polio spring 2004 newsletter

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7/21/2019 Polio Spring 2004 Newsletter http://slidepdf.com/reader/full/polio-spring-2004-newsletter 1/8 Issue Two • Spring 2004 Volume One • Issue Two • Spring 2004 olio Canada groups from across the country made the second Polio Awareness Month in March a huge success.The phones rang off the hook in the first week of the month as Associated Press and Reuters ran articles nationwide about post-polio syndrome and Polio Canada ® . Other news agencies quickly followed suit as Polio Canada ® representatives appeared on local,regional and provincial radio and television stations. Our thanks go to the many dedicated volunteers who helped make this year’s Polio Awareness Month such a success — the group leaders who organized speakers for seminars; the volunteers who manned the booths at local malls; and the friends who donated books on post-polio syndrome to their local libraries. You too, can spread the word about post-polio syndrome! March may be Polio Awareness Month, but awareness is really a year-round activity.To find out how you can help, contact Polio Canada ® at 1-800-480-5903. Elizabeth Lounsbury Chair Polio Canada ® he late effects of polio and post- polio syndrome are the names given to new health problems affecting individuals who contracted poliomyelitis earlier in their lives.While both are related to polio, they are different in many ways and it is important for survivors and health care professionals to understand how they differ. Dr. Julian Lo, MD, FRCPC, Physiatrist, West Park Health Care Centre provides this brief explanation: The Late Effects of Polio The late effects of polio is a general term used to describe new health problems occurring later on in life.These problems occur as a result of many years of living with the residual effects of polio. For example, individuals may experience pain from tendonitis and bursitis due to the imbalances of muscle strength and musculoskeletal deformities.This longstanding stress on the body may also contribute to the development of degenerative osteoarthritis. The late effects of polio is not the same as post-polio syndrome. Post-Polio Syndrome Post-polio syndrome (PPS) is a neurological disorder characterized by progressive weakness, generalized fatigue and pain occurring many years after the initial polio affliction. Some studies reveal that up to 50% of polio survivors may eventually experience post-polio syndrome. Polio Awareness Month a Huge Success The Late Effects of Polio or Post-Polio Syndrome — Is there a difference? P T

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Polio Canada National Survivors Network March of Dimes Spring 2004

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Page 1: Polio Spring 2004 Newsletter

7/21/2019 Polio Spring 2004 Newsletter

http://slidepdf.com/reader/full/polio-spring-2004-newsletter 1/8

Issue Two • Spring 2004Volume One • Issue Two • Spring 2004

olio Canada groups from acrossthe country made the second PolioAwareness Month in March a huge

success.The phones rang off the hook inthe first week of the month as AssociatedPress and Reuters ran articles nationwideabout post-polio syndrome and Polio Canada®.Other news agencies quickly followed suitas Polio Canada® representatives appearedon local, regional and provincial radio andtelevision stations.

Our thanks go to the many dedicatedvolunteers who helped make this year’sPolio Awareness Month such a success — the group leaders who organized speakersfor seminars; the volunteers who manned

the booths at local malls; and the friendswho donated books on post-poliosyndrome to their local libraries.

You too, can spread the word aboutpost-polio syndrome! March may bePolio Awareness Month, but awareness isreally a year-round activity.To find outhow you can help, contact Polio Canada®

at 1-800-480-5903.

Elizabeth LounsburyChair Polio Canada®

he late effects of polio and post-polio syndrome are the namesgiven to new health problems

affecting individuals who contractedpoliomyelitis earlier in their lives.While bothare related to polio, they are different in

many ways and it is important for survivorsand health care professionals to understandhow they differ.

Dr. Julian Lo, MD, FRCPC, Physiatrist,West Park Health Care Centre providesthis brief explanation:

The Late Effects of PolioThe late effects of polio is a general term

used to describe new health problemsoccurring later on in life.These problemsoccur as a result of many years of living with

the residual effects of polio. For example,individuals may experience pain fromtendonitis and bursitis due to the imbalancesof muscle strength and musculoskeletaldeformities.This longstanding stress onthe body may also contribute to the

development of degenerative osteoarthritis.The late effects of polio is not the sameas post-polio syndrome.

Post-Polio SyndromePost-polio syndrome (PPS) is a neurological

disorder characterized by progressiveweakness, generalized fatigue and painoccurring many years after the initial polioaffliction. Some studies reveal that upto 50% of polio survivors may eventuallyexperience post-polio syndrome.

