State of California

Gray DavisGovernor

Grantland Johnson, SecretaryHealth and Human Services Agency

Cliff Allenby, DirectorDepartment of Developmental Services

A Consumer’s Guide to The Lanterman Act was producedby the USC University Affiliated Program for the Departmentof Developmental Services. This guide is not a legaldocument, and is not intended to be a substitute for theLanterman Developmental Disabilities Services Act. Thecontents of this guide do not necessarily reflect theopinions of the Department of Developmental Services.

For additional copies or for more information,please write to:

Department of Developmental ServicesOffice of Human Rights and Advocacy Services1600 Ninth Street, Room 240, MS 2-15Sacramento, CA 95814

Telephone (916) 654-1897FAX (916) 654-2167TTY (916) 654-2054

A complete version of the Lanterman DevelopmentalDisabilities Services Act, and other information about DDSprograms, services and videotapes, is available online atthe DDS Internet Home Page: www.dds.ca.gov

© Copyright June 2001 Department of Developmental Services. All Rights Reserved.

1

Table of Contents

1 What Is The Lanterman Act? .........................7

2 Your Rights ...................................................10

3 The Regional Center.....................................21

4 Services and Supports..................................26

5 The IPP – How To Get Services ....................28

6 Disagreements with the Regional Center .....34

7 Giving Your Opinion (Advocacy) .................37

Acknowledgments .......................................42

Resources and References ...........................49

Introduction

I What Is This Book About? ............................ 3

II Who Is This Book For?................................... 4

III How To Read This Book ................................ 6

Chapters

2

I am IMPORTANTI KNOW what I want

I will WORK HARD to get what I want

I am RESPONSIBLE for the choices I makeAdapted from a pledge of the Santa Barbara Council for Self-Advocacy

This is part of a pledge from a self-advocacy group.A self-advocacy group is a group of people withdisabilities who get together to help each otherfigure out ways to live the lives they want. Thispledge helps people speak up and do the things thatare important in their lives. SPEAKING UP is veryimportant to make the Lanterman Act work for you.

3

This book is about the Lanterman DevelopmentalDisabilities Services Act (people also call it theLanterman Act, for short) which was passed in 1969.This is the California law that says people withdevelopmental disabilities and their families have aright to get the services and supports they need tolive like people who don’t have disabilities.

This book will help you:

• Learn about what the Lanterman Actpromises you

• Be a partner withthe regional centerand other serviceproviders when youmake choices aboutyour life

• Get ideas about how to get the services andsupports you need

There are many words that lots of people don’t like,like the word “mental retardation.” Labels like thisdon’t tell others about the person. We use this wordand other labels in this book because those are thewords written in the law. Labels are used to getservices.

IWHAT IS THIS BOOK ABOUT?

4

This book was written for ADULTS withdevelopmental disabilities who get services andsupports from regional centers. In this book, theword “you” means an adult with a developmentaldisability. Parents, service coordinators, serviceproviders, and other people may also read this book.

To make sure this book has informationYOU should know...

We met with groups of consumers in Los Angeles,San Diego, and Contra Costa to ask them what theythought consumers would want to know about theLanterman Act. The names of these groups are inthe back of the book.

IIWHO IS THIS BOOK FOR?

✔

5

✔

✔

To make sure YOU can understand thisbook...

We asked consumers to help us write and readdrafts of this book. Their names are in the back ofthe book.

To make sure what YOU are reading iscorrect and will help you....

We asked self-advocacy leaders and people whosupport consumers to read all the drafts of thisbook. These people were members of the StatewideAdvisory Group for the Project. Their names are alsoin the back of the book.

6

The most important informationi n in the book is in the box that says

“The Lanterman Act says”

When you read a “Tip” it is anidea that consumers like YOU,came up with. You will not find“Tips” in the Lanterman Act,but they will help you use theinformation you just read.

“Important Words” are inorange. When you see a wordwritten like this, it is animportant word for you tolearn and use.

