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TRANSCRIPT
Newsletter
October2018
MessagefromSARDAA,CEO
DearFriend,
Wehavebeenverybusyworkingtoimprovelivesaffectedbypsychosis.Beonthelookoutforthenextmessage&thenextnewsletter,wewillhavesomeamazingannouncementsaboutgiantstepswehavemadeaswehavebeencreatingveryimportantalliancesandmoreprogressinreclassification.
Staytunedforopportunitiesforyoutomakeahugedifference!
Pleaseremembertousetheterm,BrainHealth/BrainIllness
Warmestregards,LindaStalters,MSN,APRN(ret)ChiefExecutiveOfficerSchizophreniaAndRelatedDisordersAllianceofAmerica
HelpGraceLee,aSARDAAstaffmemberlivingwith
schizoaffectivedisorder,raisefundstosupportSARDAAimprovelivesaffectedby
psychosis.WeMUSTchangetreatmentandaccesstotreatment
andSTOPcriminalizingpeoplewithaBRAINillness.
Supporther5KwalkHERE
VisitLEAPInstitutetolearnmoreabout
LEAP!
MessagefromFFS,FamilyandFriends,
Coordinator
Ihavenotyetbeenafanofprofessionalsports.Infactthehyperenthusiasmandgreatmoneywhichfindtheirwayintoithasalwaysbeenabitofasorespotwithme,likewhydoesconcernforourfellowbeingsandtheirplightnotdrawsuch
support?Samewithbigmoneyandentertainment,etc.Ihavenotspentmuchinthewayofresourceshereeither.AsI'vesaidI'mattunedtothingsinlifewhichrelatetomypathinlifeascarepartnerofadaughterdiagnosedwithSchizoaffectiveDisorder.InalocalnewspaperInotedtheheadline“ForChickCorea,MusicisanAntidotetoLife'sDark(substitutechallenging)Side”.MusicianArmandoAnthony“Chick”Coreawasinterviewedabouthislifeasakeyboardist,nowontourwithhisakousticbandofthree.Hesaid“I'mhappywhenIseemyaudiencesmilingandenjoyingthemusicorinsomewayexperiencingpleasurefromit.Musicandartareakindofantidotetothedarksideoflifesoit'sapleasuretobeabletodeliverthiseverytimeIplay”.Related,andregardingsports,I
recentlyheardsomeoneontheradiosaythatthegamesgivehimsomerelieffromtheconcernsoftheday.WiththisIfindI'vesoftenedmyopinionoftheseinterestsheldbysomanyinoursociety.Weneedthesereprievesfromthechallengesinlifewhichweinevitablyface,a.k.a.'selfcare'.Indulge...Iwill,withoutguiltforreceivingsomepleasure.Thequalityofourlivesdependsonit.
WithHeart,MaryRoss
Areyouinterestedinmeetingotherpeopleonthephoneona
conferencecallwhoisafamilymemberorfriendofsomeonelivingwithschizophreniaorarelateddisorder?DoyouliveontheWestCoast?Hereisachancetoreceivetrainingtoguidefamilyandfriendsofthediagnosedaboutthe6StepsofRecovery.YouwillreceivetrainingmaterialsandusetheBlueBookformattoleadmeetingswithaco-leader.Formoreinformation,contacttheofficeat240-423-9432orinfo@sardaa.org.Youcanalsodirectlycontactme,SandyDimiterchik,at832-439-1586orsandy.dimiterchik@sardaa.org.IlookforwardtospeakingtoyouandstartinganadditionalFFSgroup!