Polio Awareness Montha Huge Success

The Late Effects of Polioor Post-Polio Syndrome — Is there a difference?

P

T

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Randomized controlled trial of strength training in post-poliopatientsK. Ming Chan, MD, FRCPC; Nasim

 Amirjani, MD; Mae Sumrain, BSc;AnitaClarke, BSc; Fay J. Strohschein, BScFaculty of Medicine, University of Alberta

 Muscle & Nerve, March 2003,Volume 27,Issue 3, pp. 332-338

 AbstractMany post-polio patients develop

new muscle weakness decades afterthe initial illness.However, its mechanism

and treatment are controversial.Thepurpose of this study was to test thehypotheses that: (1) after strengthtraining, post-polio patients showstrength improvement comparableto that seen in the healthy elderly;(2) such training does not have adeleterious effect on motor unit(MU) survival; and (3) part of thestrength improvement is due to anincrease in voluntary motor drive.After baseline measures includingmaximum voluntary contraction

force, voluntary activation index,motor unit number estimate, and thetetanic tension of the thumb muscleshad been determined, 10 post-poliopatients with hand involvement wererandomized to either the trainingor control group.The progressiveresistance training program consistedof three sets of eight isometriccontractions, three times weeklyfor 12 weeks. Seven healthy elderlywere also randomized and trained

in a similar manner. Changes in thebaseline parameters were monitoredonce every 4 weeks throughoutthe training period.The trained post-polio patients showed a significantimprovement in their strength (P < 0.05).The magnitude of gain was greaterthan that seen in the healthy elderly(mean ± SE, 41 ± 16% vs. 29 ± 8%).The training did not adversely affectMU survival and the improvement

was largely attributable to anincrease in voluntary motor drive.

We therefore conclude thatmoderate intensity strength training issafe and effective in post-polio patients.

•Post-polio syndrome and totalhealth status in a prospectivehospital studyE. Farbu,T. Rekand and N. E. GilhusEuropean Journal of Neurology, July 2003,Volume 10, Issue 4, p. 407

New loss of function among

patients with previous polio is frequent-ly reported and has several causes.Allpatients referred to the Departmentof Neurology, Haukeland UniversityHospital,Bergen, for 13 months during2000-2001 with diagnosis late effectsof polio were examined prospectivelyto identify their symptoms and lossof function.Eighty-five patients aged47-91 years with mean of 61 yearswere included.The most commoncomplaints were pain (44%), muscularweakness (27%), and fatigue (16%).

Muscular weakness occurred inlower limbs in 75%, in respiratorymuscles in only 5%.Walking in stairswas impaired in 72% and outdoorwalking in 65%. Seventeen patients(19%) reported no loss of function.

Post-polio syndrome was diagnosedin 26% of the patients. Polio-relatedloss of function including cervicaland lumbosacral radiculopathies,mononeuropathies and degenerative

 joint disease were found in an additional

53%. Eleven patients (13%) had distinctnonpolio-related disorders thatcaused new loss of function.Theremaining 8% had a stable condition.

In conclusion,the majority of  polio patients who seek hospital,experience a new loss of functionbecause of polio-related disorders.

 A careful neurological examinationis necessary to identify the correctdiagnosis and treatment.

Cardiac risk factorsin polio survivors

 A.C. Gawne, K.R.Wells, K.S.Wilson Archives Physical Medicine and Rehabilitation, May 2003,Volume 84,pp. 694-696Objective: To assess the prevalenceof dyslipidemia (a condition markedby abnormal concentrations of lipidsor lipoproteins in the blood) andother risk factors for coronary heartdisease in a sample of polio survivorswith and without post-poliomyelitis

syndrome.Conclusion: Polio patients havea high prevalence of dyslipidemia.The study sample supports the (UnitedStates) National Cholesterol EducationProgram's Adult Treatment Panel IIIstatements that hypercholesterolemia(the presence of excess cholesterolin the blood) is underdiagnosedand undertreated.The post-polio

 population carries a high prevalenceof 2 or more coronary heart diseaserisk factors. Evaluation and

rehabilitation of polio patientsshould include screening fordyslipidemia and education aboutelimination of controllable risk factors.

