scoring pedsql v5

8/12/2019 Scoring PedsQL v5

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Version 5: updated May 2008 Page 1 of 81

Pediatric Quality of Life Inventory TM(PedsQL TM)

SCALING AND SCORING OF THE

PPeeddiiaattrriiccQQuuaalliittyyooffLLiiffeeIInnvveennttoorryy

PPeeddssQQLLTTMM

Mapi Research Trust27 rue de la Villette69003 LyonFrancePhone: +33 (0) 4 72 13 65 75Fax: +33 (0) 4 72 13 66 82

Contact:Marie-Pierre EmeryE-mail: [email protected]

James W. Varni, Ph.D.ProfessorDepartment of Pediatrics, College of MedicineProfessor, Department of LandscapeArchitecture and Urban Planning, College ofArchitecture3137 TAMUCollege Station, Texas 77843-3137USA

E-mail :[email protected]


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PedsQLTM

4.0 Generic Core Scales .................................................................................................4

PARENT Report for Toddlers (ages 2-4) ........................................................................................4

PedsQL

TM

4.0 Generic Core Scales .................................................................................................7CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages

13-18)...............................................................................................................................................7

PedsQLTM

4.0 SF15 Short Form Generic Core Scales.................................................................10

PARENT Report for Toddlers (ages 2-4) ......................................................................................10

CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages

13-18).............................................................................................................................................10

PedsQLTM

3.0 Arthritis Module ....................................................................................................13PARENT Report for Toddlers (ages 2-4) ......................................................................................13

PedsQLTM

3.0 Arthritis Module ....................................................................................................15

CHILD and PARENT Reports for Young Children (ages 5-7) .....................................................15

PedsQLTM

3.0 Arthritis Module ....................................................................................................17CHILD and PARENT Reports for Children (ages 8-12), Teens (ages 13-18) ..............................17

PedsQLTM

3.0 Asthma Module ......................................................................................................19


PedsQLTM

3.0 Asthma Module ......................................................................................................21CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages

13-18).............................................................................................................................................21

PedsQLTM

3.0 SF22 Short Form Asthma Module.......................................................................23


PedsQLTM

3.0 SF22 Short Form Asthma Module .......................................................................25CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages

13-18).............................................................................................................................................25PedsQL

TMBrain Tumor Module...................................................................................................27


PedsQLTM

Brain Tumor Module...................................................................................................29CHILD and PARENT Reports for Young Children (ages 5-7) .....................................................29

PedsQLTM

Brain Tumor Module...................................................................................................31CHILD and PARENT Reports for Children (ages 8-12), Teens (ages 13-18) ..............................31

PedsQLTM

3.0 Cancer Module .......................................................................................................33


PedsQLTM

3.0 Cancer Module .......................................................................................................35


CHILD and PARENT Reports for Children (ages 8-12), Teens (ages 13-18) ..............................37

PedsQLTM

3.0 Cardiac Module......................................................................................................40


PedsQLTM

3.0 Cardiac Module......................................................................................................42


PedsQLTM

3.0 Cardiac Module......................................................................................................44

CHILD and PARENT Reports for Children (ages 8-12) and Teens (ages 13-18) ........................44

PedsQLTM

3.0 Cerebral Palsy Module ..........................................................................................46PARENT Report for Toddlers (ages 2-4) ......................................................................................46

PedsQLTM

3.0 Cerebral Palsy Module ..........................................................................................48

CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages13-18).............................................................................................................................................48

PedsQLTM

Cognitive Functioning Scale........................................................................................50

PedsQLTM

3.0 Diabetes Module.....................................................................................................52


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PedsQLTM

3.0 End Stage Renal Disease Module .........................................................................54


PedsQLTM

3.0 End Stage Renal Disease Module .........................................................................56

CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages13-18).............................................................................................................................................56

PedsQLTM

2.0 Family Impact Module ..........................................................................................59

PARENT Report ............................................................................................................................59

PedsQLTM

Gastrointestinal Symptom Scale (GSS) .....................................................................62

PARENT Proxy Report..................................................................................................................62

PedsQLTM

Healthcare Satisfaction Generic Module....................................................................64

PedsQLTM

Healthcare Satisfaction Hematology / Oncology Module..........................................66

PedsQLTM

Multidimensional Fatigue Scale..................................................................................68

PedsQLTM

Pediatric Pain Coping InventoryTM

(PPCI)...............................................................70PARENT Report for Children and Teens (ages 5-18) ...................................................................70