LantermanThe

saysAct

IIIHOW TO READ THIS BOOK

Importantwords

in color

7

The Lanterman Act is a California law that promisesservices and supports to people with developmentaldisabilities and their families. Because it is a law,people who help you with services and supportsmust do what the Lanterman Act says.

The Lanterman Act tells you:

• What your rights are

• How the regional centers and service providerscan help you

• What services and supports you can get

• How to use the Individualized Program Plan (IPP)to get the services you need

• What to do when someone says you can’tget what you need

• How you can make the system better

What is the Lanterman Act?1you have a right to services andsupports to help you live themost independent and productivelife possible.

LantermanThe

saysAct

8

A developmental disability is something that:

• You get before you are 18 years old

• Lasts all your life

• Makes it hard for you to do things, like walking,speaking, taking care of yourself, or working

• Is called cerebral palsy, mental retardation,autism, epilepsy, or anything that makes you needthe same kind of support that someone withmental retardation needs

The regional center may test you to see if you areeligible.

that you must have a developmentaldisability to get services from theregional center.

If you have a developmental disability, you canget regional center services no matter how oldyou are.

If the regional center says you cannot haveregional center services, there are things youcan do, called the “fair hearing” process. This istalked about in Chapter 6.

1.

2.

Tip

LantermanThe

saysAct

9

The Lanterman Act talks a lot about YOU as animportant and valuable person. It talks about howYOU should make choices and decisions aboutYOUR LIFE. It tells regional centers and serviceproviders how to help and support YOU to meetyour goals.

The law says that you have the right to makechoices about:

• Where to live

• Where to go to school

• Where to work

• How you want to belong to yourcommunity

• Whom to live with and haverelationships with

• What services and supports youwant and need

LantermanThe

saysActthat you have a right to makechoices about your life and makedecisions about what servicesand supports you want and need.

10

For a long time, people with disabilities were nottreated like other people. The Lanterman Act paysspecial attention to your rights.

Rights are things the law says you have.

2Your Rights UnderThe Lanterman Act

LantermanThe

saysActyou have the same rights asany other person.

11

When you depend on other people for some things,sometimes they can treat you like you don’t knowwhat you’re doing. The Lanterman Act says thatpeople should treat you with dignity. When peopletreat you with dignity, they respect you, they treatyou as if you are a valuable and important person.

Humane care is what most people get without askingfor it. It means:

• Having a safe and comfortable place to live

• Having enough food to eat

• Living in a community with people who care about you

you have a right to dignity andhumane care.

LantermanThe

saysAct

If you feel you live in a place that is not safe,are not getting enough to eat, or you are notbeing treated with dignity, tell someone. Tell afriend, a relative, talk to your servicecoordinator, clients’ rights advocate, orsomeone at your area board.

Tip

12

Privacy is deciding for yourself what you want toshare and whom you want to share it with.

A “right to privacy” means:

• You do NOT have to share what ispersonal

• You do NOT have to tell privatethoughts to anyone

• You do NOT have to share yourprivate things

• You have a right to be alone orwith a friend

you have a right to privacy.LantermanThe

saysAct

If people aren’t respecting your privacy, tellsomeone. Tell a friend, a relative, your servicecoordinator, your clients’ rights advocate, orsomeone at your area board.

Tip

13

For a long time, people used to think that if youhad a disability, you couldn’t learn anything. So,people with disabilities didn’t go to school orcollege.

The Lanterman Act says you have the right to go toschool or college like people without disabilities.Other state and federal laws say this too.

If you are under 22 years old, the public schoolsmust provide you with a free education that is rightfor you. Once you are over 22 years old, you can getmore education if you want it.

you have a right to participatein an appropriate program ofpublic education.

LantermanThe

saysAct

14

Staying as healthy as possible is important foreveryone. You may need others to help you getmedical help. If you need help getting goodmedical care, the Lanterman Act says you have aright to services and supports to help you:

• Find a good doctor

• Get to the doctor or hospital

• Sign up for MediCal

• Make sure you and the people who help you athome know when you should see the doctor, goto the hospital, or call 911

LantermanThe

saysActyou have a right to promptmedical care and treatment.