MessagefromSAStaffSupporter
SAUpdates
BySandyDimiterchik
Octoberisaspecialmonthforpeoplewithbraindisorders.ThereistheMentalIllnessAwarenessWeekfromOctober7-13andWorldMentalHealthDayonOctober10.GraceLee,representingSARDAA,isparticipatinginTheWalkforMentalHealthAwareness–HoustononOctober6,2018.Formoreinformationortodonate,gotohttps://my.reason2race.com/gileejelly/TheWalkHouston2018
SowhatcanyoudoasaSAmember?YoucanbecomeaBrainHealthAdvocateonourwebsite,www.sardaa.org.Also,trytoattendanin-personSAgrouporcallintoourconferencecallsforthediagnosedorfamilyandfriends.AlloftheinformationaboutSAgroupscanbefoundonourwebsite,www.sardaa.org.Wearealwayslookingforleaders,co-leaders,andsubstitutes!Fightstigmabysubmittingyourpersonalrecoverystorytoinfo@sardaa.org.Youalsocansubmitartwork,poetry,orshortstories.Volunteerorworkinyourcommunitysothatyoucandisprovemythsabouthavingabraindisorder.
OnOctober6,IamtakingpartintheNamiWalkslocatedinmycommunityhereinLafayette,Louisiana.Signingupasanindividual,IhopetomeetnewpeopleandsharewiththemmyexperiencesandprovideinformationaboutSARDAA,SA,andourfreeapp,SchizophreniaHealthStorylines.Ifyouhaven’theardoftheapp,nowisagotimetodownloadittoyourcomputerand/orsmartphone.Ithasmanyfunctions,includingmedicinereminders,symptomtracking,andjournaling.
SAGroupsFoundThroughoutTheWorld
SARDAAisaglobalorganization.TheSA(SchizophreniaAlliancePsychosisSupportandAcceptance)groupscanbefoundnotonlythroughouttheUnitedStates,butinternationally.WehavegroupsinRussia,Iran,India,Hungary,Kenya,andOrebro.TheBlueBookhasbeentranslatedintodifferentlanguages–Spanish,German,Farsi,Russian,andHungarian.TheconferencecallsareinEnglishandopentopeopleinothercountries.Simplycall1-720-362-6499.Formoreinformationcheckoutourwebsitesardaa.orgorcallthemainofficetoreceivethetranslatedversionsat1-240-423-9432or1-800-493-2094.Youcanalsocontactusatinfo@sardaa.org.IfyouwouldliketostartaSAgroup,[email protected].
PersonalStoryofSAMembers
FranN.Iamschizophrenic.Mylasthospitalstaywasin1980,inthestatehospitalforsixmonthsbecausemyhusbandwouldnolongerbringmehome;hewantedadivorceafter13yearsandtwosmallchildren.Withnohometogoto,Iwaitedatthestatehospitalforabedatanadultfostercarehome.
Aftersixmonths,Iwasplacedinaverynicehome.MichiganVocationalRehabilitationsentmetoabusinessschoolwhileIwasthere.Aftertwosemestersatthebusinessschool,itwastimetofindajob.ByJuly1981,Ihadajobasabookkeeperforasmallcompanyandworkedforoneyearwhilestilllivingatthefostercarehome.Itwastimetotrylivingonmyown.Iwasafraidofeverything.Livingalone,havingrelapses,andjusttakingcareofmyself.Imovedintoarentedhomeandcontinuedtoworkandsupportmyself.
WhileIwasatthefostercarehome,Ireadapamphletthatdescribedmysymptomsperfectly.BeforeIreadit,IdidnotknowIhad
schizophrenia.Thepamphletsaidthatschizophreniawasincurablebutcouldbecontrolledwithmedication.Allofmyrelapseswerefromgoingoffmymedication.Fromthattimeon,Ihavedecidedtobewell.InevergooffmymedicationoreverhaveitadjustedandIhavebeenstablesince1980.IknowIstillhavethediseasebutamcontrollingitwithmedication.
In1983,Iboughtmyownhomeandhavemychildreneveryotherweekend(myhusbandhascustodyofthechildren,butIamstillpartoftheirlives).Ialsostartedtoattendcollegeatnight.IhavebeentakingoneclassasemesterforthesepastsixyearsandwillreceiveaCertificateinAccountingthisDecember.
