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Newsletter October 2018 Message from SARDAA, CEO Dear Friend, We have been very busy working to improve lives affected by psychosis. Be on the lookout for the next message & the next newsletter, we will have some amazing announcements about giant steps we have made as we have been creating very important alliances and more progress in reclassification. Stay tuned for opportunities for you to make a huge difference! Please remember to use the term, Brain Health/Brain Illness

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Page 1: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

Newsletter

October2018

MessagefromSARDAA,CEO

DearFriend,

Wehavebeenverybusyworkingtoimprovelivesaffectedbypsychosis.Beonthelookoutforthenextmessage&thenextnewsletter,wewillhavesomeamazingannouncementsaboutgiantstepswehavemadeaswehavebeencreatingveryimportantalliancesandmoreprogressinreclassification.

Staytunedforopportunitiesforyoutomakeahugedifference!

Pleaseremembertousetheterm,BrainHealth/BrainIllness

Page 2: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

Warmestregards,LindaStalters,MSN,APRN(ret)ChiefExecutiveOfficerSchizophreniaAndRelatedDisordersAllianceofAmerica

HelpGraceLee,aSARDAAstaffmemberlivingwith

schizoaffectivedisorder,raisefundstosupportSARDAAimprovelivesaffectedby

psychosis.WeMUSTchangetreatmentandaccesstotreatment

andSTOPcriminalizingpeoplewithaBRAINillness.

Supporther5KwalkHERE

Page 3: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

VisitLEAPInstitutetolearnmoreabout

LEAP!

MessagefromFFS,FamilyandFriends,

Coordinator

Ihavenotyetbeenafanofprofessionalsports.Infactthehyperenthusiasmandgreatmoneywhichfindtheirwayintoithasalwaysbeenabitofasorespotwithme,likewhydoesconcernforourfellowbeingsandtheirplightnotdrawsuch

support?Samewithbigmoneyandentertainment,etc.Ihavenotspentmuchinthewayofresourceshereeither.AsI'vesaidI'mattunedtothingsinlifewhichrelatetomypathinlifeascarepartnerofadaughterdiagnosedwithSchizoaffectiveDisorder.InalocalnewspaperInotedtheheadline“ForChickCorea,MusicisanAntidotetoLife'sDark(substitutechallenging)Side”.MusicianArmandoAnthony“Chick”Coreawasinterviewedabouthislifeasakeyboardist,nowontourwithhisakousticbandofthree.Hesaid“I'mhappywhenIseemyaudiencesmilingandenjoyingthemusicorinsomewayexperiencingpleasurefromit.Musicandartareakindofantidotetothedarksideoflifesoit'sapleasuretobeabletodeliverthiseverytimeIplay”.Related,andregardingsports,I

Page 4: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

recentlyheardsomeoneontheradiosaythatthegamesgivehimsomerelieffromtheconcernsoftheday.WiththisIfindI'vesoftenedmyopinionoftheseinterestsheldbysomanyinoursociety.Weneedthesereprievesfromthechallengesinlifewhichweinevitablyface,a.k.a.'selfcare'.Indulge...Iwill,withoutguiltforreceivingsomepleasure.Thequalityofourlivesdependsonit.

WithHeart,MaryRoss

Areyouinterestedinmeetingotherpeopleonthephoneona

conferencecallwhoisafamilymemberorfriendofsomeonelivingwithschizophreniaorarelateddisorder?DoyouliveontheWestCoast?Hereisachancetoreceivetrainingtoguidefamilyandfriendsofthediagnosedaboutthe6StepsofRecovery.YouwillreceivetrainingmaterialsandusetheBlueBookformattoleadmeetingswithaco-leader.Formoreinformation,contacttheofficeat240-423-9432orinfo@sardaa.org.Youcanalsodirectlycontactme,SandyDimiterchik,at832-439-1586orsandy.dimiterchik@sardaa.org.IlookforwardtospeakingtoyouandstartinganadditionalFFSgroup!

MessagefromSAStaffSupporter

SAUpdates

BySandyDimiterchik

Octoberisaspecialmonthforpeoplewithbraindisorders.ThereistheMentalIllnessAwarenessWeekfromOctober7-13andWorldMentalHealthDayonOctober10.GraceLee,representingSARDAA,isparticipatinginTheWalkforMentalHealthAwareness–HoustononOctober6,2018.Formoreinformationortodonate,gotohttps://my.reason2race.com/gileejelly/TheWalkHouston2018

SowhatcanyoudoasaSAmember?YoucanbecomeaBrainHealthAdvocateonourwebsite,www.sardaa.org.Also,trytoattendanin-personSAgrouporcallintoourconferencecallsforthediagnosedorfamilyandfriends.AlloftheinformationaboutSAgroupscanbefoundonourwebsite,www.sardaa.org.Wearealwayslookingforleaders,co-leaders,andsubstitutes!Fightstigmabysubmittingyourpersonalrecoverystorytoinfo@sardaa.org.Youalsocansubmitartwork,poetry,orshortstories.Volunteerorworkinyourcommunitysothatyoucandisprovemythsabouthavingabraindisorder.