15

Many people belong to a religious community. Thiscan mean some people going to a church, temple,mosque, or a meeting place, to be with people whobelieve the same things and worship the same way.

Just like people withoutdisabilities, the LantermanAct says you have the rightto believe what you wantabout religion or faith. Youhave the right to practiceyour religion the way youchoose.

Other people CANNOT:

• Tell you what to believe

• Punish you for what youbelieve

• Stop you from becoming a member of or

practicing a religion ofyour choice

you have a right to religiousfreedom and practice.

LantermanThe

saysAct

16

Many people like to have friends includingboyfriends and girlfriends. Many people like to goout in the community.

The Lanterman Act says that YOU have a right to:

• Choose the people you spend time with

• Spend time with people you like and who like you

• Choose where you want to go in your free time

• Go to places where you canwork, do business, buy things,help other people, learnthings, meet and be withother people

LantermanThe

saysActyou have a right to socialinteraction and participation incommunity activities.

If you need help making friends, havingrelationships, getting a job, or being part ofyour community, talk to your service coordinator.

Tip

17

Exercise is how you keep your body strong andhealthy. Walking, biking, running, swimming, goingto the gym are types of physical exercise.

Recreational activities are things that you do torelax and have fun. Riding horses, playing music,biking, and swimming are examples of recreationalactivities.

LantermanThe

saysActyou have a right to physicalexercise and recreation.

If you need help getting exercise or doingthings for fun or relaxation, talk to yourservice coordinator.

Tip

18

You may know someone who has been locked up, ortold not to leave their room or house, or even tied totheir bed or wheelchair. You also may knowsomeone who has been hit, pushed, burned, or madeafraid by what people tell them. You might knowsomeone who was given lots of medication to makethem quiet or sleep all the time. You also mightknow someone with a disability who wasn’t helpedto eat, go to the bathroom, or stay clean. This isWrong!

The Lanterman Act says you have a right to be safeand treated with dignity. No one can:

• Scare you, tie you down, or hurt you

• Stop you from talking or goingsomewhere important

• Refuse to help you when you need it

• Give you a medicine you don’t need

If you feel you are being hurt in any way, tellsomeone. Tell a friend, a relative, your servicecoordinator, your clients’ rights advocate, orsomeone at your area board.

Tip

you have a right to befree from harm.

LantermanThe

saysAct

19

Doctors and other professionsals sometimes dothings to help figure out why you are havingproblems and to help you. These are called“procedures.” Some procedures may hurt, but theyare necessary. Procedures are supposed to help you;not change who you are.

Procedures which hurt you unnecessarily orharm other parts of your body or your mindare called “hazardous procedures.” Anexample of a hazardous procedure is usingelectric shock to get you to change yourbehavior.

The Lanterman Act says you have a right to REFUSEhazardous procedures. People cannot do things toyou that harm you:

• NOT in a hospital

• NOT where you live

• NOT where you work

• NOT in a program

If you are having procedures which scare you,tell someone. Tell a friend, a relative, your servicecoordinator, your clients’ rights advocate, orsomeone at your area board.

Tip

NO!

LantermanThe

saysActyou have a right to be free fromhazardous procedures.

20

you have a right to get servicesand supports in the leastrestrictive environment.

Least restrictive environment means you have aright to get your services and supports in placesclose to your home community, including placeswhere people without disabilities get services andsupports, if that is appropriate.

This means your services and supports should benear your home, with people from your community.

LantermanThe

saysAct

If you want your services to be closer toyour community, tell someone. Tell a friend,a relative, your service coordinator, yourclients’ rights advocate, or someone at yourarea board.

When needed, regional centers should getservices started closer to your community ifthere aren’t any you can use. This is talkedabout in Chapter 3.

1.

2.

Tip

21

3The Regional Center

People who wrote the Lanterman Act set uporganizations called REGIONAL CENTERS to helppeople with developmental disabilities (people likeYOU) get the help they need. The Lanterman Act hasthe rules about how the regional centers can help you.

