SATSA Presentation –
Parliamentary Portfolio Committee
on Sport and Recreation
1st November 2016 09:30
Cape Town
South African Transplant Sports Association
Home for Transplant Athletes
IntroductionSATSA Chairman’s Remarks
• SATSA Delegation
• 1. SATSA Chairman: Mr Stanley Henkeman
• 2 SATSA Executive Secretary: Mr Hermann Steyn
• Committee on Sport & Recreation
• 1. Chairperson of the Committee: Ms Beauty Nomvuzo Dlulane
• 2 Member of the Committee: Mr Mandlenkosi Sicelo
SATSA Management
Vision
•Our vision as a purpose driven sports organisation, is to be a leader in optimising the
quality of life of organ transplant recipients, and through sports and other physical activities,
promote organ donation and transplantation.
Who is SATSA?
•Established in 1994 as TGASA•Restructured and renamed
as SATSA in 2006•A non-profit, purpose driven
Sports Organisation fortransplant recipients
•A uniquely focussed organisation
….who is SATSA?
National & International Recognition•Affiliated Members of SASCOC•Affiliated Member of the
World Transplant GamesFederation (WTGF)
•Represented on the WTGF Council
SATSA Objectives
• To demonstrate the improved quality of life following transplantation through participation in sports activities – National & World Transplant Games
• To facilitate the participation of persons from previously disadvantaged communities, in the activities of SATSA;
SATSA Objectives…….
• To show recipients’ gratitude towards and recognition of living donors and families of deceased donors;
• To promote awareness, educate and inform the general public with regard to the need for organ and tissue donation and transplantation and;
SATSA Objectives………..
• To facilitate co-operation
between persons /
organisations
concerned with and
involved in organ donation
and transplantation eg.
Organ Donor Foundation
Patient Support Groups
What do we do?
• Organise regional recreational events
• Compete at the SA National Transplant Games• Selected to represent the SA Team;
• Compete at the World Transplant Games;
Home to all sport codes
• Track & field
• Road Running• Cycling
• Swimming
• Golf• Tennis
• Badminton
• Squash• Table Tennis
• Petanque
• Ten Pin Bowling
Results & Successes at WTG
NO. GOLD SILVER BRONZE TOTAL
ATHLETES MEDALS
1995 Manchester 26 7 8 17 32
1997 Sydney 23 5** 2 6 13
1999 Budapest 16 8 5 4 17
2001 Kobe 11 1 6 6 13
2003 Nancy * 6 1 2 0 3
2005 London (CA) 14 6** 4 3 13
2007 Bangkok 22 5 8 8 21
2009 Cold Coast (A) 40 16** 12 12 40
2011 Gotenborg 50 15 12 10 37
2013 Durban 75 42** 33 32 107
2015 Mar del Plata 46 41** 24 24 89
2017 Malaga, Spain
(*= Influenced by SARS virus outbreak. **= Included a World Record)
SA Athletes currently hold seventeen World Records
National Transplant Games 2016Johannesburg
World Transplant Games 2017Malaga, Spain
Who can be members?
Full Members:Transplant recipients – heart, lung, liver, kidney, pancreas & bone marrow
Associate members:- Family members of- recipients- Donor families- Individual professionals- Corporate individuals- General public
Membership benefits
•Participate in all sports events Nationally and WTG
•Receive Newsletters & Journals
•Be part of promoting organ donation & transplantation
Membership
Gauteng WC KZN NW/FS EC Namibia Limpopo Mphumalanga Northern Cape
Full Members 123 85 39 14 20 2 2 3 2
Total Members 184 120 64 29 29 2 7 7 2
123
85
39
1420
2 2 3 2
184
120
64
29 29
27 7
2
0
20
40
60
80
100
120
140
160
180
200
Regional Representation
0
20
40
60
80
100
120
Gauteng WC EC KZN NW Mph NC Limp FS
Generic Black Female 24 3 0 5 0 1 0 0 0
White Female 20 19 8 13 2 1 0 1 1
Generic Black Male 34 8 1 9 1 0 0 0 2
White Male 33 48 9 11 5 1 2 1 3
33
48
9 115
1 2 1 3
348
1
9
10 0 0
2
20
19
8
13
2
1 0 11
24
3
0
5
0
1 0 00
Demographics Full Members Regional
White Male Generic Black Male White Female Generic Black Female
Athletes at National Games
0
5
10
15
20
25
6-8 9-17 18-29 30-39 40-49 50-59 60-69
1
13
22
14
19 20
15
Age Groups National Games 2014
0
5
10
15
20
25
30
35
40
Limpopo Ecape NW/OFS Gaut KZN Wcape Namibia Mpumal
46
7
38
11
35
21
Regional Representation National Games 2014
Athletes at World Games
0
5
10
15
20
W Cape Gauteng KZN E Cape North WestFreestate Namibia
19
13
5
3 22 2
Regional Representation World Games 2015
0
5
10
15
20
25
30
35
Kidney Heart Liver Bone Marrow
31
84 3
Organs Transplanted World Games 2015
0
2
4
6
8
10
12
12-14 15-17 18-29 30-39 40-49 50-59 60-69
1 1
12
6
12
8
6
Age Groups World Games 2015
0
5
10
15
20
25
White Male White Female Generic BlackMale
Generic BlackFemale
21
1111
3
Demographics World Games 2015
0
5
10
15
20
25
30
35
2007 2009 2011 2013 2015
GENERIC BLACK REPRESENTATION NATIONAL TEAM
MARKETING
Website•Interactive
Promotion•Success stories•Corporate Identity•Upgrading of promotional material in the increase of awareness of thefederation, disciplines and its activities.