•Quadriceps muscle strength andvoluntary activation after polio

 Anita Beelen, PhD;Frans Nollet, MD, PhD; Marianne de Visser, MD, PhD; Bareld A.de Jong,MD, PhD; Gustaaf J. Lankhorst,

 MD, PhD;Anthony J.Sargeant, PhDDepartment of Rehabilitation Medicine,VUUniversity Medical Center,The Netherlands

 Muscle & Nerve,August 2003,Volume 28,pp.218-226

 AbstractQuadriceps strength, maximal

anatomical cross-sectional area(CSA), maximal voluntary activation(MVA), and maximal relaxation rate(MRR) were studied in 48 subjectswith a past history of polio, 26 with

Recent StudiesNew Research into Post-Polio

Continued on page 7

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“It is difficult for recent generations to

imagine the fear which ‘infantile paralysis’ or poliomyelitis engendered half a century ago. Epidemics developed throughout theworld, generally during the summer months,and struck people without warning.” 

 — Dr. Richard Cruess,former McGill Dean of Medicine

anada’s first major polioepidemic occurred in 1927.Not until the emergence

of HIV-AIDS years later would an illness

grip the population and preoccupygovernment and the medical communityto such an extent.Between 1927 and1953 (Canada’s largest epidemic),poliomyelitis tended to increasenot only in incidence rate, but alsoin severity.The development of theSalk and Sabin vaccines was thebeginning of the end for a diseasethe United Nations hopes will beeradicated by next year.

Walking Fingers tells the story of polio, its history and Canada’s pivotal

role in the production and massdistribution of vaccine to thousands of children,and the story of determinedpeople and organizations (like theMarch of Dimes) that raised fundsfor immunization clinics acrossCanada in the late 1950s.At thecore of the book are 36 poignantstories of polio survivors and theircaregivers from all walks of life, including

Prime Minister Paul Martin, Jr.Arranged in chronological order (fromthe date of their infection, ranging from1923 to 1984), their accounts revealthe evolution of medical treatmentin Canada over the last 80 years.Check your local bookstore in April.

New Canadian Polio History Book Released:Walking Fingers:The Story of Polio and Those Who Lived With It

Edited by Sally Aitken, Helen D’Orazio and Stewart Valin

f you once had polio and areexperiencing new symptoms, it’simportant to know you are not

alone.There is somewhere you canturn for support, information, andadvice from people who can help youunderstand the late effects of polio,or post-polio syndrome.

Polio Canada ®’s Coping Strategies• Don’t get overtired — learn how

to pace yourself.• Remember pain is not gain;

conserve to preserve.• Discuss any exercise program with

your doctor or physical therapistbefore you start. Make sure thathe/she is aware of the facts related

to PPS and exercise by requestingan Educational Kit from Polio Canada®.

• Don’t get chilled — make ita habit to carry a sweater withyou whenever you go out.

• Have periodic muscle strengthevaluations by a health careprofessional who is knowledgeable

about post-polio syndrome.• Eat a nutritious diet, includingenough bulk-producing fibre,and watch your weight.

• Maintain a positive attitudetoward your health.

Your Post-Polio Action Plan• Join Polio Canada®’s Post-Polio

Survivor’s Registry.

• Join the post-polio support groupin your area.

• Do some research. Obtain freeEducational Kits from Polio Canada®;search your local library and askyour health care professionals.

• Discuss your symptoms withyour health care professionals.Contact Polio Canada® and askus to send them a Health CareProfessional’s Educational Kit.

• Ask your health care professionalfor a referral to a post-polio clinicor medical specialist in your area.Contact Polio Canada® to findthe nearest clinic or specialist.

• Attend a local post-polio seminar orconference for the latest information.

Helping You Cope

I

C(Above) A Toronto nurse shares the good news of the Salk vaccine with a polio survivor in 1955.

(Below) Raija Latva-Aro(l) presents Dr. Julie Silver’sbook Post-Polio Syndrometo a representative ofthe Greater Sudbury Public Library to commemoratePolio Awareness Month.

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Saskatchewan Awareness of Post-Polio Society Inc.by Ron Johnson, President

Saskatchewan Awareness ofPost-Polio Society Inc. (SAPP) wasincorporated in June 1989. In the past,we have sponsored several members tosymposia across Canada, from BritishColumbia to Quebec.Our SaskatoonPost-Polio Society (PPS) Support Groupraises a fair amount of money fromselling car raffle tickets for the CanadianParaplegic (Saskatoon) Inc.The money

is a necessity, but the exposure weget in our mall locations goes beyonddollars.We reach one to five new poliosurvivors each time we set up at a mall.Though they may not all take out aSAPP membership,we stay in contact.