The law says regional centers must:

• Give you information you can understand to makegood choices about the services you want

• Help you find and get the services you need

• Make sure the services and supports in yourcommunity can meet your needs

Remember, it’s YOUR life. The regional center isthere to help you get the life you want. Learnhow to speak up for yourself. Join a self-advocacy group or get self-advocacy training.

Tip

LantermanThe

saysActthe regional center is the place to goto get the services and supports youneed to live, work, learn, and havefun in your community.

22

To make sure you get the help you need, the regionalcenter gives you a service coordinator. Your servicecoordinator will:

• Help you get ready for your Individual ProgramPlan (IPP) meeting

• Help you get the services and supports in your IPP

• Help you if you are having problems

The service coordinator is usually someone who worksfor the regional center. But your service coordinatorcan also be:

• A family member

• A friend

• Even YOU

Your service coordinator has an important job.Make sure this person listens to you.

If you are not satisfied with your servicecoordinator, the law says you can ask for adifferent one.

Tip

LantermanThe

saysActthe regional center will help youfind and get the services andsupports you need and want.

1.

2.

23

What does “cost-effectiveness” mean?

The law says regional centersand other agencies must workhard to find services whichmeet your needs for the leastamount of money. Thissometimes means regionalcenters will find other agenciesto provide services to you.

Regional Centers do not always have to pay foryour services, but regional centers must find andget you services that meet your needs. Chapter 4talks about this more.

LantermanThe

saysActeach regional center will getservices and supports for you thatare “cost-effective.”

If you feel your needs are not being met, talk toyour service coordinator.

If you talk to your service coordinator and youare still not satisfied, talk to your clients’ rightsadvocate.

Tip

1.

2.

24

About Communication:

To make good choices and decisions about yourIndividual Program Plan (IPP), you must getinformation and tell people what you want. Thereare many different ways to do this.

• Some people use signs or communication tools

• Some people point to what they want or nod “yes” and “no”

• Some people use a facilitator or an interpreter

LantermanThe

saysActthat the regional center must giveyou information that you canunderstand.

25

An interpreter is someone who speaks yourlanguage and English.

A facilitator is someone who helps you read things,explains things to you, and helps you decide whatyou want.

If you do not speak with words, the law says thatregional center staff and your service providersmust find out from you what you want and need.

If you need help with communication andspeaking up:

• Have someone you trust (like a friend, familymember, or service provider) go to your IPPmeeting with you and explain what you want

• Ask for an interpreter or facilitator to helpyou communicate at your IPP

• Ask for some extra meetings to find outwhat you need to know and to explain whatyou want

• Bring this book with you and point to the tipthat you want

Tip

26

4Services and SupportsThe Lanterman Act says your services and supportsshould help you:

• Be independent

• Be productive

• Be a member of your community

• Live in places where you are safe, healthy, and knowwhat to expect

You should have a say in the services and supportyou get. If people don’t listen to you, tell someone.Tell a friend, a relative, your service coordinator,your clients’ rights advocate, or someone at yourarea board.

Tip

27

1. Write the services and supports you need in your Individual Program Plan (IPP), with the

help of your IPP team.

2. It’s OK to ask for things you need that aren’t on this list.

Here are some of the services and supports theregional center can help you find and get.

Your Services and Supports

Community LifeLiving Services

Do you havechildren?

Do you need tolearn more about

taking care ofthem?

Do you havequestionsabout sex?

Do you need helpwith your

relationships?

Do you wantto work?

Do you need helpgetting a job?

Sexuality WorkingParent

Training

What Do You Want? What Do You Need?

Do you needthings that can

help youbecome moreindependent?

Do you needto learn more

about your rightsto speak up for

yourself?

Do youneed a plan in

case you have anemergency?

AdaptiveEquipment

AdvocacyTraining

CrisisServices

Tip

Do you like where you live?

Do you need help in your home?