Page 5: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

OnOctober6,IamtakingpartintheNamiWalkslocatedinmycommunityhereinLafayette,Louisiana.Signingupasanindividual,IhopetomeetnewpeopleandsharewiththemmyexperiencesandprovideinformationaboutSARDAA,SA,andourfreeapp,SchizophreniaHealthStorylines.Ifyouhaven’theardoftheapp,nowisagotimetodownloadittoyourcomputerand/orsmartphone.Ithasmanyfunctions,includingmedicinereminders,symptomtracking,andjournaling.

SAGroupsFoundThroughoutTheWorld

SARDAAisaglobalorganization.TheSA(SchizophreniaAlliancePsychosisSupportandAcceptance)groupscanbefoundnotonlythroughouttheUnitedStates,butinternationally.WehavegroupsinRussia,Iran,India,Hungary,Kenya,andOrebro.TheBlueBookhasbeentranslatedintodifferentlanguages–Spanish,German,Farsi,Russian,andHungarian.TheconferencecallsareinEnglishandopentopeopleinothercountries.Simplycall1-720-362-6499.Formoreinformationcheckoutourwebsitesardaa.orgorcallthemainofficetoreceivethetranslatedversionsat1-240-423-9432or1-800-493-2094.Youcanalsocontactusatinfo@sardaa.org.IfyouwouldliketostartaSAgroup,[email protected].

PersonalStoryofSAMembers

FranN.Iamschizophrenic.Mylasthospitalstaywasin1980,inthestatehospitalforsixmonthsbecausemyhusbandwouldnolongerbringmehome;hewantedadivorceafter13yearsandtwosmallchildren.Withnohometogoto,Iwaitedatthestatehospitalforabedatanadultfostercarehome.

Aftersixmonths,Iwasplacedinaverynicehome.MichiganVocationalRehabilitationsentmetoabusinessschoolwhileIwasthere.Aftertwosemestersatthebusinessschool,itwastimetofindajob.ByJuly1981,Ihadajobasabookkeeperforasmallcompanyandworkedforoneyearwhilestilllivingatthefostercarehome.Itwastimetotrylivingonmyown.Iwasafraidofeverything.Livingalone,havingrelapses,andjusttakingcareofmyself.Imovedintoarentedhomeandcontinuedtoworkandsupportmyself.

WhileIwasatthefostercarehome,Ireadapamphletthatdescribedmysymptomsperfectly.BeforeIreadit,IdidnotknowIhad

Page 6: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

schizophrenia.Thepamphletsaidthatschizophreniawasincurablebutcouldbecontrolledwithmedication.Allofmyrelapseswerefromgoingoffmymedication.Fromthattimeon,Ihavedecidedtobewell.InevergooffmymedicationoreverhaveitadjustedandIhavebeenstablesince1980.IknowIstillhavethediseasebutamcontrollingitwithmedication.

In1983,Iboughtmyownhomeandhavemychildreneveryotherweekend(myhusbandhascustodyofthechildren,butIamstillpartoftheirlives).Ialsostartedtoattendcollegeatnight.IhavebeentakingoneclassasemesterforthesepastsixyearsandwillreceiveaCertificateinAccountingthisDecember.

BecauseItookaccountingcoursesatthecommunitycollege,IwaspromotedtoAccountingSupervisorin1985.Ihaveaverygoodjobandenjoyitverymuch.IntheeightyearsIhavebeenworking,Ihavenothadtotaketimeoffformyschizophrenia.Ithasnotbeeneasy.Ifeelverytiredinthemorningsandforcemyselftogotowork.Mylifeislowkeyed,asIcannottakemuchstress.

MysocialworkerheardaboutSchizophreniaAllianceandsuggestedIgetinvolvedinit.SinceIhavemetJoanneV.andthemembersofhergroup,mylifehasbeentransformed.IamaSAleaderandnowhaveagroupofverycaringandfriendlypeopletomeetwithonceaweek.Asaleader,mylifehasbeenenhancedbythepossibilityofhelpingothersandmyselftowardrecovery.Thankyou,SA

Wewelcomeyourmessage/artfromSAMembersforinclusioninthe

newsletter.Pleasesubmityourmessageto:[email protected],Houston,TX77094-8222forconsiderationfornextmonth'snewsletter.