CHILD Report for Children (ages 5-12), Teens (ages 13-18).......................................................70PedsQL

TMPediatric Pain Questionnaire (PPQ) ..........................................................................72

PedsQLTM

Present Functioning Visual Analogue Scale (PedsQLTM

VAS) ..............................74

CHILD and PARENT reports for CHILD (ages 5-18)..................................................................74

PedsQLTM

3.0 Rheumatology Module...........................................................................................76


PedsQLTM

3.0 Rheumatology Module...........................................................................................78

CHILD and PARENT reports for Young Children (ages 5-7) ......................................................78

PedsQLTM

3.0 Rheumatology Module...........................................................................................80CHILD and PARENT reports for Children (ages 8-12) and Teens (ages 13-18)..........................80


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PPeeddssQQLLTTMM

44..00GGeenneerriiccCCoorreeSSccaalleess

PARENT Report for Toddlers (ages 2-4)


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The Parent Report for Toddlers (ages 2-4) of the PPeeddssQQLLTTMM 44..00 GGeenneerriicc CCoorree SSccaalleess iscomposed of 21 items comprising 4 dimensions.

DESCRIPTION OF THE QUESTIONNAIRE:

DimensionsNumber of

ItemsCluster of

ItemsReversedScoring

Direction of Dimensions

PhysicalFunctioning

8 1-8 1-8

EmotionalFunctioning

5 1-5 1-5

Social

Functioning

5 1-5 1-5

SchoolFunctioning

3 1-3 1-3

Higher scores indicatebetter HRQOL.

SCORING OF DIMENSIONS:

Item Scaling 5-point Likert scale from 0 (Never) to 4 (Almost always)

Weighting ofItems

No

Extension oftheScoring Scale

Scores are transformed on a scale from 0 to 100.

ScoringProcedure

Step 1: Transform Score

Items are reversed scored and linearly transformed to a 0-100 scale as follows:0=100, 1=75, 2=50, 3=25, 4=0.

Step 2: Calculate Scores

Score by Dimensions:

If more than 50% of the items in the scale are missing, the scale scoresshould not be computed.

Mean score = Sum of the items over the number of items answered.

Psychosocial Health Summary Score = Sum of the items over the number ofitems answered in the Emotional, Social, and School Functioning Scales.

Physical Health Summary Score = Physical Functioning Scale Score

Total Score: Sum of all the items over the number of items answered on all theScales.


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PPeeddssQQLLTTMM

44..00GGeenneerriiccCCoorreeSSccaalleess

CHILD and PARENT Reports for Young Children (ages 5-7),Children (ages 8-12), Teens (ages 13-18)


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The Child and Parent Reportsof thePPeeddssQQLLTTMM 44..00GGeenneerriiccCCoorreeSSccaalleessfor:

- Young Children (ages 5-7),

- Children (ages 8-12),- And Teens (ages 13-18),

are composed of 23 items comprising 4 dimensions.


DimensionsNumber of

ItemsCluster of

ItemsReversedscoring


Physical

Functioning

8 1-8 1-8


5 1-5 1-5

SocialFunctioning

5 1-5 1-5

SchoolFunctioning

5 1-5 1-5

Higher scores indicatebetter HRQOL.


Item Scaling5-point Likert scale from 0 (Never) to 4 (Almost always)3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Young Child(ages 5-7) child report

Weighting ofItems

No

Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.

ScoringProcedure


Items are reversed scored and linearly transformed to a 0-100 scale as follows:

0=100, 1=75, 2=50, 3=25, 4=0.

Step 2: Calculate ScoresScore by Dimensions:

If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,


Psychosocial Health Summary Score = Sum of the items over the number ofitems answered in the Emotional, Social, and School Functioning Scales.

Physical Health Summary Score = Physical Functioning Scale Score

Total Score: Sum of all the items over the number of items answered on all theScales.


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Interpretationand Analysisof Missing Data

If more than 50% of the items in the scale are missing, the Scale Scores shouldnot be computed.If 50% or more items are completed: Impute the mean of the completed items ina scale.


10/81



PPeeddssQQLLTTMM

44..00SSFF1155

SShhoorrttFFoorrmmGGeenneerriiccCCoorreeSSccaalleess

PARENT Report for Toddlers (ages 2-4)CHILD and PARENT Reports for Young Children (ages 5-7),

Children (ages 8-12), Teens (ages 13-18)


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If more than 50% of the items in the scale are missing, the Scale Scores shouldnot be computed.