Do you need a roommate?

Does your home need to be fixed,so you can be more independent?

Do you want to do more things inyour community?

Do you want to have more fun?

Do you want to make new friends?

Do you need help getting places?

28

The regional center must help you develop anIndividual Program Plan (IPP). Your IPP is anagreement between you and the regional center.Your IPP is very important because it lists yourgoals and the services and supports that theregional center will help you get.

Your needs and choices are important to yourIPP team.

The Law says the regional center must followcertain rules when writing your IPP.

the IPP is an agreement between youand the regional center that lists theservices and supports you need.

LantermanThe

saysAct

5The IPP–How You GetServices & Support

29

Your IPP Team/Who is on it?

• You are the most important member

• People who know you and care about you

• Someone from the regional center who canpromise to get you the services you want and need

that your IPP must be written byan IPP team. YOU can invitepeople who know and supportyou to be on your team.

LantermanThe

saysAct

Invite people who know you well and careabout you to be on your IPP team. Invite peoplewho listen to you.Tip

30

Your regional center cannot change what is inyour IPP without having a meeting with you.That is the law.If you need an interpreter or a facilitator (ahelper), the regional center has to get this foryou.If you have trouble writing or get nervous andforget things at your meeting, you can havesomeone help you make a tape recording of thethings you want and bring the tape to play atyour meeting. (from Your IPP, It’s Not Just APiece of Paper)

1.

2.Tip

Your IPP Meeting/What Happens There?

• The time to “talk” with your team about whatyou want and need

• You meet at a time and place that you choose,including your home

• Important decisions about your life are made here

• A very important meeting—be prepared

• A very important meeting—don’t miss it!

You should have an IPP meeting at least every threeyears. If things change in your life, you can ask yourservice coordinator to set one up sooner.

3.

31

Your regional center coordinator will write up whatyour IPP team agreed on at your IPP meeting.

Your IPP should be written so you understand it.If it’s not, ask your service coordinator tore-write it.Tip

• Lists your goals

• Lists the services and supports theregional center will get for you

• Based on what you need

• Based on what you want

• A very important piece of paper

Your IPP: What Do You Want? What Do You Need?

Do you needthings that can

help you becomemore

independent?

Do you needto learn more

about your rightsto speak up for

yourself?

Do youneed a plan in

case you have anemergency.

AdaptiveEquipment

AdvocacyTraining

CrisisServices

32

Signing your IPP:

Your services cannot start untilyou and the regional centeragree on what is in your IPP.When you sign your IPP, youare saying that you agree withwhat is in your IPP.

If you don’t agree witheverything that is in your IPP,you don’t have to sign it. BUT,you can agree to part of it.Write down what you agreewith and what you don’t agreewith. Once you do this, theservices you and the regionalcenter agreed on can start.

Make sure you get a copy of your IPP. Theregional center can send copies of your IPP topeople who came to your meeting, if you wantthem to have a copy.

Go over your IPP with people who care aboutyou. Make sure it has what you wanted in it.

If it’s in your IPP, the regional center must get theservices or supports for you.

Tip

1.

2.

3.

33

After your IPP MeetingIt is your service coordinator’s job to find and getthe services and supports written on your IPP. Youcan call another meeting if:

• You don’t get the serviceswritten on your IPP

• You don’t like theservices you get

• Your needs change

You and your service coordinator will bepartners in making sure that the goals andobjectives in your IPP happen. Get to know yourservice coordinator. If your service coordinatoris not helping you make your IPP happen, thelaw says you can ask for another servicecoordinator.

See the back of this book for the names ofsome very good guides to the IPP meeting thathave more information about the IPP.

1.

2.

Tip

34

There will be times when you don’t agree with theregional center’s decision. When this happens, theLanterman Act gives you steps you can take so youand the regional center can try to solve the problem.

Like most laws, you have to follow certain stepscarefully, and the law gives you a certain number ofdays for you and the regional center to come upwith a better plan.

REMEMBER, if you do not agree with a regionalcenter decision, you must tell them IN WRITING.