•Kim Dowds, Manager of Polio

Canada®, visited Saskatoon this pastNovember and she and I met withthe Saskatoon Meewasin RotaryClub, physiatrists at City HospitalRehabilitation, Continuing Nursing

Education at University Hospital andthe physiotherapy and occupationaltherapy staff at Parkridge Centre.

•The Saskatoon PPS Support

Group meets monthly. Special annualevents include our June barbeque andcatered Christmas Supper.A standing

 joke is that the barbeque will berained out by a good thunderstorm(I believe we have missed rain twice).In fact, odds are that our ChristmasSupper sees a good blizzard as well!

•Post-Polio Awareness andSupport Society of BCby Gaile Lacy,Vice President -

 Mainland The Polio Canada® meeting and

mini-workshop hosted by Kim Dowds,Manager of Polio Canada®, was heldin Abbotsford, BC on November 18,2003.The event was well-attended bymembers from Mission,Abbotsford,

Chilliwack, Maple Ridge, Langley,White Rock,West Vancouver, andNorth Vancouver.

Many thanks to Miki Boleen of Abbotsford who did a great job of organizing the meeting venue, etc., andto Kim Dowds for taking time to meetwith members of Post-Polio Awarenessand Support Society of BC (PPASS BC)and to get their feedback.

•Our 2004 Polio Awareness Month

(March) was a relatively low-key eventthis year. Our area groups haveraised awareness of post-poliosyndrome with many mall displays,mini-seminars, and public information

and speaking events. Our 2005 plansinclude a much larger-scale effortthat will hopefully tie in with ourhosting a special 2005 symposiumand the end of Rotary International’sPolio Plus Eradication Program.In the meantime, the Finance andFundraising Committee of PPASS isworking extremely hard to try to findnew sources of funding for such eventsas the proposed 2005 symposium.

•Polio Regina Inc.

by Carole Einfeld, PresidentOur annual Christmas party wasa great success with about 77 peopleenjoying a wonderful turkey dinnerand a puppet show put on by a youthgroup from a local church. It wasa fantastic show, with puppetsimpersonating Sonny and Cher,Elvis Presley, and other oldies.We all

 joined in singing Christmas carols.Atthe end of their show, the performers

got everybody up out of our chairsand wheelchairs (those who wereable) to shake hands with everyonein the room and wish all a MerryChristmas! It was a warm wonderfulending to a fun evening.

•Southern Alberta Post-PolioSupport Societyby Reny de Jong, President

Southern Alberta Post-PolioSupport Society worked on manyprojects in the past year including:• an educational booklet for polio

survivors and general practitionersthat covers diagnosis, treatment,physiotherapy and other informationon post-polio syndrome.The bookletis available in English, and informationon how to purchase it is on thePolio Canada® Web site atwww.poliocanada.com.

• new display boards for mall displaysand health care information sessions

• Polio Awareness Month 2003displays in Calgary

• health care information sessions forover 120 physiotherapists at CityHall,Telus Convention Centre,Market Mall, Senior Resource Fair,Peter Lougheed Hospital, FoothillsHospital, Fanning CentreRehabilitation Department, andRockview Hospital

• display and presentation to FederalPensioner’s National Association

• outreach and contacts with poliosurvivors

So where do we go from here?Our plans for this year’s Polio

Cross-Country Check-UpNews from Post-Polio Support Groups

 Across Canada

(Right)The Inaugural 

 Meeting ofPolio Northern

New Brunswick

Continued on page 5

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Awareness Month have been justas busy.We hosted a day-long publicinformation session on March 27

and we plan to reach out to othercommunities in southern Albertaincluding Lethbridge, Medicine Hat,Red Deer, and Hanna.

We are currently working ona booklet for physicians, surgeonsand other specialists, as well as onespecifically for physiotherapists andoccupational therapists.

So, if you think we were busylast year, our 2004 projects are fairlyambitious. However, with the helpof our volunteers and members, it is

all quite feasible. •Polio Northern New Brunswick by Peter Heffernan, Chair 

Polio Northern New Brunswick is one of the newest groups of PolioCanada® and we are so excited bythe activity to date and our plansfor the future.

We now meet monthly in Saint John,held a mall display for PolioAwareness Month,and we’re hopingto have a summer barbeque with other

polio survivors from across theprovince, including our sister groupin Bathurst.