If 50% or more items are completed: Impute the mean of the completed items ina scale.


13/81



PPeeddssQQLLTTMM

33..00AArrtthhrriittiissMMoodduullee



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The Parent Report for Toddlers(ages 2-4) of the PPeeddssQQLLTTMM33..00AArrtthhrriittiissMMoodduulleeis composed of

14 items comprising 3 dimensions.

DESCRIPTION OF THE ARTHRITIS MODULE:

DimensionsNumber of

ItemsCluster of



Pain and Hurt 4 1-4 1-4

Daily Activities 5 1-5 1-5

Treatment 5 1-5 1-5

Higher scores indicatelower problems.



Weighting ofItems

No


Scoring Procedure


Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.

Step 2: Calculate Scores by Dimensions

If more than 50% of the items in the scale are missing, the scale scoresshould not be computed

Mean score = Sum of the items over the number of items answered

There is no Total ScoreInterpretation andAnalysisof Missing Data

If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completeditems in a scale.


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PPeeddssQQLLTTMM


CHILD and PARENT Reports for Young Children (ages 5-7)


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The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00AArrtthhrriittiissMMoodduulleefor Young Children(ages

5-7) are composed of 20 items comprising 5 dimensions.


DimensionsNumber of

ItemsCluster of





Treatment 5 1-5 1-5

Worry 3 1-3 1-3

Communication 3 1-3 1-3



Item Scaling 5-point Likert scale from 0 (Never) to 4 (Almost always) for the parent report3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the child report

Weighting ofItems

No


Scoring Procedure






There is no Total Score

Interpretation andAnalysisof Missing Data



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PPeeddssQQLLTTMM


CHILD and PARENT Reports for Children (ages 8-12), Teens(ages 13-18)


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TheChild and Parent Reportsof the PPeeddssQQLLTTMM33..00AArrtthhrriittiissMMoodduulleefor:

- Children (ages 8-12),- And Teens (ages 13-18),



DimensionsNumber of

ItemsCluster of





Treatment 7 1-7 1-7

Worry 3 1-3 1-3





Weighting ofItems

No


Scoring Procedure







Interpretation andAnalysisof missing data

If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completed

items in a scale.


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PPeeddssQQLLTTMM

33..00AAsstthhmmaaMMoodduullee



20/81



The Parent Report for Toddlers(ages 2-4) of the PPeeddssQQLLTTMM33..00AAsstthhmmaaMMoodduulleeis composed of


DESCRIPTION OF THE ASTHMA MODULE:

DimensionsNumber of

ItemsCluster of



Asthma 11 1-11 1-11

Treatment 9 1-9 1-9

Worry 3 1-3 1-3





Weighting of

Items

No


Scoring Procedure










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PPeeddssQQLLTTMM

33..00AAsstthhmmaaMMoodduullee



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The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00AAsstthhmmaaMMoodduulleefor:

- Young Children (ages 5-7),- Children (ages 8-12,- And Teens (ages 13-18),


DESCRIPTION OF THE ASTHMA MODULE:

DimensionsNumber of

ItemsCluster of



Asthma 11 1-11 1-11

Treatment 11 1-11 1-11

Worry 3 1-3 1-3




Item Scaling 5-point Likert scale from 0 (Never) to 4 (Almost always)3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the child reportfor Young Children (ages 5-7)

Weighting ofItems

No


Scoring Procedure










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PPeeddssQQLLTTMM

33..00SSFF2222

SShhoorrttFFoorrmmAAsstthhmmaaMMoodduullee



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The Parent Report for Toddlers(ages 2-4) of the PPeeddssQQLLTTMM33..00SSFF2222AAsstthhmmaaMMoodduulleeis

composed of 20 items comprising 2 dimensions.

DESCRIPTION OF THE SF22 ASTHMA MODULE:

DimensionsNumber of

ItemsCluster of



Asthma 11 1-11 1-11

Treatment 9 1-9 1-9




Weighting ofItems

No


Scoring Procedure







Interpretation andAnalysis

of Missing Data

If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.

If 50% or more items are completed: Impute the mean of the completeditems in a scale.