6Disagreements withthe Regional Center

LantermanThe

saysActyou have the right to ask questionsand talk about the decisions theregional center makes aboutyou and your life.

If you have trouble writing, the regional centermust help you write your complaint.Tip

35

MediationYou can meet with amediator who talks toyou and the regionalcenter and tries to helpthe two of you agree.

Fair HearingYou can have a hearing withpeople from the regionalcenter and a judge.The judge makes the finaldecision.

Disagreements withthe Regional CenterIf you do not agree with something the regionalcenter does, there are 3 things you can do to comeup with a new plan.

MeetingMeet with the regionalcenter director or thedirector’s representative totry to solve the problem.

36

The law says you have the right to make choicesabout your life and to get the services and supportsyou need to be a member of your community.

When you don’t agree with a decision that willaffect your life, speak up.

If you need help deciding what to do, talk to afriend, a relative, your service coordinator, yourclients’ rights advocate, or someone at your areaboard.

Tip

Remember

37

7Giving Your Opinion(Advocacy)

LantermanThe

saysActthat people with developmentaldisabilities must have a say in theway the service system works.

There are many ways you can have a say in how theservice system works. Here are a few ways:

The people who are in charge of the regionalcenters are called the Board of Directors. TheLanterman Act says that half of the regional centerBoard of Directors must be adults withdevelopmental disabilities (consumers) and parentsof children with developmental disabilities. The lawsays there should be as many consumers as thereare parents on the Board of Directors.

All regional center board members are volunteerswho want to make sure the regional center does agood job helping people with developmentaldisabilities. You can apply to become a boardmember.

If you want to become a regional centerboard member, ask your service coordinatorhow to apply.Tip

Become A Member of the RegionalCenter Board of Directors

38

Tip

If you are on a board or committee and youneed training or support, ask for it.

If you need your board materials in special printor in a special form, ask for it.

If you need more time to read and understandyour board materials, ask to have yourmaterials two weeks in advance.

If you need facilitation, ask for it.

1.

2.

3.

4.

Being a board member is a big responsibility. Tomake sure you participate in board meetings, thelaw says that regional centers must provide you withtraining and support as a board member. Trainingmight mean learning how to read budgets, orlearning about new laws and what it means for you.

Support might mean getting yourmaterials in BIG PRINT, havingsomeone go over the materialwith you before the meeting(facilitation), and having someoneat the meeting with you to helpyou with board decisions andbusiness.

LantermanThe

saysActthe regional center must providetraining and support to help boardmembers participate in boardmeetings.

39

Join a committee or board for other agenciesin the developmental services system

There are other agencies that write plans, watchthe regional centers and other service systems,provide services, and/or help consumers speak up,that have boards or committees that you mightjoin, like the State Council on DevelopmentalDisabilities, the Area Boards, Protection andAdvocacy, and many regional center vendors.You can apply to become a member.

If you want to become a committee or boardmember of another agency, ask your servicecoordinator how to apply. Write it in your IPPto get support to do this.

Tip

40

Most organizations have public meetings thatanyone can attend. You can go to these meetings andspeak up about things that are important to you.

If you want to get better at public speaking,write it in your IPP.Tip

Give your Opinion at Public Meetings

41

There is a lot in the Lanterman Act and we couldn’tput all of it in this book. If you want moreinformation, you can:

• Ask someone to help you find out what you wantto know

• Look at the books on the inside back cover

• Get a copy of the Lanterman Act from your AreaBoard, Regional Center, Protection and Advocacy,or DDS.

42

Statewide Advisory Board

Bill Allen, Allen Shea AssociatesRobert Balderama, Self-Advocacy Council VIStephen Day, Tri-Counties Regional Center, VenturaMelody Goodman, Developmental Disabilities Board

Area XDena Hernandez, Developmental Disabilities Board

Area VIMichael Long, Department of Developmental ServicesLeroy Moore, Disability Advocates of Minority

Organizations (DAMO), San FranciscoMarinda Reed, Partners in Advocacy Consulting,

SacramentoCarol J. Risley, Organization of Area BoardsSharon Savery Gould, Association of Regional Center

AgenciesRalph Skoner/Karim Alipourfard, State Council on

Developmental DisabilitiesMonica Villafana and Daniel Juarez, Protection and

Advocacy, Inc.

