SEER PATTERNS OF CARE

Kimberly Kimbler, MS, CCRP, CTR

Kentucky Cancer Registrykimberly@kcr.uky.edu

WHAT IS PATTERNS OF CARE (POC)?

•A population-based snapshot

designed to “assess the

incorporation of state-of-the-art

cancer treatments into clinical practice

and the extent to which cancer

patients receive such treatments”

Public Law 100-607, Sec. 413 (a)(2)(C)

Mandated in 1988

14 SEER REGISTRIES PARTICIPATED IN 2014

USES OF POC DATA

Describe adjuvant therapy use in a community setting

Practice patterns in communities Surgery, radiation therapy, chemotherapy, hormonal

therapy in specific cancers Compare treatment modalities over time and by age,

race, and ethnicity

USES OF POC DATA

Effects of comorbid conditions Describe treatment by hospital characteristics Describe the usage of biomarkers and diagnostic tests and

compare their use by race/ethnicity and geographic region Provide additional data for analyses by linking POC data to

SEER Medicare files

Address quality control issues related to routine data abstraction

wordle

Site-specific cases

randomly selected

from CPDMS

Cases submitted to KCR

Cases are re-

abstracted per POC

Manual

Information is

entered into a POC

specific local

database

ALL treatment verified by reviewing

records or by physician contact

Data is de-identified and uploaded to a secure SEER website

SO…WHAT DOES POC COLLECT?

Much of the same information as the abstracted

case…..just sometimes in a

slightly different way or in greater

detail

POC VISIT

Hospital recordsMedical OncologyRadiation OncologyLegacy EMR systems/paper charts (if applicable)

Cancer is increasingly diagnosed and treated in the outpatient setting

PHYSICIAN VERIFICATION…and the path to all treatment

POC: WHAT’S NEXT….

69,212Adolescents and young adults (AYA) diagnosed

with cancer in 2011An estimated projection calculated by the Surveillance, Epidemiology and End Results (SEER) Program using SEER 18,

2007-2011. http://www.cancer.gov/researchandfunding/snapshots/adolescent-young-adult#footnote1 (accessed 9/2014)

AYA CANCERS (AGES 15-39)

ACKNOWLEDGEMENTS

Tom Tucker Frances Ross Celia Love Mary Jane Byrne The awesome folks at KCR

QUESTIONS?