• Wildrose Polio Support Society,Edmontonby Pat Laird,Vice President

This has been a very exciting yearfor our relatively new support group(established in November 1999).In 2003, we displayed at the RoyalAlexandra Hospital during PolioAwareness Month, and received

further exposure when EdmontonMayor Bill Smith declared April 6-12Polio Awareness Week. In additionto putting up three display boardscommemorating the 50th anniversaryof the largest polio epidemic in Alberta,we explained PPS and our supportgroup, and displayed photos of thecurrent polio eradication projects.There was also an iron lung for publicviewing,courtesy of Rotary Club.

Our members and events have alsoreceived positive attention with thelocal television station and newspaper,including a front-page article in theEdmonton Journal discussing polio,PPS, our support group and our polio

physio clinic. •During the 50th anniversary

commemoration of the largest polioepidemic in Alberta, we held a banquetand Post-Polio Awareness Conferencein Edmonton, September 5-6.Dr. Rubin Feldman, one of Canada’sforemost experts on post-poliosyndrome, was the keynote speakerat the Friday evening banquet andrecognition ceremony. Our grouppresented certificates of recognition

to organizations and individuals whoseinvolvement in the fight against polioprovided hope and support to thesurvivors and their families.

The Saturday program includedthree panel discussions.The first dealtwith the challenges faced at the timeof the epidemic.The second paneldiscussed medical and technologicaldevelopments related to polio during

the 1960s and 70s, while the thirdpanel dealt with the contemporarypolio landscape.

The event was attended by poliosurvivors, their friends and family andhealth care personnel who providedfront-line care, either directly orindirectly, during the epidemic yearof 1953. It was a chance for peopleto renew old acquaintances and meetnew friends.Total attendance for thetwo days was close to 400.

We are hoping to bring more

awareness of PPS to polio survivors, thegeneral public and health professionalsin the upcoming year through ourpartnerships and activities.

very Mother’s Fear:Alberta’sPolio Experience exploresthe varied dimensions of 

our encounter with one of the20th century’s most dreaded diseases.The exhibition opened February 7, 2004at the Provincial Museum of Alberta’sSpotlight Gallery and runs untilSeptember 12, 2004.

Few diseases have inspired thesort of terror that polio gave rise toin the first half of the last century.

Memories of children with disabilities,school closures, fears of public places,and that most terrifying symbol of polio — the iron lung — haveremained vivid for many who livedthrough polio epidemics.Our culturalunderstanding of polio is largelydefined by that fear, that horror,remembered so well by parents and

children who can recall the panicthat a stiff neck or a slight flu mightarouse during polio season.

The Every Mother’s Fear exhibitionin Edmonton seeks to convey a deepunderstanding of the meaning of Alberta’s polio history.The galleryoffers a compelling narrative thatextends beyond the particularitiesof the people and places described,illuminating fundamental dimensionsof the human experience of sufferingand vulnerability, as well as theremarkable capacity of human beingsto respond to crises with intellect,courage, compassion,and even joy.

For more information on theexhibit, please contact Matthew

 Wangler at 780-453-9100 orvisit the museum Web site atwww.pma.edmonton.ab.ca.

Every Mother’s Fear  — Exhibition on the History of Polio Opens in Edmonton

By Matthew Wangler Provincial Museum of Alberta

Cross-Country Check-UpContinued from page 4

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or many years, most physicianshave understood that non-paralytic is a loose clinical

term implying that neither thepatient nor the clinician-examinerreported functional weakness.Thisdetermination was often made withoutthe understanding that 50% of the motorunits can be lost before a manual musclegrade of 4 occurs.This means thatmany patients with acute polio werelabelled nonparalytic incorrectly but

certainly in a well-meaning way.When the poliovirus is in thegastrointestinal tract of an individualand causes symptoms, the termabortive polio has been used.This isthe condition that confers immunityon the individual and also preventsthe carrier state.This is why the Sabin(attenuated, live poliovirus) vaccine ispreferred in most circumstances.The Salk (inactivated virus) vaccineprevents the invasion of the poliovirusinto the central nervous system, but

not the poliovirus from living in thegastrointestinal tract.

In those individuals whose immunesystems, for whatever reason, permit

the invasion of the central nervoussystem by the poliovirus, a populationof anterior horn cells will die.Thenumber of these cells that die willdetermine whether the clinician willbe able to identify paralysis.

