave of tech challenges us
All can learn to ride tech wave
People with I/DD have a right to technology
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Tech is Here for People with I/DD
Smart Mobiles
Assistive Apps
ResidentialSupports
Point-of-Care
Web
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… and Changing Everything
ProvidersOrganization
PracticeOperations
Consumer LivesIndependence
SocializationWork & Play
GovernanceWaivers
ReimbursementEthics
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The Promise and Pitfall
Abandonment
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When Technology Doesn't Work
That'll fix ya !
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Techies get a comeuppance
Heavenor Hell?
marketer
salesman
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… with a peek at Heaven & Hell
HellHeaven
"Hell looks fun, we'll go there "
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Looks Can Be Deceiving
Where's the
Party?SALES DEMO !
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Provider IT no longer optional
I/DD, Client Mgmt, EMR …
Web services, Cloud, BYOD
Individual planningPerson-centered Outcome-oriented Cost-based
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Provider IT no longer optional
I/DD, Client Mgmt, EMR …
Web services, Cloud, BYOD
Individual planningPerson-centered Outcome-oriented Cost-based
Cost to develop ready technology
Not commercial OH waiver pilot
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Point-of-Care IT Cuts Errors, Time
Web services, Cloud IT
Medication administration
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Point-of-Care IT Cuts Errors, Time
Web services, Cloud IT
Medication administration
BYOD, Malware configure, firewall, …
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Web – also for people w I/DD
SimpleInterfaces
Entertainment
Communication
Skype
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Web – also for people w I/DD
Simpler Interface
Accessible PC
Email, Browsing
Social Media
Entertainment
Communication
Skype
no Internet What?
Get it
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Let's Get Social
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Let's Get Social
Fred Hobbs, Imagine!Colorado"Using Social Media ... Regardless of ... Disability"
Online harm coach
supervise
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Independence with Residential Support
Remote Monitoring, Supervision, Communication
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Independence with Residential Support
Changes! prepare pilotmanage
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EliteCare
Imagine
Advanced Smart Homes Do It All
Sense Activity
Track People
Control Building
Calls, Alerts
Complete IT
Family Portal
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EliteCare
Imagine
Advanced Smart Homes Do It All
Sense Activity
Track People
Control Building
Calls, Alerts
Complete IT
Family Portal
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Mobiles/Apps Assist Wherever
Communication
Task Prompts
Plan, Remind
WayFinding
Health Monitor
LifeLog
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Mobiles/Apps Assist Wherever
Communication
Task Prompts
Plan, Remind
WayFinding
Health Monitor
LifeLog
Not curated reviews
try outstart cheap
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Plan Your Day; Talk With Others
Plan, remind activity
Augmentative Communication
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Plan Your Day; Talk With Others
Plan, remind activity
Augmentative Communication
Usable? train, coach
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Help for Daily Activities
Pick your task
for Step-by-step
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Help for Daily Activities
Pick your task
for Step-by-step
Task-specific prioritize
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Desktop & Web Help at Home
Plan & Prompt
Simple Desktop
Communicate
Manage Health
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Desktop & Web Help at Home
Plan & Prompt
Simple Desktop
Communicate
Manage Health
PC Admin tech supportiPad
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Mobiles Show the Way
DirectionPrompts
ReportLocation,
Status
Locate,Inform
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Mobiles Show the Way
DirectionPrompts
ReportLocation,
Status
Locate,Inform
No one to help phone call
Theft GPS finds
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Do a Job with Work Supports
Task prompts Monitor & prompt
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Do a Job with Work Supports
Task prompts Monitor & prompt
Task-specific justify
R&D pilot
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Tech is for Families too
Residential
Info Portals
Alerts/reports
Web
Social Media
Video Calls
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Tech is for Families too
Residential
Info Portals
Alerts/reports
Web
Social Media
Video Calls
Rare ask for it
Usable? simpler app
coach
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Coming Soon to Prime-time
Augmented Reality
Indoor WayFinder
Location Services
Wearables
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WEARABLES
Fitness
Activity, position,
Context, location
Health
Medical devices
Physiological
Safety
Falling
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Someday R&D Will Reach Us
Brain Prosthesis
Autism
Robots
Virtual Reality
Personal Robots
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Technology Futures
Virtual realitySocial gaming
Simple web browsingComputer games
At home,day activities
Recreation
Multi-person track’gPredict risks
Monitor & alertStaff checksSafety
Wearable monitors Predict declines
Med Admin supportMonitor, Tele-health
Nurse checksHealth
‘Translations’iPhone/iPad appsAACCommunication
Automatedat Point-of-CarePaper records Documentation
Track plan careBig Data
Field use, “Cloud”Costing
Office useEnterprise IT
Urban SystemsFactory coach
Way-findersPersonal coach
SupervisedWork, community
Connected LifeLogsocial media, video callPhone, in-personSocial Life
Adaptive promptsApps plan/remind ...Staff promptsCognition
Robot, smart camera Smart Homes +Staff, call buttonHome (ADLs)
FutureEmergingTraditional
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Really ?