YourstorymightbeincludedinaSARDAAnewsletterandmightbepublishedinafutureeditionoftheSABlueBook.

Page 7: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

PhoneSupportGroups

SAConferenceCallGroupsOnlyforindividualsdiagnosed

Sundays-7pmEasternTimeMondays-4pmEasternTimeThursdays-7pmEasternTime

Fridays-7pmEasternTimeSaturdays-1pmEasternTime

YoungAdultSAConferenceCallGroupSaturdays-3pmEasternTime

SpiritofSAConferenceCallForSALeadersandPotentialLeaders

FirstWednesdayofEachMonth-7pmEasternTime

FamilyandFriendsSupportGroupNotforindividualsdiagnosed

EveryTuesday-7pmEasternTime

Page 8: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

Toll-freeCallsCall-ininformation(855)640-8271

EntryCode88286491#InternationalNumber(720)362-6499

FacebookSupportGroupOnlyforindividualsdiagnosed

JOINTheFacebookGroupHereThisisaClosedgroup,asktobeadded.

Page 9: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

BritishStudyShowsCannabisUseAdverselyAffectsIndividualsWithEarlyPsychosisPsychiatryResearchLaurelRangerSeptember11,2018Cannabisuseinpatientswithearlypsychosisisariskfactorforrelapse,ahighernumberofre-hospitalizations,andlongerlengthofstay(LOS)inhospital,particularlyinblackmalepatients,accordingtostudyresultspublishedinPsychiatryResearch.

READMORE

EarlyInterventioninSchizophrenia:TheRAISEProgramToriRodriguez,MA,LPCSeptember6,2018Historically,therehavebeenlowexpectationsforrecoveryinschizophrenia,whichisassociatedwithhighratesofmorbidity,mortality,anddisability,aswellasestimatedannualeconomiccostsof$155.7billionanda10%to15%employmentrate.1Inrecentyears,thefocusofmentalhealthpolicyandtreatmentforindividualswithschizophreniaintheUnitedStateshasshiftedfromstabilizationofthosewithchronicdiseasetointerventionintheearlystagesoftheillness.

READMORE

GradingtheStates:AnAnalysisofInvoluntaryPsychiatricTreatmentLawsTreatmentAdvocacyCenterSeptember2018GradingtheStates:AnAnalysisofU.S.PsychiatricTreatmentLawsexaminesthelawsthatprovideforinvoluntarytreatmentforpsychiatricillnessineachstate.Todoso,weaskasimplequestion:Doesthestatelawallowanindividualinneedofinvoluntaryevaluationortreatmenttoreceivetimelycare,forsufficientduration,inamannerthatenablesandpromoteslong-termstabilization?

TheUnitedStatesiseffectivelyrunning50differentexperiments,

Page 10: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

withnotwostatestakingthesameapproach.Asaresult,whetherornotanindividualreceivestimely,appropriatetreatmentforanacutepsychiatriccrisisorchronicpsychiatricdiseaseisalmostentirelydependentonwhatstateheorsheisinwhenthecrisisarises.

Inadditiontoprovidingadetailedassessmentofeachstate’streatmentlawsincomparisonwiththoseoftherestofthecountry,thereportalsoidentifiesspecificstatutorychangesstatescanmaketogreatlyimproveaccesstocareforthispopulation.

READMOREFULLREPORT

LithiumMonotherapyEffectiveinTreatingBipolarDisorderinChildrenCalebRansSeptember13,2018Lithiummonotherapymaybesafeandeffectivefortreatingacutemaniaandpreventingmoodinstabilityinchildrenandadolescentswithbipolardisorder,accordingtostudyresultspublishedinEuropeanPsychiatry.

Inthissystematicreview,researcherssearchedmajordatabasesforstudiesthatincludedchildrenandadolescentswhoweretreatedwitheitherlithiummonotherapyorlithiumincombinationwithotherpsychoactivetherapiesforbipolardisorder.Afterapplyingthesearchcriteria,theinvestigatorsfound30studiesthatincludedatotalof12randomizedtrials.Themajorityofstudieswereshort-term,beingconductedforlessthan8weeks,withtheexceptionofonethatcontinuedformorethan6months.

READMORE

RemissionofSchizophreniaSeenWithAmisulpride,ClozapineHealthDayNewsSeptember5,2018Remissioncanbeachievedformostcasesofschizophreniaandschizophreniformdisorderwithamisulprideandclozapine,accordingtoastudypublishedonlineAug.13intheTheLancetPsychiatry.

