SATSA Presentation –

Parliamentary Portfolio Committee

on Sport and Recreation

1st November 2016 09:30

Cape Town

South African Transplant Sports Association

Home for Transplant Athletes

IntroductionSATSA Chairman’s Remarks

• SATSA Delegation

• 1. SATSA Chairman: Mr Stanley Henkeman

• 2 SATSA Executive Secretary: Mr Hermann Steyn

• Committee on Sport & Recreation

• 1. Chairperson of the Committee: Ms Beauty Nomvuzo Dlulane

• 2 Member of the Committee: Mr Mandlenkosi Sicelo

SATSA Management

Vision

•Our vision as a purpose driven sports organisation, is to be a leader in optimising the

quality of life of organ transplant recipients, and through sports and other physical activities,

promote organ donation and transplantation.

Who is SATSA?

•Established in 1994 as TGASA•Restructured and renamed

as SATSA in 2006•A non-profit, purpose driven

Sports Organisation fortransplant recipients

•A uniquely focussed organisation

….who is SATSA?

National & International Recognition•Affiliated Members of SASCOC•Affiliated Member of the

World Transplant GamesFederation (WTGF)

•Represented on the WTGF Council

SATSA Objectives

• To demonstrate the improved quality of life following transplantation through participation in sports activities – National & World Transplant Games

• To facilitate the participation of persons from previously disadvantaged communities, in the activities of SATSA;

SATSA Objectives…….

• To show recipients’ gratitude towards and recognition of living donors and families of deceased donors;

• To promote awareness, educate and inform the general public with regard to the need for organ and tissue donation and transplantation and;

SATSA Objectives………..

• To facilitate co-operation

between persons /

organisations

concerned with and

involved in organ donation

and transplantation eg.

Organ Donor Foundation

Patient Support Groups

What do we do?

• Organise regional recreational events

• Compete at the SA National Transplant Games• Selected to represent the SA Team;

• Compete at the World Transplant Games;

Home to all sport codes

• Track & field

• Road Running• Cycling

• Swimming

• Golf• Tennis

• Badminton

• Squash• Table Tennis

• Petanque

• Ten Pin Bowling

Results & Successes at WTG

NO. GOLD SILVER BRONZE TOTAL

ATHLETES MEDALS

1995 Manchester 26 7 8 17 32

1997 Sydney 23 5** 2 6 13

1999 Budapest 16 8 5 4 17

2001 Kobe 11 1 6 6 13

2003 Nancy * 6 1 2 0 3

2005 London (CA) 14 6** 4 3 13

2007 Bangkok 22 5 8 8 21

2009 Cold Coast (A) 40 16** 12 12 40

2011 Gotenborg 50 15 12 10 37

2013 Durban 75 42** 33 32 107

2015 Mar del Plata 46 41** 24 24 89

2017 Malaga, Spain

(*= Influenced by SARS virus outbreak. **= Included a World Record)

SA Athletes currently hold seventeen World Records

National Transplant Games 2016Johannesburg

World Transplant Games 2017Malaga, Spain

Who can be members?

Full Members:Transplant recipients – heart, lung, liver, kidney, pancreas & bone marrow

Associate members:- Family members of- recipients- Donor families- Individual professionals- Corporate individuals- General public

Membership benefits

•Participate in all sports events Nationally and WTG

•Receive Newsletters & Journals

•Be part of promoting organ donation & transplantation

Membership

Gauteng WC KZN NW/FS EC Namibia Limpopo Mphumalanga Northern Cape

Full Members 123 85 39 14 20 2 2 3 2

Total Members 184 120 64 29 29 2 7 7 2

123

85

39

1420

2 2 3 2

184

120

64

29 29

27 7

2

0

20

40

60

80

100

120

140

160

180

200

Regional Representation

0

20

40

60

80

100

120

Gauteng WC EC KZN NW Mph NC Limp FS

Generic Black Female 24 3 0 5 0 1 0 0 0

White Female 20 19 8 13 2 1 0 1 1

Generic Black Male 34 8 1 9 1 0 0 0 2

White Male 33 48 9 11 5 1 2 1 3

33

48

9 115

1 2 1 3

348

1

9

10 0 0

2

20

19

8

13

2

1 0 11

24

3

0

5

0

1 0 00

Demographics Full Members Regional

White Male Generic Black Male White Female Generic Black Female

Athletes at National Games

0

5

10

15

20

25

6-8 9-17 18-29 30-39 40-49 50-59 60-69

1

13

22

14

19 20

15

Age Groups National Games 2014

0

5

10

15

20

25

30

35

40

Limpopo Ecape NW/OFS Gaut KZN Wcape Namibia Mpumal

46

7

38

11

35

21

Regional Representation National Games 2014

Athletes at World Games

0

5

10

15

20

W Cape Gauteng KZN E Cape North WestFreestate Namibia

19

13

5

3 22 2

Regional Representation World Games 2015

0

5

10

15

20

25

30

35

Kidney Heart Liver Bone Marrow

31

84 3

Organs Transplanted World Games 2015

0

2

4

6

8

10

12

12-14 15-17 18-29 30-39 40-49 50-59 60-69

1 1

12

6

12

8

6

Age Groups World Games 2015

0

5

10

15

20

25

White Male White Female Generic BlackMale

Generic BlackFemale

21

1111

3

Demographics World Games 2015

0

5

10

15

20

25

30

35

2007 2009 2011 2013 2015

GENERIC BLACK REPRESENTATION NATIONAL TEAM

MARKETING

Website•Interactive

Promotion•Success stories•Corporate Identity•Upgrading of promotional material in the increase of awareness of thefederation, disciplines and its activities.