Media and Publicity•Production of Documentaries on SATSA – History, Success Stories, etc.•Improve relationship with the Media•Start Archive of SATSA material•Increase TV coverage for major activities & events
SASCOC Requirements
• Alignment to the geopolitical boundariesWe have a total of 444 members in South Africa (as at 30th March 2016): in the following regions:Gauteng: 182Western Cape: 120KZN: 64Eastern Cape: 29Northwest: 23Limpopo: 7Mphumalanga: 7Northern Cape: 2
It is important to note that we are a multi-coded federation and we do not fall under specific districts. The districts are merely a reflection of where the athletes are from.
Transformation in SATSA
• Transformation, in its broadest context, must be tackled on
• several fronts and is being implemented accordingly:
6 National Priorities
5 Admin
4 Governance
3 Sport Performance
2 Economic
1 Racial
1. Racial and Gender Transformation
• Objectives
• To strengthen participation by all racial groups
• To increase female participation
• Challenges• Unlike other Federations we cannot enroll members from the sportsgrounds
of South Africa as our members are a select group of people who had solid organ transplants.
• It should be noted that there are high costs involved with transplants and they are only being done at private hospitals. Given the affordability of transplants, it limits the economic base of our membership and our transformation. Due to the transplant centres in our country being in Gauteng, KZN and Western Cape, most of the athletes are from these areas due to them having relocated to be near their doctors
2. Economic Transformation
• Objectives
• Capacity-building in our Regions
• Challenges
• Unemployment
• Structural changes to be made in order to achieve economic growth & improve standards of living.
3. Sport Performance
• Objectives
• Establish grassroots programmes to increase participation in sport.
• Training camps for our National Team
• Increase the coaching culture at all levels
• Challenges
• Increased engagement with government at National & Provincial levels
4. Governance
• Objectives• Become the model of good governance amongst sporting codes in• the country• Establish a strong regulatory environment to manage relations• among the members• Build a culture of ethical behaviour that permeates all the way to the• grassroots structures
• Challenges• Lack of respect for basic governance principles
5. Administrative
• Build the most professional team to administer the sport
• Rebuild the culture of voluntarism
• Build culture of service and commitment among all members throughout the country
• Challenges
• Lack of financial resources
6. National Priorities
• Objectives
• Compliance with the National Sports Plan
• Promotion of Organ Donation & Transplantation.
• Challenges
• Resources
Difficulties experienced with Transformation
• Rising cost of living is making it increasingly difficult for volunteers to support the work of the Federation, who cannot pick up all of the expenses.
• Delayed Lottery applications are hampering progress and continuity of programmes.
• SATSA need more funding to improve family support amongst our disadvantaged athletes.
Utilization of Department of Sport Funds
• Administration
• Capacity BuildingThe definition of capacity building is the process aimed at improving the expertise and skills of individuals and the organisation.
• The funds we receive are aimed at contributing to the growth and development of sport. The funds are utilised for specific projects that promotes development initiatives within the federation with the aim of increasing participation.
Talent Identification and Development
• The Department creates an environment for us to function optimally, such that our athletes and administrators can represent South Africa at international level.
• The goal is to maximize access, development and excellence at all levels of participation in sport, to ensure successful participation at international level and also to improve the quality of life for transplanted athletes.
• This programme helps economically disadvantaged athletes to participate at our National Games in order to qualify for selection for the World Games by providing sponsorship for transport, accommodation and food.
• Mass Participations programme in place where the sporting codes are introduced to members
• Recipients are selected on merit in collaboration with local clubs. Eligible athletes are chosen according to qualification criteria.
Highlights
• From inception the Association pursued the following aims & objectives:
• A renewed focus to grow its membership and strengthen the Association’s presence and active involvement in all the provinces;
• To actively pursue the Transformation Objectives as set out in various documents and speeches by the Ministers of Sport and Recreation over the preceding years. It was a particular objective to ensure that the Association’s Management and representative Teams would reflect the demographics of those who had received life-saving organ transplants;
Challenges
• Due to its very unique make-up and position in sport, SATSA does not have the possibility to draw large funding from the traditional sponsors who rightfully look for large returns as far as exposure on national and international television, radio and the printed media.
• Lack of funding is curbing events, timeframes and planning.• It is difficult for disadvantaged athletes to go to National and International
Championships without financial support.• Unlike other Federations we cannot enroll members from the
sportsgrounds of South Africa as our members are a select group of people who had life-saving solid organ transplants.
