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Katie Foxall Head of Publishing
ecancer
Open access and cancer research
www.ecancer.org
The current state of cancer
communica0on
l US Vice-president Joe Biden:
“ “[American] taxpayers fund $5 billion in cancer research every year, but …nearly all of that…research sits behind walls. Tell me how this is moving the process along more rapidly.“
“In 2010, the total annual…cost of cancer was
estimated to reach…US$ 1.16 trillion. Yet about half of all cancers could be avoided
if current knowledge was adequately implemented.”
International Agency for Research on Cancer (IARC)
Almost 59% of respondents indicated that a lack of access sometimes or often slowed
down their work.
Communicating cancer research to
patients and the general public
“The most frequently reported first sources of cancer information used
by survivors of cancer were healthcare providers and the
internet.”
Rutten, Lila J et al (2015) Cancer related information seeking among cancer survivors: Trends over a decade (2003-2013) J Cancer Education 31 348-57
l BioMed Central journal Research Involvement and Engagement, co-produced with patients.
https://researchinvolvement.biomedcentral.com/
Breaking down barriers in cancer communication
https://youtu.be/xynTZ9QrH0c
The Daily Mail’s list of things which give you cancer Afternoons Cats Facebook Retirement Air travel Childlessness Flipflops Shaving Babies Children Gardens Skiing Bagels Chimney
sweeping Height Soup
Being a woman City living Large head Television Being a man Cooking Left-
handedness Water
Being southern Crayons Long fingers Wi-fi Belts Dads Metal Working Broken hearts Dogs Middle class Zebra toys Candle-lit dinners
Electricity Plastic bags Peanut butter
Case study: choral singing and cancer
l First report proving that singing in a choir for just one hour boosts levels of immune proteins in people affected by cancer.
“I do research on my condition and doctors do listen to me so long as I can quote the source of my information or have some data to prove what I’m saying.” Pat Mascord, breast cancer survivor
Case study: repurposing drugs in
oncology
“It’s extremely important to us that the articles are open access, as they’re of such high interest to other charities and to researchers in LMICs, who are both less likely to be able to afford subscription fees.”
www.redo-project.org
Dr Pan Pantziarka, ReDO author: “This is a case of saving money and lives, it isn’t just about medical breakthroughs, it’s about social necessity worldwide.”
