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Preparation Resources for Renal Biopsy Claire Hardy Senior Health Play Specialist

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Page 1: Preparation Resources for Renal Biopsy - Home - EMEESY · Preparation Resources for Renal Biopsy Claire Hardy ... Specialist . How the role of the HPS was established 1985 : The unit

Preparation Resources for

Renal Biopsy

Claire Hardy

Senior Health Play Specialist

Page 2: Preparation Resources for Renal Biopsy - Home - EMEESY · Preparation Resources for Renal Biopsy Claire Hardy ... Specialist . How the role of the HPS was established 1985 : The unit

How the role of the HPS was established

1985 : The unit was established at Nottingham City

Hospital

The vision: A multi professional team supporting children and young

people living with kidney disease and their families

This team was to consist of:

• Nephrologists

• Specialist Nurses

• Dietician

• Social worker

• Psychologist

Page 3: Preparation Resources for Renal Biopsy - Home - EMEESY · Preparation Resources for Renal Biopsy Claire Hardy ... Specialist . How the role of the HPS was established 1985 : The unit

The introduction of the Play Specialist

1989 :Play Specialist were in post in other areas of children's

care at QMC campus to help prepare and support patients

• The unit at City Campus recognised the need for play and the

role was established within the renal unit as part of the

psychosocial team

• It was felt the Play could help alleviate the trauma of treatment

and procedures for those children with Chronic Renal Failure

Nottingham Paediatric Renal Services have offered almost 30 years

of Play support for our patients and families

Page 4: Preparation Resources for Renal Biopsy - Home - EMEESY · Preparation Resources for Renal Biopsy Claire Hardy ... Specialist . How the role of the HPS was established 1985 : The unit

In 1993: The unit worked together to develop a Painful procedures

Booklet and video.

Highlighting the Importance of using numbing cream and sprays , as

well as the use of distraction

Collier J, MacKinlay D, Watson AR (1993) Painful Procedures: preparation and coping strategies for children

This Changed the way in which doctors and nurses worked -

• Procedures with little notice • No preparation • No plans for distraction

• Planned procedures • Time to build relationships • Preparation • Plans for distraction

Page 5: Preparation Resources for Renal Biopsy - Home - EMEESY · Preparation Resources for Renal Biopsy Claire Hardy ... Specialist . How the role of the HPS was established 1985 : The unit

The HPS Role within Renal Services

Preparation • Dialysis • Transplantation • Renal Biopsy

Family & Sibling Support

Home visits

Residential Holidays

Distraction for procedures

Bereavement support

Renal and urology scan support

Developing resources

MDT meetings

Post procedural work

Help with Medication/ feeding

Child friendly ward environment

HPS

CKD Days

Family Information days

Activities & Events

Clinic appointments

Page 6: Preparation Resources for Renal Biopsy - Home - EMEESY · Preparation Resources for Renal Biopsy Claire Hardy ... Specialist . How the role of the HPS was established 1985 : The unit

Preparation materials

• As a unit we have produced

many booklets about renal

procedures including:

Rebecca has a Biopsy

• Photo diaries

• http://www.infokid.org.uk/kid

ney-biopsy

Page 7: Preparation Resources for Renal Biopsy - Home - EMEESY · Preparation Resources for Renal Biopsy Claire Hardy ... Specialist . How the role of the HPS was established 1985 : The unit

Developing resources

Booklets Dolls

Transplant board game

Page 8: Preparation Resources for Renal Biopsy - Home - EMEESY · Preparation Resources for Renal Biopsy Claire Hardy ... Specialist . How the role of the HPS was established 1985 : The unit

Importance of preparation video

Page 9: Preparation Resources for Renal Biopsy - Home - EMEESY · Preparation Resources for Renal Biopsy Claire Hardy ... Specialist . How the role of the HPS was established 1985 : The unit

What can we develop to engage patients &

families in biopsy preparation?

Page 10: Preparation Resources for Renal Biopsy - Home - EMEESY · Preparation Resources for Renal Biopsy Claire Hardy ... Specialist . How the role of the HPS was established 1985 : The unit

Animation

Page 11: Preparation Resources for Renal Biopsy - Home - EMEESY · Preparation Resources for Renal Biopsy Claire Hardy ... Specialist . How the role of the HPS was established 1985 : The unit