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To Keep Pace with Technology …
“It takes all the running you can do, to keep in the same place. … to get somewhere else, you must run at least twice as fast”
Through the Looking Glass Lewis Carroll
Elenore Abbott
RedQueenEffect
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Big Wave of New Technology
seandavey.com
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Internet users
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Mobile phone use
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Devices Connected to Internet
World Economic Forum
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Connected Wearables
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Healthcare Devices
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Machine to Machine Connections
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Technology is Fast Improving
Personal Devices
Connectivity
The Cloud
Automation
Tracking
Software & Data
User Interfaces
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What's Driving Tech Change
-> Exponential increases in computing
Economics and miniaturization
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Moore's Law: Doubling rates
Transistors per chip – 18 months
World Data Storage – 12 monthsTransmission bandwidth – 9 months
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Leads to other improvement
Cost, power, size halved every 18 months
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Enabled by $10B Fab Plants
Intel Ronler Acres, Oregon - expanding
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and 450 mm wafers
with 14 nanometer process
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Makes Tech Affordable for All
$10 Smart phone?
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with Astounding Potential
Time magazine
Computers >> Brain … Singularity
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Unbalanced Pace of Change
>>>
>>
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Why Tech Adoption Takes Time
Stakeholders
Time
Complexity -Interface …
Pitfalls
Manage the project, coordinate stakeholders
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Tech Doesn't Just Happen … Yet
Manage Tech Adoption to Get Benefits
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Best Practices for Tech Adoption
Tech is strategic
Integrate w/ facility & practice
Manage risks
Smart process
Prepare for change
Support & Improve
USER CENTEREDUSER CENTERED
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Technology Hype vs. Maturity
Gartner Hype Cycle – 2013
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Hype Cycle for Disability Tech
Web
Social media
Remote monitor
BCI
Office IT
AugmentedReality
IndoorWayfind
UrbanNavigate
Pt-of-Care IT
PersonalRobots
TherapyRobots
Cognitive Assist
SmartHome
Wearables
Predictive Models
WorkSupport
Daily AssistTherapy VR
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Where will you board the tech wave?
Know your risk aversion, tech competence
Techsavvy
Risk adverse
Adaptive
Resilient
Early Adopter
Typical
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Can You Ride the Tech Wave ?
ANCOR Links, NADSP Frontline Initiative
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Overwhelmed by the Leading Edge?
Don't try a wave too big for you
surfertoday.com
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Had a bad experience with Tech?
Work your way up to big waves
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Wonder what to avoid?
… rides that won’t make it
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Concerned About Tech Risks?
Avoid danger in the waves
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Does Your Project Seem Too Big?
Teamwork can drive a big boat
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Tech too much to do alone?
Get a little help from your friends
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Not Sure How To Do Tech ?
Learn from other riders …
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Trouble Managing Tech Adoption?
Right size your projects
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Is Your Tech Too Weak ?
Get a more powerful board
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Wonder where to start?
Find an easy wave
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Consumers Struggling with Tech?
Beginners can use help
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Tech Too Hard for Some People?
The Right Size Wave is Fun
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Has Tech Left Someone Behind?
Some waves everyone can ride
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Overtaken by Trailing Edge of Tech?Andy Johnson-Laird, Wescon, 1979
Don't be left out. Start paddling !
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Soon You'll be an Expert Surfer
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New Tech Challenges Governance
Reimbursement ?
Internet/web ?!
iPad v AAC
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New Tech Challenges Governance
Reimbursement ?
Internet/web ?!
iPad v AAC
general PC DME
many apps comm
$ $$$
cool disabled
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New Tech Challenges Governance
Reimbursement ?
DSP labor v Remote monitor
$$$ $Invasive PrivateGroup home Apartment
Waiver RM services
Share savings with providers
CMS receptive
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Make Tech > 2% of Reimbursement
UIC Study of HCBS waivers
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New Tech Challenges Governance
Tech Monetization ?
thru 3rd party beneficiaries
e.g., Social Impact Bonds
Regs/policy inhibit change
Revisit ethics
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Tech Enables More Autonomy
PrivacyGroup Living
Independent LivingStaff Keeps Safe
Community InclusionCare Settings
FriendsCare-givers
Right of AssociationControl Contacts
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Want Good Help for Change?
Next Conference: October 9, 2014
Coleman Institute
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State of the States Informs Policy
Fiscal Effort by Disability - US
per $1000 of aggregate personal income
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State of the States Informs Policy
Fiscal Effort by Disability - NC
per $1000 of aggregate personal income
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State of the States Informs Policy
I/DD Fiscal Effort Trend - NC
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State of the States Informs Policy
I/DD Fiscal Effort Trend - US
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State of the States Informs Policy
Candidates for Remote Monitoring ?
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State of the States Informs Policy
Candidates for Remote Monitoring ?
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The Push for Equal Rights
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Why Push for Equal Rights ?
28 million
Entitled to inclusion
Tech inaccessible
But necessary
Funding access
Benefits society
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The Push for Equal Rights
150+ organizations endorsed :
AAIDD, The Arc, ANCOR, SABE, SLN, …
Colorado legislature resolution
Dr. Braddock's article
"The Rights of People With Cognitive Disabilities to Technology and Information Access"
AAIDD Inclusion 1:2, p.95
Copies of Declaration & Article here
Endorse @ www.colemaninstitute.org
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References
Strategies for Equal Technology Access, Bell
HCBS Waivers: a nationwide study , Rizzolo et al
ANCOR LINKS, Bell“Top Ten Guidelines for Adopting New Technology“Riding the Technology Waves” “Making Technological Investments" p16
Presentations, BellEmerging Technology, ARRM Tech Showcase, 2012Smart Homes, Coleman Institute Conference 2008