social!security,!ssi,!and! medicaid!basics 4-14... · aaidd | the arc | aucd | nacdd | sabe |...

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP Social Security, SSI, and Medicaid Basics Marty Ford, The Arc Julie Ward, The Arc

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Page 1: Social!Security,!SSI,!and! Medicaid!Basics 4-14... · AAIDD | The Arc | AUCD | NACDD | SABE | UCP!!! Social!Security,!SSI,!and! Medicaid!Basics! Marty!Ford,!The!Arc! Julie!Ward,!The!Arc!

AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

   

Social  Security,  SSI,  and  Medicaid  Basics  

   

Marty  Ford,  The  Arc  Julie  Ward,  The  Arc  

Page 2: Social!Security,!SSI,!and! Medicaid!Basics 4-14... · AAIDD | The Arc | AUCD | NACDD | SABE | UCP!!! Social!Security,!SSI,!and! Medicaid!Basics! Marty!Ford,!The!Arc! Julie!Ward,!The!Arc!

AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Basics  Basics  Basics  

Page 3: Social!Security,!SSI,!and! Medicaid!Basics 4-14... · AAIDD | The Arc | AUCD | NACDD | SABE | UCP!!! Social!Security,!SSI,!and! Medicaid!Basics! Marty!Ford,!The!Arc! Julie!Ward,!The!Arc!

AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Social  Security  Old  Age,  Survivors,  and  Disability  Insurance  

(OASDI)  Title  II  

Supplemental  Security  Income  

(SSI)  Title  XVI  

Medicaid  Title  XIX  

Medicare  Title  XVIII  

Income  Maintenance   Health  Coverage  

Means-­‐  Tested  

Earned  Through  Work    Credits  

3  

Page 4: Social!Security,!SSI,!and! Medicaid!Basics 4-14... · AAIDD | The Arc | AUCD | NACDD | SABE | UCP!!! Social!Security,!SSI,!and! Medicaid!Basics! Marty!Ford,!The!Arc! Julie!Ward,!The!Arc!

AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Social  Security  Act,  Title  II  

“…security  of  the  men,  women,  and  children  of  the  NaJon  against  certain  hazards  and  vicissitudes  of  life.”    

-­‐-­‐  Franklin  D.  Roosevelt,  January  17,  1935  

4  

Signing  the  Social  Security  Act    of  1935.  

Page 5: Social!Security,!SSI,!and! Medicaid!Basics 4-14... · AAIDD | The Arc | AUCD | NACDD | SABE | UCP!!! Social!Security,!SSI,!and! Medicaid!Basics! Marty!Ford,!The!Arc! Julie!Ward,!The!Arc!

AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Social  Security  Disability  Standard  

•  Medically  determinable  physical  or  mental  impairment    

•  Expected  to  last  at  least  12  months  or  result  in  death    – Does  not  mean  it  has  to  last  forever    

•  Unable  to  perform  SubstanJal  Gainful  AcJvity  or  SGA  –  earnings  of  $1,090  per  month  (2015)  ($1,820  for  people  who  are  blind)  

• Does  not  mean  “no  work”  

5  

Page 6: Social!Security,!SSI,!and! Medicaid!Basics 4-14... · AAIDD | The Arc | AUCD | NACDD | SABE | UCP!!! Social!Security,!SSI,!and! Medicaid!Basics! Marty!Ford,!The!Arc! Julie!Ward,!The!Arc!

AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Social  Security  Act,  Title  II:  Old-­‐Age,  Survivors,  and  Disability  Insurance  Benefits  

6  

Percent  of  total  Social  Security  benefits  paid.  

Retirees & Dependents

Survivors

Disabled Workers & Dependents

Retirees &

Dependents: 74% Survivors:

10%

Disabled Workers & Dependents:

16%

Page 7: Social!Security,!SSI,!and! Medicaid!Basics 4-14... · AAIDD | The Arc | AUCD | NACDD | SABE | UCP!!! Social!Security,!SSI,!and! Medicaid!Basics! Marty!Ford,!The!Arc! Julie!Ward,!The!Arc!

AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Social  Security  •  All  parts  of  the  Social  Security  system  are  important  to  

people  with  disabiliJes:  –  Old-­‐Age  Insurance  (reJrement)  –  reJrees  and  dependents  –  Survivors  Insurance  -­‐  dependents  –  Disability  Insurance  (SSDI)  –  “disabled  workers”  and  dependents  

•  Movement  among  programs  •  Same  structure  and  benefit  formula  for  3  programs  

–  Benefit  levels  based  on  worker’s  earnings  history  /  prior  contribuJons  

–  Quarters  of  coverage/work  credits  

7 7  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Social  Security  Disability  Benefits  •  Guaranteed  monthly  benefit  •  Adjusted  annually,  as  necessary,  for  inflaJon  •  Higher  replacement  rate  for  lower  income  earners  •  No  asset  (resource)  limits  •  Earned  income  is  limited  to  substanJal  gainful  acJvity  (SGA)  level  –  Numerous  work  incenJves  allow  work  above  SGA  level  (too  complex  for  this  discussion)    

•  Eligibility  for  Medicare  –  2-­‐year  wait  for  beneficiaries  with  disabiliJes  

8  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Social  Security    Disabled  Adult  Child  (DAC)  Benefit  

•  About  1  million  beneficiaries  receive  an  average  DAC  benefit  of  $735  /month  (Dec.  2013)  

•  Eligibility:  –  Adult  age  18  or  older  –  Unmarried  (some  excepJons)  –  Has  a  disability  that  meets  the  strict  Social  Security  Act  standard  and  began  prior  to  age  22  

•  Uses  the  term  “child”  because  it  is  paid  based  on  parent’s  Social  Security  earnings  record  –  designates  rela=onship,  not  age.  Triggered  by              parent’s  death,  reJrement,  or  disability.  

9  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Social  Security  Trust  Funds  •  Title  II  OASDI    benefits  are  paid  out  of  the  OASI  and  DI  Trust  Funds  –  NOT  general  revenues  

•  Trust  Funds  are  financed  by  FICA  (payroll)  taxes  (Federal  Income  ContribuJons  Act)  

•  DI  Trust  Fund  expected  to  be  depleted  sooner  than  OASI  Trust  Fund  –  end  of  2016  

•  DI  will  be  able  to  pay  only  80  percent  of  promised  benefits    

10  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Only  Modest  Changes  are  Needed  •  Congress  could  reallocate  between  OAS  and  DI  Trust  Funds.  

•  Modest  changes  can  make  all  of  Social  Security  solvent  for  the  next  75  years.  

•  Major  cuts  in  benefits  or  major  changes  in  the  structure  of  Social  Security  are  not  needed.  

•  Major  cuts  will  harm  people  with  disabiliJes  and  their  families.  

11  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Supplemental  Security  Income  (SSI)  Social  Security  Act,  Title  XVI  

•  Provides  a  modest  monthly  benefit  to  seniors  and  people  with  severe  disabiliJes  who  have  very  low  incomes  and  assets  -­‐  “means-­‐tested”:  – 2014  federal  payment  standard  (maximum  benefit):  $733  /  month  (individual);  $1,100  /  month  (couple)  

– Asset  limits:  $2,000  (individual);  $3,000  (couple)  

12 12  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Supplemental  Security  Income,  SSI  (cont.)  

•  Benefits  are  paid  from  general  revenues  •  Same  disability  definiJon  as  Social  Security  •  Beneficiaries  typically  eligible  for  Medicaid  •  Work  incenJves  encourage  beneficiaries  to  work  

13  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Improvements  are  Needed  

•  Increase  the  substanJal  gainful  acJvity  (SGA)  level  

•  Increase  the  SSI  asset  limits  and  income  exclusions  

•  Eliminate  marriage  penalJes  •  Eliminate  2-­‐year  wait  for  Medicare  (Title  II)  •  Many  more…  

14  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

 

Page 16: Social!Security,!SSI,!and! Medicaid!Basics 4-14... · AAIDD | The Arc | AUCD | NACDD | SABE | UCP!!! Social!Security,!SSI,!and! Medicaid!Basics! Marty!Ford,!The!Arc! Julie!Ward,!The!Arc!

AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Medicaid Basics  •  Provides health and Long Term Services and Supports to

low income populations. •  Currently covers over 70 million low-income Americans

including 10 million non-elderly people with disabilities

•  Individuals  who  are  eligible  receive  the  benefit-­‐enJtlement    

•  Different  in  every  state  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

  •  Federal government sets minimum eligibility. •  States can expand eligibility. •  States spend a certain amount of money and

receive a federal “match” •  Average match:

Medicaid Basics

:  

$1 state   $1.32 federal  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

  •  Medicaid  law  defines  what  states:    

–  must  do  (mandatory)  –  can  choose  to  do  (opJonal)  –  cannot  do  

•  Medicaid  regulaJon  provides:  – Consumer  protecJons  – Home  and  community  based  direcJon  – Standards  of  care  

Medicaid Basics    

Page 19: Social!Security,!SSI,!and! Medicaid!Basics 4-14... · AAIDD | The Arc | AUCD | NACDD | SABE | UCP!!! Social!Security,!SSI,!and! Medicaid!Basics! Marty!Ford,!The!Arc! Julie!Ward,!The!Arc!

AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Before  the  Affordable  Care  Act  •  Very  Low  income  parents    •  Low  income  pregnant  women    •  Very  low  income  children    •  Very  low-­‐income  individuals  with  disabiliJes  who  qualify  for  

cash  assistance  under  the  SSI  program*  (a  few  states  have  different  criteria)  

•  Low  income  people  65  and  older    

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Medicaid  PopulaJon  

•  About  3/4  of  beneficiaries  are  children  and  working  parents  

•  1/4  are  people  with  disabiliJes  and  the  elderly    •  2/3  of  expenditures  are  for  people  with  disabiliJes  and  the  elderly  

     

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

•  Medicaid  Expansion  in  the  ACA    •  OpJonal  due  to  the  Supreme  Court  •  Up  to  138%  of  poverty  ($16,245  for  one  in  2015)  

•  Adult  coverage  •  100%  federal  match  Jll  2016  •  90%  in  2020  and  future  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP    SOURCE:  “Status  of  State  AcJon  on  the  Medicaid  Expansion  Decision,”  KFF  State  Health  Facts,  updated  March  6,  2015.  hpp://kff.org/health-­‐reform/state-­‐indicator/state-­‐acJvity-­‐around-­‐expanding-­‐medicaid-­‐under-­‐the-­‐affordable-­‐care-­‐act/    

Status  of  Medicaid  Expansion  Decisions—Kaiser  Family  FoundaJon    

 WY  

 WI*  

WV  

WA  

VA  

VT  

 UT  

 TX  

 TN  

 SD  

 SC  

RI    PA*  

   OR  

 OK  

 OH  

 ND  

NC  

 NY  

 NM  

NJ  

 NH*  

NV    NE  

MT  

MO  

 MS  

   MN  

 MI*  MA  

MD  

 ME  

 LA  

 KY    KS  

 IA*    IN*    IL  

ID  

HI  

 GA  

 FL  

   DC      

DE  

 CT  

   CO    

 CA  

 AR*    AZ  

 AK  

 AL  

Adopted  (29  States  including  DC)  Adop]on  under  discussion  (6  States)  Not  Adop]ng  At  This  Time  (16  States)  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

•  Laboratory  and  X-­‐ray  services    •  Family  planning  services    •  Nurse  Midwife  services    •  CerJfied  Pediatric  and  Family  

Nurse  PracJJoner  Services    •  Freestanding  Birth  Center  

services    •  TransportaJon  to  medical  care  •  Tobacco  cessaJon  counseling  for  

pregnant  women    •  Tobacco  CessaJon    

•  InpaJent  hospital  services    •  OutpaJent  hospital  services    •  Early  and  Periodic  Screening,  

DiagnosJc,  and  Treatment  (EPSDT)  (for  kids)  

•  Nursing  facility  services*    •  Home  health  services    •  Physician  services    •  Rural  health  clinic  services    •  Federally  qualified  health  

center  services      

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

•  Personal  care    •  Hospice    •  Case  management    •  Services  for  Individuals  Age  65  +  in  an  IMD    •  Other  services  approved  by  the  Secretary    •  TB  Related  Services    •  InpaJent  psychiatric  services  for  individuals  

under  age  21    •  Services  in  ICF/ID  •  Home  and  Community-­‐Based  Waivers  –  