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PPeeddssQQLLTTMM

33..00SSFF2222

SShhoorrttFFoorrmmAAsstthhmmaaMMoodduullee



26/81



The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00SSFF2222AAsstthhmmaaMMoodduulleefor:

- Young Children (ages 5-7),- Children (ages 8-12),- And Teens (ages 13-18)


DESCRIPTION OF THE SF22 ASTHMA MODULE:

DimensionsNumber of

ItemsCluster of



Asthma 11 1-11 1-11

Treatment 11 1-11 1-11



Item Scaling5-point Likert scale from 0 (Never) to 4 (Almost always)3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child RReport for Young Children (ages 5-7)

Weighting ofItems

No


Scoring Procedure










27/81



PPeeddssQQLLTTMM

BBrraaiinnTTuummoorrMMoodduullee



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The Parent Report for Toddlers(ages 2-4) of the PPeeddssQQLLTTMMBBrraaiinnTTuummoorrMMoodduulleeis composed of


DESCRIPTION OF THE BRAIN TUMOR MODULE:

DimensionsNumber of

ItemsCluster of




Movement andBalance

3 1-3 1-3

ProceduralAnxiety

3 1-3 1-3

Nausea 5 1-5 1-5

Worry 3 1-3 1-3



Item Scaling5-point Likert scale from 0 (Never a problem) to 4 (Almost always aproblem)

Weighting ofItems

No


Scoring Procedure




If more than 50% of the items in the scale are missing, the scale scores

should not be computed,






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PPeeddssQQLLTTMM




30/81


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PPeeddssQQLLTTMM




32/81



The Parent and Child Reports for Children(ages 8-12) and Teens(ages 13-18) of the

PPeeddssQQLLTTMMBBrraaiinnTTuummoorrMMoodduulleeare composed of 24 items comprising 6 dimensions.

DESCRIPTION OF THE BRAIN TUMOR MODULE:

DimensionsNumber of

ItemsCluster of



CognitiveProblems

7 1-7 1-7


Movement and

Balance

3 1-3 1-3

ProceduralAnxiety

3 1-3 1-3

Nausea 5 1-5 1-5

Worry 3 1-3 1-3

Higher scores indicatelower problems


Item Scaling5-point Likert scale from 0 (Never a problem) to 4 (Almost always aproblem)

Weighting ofItems

No


Scoring Procedure










33/81



PPeeddssQQLLTTMM

33..00CCaanncceerrMMoodduullee



34/81



The Parent Report for Toddlers (ages 2-4)of the PPeeddssQQLLTTMM33..00CCaanncceerrMMoodduulleeis composed of


DESCRIPTION OF THE CANCER MODULE:

DimensionsNumber of

ItemsCluster of



Pain and Hurt2 1-2 1-2

Nausea5 1-5 1-5

ProceduralAnxiety

3 1-3 1-3

Treatment Anxiety 3 1-3 1-3

Worry3 1-3 1-3

CognitiveProblems

3 1-3 1-3

PerceivedPhysical

Appearance

3 1-3 1-3

Communication3 1-3 1-3




Weighting ofItems

No

Extension of theScoring Scale

Scores are transformed to a 0 to 100 scale.

ScoringProcedure






There is no Total Score.


If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completed itemsin a scale.


35/81


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The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00CCaanncceerrMMoodduulleeffoorrYoung Children (ages 5-

7), are composed of 26 items comprising 8 dimensions.


DimensionsNumber of

ItemsCluster of




Nausea5 1-5 1-5

ProceduralAnxiety

3 1-3 1-3

Treatment Anxiety3 1-3 1-3

Worry3 1-3 1-3

CognitiveProblems

4 1-4 1-4

PerceivedPhysical

Appearance

3 1-3 1-3




Item Scaling5-point Likert scale from 0 (Never) to 4 (Almost always)3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Reportfor Young Children (ages 5-7)

Weighting ofItems

No


ScoringProcedure







Interpretation

and Analysisof Missing Data

If more than 50% of the items in the scale are missing, the Scale Scores

should not be computed.If 50% or more items are completed: Impute the mean of the completed itemsin a scale.


37/81



PPeeddssQQLLTTMM

33..00CCaanncceerrMMoodduullee



38/81



The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00CCaanncceerrMMoodduulleeffoorr::

- Children (ages 8-12),- And Teens (ages 13-18)



DimensionsNumber of

ItemsCluster of




Nausea5 1-5 1-5

ProceduralAnxiety

3 1-3 1-3


Worry3 1-3 1-3

CognitiveProblems

5 1-5 1-5

PerceivedPhysical

Appearance

3 1-3 1-3

Communication

3 1-3 1-3




Weighting ofItems

No


ScoringProcedure








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40/81



PPeeddssQQLLTTMM

33..00CCaarrddiiaaccMMoodduullee



41/81



The Parent Report for Toddlers (age 2-4)of the PPeeddssQQLLTTMM33..00CCaarrddiiaaccMMoodduulleeis composed of


DESCRIPTION OF THE CARDIAC MODULE:

DimensionsNumber of

ItemsCluster of



Heart problemsand Treatment

7 1-7 1-7

Treatment II3 1-3 1-3

PerceivedPhysical

Appearance

3 1-3 1-3


CognitiveProblems

3 1-3 1-3


Higher scores indicate

lower problems.