BecauseItookaccountingcoursesatthecommunitycollege,IwaspromotedtoAccountingSupervisorin1985.Ihaveaverygoodjobandenjoyitverymuch.IntheeightyearsIhavebeenworking,Ihavenothadtotaketimeoffformyschizophrenia.Ithasnotbeeneasy.Ifeelverytiredinthemorningsandforcemyselftogotowork.Mylifeislowkeyed,asIcannottakemuchstress.
MysocialworkerheardaboutSchizophreniaAllianceandsuggestedIgetinvolvedinit.SinceIhavemetJoanneV.andthemembersofhergroup,mylifehasbeentransformed.IamaSAleaderandnowhaveagroupofverycaringandfriendlypeopletomeetwithonceaweek.Asaleader,mylifehasbeenenhancedbythepossibilityofhelpingothersandmyselftowardrecovery.Thankyou,SA
Wewelcomeyourmessage/artfromSAMembersforinclusioninthe
newsletter.Pleasesubmityourmessageto:[email protected],Houston,TX77094-8222forconsiderationfornextmonth'snewsletter.
YourstorymightbeincludedinaSARDAAnewsletterandmightbepublishedinafutureeditionoftheSABlueBook.
PhoneSupportGroups
SAConferenceCallGroupsOnlyforindividualsdiagnosed
Sundays-7pmEasternTimeMondays-4pmEasternTimeThursdays-7pmEasternTime
Fridays-7pmEasternTimeSaturdays-1pmEasternTime
YoungAdultSAConferenceCallGroupSaturdays-3pmEasternTime
SpiritofSAConferenceCallForSALeadersandPotentialLeaders
FirstWednesdayofEachMonth-7pmEasternTime
FamilyandFriendsSupportGroupNotforindividualsdiagnosed
EveryTuesday-7pmEasternTime
Toll-freeCallsCall-ininformation(855)640-8271
EntryCode88286491#InternationalNumber(720)362-6499
FacebookSupportGroupOnlyforindividualsdiagnosed
JOINTheFacebookGroupHereThisisaClosedgroup,asktobeadded.
BritishStudyShowsCannabisUseAdverselyAffectsIndividualsWithEarlyPsychosisPsychiatryResearchLaurelRangerSeptember11,2018Cannabisuseinpatientswithearlypsychosisisariskfactorforrelapse,ahighernumberofre-hospitalizations,andlongerlengthofstay(LOS)inhospital,particularlyinblackmalepatients,accordingtostudyresultspublishedinPsychiatryResearch.
READMORE
EarlyInterventioninSchizophrenia:TheRAISEProgramToriRodriguez,MA,LPCSeptember6,2018Historically,therehavebeenlowexpectationsforrecoveryinschizophrenia,whichisassociatedwithhighratesofmorbidity,mortality,anddisability,aswellasestimatedannualeconomiccostsof$155.7billionanda10%to15%employmentrate.1Inrecentyears,thefocusofmentalhealthpolicyandtreatmentforindividualswithschizophreniaintheUnitedStateshasshiftedfromstabilizationofthosewithchronicdiseasetointerventionintheearlystagesoftheillness.
READMORE
GradingtheStates:AnAnalysisofInvoluntaryPsychiatricTreatmentLawsTreatmentAdvocacyCenterSeptember2018GradingtheStates:AnAnalysisofU.S.PsychiatricTreatmentLawsexaminesthelawsthatprovideforinvoluntarytreatmentforpsychiatricillnessineachstate.Todoso,weaskasimplequestion:Doesthestatelawallowanindividualinneedofinvoluntaryevaluationortreatmenttoreceivetimelycare,forsufficientduration,inamannerthatenablesandpromoteslong-termstabilization?
TheUnitedStatesiseffectivelyrunning50differentexperiments,
withnotwostatestakingthesameapproach.Asaresult,whetherornotanindividualreceivestimely,appropriatetreatmentforanacutepsychiatriccrisisorchronicpsychiatricdiseaseisalmostentirelydependentonwhatstateheorsheisinwhenthecrisisarises.