Media and Publicity•Production of Documentaries on SATSA – History, Success Stories, etc.•Improve relationship with the Media•Start Archive of SATSA material•Increase TV coverage for major activities & events

SASCOC Requirements

• Alignment to the geopolitical boundariesWe have a total of 444 members in South Africa (as at 30th March 2016): in the following regions:Gauteng: 182Western Cape: 120KZN: 64Eastern Cape: 29Northwest: 23Limpopo: 7Mphumalanga: 7Northern Cape: 2

It is important to note that we are a multi-coded federation and we do not fall under specific districts. The districts are merely a reflection of where the athletes are from.

Transformation in SATSA

• Transformation, in its broadest context, must be tackled on

• several fronts and is being implemented accordingly:

6 National Priorities

5 Admin

4 Governance

3 Sport Performance

2 Economic

1 Racial

1. Racial and Gender Transformation

• Objectives

• To strengthen participation by all racial groups

• To increase female participation

• Challenges• Unlike other Federations we cannot enroll members from the sportsgrounds

of South Africa as our members are a select group of people who had solid organ transplants.

• It should be noted that there are high costs involved with transplants and they are only being done at private hospitals. Given the affordability of transplants, it limits the economic base of our membership and our transformation. Due to the transplant centres in our country being in Gauteng, KZN and Western Cape, most of the athletes are from these areas due to them having relocated to be near their doctors

2. Economic Transformation

• Objectives

• Capacity-building in our Regions

• Challenges

• Unemployment

• Structural changes to be made in order to achieve economic growth & improve standards of living.

3. Sport Performance

• Objectives

• Establish grassroots programmes to increase participation in sport.

• Training camps for our National Team

• Increase the coaching culture at all levels

• Challenges

• Increased engagement with government at National & Provincial levels

4. Governance

• Objectives• Become the model of good governance amongst sporting codes in• the country• Establish a strong regulatory environment to manage relations• among the members• Build a culture of ethical behaviour that permeates all the way to the• grassroots structures

• Challenges• Lack of respect for basic governance principles

5. Administrative

• Build the most professional team to administer the sport

• Rebuild the culture of voluntarism

• Build culture of service and commitment among all members throughout the country

• Challenges

• Lack of financial resources

6. National Priorities

• Objectives

• Compliance with the National Sports Plan

• Promotion of Organ Donation & Transplantation.

• Challenges

• Resources

Difficulties experienced with Transformation

• Rising cost of living is making it increasingly difficult for volunteers to support the work of the Federation, who cannot pick up all of the expenses.

• Delayed Lottery applications are hampering progress and continuity of programmes.

• SATSA need more funding to improve family support amongst our disadvantaged athletes.

Utilization of Department of Sport Funds

• Administration

• Capacity BuildingThe definition of capacity building is the process aimed at improving the expertise and skills of individuals and the organisation.

• The funds we receive are aimed at contributing to the growth and development of sport. The funds are utilised for specific projects that promotes development initiatives within the federation with the aim of increasing participation.

Talent Identification and Development

• The Department creates an environment for us to function optimally, such that our athletes and administrators can represent South Africa at international level.

• The goal is to maximize access, development and excellence at all levels of participation in sport, to ensure successful participation at international level and also to improve the quality of life for transplanted athletes.

• This programme helps economically disadvantaged athletes to participate at our National Games in order to qualify for selection for the World Games by providing sponsorship for transport, accommodation and food.

• Mass Participations programme in place where the sporting codes are introduced to members

• Recipients are selected on merit in collaboration with local clubs. Eligible athletes are chosen according to qualification criteria.

Highlights

• From inception the Association pursued the following aims & objectives:

• A renewed focus to grow its membership and strengthen the Association’s presence and active involvement in all the provinces;

• To actively pursue the Transformation Objectives as set out in various documents and speeches by the Ministers of Sport and Recreation over the preceding years. It was a particular objective to ensure that the Association’s Management and representative Teams would reflect the demographics of those who had received life-saving organ transplants;

Challenges

• Due to its very unique make-up and position in sport, SATSA does not have the possibility to draw large funding from the traditional sponsors who rightfully look for large returns as far as exposure on national and international television, radio and the printed media.

• Lack of funding is curbing events, timeframes and planning.• It is difficult for disadvantaged athletes to go to National and International

Championships without financial support.• Unlike other Federations we cannot enroll members from the

sportsgrounds of South Africa as our members are a select group of people who had life-saving solid organ transplants.