Weighting ofItems

No

Extension of theScoring Scale Scores are transformed to a 0 to 100 scale.

Scoring

Procedure



Step 2: Calculate scores by Dimensions







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PPeeddssQQLLTTMM

33..00CCaarrddiiaaccMMoodduullee



43/81



The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00CCaarrddiiaaccMMoodduulleeffoorr Young Children (ages 5-

7) are composed of 25 items comprising 6 dimensions.


DimensionsNumber of

ItemsCluster of



Heart Problemsand Treatment

7 1-7 1-7


PerceivedPhysical

Appearance

3 1-3 1-3


CognitiveProblems

5 1-5 1-5



lower problems.



Weighting ofItems

No


ScoringProcedure


Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0








44/81



PPeeddssQQLLTTMM33..00CCaarrddiiaaccMMoodduullee

CHILD and PARENT Reports for Children (ages 8-12) andTeens (ages 13-18)


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The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00CCaarrddiiaaccMMoodduulleeffoorr::

- Children (ages 8-12),- And Teens (ages 13-18)



DimensionsNumber of

ItemsCluster of



Heart Problemsand Treatment

7 1-7 1-7


PerceivedPhysical

Appearance

3 1-3 1-3


CognitiveProblems

5 1-5 1-5




Item Scaling5-point Likert scale from 0 (Never) to 4 (Almost always)

Weighting ofItems

No


ScoringProcedure







Interpretationand Analysis

of Missing Data


If 50% or more items are completed: Impute the mean of the completed itemsin a scale.


46/81



PPeeddssQQLLTTMM33..00CCeerreebbrraallPPaallssyyMMoodduullee



47/81



The Parent Report for Toddlers (ages 2-4) ofthe PPeeddssQQLLTTMM

33..00CCeerreebbrraallPPaallssyyMMoodduulleeis


DESCRIPTION OF THE CEREBRAL PALSY MODULE:

DimensionsNumber of

ItemsCluster of



Daily Activities5 1-5 1-5

Movement andBalance

5 1-5 1-5


Fatigue4 1-4 1-4

Eating Activities4 1-4 1-4




Weighting ofItems

No

Extension of theScoring Scale

Scores are transformed to a 0 to 100 scale.

ScoringProcedure





should not be computed, Mean score = Sum of the items over the number of items answered.

There is no Total score




48/81



PPeeddssQQLLTTMM

33..00CCeerreebbrraallPPaallssyyMMoodduullee



49/81



The Child and Parent Reportsof the PPeeddssQQLLTTMM 33..00CCeerreebbrraallPPaallssyyMMoodduulleeffoorr::

- Young Children (ages 5-7),- Children (ages 8-12),- And Teens (ages 13-18)


DESCRIPTION OF THE CEREBRAL PALSY MODULE:

DimensionsNumber of

ItemsCluster of




School Activities4 1-4 1-4

Movement andBalance

5 1-5 1-5


Fatigue4 1-4 1-4

Eating Activities5 1-5 1-5

Speech andCommunication

4 1-4 1-4




Weighting ofItems

No


ScoringProcedure

Step 1: Transform ScoreItems are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.




There is no Total score

Interpretation





50/81



PPeeddssQQLLTTMM

CCooggnniittiivveeFFuunnccttiioonniinnggSSccaallee


51/81



The PPeeddssQQLLTTMMCCooggnniittiivveeFFuunnccttiioonniinnggSSccaalleeis composed of 6 items comprising 1 dimension.

DESCRIPTION OF THE COGNITIVE FUNTIONING SCALE:

DimensionsNumber of

ItemsCluster of



CognitiveFunctioning

6 1-6 1-6Higher scores indicate

lower problems



Weighting ofItems

No


Scoring Procedure



Step 2: Calcu late Total ScoreSum of all the items over the number of items answered


If more than 50% of the items in the scale are missing, the Scale Scoreshould not be computed.If 50% or more items are completed: Impute the mean of the completeditems in a scale.