Inadditiontoprovidingadetailedassessmentofeachstate’streatmentlawsincomparisonwiththoseoftherestofthecountry,thereportalsoidentifiesspecificstatutorychangesstatescanmaketogreatlyimproveaccesstocareforthispopulation.
READMOREFULLREPORT
LithiumMonotherapyEffectiveinTreatingBipolarDisorderinChildrenCalebRansSeptember13,2018Lithiummonotherapymaybesafeandeffectivefortreatingacutemaniaandpreventingmoodinstabilityinchildrenandadolescentswithbipolardisorder,accordingtostudyresultspublishedinEuropeanPsychiatry.
Inthissystematicreview,researcherssearchedmajordatabasesforstudiesthatincludedchildrenandadolescentswhoweretreatedwitheitherlithiummonotherapyorlithiumincombinationwithotherpsychoactivetherapiesforbipolardisorder.Afterapplyingthesearchcriteria,theinvestigatorsfound30studiesthatincludedatotalof12randomizedtrials.Themajorityofstudieswereshort-term,beingconductedforlessthan8weeks,withtheexceptionofonethatcontinuedformorethan6months.
READMORE
RemissionofSchizophreniaSeenWithAmisulpride,ClozapineHealthDayNewsSeptember5,2018Remissioncanbeachievedformostcasesofschizophreniaandschizophreniformdisorderwithamisulprideandclozapine,accordingtoastudypublishedonlineAug.13intheTheLancetPsychiatry.
READMORE
UsingNeurocognitiveProfilestoPredictConversiontoPsychosisinHigh-RiskPatientsSchizophreniaResearchEmilyPondSeptember10,2018Patientneurocognitionprofilesmaybeeffectivediagnostictoolsforidentifyingfunctionaloutcomesamongpatientswithhighriskforpsychosis,suggestedresearchpublishedinSchizophreniaResearch.
Researchersrecruited324participants(meanage,18.4years)currentlyinthefirstphaseoftheNorthAmericanProdromeLongitudinalStudy.Thestudycohortcomprised166individualsatClinicalHighRisk(CHR)forpsychosis,49non-CHRyouthswithafamilyhistoryofpsychosis,and109healthycontrolparticipants.Participantswerefollowedfor2.5years,withstudyvisitsevery6monthstoassesssocialfunctioningandclinicalsymptomsofpsychosispertheStructureInterviewforProdromal.
READMORE
RecoverytoPractice(RTP)WebinarsandPodcasts:
PODCAST:Long-actingInjectableAntipsychoticsinMentalHealthRecoverySAMHSAExpertspeakers:AnthonyCarino,MD,DirectorofPsychiatry,JanianMedicalCare;AssistantClinicalProfessorofPsychiatry,ColumbiaUniversityCollegeofPhysiciansandSurgeonsDelbertRobinson,MD,AssociateProfessor,TheCenterforPsychiatricNeuroscience,TheFeinsteinInstituteforMedicalResearch;ProfessorofMolecularMedicine&Psychiatry,HofstraNorthwellSchoolofMedicine
PODCASTPODCASTCitationsPODCASTTranscript
PODCAST:MoreThanOne:ConsideringMultipleMedicationsinaRecoveryPlanSAMHSAExpertspeakers:HunterMcQuistion,MD,MedicalDirector,Psychiatry,ClinicalProfessorofPsychiatry,GouverneurHealth,NYCScottStroup,MD,Psychiatrist,NewYorkPresbyterianHospital;ProfessorofPsychiatryatColumbiaUniversityCollegeofPhysiciansandSurgeons
PODCASTPODCASTCitationsPODCASTTranscript
PODCAST:Recovery-orientedApproachestoPsychopharmacologySAMHSAExpertsspeakers:CurtisAdams,MD,SeniorPsychiatrist,DivisionofCommunityPsychiatry;AssistantProfessorofPsychiatry,UniversityofMarylandSchoolofMedicine
MichaelBirnbaum,MD,Director,EarlyTreatmentProgram,NorthwellMedicalCenter;AssistantProfessorofPsychiatry,HofstraNorthwellSchoolofMedicine
PODCASTPODCASTCitationsPODCASTTranscript
PODCAST:RightMed,RightTime:HowMedicationcanSupportRecoverySAMHSAExpertsspeakers:TraceeBurroughs-Gardner,MD,ChiefExecutiveOfficer,UrbanBehavioralAssociates,Maryland
PatriciaDeegan,PhD,founder,PatDeeganandAssociates,disabilityrightsadvocate
PODCASTPODCASTCitationsPODCASTTranscript
SAMHSAawards$215.2milliontosupportjustice-involvedindividualswhohavesubstanceuseorco-occurringmentalandsubstanceusedisordersTheSubstanceAbuseandMentalHealthServicesAdministration(SAMHSA)recentlyawardedupto$215.2millionoverfiveyearsforjustice-involvedindividualswhohavementalandsubstanceusedisorders.
