Sarah Dalton

CHARGE Syndrome

My name is Sarah Dalton I was born with CHARGE syndrome on Boxing day 1996

A nurse at hospital recognised CHARGE syndrome from my ears and coloboma 2 days after birth

From then my medical procedures started

MAIN MEDICAL OPERATIONS

Heart surgery Coarctation repair

Tracheostomy

Choanal Artresia repair

Gastrostomy , Mickey button

Ear surgery

Eye removed

I have had many minor procedures , hospital admissions and intensive care stays

Lots of therapy

Tracheostomy removed just before school

Started Cockle Bay school

Many challenges at school

Feeding tube removed at age nine

I have had some great accomplishments

The things I still have trouble with are my

Heart and circulation

Swallowing and voice

Balance

Vision

lungs