52/81



PPeeddssQQLLTTMM

33..00DDiiaabbeetteessMMoodduullee


53/81



The PPeeddssQQLLTTMM33..00DDiiaabbeetteessMMoodduulleeis composed of 28 items comprising 5 dimensions.

DESCRIPTION OF THE DIABETES MODULE:

DimensionsNumber of

ItemsCluster of



Diabetes 11 1-11 1-11

Treatment I 4 1-4 1-4

Treatment II 7 1-7 1-7

Worry 3 1-3 1-3




Item Scaling

5-point scale from 0 (Never) to 4 (Almost always)

3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Reportfor Young Children (ages 5-7)

Weighting ofItems

No


Scoring Procedure



Step 2: Calculate scores by Dimension If more than 50% of the items in the scale are missing, the scale scores

should not be computed,






54/81



PPeeddssQQLLTTMM

33..00EEnnddSSttaaggeeRReennaallDDiisseeaassee

MMoodduullee



55/81



The Parent Report for Toddlers (ages 2-4)of the PPeeddssQQLLTTMM33..00EEnnddSSttaaggeeRReennaallDDiisseeaassee

MMoodduulleeis composed of 13 items comprising 4 dimensions.

DESCRIPTION OF THE END STAGE RENAL DISEASE MODULE:

DimensionsNumber of

ItemsCluster of



General Fatigue 3 1-3 1-3

About My KidneyDisease

4 1-4 1-4

TreatmentProblems

3 1-3 1-3

Worry 3 1-3 1-3




Weighting ofItems

No


ScoringProcedure






Total Score: Sum of all the items over the number of items answered on all

the Scales.Interpretationand Analysisof Missing Data



56/81



PPeeddssQQLLTTMM

33..00EEnnddSSttaaggeeRReennaallDDiisseeaassee

MMoodduullee



57/81



The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00EEnnddSSttaaggeeRReennaallDDiisseeaasseeMMoodduulleefor:

- Young Children (ages 5-7)

-- Children (ages 8-12)-- And Teens ages (13-18)are composed of 34 items comprising 7 dimensions.

DESCRIPTION OF THE END STAGE RENAL DISEASE MODULE:

DimensionsNumber of

ItemsCluster of




About My KidneyDisease

5 1-5 1-5

TreatmentProblems

4 1-4 1-4

Family and PeerInteraction

3 1-3 1-3

Worry 10 1-10 1-10

PerceivedPhysical

Appearance3 1-3 1-3




Item Scaling5-point Likert scale from 0 (Never) to 4 (Almost always)3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the YoungChildren (ages 5-7) child report

Weighting ofItems

No

Extension of the

Scoring Scale Scores are transformed on a scale from 0 to 100.

ScoringProcedure



Step 2: Calcu late ScoresScore by Dimensions:



Total Score: Sum of all the items over the number of items answered on allthe Scales.


58/81






59/81



PPeeddssQQLLTTMM

22..00FFaammiillyyIImmppaaccttMMoodduullee

PARENT Report


60/81



The Parent report of the PPeeddssQQLLTTMM22..00FFaammiillyyiimmppaaccttMMoodduulleeis composed of 36 items comprising

8 dimensions.

DESCRIPTION OF THE FAMILY IMPACT MODULE:

DimensionsNumber of

ItemsCluster of



PhysicalFunctioning

6 1-6 1-6


5 1-5 1-5

SocialFunctioning

4 1-4 1-4

Cognitive

Functioning

5 1-5 1-5


Worry5 1-5 1-5

DailyActivities

3 1-3 1-3

FamilyRelationships

5 1-5 1-5

Higher scores indicate betterfunctioning.



Weighting ofItems

No


ScoringProcedure






Step 3: Total Scores

The Total Score is the sum of all 36 items divided by the number of itemsanswered

The Parent HRQL Summary Score (20 items) is computed as the sum ofthe items divided by the number of items answered in the Physical,Emotional, Social, and Cognitive Functioning scales.

The Family Functioning Summary Score (8 items) is computed as thesum of the items divided by the number of items answered in the DailyActivities and family Relationships scales.


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PPeeddssQQLLTTMM

GGaassttrrooiinntteessttiinnaall

SSyymmppttoommSSccaallee((GGSSSS))

PARENT Proxy Report


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PPeeddssQQLLTTMM

HHeeaalltthhccaarreeSSaattiissffaaccttiioonn

GGeenneerriiccMMoodduullee


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The PPeeddssQQLLTTMMHHeeaalltthhccaarreeSSaattiissffaaccttiioonnGGeenneerriiccMMoodduulleeis composed of 24 items comprising 6

dimensions.