In the late 1950s, our electro-myographic studies suggested thatin all patients who experienced theinvasion of the central nervous systemby the virus, pain,meningismus, andpositive spinal fluid findings revealed

abnormal irritability (fibrillation andpositive waves) in many muscles thatwere clinically “normal.”

It should be absolutely understoodthat patients who were told that theyhad nonparalytic polio did, in reality,have polio,which affected their anteriorhorn cells. Now, 30 to 40 years later,these patients are potentially subjectto all of the vagaries and insults tothe body that affect other personswith post-polio syndrome.

Dr. Johnson is editor of the American Journal of Physical Medicine and Rehabilitation.

A Clarification ofNonparalytic Polio

By Ernest W. Johnson, MD

Top 10 SignsYou May BeExperiencing

Post-PolioSyndrome

 #10.You require a massage to getto your masseuse.

 #9.Your nights are spent moaningand groaning and you sleep alone.

 #8.A headache is a welcome relief from the muscle aches.

 #7. Your exercise programconsists of removing the topof the pickle jar.

 #6.You don’t have enough breathto make a good obscene phone call.

 #5. You need crutches to get toyour wheelchair.

 #4. Atrophy isn’t the award youwon bowling.

 #3. You developed a game showcalled “Name that Pain.”

 #2. You feel like having a nap andyou just woke up.

 And the #1 sign you may beexperiencing post-polio syndrome…

Your Handi-bus driver hasto tuck you in at night.

Submitted by Reny and Gerryde Jong, Southern Alberta Post-PolioSupport Society (SAPPSS).Reny is thePresident of SAPPSS and Gerry is her husband and Handi-bus driver.

F

(Left) Raija Latva-Aro(centre), Chair of theSudbury and DistrictPost-Polio Chapter of Ontario March of Dimes, shows off her new Dr. Scholl’s shoesto Walmart employees,Christine Gray (l) andChris Johnston (r).Walmart-Sudburyallows polio survivorsto purchase shoes withdiffering left and rightsizes for the cost ofa regular pair.

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and 22 without post-poliomyelitissyndrome (PPS), and in 13 controlsubjects. It was also investigated

whether, apart from CSA, MVA andMRR were determinants of musclestrength.Polio subjects had significantlyless strength, CSA, and MRR in themore-affected quadriceps than controlsubjects.MVA was reduced in 18 poliosubjects and normal in all controls.PPS subjects differed from non-PPSsubjects only in that the MVA ofthe more-affected quadriceps wassignificantly lower. Both CSA andMVA were found to be associatedwith muscle strength. Quadriceps

strength in polio subjects wasdependent not only on musclemass, but also on the ability toactivate the muscles. Since impaired activation was more pronounced in PPS subjects, the new muscleweakness and functional declinein PPS may be due not only to a

 gradual loss of muscle fibers, butalso to an increasing inability toactivate the muscles.

•Motor nerve cell 'factory' findingsmay elicit treatments for spinal

cord injury, post-polio syndromeSalk Institute press release,Summer 2003

La Jolla,Calif.— Manufacturing motornerve cells may someday be possible tohelp restore function in victims of spinalcord injury or such diseases of motionas Parkinson’s and Lou Gehrig’s diseaseor post-polio syndrome, a Salk Instituteresearch study has found.

Salk Associate Professor Sam Pfaff and postdoctoral fellow Soo-Kyung Leereported in a paper in the June 5 issueof Neuron that they constructed a

detailed model of how stem cells areprodded, regulated and otherwiseencouraged to become not only nervecells, but specifically motor neurons thatthe body relies on to move musclesand limbs throughout the body.

The study provides the firstblueprint for the cellular factory

that produces motor neurons fromembryonic stem cells.It could eventuallyresult in new treatments for spinalcord injury, and other diseases thataffect motor nerve cells (includingpost-polio syndrome).

“In the embryonic nervoussystem, many types of neurons aregenerated with distinct properties.We used nature as a model tounderstand how genes interact todevelop motor nerves in the spinalcord.This study showed an unusuallyefficient yield of 60 percent motornerves,” said Pfaff.“In adults, the growthcues that produce motor neurons fromstem cells are gone.The signalling isgone after development is over,denying new, transplanted cells any

cues for growth.This model, if itproves effective in humans, may helpre-create those cues to help treatthese injuries and diseases.”

 All studies and articles are reprinted with permission.

