public involvement in research
DESCRIPTION
Public involvement in research. Lucy Simons Public Involvement Advisor INVOLVE Promoting public involvement in NHS, public health and social care research. www.invo.org.uk. INVOLVE. National advisory group. Funded by the Department of Health since 1996. - PowerPoint PPT PresentationTRANSCRIPT
Public involvement in research
Lucy SimonsPublic Involvement Advisor
INVOLVE
Promoting public involvement in NHS, public health and
social care research
www.invo.org.uk
National advisory group. Funded by the Department of Health since 1996.One of the National Institute for Health Research Programmes (NIHR).
Promotes active involvement of the public in NHS, public health and social care research
www.invo.org.uk
INVOLVE
Research carried out ‘with’ or ‘by’ the public rather than ‘to’, ‘about’ or ‘for’
For example:• involvement on steering committees• commenting on design• as joint collaborators
We use the term ‘public’ to include patients, service users, carers, and representatives of people who use services
www.invo.org.uk
• Influencing policy and practice
• Increasing awareness and sharing experiences of others- website (www.invo.org.uk)- newsletters- database of research projects
• Giving advice and guidance- publications- enquiries
• Improving understanding of extent, nature and effects of involvement
- invoNET- Impact study
www.invo.org.uk
The role of INVOLVE
• people who are affected by research should have a say in what and how research is undertaken
• it can improve the quality of the research
• the National Institute for Health Research (NIHR) and the Department of Health support the importance of public involvement
www.invo.org.uk
Why is public involvement important ?
www.invo.org.uk
How are people getting involved in research?
www.invo.org.uk
Levels of involvement
Consultation Collaboration Control
IMPLEMENTATION
IDENTIFYING & PRIORITISING
TOPICS
DESIGNING
ANALYSING & INTERPRETING
COMMISSIONING AND MANAGING
UNDERTAKING RESEARCH DISSEMINATION
MONITORING & EVALUATION
researchcycle
INVOLVENovember 2004
• Improving relevance of research
• Improving quality of research design, methods and findings
• Supporting the communication of research information
www.invo.org.uk
Making a difference to research
•Tokenism
•Finding people to get involved
•Time commitment and resources
•Ensuring accessibility
•Accessing training, mentoring and support
•Rewarding and reimbursing involved people
www.invo.org.uk
Challenges to public involvement
• Research scenario
• What would be the purpose of involving service users in this research? • How would a service user perspective help in developing this proposal?
•How can service users be involved to achieve these aims?•What considerations are there to ensure it is successful?
www.invo.org.uk
Group exercises
Help and supportINVOLVE • website (www.invo.org.uk)• newsletter• research project database• publications• enquiries• building an evidence / knowledge base
Research Design Services• public involvement leads• remit to advise on public involvement
