#PDDigital16 Pitches Report 28 / 29 November 2016

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Sponsored by 2

People Drive Digital emerged from the understanding that when digital is at its best it is driven by the people who it is designed to serve. What started out as a conversation between Victoria Betton and Anne Cooper about the lack of air time at conferences given to this concept turned into #PDDigital15. Held at the unique ODI in Leeds, the first festival brought changemakers from many backgrounds together to share, learn and connect. Friendships were made, ideas were hatched and the PDD community was born! A White Paper which captured the essence of #PDDigital15 was launched and it soon became obvious that there was the energy and desire to continue.

The challenge was to keep the creative community magic whilst amplifying and influencing the wider context. A conversation or two later and a People Drive Digital takeover of Yorkshire and Humber Digital Health and Wellbeing Ecosystem began to take shape. With a little help from their friends the co-founders co-created this year’s festival of delights: #PDDigital16. You can find a full digital report on the event at www.wearemhabitat.com In the run-up people were invited to submit applications to share their experiences of building ‘people drive digital’ resources at #PDDigital16. A selection of 12 innovative examples were chosen from the applications to pitch at the event.

This report shines a spotlight on the fantastic pitches and the wealth of insights shared on the day! Thank you to all of the presenters!

We hope you enjoy reading this report, learn something new and are inspired to get involved in #PDDigital17!

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Introduction

Hannah Chamberlain, Mental Snapp

The power to tell your own story

“Your camera can be the therapist in your pocket. I want to leave a legacy where people and their ability to tell their stories is empowering and new”

Summary: Hannah talked about the power of digital storytelling through Mental Snapp, a video app that enables mental health service users to tell their own stories by recording short video updates on their mental health.

Bio: Hannah Chamberlain is a service user filmmaker entrepreneur who runs two companies specialising in mental health - Barrage Media, a film production company making stigma busting service user led films, and Mental Snapp.

Twitter @mentalsnapp

Find out more: www.mentalsnapp.com

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Diana Bird, Mother’s Tongue

A free English language learning app that helps mums-to-be communicate with their midwives

“I relate the development of my app to an unplanned pregnancy. It was very brief, very quick, and disappointing”

Summary: Diana gave a candid and invaluable presentation which explained the pitfalls of working with app developers through the story of developing her app - Mother’s Tongue. The app is designed to help mums-to-be who don’t speak English communicate with their midwives.

Bio: Diana Bird is an ESOL specialist, head of English and ESOL, and course leader for teacher training at Shipley College, West Yorkshire. She is also studying for a PhD in Education at the University of Huddersfield and has an interest in reducing health inequalities for migrant women.

Twitter: @DianeCBird

Find out more: dbird@shipley.ac.uk

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Nicola Tiffany, HMA

Co-creating a Class 1 Medical Device software application

“If I had once piece of advice in terms of the co-creation process it is to listen”

Summary: Nicola shared her findings on co-creation from an NHS Blood and Transplant project where HMA created an app for a blood transfusion service. HMA involved the clinicians who would be using the app from day 1, which she said made a significant difference to the quality.

Bio: Nicola Tiffany is Managing Director at HMA, a digital agency with a strong track record in Health, Science & Technology.  Nicola has over 15 years’ experience of designing and delivering digital solutions.

Twitter: @nicolatiffany

Find out more: www.hma.co.uk

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Stephen Lock, NIHR Clinical Research Network

Social Media Marketing in Research, from the North Face to North Yorkshire

“Sometimes the technology is easy, it’s convincing people that’s hard”

Summary: Stephen outlined his ambitious plan to revolutionise the collection of clinical research data through online marketing and social media. He believes that social media is cost-effective, efficient and can be a really useful tool for research delivery. The numbers speak volumes, in the example Steve gave he was able to recruit 600 patients in 4 days.

Bio: Stephen Lock is an improvement expert with 17 years experience in the healthcare and IT industries. Over the last ten years he has developed many innovative and award winning ways of delivering clinical research to patients.

Twitter: @sglocky

Find out more: www.bit.ly/2iSYkHd

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Jacqui Gladwin, Health Pledge

Creating Solutions with Patients: Improving Health Outcomes

"Small things can make a massive differences and that's what we're trying to promote"

Summary: Jacqui shared the story of the award-winning co-created Health Pledge project in Manchester, which promotes local conversations, individual and collective action to improve health and connects nursing students with the public. The website launched in 2015 as an interface for the project.

Bio: Jackie is Principal Lecturer at the Department of Nursing Manchester Metropolitan University and Co-founder of Health Pledge, as well as a member of Thornley House Medical Centre, Patient Participation Group.

Twitter: @gladersj

Find out more: www.healthpledge.co.uk

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Jo Eckersley, Sheffield Flourish

Co-creating a digital community with citizen insight

“Co-production hasn’t just given us added value; it is our value. Work out what matters to the people”

Summary: Jo Eckersley talked about how Sheffield Flourish, a blended digital and real life wellbeing community, was co-produced from its foundations. The project now has 40 volunteers and 300 members, with over 4,000 users recruited in large part through the positive effects of co-production.

Bio: Jo has a background in digital communications and journalism and is now Sheffield Flourish’s Digital Content and Marketing Manager working with volunteers to curate and produce inspiring content and building a vibrant community.