Recent StudiesContinued from page 2

April5 – Quebec – MontrealPolio Quebec Inc.Support group meeting17 – Saskatchewan – SaskatoonSAPPAnnual General Meetingwith a guest speaker17 – British Columbia – Vancouver AreaPPASS BC

Display at the Antiques Road Show18 – Quebec – MontrealPolio Quebec Inc.Social event at Scores Restaurant20 – New Brunswick – BathurstPolio Northern New Brunswick Guest speaker: Dianne CormierNorthrup

 Making Choices That Work for You

29 – Saskatchewan – ReginaPolio Regina Inc.Support group meetingand guest speaker

May1 – Ontario – WaterlooWaterloo Post-Polio Chapter – Ontario March of DimesAccessibility Expo featuring thenew Waterloo Region accessiblekneeling bus and productdemonstrations and try-outsfrom Shoppers Home Health CareWaterloo Adult Recreation Centrefrom 1:00 p.m. to 4:00 p.m.3 – Quebec – MontrealPolio Quebec Inc.Support group meeting15 – Ontario – BarrieBarrie and District Post-Polio

Chapter – Ontario March of DimesMini-conference on post-poliosyndrome from 9:00 a.m. to 4:30 p.m.27 – Saskatchewan – ReginaPolio Regina Inc.Support group meetingand guest speaker

 June(Date TBA) Saskatchewan – ReginaPolio Regina Inc.

Annual picnic atthe Neil Balkwill Centre5 – Quebec – Rouyn NorandaPolio QuebecRegional meeting7 – Quebec – MontrealPolio Quebec Inc.Support group meeting

UPCOMING EVENTSHere are just a few upcoming events across the country. For more event listings, check the Polio Canada® Web site

at www.poliocanada.com. For details, contact the local support group (contact details are on the back page).

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Post-Polio Awareness and Support Societyof British Columbia#2-2630 Ross LaneVictoria, BC V8T 5L5Tel: 250-477-8244Fax: 250-477-8287E-mail: [email protected] www.ppass.bc.ca

Southern Alberta Post PolioSupport SocietyReny de Jong#7 - 11 St. NECalgary,AB T2E 4Z2

Tel: 403-265-5041Fax: 403-265-0162E-mail: [email protected]

Wildrose Polio Support SocietyPat Lairdc/o CPA (Alberta)305 Hys Centre11010 - 101 St.Edmonton,AB T5H 4B9Tel: 780-992-0969E-mail: [email protected]

Saskatchewan Awareness of Post PolioRon Johnson2310 Louise Avenue

Saskatoon, SK S7J 2C7Tel: 306-343-0225E-mail: [email protected] www.geocities.com/sapponline/

Polio Regina Inc.Carole Einfeld4264 Wascana RidgeRegina, SK S4V 2T2Tel: 306-761-1020E-mail: [email protected]

Post Polio Network (Manitoba) Inc.c/o SMD Self-Help Clearinghouse825 Sherbrook St.Winnipeg,MB R3A 1M5Tel: 204-975-3037

Post-Polio ProgramOntario March of Dimes10 Overlea Blvd.Toronto,ON M4H 1A4Tel: 1-800-263-3463 or 416-425-3463Fax: 416-425-1920E-mail: [email protected] www.dimes.on.ca

Association Polio QuebecCP 1030 Succ. BMontreal,QC H3B 3K5Tel: 1-800-263-1969 or 514-866-1969E-mail: [email protected] www.polioquebec.org

Polio New Brunswick Peter Heffernan268 Montreal Ave.St. John, NB E2M 3K6

Tel: 560-635-8932E-mail: [email protected]

Polio Northern New Brunswick Claudia GodinBathurst, NBTel: 506-548-1919E-mail: [email protected]

Polio NewfoundlandCarolyn FewTel: 709-739-4299E-mail: [email protected]

Polio PEISteven Pate47 Westwood Crescent

Charlottetown, PE C1A 8X4Tel: 902-566-4518E-mail: [email protected]

Polio Survivors Groupc/o NWT Council of Persons with DisabilitiesDoreen Baptiste5014 47th StreetYellowknife, NT X1A 1M1Tel: 867-873-8230E-mail: [email protected]

hen you are coming to terms with new symptoms, it is important to know that you arenot alone.The most important aspect of Polio Canada® is our member groups, which

organize local meetings and seminars, as well as provide information, support and encouragement.Please contact the local support group leader nearest you.

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Support Groupsin Canada

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