survey results - welfare benefits
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Action for M.E. and the Association of Young
People with M.E.
Survey 2008
Part 6Welfare Benefits and
Social Support
Part 6: Welfare Benefits and Social Support
Question 37. If you receive care from someone to help you with daily activities, what is their
relationship to you?
Family member (1673)
Friend (214)
Social services (115)
Private (paid) carer (170)
0 500 1,000 1,500 2,000
Part 6: Welfare Benefits and Social Support
Question 38. If your main or primary carer is a family member, how old are they?
0 - 11 years (4)12 - 17 years (14)18 - 25 years (65)36 - 65 years (1266)66 - 80 years (239)Over 80 years (73)26 - 35 years (43)
Part 6: Welfare Benefits and Social Support
Question 39. Has anyone in your immediate family been diagnosed with M.E.?
No (2125)Yes (403)
Part 6: Welfare Benefits and Social Support
Question 40. Are you currently on any of the following welfare benefits?
Incapacity Benefit
Severe Disablement Allowance
Income support
Disability Living Allowance
0 440 880 1,320 1,760 2,200
Yes No
Welfare Benefits : By Country
CountryIncapacity Benefit
Severe Disablement Allowance
Income Support
Disability Living
Allowance
Survey Responses
England 862 (41.05%) 77 (3.67%) 235 (11.19%) 778 (37.05%) 2100
Northern Ireland
13 (54.17%) 1 (4.17%) 1 (4.17%) 5 (20.83%) 24
Scotland 57 (43.18%) 4 (3.03%) 19 (14.39%) 52 (39.39%) 132
Wales 36 (41.38%) 3 (3.45%) 13 (14.94%) 37 (42.53%) 87
Total 968 (41.31%) 85 (3.63%) 268 (11.44%) 872 (37.22%) 2343
Welfare Benefits : NHS RegionsNHS Region Incapacity Benefit Severe Disablement
AllowanceIncome Support Disability Living
AllowanceSurvey Responses
East Midlands 85 (43.15%) 8 (4.06%) 17 (8.63%) 80 (40.61%) 197
East of England 114 (35.96%) 10 (3.15%) 36 (11.36%) 113 (35.65%) 317
Guerney (and Sark) 0 (0.00%) 0 (0.00%) 1 (50.00%) 1 (50.00%) 2
Isle of Man 0 (0.00%) 0 (0.00%) 0 (0.00%) 0 (0.00%) 1
Jersey 2 (33.33%) 0 (0.00%) 1 (16.67%) 0 (0.00%) 6
London 83 (43.23%) 8 (4.17%) 21 (10.94%) 63 (32.81%) 192
North East 29 (58.00%) 1 (2.00%) 5 (10.00%) 17 (34.00%) 50
North West 90 42.65%) 9 (4.27%) 23 (10.90%) 81 (38.39%) 211
South Central 70 (37.84%) 3 (1.62%) 16 (8.65%) 65 (35.14%) 185
South East Coast 89 (39.56%) 6 (2.67%) 28 (12.44%) 81 (36.00%) 225
South West 155 (38.08%) 22 (5.41%) 53 (13.02%) 162 (39.80%) 407
West Midlands 71 (43.56%) 4 (2.45%) 22 (13.50%) 57 (34.97%) 163
Yorkshire and the Humber
74 (51.39%) 6 (4.17%) 12 (8.33%) 58 (40.28%) 144
Total 862 (41.05%) 77 (3.67%) 235 (11.19%) 778 (37.05%) 2100
Welfare Benefits : NHS Regions
NHS Region Incapacity BenefitSevere Disablement
Allowance Income SupportDisability Living
Allowance Survey Responses
Ayrshire & Arran 3 0 0 0 5
Borders 0 1 1 1 1
Dumfries & Galloway 4 0 2 4 8
Fife 0 0 1 5 10
Forth Valley 6 0 2 5 11
Grampian 10 1 1 5 18
Greater Glasgow & Clyde 8 1 6 7 18
Highland 4 0 1 5 12
Lanarkshire 2 0 0 2 8
Lothian 7 0 4 8 22
Tayside 7 1 1 9 14
Western Isles 2 0 0 1 5
Total 57 4 19 52 132
Welfare Benefits : NHS RegionsNHS Region Incapacity Benefit Severe Disablement
AllowanceIncome Support Disability Living
AllowanceSurvey Responses
Anglesey 0 0 0 1 5
Bridgend 1 0 0 1 2
Caerphilly 0 0 0 0 1
Cardiff 2 1 3 4 9
Carmarthenshire 4 0 2 1 5
Ceredigion 3 1 1 3 6
Conwy 4 0 0 3 7
Denbigshire 1 0 0 1 3
Flintshire 2 0 0 1 4
Gwynedd 3 0 1 2 7
Monmouthsire 2 0 1 3 5
Neath Port Talbot 3 1 2 3 5
Newport 1 0 0 2 5
Pembrokeshire 1 0 0 1 1
Powys 5 0 2 4 7Rhondda Cynon Taff 0 0 0 0 2
Swansea 1 0 1 3 6
Torfaen 0 0 0 1 1
Vale of Glamorgan 3 0 0 2 5
Wrexham 0 0 0 1 1
Total 36 3 13 37 87
Part 6: Welfare Benefits and Social Support
Question 41. If yes, have you had to go to appeal / to a tribunal to get this benefits over the last three
years?