• The affordability of transplants limits the economic base of our membership and our transformation.
• Organ Donation & Transplantation
Organ donation & transplantations
• There are more than 4,300 patients listed awaiting an organ transplant. Another 30 000 in need of soft tissue like skin, bone & tendons
• Out of R 50 mil population – 200 000 registered donors
• Medical students at UCT – 8% are organ donors.
• Only 500 average transplants are done yearly
• The issue that exists is a Supply & Demand Problem.
• In SA there are only 1.7 donors per million population compared to Spain who have 35 donors per million
• Declining number of deceased donors & transplants
Organ donation & transplantations
•Over 2 000 people are awaiting kidney transplants in Gauteng, this according to Spokeperson for the Gauteng Health department, Steve Mabona.
Patients from seven of the nine provinces have their kidney transplants at Charlotte Maxeke Hospital in Johannesburg and Steve Biko Academic hospital in Pretoria.
Only about 50 transplants have been conducted over the past three years due to the unavailability of matching donors. Mabona says the situation is quite severe.
“It's dire. About 2 000 patients are waiting for the transplant. The other challenge which compounds the list is the non-matching donors so we will then call on members of the community to come to our facilities and be donors.”
Organ donation & transplantations
•Over 2 000 people are awaiting kidney transplants in Gauteng, this according to Spokeperson for the Gauteng Health department, Steve Mabona.
Patients from seven of the nine provinces have their kidney transplants at Charlotte Maxeke Hospital in Johannesburg and Steve Biko Academic hospital in Pretoria.
Only about 50 transplants have been conducted over the past three years due to the unavailability of matching donors. Mabona says the situation is quite severe.
“It's dire. About 2 000 patients are waiting for the transplant. The other challenge which compounds the list is the non-matching donors so we will then call on members of the community to come to our facilities and be donors.”
Total Number of Transplants in South Africa
14401610
1410
10401080
810800
632 724 604556 573
566
0
200
400
600
800
1000
1200
1400
1600
1800
2001
2002
2003
2004
2005
2006
2007
2008
2009
2010
2011
2012
2013
Other Statistics
STATISTICS
2 Largest State Hospitals Waiting List Transplants
Kidney Liver Heart LungKidney/
PancreasKidney/Liv
er Pancreas Total
Charlotte Maxeke, Johannesburg 2 011 7 26
Grootte Schuur, Cape Town 1 000 9 2
Regional Statistics - Solid OrganTransplants
Cape Town 102 4 12 1 119
Johannesburg 87 53 12 6 8 1 1 168
Pretoria 21 21
Durban 17 3 2 22
Bloemfontein 5 5
Total Solid Organs 3 500 232 57 27 8 8 2 1 335
Consent Rates - Cape Town Black Coloured White
Families Asked Consent Families Asked Consent Families Asked Consent
Private Sector 2 0 0% 3 3 100% 9 8 88%
State Sector 28 9 32% 12 4 33% 0 0
Medalists in 2015
TRANSPLANT CENTRES IN SOUTH AFRICA
Adults over 18 Paediatrics under 18
Hospital State or Private Heart Kidney Lung Liver Kidney/Pancreas
A P A P A P A P A P
BLOEMFONTEIN
Universitas State Yes
Netcate Universitas Private Yes
CAPE TOWN
Netcare Christiaan Barnard Memorial Private Yes Yes Yes
Netcare UCT Academic Private Yes Yes
Groote Schuur State Yes Yes Yes
Red Cross Memorial Choldrens State Yes Yes Yes
Tygerberg State Yes
DURBAN
Inkosi Albert Luthuli State Yes
Ethekwini Hospital Private Yes Yes
Entabeni Life Healthcare Private Yes
Netcare St Augustines Private Yes Yes
JOHANNESBURG
Charlotte Maxeke JHB Academic State Yes Yes Yes
Netcare Garden City Clinic Private Yes Yes
Netcare Milpark Hospital Private Yes Yes Yes Yes/with heart Yes
Wits Donald Gordon Private Yes Yes Yes Yes Yes
PRETORIA
George Mukhari Hospital State Yes
Netcare Jacaranda Private Yes
Pretoria Academic State Yes
Way forward
• To continue our previous successes at the World Transplant Games in Argentina in 2015 and before;
• To work towards a lasting legacy that will show in the following:• Greater awareness and knowledge of Transplant Sports;• A better understanding of how transplanted persons can live a normal life and take
their place in society again;• Measurable increases in the numbers of people that register as Organ & Tissue
Donors;• Increased Donor/Transplant rates across the whole of South Africa and even further
into Africa; • Improved Knowledge of the state of Organ Donation & Transplantation in other
countries in Africa and as a result increased cooperation between the various Transplant Centres in Africa.
Recommendations
• Need for political support from local to national level.
• Corporate SA (especially medical companies) to be encouraged to support Transplant sport.
• Government to assist in awareness of organ donation in sports community.
Thank you for the opportunity!