• The affordability of transplants limits the economic base of our membership and our transformation.

• Organ Donation & Transplantation

Organ donation & transplantations

• There are more than 4,300 patients listed awaiting an organ transplant. Another 30 000 in need of soft tissue like skin, bone & tendons

• Out of R 50 mil population – 200 000 registered donors

• Medical students at UCT – 8% are organ donors.

• Only 500 average transplants are done yearly

• The issue that exists is a Supply & Demand Problem.

• In SA there are only 1.7 donors per million population compared to Spain who have 35 donors per million

• Declining number of deceased donors & transplants

Organ donation & transplantations

•Over 2 000 people are awaiting kidney transplants in Gauteng, this according to Spokeperson for the Gauteng Health department, Steve Mabona.

Patients from seven of the nine provinces have their kidney transplants at Charlotte Maxeke Hospital in Johannesburg and Steve Biko Academic hospital in Pretoria.

Only about 50 transplants have been conducted over the past three years due to the unavailability of matching donors. Mabona says the situation is quite severe.

“It's dire. About 2 000 patients are waiting for the transplant. The other challenge which compounds the list is the non-matching donors so we will then call on members of the community to come to our facilities and be donors.”

Organ donation & transplantations

•Over 2 000 people are awaiting kidney transplants in Gauteng, this according to Spokeperson for the Gauteng Health department, Steve Mabona.

Patients from seven of the nine provinces have their kidney transplants at Charlotte Maxeke Hospital in Johannesburg and Steve Biko Academic hospital in Pretoria.

Only about 50 transplants have been conducted over the past three years due to the unavailability of matching donors. Mabona says the situation is quite severe.

“It's dire. About 2 000 patients are waiting for the transplant. The other challenge which compounds the list is the non-matching donors so we will then call on members of the community to come to our facilities and be donors.”

Total Number of Transplants in South Africa

14401610

1410

10401080

810800

632 724 604556 573

566

0

200

400

600

800

1000

1200

1400

1600

1800

2001

2002

2003

2004

2005

2006

2007

2008

2009

2010

2011

2012

2013

Other Statistics

STATISTICS

2 Largest State Hospitals Waiting List Transplants

Kidney Liver Heart LungKidney/

PancreasKidney/Liv

er Pancreas Total

Charlotte Maxeke, Johannesburg 2 011 7 26

Grootte Schuur, Cape Town 1 000 9 2

Regional Statistics - Solid OrganTransplants

Cape Town 102 4 12 1 119

Johannesburg 87 53 12 6 8 1 1 168

Pretoria 21 21

Durban 17 3 2 22

Bloemfontein 5 5

Total Solid Organs 3 500 232 57 27 8 8 2 1 335

Consent Rates - Cape Town Black Coloured White

Families Asked Consent Families Asked Consent Families Asked Consent

Private Sector 2 0 0% 3 3 100% 9 8 88%

State Sector 28 9 32% 12 4 33% 0 0

Medalists in 2015

TRANSPLANT CENTRES IN SOUTH AFRICA

Adults over 18 Paediatrics under 18

Hospital State or Private Heart Kidney Lung Liver Kidney/Pancreas

A P A P A P A P A P

BLOEMFONTEIN

Universitas State Yes

Netcate Universitas Private Yes

CAPE TOWN

Netcare Christiaan Barnard Memorial Private Yes Yes Yes

Netcare UCT Academic Private Yes Yes

Groote Schuur State Yes Yes Yes

Red Cross Memorial Choldrens State Yes Yes Yes

Tygerberg State Yes

DURBAN

Inkosi Albert Luthuli State Yes

Ethekwini Hospital Private Yes Yes

Entabeni Life Healthcare Private Yes

Netcare St Augustines Private Yes Yes

JOHANNESBURG

Charlotte Maxeke JHB Academic State Yes Yes Yes

Netcare Garden City Clinic Private Yes Yes

Netcare Milpark Hospital Private Yes Yes Yes Yes/with heart Yes

Wits Donald Gordon Private Yes Yes Yes Yes Yes

PRETORIA

George Mukhari Hospital State Yes

Netcare Jacaranda Private Yes

Pretoria Academic State Yes

Way forward

• To continue our previous successes at the World Transplant Games in Argentina in 2015 and before;

• To work towards a lasting legacy that will show in the following:• Greater awareness and knowledge of Transplant Sports;• A better understanding of how transplanted persons can live a normal life and take

their place in society again;• Measurable increases in the numbers of people that register as Organ & Tissue

Donors;• Increased Donor/Transplant rates across the whole of South Africa and even further

into Africa; • Improved Knowledge of the state of Organ Donation & Transplantation in other

countries in Africa and as a result increased cooperation between the various Transplant Centres in Africa.

Recommendations

• Need for political support from local to national level.

• Corporate SA (especially medical companies) to be encouraged to support Transplant sport.

• Government to assist in awareness of organ donation in sports community.

Thank you for the opportunity!