1915(c)*  •  State  Plan  Home  and  Community  Based  

Services  -­‐1915(i)*  •  Self-­‐Directed  Personal  Assistant  Services  

-­‐1915  (j)*  •  Community  First  Choice  OpJon  -­‐  1915  (k)*  

•  PrescripJon  drugs    •  Clinic  services    •  Physical  therapy    •  OccupaJonal  therapy    •  Speech,  hearing  and  language  

disorder  services    •  Respiratory  care  services    •  Other  diagnosJc,  screening,  

prevenJve  and  rehab  services    •  Podiatry  services    •  Optometry  services    •  Dental  services    •  Dentures    •  ProstheJcs    •  Eyeglasses    •  ChiropracJc  services    •  Private  duty  nursing  services    

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Optional Services

Most  of  the  criJcal  disability  services  are  

opJonal    

Easier  to  cut  or  scale  back  opJonal  services  or  

populaJons  

Medicaid  ouen  richer  benefit  than  private  

insurance  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

 

Access to Long Term Services and Supports (LTSS)

•  ICF/HCBS optional •  Standard for “institutional level of need” set

by each state •  May qualify in one state but not in another

“no portability” •  May have different income requirements •  States may have multiple waivers for

different populations and purposes

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Medicaid and CHIP  

•  The  Children’s  Health  Insurance  Program  (CHIP)  -­‐-­‐established  1997-­‐-­‐provides:  –   Health  coverage  to  eligible  children,  through  both  Medicaid  and  separate  CHIP  programs.  

– Administered  by  states,  according  to  federal  requirements.    

–  Jointly  funded  by  states  and  the  federal  government.  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Medicaid and CHIP

1.  Medicaid  expansion  (seven  states,  DC  and  five  territories)    

2.  Separate  Child  Health  Insurance  Program  (17  states)    

3.  CombinaJon  of  the  two  approaches  (26  states)    

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Medicaid

Supplemental  Security  Income  (SSI)    

Federal/State  

Low  income      

Medicare

Social  Security  Disability  Insurance  (SSDI)  

Federal  

Some  extra  help  for  low  income  beneficiaries  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

23.7%   18.1%  

44.2%  

19.9%   35.3%  

10.8%  

56.4%  46.6%   45.0%  

Total  State  Spending  $1.64  Trillion  

State  General  Funds  $654.8  Billion  

Federal  Funds  $526.2  Billion  

Medicaid   Elementary  &  Secondary  Educa]on   Other  

Report  (data  for  Actual  FY  2012.)  

Medicaid  expenditure  &  revenue  to  states  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

   Other    $521   Non  

Defense  $522  

Defense  $626  

Social  Security  $808  

Medicare  $492  

Mandatory    Spending  

Discre]onary    Spending  

Includes  all  other  disability-­‐related    programs  

What We Spend

TOTAL FEDERAL SPENDING IN FY 2013 = $3.455 Trillion

hpp://www.whitehouse.gov/sites/default/files/omb/budget/fy2015/assets/tables.pdf  ,  p  170  

31  

(in billions)

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Threats to Medicaid Cuxng  the  funding  

Removing  the  enJtlement  

Block  Grants/Flexible  State  Allotments  

Repeal  of  the  Medicaid  expansion  

Per  Capita  Caps  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Possible Effects of Threats

Individuals  lose  the  

enJtlement  

Shrinking  federal  support  

No  federal  rules  or  

protecJons  

Cost  shiuing  to  state/

beneficiary  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

Key  Message  to  Congress  

Preserve   Medicaid Medicare Social Security & SSI

34  

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AAIDD | The Arc | AUCD | NACDD | SABE | UCP  

A Last Thought

Key  is  telling  your  story-­‐-­‐what  Medicaid  means  to  you  

Members  of  Congress  need  to  know  that  consJtuents  care  about  these  programs  

Understanding  the  law,  regulaJon,  policies,  procedural  moves  is  nice  but  not  cri]cal