READMORE

UsingNeurocognitiveProfilestoPredictConversiontoPsychosisinHigh-RiskPatientsSchizophreniaResearchEmilyPondSeptember10,2018Patientneurocognitionprofilesmaybeeffectivediagnostictoolsforidentifyingfunctionaloutcomesamongpatientswithhighriskforpsychosis,suggestedresearchpublishedinSchizophreniaResearch.

Page 11: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

Researchersrecruited324participants(meanage,18.4years)currentlyinthefirstphaseoftheNorthAmericanProdromeLongitudinalStudy.Thestudycohortcomprised166individualsatClinicalHighRisk(CHR)forpsychosis,49non-CHRyouthswithafamilyhistoryofpsychosis,and109healthycontrolparticipants.Participantswerefollowedfor2.5years,withstudyvisitsevery6monthstoassesssocialfunctioningandclinicalsymptomsofpsychosispertheStructureInterviewforProdromal.

READMORE

RecoverytoPractice(RTP)WebinarsandPodcasts:

PODCAST:Long-actingInjectableAntipsychoticsinMentalHealthRecoverySAMHSAExpertspeakers:AnthonyCarino,MD,DirectorofPsychiatry,JanianMedicalCare;AssistantClinicalProfessorofPsychiatry,ColumbiaUniversityCollegeofPhysiciansandSurgeonsDelbertRobinson,MD,AssociateProfessor,TheCenterforPsychiatricNeuroscience,TheFeinsteinInstituteforMedicalResearch;ProfessorofMolecularMedicine&Psychiatry,HofstraNorthwellSchoolofMedicine

PODCASTPODCASTCitationsPODCASTTranscript

PODCAST:MoreThanOne:ConsideringMultipleMedicationsinaRecoveryPlanSAMHSAExpertspeakers:HunterMcQuistion,MD,MedicalDirector,Psychiatry,ClinicalProfessorofPsychiatry,GouverneurHealth,NYCScottStroup,MD,Psychiatrist,NewYorkPresbyterianHospital;ProfessorofPsychiatryatColumbiaUniversityCollegeofPhysiciansandSurgeons

PODCASTPODCASTCitationsPODCASTTranscript

PODCAST:Recovery-orientedApproachestoPsychopharmacologySAMHSAExpertsspeakers:CurtisAdams,MD,SeniorPsychiatrist,DivisionofCommunityPsychiatry;AssistantProfessorofPsychiatry,UniversityofMarylandSchoolofMedicine

Page 12: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

MichaelBirnbaum,MD,Director,EarlyTreatmentProgram,NorthwellMedicalCenter;AssistantProfessorofPsychiatry,HofstraNorthwellSchoolofMedicine

PODCASTPODCASTCitationsPODCASTTranscript

PODCAST:RightMed,RightTime:HowMedicationcanSupportRecoverySAMHSAExpertsspeakers:TraceeBurroughs-Gardner,MD,ChiefExecutiveOfficer,UrbanBehavioralAssociates,Maryland

PatriciaDeegan,PhD,founder,PatDeeganandAssociates,disabilityrightsadvocate

PODCASTPODCASTCitationsPODCASTTranscript

SAMHSAawards$215.2milliontosupportjustice-involvedindividualswhohavesubstanceuseorco-occurringmentalandsubstanceusedisordersTheSubstanceAbuseandMentalHealthServicesAdministration(SAMHSA)recentlyawardedupto$215.2millionoverfiveyearsforjustice-involvedindividualswhohavementalandsubstanceusedisorders.

Theseprogramsareintendedtoprovideeffectivetreatmentservicestoreducefurthercriminaljusticeinvolvementandtopromoterecoveryforjustice-involvedindividualswhohavesubstanceusedisordersorco-occurringmentalandsubstanceusedisorders.

“ProvidingtreatmentandrecoveryservicestoAmericanswhoareinvolvedwiththecriminaljusticesystemandstrugglingwithaddictionisacrucialstepinofferingthemasecondchance,”saidHHSSecretaryAlexAzar.“Drugcourtsinparticularareaneffectivewayofhelpingpeopleaccesstreatmentandenterrecovery,andHHSisproudtosupportstate,local,andtribalgovernmentsinrunningtheseprograms.”