Incapacity Benefit
Severe Disablement Allowance
Income support
Disability Living Allowance
0 500 1,000 1,500
Yes No
Appeal/Tribunal : By Country
CountryIncapacity Benefit
Severe Disablement Allowance
Income Support
Disability Living
Allowance
Survey Responses
England 133 (6.33%) 10 (0.48%) 19 (0.90%) 277 (13.19%) 2100
Northern Ireland
2 (8.33%) 0 (0.00%) 0 (0.00%) 4 (16.67%) 24
Scotland 7 (5.30%) 1 (0.76%) 1 (0.76%) 25 (18.94%) 132
Wales 3 (3.45%) 0 (0.00%) 0 (0.00%) 14 (16.09%) 87
Total 145 (6.19%) 11 (0.47%) 22 (0.94%) 320 (13.66%) 2343
Part 6: Welfare Benefits and Social Support
Question 42. If yes, did you win your appeal?
Incapacity Benefit
Severe Disablement Allowance
Income support
Disability Living Allowance
0 100 200 300 400
Yes No
Won Appeal : NHS Regions
Incapacity Benefit Disability Living Allowance
Country NHS Region Went to appeal Won appeal Went to appeal Won appeal
England
East Midlands 15 10 (66.66%) 21 16 (76.19%)
East of England 15 9 (60.00%) 34 21 (61.76%)
London 10 6 (60.00%) 24 19 (79.17%)
North East 5 5 (100.00%) 9 6 (66.67%)
North West 17 11 (64.71%) 31 21 (67.74%)
South Central 11 11 (100.00%) 27 19 (70.37%)
South East Coast 18 16 (88.89%) 20 18 (90.00%)
South West 22 19 (86.36%) 67 54 (80.60%)
West Midlands 15 15 (100.00%) 19 13 (68.42%)
Yorkshire and the Humber
5 5 (100.00%) 25 18 (72.00%)
Total for all countries 145 119 (82.07%) 320 236 (73.75%)
Won Appeal : NHS Regions
Incapacity Benefit Disability Living Allowance
Country NHS Region Went to appeal Won appeal Went to appeal Won appeal
Northern Ireland
Eastern Health Board 0 0 2 1
Northern Health Board 2 2 1 0
Southern Health Board 0 0 1 1
Scotland
Ayrshire & Arran 0 0 1 0
Borders 0 0 1 1
Dumfries & Galloway 1 1 1 1
Fife 1 1 3 2
Forth Valley 1 1 0 0
Grampian 1 1 2 2
Greater Glasgow & Clyde 3 3 6 3
Highland 0 0 1 1
Lothian 0 0 6 4
Tayside 0 0 4 2
Total for all countries 145 119 (82.07%) 320 236 (73.75%)
Won Appeal : NHS Regions
Incapacity Benefit Disability Living Allowance
Country NHS Region Went to appeal Won appeal Went to appeal Won appeal
Wales
Anglesey 0 0 1 1
Bridgend 0 0 1 1
Cardiff 1 0 1 1
Carmarthenshire 1 1 0 0
Ceredigion 0 0 2 1
Conwy 0 1 (?) 0 0
Gwynedd 1 1 0 1 (?)
Monmouthshire 0 0 2 1
Neath Port Talbot 0 0 2 2
Newport 0 0 1 1
Swansea 0 0 1 2 (?)
Torfaen 0 0 1 1
Vale of Glamorgan 0 0 2 1
Total for all countries 145 119 (82.07%) 320 236 (73.75%)
Part 6: Welfare Benefits and Social Support
Question 43. Do you use a wheelchair?
Yes (627)No (1945)
Part 6: Welfare Benefits and Social Support
Question 44. If yes, has your wheelchair been prescribed for you?
Yes (336)No (565)
Comments and Queries
You can send any comments, queries or questions about this survey to :-
E-mail : [email protected]
Action for M.E. Website : www.afme.org.ukAYME Website : www.ayme.org.uk
Thank You !!
Thank you for watching this presentation.
Thanks also go to the many people who participated in this survey.