Twitter: @joeckersley

Find out more: www.sheffieldflourish.co.uk

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Kat Jones and Rebecca Minton, IAPT/CMHT London

There’s an app for that! But which one do I choose?’

“Clinicians signpost patients to support with housing, debts etc, but where do we signpost people to get digital support?”

Summary: Kat and Rebecca led us through a pilot evaluation of free mental health apps. Kat conducted the 20-app study while working at a London Improving Access to Psychological Therapies service, focusing on apps which covered different areas of mental health.

Bio: Kat is a Trainee Clinical Psychologist with the University of Surrey, currently working in Wandsworth and West Battersea CMHT, London. Rebecca is a Senior Cognitive Behavioural Therapist and Manager at the iCope IAPT Psychological Therapies Service in Camden and Islington, London.

Twitter: @katIjones_ @mintonbec

Find out more: www.idubatk.appspot.com/kat_ijones

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Sarah Smizz, RADCARE

The Artist Will See You Now: Using Creativity As A Critical Tool To Enhance Healthcare

“Believe in yourself and your ideas”

Summary: Artist and newly qualified radiotherapist Sarah got the audience laughing with her talk on co-creating a radiotherapy information app. She highlighted cultural barriers within the health sector, and reminded everyone that the best way to break through barriers is self belief.

Bio: Sarah is an artist and newly qualified radiotherapist who is currently combining these talents together in an artistic practice led PhD to enhance patient care in oncology at Sheffield Hallam University.

Twitter: @smizz

Find out more: www.radiotherapystory.co.uk

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Elizabeth Shassere, Textocracy

Bringing Democracy and Inclusive, Simple Technology Together

“Sometimes the first step in co-creation is simply providing the easiest, most universal way for everyone to be able to have their voice heard”

Summary: Elizabeth used statistics to highlight the challenges of digital inclusion, before demonstrating the effectiveness of Textocracy through user examples. Textocracy is a service which can be used to consult with patients in one of the most accessible ways possible, via text!

Bio: Elizabeth Shassere worked for 20 years in the public sector as a registered public health consultant before becoming an entrepreneur and founding Textocracy.

Twitter: @startupliz

Find out more: www.textocracy.org

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André Tomlin, The Mental Elf

You can lead a horse to water...but you can't make it think (about research)

“We try and create a space that feels safe and where people feel able to talk to each other”

Summary: The Mental Elf is part of the National Elf Service, a digital tool which helps health and social care professionals keep up to date with the latest reliable research. André talked about how the project works to make complex research more digestible, and how digital has democratised how people learn about their conditions.

Bio: André is an Information Scientist and a lifelong advocate of evidence-based healthcare. He is Managing Director of Minervation Ltd and founder of Mental Elf.

Twitter: @mental_elf

Find out more: www.nationalelfservice.net/mental-health

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Anindita Ghosh, Shift.ms

Thought Sort - a self-guided CBT tool

“Involvement can lead to ownership”

Summary: Anindita gave us a whistlestop tour of the process used to create Thought Sort, a co-produced CBT tool involving peer support for people living with MS. Introducing us to a new word - ‘pretotyping’ - she reminded us that people don’t need to be in the same room for co-production to take place.

Bio: Anindita has worked for Shift.ms for over two years managing grant-funded projects including MS Reporters and Thought Sort. She has a background working on digital projects in the charity sector and journalism. 

Twitter: @ditaghosh

Find out more: www.shift.ms

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Zoe Harris, mycarematters

Personalising care from paper to digital

“The tech is the easy bit; far more challenging is finding ways to reach the people who would really benefit”

Summary: Zoe’s presentation exemplified what the whole event was about, as she told us how mycarematters began from a simple post-it note innovation designed to improve care for her husband. Today mycarematters is a web-based tool where patients and carers can store information which can be used by providers to personalise care.

Bio: Zoe is the creator of Remember-I’m-Me Care Charts - originally designed to help with her husband’s care and now in use in over 1,000 UK care homes - and founder of MyCareMatters. She is one of Nesta/Observer’s list of New Radicals 2014 and HSJ’s list of Top Innovators 2014.

Twitter: @ZoeHarrisCCUK

Find out more: www.mycarematters.org

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Thank you to all the fantastic presenters who shared their experiences and insights through the #PDDigital16 pitches.

Together we learnt:

★ When developing digital solutions it is better to start simple. Remember that digital is a wonderful enabler but that it is really all about the people!

★ Creating innovative digital solutions is not always easy and there are many challenges along the way. A big dose of self-belief was prescribed to help with success!

★ Listening to and engaging the intended end users in the process of co-creating digital solutions often ends in a better product not to mention enthusiastic champions who will spread the word!

You can read more on the whole #PDDigital16 event in the full digital report at www.wearemhabitat.com

If you are inspired by what you have read and would like to learn more or get involved in ‘people drive digital’, or if you have an event which might benefit from a ‘people drive digital’ takeover, get in touch with @VictoriaBetton or @AnnieCoops and look out for #PDDigital17

Report produced by @roz_davies and @joeckersley of Recovery Enterprises

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A final message from #PDDigital16