DESCRIPTION OF THE MODULE:

DimensionsNumber of

ItemsCluster of



Information5 1-5

Inclusion of Family 4 1-4

Communication 5 1-5

Technical Skills 3 1-3

Emotional Needs 4 1-4

OverallSatisfaction

3 1-3

NoHigher scores indicate

higher satisfaction.


Item Scaling 5-point Likert scale: 0 (Never) to 4 (Always) and Not Applicable

Weighting ofitems

No


Scoring Procedure


Items are scored and linearly transformed to a 0-100 scale as follows: 0=0,1=25, 2=50, 3=75, 4=100


If 50% or more items are completed, the Mean score = Sum of the

items divided by the number of items answered in the scale, If more than 50% of the items in the scale are missing, the scale scores

should not be computed.

Total Score: Mean score = Sum of all the items in all scales divided by thenumber of items answered on all the scales.


If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completeditems in the scale.


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PPeeddssQQLLTTMM

HHeeaalltthhccaarreeSSaattiissffaaccttiioonn

HHeemmaattoollooggyy//OOnnccoollooggyyMMoodduullee


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The PPeeddssQQLLTTMMHHeeaalltthhccaarreeSSaattiissffaaccttiioonnHHeemmaattoollooggyy//OOnnccoollooggyyMMoodduulleeis composed of 25 items

comprising 6 dimensions.

DESCRIPTION OF THE MODULE:

DimensionsNumber of

ItemsCluster of



GeneralSatisfaction

3 1-3

Information 5 1-5

Inclusion of Family 4 1-4

Communication 5 1-5

Technical Skills 4 1-4

Emotional Needs 4 1-4

NoHigher scores indicate

higher satisfaction.


Item Scaling 5-point Likert scale: 1 (Very dissatisfied) to 5 (Very satisfied)

Weighting ofItems

No

Extension of theScoring Scale Scores are transformed on a scale from 0 to 100

Scoring Procedure


Items are scored and linearly transformed to a 0-100 scale as follows:1=0, 2=25, 3=50, 4=75, 5=100.


If 50% or more items are completed, the Mean score = Sum of the

items divided by the number of items answered in the scale, If more than 50% of the items in the scale are missing, the scale scores

should not be computed.

Total Score: Mean score = Sum of all the items in all scales divided by thenumber of items answered on all the scales.


If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completeditems in the scale.


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PPeeddssQQLLTTMM

MMuullttiiddiimmeennssiioonnaallFFaattiigguueeSSccaallee


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The PPeeddssQQLLTTMMMMuullttiiddiimmeennssiioonnaallFFaattiigguueeSSccaalleeis composed of 18 items comprising 3 dimensions.

DESCRIPTION OF THE MULTIDIMENSIONAL FATIGUE MODULE:

DimensionsNumber of

ItemsCluster of




Sleep/RestFatigue

6 1-6 1-6

Cognitive Fatigue 6 1-6 1-6




Weighting ofItems

No


Scoring Procedure





Mean score= Sum of the items over the number of items answered.

Total Score: Sum of all the items over the number of items answered on all

the ScalesInterpretation andAnalysisof Missing Data



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PPeeddssQQLLTTMM

PPeeddiiaattrriiccPPaaiinnCCooppiinngg

IInnvveennttoorryyTTMM

((PPPPCCII))

PARENT Report for Chi ldren and Teens (ages 5-18)CHILD Report for Children (ages 5-12), Teens (ages 13-18)


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The Parent Report of the PPeeddssQQLLTTMMPPeeddiiaatt rriiccPPaaiinnCCooppiinnggIInnvveennttoorryyfor Children (ages 5-12)

and Teens (ages 13-18) is composed of 41 items comprising 5 dimensions.

The Child Reports of the PPeeddssQQLLTTMMPPeeddiiaattrriiccPPaaiinnCCooppiinnggIInnvveennttoorryyfor:- Children (ages 5-12)- And teens (ages 13-18)are composed of 41 items comprising 5 dimensions.

See Varni, J.W. et al. (1996). Development of the Waldron/Varni Pediatric Pain Coping Inventory.Pain, 67, 141-150, for scoring instructions for the a prioriand empirically-derivedscale scores.