Theseprogramsareintendedtoprovideeffectivetreatmentservicestoreducefurthercriminaljusticeinvolvementandtopromoterecoveryforjustice-involvedindividualswhohavesubstanceusedisordersorco-occurringmentalandsubstanceusedisorders.
“ProvidingtreatmentandrecoveryservicestoAmericanswhoareinvolvedwiththecriminaljusticesystemandstrugglingwithaddictionisacrucialstepinofferingthemasecondchance,”saidHHSSecretaryAlexAzar.“Drugcourtsinparticularareaneffectivewayofhelpingpeopleaccesstreatmentandenterrecovery,andHHSisproudtosupportstate,local,andtribalgovernmentsinrunningtheseprograms.”
READMORE
SAMHSA’sAnnualMentalHealth,SubstanceUseDataProvideRoadmapforFutureActionSeptember14,2018TodaytheSubstanceAbuseandMentalHealthServicesAdministrationreleasedthe2017NationalSurveyonDrugUseandHealth(NSDUH).Theannualsurveycompriseshighlyanticipated
datathathelpprovideastatisticalcontextforthecountry’sopioidcrisisandotherbehavioralhealthmatters.
“SAMHSA’sNationalSurveyonDrugUseandHealthcontainsannualdatathatprovidescriticalinformationwhichhelpsusunderstandimportantconceptsaroundmentalhealthandsubstancemisuseacrossthenation,’’saidDepartmentofHealthandHumanServicesSecretaryAlexM.AzarII.“PresidentDonaldTrump,AssistantSecretaryElinoreMcCance-KatzandIshareavisionforapathforward,onethatinvolvesconnectingAmericanstotheevidence-basedtreatmenttheyneed.”
READMORE
TreatmentAdvocacyCenterprovidescomparisonsbetweenAssistedOutpatientTreatmentversusMentalHealthCourts,here;homelessnessamongveteranswithseriousmentalillness,here;whethertheuseofanti-psychoticmedicationsandthepresenceofasecurityofficermaypreventneedingtoresorttoseclusionandrestraintininpatientpsychiatrichospitalsettings,here;andfascinatingnewresearchindicatingthatnitrates-chemicalsusedtocuremeatssuchasinbeefjerky,hotdogs,andotherprocessedmeats-maycontributetomania,here.
DonatetoSARDAA
BrainCampaign:TakethePledge
IwillchangemylanguagefromBehavioralorMentaldisordertoBraindisease.Iwilleducateotherstochangetheirlanguagefrommentalillnessestobrainillness.Iwillnotusestigmatizing,discriminatoryorderogatorylanguagerelatedtobraindiseases.Iwillencouragemypeers,familymembers,andcolleaguestoadvocatewhentheyseediscriminatorylanguageorpracticesinthemediaorinpublic.Iwilladvocatethatpeoplewithbraindiseaseshaveequalandcomprehensivehealthcare.Iwilltreatallpeoplewithbraindiseaseswithrespectandcompassion.
HelpSupportSchizophreniaandRelatedDisordersAllianceof
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JordanHelwig,CreativeDesignerAngelWhite,Editor