READMORE

SAMHSA’sAnnualMentalHealth,SubstanceUseDataProvideRoadmapforFutureActionSeptember14,2018TodaytheSubstanceAbuseandMentalHealthServicesAdministrationreleasedthe2017NationalSurveyonDrugUseandHealth(NSDUH).Theannualsurveycompriseshighlyanticipated

Page 13: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

datathathelpprovideastatisticalcontextforthecountry’sopioidcrisisandotherbehavioralhealthmatters.

“SAMHSA’sNationalSurveyonDrugUseandHealthcontainsannualdatathatprovidescriticalinformationwhichhelpsusunderstandimportantconceptsaroundmentalhealthandsubstancemisuseacrossthenation,’’saidDepartmentofHealthandHumanServicesSecretaryAlexM.AzarII.“PresidentDonaldTrump,AssistantSecretaryElinoreMcCance-KatzandIshareavisionforapathforward,onethatinvolvesconnectingAmericanstotheevidence-basedtreatmenttheyneed.”

READMORE

TreatmentAdvocacyCenterprovidescomparisonsbetweenAssistedOutpatientTreatmentversusMentalHealthCourts,here;homelessnessamongveteranswithseriousmentalillness,here;whethertheuseofanti-psychoticmedicationsandthepresenceofasecurityofficermaypreventneedingtoresorttoseclusionandrestraintininpatientpsychiatrichospitalsettings,here;andfascinatingnewresearchindicatingthatnitrates-chemicalsusedtocuremeatssuchasinbeefjerky,hotdogs,andotherprocessedmeats-maycontributetomania,here.

DonatetoSARDAA

Page 14: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

BrainCampaign:TakethePledge

IwillchangemylanguagefromBehavioralorMentaldisordertoBraindisease.Iwilleducateotherstochangetheirlanguagefrommentalillnessestobrainillness.Iwillnotusestigmatizing,discriminatoryorderogatorylanguagerelatedtobraindiseases.Iwillencouragemypeers,familymembers,andcolleaguestoadvocatewhentheyseediscriminatorylanguageorpracticesinthemediaorinpublic.Iwilladvocatethatpeoplewithbraindiseaseshaveequalandcomprehensivehealthcare.Iwilltreatallpeoplewithbraindiseaseswithrespectandcompassion.

HelpSupportSchizophreniaandRelatedDisordersAllianceof

America

AmazondonatestoSchizophrenia&RelatedDisordersAlliance.Shopforgreatdealsatsmile.amazon.com/ch/33-1213657

EasystepstosupportSchizophreniaandRelatedDisordersAllianceofAmericathroughAmazonSmile:

SignintoyourAmazonaccountatsmile.amazon.com.

SelectSchizophreniaandRelatedDisordersAllianceofAmericaSearchforandselectSchizophreniaandRelatedDisordersAllianceof

Americaasyourcharity.Onceselected,youwillreceiveaconfirmationemail.

ShopandcheckoutasyouwouldonAmazon.Noextracostispassedontoyou,butAmazonwillautomaticallydonate0.5%ofyourpurchasestoSchizophreniaandRelatedDisordersAllianceof

America.

PleasesharewithyourfriendsandfamilytojoinyoutosupportSchizophreniaandRelatedDisordersAllianceofAmerica!

BychoosingSchizophreniaandRelatedDisordersAllianceofAmericaasyourcharityonsmile.amazon.com,Amazonwilldonate

0.5%ofyoureligiblepurchasestoSchizophreniaandRelatedDisordersAllianceofAmerica.

PleasetakeamomenttofindouthowyoucanhelpsupportSARDAA,

Page 15: Newsletter · Volunteer or work in your community so that you can disprove myths about having a brain disorder. On October 6, I am taking part in the NamiWalks located in my community

notonlytodaybuteveryday-atnoextracosttoyou!!

IT'SSOSIMPLE:justbookmarkthislinkhttp://smile.amazon.com/ch/33-1213657,startshoppingandsupportuseverytimeyoushop.

ShopwithPayPalandchooseSARDAAtoDonatewithPayPalGivingFundtohelpsupportSARDAA.

TexasandLouisianaFriends:

Re-EnrollYourKrogerPlusCards

YoucansupportSARDAAwithoutspendingapenny!Register

SchizophreniaandRelatedDisordersonyourKrogerPlusCardandtheywilldonateapercentagetoSARDAAeachtimeyouuseyour

card.

Pleaseregisteronlineatwww.krogercommunityrewards.com

Linkto:SchizophreniaandRelatedDisorders–KrogerPlusCardXA142

HelpChangeLives--DonateNow

Thankyoutothosewhoalreadymadeadonation.Everycontributionmakesadifference.

Sincerely,

JordanHelwig,CreativeDesignerAngelWhite,Editor