DESCRIPTION OF THE PEDIATRIC PAIN COPING INVENTORY:

Dimensions Number ofItems Cluster ofItems ReversedScoring Direction of Dimensions

Cognitive Self-Instruction

7 12, 22, 23, 24,31, 32, 40

Problem-Solving 101, 2, 11, 15,

26, 27, 30, 33,34, 35

Distraction 96, 8, 9, 10, 14,16, 17, 18, 19

Seeks SocialSupport

93, 4, 7, 13, 28,29, 37, 38 ,39

Catastrophizing /

Helplessness 6

5, 20, 21, 25,

36, 41

No

Higher scores indicategreater use of the coping

strategy.


Item Scaling 3-point Likert scale from 0 (Never) to 2 (Often)

Weighting ofItems

No


Scoring Procedure Calculate Scale ScoresSum of all the items over the number of items answered for each Scale.



If 50% or more items are completed: Impute the mean of the completeditems in a scale.


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PPeeddssQQLLTTMM

PPeeddiiaattrriiccPPaaiinnQQuueessttiioonnnnaaiirree

((PPPPQQ))


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The PPeeddssQQLLTTMMPPeeddiiaattrriiccPPaaiinnQQuueessttiioonnnnaaiirreeis composed of 3 items.


DimensionsNumber of

ItemsCluster of



Present Pain1 1

Worst Pain 1 2

NoHigher score = higher

pain intensity.

The third item refers to the localisation of pain and is not scored.


Item Scaling10cm VAS scales from 0 (Not hurting / No discomfort / No pain) to 10(Hurting a whole lot / Very uncomfortable / Severe pain)

Weighting ofItems

No

Extension of theScoring Scale 0-10

Scoring Procedure Present pain and worst pain are scored separately.The score is based on line length to the nearest 0.5 cm.


There is no imputation process since these are single item VAS scales.


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PPeeddssQQLLTTMM

PPrreesseennttFFuunnccttiioonniinngg

VViissuuaallAAnnaalloogguueeSSccaallee((PPeeddssQQLLTTMM

VVAASS))

CHILD and PARENT reports for CHILD (ages 5-18)


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The PPeeddssQQLLTTMMPPrreesseennttFFuunnccttiioonniinnggVViissuuaallAAnnaalloogguueeSSccaalleeis composed of 6 items.

DESCRIPTION OF THE SCALE:

DimensionsNumber of

ItemsCluster of



PresentFunctioning

6 1-6 No Higher score = higherdistress or intensity.


Item Scaling 10cm VAS scales from 0 to 10

Weighting ofItems

No

Extension of theScoring Scale 0-10

Scoring Procedure- PedsQL VAS Total Symptom Score = average of all six items- PedsQL VAS Emotional Distress Summary Score = mean of the

anxiety, sadness, anger, and worry items

Interpretation and

Analysisof Missing Data

There is no imputation process since these are single item VAS scales.


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PPeeddssQQLLTTMM

33..00RRhheeuummaattoollooggyyMMoodduullee



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The Parent Report for Toddlers (age 2-4) of the PPeeddssQQLLTTMM

33..00RRhheeuummaattoollooggyyMMoodduulleeis


DESCRIPTION OF THE RHEUMATOLOGY MODULE:

DimensionsNumber of

ItemsCluster of





Treatment5 1-5 1-5




Weighting ofItems

No


ScoringProcedure







Interpretation





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PPeeddssQQLLTTMM


CHILD and PARENT reports for Young Children (ages 5-7)


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The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00RRhheeuummaattoollooggyyMMoodduulleeffoorr Young Children

(ages 5-7) are composed of 20 items comprising 5 dimensions.


DimensionsNumber of

ItemsCluster of





Treatment5 1-5 1-5

Worry 3 1-3 1-3




Item Scaling5-point Likert scale from 0 (Never) to 4 (Almost always)3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the child report for

Young Children (ages 5-7)Weighting ofItems

No


ScoringProcedure




should not be computed, Mean score = Sum of the items over the number of items answered.





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PPeeddssQQLLTTMM


CHILD and PARENT reports for Children (ages 8-12) and Teens(ages 13-18)


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The Child and Parent Reportsof the PPeeddssQQLLTTMM

33..00RRhheeuummaattoollooggyyMMoodduulleeffoorr::- Children (ages 8-12),- And Teens (ages 13-18)



DimensionsNumber of

ItemsCluster of





Treatment7 1-5 1-5

Worry3 1-3 1-3



lower problems.


Item Scaling

5-point Likert scale from 0 (Never) to 4 (Almost always)

Weighting ofItems

No


Scoring

Procedure





scoring pedsql v5

Documents