open access: creative ways of sharing research stories ms emma burns & dr nancy salmon presented...
TRANSCRIPT
Open Access: Creative ways of sharing research stories
Ms Emma Burns & Dr Nancy Salmon
Presented at the Nordic Network on Disability Research Bi-Annual Conference, Bergen, NorwayMay 6-8 2015
Aim
Using the stories of people with intellectual disabilities transitioning into the community, a stop motion video was created to show how such tools can be used to produce accessible research outputs
Moving Home
International Case Study• Republic of Ireland
• Nova Scotia, Canada
• Northern Ireland
First Person Accounts• Up to 15 interviews with self-advocates at each site
Why?There are many ways to tell life stories.
Researchers often use writing, but many people do not read.
Using video and images instead of writing is an exciting way to share research stories.
UNCRPDThe preamble to the UNCRPD recognises the importance of accessibility “in enabling persons with disabilities to fully enjoy all human rights and fundamental freedoms”
Article 3Accessibility Article 4
Universal design; new technologies, including information and communications technologies
Article 21 Access to information and communication at no extra cost to people with disabilities Article 21 (c) Urging private entities that provide services to the general public, including through the internet, to provide information and services in accessible and usable formats for persons with disabilities
Article 9 Access, on an equal basis with others, to information and communications Article 9(2) - promote accessible information and communications technologies … so that they become accessible at minimum cost.
Research ProcessEthics Approval
then Recruit People
Gather Stories
Find AnswersTell People What We Learned
Decide on Research
Question and Design
How? Research Team
self-advocates, students and researchers
Development collaborated over 6 months to develop the
storyline & design of an animation a further 6 months to complete the final edit
of the animation a team of one student and one research
participant supported by researchers took two months to make a short graphic novel
Producing the Graphic Novel
Interviews summarised Storyline and storyboard developed by a co-op
studentFirst draft reviewed by the participantDraft revised and captions addedSecond revision by participantFinal version completed
Andrew’s Story
Page 1 of 4
Artist: Seamus Harris
Andrew’s Story
Page 2 of 4
Andrew’s Story
Page 3 of 4
Andrew’s Story
Page 4 of 4
Creating the MovieJanuary 2014
• Idea came as Nancy watched her niece make a stop motion movie for a school project
February 2014
• Research team mapped out individual stories from people in Ireland
• Team designed map that included all the stories in one picture
March-May 2014• Team designed background scene for stop motion • Hosted meeting at UL with self-advocates to inform the
design• Produced background for animation • Held second workshop with self-advocates to refine the final
design
June – August 2014• Bought an Android tablet• Downloaded free apps for stop motion and for
taking images by clapping• Hosted workshop at UL to design and select
characters
June – August 2014 (cont)• Created excel spreadsheets showing each year of a
life story as one block in the table• Started taking photos and editing into a movie format• Finished Andrew’s story• Premiere of Andrew’s story at UL for a group of self-
advocates.• They advised the following
• Andrew needs driving lessons!
• Use livelier music
• Keep words in the middle of the screen instead of scrolling up
• September –December• Finished shooting stop motion
• January-March• Recording of audio with self-advocates
• Post-production editing
• Posted movie on YouTube and WordPress site
• Graphic novel and animation are available on http://nancysalmon.wordpress.com
Technology and materials used
Android tablet with camera and built in voice recorder
Claymation app YouTube editor Windows Movie Maker Craft & scrap paper Soft modelling clay
What we learned Benefits
•Visual depictions deepen the analysis
• Volunteers acquired social capital
• Self-advocates contributed to the design &
storyline
• Elicited story-telling from audience
What we learnedComplexities
• 2 month projection vs 12 month reality
• improvising with equipment delayed process
• challenging to manage novice volunteers
Suggestions• Look for diverse skill set in volunteers • Short catchy storyline (30 sec-2min)• Create chapters of a visual book• Agree a practical plan and timeline with the
team• Be willing to use an exit strategy!
Resources
The graphic novel and animation are available to view on Nancy’s blog:
http://nancysalmon.wordpress.com
Direct link:
https://nancysalmon.wordpress.com/about/moving-home