Acknowledgments

43

Contributing Writers

Martin Gottenbos, Jenny Szedny, Kim Horton, IlanitHarounsheily and Jopie Smith (facilitator), Jay NolanCommunity Services

Ann Robitaille, Mike Wilson, Howard Widick, PaulaScarborough, Julio Castillo (facilitator), InlandRegional Center Consumer Advisory Committee

Jackie Carter, Chrystal Shuck, Dave Rowe, Mike Albro,Wayne Hallene and Valerie Pulver (facilitator),People First/Arc Rex Industries

Consulting Self-Advocacy Groups andConsumer Reviewers

Capitol People First, SacramentoConsumer Advisory Committee, Department of

Developmental ServicesDenny’s Self-Advocacy, Culver CityPeople First Groups of Eldridge at Sonoma

Developmental CenterPeople First of CorningSelf-Advocacy Board of Los Angeles CountyJim Ditter, Los AngelesBeth Fleming, Los AngelesJohn Jacobs, Los AngelesConnie Martinez, SacramentoHeidi Root, People First of California, SacramentoKecia Weller, Los AngelesBob Williams, Los Angeles

44

Project Director

Barbara Wheeler, Ph.D., University of SouthernCalifornia University Affiliated Program

Consultants

Sherry Beamer, Sherry Beamer & AssociatesKate Warren, Family Resource Network of Oakland

Project Manager

Paul Verke, Department of Developmental Services

Special thanks to Partners in Advocacy Consulting,Protection and Advocacy, Inc., the Santa BarbaraCouncil for Self Advocacy and Martin Trutt forgiving permission to reproduce content from someof their publications.

45

Photography

A special thanks to all those providing photos forthis project.

Kathy Harmon, The Achievable Foundation,Culver CityCover photographs of peoplePages 9,10,11,16,17, 20, 24

Sharon Savery Gould, ARCA, SacramentoPages 2,16

Kathy Turgeon, People First/Arc Rex Industries,San DiegoPage 4

Barbara Wheeler, Ph. D. University of SouthernCaliforniaPages 9, 12, 13, 14, 15,17, 20, 24, 26, 29, 30, 31, 32,33, 35, 36, 37, 40

Jim West Photography, SacramentoCapitol photograph on cover

Production and Layout

Phillips Design, Sacramento

46

Notes

47

Notes

48

Notes

Resources & ReferencesI.P.P. Books“More than a Meeting; A Pocket Guide to the Person-Centered Individual Program Plan,“ 2000, CaliforniaDepartment of Developmental Services, (916) 654-1956.

“Your I.P.P. - It’s Not Just a Piece of Paper”, Protectionand Advocacy, Inc., (800) 776-5746.

Services“Supported Employment”, 2000, Protection andAdvocacy, Inc., (800) 776-5746.

“Supported Living”, 2000, Protection and Advocacy,Inc., (800) 776-5746.

“Finding a Place to Live, A Guide to Community LivingOptions for Adults with Developmental Disabilities andTheir Families,” 2000, Area Board X, Glendale, CA (818)543-4631.

Self-Advocacy“Your Rights,” 2000, Protection and Advocacy, Inc.,Sacramento, CA (800) 776-5746.

“Beginning Steps to Self Advocacy” video trainingpackage, 1996, USC University Affiliated Program, LosAngeles, CA (323) 669-2300. (All regional centers havea copy)

People First of Washington self-advocacy materials,Clarkston, WA (800) 758-1123.

Choice and Decision MakingA Guide to Training in Decision Making for Peoplewith Developmental Disabilities. S.T.O.G. (See, Think,OK?, Go). On the Internet: http://www.allenshea.com.

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